I Have Poland Syndrome

A Poland Syndrome anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Poland Syndrome. You're not alone. 212 People

    I Have Ps

    I'm 18 years old and I have PS. I have a deformed right hand as some would say. But to me it's part of my life and its nothing different. I have short and under developed and webbed fingers. I also am missing my pectorial muscle in the right side. When I was younger I always...
    Tlapp1 Tlapp1
    3 Responses Dec 12, 2012

    Won't Change Me

    i was born with Poland's so i know what you guys are feeling. Sorry to the girls out there with it can't imagine what you are going through as young women. I was left behind by my German mother because of not being born normal. She blamed my father and left me in a motel room 2...
    stoodalone stoodalone
    31-35, M
    7 Responses Sep 14, 2012

    My Long Story

    When I was born I was diagnosed with Poland Syndrome. I was born with a concave chest and all of the muscles between my ribs missing on my left side. A few weeks after I was born my mum took me to the family doctor for a check-up he promptly told my mum “Don’t treat her like...
    Kate1502 Kate1502
    4 Responses Feb 7, 2013

    I invite everyone that has Poland Syndrome to

    visit my group on Facebook it is a closed group, I look forward to seeing you all there.
    Gene47 Gene47
    46-50, M
    1 Response May 1, 2015

    Poland Syndrome Girl :-/

    Today will be my first day that I will be telling people I don't know that I have PS. I'm sorry if I sound like a big baby. Okay now letsjust go straight into this! Well, I'm a young 20 year old female with a rare birth defect called (Poland Syndrome). My mom told me what I had...
    JT12345 JT12345
    26-30, F
    17 Responses Jul 19, 2012

    I'm 39 male I just came across this my whole

    life I was told I was just deformed My whole left side is small fingers were webbed and no muscles on my chest it's never bothered me but it's nice to know a possible name for it and iam not the only one
    deleted deleted
    Dec 15, 2015

    I am a 17 year old girl.

    I was only recently diagnosed with PS. The doctors in the orphanage that i was in thought it was dextrocardia so they didn't do anything. Only my left chest is affected. ( I don't have my pec.) It is really awesome to be able to share my experience and read other peoples...
    Lauraloohoo Lauraloohoo
    18-21, F
    3 Responses Jan 22, 2015

    A girl with Poland Syndrome.*

    Hi I am 18, and I have Poland Syndrome.  I am very blessed because I am only missing my left pectoral muscle.  Yes it does bring alot of struggles to my life, but I will not let Poland Syndrome define me.  I love hanging out with friends, swimming, and having lots and lots of...
    Shelbb Shelbb
    12 Responses Mar 9, 2012

    This is a follow up for my story "what doesn't

    kill you makes you stronger" My name is grace. I am now 16 years old and I just got my correction surgery last week! I had a muscle transplant from my back placed into my chest wall, and a saline implant to even out my breasts. It's very painful. But it is extremely worth it...
    marinagrace marinagrace
    13-15, F
    2 Responses Jul 22, 2014

    😄 I love my little hand I had my webbing

    Taken out when I was 16 it gave me more movement and the ability to ware a small glove and it doesn't stop me from doing anything
    deleted deleted
    Dec 16, 2015

    I'm 13 and have known

    that I have Poland syndrome all my life I'm lucky though I'm only missing my right pictorial muscle, my breast is inverted and my fingers on my right hand are short. When I was little I was told that it just needed time to grow in and I believed.that for a long time. If...
    Incorrect13 Incorrect13
    13-15, F
    3 Responses May 19, 2015

    Hi all....im a 39 year old male with PS.

    I do not have a left pec muscle, a webbed left hand (operated on when I was 14) , a couple of ribs missing on the left and a flipped heart. I'm naturally a laid back person and certainly don't want to dismiss anyone else's experiences however I have managed to live a very normal...
    Sharpysharp7 Sharpysharp7
    41-45, M
    3 Responses May 22, 2014

    Hi, I'm a 14 year old student with Poland

    Syndrome. I'm missing the right rep muscle in my chest, and honestly it doesn't cause me a lot of trouble. I'm not as strong as most people because of it. Like when I do pushups or bench press I have difficulties but otherwise it doesn't bother me that much. I can be pretty...
    Alee99 Alee99
    18-21, F
    2 Responses Jun 19, 2014

    I'm 18 and every time I look at myself in my

    bra & panty..I stare. I stare at my reflection and I'm happy with how I was born; bare left chest no pectorals/nipple/muscle just my ribs & heart. I don't really know what to do or think. I think about the surgery that could be done, to let me have 2 breasts instead of one...
    ardorzie ardorzie
    18-21, F
    7 Responses Aug 22, 2014

    Living With Poland Syndrome

    My name is Julie. I've known my whole life that I was born with Poland Syndrome. I was missing ribs, I am missing a breast and muscle pectoral muscle. I have dextra cardia which is a flipped heart. I found out recently that is common with Poland Syndrome. When I was born, I...
    Julabeeb Julabeeb
    46-50, F
    2 Responses Jun 9, 2013

    Poland Syndrome - My Experience

    Hey there. Im 19 and have Poland Syndrome. As you all know poland syndrome can effect people in different ways, for my personally, my pectoral muscle on my right breast is completely absent. I am luckier thank many other people as i still had some breast development as i was...
    GinaC123 GinaC123
    18-21, F
    4 Responses Jan 17, 2012

    My Daughter

    Hey everyone!I just wanted to share my experience. My daughter was born with PS and we had no idea what it was. The doctors told us her chest was deformed because when she was in the womb, her arm was pressed up against her chest the whole time and did not enable the chest...
    hartman4440 hartman4440
    12 Responses Feb 6, 2012

    My Story

    Hello my name is Leanne im 22 and was diagnosed with polands syndrome 2 years ago, when i finally had the bottle to tell somebody. when i started secondery school i hated it, i was bullied for my weight and having this aswell was horrible i wore baggy clothes and always covered...
    barr90 barr90
    22-25, F
    6 Responses Oct 21, 2012

    I Have Ps

    i was born with poland syndrome . when i was one i got my first operation i dont remember much i only remember waking up and having a bowl of corn flakes at first it was scary but when i got more operations i got used to it my mum said i was a brave girl that gave me confidence...
    moongirl333 moongirl333
    13-15, F
    5 Responses Apr 3, 2012

    Hello everybody! My name is Vanessa,

    I'm 17 and I live in Italy. I have PS and I've always known that, since I was born. I'm missing my right pectoral muscle and my right hand is small, as many of you. I've just found this group, I think it would be nice to talk to other people who feel like me. We are all special...
    vanetuli vanetuli
    18-21, F
    6 Responses Sep 9, 2015

    Hi I am a 24 year old female

    and I have Poland Syndrome :) I've had many surgeries, two this year, as my implant encapsulated :/ However, I have just found out I am pregnant with my second child :) I was just wondering if there was anyone in a similar situation or if anyone just wanted to talk about...
    lemonbear lemonbear
    26-30, F
    1 Response Jan 15, 2016

    Hi, I'm a 18 year old male,

    born in South Korea but now i call Australia my home and I have Poland Syndrome. When I was little i was told by my parents that my hand was small because i burnt it on boiling water when i was 3 years old... This was a lie which my parents made up so i don't feel put down by a...
    AusKorea AusKorea
    22-25, M
    5 Responses Mar 4, 2014

    Missing my left pectoral muscle,

    Every thing else is fine! Would like to talk to people have this type of thing 😊
    John746 John746
    22-25, M
    2 Responses Jun 7, 2015

    My Daughter

    I have a 7 year old daughter who has PS. She has no muscles or breast tissue on the right sid. She also doesnt have a nipple. The muscles on her back are smaller on the right side and it causes her problems with her shoulder.Recently see has started to become more aware of it...
    nmwplus3 nmwplus3
    26-30, F
    5 Responses Aug 31, 2012

    As a 16 year old girl,

    it's been a struggle to be a girl with polands syndrome, but luckily have had a great support system (both family and friends). Recently I have gotten my first boyfriend and am not sure how to "break the news" to him. I am missing a pec muscle on the left side of my chest and...
    hp6688 hp6688
    22-25, F
    4 Responses Mar 7, 2015

    I have Poland syndrome

    since I was born. I'm missing my right pec. I Struggled though school and when I left I sighed strait up for the army. I have found out that it is much harder to do everything. Push ups shooting and all that sort of stuff but now I'm the second best shot in my platoon and can do...
    benheggarty benheggarty
    18-21, M
    1 Response Mar 15, 2015

    So here we are, Ep is about to close.

    It's been nice talking to some of you, finding out there was someone else with the same issues. I wish you all the best :)
    vanetuli vanetuli
    18-21, F
    Apr 21, 2016

    I am 39 and I am a kitchen cabinet maker my

    whole left side is drastically smaller it's never been a down side for me I just look at all the positive things I can do that others can't do
    deleted deleted
    Dec 15, 2015

    Never Felt Like Anyone Really Could Understand... I Guess We'Re Not Alone After All.

    [ Before you get to my story, I'm hoping you'll check out my post in the forum about trying to get people together for a gathering. I know, meeting in the real world? What a crazy concept in the age of social networks and smartphones. But, its been an idea rolling around in my...
    quirch43 quirch43
    36-40, M
    4 Responses Feb 17, 2013

    Finally Figured Out Why I Was Different

    I have spent pretty much my whole life trying to hide my little hand and the difference in my breast. I am a 35 yr old woman. I took up lifting about 10 months ago after losing weight. I couldn't understand why my right arm seems to lack a bit of strenght and why I could never...
    Ver0 Ver0
    36-40, F
    10 Responses Nov 8, 2013

    Yes, sorry I do have stress: from pain.

    I have developed a few complications lately. They are a pain that persist in my right lung and the c-6,c-7 L vertibrae (neck). I'm sorry if my stress has affected you. issues of weakness, insecurity & doubt have affected me. My life seems to revolve around trying to compensate...
    JEM404 JEM404
    46-50, M
    Jan 7, 2016

    I have PS, and iv known about it

    since I have was about 10. At age 17 I had a breast implant put on my right breast, so that my breasts could look even . I'm 21 now , and am having difficulty getting intimate with a guy iv been dating because of the fact that the breast with the implant looks and feels soo...
    Vs2795 Vs2795
    22-25, F
    Mar 28, 2016

    It's been quite a ride with Poland's Syndrome.

    When I was born, the doctors didn't notice my pectoral muscle missing. After about 8 days, my left hand was paralyzed and my mom took me to the hospital, the doctors said that I've PS and that my hand was to be excercised every day for two months and maybe then my hand would be...
    Sidhant101 Sidhant101
    4 Responses Jun 2, 2015

    Within the last year,

    I have been diagnosed with PS. Unlike some of the stories I've glimpsed on here, it primarily is my dominant right hand. My hand was always small and extremely thin, but doctors reassured me that I was "normal." After writing became extremely difficult, I went all over the East...
    HypoplasticHand HypoplasticHand
    22-25, F
    1 Response Aug 14, 2015

    Hello All, I'm a mother of an amazing 6 year

    boy! He's a smart, fun, sporty kind of guy. He loves being the center of attention. He also has PS. He had surgery at age 3 to separate his two fingers. Now that he is older I've noticed a difference in him. He now hides his hand ALL the time, because kids at school have...
    mommyPS mommyPS
    36-40, F
    3 Responses May 27, 2014

    hi, i am kiran and i have poland syndrome

    pretty fun say becoz recently i came to knw to that i'm suffering from it. All of my life till now i was wondering why is my right chest and hand are quite smaller,weaker and muscular than my left ! i kept asking people (family and friends) and googled it up but nothing came...
    kirankoundinya kirankoundinya
    22-25, M
    1 Response Jun 17, 2015

    22 Yr Old Female With Ps

    I was diagnosed with PS before I had my first birthday. Growing up was tough. When I hit puberty other girls noticed and mocked me for have one breasts developing, and not the other. I am missing the right pectoral muscle. I guess you could say I'm lucky as that's the only thing...
    robinxleigh122 robinxleigh122
    4 Responses Apr 9, 2012

    Hi everybody, all my life I have struggled

    significantly with body image. Went through school with an overwhelming insecurity and belief that i'd never be or feel good enough. Sounds familiar right? So what did I do? I sat with my self pity, blamed Poland Syndrome for the way I felt. I hated who I was inside and out...
    PS18girl PS18girl
    18-21, F
    2 Responses Oct 4, 2015

    What Doesn'T Kill You Makes You Stronger

    Hi... I'm Grace and I'm 15 years old. I'm a freshmen in high school. I was diagnosed with PS a few days ago. My right breast is way bigger then my left. I first started noticing that my right side was bigger then my left side when I was in fourth grade. When I hit middle school...
    marinagrace marinagrace
    13-15, F
    12 Responses Jan 27, 2013

    Hi call me Sean. I'm 21 years of age

    and I have Poland syndrome. I am missing my left pec muscle and it haunts me practically everyday. I feel as if I have I've become alittle bit used to the idea but there are times where I can't even bear to realize what realty is. Seeing people my age working out and becoming...
    Life1sinteresting Life1sinteresting
    22-25, M
    6 Responses Feb 28, 2015

    After 46 Years And A Motorcycle Accident

    After 46 years of not knowing why my right hand and chest were deformed it took a motorcycle accident last year and a trip to a near by hospital for a Dr. to tell me what I've wanted to know all these years that I had Poland Disease or Poland Syndrome. My fingers were webbed and...
    Gene47 Gene47
    46-50, M
    3 Responses Apr 28, 2012

    I am a 23 year old female

    who suffers from Poland's Syndrome. It's actually good to know there are some people out there who can relate to all the daily problems PS creates. We have to embrase ourselves and accept the fact that we were born just a little more special than everyone else. And that is...
    uocgreece uocgreece
    22-25, F
    Apr 17, 2016

    One of my reasons for being here is 2 meet

    peeps like me. Luckily for me, only my breast at my right hand side is affected, it hasn't grown at all, staying in boarding school and trying 2 hide it was extremely tough for me, i felt inferior going out and imagining what it'll be like 2 hv breast growing at my right hand...
    4everoptie 4everoptie
    18-21, F
    4 Responses May 9, 2015

    first of all I found all

    if this by chance and I almost started to cry. I was diagnosed with PS when I was born (thank you Cali hospitals) my right hand was small and webbed and I was missing my right pictorial major. my whole right side is slightly smaller. I have only ever met one other person with PS...
    Everrisingmoon Everrisingmoon
    18-21, F
    4 Responses May 1, 2015

    I am 16 years old and I have poland syndrome.

    I was diagnosed when I was old enough to sit up by myself, I have coped with this for a long time, I was promised my reconstructive surgery for years, to start with the many different options where discussed, during this time I had several photos of my chest taken to monitor my...
    Blondiee137 Blondiee137
    18-21, F
    3 Responses Feb 1, 2015

    I'm 17 And Was Just Diagnosed With Poland Syndrome.

    Hi, I'm 17 years old. My names Olivia. I was just recently diagnosed with Poland Syndrome. I had no idea what I had before I was diagnosed. I always looked at myself in the mirror and felt horriable about myself for it. On my right side I'm missing my pectorial muscle, and the...
    Livviee Livviee
    18-21, F
    5 Responses Jun 18, 2012

    Hey.. My name is Thomas

    and i have Poland's syndome. I was born in 1970 and didn't know what it even was til i was around 28. I had a really hard time growing up. Kids can be very cruel and teenager's are even worse. I had a really volatile childhood . my parents were divorced when i was 5 and my dad...
    tommymac70 tommymac70
    46-50, M
    Apr 17, 2016

    Im 16 and I struggle with Poland syndrome just

    as much as everyone else. I was fortunate in my case as I am only missing my right peck and an arm muscle. Other than that, I have no other defect. I struggle with my condition daily as I weight lift and feel as though I can't be as confident as other guys in the gym. I plan to...
    FreeWilly04 FreeWilly04
    18-21, M
    3 Responses Jun 25, 2015
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