Post
Experience Project iOS Android Apps | Download EP for your Mobile Device

I Have Poland Syndrome

A Poland Syndrome anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Poland Syndrome. You're not alone. 184 People

    I'm 17 And Was Just Diagnosed With Poland Syndrome.

    Hi, I'm 17 years old. My names Olivia. I was just recently diagnosed with Poland Syndrome. I had no idea what I had before I was diagnosed. I always looked at myself in the mirror and felt horriable about myself for it. On my right side I'm missing my pectorial muscle, and the...
    Livviee Livviee 16-17, F 4 Responses Jun 18, 2012

    Your Response

    Cancel

    Followed up with Pulmonoligist .

    Turns out I have a 55% lung capacity. I don't smoke and am in great health otherwise. Unless i wanted to have reconstructive surgery and move or replace ribs, I will always have this limitation... OUCH. That sucks! So what do I do when I hear this? I do the Syracuse Ride for...
    Julabeeb Julabeeb 41-45, F 3 Responses Jan 26, 2014

    Your Response

    Cancel

    I am 16 years old and I have poland syndrome.

    I was diagnosed when I was old enough to sit up by myself, I have coped with this for a long time, I was promised my reconstructive surgery for years, to start with the many different options where discussed, during this time I had several photos of my chest taken to monitor my...
    Blondiee137 Blondiee137 16-17, F 2 Responses Feb 1

    Your Response

    Cancel

    The Long And Winding Road

    when i was 14 years old, i was the last of my friends to get my period. this was odd as i was already very tall and no women in my family had any 'female issues' to speak of. shortly after my period came, my left breast started growing rapidly, while my right breast stayed...
    daphne35 daphne35 22-25, F 1 Response Jun 24, 2013

    Your Response

    Cancel

    22 Yr Old Female With Ps

    I was diagnosed with PS before I had my first birthday. Growing up was tough. When I hit puberty other girls noticed and mocked me for have one breasts developing, and not the other. I am missing the right pectoral muscle. I guess you could say I'm lucky as that's the only thing...
    robinxleigh122 robinxleigh122 22-25 3 Responses Apr 9, 2012

    Your Response

    Cancel

    Wouldnt Wish On Anyone!

    hey there.im a 28year old woman born with ps.i was first diagnoised @ 6mnths old but doctors didnt really have a clue what to do or really what could be done.didnt know then and still trying to figure it out now.(ill tell you why i say this but later,k)anyway,so glad i found this...
    28nzPS 28nzPS 26-30, F 2 Responses Jun 7, 2012

    Your Response

    Cancel

    Won't Change Me

    i was born with Poland's so i know what you guys are feeling. Sorry to the girls out there with it can't imagine what you are going through as young women. I was left behind by my German mother because of not being born normal. She blamed my father and left me in a motel room 2...
    stoodalone stoodalone 31-35, M 6 Responses Sep 14, 2012

    Your Response

    Cancel

    What Doesn'T Kill You Makes You Stronger

    Hi... I'm Grace and I'm 15 years old. I'm a freshmen in high school. I was diagnosed with PS a few days ago. My right breast is way bigger then my left. I first started noticing that my right side was bigger then my left side when I was in fourth grade. When I hit middle school...
    marinagrace marinagrace 13-15, F 11 Responses Jan 27, 2013

    Your Response

    Cancel

    A girl with Poland Syndrome.*

    Hi I am a junior in highschool, and I have Poland Syndrome.  I am very blessed because I am only missing my left pectoral muscle.  Yes it does bring alot of struggles to my life, but I will not let Poland Syndrome define me.  I love hanging out with friends, swimming, and...
    Shelbb Shelbb 13-15 10 Responses Mar 9, 2012

    Your Response

    Cancel

    Hi call me Sean. I'm 21 years of age

    and I have Poland syndrome. I am missing my left pec muscle and it haunts me practically everyday. I feel as if I have I've become alittle bit used to the idea but there are times where I can't even bear to realize what realty is. Seeing people my age working out and becoming...
    Life1sinteresting Life1sinteresting 18-21, M 2 Responses Feb 28

    Your Response

    Cancel

    THERE COMES TO A POINT THAT YOU REALIZE THAT

    ANY OR ALL RESOURCES AFFORTED TO A PERSON WITH A DISABILITY IS A SCAM; LEGAL, MEDICAL SHOULD BE BOUND TO A LEGAL ETHIC STANDARD, SADLY THEY ARE NOT , THEY CAN TAKE ADVANTAGE OF YOU THE SAME AS A CITIZEN (CRIMINAL), DON'T STAND FOR IT!, APPEAL DECISIONS YOU DON'T APPROVE OF!
    JEM404 JEM404 41-45, M Dec 11, 2014

    Your Response

    Cancel

    Poland Syndrome Everyday

    Hi I'm 17 years old girl and I wanted to share my story for having some advices from people who have the same syndrome or others too :)I got 5 surgeries for breast reconstruction, the truth is that I feel better now but not enough because I can't wear  whatever I want and no one...
    missmirado missmirado 16-17 9 Responses Oct 16, 2011

    Your Response

    Cancel

    Hello, I'm a mother of one handsome 9 month old

    boy. When my husband and I left the hospital June 29, 2013. We were never told that our son was born with Poland Syndrome. After his 1 week old checkup. Doctor told us everything looked wonderful healthy lil boy! One week later I noticed something wasn't right with his chest. I...
    Bernadzikowski Bernadzikowski 26-30, F 2 Responses Apr 2, 2014

    Your Response

    Cancel

    I had Poland syndrome my whole life

    and had 3 of my fingers(index, middle, ring) attached together on my right hand and it stunned its growth until I was 6 months old. I am missing my right pec and my right bicep is about the size of a toddlers bicep. I was bullied about it my whole life and it didn't help when my...
    Tylerastro909 Tylerastro909 13-15, M 3 Responses Feb 1, 2014

    Your Response

    Cancel

    My Story

    Hello my name is Leanne im 22 and was diagnosed with polands syndrome 2 years ago, when i finally had the bottle to tell somebody. when i started secondery school i hated it, i was bullied for my weight and having this aswell was horrible i wore baggy clothes and always covered...
    barr90 barr90 22-25, F 5 Responses Oct 21, 2012

    Your Response

    Cancel

    HELLO. I AM 44. I HAVE HAD PROBLEMS

    REGUARDING TREATMENT AT FACILITIES SUCH AS HATRED AND VIOLENT TENDANCIES TOWARD PERSONS WITH POLANDS SYNDROME. EVERYONE NEEDS HELP?
    JEM404 JEM404 41-45, M 2 Responses May 15, 2014

    Your Response

    Cancel

    THE MORE THEY TELL ME THEY CAN'T HELP ME OR

    COMPLETELY IGNORE ME OR MY ISSUES, THE MORE I LOOSE FAITH IN HUMANITY AND MY FELLOW MAN. "DISCRIMINATION", IS A LIFE LESSON FOR A PERSON WITH A BIRTH DEFORMITY. REPORTING ABUSE IS STRONGLY ADVISED. DON'T BE A VICTIM, REPORT ANYONE FOR ANY HARM DONE UNTO YOU. EVEN EMOTIONAL...
    JEM404 JEM404 41-45, M 1 Response Mar 1

    Your Response

    Cancel

    WILL POWER. HAVING A POSITIVE ROLE,

    RESPECT, FUNDAMENTAL ETHICS ARE A GOD GIVEN RIGHT, SCARRY TO THINK SOME ARE LACKING. SUPPORT POLANDS SYNDROME
    JEM404 JEM404 41-45, M Oct 24, 2014

    Your Response

    Cancel

    Hello All, I'm a mother of an amazing 6 year

    boy! He's a smart, fun, sporty kind of guy. He loves being the center of attention. He also has PS. He had surgery at age 3 to separate his two fingers. Now that he is older I've noticed a difference in him. He now hides his hand ALL the time, because kids at school have...
    mommyPS mommyPS 36-40, F 1 Response May 27, 2014

    Your Response

    Cancel

    Hi, I'm a 14 year old student with Poland

    Syndrome. I'm missing the right rep muscle in my chest, and honestly it doesn't cause me a lot of trouble. I'm not as strong as most people because of it. Like when I do pushups or bench press I have difficulties but otherwise it doesn't bother me that much. I can be pretty...
    Alee99 Alee99 13-15, F 1 Response Jun 19, 2014

    Your Response

    Cancel

    Poland Syndrome - My Experience

    Hey there. Im 19 and have Poland Syndrome. As you all know poland syndrome can effect people in different ways, for my personally, my pectoral muscle on my right breast is completely absent. I am luckier thank many other people as i still had some breast development as i was...
    GinaC123 GinaC123 18-21, F 3 Responses Jan 17, 2012

    Your Response

    Cancel
    JEM404 JEM404 41-45, M 1 Response Jul 28, 2014

    Your Response

    Cancel

    Living With Poland Syndrome

    My name is Julie. I've known my whole life that I was born with Poland Syndrome. I was missing ribs, I am missing a breast and muscle pectoral muscle. I have dextra cardia which is a flipped heart. I found out recently that is common with Poland Syndrome. When I was born, I...
    Julabeeb Julabeeb 41-45, F 1 Response Jun 9, 2013

    Your Response

    Cancel

    I Have Ps

    I'm 18 years old and I have PS. I have a deformed right hand as some would say. But to me it's part of my life and its nothing different. I have short and under developed and webbed fingers. I also am missing my pectorial muscle in the right side. When I was younger I always...
    Tlapp1 Tlapp1 18-21 2 Responses Dec 12, 2012

    Your Response

    Cancel

    As a 16 year old girl,

    it's been a struggle to be a girl with polands syndrome, but luckily have had a great support system (both family and friends). Recently I have gotten my first boyfriend and am not sure how to "break the news" to him. I am missing a pec muscle on the left side of my chest and...
    hp6688 hp6688 18-21, F 1 Response Mar 7

    Your Response

    Cancel

    Finally Figured Out Why I Was Different

    I have spent pretty much my whole life trying to hide my little hand and the difference in my breast. I am a 35 yr old woman. I took up lifting about 10 months ago after losing weight. I couldn't understand why my right arm seems to lack a bit of strenght and why I could never...
    Ver0 Ver0 36-40, F 8 Responses Nov 8, 2013

    Your Response

    Cancel

    I Have Ps

    i was born with poland syndrome . when i was one i got my first operation i dont remember much i only remember waking up and having a bowl of corn flakes at first it was scary but when i got more operations i got used to it my mum said i was a brave girl that gave me confidence...
    moongirl333 moongirl333 13-15, F 4 Responses Apr 3, 2012

    Your Response

    Cancel

    My Daughter

    I have a 7 year old daughter who has PS. She has no muscles or breast tissue on the right sid. She also doesnt have a nipple. The muscles on her back are smaller on the right side and it causes her problems with her shoulder.Recently see has started to become more aware of it...
    nmwplus3 nmwplus3 26-30, F 4 Responses Aug 31, 2012

    Your Response

    Cancel

    I have Poland syndrome

    since I was born. I'm missing my right pec. I Struggled though school and when I left I sighed strait up for the army. I have found out that it is much harder to do everything. Push ups shooting and all that sort of stuff but now I'm the second best shot in my platoon and can do...
    benheggarty benheggarty 16-17, M Mar 15

    Your Response

    Cancel

    I'm 18 and every time I look at myself in my

    bra & panty..I stare. I stare at my reflection and I'm happy with how I was born; bare left chest no pectorals/nipple/muscle just my ribs & heart. I don't really know what to do or think. I think about the surgery that could be done, to let me have 2 breasts instead of one...
    ardorzie ardorzie 18-21, F 5 Responses Aug 22, 2014

    Your Response

    Cancel

    I Have Polands Syndrome

    So, I am sixteen, seventeen in a few days and I was born with Polands Syndrome. It is horrible, it makes me feel disgusting. I cant be a normal girl because I have something which stops me from being normal. But I have finally got a consultation with a plastic surgeon. I have...
    Jasmineeeeeee Jasmineeeeeee 16-17, F 6 Responses May 13, 2012

    Your Response

    Cancel

    IT IS MY EXPERIENCE THAT A FACILITY I ATTEND,

    "ATTENDED", "WON'T AGAIN", DO'ES NOT TREAT BIRTH DEFORMITY, YES, THIS STATE FACILITY WON'T TREAT A PERSON FOR BIRTH DEFORMITY TRAUMA, NO MATTER HOW SEVER, SOMETIMES THEY SMIRK AND DENY IT, BUT THERE MAIN GOAL IS MONEY, YOU'RE THOUGHT'S?
    JEM404 JEM404 41-45, M Aug 20, 2014

    Your Response

    Cancel

    My Long Story

    When I was born I was diagnosed with Poland Syndrome. I was born with a concave chest and all of the muscles between my ribs missing on my left side. A few weeks after I was born my mum took me to the family doctor for a check-up he promptly told my mum “Don’t treat her like...
    Kate1502 Kate1502 13-15 3 Responses Feb 7, 2013

    Your Response

    Cancel

    So im 15 and I was diagnosed with PS

    when I was about 4 years old, thats the time when your life really changes.Now im quite lucky in some ways at it only affects my chest, I know it can cause things like webbed fingers etc. The things I can remember is when we used to go swimming at school, I used to have to get...
    Tilly125 Tilly125 16-17, F 5 Responses Jan 10, 2014

    Your Response

    Cancel

    Poland Syndrome Girl :-/

    Today will be my first day that I will be telling people I don't know that I have PS. I'm sorry if I sound like a big baby. Okay now letsjust go straight into this! Well, I'm a young 20 year old female with a rare birth defect called (Poland Syndrome). My mom told me what I had...
    JT12345 JT12345 22-25, F 14 Responses Jul 19, 2012

    Your Response

    Cancel

    I have been struggling to come to terms with my

    body for as long as I can remember. I have so much shame, anger, and guilt related to how I think and feel about myself and my body. And somehow, I just can't seem to get passed it. I am 33 and have been in and out of therapists offices since I was 18. I have been on prozac...
    lindseyselden lindseyselden 31-35, F 1 Response Dec 27, 2013

    Your Response

    Cancel

    Poland Syndrome

    Hi my name is Grace i am 12 years old coming up to 13 ... i was diagnosed with Poland Syndrome at birth. My left breast hasn't developed as i was born with 2 ribs and a muscle missing. ever since a young age i have been under the hospitals care . now that i have got older i have...
    Grace00ps Grace00ps 13-15 2 Responses Aug 7, 2013

    Your Response

    Cancel

    Hi all....im a 39 year old male with PS.

    I do not have a left pec muscle, a webbed left hand (operated on when I was 14) , a couple of ribs missing on the left and a flipped heart. I'm naturally a laid back person and certainly don't want to dismiss anyone else's experiences however I have managed to live a very normal...
    Sharpysharp7 Sharpysharp7 36-40, M 2 Responses May 22, 2014

    Your Response

    Cancel
    JEM404 JEM404 41-45, M Aug 20, 2014

    Your Response

    Cancel

    I am a 17 year old girl.

    I was only recently diagnosed with PS. The doctors in the orphanage that i was in thought it was dextrocardia so they didn't do anything. Only my left chest is affected. ( I don't have my pec.) It is really awesome to be able to share my experience and read other peoples...
    Lauraloohoo Lauraloohoo 16-17, F 2 Responses Jan 22

    Your Response

    Cancel

    Poland Syndrome

    Hi I am 31 I was told when i was very young that i have poland syndrome going to school was hard kids making fun of me name calling getting picked last to play games was always trying to hide my hand around new people sometimes I still do it and dont realize it until someone says...
    mkparrish mkparrish 31-35 2 Responses Jun 20, 2013

    Your Response

    Cancel

    I Have Polands Syndrome,male 30 Uk Birmingham

    Hello i also have polands, small right hand (all ends of fingers missing after knuckle but preportioned ok ) which was webbed,right peck missing,right arm 7cm shorter,and collor bone shorter,i know every case is different but how can people only find out when there like 11 -12...
    richhall1712 richhall1712 31-35, M Apr 1, 2012

    Your Response

    Cancel

    After 46 Years And A Motorcycle Accident

    After 46 years of not knowing why my right hand and chest were deformed it took a motorcycle accident last year and a trip to a near by hospital for a Dr. to tell me what I've wanted to know all these years that I had Poland Disease or Poland Syndrome. My fingers were webbed and...
    Gene47 Gene47 46-50, M 2 Responses Apr 28, 2012

    Your Response

    Cancel
    JEM404 JEM404 41-45, M Dec 13, 2014

    Your Response

    Cancel

    Concerned Dad With A Poland's Baby

    Hey everyone.. This has been a bitter sweet year for me and my partner. In March of this year we had our first baby - a beautiful little boy. We we had our first scan at 3 months, the doctors noticed webbing 1-2 and 3-4 fingers on his right hand.. they also suspected it may...
    C0ncernedDad C0ncernedDad 41-45, M 2 Responses Nov 4, 2013

    Your Response

    Cancel

    My Daughter

    Hey everyone!I just wanted to share my experience. My daughter was born with PS and we had no idea what it was. The doctors told us her chest was deformed because when she was in the womb, her arm was pressed up against her chest the whole time and did not enable the chest...
    hartman4440 hartman4440 18-21 9 Responses Feb 6, 2012

    Your Response

    Cancel

    Never Felt Like Anyone Really Could Understand... I Guess We'Re Not Alone After All.

    [ Before you get to my story, I'm hoping you'll check out my post in the forum about trying to get people together for a gathering. I know, meeting in the real world? What a crazy concept in the age of social networks and smartphones. But, its been an idea rolling around in my...