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I Have Polycystic Kidney Disease

Personal Stories, Advice, and Support 71 People

    It Has Taken Over My Life...

    I was diagnosed with PKD when I was 17 years old. I had visited doctors before, because I had terrible back pains. However, they all said the same things: I was a dancer, I had just started menstruating, nothing to worry about; it happens in teen girls. Until I fell ill with...
    MerellD MerellD 22-25, F 3 Responses Apr 28, 2012

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    A Green Light

    Have you ever heard of micro-Chinese medicine osmotherapy whixh shrinks the cysts and reduces the surface of your enlarged kidneys???? http://www.youtube.com/watch?v=JETVKmnkx8M Share any information you have about it , please...
    olgerta olgerta 22-25, F Aug 27, 2013

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    Do You Love Your Kidneys?

    At first, I didn’t. They were a source of pain and some embarrassment. They got in the way of my male “macho” self-image. They were the points of my vulnerability. I hated them, and always referred to them as “my damn kidneys.” This was so for over 40 years...
    RichP48 RichP48 61-65, M 2 Responses May 14, 2012

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    What A Life..

    My name is Kayla, I have pkd, it has effected my life alot, when i was three years old, i got very sick, my mom was worryed, they took me to the er, they couldnt help, i was n pain and very dehydrated. They sent me to kansas city, by alumblance. There they found out my sickness...
    kaylaewen kaylaewen 18-21 2 Responses Jan 13, 2012

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    I was diagnosed 2 weeks

    before my 18th birthday through an ultrasound taken after contracting a very nasty kidney infection. At my age I have no real noticeable changes, just slightly higher blood pressure and recurring urinary tract infections. I know it probably sounds very silly of me to be worrying...
    theinevitablechange theinevitablechange 18-21, F Oct 11, 2014

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    PKD Issues

    Hello , My story starts with the death of my father when I was 2. PKD. related. My family also lost my aunt and grandmother , also PKD related. When I was 12 I was diagnosed with PKD. I had a fantastic childhood and youth and did not develop any issues until I was approx 28...
    beachtracks beachtracks 41-45, M 1 Response Jul 24, 2013

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    ..er... Well It's A Long One. So Much So That I Have Written A Book

    if you google tell me if this hurts than add lulu then the first find should have my page first 11 pages available- mostly comments from those who have read it mick
    fenal fenal 56-60, M Jan 19, 2013

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    I Wish They Understood What My Insides Feel Like

    my kidneys stretch from my ribs to my hips. my liver from the right side of my abdomen to the left. i have constance pian inbetween my shoulder blades in my sternum and the left side of my abdomen. the pain level is always a 5 and then without warning it goes off the richter...
    februar februar 46-50 1 Response Mar 1, 2013

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    Do Any Other PKD People Exercise While Wearing A Heart Rate Monitor

    Does anyone, with PKD, exercise with a heart rate monitor? Hi have had five different heart rate monitors over the last 10 years and they all show my heart rate going up to 212 and as low as 25. Has anyone else experienced this? I have no symptoms of dizziness or heart...
    binab binab 56-60, F 1 Response Sep 17, 2013

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    I Will Never Eat Chocolate Any More

    Chocolate is regarded to stimulate the enlargement of renal cysts. Caffeine increases the quantity of the messenger protein cyclic AMP. This can trigger cyst fluids to secrete, thus to enlarge all renal cysts, causing more damages to kidneys. Cyclic AMP can increase the renal...
    winnewu winnewu 41-45, F May 7, 2012

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    6 Year Old Child Diagnosed With Polycystic Kidney Disease

    My son was hospitalized on sunday for abdominal pain. They did a CT scan and found cysts on his kidneys. They diagnosed him with PKD based on the fact that my husband, all of his brothers, all of their cousins, my husband's mother, and his cousin's father have the disease. As I...
    sweetzebragirl sweetzebragirl 26-30, F 5 Responses Feb 14, 2011

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    How Live Well With Pkd

    Once I hear that “PKD looks good on you”, it really make me appreciated about it. Here are the share suggestions about how to live well with PKD. 1. If you live in a PKD family, an appropriate diet management is suggested, especially for the one who is with the disease...
    winnewu winnewu 41-45, F 1 Response May 3, 2012

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    Kidney Disease Can Destroy The Things You Love To Do

    Kidney Disease can destroy the things you love to do, but it doesn't have to. PKD can mean more than just pain and pot belly. As you know, PKD means pain. But you may not know it can also mean destruction — not just of your kidneys, but of the things you love to do. The longer...
    winnewu winnewu 41-45, F May 8, 2012

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    Teal Ink

    I am 24 years old and throught my entire life thet imebombs i was born with have told me you cant do this and you cant do that. I abused alcohol for a long time trying to deal with it. I am pretty alone with this disease as i am the only person with in a large radius that has it...
    akoerbel1988 akoerbel1988 26-30, M 1 Response Apr 10, 2013

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    Is Kidney Failure In Your Future Polycystic Kidney Disease?

    I Find This Checker to estimate Your Current Polycystic Kidney Disease Futhure. After 9 questions, it estimates the risk to develop Kidney Failure and provides some guidance for you. May it help you! http://www.kidneyabc.com/PKDquestionnaire.html
    winnewu winnewu 41-45, F 1 Response Oct 1, 2012

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    Life With Pkd1

    I am currently 28years old. I was diagnosed by ultrasound when i was 17 due to a bad UTI. I have not had one since thank goodness and have not had a lot of issues yet. My father had PKD1 as well and just passed away in January this year due to heart complications stemming from...
    smvanam smvanam 26-30 2 Responses Apr 3, 2012

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    Polycystic Kidney Disease

    Recently during an MRI, it was found that I have multiple growths throughout my kidneys, liver, area, one which is massive on the kidney. The doctor sent the MRI disc off to a doctor who specializes in this disease who diagnosed me with polycystic kidney disease.. I hurt a...
    fancythecat fancythecat 51-55, F 8 Responses May 8, 2010

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    15-months Pregnant

    In April of 2001, I was diagnosed with Polycystic Kidney Disease. During a routine physical, my very thorough doctor felt something odd around the abdomen. Concerned about uterine cysts, fairly common and usually benign, she sent me for an ultrasound. Sure enough, I did indeed...
    Jonesman Jonesman 36-40, F 10 Responses Sep 8, 2008

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    Diagnosed 2 Yearz Ago

    I was diagnosed with PKD in Feb 2010. I am a 60 year old woman with no family history of PKD. I also have multiple cysts on my liver. I had many kidney infections as a teen and kidney stones twice in my 30's but have been in good health otherwise. I went to the dr because of...
    chezlinda77 chezlinda77 56-60 2 Responses Feb 25, 2012

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    Growing Up I Had That Sinking Feeling

    In the back of my mind I always knew that my body would someday betray me. It was just a feeling. I was right. I remember it as if it were yesterday. My husband is an army surgeon and we were living in Ft. Campbell, KY visiting family back in Wisconsin. It was a hot sunny...
    KyCat KyCat 56-60 1 Response Jul 11, 2013

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    What Causes Polycystic Kidney Disease

    What Causes Polycystic Kidney Disease Polycystic Kidney Disease passes on from generation to generation. Many factors can trigger Polycystic Kidney Disease, but gene problem is the dominant cause for various cysts in kidneys.
    kidneycares kidneycares 22-25, M 2 Responses Oct 5, 2012

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    Just Diagnosed

    Confirmed diagnose yesterday that I am likely to have PKD even though no symptom yet. I didn't know much about the decease until now and looking up information on the website horrifies me. Now I know how I will live my life in 10-15 years. I don't regret knowing it because it...
    danelionspromise danelionspromise 26-30, F 5 Responses Feb 24, 2011

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    polycystic kidney disease runs through my dads

    side of the family. I was diagnosed 4 months ago when my menstrual cycle was not right I had a ultra sound and they found cysts not only on my kidneys but on my ovaries as well. the ones on my ovaries were 6cm, 5.4cm, 7cm.
    chlo3ann3 chlo3ann3 13-15, F Oct 4, 2014

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    I have polycystic kidney disease.

    The largest cyst measures 6cm in right and 5cm in left kidney. the latest scan report says that 'corticomedullary differentiation lost in with paper thinning of cortex'. Is it a serious problem? I am taking medicines to control BP only.
    aneetasree aneetasree 31-35, F Aug 22, 2014

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    Military Status With Pkd

    I was diagnosed with ADPKD in 2010 and have been in the military for over 12 years. I am currently living overseas and concerned about my future options. It all started with a few ER visits because of serious abdominal and back pains. It took about one year before I realized I...
    Forward4ME Forward4ME 31-35, M 6 Responses Aug 25, 2012

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    Related Experiences

    A cure for Parkinson's Disease? Every once in a while I get excited about some research that is being done as it relates to Parkinson's Disease. I'm not stupid, I know how these...
    LifeinWoodinville LifeinWoodinville 41-45, M 6 Responses Jan 5

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    I've been sick since I was 11 years old ....I would tell my mom I had hot flashes.....I was also very depressed at age 12..lost interest in school grade dropped like a sinking boat...
    sparkle2015 sparkle2015 18-21, F 2 days ago

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    I was diagnosed with Grover's disease about 3 years ago. I tried many things but eventually found a solution that worked for me. I asked my dermatologist to prescribe UV light...
    nocompromise nocompromise 41-45, M Jan 4

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    Can someone please tell me they're symptoms of polycistic ovarian syndrome x
    iwantababy111 iwantababy111 16-17, F 4 days ago

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    I made the stupid mistake of sleeping with a guy I knew was a manwhore. He was such a smooth talker and convinced me it was safe not to use a condom. About a month later I was in...
    Mandyrox1989 Mandyrox1989 22-25, F 4 Responses Jan 4

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    I was just diagnosed with AIH. I have not started the treatment yet. My liver enzymes were up to 915 and 610 in November and then then dropped dramatically in December to 179 and...
    Ursula55 Ursula55 56-60, F 2 days ago

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    I think I have had this disease most of my life but getting worse the last several years. I was diagnosed a year ago, since than I can not work a desk job. I was a Phelbotimist...
    Bab53 Bab53 51-55 2 days ago

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    I Want To My One Kidney ( B+) My Self Mohd Aadil From Delhi (India) Age 35 Iam Healthy Person No Any Disease But I Have Some Financially Problems Thats I Sell My One Kidney any...
    mohd0567 mohd0567 36-40, M 4 days ago

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    I Want To My One Kidney ( B+) My Self Mohd Aadil From Delhi (India) Age 35 Iam Healthy Person No Any Disease But I Have Some Financially Problems Thats I Sell My One Kidney any...
    mohd0567 mohd0567 36-40, M 4 days ago

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    Uncle Adam There are a lot of alcoholics in my family, including my father, now sober. But the first in our family to be recognised for this disease was my uncle, Adam. He was...
    PersonalGenesis PersonalGenesis 22-25, F Jan 7

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    The twenty-second day of January is the worst date on the calendar for me. It is the day that my older brother took his own life and forever changed mine. It was the New Year’s...
    miryam57 miryam57 56-60, F 1 Response 6 days ago

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    i m amit age 21 plz contact my no.+918563918229 i need a money for business plz.. i have a study n business so plz contact..................................... i want donet my...
    amitkash amitkash 18-21, M 1 Response Dec 25, 2014

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    I'm from Brazil, 25 years old, blood group B+, very healthy, don't smoke, don't drink, white man, and wanna sell my kidney. vendomeuesperma @yahoo.com
    Leandro25years Leandro25years 22-25 Jan 3

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    plz plz my name is manoj,i have no bad habits,plz i donate my kidney,finacial problem,my blood grp-Apositive my phne no.7893627942
    manojkumar123456 manojkumar123456 26-30 Jan 6

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    if anybody want a kidney with A+ blood group please contact me on 08855074908, 0706632468
    narenbj narenbj 18-21 Jan 11

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    i need to sell my kidney or liver if anybody want to buy it.croatia
    dadich dadich 41-45, M 5 days ago

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    I decided to put a whole bunch of my weight gaining life into this one experience. It's really long, but if you want to read it, do so :) My scales are sadly broken. The last...
    FlabPack FlabPack 26-30, M 2 Responses Jan 4

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    my name is Minnie my diagnose date is 12/2010. I'm 3rd stage emphysema (4th stage-end stage). I did well at first, but the disease is progressive. The next thing I know is I am...
    einnim einnim 61-65, F 2 Responses Dec 26, 2014

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    about 3 years ago i was diagnosed with tspk... i went to the eye doctor thinking i had pink eye really bad, but knew it was something else. my eyes were completely bloodshot (i...
    Nebraskagirl21 Nebraskagirl21 22-25, F Jan 8

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    2015 New Year resolution - I had a very bad 2014, and sadly that carried on into the 2015. I already had a list made, however that one only had 3 resolutions in it, and they were...
    themanoflegends themanoflegends 22-25, M 2 Responses Jan 3

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    Vapor rub! I beg of you, deliver soothing goodness before I cough up a kidney, you're my only hope!!!
    nottheaveragegirl nottheaveragegirl 18-21, F 1 Response Jan 4

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    i am 28 yrs leady i have some finace pr obleam i need money arjent thas why i am sale my kedney are you need you msg me dont call me 9620702628 B+ve my blood group pls
    28yashu 28yashu 26-30 Jan 10

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