I Have Poikiloderma of Rothmund-thomson

A Poikiloderma Of Rothmund-Thomson anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Poikiloderma Of Rothmund-Thomson. You're not alone.

    Learning To Live With Rts

    my two children have been diagnosed with rothmund thomson syndrome jan.20/10.i am looking to find others dealing with this in their lives,and hear how they cope and what challenges they face.it is hard to find anyone who understands how scarey this is.i have already lost achild...
    rts2 rts2
    26-30, F
    Feb 12, 2010
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