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I Have Polycystic Kidney Disease

Personal Stories, Advice, and Support 65 People

    Military Status With Pkd - I was diagnosed with ADPKD in 2010 and have been in the military for over 12 years. I am currently living overseas and concerned about my future options...
    Forward4ME Forward4ME 31-35, M 6 Responses Aug 25, 2012

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    Diagnosed 2 Yearz Ago - I was diagnosed with PKD in Feb 2010. I am a 60 year old woman with no family history of PKD. I also have multiple cysts on my liver. I had many kidney...
    chezlinda77 chezlinda77 56-60 2 Responses Feb 25, 2012

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    15-months Pregnant - In April of 2001, I was diagnosed with Polycystic Kidney Disease. During a routine physical, my very thorough doctor felt something odd around the abdomen...
    Jonesman Jonesman 36-40, F 10 Responses Sep 8, 2008

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    I Wish They Understood What My Insides Feel Like - my kidneys stretch from my ribs to my hips. my liver from the right side of my abdomen to the left. i have constance pian...
    februar februar 46-50 1 Response Mar 1, 2013

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    Just Diagnosed - Confirmed diagnose yesterday that I am likely to have PKD even though no symptom yet. I didn't know much about the decease until now and looking up information on...
    danelionspromise danelionspromise 26-30, F 5 Responses Feb 24, 2011

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    How Live Well With Pkd - Once I hear that “PKD looks good on you”, it really make me appreciated about it. Here are the share suggestions about how to live well with PKD. 1...
    winnewu winnewu 41-45, F May 3, 2012

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    Teal Ink - I am 24 years old and throught my entire life thet imebombs i was born with have told me you cant do this and you cant do that. I abused alcohol for a long time trying...
    akoerbel1988 akoerbel1988 22-25, M 1 Response Apr 10, 2013

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    I Will Never Eat Chocolate Any More - Chocolate is regarded to stimulate the enlargement of renal cysts. Caffeine increases the quantity of the messenger protein cyclic AMP. This...
    winnewu winnewu 41-45, F May 7, 2012

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    A Green Light - Have you ever heard of micro-Chinese medicine osmotherapy whixh shrinks the cysts and reduces the surface of your enlarged kidneys???? http://www.youtube.com/watch...
    olgerta olgerta 22-25, F Aug 27, 2013

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    6 Year Old Child Diagnosed With Polycystic Kidney Disease - My son was hospitalized on sunday for abdominal pain. They did a CT scan and found cysts on his kidneys. They...
    sweetzebragirl sweetzebragirl 26-30, F 5 Responses Feb 14, 2011

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    Do Any Other PKD People Exercise While Wearing A Heart Rate Monitor - Does anyone, with PKD, exercise with a heart rate monitor? Hi have had five different heart rate monitors...
    binab binab 56-60, F 1 Response Sep 17, 2013

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    Polycystic Kidney Disease - Recently during an MRI, it was found that I have multiple growths throughout my kidneys, liver, area, one which is massive on the kidney. The doctor...
    fancythecat fancythecat 51-55, F 7 Responses May 8, 2010

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    ..er... Well It's A Long One. So Much So That I Have Written A Book - if you google tell me if this hurts than add lulu then the first find should have my page first 11...
    fenal fenal 56-60, M Jan 19, 2013

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    It Has Taken Over My Life... - I was diagnosed with PKD when I was 17 years old. I had visited doctors before, because I had terrible back pains. However, they all said the same...
    MerellD MerellD 22-25, F 3 Responses Apr 28, 2012

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    What A Life.. - My name is Kayla, I have pkd, it has effected my life alot, when i was three years old, i got very sick, my mom was worryed, they took me to the er, they couldnt...
    kaylaewen kaylaewen 18-21 2 Responses Jan 13, 2012

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    Growing Up I Had That Sinking Feeling - In the back of my mind I always knew that my body would someday betray me. It was just a feeling. I was right. I remember it as if it...
    KyCat KyCat 56-60 1 Response Jul 11, 2013

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    Pkd By: Kelsey Bell About Raquel Rosado - When I started researching for my anatomy and physiology paper I really wanted to choose a disease that hit home. Instead of choosing from...
    leuqarrosado leuqarrosado 18-21, F 3 Responses May 15, 2012

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    Do You Love Your Kidneys? - At first, I didn’t. They were a source of pain and some embarrassment. They got in the way of my male “macho” self-image. They were the...
    RichP48 RichP48 61-65, M 2 Responses May 14, 2012

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    Is Kidney Failure In Your Future Polycystic Kidney Disease? - I Find This Checker to estimate Your Current Polycystic Kidney Disease Futhure. After 9 questions, it estimates the...
    winnewu winnewu 41-45, F Oct 1, 2012

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    Life With Pkd1 - I am currently 28years old. I was diagnosed by ultrasound when i was 17 due to a bad UTI. I have not had one since thank goodness and have not had a lot of issues...
    smvanam smvanam 26-30 2 Responses Apr 3, 2012

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    What Causes Polycystic Kidney Disease - What Causes Polycystic Kidney Disease Polycystic Kidney Disease passes on from generation to generation. Many factors can trigger Polycystic...
    kidneycares kidneycares 22-25, M 2 Responses Oct 5, 2012

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    PKD Issues - Hello , My story starts with the death of my father when I was 2. PKD. related. My family also lost my aunt and grandmother , also PKD related. When I was 12 I was...
    beachtracks beachtracks 41-45, M 1 Response Jul 24, 2013

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    Kidney Disease Can Destroy The Things You Love To Do - Kidney Disease can destroy the things you love to do, but it doesn't have to. PKD can mean more than just pain and pot belly...
    winnewu winnewu 41-45, F May 8, 2012

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    Related Experiences

    I do not have Parkinson's disease but I added this experience because I plan to become a neurologist specializing in Parkinson's disease and I love reading what you have to say...
    emily39 emily39 18-21, F Mar 24

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    I think I might have Cushing's Disease. Looking for someone who can explain what they went through with this.
    Jackson2033 Jackson2033 18-21, F Apr 4

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    So I am 21 years old and I suffer from Poly Cystic Ovarian Syndrome, I have done my research and unfortunately it comes with so many issues. But it is common and I would love to...
    o1Nadia1o o1Nadia1o 18-21, F 1 Response Mar 28

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    I was just diagnosed with Forestier's Disease or DISH...Diffuse Idiopathic Skeletal Hyperostosisin in my lower spine. I've had weakness in my legs, lower back for the past 4...
    halley888 halley888 46-50, F Mar 26

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    I've had symptoms of Crohn's Disease since I was 13. Having gone through four doctors and two negative colonoscopies (among other tests), it was kind of a relief when I was finally...
    Maeliss Maeliss 18-21, F Apr 7

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    Hello. I was born in 1970 and experienced all the delayed milestones, etc. The Doctor at the time labeled it "floppy child syndrome" but after recent research, I believe that I...
    debbiebarnum debbiebarnum 41-45, F Mar 25

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    I was first diagnosed when I was about 10 and I am now almost 35. I have been treated with many different forms of both topical ointments and oral steroids over the years...
    RizzB RizzB 31-35, F Mar 27

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    Its my daughter that has Dariers, inherited from her dad she is now 12 but was showing symptoms at 2!! she has topical ointments and washes to use but obviously its v hard for her...
    exhaustedx10 exhaustedx10 41-45, F Mar 28

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    I started having severe migraines at the end of 2008, but I was dealing with it. In June of 2009 I ended up at the hospital I couldn't take it anymore. They did blood work and an...
    rascal1974 rascal1974 36-40, F 2 Responses 16 hrs ago

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    Can anyone explain what the signs and symptoms were for them?
    Jackson2033 Jackson2033 18-21, F 1 Response Apr 5

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    I was never sick as a child-actually, quite the opposite. I was strong, rambunctious, energetic, and was constantly getting in to this I wasn't supposed to. Lol. So, fast forward...
    RustyJames2130 RustyJames2130 31-35, F Mar 23

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    I started with kidney disease in 2006,/w high blood presure, high colesterol. Diabetes in 2009. Dec of 2012 I had a stroke, resulted in ESRD in Jan of 2013. I also have had a...
    JBCarroll JBCarroll 56-60, M 6 days ago

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    i KNOW i can help. I have had Vestibular Migraines for 4 years now and I have a step by step way to take back control of your life and go back to living. Now before i go any...
    SOPHDOG SOPHDOG 22-25, F Apr 3

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    After over 20 years and 3 doctors later, they finally figured out which autoimmune disease I have. I'm lucky that I am in remission right now but it has affected my kidneys. I have...
    Booksaremypassion Booksaremypassion 41-45, F 1 Response 2 hrs ago

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    i was diagnosed of hep b in 2009 while i was in the university.. i constantly felt sick in the year 2006, when and how i had it i dont know. since 2011 i have been having series of...
    nanacquah nanacquah 26-30, M 1 Response 9 hrs ago

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    TMI.... Or not enough? A week ago I had no idea what renal colic was. I knew it was bad and not something I wanted. A week ago a baby was still not entirely out of the question...
    owchimama owchimama 31-35, F Mar 25

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    I have Lupus and Lupus nephritis an incurable autoimmune disease and kidney involvement. One of the issues of living with an incurable disease is that its also an invisible...
    Young24Lupus Young24Lupus 22-25, F 1 Response Mar 27

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    I remember when I was around 19 I found out I had PCOS- polycystic ovarian sydrome and it was devastating. I remember trying my best not to cry as the doctor showed me on the ultra...
    AaliyahVonD AaliyahVonD 22-25, F Mar 18

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    I need money .i am 24 aged boy plz friends help me ... please purchase my kidney ... contact :-9990714602..
    edit9094 edit9094 22-25, M 1 Response Mar 28

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    im victor from phil I want to sell my kidney im 32 yrs old,72kgs.i need urgently need money..
    vmgpaf825659 vmgpaf825659 31-35, M 2 Responses Apr 5

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    I am victor from phil I want to sell my kidney im 32 yrs old,72kgs.i just urgently money..call me in my mobile no. 09467470848..asap
    vmgpaf825659 vmgpaf825659 31-35, M 1 Response Apr 5

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    Hi I'm Prasenjeet Acharya and I want to sell one of my kidney urgently in exchange of Rs.15,00,000.00 (Rupees Fifteen Lacs). I am a healthy man of 30 years (DOB: 02.12.1985). Needy...
    prasenjeet prasenjeet 26-30, M 3 days ago

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    hi im jay-arr econar from cugman cagayan de oro city phollipines i want to sell my kidney im 25 years of age you me contact through my mobile #09351196323 i need cash only
    jayarr89 jayarr89 22-25, M 1 day ago

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    I was diagnosed with Systemic Lupus Erythematosus when I was 10, I have Nephritis meaning it's only attacking my kidneys at one point it was attacking my blood, lungs, and kidneys...
    yeahidgaf yeahidgaf 18-21, M 1 Response Mar 29

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      i am lalith jain from bangalore i want to donate my kidney,blood group is ab positive,age 36,healthy,no habits,num--9972942389,9341397614,pls if u r seriuos then only call...
    nola241 nola241 31-35, M Apr 5

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    i want to donate one of my kidney ,i have some personal issue in home,pls help me,my blood group is AB POSITIVE,age is 36,healthy no habits,i am lalith jain from bangalore,num...
    mali891 mali891 31-35 4 days ago

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    I was diagnosed last year with a chronic pain condition that formed from me passing 4-8 kidney stones a year. Since I keep passing the stones I will always be in agony and when I...
    dirkablaze dirkablaze 26-30, M Mar 30

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    I have been suffering from this skin condition for about 4-5 years. It sort of began slowly progressing as I was in high school and then further on. I used to think that this...
    Dianaangel Dianaangel 18-21, F 6 days ago