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I Have Polycystic Kidney Disease

Personal Stories, Advice, and Support 74 People

    Diagnosed 2 Yearz Ago

    I was diagnosed with PKD in Feb 2010. I am a 60 year old woman with no family history of PKD. I also have multiple cysts on my liver. I had many kidney infections as a teen and kidney stones twice in my 30's but have been in good health otherwise. I went to the dr because of...
    chezlinda77 chezlinda77 56-60 2 Responses Feb 25, 2012

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    How Live Well With Pkd

    Once I hear that “PKD looks good on you”, it really make me appreciated about it. Here are the share suggestions about how to live well with PKD. 1. If you live in a PKD family, an appropriate diet management is suggested, especially for the one who is with the disease...
    winnewu winnewu 41-45, F 1 Response May 3, 2012

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    Teal Ink

    I am 24 years old and throught my entire life thet imebombs i was born with have told me you cant do this and you cant do that. I abused alcohol for a long time trying to deal with it. I am pretty alone with this disease as i am the only person with in a large radius that has it...
    akoerbel1988 akoerbel1988 26-30, M 1 Response Apr 10, 2013

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    PKD Issues

    Hello , My story starts with the death of my father when I was 2. PKD. related. My family also lost my aunt and grandmother , also PKD related. When I was 12 I was diagnosed with PKD. I had a fantastic childhood and youth and did not develop any issues until I was approx 28...
    beachtracks beachtracks 41-45, M 1 Response Jul 24, 2013

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    Military Status With Pkd

    I was diagnosed with ADPKD in 2010 and have been in the military for over 12 years. I am currently living overseas and concerned about my future options. It all started with a few ER visits because of serious abdominal and back pains. It took about one year before I realized I...
    Forward4ME Forward4ME 31-35, M 6 Responses Aug 25, 2012

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    Do Any Other PKD People Exercise While Wearing A Heart Rate Monitor

    Does anyone, with PKD, exercise with a heart rate monitor? Hi have had five different heart rate monitors over the last 10 years and they all show my heart rate going up to 212 and as low as 25. Has anyone else experienced this? I have no symptoms of dizziness or heart...
    binab binab 56-60, F 1 Response Sep 17, 2013

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    Polycystic Kidney Disease

    Recently during an MRI, it was found that I have multiple growths throughout my kidneys, liver, area, one which is massive on the kidney. The doctor sent the MRI disc off to a doctor who specializes in this disease who diagnosed me with polycystic kidney disease.. I hurt a...
    fancythecat fancythecat 51-55, F 8 Responses May 8, 2010

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    Just Diagnosed

    Confirmed diagnose yesterday that I am likely to have PKD even though no symptom yet. I didn't know much about the decease until now and looking up information on the website horrifies me. Now I know how I will live my life in 10-15 years. I don't regret knowing it because it...
    danelionspromise danelionspromise 26-30, F 5 Responses Feb 24, 2011

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    I was diagnosed 2 weeks

    before my 18th birthday through an ultrasound taken after contracting a very nasty kidney infection. At my age I have no real noticeable changes, just slightly higher blood pressure and recurring urinary tract infections. I know it probably sounds very silly of me to be worrying...
    theinevitablechange theinevitablechange 18-21, F Oct 11, 2014

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    I Wish They Understood What My Insides Feel Like

    my kidneys stretch from my ribs to my hips. my liver from the right side of my abdomen to the left. i have constance pian inbetween my shoulder blades in my sternum and the left side of my abdomen. the pain level is always a 5 and then without warning it goes off the richter...
    februar februar 46-50 1 Response Mar 1, 2013

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    6 Year Old Child Diagnosed With Polycystic Kidney Disease

    My son was hospitalized on sunday for abdominal pain. They did a CT scan and found cysts on his kidneys. They diagnosed him with PKD based on the fact that my husband, all of his brothers, all of their cousins, my husband's mother, and his cousin's father have the disease. As I...
    sweetzebragirl sweetzebragirl 26-30, F 5 Responses Feb 14, 2011

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    A Green Light

    Have you ever heard of micro-Chinese medicine osmotherapy whixh shrinks the cysts and reduces the surface of your enlarged kidneys???? http://www.youtube.com/watch?v=JETVKmnkx8M Share any information you have about it , please...
    olgerta olgerta 22-25, F Aug 27, 2013

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    Growing Up I Had That Sinking Feeling

    In the back of my mind I always knew that my body would someday betray me. It was just a feeling. I was right. I remember it as if it were yesterday. My husband is an army surgeon and we were living in Ft. Campbell, KY visiting family back in Wisconsin. It was a hot sunny...
    KyCat KyCat 56-60 1 Response Jul 11, 2013

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    I Will Never Eat Chocolate Any More

    Chocolate is regarded to stimulate the enlargement of renal cysts. Caffeine increases the quantity of the messenger protein cyclic AMP. This can trigger cyst fluids to secrete, thus to enlarge all renal cysts, causing more damages to kidneys. Cyclic AMP can increase the renal...
    winnewu winnewu 41-45, F May 7, 2012

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    ..er... Well It's A Long One. So Much So That I Have Written A Book

    if you google tell me if this hurts than add lulu then the first find should have my page first 11 pages available- mostly comments from those who have read it mick
    fenal fenal 56-60, M Jan 19, 2013

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    I have known since 22

    that I have this disease. High BP has been my only symptom. Now I feel as though my torso is crowded. Breathing can be difficult especially after eating. Anyone else with this problem?
    panoon12 panoon12 31-35, F Feb 24

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    It Has Taken Over My Life...

    I was diagnosed with PKD when I was 17 years old. I had visited doctors before, because I had terrible back pains. However, they all said the same things: I was a dancer, I had just started menstruating, nothing to worry about; it happens in teen girls. Until I fell ill with...
    MerellD MerellD 22-25, F 3 Responses Apr 28, 2012

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    Life With Pkd1

    I am currently 28years old. I was diagnosed by ultrasound when i was 17 due to a bad UTI. I have not had one since thank goodness and have not had a lot of issues yet. My father had PKD1 as well and just passed away in January this year due to heart complications stemming from...
    smvanam smvanam 26-30 2 Responses Apr 3, 2012

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    What A Life..

    My name is Kayla, I have pkd, it has effected my life alot, when i was three years old, i got very sick, my mom was worryed, they took me to the er, they couldnt help, i was n pain and very dehydrated. They sent me to kansas city, by alumblance. There they found out my sickness...
    kaylaewen kaylaewen 18-21 2 Responses Jan 13, 2012

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    Kidney Disease Can Destroy The Things You Love To Do

    Kidney Disease can destroy the things you love to do, but it doesn't have to. PKD can mean more than just pain and pot belly. As you know, PKD means pain. But you may not know it can also mean destruction — not just of your kidneys, but of the things you love to do. The longer...
    winnewu winnewu 41-45, F May 8, 2012

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    polycystic kidney disease runs through my dads

    side of the family. I was diagnosed 4 months ago when my menstrual cycle was not right I had a ultra sound and they found cysts not only on my kidneys but on my ovaries as well. the ones on my ovaries were 6cm, 5.4cm, 7cm.
    chlo3ann3 chlo3ann3 13-15, F Oct 4, 2014

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    Do You Love Your Kidneys?

    At first, I didn’t. They were a source of pain and some embarrassment. They got in the way of my male “macho” self-image. They were the points of my vulnerability. I hated them, and always referred to them as “my damn kidneys.” This was so for over 40 years...
    RichP48 RichP48 61-65, M 3 Responses May 14, 2012

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    What Causes Polycystic Kidney Disease

    What Causes Polycystic Kidney Disease Polycystic Kidney Disease passes on from generation to generation. Many factors can trigger Polycystic Kidney Disease, but gene problem is the dominant cause for various cysts in kidneys.
    kidneycares kidneycares 22-25, M 3 Responses Oct 5, 2012

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    15-months Pregnant

    In April of 2001, I was diagnosed with Polycystic Kidney Disease. During a routine physical, my very thorough doctor felt something odd around the abdomen. Concerned about uterine cysts, fairly common and usually benign, she sent me for an ultrasound. Sure enough, I did indeed...
    Jonesman Jonesman 36-40, F 10 Responses Sep 8, 2008

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    I have polycystic kidney disease.

    The largest cyst measures 6cm in right and 5cm in left kidney. the latest scan report says that 'corticomedullary differentiation lost in with paper thinning of cortex'. Is it a serious problem? I am taking medicines to control BP only.
    aneetasree aneetasree 31-35, F Aug 22, 2014

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    Is Kidney Failure In Your Future Polycystic Kidney Disease?

    I Find This Checker to estimate Your Current Polycystic Kidney Disease Futhure. After 9 questions, it estimates the risk to develop Kidney Failure and provides some guidance for you. May it help you! http://www.kidneyabc.com/PKDquestionnaire.html
    winnewu winnewu 41-45, F 1 Response Oct 1, 2012

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    Related Experiences

    I'm on my second marriage and they've both been hell. Every person I've tried to have any kind of relationship with has hurt me. I have no family and no friends. I am alone in this...
    drag0nf1y1 drag0nf1y1 26-30, F 14 hrs ago

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    i am a guy of 25 from india.due to a big financial problem i want to donate my kidney for 10 lakhs.my blood group is 0+ ve +919997366388-this is my contact number.needed persons...
    Devi1991 Devi1991 22-25 1 day ago

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    which means I actually don't have it. ppl who have schizophrenia don't "think" they have it. They don't even know they have it! so, at least I can distinguish my paranoid delusions...
    StreetgirlnamedDesire504 StreetgirlnamedDesire504 36-40 3 days ago

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    I am 49 and was originally diagnosed with keinbochs disease in my non-dominant hand about 15 years ago. I was diagnosed when I was in stage II. Too late to try any bone saving...
    kbjunkie kbjunkie 46-50, F 3 days ago

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    I doubt I have Fibromyalgia, I have been suffering from migraine since childhood.. I always feel tired, fatigue and dizzy. The tiring feeling is always with me and it increased...
    dare86 dare86 26-30, M 4 days ago

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    I think. Thirty years I have been living my life believing I have an autoimmune disease called scleroderma. Along with hypothyroidism, which also has been with me for 30 years...
    lethalea lethalea 46-50, F 4 days ago

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    I fell in love... and just after got sores.... I got extremely high fevers and pain as well. but with this all being said I'm still waiting for my test results praying to God that...
    nomorepain898 nomorepain898 16-17, F 1 Response 5 days ago

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    It's really amazing that am cured of HERPES by a herbal medication. Oh is by this time last year I start feeling bad about my life, I feel pain everyday of my life but am very...
    TEGA32 TEGA32 26-30 3 Responses 6 days ago

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    RABIES DISEASES God bless Dr. Adagba for his marvelous work in my life, I was diagnosed of RABIES DISEASES since 2010 and I was taking my medications, I wasn't satisfied i needed...
    markrobbin111 markrobbin111 41-45, M a week ago

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    How ironic, lupus is known as a woman's disease. 90% of all patients are women. 70 to 80% are black and ethic groups. And 20% are caucasion women. And 10% are male with the same...
    victoriasize6 victoriasize6 51-55, M Aug 26

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    I considered posting this in an eating disorder category. But I really don't want to call it that. It feels like a bad word or disease. But I've struggled with this since I was...
    DeIuxedEdition DeIuxedEdition 18-21, F 1 Response Aug 26

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    The doctors have diagnosed me with Spino Cerebellar Ataxia type 14. This means nothing. I don't trust the diagnosis. You see, I am 45 and have seen too many doctors for me to even...
    NMDewey NMDewey 41-45, M 1 Response Aug 24

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    I haven't been diagnosed but it's something the doctors are placing on the back burner for a possibility. So, I guess I'll start at the beginning... In February of this year, I...
    tuyetmeo tuyetmeo 22-25, F 1 Response Aug 24

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    So I contracted hepres about 2 yrs ago from an ex boyfriend who had it and didn't tell me. I actually found out from someone else he was seeing at the same time. I haven't...
    luethel luethel 22-25, F 2 Responses Aug 22

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    i don't really know how to start this out, so I'm going to jump right into it. When you were little there was nothing you care about, you'd dance around and not care if people...
    silverelephant silverelephant 13-15, F Aug 22

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    I was diagnosed with DM in 2009 along with Celiac's disease, I guess I didn't realize what this disease was or how serious it was, at the time the Celiac's was my bigger concern...
    Jill2006 Jill2006 51-55, F Aug 21

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    Hi there my name is Nate And I'm a 25 year old male With cerebral palsy, On August 14 2015 I was diagnosed with Hashi modos I was shocked Because I have been a bodybuilder for the...
    natecr natecr 22-25, M Aug 21

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