I Have Polyarteritis Nodosa

A Polyarteritis Nodosa anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Polyarteritis Nodosa. You're not alone. 38 People

    11 Year Old Son Has Polyartritis Nodosa

    hi there everyone , my son alfie was diagnosed with Polyarteritis Nodosa 9 months ago, it has been a awful time in and out of great ormond street hospital for treatment , its such a hard disease to get my head around , im just not sure what to expect . all was going well but his...
    sarahlx sarahlx
    26-30, F
    1 Response Jun 2, 2012

    I Am Told I Have Polyarteritis Nodosa

    I was diagnosed with Polyarteritis Nodosa about 6 months ago. I am still hoping he is wrong. My original diagnosis was Lupus, them Mixed Connective Tissue Disease. My primary doctor was getting ready to put me on mexeltrexate for her diagnosis of Mixed Connective Tissue Disease...
    126christine 126christine
    1 Response Dec 15, 2012

    I Did Have PAN At The Age Of 6.

    I am female and 34 now. I had it back when I was in the first grade and then another reoccurrence when I was in the sixth grade. When I was In The first grade it all started with me falling down and not having use of my legs for a few weeks. I was misdiagnosed and the doctors...
    Ralymor Ralymor
    36-40, F
    1 Response Sep 2, 2013

    Hi everyone I wrote this post in 2014

    and have included further information below about the development since. I’ve tried to summaries as best I could. I was diagnosed in June 2012 after having a biopsy on my foot from a Professor in Dermatology. My condition is limited to my legs and involves taking over the...
    mark01981 mark01981
    1 Response Apr 8, 2016

    Just Diagnosed

    Hi all, I am a 28 year old female, I have just been diagnosed with Polyarteritis Nodosa.  Now I am looking for others with this disease so I can learn new information.  I live in a small town where the doctors here are not well informed with this disease.  My...
    blackey7 blackey7
    11 Responses Jul 30, 2009

    Polyarteritis Nodosa

    hi there just wanted to tell everyone  that i was 20 years old and some how i got sick in 1995 with polyarteritis nodosa man  i almost died that year in 1994 i been threw alot of things in my life and with the polyarteritis nodosa now i suffer with heart problems high blood...
    biggmas biggmas
    36-40, M
    Oct 20, 2011

    I am 40 have 3 children

    and a nurse. I had a lot of stress in my life 2013 and found a lump on my arm which was quite painfully, my dr just brushed it off. Then my hands became very painfully and as time progressed so did the pain and the red markings on my arms and hands, then the red marks started...
    nessie41 nessie41
    41-45, F
    1 Response Aug 17, 2014

    My Life Changing Story!

    Hi my name is David Holden the third and I have polyarthitis nodosa. I was diagnose at the age of 15yrs one of the youngest in the country. I would love to talk to anyone who might have questions about this illness please feel free to ask. I myself still with time am learning...
    Daviholden Daviholden
    5 Responses Sep 6, 2011

    First Post - Pan

    I have polyarteritis nodosa.  History:  I'm 47, I began to eat a balanced diet and exercised every day since the fall of 2007.  Then, in the fall 0f 2009 I began to have symptoms indicating that my liver was in distress.  This lead to my...
    birdiegolfer birdiegolfer
    46-50, M
    5 Responses Jan 2, 2010

    Hi! I was born in 1991,

    from Vietnam. I have had Polyarteritis Nodosa for nearly 3 years. I hope to make friends with anyone who has health problem. I love watching film, traveling, dancing,.... I am single. It is so nice if i can find a boyfriend who has PAN too. Anyway, nice to meet you all. <3...
    MileyVietnam MileyVietnam
    26-30, F
    Mar 18, 2014

    My Husband Has Pan - Advise

    So far, this has been a very scary and difficult time in my life. My husband (34) and I have been together for 14 years and have 2 children. He is currently still in the hospital. After 3 surgeries was diagnosed with PAN. He underwent 3 surgeries to remove eschemic bowel until...
    Mcintron79 Mcintron79
    2 Responses Dec 30, 2011
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