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I Have Poland Syndrome

A Poland Syndrome anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Poland Syndrome. You're not alone. 194 People

    What Doesn'T Kill You Makes You Stronger

    Hi... I'm Grace and I'm 15 years old. I'm a freshmen in high school. I was diagnosed with PS a few days ago. My right breast is way bigger then my left. I first started noticing that my right side was bigger then my left side when I was in fourth grade. When I hit middle school...
    marinagrace marinagrace 13-15, F 11 Responses Jan 27, 2013

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    I Have Polands Syndrome,male 30 Uk Birmingham

    Hello i also have polands, small right hand (all ends of fingers missing after knuckle but preportioned ok ) which was webbed,right peck missing,right arm 7cm shorter,and collor bone shorter,i know every case is different but how can people only find out when there like 11 -12...
    richhall1712 richhall1712 31-35, M Apr 1, 2012

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    Im 16 and I struggle with Poland syndrome just

    as much as everyone else. I was fortunate in my case as I am only missing my right peck and an arm muscle. Other than that, I have no other defect. I struggle with my condition daily as I weight lift and feel as though I can't be as confident as other guys in the gym. I plan to...
    FreeWilly04 FreeWilly04 16-17, M 1 Response Jun 25

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    I'm 13 and have known

    that I have Poland syndrome all my life I'm lucky though I'm only missing my right pictorial muscle, my breast is inverted and my fingers on my right hand are short. When I was little I was told that it just needed time to grow in and I believed.that for a long time. If...
    Incorrect13 Incorrect13 13-15, F 1 Response May 19

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    Finally Moving Forward

    Hi, my name is Lisa and I'm 44 years old and found out what "I had" is Poland's Syndrome when I was 36. Not really sure where to start with this, but I never knew there was a name for what I have. My mother just used to say " your just missing a muscle there...you cant even...
    ForrestL ForrestL 41-45, F 3 Responses Aug 19, 2013

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    Hello, I'm a mother of one handsome 9 month old

    boy. When my husband and I left the hospital June 29, 2013. We were never told that our son was born with Poland Syndrome. After his 1 week old checkup. Doctor told us everything looked wonderful healthy lil boy! One week later I noticed something wasn't right with his chest. I...
    Bernadzikowski Bernadzikowski 26-30, F 2 Responses Apr 2, 2014

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    THERE COMES TO A POINT THAT YOU REALIZE THAT

    ANY OR ALL RESOURCES AFFORTED TO A PERSON WITH A DISABILITY IS A SCAM; LEGAL, MEDICAL SHOULD BE BOUND TO A LEGAL ETHIC STANDARD, SADLY THEY ARE NOT , THEY CAN TAKE ADVANTAGE OF YOU THE SAME AS A CITIZEN (CRIMINAL), DON'T STAND FOR IT!, APPEAL DECISIONS YOU DON'T APPROVE OF!
    JEM404 JEM404 46-50, M Dec 11, 2014

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    As a 16 year old girl,

    it's been a struggle to be a girl with polands syndrome, but luckily have had a great support system (both family and friends). Recently I have gotten my first boyfriend and am not sure how to "break the news" to him. I am missing a pec muscle on the left side of my chest and...
    hp6688 hp6688 18-21, F 3 Responses Mar 7

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    This is a follow up for my story "what doesn't

    kill you makes you stronger" My name is grace. I am now 16 years old and I just got my correction surgery last week! I had a muscle transplant from my back placed into my chest wall, and a saline implant to even out my breasts. It's very painful. But it is extremely worth it...
    marinagrace marinagrace 13-15, F 1 Response Jul 22, 2014

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    One of my reasons for being here is 2 meet

    peeps like me. Luckily for me, only my breast at my right hand side is affected, it hasn't grown at all, staying in boarding school and trying 2 hide it was extremely tough for me, i felt inferior going out and imagining what it'll be like 2 hv breast growing at my right hand...
    4everoptie 4everoptie 16-17, F 3 Responses May 9

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    Poland Syndrome Everyday

    Hi I'm 17 years old girl and I wanted to share my story for having some advices from people who have the same syndrome or others too :)I got 5 surgeries for breast reconstruction, the truth is that I feel better now but not enough because I can't wear  whatever I want and no one...
    missmirado missmirado 16-17 9 Responses Oct 16, 2011

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    My Long Story

    When I was born I was diagnosed with Poland Syndrome. I was born with a concave chest and all of the muscles between my ribs missing on my left side. A few weeks after I was born my mum took me to the family doctor for a check-up he promptly told my mum “Don’t treat her like...
    Kate1502 Kate1502 13-15 3 Responses Feb 7, 2013

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    Never Felt Like Anyone Really Could Understand... I Guess We'Re Not Alone After All.

    [ Before you get to my story, I'm hoping you'll check out my post in the forum about trying to get people together for a gathering. I know, meeting in the real world? What a crazy concept in the age of social networks and smartphones. But, its been an idea rolling around in my...
    quirch43 quirch43 36-40, M 3 Responses Feb 17, 2013

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    WILL POWER. HAVING A POSITIVE ROLE,

    RESPECT, FUNDAMENTAL ETHICS ARE A GOD GIVEN RIGHT, SCARRY TO THINK SOME ARE LACKING. SUPPORT POLANDS SYNDROME
    JEM404 JEM404 46-50, M Oct 24, 2014

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    THE MORE THEY TELL ME THEY CAN'T HELP ME OR

    COMPLETELY IGNORE ME OR MY ISSUES, THE MORE I LOOSE FAITH IN HUMANITY AND MY FELLOW MAN. "DISCRIMINATION", IS A LIFE LESSON FOR A PERSON WITH A BIRTH DEFORMITY. REPORTING ABUSE IS STRONGLY ADVISED. DON'T BE A VICTIM, REPORT ANYONE FOR ANY HARM DONE UNTO YOU. EVEN EMOTIONAL...
    JEM404 JEM404 46-50, M 1 Response Mar 1

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    Won't Change Me

    i was born with Poland's so i know what you guys are feeling. Sorry to the girls out there with it can't imagine what you are going through as young women. I was left behind by my German mother because of not being born normal. She blamed my father and left me in a motel room 2...
    stoodalone stoodalone 31-35, M 6 Responses Sep 14, 2012

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    first of all I found all

    if this by chance and I almost started to cry. I was diagnosed with PS when I was born (thank you Cali hospitals) my right hand was small and webbed and I was missing my right pictorial major. my whole right side is slightly smaller. I have only ever met one other person with PS...
    Everrisingmoon Everrisingmoon 18-21, F 2 Responses May 1

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    Living With Poland Syndrome

    My name is Julie. I've known my whole life that I was born with Poland Syndrome. I was missing ribs, I am missing a breast and muscle pectoral muscle. I have dextra cardia which is a flipped heart. I found out recently that is common with Poland Syndrome. When I was born, I...
    Julabeeb Julabeeb 46-50, F 1 Response Jun 9, 2013

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    I Have Polands Syndrome

    So, I am sixteen, seventeen in a few days and I was born with Polands Syndrome. It is horrible, it makes me feel disgusting. I cant be a normal girl because I have something which stops me from being normal. But I have finally got a consultation with a plastic surgeon. I have...
    Jasmineeeeeee Jasmineeeeeee 16-17, F 6 Responses May 13, 2012

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    JEM404 JEM404 46-50, M Dec 13, 2014

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    IT IS MY EXPERIENCE THAT A FACILITY I ATTEND,

    "ATTENDED", "WON'T AGAIN", DO'ES NOT TREAT BIRTH DEFORMITY, YES, THIS STATE FACILITY WON'T TREAT A PERSON FOR BIRTH DEFORMITY TRAUMA, NO MATTER HOW SEVER, SOMETIMES THEY SMIRK AND DENY IT, BUT THERE MAIN GOAL IS MONEY, YOU'RE THOUGHT'S?
    JEM404 JEM404 46-50, M Aug 20, 2014

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    A girl with Poland Syndrome.*

    Hi I am 18, and I have Poland Syndrome.  I am very blessed because I am only missing my left pectoral muscle.  Yes it does bring alot of struggles to my life, but I will not let Poland Syndrome define me.  I love hanging out with friends, swimming, and having lots and lots of...
    Shelbb Shelbb 13-15 11 Responses Mar 9, 2012

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    Hi, I'm a 14 year old student with Poland

    Syndrome. I'm missing the right rep muscle in my chest, and honestly it doesn't cause me a lot of trouble. I'm not as strong as most people because of it. Like when I do pushups or bench press I have difficulties but otherwise it doesn't bother me that much. I can be pretty...
    Alee99 Alee99 13-15, F 1 Response Jun 19, 2014

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    Poland Syndrome

    Hi I am 31 I was told when i was very young that i have poland syndrome going to school was hard kids making fun of me name calling getting picked last to play games was always trying to hide my hand around new people sometimes I still do it and dont realize it until someone says...
    mkparrish mkparrish 31-35 2 Responses Jun 20, 2013

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    Poland Syndrome

    Hi my name is Grace i am 12 years old coming up to 13 ... i was diagnosed with Poland Syndrome at birth. My left breast hasn't developed as i was born with 2 ribs and a muscle missing. ever since a young age i have been under the hospitals care . now that i have got older i have...
    Grace00ps Grace00ps 13-15 2 Responses Aug 7, 2013

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    I am a 17 year old girl.

    I was only recently diagnosed with PS. The doctors in the orphanage that i was in thought it was dextrocardia so they didn't do anything. Only my left chest is affected. ( I don't have my pec.) It is really awesome to be able to share my experience and read other peoples...
    Lauraloohoo Lauraloohoo 16-17, F 2 Responses Jan 22

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    Finally Figured Out Why I Was Different

    I have spent pretty much my whole life trying to hide my little hand and the difference in my breast. I am a 35 yr old woman. I took up lifting about 10 months ago after losing weight. I couldn't understand why my right arm seems to lack a bit of strenght and why I could never...
    Ver0 Ver0 36-40, F 8 Responses Nov 8, 2013

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    It's been quite a ride with Poland's Syndrome.

    When I was born, the doctors didn't notice my pectoral muscle missing. After about 8 days, my left hand was paralyzed and my mom took me to the hospital, the doctors said that I've PS and that my hand was to be excercised every day for two months and maybe then my hand would be...
    Sidhant101 Sidhant101 13-15 2 Responses Jun 2

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    I have Poland syndrome

    since I was born. I'm missing my right pec. I Struggled though school and when I left I sighed strait up for the army. I have found out that it is much harder to do everything. Push ups shooting and all that sort of stuff but now I'm the second best shot in my platoon and can do...
    benheggarty benheggarty 16-17, M Mar 15

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    After 46 Years And A Motorcycle Accident

    After 46 years of not knowing why my right hand and chest were deformed it took a motorcycle accident last year and a trip to a near by hospital for a Dr. to tell me what I've wanted to know all these years that I had Poland Disease or Poland Syndrome. My fingers were webbed and...
    Gene47 Gene47 46-50, M 2 Responses Apr 28, 2012

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    hi, i am kiran and i have poland syndrome

    pretty fun say becoz recently i came to knw to that i'm suffering from it. All of my life till now i was wondering why is my right chest and hand are quite smaller,weaker and muscular than my left ! i kept asking people (family and friends) and googled it up but nothing came...
    kirankoundinya kirankoundinya 22-25, M Jun 17

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    Not To Bad But Not That Great

    Hi everyone. I have PS on my left side which is less common from my readings. I guess I found out that I had PS in 5th or 6th grade. We were on vacation at the beach and my parents were taking pics. I was able to really see the missing pec from the photo. I was always...
    Roundrock Roundrock 46-50, M 4 Responses May 25, 2013

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    I am 16 years old and I have poland syndrome.

    I was diagnosed when I was old enough to sit up by myself, I have coped with this for a long time, I was promised my reconstructive surgery for years, to start with the many different options where discussed, during this time I had several photos of my chest taken to monitor my...
    Blondiee137 Blondiee137 16-17, F 2 Responses Feb 1

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    Hi, I'm a 18 year old male,

    born in South Korea but now i call Australia my home and I have Poland Syndrome. When I was little i was told by my parents that my hand was small because i burnt it on boiling water when i was 3 years old... This was a lie which my parents made up so i don't feel put down by a...
    AusKorea AusKorea 18-21, M 4 Responses Mar 4, 2014

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    Poland Syndrome - My Experience

    Hey there. Im 19 and have Poland Syndrome. As you all know poland syndrome can effect people in different ways, for my personally, my pectoral muscle on my right breast is completely absent. I am luckier thank many other people as i still had some breast development as i was...
    GinaC123 GinaC123 18-21, F 3 Responses Jan 17, 2012

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    I had Poland syndrome my whole life

    and had 3 of my fingers(index, middle, ring) attached together on my right hand and it stunned its growth until I was 6 months old. I am missing my right pec and my right bicep is about the size of a toddlers bicep. I was bullied about it my whole life and it didn't help when my...
    Tylerastro909 Tylerastro909 13-15, M 3 Responses Feb 1, 2014

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    Hi call me Sean. I'm 21 years of age

    and I have Poland syndrome. I am missing my left pec muscle and it haunts me practically everyday. I feel as if I have I've become alittle bit used to the idea but there are times where I can't even bear to realize what realty is. Seeing people my age working out and becoming...
    Life1sinteresting Life1sinteresting 18-21, M 4 Responses Feb 28

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    I Have Ps

    I'm 18 years old and I have PS. I have a deformed right hand as some would say. But to me it's part of my life and its nothing different. I have short and under developed and webbed fingers. I also am missing my pectorial muscle in the right side. When I was younger I always...
    Tlapp1 Tlapp1 18-21 2 Responses Dec 12, 2012

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    The Long And Winding Road

    when i was 14 years old, i was the last of my friends to get my period. this was odd as i was already very tall and no women in my family had any 'female issues' to speak of. shortly after my period came, my left breast started growing rapidly, while my right breast stayed...
    daphne35 daphne35 22-25, F 1 Response Jun 24, 2013

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    I invite everyone that has Poland Syndrome to

    visit my group on Facebook it is a closed group, I look forward to seeing you all there.
    Gene47 Gene47 46-50, M 1 Response May 1

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    I Have Ps

    i was born with poland syndrome . when i was one i got my first operation i dont remember much i only remember waking up and having a bowl of corn flakes at first it was scary but when i got more operations i got used to it my mum said i was a brave girl that gave me confidence...
    moongirl333 moongirl333 13-15, F 4 Responses Apr 3, 2012

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    My Daughter

    Hey everyone!I just wanted to share my experience. My daughter was born with PS and we had no idea what it was. The doctors told us her chest was deformed because when she was in the womb, her arm was pressed up against her chest the whole time and did not enable the chest...
    hartman4440 hartman4440 18-21 10 Responses Feb 6, 2012

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    My Daughter

    I have a 7 year old daughter who has PS. She has no muscles or breast tissue on the right sid. She also doesnt have a nipple. The muscles on her back are smaller on the right side and it causes her problems with her shoulder.Recently see has started to become more aware of it...
    nmwplus3 nmwplus3 26-30, F 4 Responses Aug 31, 2012

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    I'm 18 and every time I look at myself in my

    bra & panty..I stare. I stare at my reflection and I'm happy with how I was born; bare left chest no pectorals/nipple/muscle just my ribs & heart. I don't really know what to do or think. I think about the surgery that could be done, to let me have 2 breasts instead of one...
    ardorzie ardorzie 18-21, F 6 Responses Aug 22, 2014

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    Missing my left pectoral muscle,

    Every thing else is fine! Would like to talk to people have this type of thing 😊
    John746 John746 18-21, M Jun 7

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    I'm 17 And Was Just Diagnosed With Poland Syndrome.

    Hi, I'm 17 years old. My names Olivia. I was just recently diagnosed with Poland Syndrome. I had no idea what I had before I was diagnosed. I always looked at myself in the mirror and felt horriable about myself for it. On my right side I'm missing my pectorial muscle, and the...
    Livviee Livviee 16-17, F 4 Responses Jun 18, 2012

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