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I Have Polycystic Kidney Disease

Personal Stories, Advice, and Support 69 People

    What Causes Polycystic Kidney Disease

    What Causes Polycystic Kidney Disease Polycystic Kidney Disease passes on from generation to generation. Many factors can trigger Polycystic Kidney Disease, but gene problem is the dominant cause for various cysts in kidneys.
    kidneycares kidneycares 22-25, M 2 Responses Oct 5, 2012

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    6 Year Old Child Diagnosed With Polycystic Kidney Disease

    My son was hospitalized on sunday for abdominal pain. They did a CT scan and found cysts on his kidneys. They diagnosed him with PKD based on the fact that my husband, all of his brothers, all of their cousins, my husband's mother, and his cousin's father have the disease. As I...
    sweetzebragirl sweetzebragirl 26-30, F 5 Responses Feb 14, 2011

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    Diagnosed 2 Yearz Ago

    I was diagnosed with PKD in Feb 2010. I am a 60 year old woman with no family history of PKD. I also have multiple cysts on my liver. I had many kidney infections as a teen and kidney stones twice in my 30's but have been in good health otherwise. I went to the dr because of...
    chezlinda77 chezlinda77 56-60 2 Responses Feb 25, 2012

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    15-months Pregnant

    In April of 2001, I was diagnosed with Polycystic Kidney Disease. During a routine physical, my very thorough doctor felt something odd around the abdomen. Concerned about uterine cysts, fairly common and usually benign, she sent me for an ultrasound. Sure enough, I did indeed...
    Jonesman Jonesman 36-40, F 10 Responses Sep 8, 2008

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    How Live Well With Pkd

    Once I hear that “PKD looks good on you”, it really make me appreciated about it. Here are the share suggestions about how to live well with PKD. 1. If you live in a PKD family, an appropriate diet management is suggested, especially for the one who is with the disease...
    winnewu winnewu 41-45, F 1 Response May 3, 2012

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    Pkd By: Kelsey Bell About Raquel Rosado

    When I started researching for my anatomy and physiology paper I really wanted to choose a disease that hit home. Instead of choosing from the prepared topics I went a little off track and a little more personal. You don’t understand how much a disease can impact people’s...
    leuqarrosado leuqarrosado 18-21, F 3 Responses May 15, 2012

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    ..er... Well It's A Long One. So Much So That I Have Written A Book

    if you google tell me if this hurts than add lulu then the first find should have my page first 11 pages available- mostly comments from those who have read it mick
    fenal fenal 56-60, M Jan 19, 2013

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    I Wish They Understood What My Insides Feel Like

    my kidneys stretch from my ribs to my hips. my liver from the right side of my abdomen to the left. i have constance pian inbetween my shoulder blades in my sternum and the left side of my abdomen. the pain level is always a 5 and then without warning it goes off the richter...
    februar februar 46-50 1 Response Mar 1, 2013

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    Teal Ink

    I am 24 years old and throught my entire life thet imebombs i was born with have told me you cant do this and you cant do that. I abused alcohol for a long time trying to deal with it. I am pretty alone with this disease as i am the only person with in a large radius that has it...
    akoerbel1988 akoerbel1988 22-25, M 1 Response Apr 10, 2013

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    Is Kidney Failure In Your Future Polycystic Kidney Disease?

    I Find This Checker to estimate Your Current Polycystic Kidney Disease Futhure. After 9 questions, it estimates the risk to develop Kidney Failure and provides some guidance for you. May it help you! http://www.kidneyabc.com/PKDquestionnaire.html
    winnewu winnewu 41-45, F 1 Response Oct 1, 2012

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    Growing Up I Had That Sinking Feeling

    In the back of my mind I always knew that my body would someday betray me. It was just a feeling. I was right. I remember it as if it were yesterday. My husband is an army surgeon and we were living in Ft. Campbell, KY visiting family back in Wisconsin. It was a hot sunny...
    KyCat KyCat 56-60 1 Response Jul 11, 2013

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    It Has Taken Over My Life...

    I was diagnosed with PKD when I was 17 years old. I had visited doctors before, because I had terrible back pains. However, they all said the same things: I was a dancer, I had just started menstruating, nothing to worry about; it happens in teen girls. Until I fell ill with...
    MerellD MerellD 22-25, F 3 Responses Apr 28, 2012

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    Life With Pkd1

    I am currently 28years old. I was diagnosed by ultrasound when i was 17 due to a bad UTI. I have not had one since thank goodness and have not had a lot of issues yet. My father had PKD1 as well and just passed away in January this year due to heart complications stemming from...
    smvanam smvanam 26-30 2 Responses Apr 3, 2012

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    Military Status With Pkd

    I was diagnosed with ADPKD in 2010 and have been in the military for over 12 years. I am currently living overseas and concerned about my future options. It all started with a few ER visits because of serious abdominal and back pains. It took about one year before I realized I...
    Forward4ME Forward4ME 31-35, M 6 Responses Aug 25, 2012

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    Do Any Other PKD People Exercise While Wearing A Heart Rate Monitor

    Does anyone, with PKD, exercise with a heart rate monitor? Hi have had five different heart rate monitors over the last 10 years and they all show my heart rate going up to 212 and as low as 25. Has anyone else experienced this? I have no symptoms of dizziness or heart...
    binab binab 56-60, F 1 Response Sep 17, 2013

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    A Green Light

    Have you ever heard of micro-Chinese medicine osmotherapy whixh shrinks the cysts and reduces the surface of your enlarged kidneys???? http://www.youtube.com/watch?v=JETVKmnkx8M Share any information you have about it , please...
    olgerta olgerta 22-25, F Aug 27, 2013

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    Do You Love Your Kidneys?

    At first, I didn’t. They were a source of pain and some embarrassment. They got in the way of my male “macho” self-image. They were the points of my vulnerability. I hated them, and always referred to them as “my damn kidneys.” This was so for over 40 years...
    RichP48 RichP48 61-65, M 2 Responses May 14, 2012

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    What A Life..

    My name is Kayla, I have pkd, it has effected my life alot, when i was three years old, i got very sick, my mom was worryed, they took me to the er, they couldnt help, i was n pain and very dehydrated. They sent me to kansas city, by alumblance. There they found out my sickness...
    kaylaewen kaylaewen 18-21 2 Responses Jan 13, 2012

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    Kidney Disease Can Destroy The Things You Love To Do

    Kidney Disease can destroy the things you love to do, but it doesn't have to. PKD can mean more than just pain and pot belly. As you know, PKD means pain. But you may not know it can also mean destruction — not just of your kidneys, but of the things you love to do. The longer...
    winnewu winnewu 41-45, F May 8, 2012

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    I Will Never Eat Chocolate Any More

    Chocolate is regarded to stimulate the enlargement of renal cysts. Caffeine increases the quantity of the messenger protein cyclic AMP. This can trigger cyst fluids to secrete, thus to enlarge all renal cysts, causing more damages to kidneys. Cyclic AMP can increase the renal...
    winnewu winnewu 41-45, F May 7, 2012

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    Polycystic Kidney Disease

    Recently during an MRI, it was found that I have multiple growths throughout my kidneys, liver, area, one which is massive on the kidney. The doctor sent the MRI disc off to a doctor who specializes in this disease who diagnosed me with polycystic kidney disease.. I hurt a...
    fancythecat fancythecat 51-55, F 8 Responses May 8, 2010

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    PKD Issues

    Hello , My story starts with the death of my father when I was 2. PKD. related. My family also lost my aunt and grandmother , also PKD related. When I was 12 I was diagnosed with PKD. I had a fantastic childhood and youth and did not develop any issues until I was approx 28...
    beachtracks beachtracks 41-45, M 1 Response Jul 24, 2013

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    Just Diagnosed

    Confirmed diagnose yesterday that I am likely to have PKD even though no symptom yet. I didn't know much about the decease until now and looking up information on the website horrifies me. Now I know how I will live my life in 10-15 years. I don't regret knowing it because it...
    danelionspromise danelionspromise 26-30, F 5 Responses Feb 24, 2011

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    Related Experiences

    I have neurological Lyme disease and everyday is a struggle. My memory is so bad I forget where I and people, I also get really bad brain fog and have asperges since being...
    BriGrace BriGrace 13-15, F 2 Responses Jul 25

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    Had my first one this year. Started bugging me right around Memorial Day. Thought it was a bladder infection. Did a course of antibiotics. Didn't help. Dr then thought kidney stone...
    raedavis raedavis 31-35, F 2 Responses Jul 28

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    My doctor put me on levelen and told me to skip the white pills, so that I wouldn't ovulate. She told me to take the while pills once every six months to allow my body to keep...
    ChloeMaay ChloeMaay 18-21, F 5 days ago

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    Calling all women with POS!!! I haven't had a period in a year. The past week or so I have been lightly spotting with severe cramps. Yet still no period! Has this happened to...
    TheUnpredictable9 TheUnpredictable9 18-21, F Aug 11

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    Barth syndromeFewer than 200 living males are known worldwide with this disease. Symptoms vary largely between patients, from life threatening to non-existant. No patient has all...
    Uncertain153 Uncertain153 26-30, M 1 Response Jul 24

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    I just passed a stone....Wow, I am surprised how long it took to pass. Kidney stones are pure torture!!
    Femininewiles Femininewiles 26-30, F 2 Responses Jul 27

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    I was born without one, the discovered it after test when I was functioning properly I had a water infection I think I can't remember I was only 6 months old, what annoys me most...
    vanivoo vanivoo 16-17, F 1 Response 3 days ago

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    Hello. I was diagnosed with A.D. 5 years ago, and 5 years before that I was diagnosed with Type 1 Diabetes. I am currently 20 weeks pregnant (and it has been terrible thus far!) I...
    jenyeaz jenyeaz 22-25, F Jul 21

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    I was told I had keinbock's about 12 yrs. ago had surgery to shorten bone in my right arm. That helped with pain for about two yrs. so I stayed working but since then pain has...
    icequeen029 icequeen029 31-35, F Aug 11

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    I had this patch of tanned skin on my stomach and my arm-pits in large blobs across my body for over a year. It was very confidence ruining, and I was scared of it spreading on to...
    xSundip xSundip 18-21, M Aug 6

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    My symptoms started when I was 16. I began to experience widespread joint, muscle pain, and headaches. I was seen by multiple doctors who said that I was perfectly fine and just...
    eeeck eeeck 26-30 Jul 21

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    Looking for people who have server Menieres Disease and has had the shunt surgery on my left ear but now I'm getting in my right ear
    gborron gborron 46-50, F 2 Responses Jul 21

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    I have had the disease since I was little, it didn't bother me much as a child. My favorite thing to do as a kid was swim. All my birthday parties were at the pool ( I didn't have...
    Iaquinto Iaquinto 22-25, M 1 Response Aug 3

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    March, 2013 I was told I had polymyositis. My Doctor said I was using 20% of my muscle. I lost my job and living on SSD. My treatments are IVIG and predisone. When I first...
    Numberplay Numberplay 46-50, F 4 days ago

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    I'm 16 old and just got the results that I was given herpes by my last sexual partner, age 24. I'm only 16 and will never be able to run from this. I feel like everyone knows. I...
    ofwkatie ofwkatie 16-17, F 4 Responses a week ago

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    I am 37 and have been diagnosed with MSK for 10 years now. I have two fantastic boys ages 16 and 17 and a very loving husband who is always ready to go to take over when I am sick...
    stonergirlstwins stonergirlstwins 36-40, F Aug 11

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    My name kali i sell my kidney for my house loan plss any want my kidney plsss call me age 25 Blood b positive healthy
    kali555 kali555 22-25, M 2 Responses Jul 30

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    I want to donate my Kidney for free ? Anyone ?
    Wasanmid Wasanmid 22-25, F 1 Response Jul 21

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    Hi my boyfriend needs a kidney transplant. He had one when he was 5 from his brother and it failed. He has been given less than 5 years to live. No one in his family is a match and...
    emzilini emzilini 18-21, F 2 Responses Jul 22

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    Hi, I want to donate my o+ ve kidney b'coz I need money very urgent.please contact me 8143780788
    tulasikrishna tulasikrishna 26-30, M 3 Responses Jul 24

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    i am in a lot of financial problems and i want to sell my kidney. i am frm delhi. blood group B+. contct no: 8743816537
    gourav173 gourav173 22-25, M Jul 30

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    i want to sell my one kidney. please contact me to 08052594040(sms) or send a mail to jai.basumata@gmail.com
    jaibasu jaibasu 26-30, M Aug 5

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    i want to sell my kidney due to persnol problem i need money very urgently please cont---+91 9891637275
    rohitlovepooja01 rohitlovepooja01 31-35, M Aug 7

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    i want to sell my kidney due to persnol problem i need money very urgently please cont---+91 9891637275 Bl Gr . - A+ive
    rohitlovepooja01 rohitlovepooja01 31-35, M Aug 7

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    i am lalith jain ,stayinng in bangalore,i am i am in deep problem,for my personal propose,i want to donate one of my kidney,i am 36,healthy,blood group is AB+,num–9972942389...
    milo987 milo987 31-35, M 1 Response Aug 8

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    Hi, I want to donate my B - ve kidney b'coz I need money very urgent.please contact me 8790613315 from Vishakapatnam.
    naveenjai naveenjai 31-35, M Aug 12

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    I am a 24year old girl............. i want to sell my kidney, urgently... for money.. blood group is B +ve... reply me urgently... pls help me out
    jaan4me jaan4me 22-25, F 1 Response