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I Have Polycystic Kidney Disease

Personal Stories, Advice, and Support 74 People

    Diagnosed 2 Yearz Ago

    I was diagnosed with PKD in Feb 2010. I am a 60 year old woman with no family history of PKD. I also have multiple cysts on my liver. I had many kidney infections as a teen and kidney stones twice in my 30's but have been in good health otherwise. I went to the dr because of...
    chezlinda77 chezlinda77 56-60 2 Responses Feb 25, 2012

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    How Live Well With Pkd

    Once I hear that “PKD looks good on you”, it really make me appreciated about it. Here are the share suggestions about how to live well with PKD. 1. If you live in a PKD family, an appropriate diet management is suggested, especially for the one who is with the disease...
    winnewu winnewu 41-45, F 1 Response May 3, 2012

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    polycystic kidney disease runs through my dads

    side of the family. I was diagnosed 4 months ago when my menstrual cycle was not right I had a ultra sound and they found cysts not only on my kidneys but on my ovaries as well. the ones on my ovaries were 6cm, 5.4cm, 7cm.
    chlo3ann3 chlo3ann3 13-15, F Oct 4, 2014

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    Do Any Other PKD People Exercise While Wearing A Heart Rate Monitor

    Does anyone, with PKD, exercise with a heart rate monitor? Hi have had five different heart rate monitors over the last 10 years and they all show my heart rate going up to 212 and as low as 25. Has anyone else experienced this? I have no symptoms of dizziness or heart...
    binab binab 56-60, F 1 Response Sep 17, 2013

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    Life With Pkd1

    I am currently 28years old. I was diagnosed by ultrasound when i was 17 due to a bad UTI. I have not had one since thank goodness and have not had a lot of issues yet. My father had PKD1 as well and just passed away in January this year due to heart complications stemming from...
    smvanam smvanam 26-30 2 Responses Apr 3, 2012

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    What A Life..

    My name is Kayla, I have pkd, it has effected my life alot, when i was three years old, i got very sick, my mom was worryed, they took me to the er, they couldnt help, i was n pain and very dehydrated. They sent me to kansas city, by alumblance. There they found out my sickness...
    kaylaewen kaylaewen 18-21 2 Responses Jan 13, 2012

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    It Has Taken Over My Life...

    I was diagnosed with PKD when I was 17 years old. I had visited doctors before, because I had terrible back pains. However, they all said the same things: I was a dancer, I had just started menstruating, nothing to worry about; it happens in teen girls. Until I fell ill with...
    MerellD MerellD 22-25, F 3 Responses Apr 28, 2012

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    I have polycystic kidney disease.

    The largest cyst measures 6cm in right and 5cm in left kidney. the latest scan report says that 'corticomedullary differentiation lost in with paper thinning of cortex'. Is it a serious problem? I am taking medicines to control BP only.
    aneetasree aneetasree 31-35, F Aug 22, 2014

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    A Green Light

    Have you ever heard of micro-Chinese medicine osmotherapy whixh shrinks the cysts and reduces the surface of your enlarged kidneys???? http://www.youtube.com/watch?v=JETVKmnkx8M Share any information you have about it , please...
    olgerta olgerta 22-25, F Aug 27, 2013

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    6 Year Old Child Diagnosed With Polycystic Kidney Disease

    My son was hospitalized on sunday for abdominal pain. They did a CT scan and found cysts on his kidneys. They diagnosed him with PKD based on the fact that my husband, all of his brothers, all of their cousins, my husband's mother, and his cousin's father have the disease. As I...
    sweetzebragirl sweetzebragirl 26-30, F 5 Responses Feb 14, 2011

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    I was diagnosed 2 weeks

    before my 18th birthday through an ultrasound taken after contracting a very nasty kidney infection. At my age I have no real noticeable changes, just slightly higher blood pressure and recurring urinary tract infections. I know it probably sounds very silly of me to be worrying...
    theinevitablechange theinevitablechange 18-21, F Oct 11, 2014

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    ..er... Well It's A Long One. So Much So That I Have Written A Book

    if you google tell me if this hurts than add lulu then the first find should have my page first 11 pages available- mostly comments from those who have read it mick
    fenal fenal 56-60, M Jan 19, 2013

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    Do You Love Your Kidneys?

    At first, I didn’t. They were a source of pain and some embarrassment. They got in the way of my male “macho” self-image. They were the points of my vulnerability. I hated them, and always referred to them as “my damn kidneys.” This was so for over 40 years...
    RichP48 RichP48 61-65, M 3 Responses May 14, 2012

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    I Wish They Understood What My Insides Feel Like

    my kidneys stretch from my ribs to my hips. my liver from the right side of my abdomen to the left. i have constance pian inbetween my shoulder blades in my sternum and the left side of my abdomen. the pain level is always a 5 and then without warning it goes off the richter...
    februar februar 46-50 1 Response Mar 1, 2013

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    15-months Pregnant

    In April of 2001, I was diagnosed with Polycystic Kidney Disease. During a routine physical, my very thorough doctor felt something odd around the abdomen. Concerned about uterine cysts, fairly common and usually benign, she sent me for an ultrasound. Sure enough, I did indeed...
    Jonesman Jonesman 36-40, F 10 Responses Sep 8, 2008

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    Just Diagnosed

    Confirmed diagnose yesterday that I am likely to have PKD even though no symptom yet. I didn't know much about the decease until now and looking up information on the website horrifies me. Now I know how I will live my life in 10-15 years. I don't regret knowing it because it...
    danelionspromise danelionspromise 26-30, F 5 Responses Feb 24, 2011

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    I have known since 22

    that I have this disease. High BP has been my only symptom. Now I feel as though my torso is crowded. Breathing can be difficult especially after eating. Anyone else with this problem?
    panoon12 panoon12 31-35, F Feb 24

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    Teal Ink

    I am 24 years old and throught my entire life thet imebombs i was born with have told me you cant do this and you cant do that. I abused alcohol for a long time trying to deal with it. I am pretty alone with this disease as i am the only person with in a large radius that has it...
    akoerbel1988 akoerbel1988 26-30, M 1 Response Apr 10, 2013

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    PKD Issues

    Hello , My story starts with the death of my father when I was 2. PKD. related. My family also lost my aunt and grandmother , also PKD related. When I was 12 I was diagnosed with PKD. I had a fantastic childhood and youth and did not develop any issues until I was approx 28...
    beachtracks beachtracks 41-45, M 1 Response Jul 24, 2013

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    Is Kidney Failure In Your Future Polycystic Kidney Disease?

    I Find This Checker to estimate Your Current Polycystic Kidney Disease Futhure. After 9 questions, it estimates the risk to develop Kidney Failure and provides some guidance for you. May it help you! http://www.kidneyabc.com/PKDquestionnaire.html
    winnewu winnewu 41-45, F 1 Response Oct 1, 2012

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    Polycystic Kidney Disease

    Recently during an MRI, it was found that I have multiple growths throughout my kidneys, liver, area, one which is massive on the kidney. The doctor sent the MRI disc off to a doctor who specializes in this disease who diagnosed me with polycystic kidney disease.. I hurt a...
    fancythecat fancythecat 51-55, F 8 Responses May 8, 2010

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    What Causes Polycystic Kidney Disease

    What Causes Polycystic Kidney Disease Polycystic Kidney Disease passes on from generation to generation. Many factors can trigger Polycystic Kidney Disease, but gene problem is the dominant cause for various cysts in kidneys.
    kidneycares kidneycares 22-25, M 3 Responses Oct 5, 2012

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    I Will Never Eat Chocolate Any More

    Chocolate is regarded to stimulate the enlargement of renal cysts. Caffeine increases the quantity of the messenger protein cyclic AMP. This can trigger cyst fluids to secrete, thus to enlarge all renal cysts, causing more damages to kidneys. Cyclic AMP can increase the renal...
    winnewu winnewu 41-45, F May 7, 2012

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    Growing Up I Had That Sinking Feeling

    In the back of my mind I always knew that my body would someday betray me. It was just a feeling. I was right. I remember it as if it were yesterday. My husband is an army surgeon and we were living in Ft. Campbell, KY visiting family back in Wisconsin. It was a hot sunny...
    KyCat KyCat 56-60 1 Response Jul 11, 2013

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    Kidney Disease Can Destroy The Things You Love To Do

    Kidney Disease can destroy the things you love to do, but it doesn't have to. PKD can mean more than just pain and pot belly. As you know, PKD means pain. But you may not know it can also mean destruction — not just of your kidneys, but of the things you love to do. The longer...
    winnewu winnewu 41-45, F May 8, 2012

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    Military Status With Pkd

    I was diagnosed with ADPKD in 2010 and have been in the military for over 12 years. I am currently living overseas and concerned about my future options. It all started with a few ER visits because of serious abdominal and back pains. It took about one year before I realized I...
    Forward4ME Forward4ME 31-35, M 6 Responses Aug 25, 2012

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    Related Experiences

    Hi I want to sell my one kidney. for urgent. My blood group is A+. Please contact me soon As well as soon. Its very urgent... My contact no 8860633460.
    Anju2307 Anju2307 22-25, F 3 hrs ago

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    Hi - I was diagnosed at 19, kidneys failed at 27 and i spent almost 10 years on peritoneal dialysis before getting a cadaver transplant. It will be 10 years old in October but it...
    sherabyl sherabyl 46-50, F 2 days ago

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    I am pratap from India . Passport holder . I selling my kidney AB+ , 50 years , male , no smoking , no drinking needed person can call 919452631264
    ram1965 ram1965 46-50, M 3 days ago

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    Hello, This is to inform the general public Male or Female who are healthy and 100% serious in selling their kidney should urgently contact GENERAL MEDICAL HOSPITAL. As we have a...
    Dreric12 Dreric12 26-30 3 days ago

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    I don't have Crohn's disease. But I am truly sorry that any of you have to go through it. My boyfriend has had it since a child. However he has been in remission for most of the...
    Sunshinemms Sunshinemms 22-25, F 1 Response 5 days ago

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    I've had Lyme Disease for a long time, but was only diagnosed two years ago. I also have EDS, which symptoms are a lot like Lyme. I am 23, on disability, in pain 24/7 and have so...
    alwaysfaithful13 alwaysfaithful13 22-25, F 5 days ago

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    I have end stage kidney failure. I only had one good kidney when I was born. The other was smaller and failed first. The thing is I am on dialysis for the rest of my life. Do I...
    comfi comfi 51-55, M 6 days ago

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    I was diagnosed with PTS almost 3 years ago after undergoing surgery to remove a bone spur. I still don’t have full use of my arm and still suffer pain, but have learned what...
    PDG1 PDG1 46-50 a week ago

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    My son had two malrotations before they found he had Hirschsprungs Disease. The first was at birth and the second was probably around 4-5 months old. We thought we were going to...
    tilaterese tilaterese 26-30, F Jul 25

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    I was born with ischemic heart disease
    MrsButterfly90 MrsButterfly90 22-25, F Jul 25

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    OMG other people .. that have ischemic heart disease I didn't think this was possible
    MrsButterfly90 MrsButterfly90 22-25, F Jul 25

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    Kidney Stones Oxalate Diet oxaBrow iPhone iPad App If you have been diagnosed with an Oxalate related Kidney Stone condition there is in the Apple App Store the oxaBrow iPhone and...
    FrancoisBrd FrancoisBrd 51-55, M Jul 23

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    Kidney Stones Oxalate Diet oxaBrow iPhone iPad App If you have been diagnosed with an Oxalate related Kidney Stone condition there is in the Apple App Store the oxaBrow iPhone and...
    FrancoisBrd FrancoisBrd 51-55, M Jul 23

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    Hi. My name is Shani and im 29 years old. Im currently looking for a living donor for a kidney. I am deathly afraid to go on dialysis and hoping that I will NEVER have to. I am...
    ShaniShanice ShaniShanice 26-30, F Jul 23

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    I've had recurring nightmares since I was a very young child about being stabbed to death beneath the deck of an old wooden ship. Also about being chased by wolves. Most of the...
    Greenigma Greenigma 22-25, M 1 Response Jul 21

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    Hi I am Madison, I am 16 years old and developed Darier’s disease when I was 2. The condition started with just a few bumps around my mouth, and by the time I was about eight I...
    Maddie314 Maddie314 16-17, F Jul 21

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    so i found out i have polycystic ovary syndrome a few days ago and it sucks since me and my husband have been trying and now reading about it is making me even more down about it...
    sweety7268 sweety7268 22-25, F Jul 21

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    I found out the other day. Being a regular drug user, I never paid attention to the occasional case of hematuria. Prolonged ketamine usage will do that to ya. Now, I really wish I...
    Franse Franse 22-25, M 1 Response Jul 20

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