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I Have Poland Syndrome

A Poland Syndrome anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Poland Syndrome. You're not alone. 173 People

    Not To Bad But Not That Great

    Hi everyone. I have PS on my left side which is less common from my readings. I guess I found out that I had PS in 5th or 6th grade. We were on vacation at the beach and my parents were taking pics. I was able to really see the missing pec from the photo. I was always...
    Roundrock Roundrock 46-50, M 3 Responses May 25, 2013

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    Living With Poland Syndrome

    My name is Julie. I've known my whole life that I was born with Poland Syndrome. I was missing ribs, I am missing a breast and muscle pectoral muscle. I have dextra cardia which is a flipped heart. I found out recently that is common with Poland Syndrome. When I was born, I...
    Julabeeb Julabeeb 41-45, F 1 Response Jun 9, 2013

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    I have been struggling to come to terms with my

    body for as long as I can remember. I have so much shame, anger, and guilt related to how I think and feel about myself and my body. And somehow, I just can't seem to get passed it. I am 33 and have been in and out of therapists offices since I was 18. I have been on prozac...
    lindseyselden lindseyselden 31-35, F 1 Response Dec 27, 2013

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    Poland Syndrome - My Experience

    Hey there. Im 19 and have Poland Syndrome. As you all know poland syndrome can effect people in different ways, for my personally, my pectoral muscle on my right breast is completely absent. I am luckier thank many other people as i still had some breast development as i was...
    GinaC123 GinaC123 18-21, F 3 Responses Jan 17, 2012

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    My 10 Mo Old Daughter Has Poland's Syndrome

    Hi - I want to connect with anyone who has Poland's syndrome. my daughter was born with short fingers and at first they didn't realize it was Poland's syndrome. I am considering having her fingers lengthened with her own foot bone. Does anyone know anything about this? Also, my...
    kimramkav kimramkav 36-40, F 1 Response Jul 9, 2013

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    What Doesn'T Kill You Makes You Stronger

    Hi... I'm Grace and I'm 15 years old. I'm a freshmen in high school. I was diagnosed with PS a few days ago. My right breast is way bigger then my left. I first started noticing that my right side was bigger then my left side when I was in fourth grade. When I hit middle school...
    marinagrace marinagrace 13-15, F 11 Responses Jan 27, 2013

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    I'm 17 And Was Just Diagnosed With Poland Syndrome.

    Hi, I'm 17 years old. My names Olivia. I was just recently diagnosed with Poland Syndrome. I had no idea what I had before I was diagnosed. I always looked at myself in the mirror and felt horriable about myself for it. On my right side I'm missing my pectorial muscle, and the...
    Livviee Livviee 16-17, F 4 Responses Jun 18, 2012

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    My Daughter

    I have a 7 year old daughter who has PS. She has no muscles or breast tissue on the right sid. She also doesnt have a nipple. The muscles on her back are smaller on the right side and it causes her problems with her shoulder.Recently see has started to become more aware of it...
    nmwplus3 nmwplus3 26-30, F 4 Responses Aug 31, 2012

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    Hello, I'm a mother of one handsome 9 month old

    boy. When my husband and I left the hospital June 29, 2013. We were never told that our son was born with Poland Syndrome. After his 1 week old checkup. Doctor told us everything looked wonderful healthy lil boy! One week later I noticed something wasn't right with his chest. I...
    Bernadzikowski Bernadzikowski 26-30, F 2 Responses Apr 2

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    Hi, I'm a 14 year old student with Poland

    Syndrome. I'm missing the right rep muscle in my chest, and honestly it doesn't cause me a lot of trouble. I'm not as strong as most people because of it. Like when I do pushups or bench press I have difficulties but otherwise it doesn't bother me that much. I can be pretty...
    Alee99 Alee99 13-15, F 1 Response Jun 19

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    OPEN COPPER,HER NAME IS -NIGHT NIGHT- LARGE

    SHARON,FULL GARDEN,CARTER CO. KENTUCKY,CALL:JOHN 1-606-474-4770,PENNIES PICKED, PRAISE FOLDINGUNFOLDING,I NEED MY S'MORES MADE WELL,OR OTHER,TWINKI YUM YUM. CALL: JOHN EDWIN MAY 1-606-474-4770 HERE OR THERE ,I LOVE YOU
    JEM404 JEM404 41-45, M 1 Response Jul 28

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    WILL POWER. HAVING A POSITIVE ROLE,

    RESPECT, FUNDAMENTAL ETHICS ARE A GOD GIVEN RIGHT, SCARRY TO THINK SOME ARE LACKING. SUPPORT POLANDS SYNDROME
    JEM404 JEM404 41-45, M Oct 24

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    Never Felt Like Anyone Really Could Understand... I Guess We'Re Not Alone After All.

    [ Before you get to my story, I'm hoping you'll check out my post in the forum about trying to get people together for a gathering. I know, meeting in the real world? What a crazy concept in the age of social networks and smartphones. But, its been an idea rolling around in my...
    quirch43 quirch43 36-40, M 3 Responses Feb 17, 2013

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    I Have Polands Syndrome

    So, I am sixteen, seventeen in a few days and I was born with Polands Syndrome. It is horrible, it makes me feel disgusting. I cant be a normal girl because I have something which stops me from being normal. But I have finally got a consultation with a plastic surgeon. I have...
    Jasmineeeeeee Jasmineeeeeee 16-17, F 6 Responses May 13, 2012

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    Poland Syndrome

    Hi I am 31 I was told when i was very young that i have poland syndrome going to school was hard kids making fun of me name calling getting picked last to play games was always trying to hide my hand around new people sometimes I still do it and dont realize it until someone says...
    mkparrish mkparrish 31-35 2 Responses Jun 20, 2013

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    Wouldnt Wish On Anyone!

    hey there.im a 28year old woman born with ps.i was first diagnoised @ 6mnths old but doctors didnt really have a clue what to do or really what could be done.didnt know then and still trying to figure it out now.(ill tell you why i say this but later,k)anyway,so glad i found this...
    28nzPS 28nzPS 26-30, F 2 Responses Jun 7, 2012

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    Finally Figured Out Why I Was Different

    I have spent pretty much my whole life trying to hide my little hand and the difference in my breast. I am a 35 yr old woman. I took up lifting about 10 months ago after losing weight. I couldn't understand why my right arm seems to lack a bit of strenght and why I could never...
    Ver0 Ver0 36-40, F 9 Responses Nov 8, 2013

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    My Story - I Cant Seem To Find The Words....

    Hey guys, I just wanted to say that i've read all of your stories/comments and its great to see such positive people out there. It helps to read other peoples stories and its funny how I can relate to so many of you. We share the same lives and we dont even know each other...
    JaySimply JaySimply 26-30 4 Responses Sep 11, 2012

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    Followed up with Pulmonoligist .

    Turns out I have a 55% lung capacity. I don't smoke and am in great health otherwise. Unless i wanted to have reconstructive surgery and move or replace ribs, I will always have this limitation... OUCH. That sucks! So what do I do when I hear this? I do the Syracuse Ride for...
    Julabeeb Julabeeb 41-45, F 3 Responses Jan 26

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    My Story

    Hello everyone..My name is Daniel and I am a 29 year old male from Michigan. I have PS and if affects my right pectoral and right hand. I had surgery on my hand when I was young to fix the webbing. I am not sure if my ribs are underdeveloped, yet I have a feeling they are. I can...
    djweber45 djweber45 26-30 3 Responses Apr 13, 2011

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    JEM404 JEM404 41-45, M Aug 20

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    22 Yr Old Female With Ps

    I was diagnosed with PS before I had my first birthday. Growing up was tough. When I hit puberty other girls noticed and mocked me for have one breasts developing, and not the other. I am missing the right pectoral muscle. I guess you could say I'm lucky as that's the only thing...
    robinxleigh122 robinxleigh122 22-25 3 Responses Apr 9, 2012

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    I Have Polands Syndrome,male 30 Uk Birmingham

    Hello i also have polands, small right hand (all ends of fingers missing after knuckle but preportioned ok ) which was webbed,right peck missing,right arm 7cm shorter,and collor bone shorter,i know every case is different but how can people only find out when there like 11 -12...
    richhall1712 richhall1712 31-35, M Apr 1, 2012

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    Hello All, I'm a mother of an amazing 6 year

    boy! He's a smart, fun, sporty kind of guy. He loves being the center of attention. He also has PS. He had surgery at age 3 to separate his two fingers. Now that he is older I've noticed a difference in him. He now hides his hand ALL the time, because kids at school have...
    mommyPS mommyPS 36-40, F 1 Response May 27

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    I am completely missing my right pec muscle

    that's all but am little self conscious round others without shirt on. But never stopped me from doin anything I play nrl I ride enduro motocross I play tennis with my right arm. I can do push up and bench press it has not stopped me from doin anything I put my mind too
    largey largey 22-25, M 2 Responses Jan 27

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    The Long And Winding Road

    when i was 14 years old, i was the last of my friends to get my period. this was odd as i was already very tall and no women in my family had any 'female issues' to speak of. shortly after my period came, my left breast started growing rapidly, while my right breast stayed...
    daphne35 daphne35 22-25, F 1 Response Jun 24, 2013

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    Poland Syndrome Girl :-/

    Today will be my first day that I will be telling people I don't know that I have PS. I'm sorry if I sound like a big baby. Okay now letsjust go straight into this! Well, I'm a young 20 year old female with a rare birth defect called (Poland Syndrome). My mom told me what I had...
    JT12345 JT12345 22-25, F 15 Responses Jul 19, 2012

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    IT IS MY EXPERIENCE THAT A FACILITY I ATTEND,

    "ATTENDED", "WON'T AGAIN", DO'ES NOT TREAT BIRTH DEFORMITY, YES, THIS STATE FACILITY WON'T TREAT A PERSON FOR BIRTH DEFORMITY TRAUMA, NO MATTER HOW SEVER, SOMETIMES THEY SMIRK AND DENY IT, BUT THERE MAIN GOAL IS MONEY, YOU'RE THOUGHT'S?
    JEM404 JEM404 41-45, M Aug 20

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    Poland's Syndrome

    I'm a 52 year old woman with Poland's Syndrome. I was born with no pectoral muscles, concave chest wall, and shortened and webbed fingers, all on the right side. Back in 1961 they had no idea what to do about the breast, but they did extensive reconstruction on my hand. Starting...
    Gwenafri Gwenafri 51-55, F Aug 16, 2013

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    I'm 18 and every time I look at myself in my

    bra & panty..I stare. I stare at my reflection and I'm happy with how I was born; bare left chest no pectorals/nipple/muscle just my ribs & heart. I don't really know what to do or think. I think about the surgery that could be done, to let me have 2 breasts instead of one...
    ardorzie ardorzie 18-21, F 2 Responses Aug 22

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    :/

    Getting abit nervous now. op on Monday
    barr90 barr90 22-25, F Jun 28, 2013

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    I Have Ps

    I'm 18 years old and I have PS. I have a deformed right hand as some would say. But to me it's part of my life and its nothing different. I have short and under developed and webbed fingers. I also am missing my pectorial muscle in the right side. When I was younger I always...
    Tlapp1 Tlapp1 18-21 2 Responses Dec 12, 2012

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    Finally Moving Forward

    Hi, my name is Lisa and I'm 44 years old and found out what "I had" is Poland's Syndrome when I was 36. Not really sure where to start with this, but I never knew there was a name for what I have. My mother just used to say " your just missing a muscle there...you cant even...
    ForrestL ForrestL 41-45, F 3 Responses Aug 19, 2013

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    Concerned Dad With A Poland's Baby

    Hey everyone.. This has been a bitter sweet year for me and my partner. In March of this year we had our first baby - a beautiful little boy. We we had our first scan at 3 months, the doctors noticed webbing 1-2 and 3-4 fingers on his right hand.. they also suspected it may...
    C0ncernedDad C0ncernedDad 41-45, M 2 Responses Nov 4, 2013

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    Ps

    All my life I knew something was different, but I cant say it's changed the way I've lived my life. I love my life. When I was younger it really bothered me and I never really noticed it untill I began working out. Sometime in 8th grade it became apparent to me. I am 27 now, have...
    mikey818 mikey818 26-30, M Dec 27, 2012

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    My Daughter

    Hey everyone!I just wanted to share my experience. My daughter was born with PS and we had no idea what it was. The doctors told us her chest was deformed because when she was in the womb, her arm was pressed up against her chest the whole time and did not enable the chest...
    hartman4440 hartman4440 18-21 9 Responses Feb 6, 2012

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    I Have Ps

    i was born with poland syndrome . when i was one i got my first operation i dont remember much i only remember waking up and having a bowl of corn flakes at first it was scary but when i got more operations i got used to it my mum said i was a brave girl that gave me confidence...
    moongirl333 moongirl333 13-15, F 4 Responses Apr 3, 2012

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    My Long Story

    When I was born I was diagnosed with Poland Syndrome. I was born with a concave chest and all of the muscles between my ribs missing on my left side. A few weeks after I was born my mum took me to the family doctor for a check-up he promptly told my mum “Don’t treat her like...
    Kate1502 Kate1502 13-15 3 Responses Feb 7, 2013

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    Hi, I'm a 18 year old male,

    born in South Korea but now i call Australia my home and I have Poland Syndrome. When I was little i was told by my parents that my hand was small because i burnt it on boiling water when i was 3 years old... This was a lie which my parents made up so i don't feel put down by a...
    AusKorea AusKorea 18-21, M 5 Responses Mar 4

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    So im 15 and I was diagnosed with PS

    when I was about 4 years old, thats the time when your life really changes.Now im quite lucky in some ways at it only affects my chest, I know it can cause things like webbed fingers etc. The things I can remember is when we used to go swimming at school, I used to have to get...
    Tilly125 Tilly125 16-17, F 5 Responses Jan 10

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    My Story

    Hello my name is Leanne im 22 and was diagnosed with polands syndrome 2 years ago, when i finally had the bottle to tell somebody. when i started secondery school i hated it, i was bullied for my weight and having this aswell was horrible i wore baggy clothes and always covered...
    barr90 barr90 22-25, F 5 Responses Oct 21, 2012

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    Won't Change Me

    i was born with Poland's so i know what you guys are feeling. Sorry to the girls out there with it can't imagine what you are going through as young women. I was left behind by my German mother because of not being born normal. She blamed my father and left me in a motel room 2...
    stoodalone stoodalone 31-35, M 6 Responses Sep 14, 2012

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    This is a follow up for my story "what doesn't

    kill you makes you stronger" My name is grace. I am now 16 years old and I just got my correction surgery last week! I had a muscle transplant from my back placed into my chest wall, and a saline implant to even out my breasts. It's very painful. But it is extremely worth it...
    marinagrace marinagrace 13-15, F 1 Response Jul 22

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    My Op

    had my op on Monday, at home finally after really low blood pressure :/. in a lot of pain now!!!!
    barr90 barr90 22-25, F Jul 3, 2013

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    After 46 Years And A Motorcycle Accident

    After 46 years of not knowing why my right hand and chest were deformed it took a motorcycle accident last year and a trip to a near by hospital for a Dr. to tell me what I've wanted to know all these years that I had Poland Disease or Poland Syndrome. My fingers were webbed and...
    Gene47 Gene47 46-50, M 2 Responses Apr 28, 2012

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    I had Poland syndrome my whole life

    and had 3 of my fingers(index, middle, ring) attached together on my right hand and it stunned its growth until I was 6 months old. I am missing my right pec and my right bicep is about the size of a toddlers bicep. I was bullied about it my whole life and it didn't help when my...
    Tylerastro909 Tylerastro909 13-15, M 3 Responses Feb 1

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    Poland Syndrome

    Hi my name is Grace i am 12 years old coming up to 13 ... i was diagnosed with Poland Syndrome at birth. My left breast hasn't developed as i was born with 2 ribs and a muscle missing. ever since a young age i have been under the hospitals care . now that i have got older i have...
    Grace00ps Grace00ps 13-15 2 Responses Aug 7, 2013

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    Hi all....im a 39 year old male with PS.

    I do not have a left pec muscle, a webbed left hand (operated on when I was 14) , a couple of ribs missing on the left and a flipped heart. I'm naturally a laid back person and certainly don't want to dismiss anyone else's experiences however I have managed to live a very normal...
    Sharpysharp7 Sharpysharp7 36-40, M 2 Responses May 22

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    Update!!! :)

    My next operation is in 16 days :) im well happy, not looking forward the anaesthetic tho :(
    barr90 barr90 22-25, F Jun 14, 2013

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    HELLO. I AM 44. I HAVE HAD PROBLEMS

    REGUARDING TREATMENT AT FACILITIES SUCH AS HATRED AND VIOLENT TENDANCIES TOWARD PERSONS WITH POLANDS SYNDROME. EVERYONE NEEDS HELP?
    JEM404 JEM404 41-45, M 2 Responses May 15

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    Poland Syndrome Everyday

    Hi I'm 17 years old girl and I wanted to share my story for having some advices from people who have the same syndrome or others too :)I got 5 surgeries for breast reconstruction, the truth is that I feel better now but not enough because I can't wear  whatever I want and no one...
    missmirado missmirado 16-17 9 Responses Oct 16, 2011

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