I Have Polychondritis, Relapsing

Polychondritis, Relapsing anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Polychondritis, Relapsing. You're not alone. 12 People

    If I Have This, I'm Not Sure About the Rest of My Life. :)

    I was told today by a doctor, that I may have Relapsing Polychondritis... I read where this can be disconfiguring and even disabling or deadly. What hurts the most is I haven't been able to see my sons in over 18 months. If they see me in 10 years what would they...
    WayCoolJr WayCoolJr
    51-55, M
    4 Responses Jun 11, 2009

    Relapsing Polychondritis

    So, im 35 and for 3 years i battled ear issues.red swelling horribly painful.then an ent i saw said its not an ear infection and mentioned a biopsy to determine if it was rpc. Down to a rheumatologist for millions of scans,blood draws.been on prednisone since april2011 and now...
    patriciaswenny patriciaswenny
    2 Responses Mar 18, 2012

    I Have Relapsing Polychrondritis

    My sister was diagnosed with relapsing polychrondritis 15 years ago and now she has had knees replaced, hands, wrists, spine otherwise no systems in the upper body. My systems have been diagnosed recently however areas affected are the upper body, chest, throat, eyes. How are...
    Racheal551957 Racheal551957
    1 Response Oct 6, 2012
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