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I Have Polycystic Kidney Disease

Personal Stories, Advice, and Support 71 People

    How Live Well With Pkd

    Once I hear that “PKD looks good on you”, it really make me appreciated about it. Here are the share suggestions about how to live well with PKD. 1. If you live in a PKD family, an appropriate diet management is suggested, especially for the one who is with the disease...
    winnewu winnewu 41-45, F 1 Response May 3, 2012

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    Growing Up I Had That Sinking Feeling

    In the back of my mind I always knew that my body would someday betray me. It was just a feeling. I was right. I remember it as if it were yesterday. My husband is an army surgeon and we were living in Ft. Campbell, KY visiting family back in Wisconsin. It was a hot sunny...
    KyCat KyCat 56-60 1 Response Jul 11, 2013

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    Do You Love Your Kidneys?

    At first, I didn’t. They were a source of pain and some embarrassment. They got in the way of my male “macho” self-image. They were the points of my vulnerability. I hated them, and always referred to them as “my damn kidneys.” This was so for over 40 years...
    RichP48 RichP48 61-65, M 2 Responses May 14, 2012

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    ..er... Well It's A Long One. So Much So That I Have Written A Book

    if you google tell me if this hurts than add lulu then the first find should have my page first 11 pages available- mostly comments from those who have read it mick
    fenal fenal 56-60, M Jan 19, 2013

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    It Has Taken Over My Life...

    I was diagnosed with PKD when I was 17 years old. I had visited doctors before, because I had terrible back pains. However, they all said the same things: I was a dancer, I had just started menstruating, nothing to worry about; it happens in teen girls. Until I fell ill with...
    MerellD MerellD 22-25, F 3 Responses Apr 28, 2012

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    I was diagnosed 2 weeks

    before my 18th birthday through an ultrasound taken after contracting a very nasty kidney infection. At my age I have no real noticeable changes, just slightly higher blood pressure and recurring urinary tract infections. I know it probably sounds very silly of me to be worrying...
    theinevitablechange theinevitablechange 18-21, F Oct 11

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    Polycystic Kidney Disease

    Recently during an MRI, it was found that I have multiple growths throughout my kidneys, liver, area, one which is massive on the kidney. The doctor sent the MRI disc off to a doctor who specializes in this disease who diagnosed me with polycystic kidney disease.. I hurt a...
    fancythecat fancythecat 51-55, F 8 Responses May 8, 2010

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    Is Kidney Failure In Your Future Polycystic Kidney Disease?

    I Find This Checker to estimate Your Current Polycystic Kidney Disease Futhure. After 9 questions, it estimates the risk to develop Kidney Failure and provides some guidance for you. May it help you! http://www.kidneyabc.com/PKDquestionnaire.html
    winnewu winnewu 41-45, F 1 Response Oct 1, 2012

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    Kidney Disease Can Destroy The Things You Love To Do

    Kidney Disease can destroy the things you love to do, but it doesn't have to. PKD can mean more than just pain and pot belly. As you know, PKD means pain. But you may not know it can also mean destruction — not just of your kidneys, but of the things you love to do. The longer...
    winnewu winnewu 41-45, F May 8, 2012

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    I Will Never Eat Chocolate Any More

    Chocolate is regarded to stimulate the enlargement of renal cysts. Caffeine increases the quantity of the messenger protein cyclic AMP. This can trigger cyst fluids to secrete, thus to enlarge all renal cysts, causing more damages to kidneys. Cyclic AMP can increase the renal...
    winnewu winnewu 41-45, F May 7, 2012

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    6 Year Old Child Diagnosed With Polycystic Kidney Disease

    My son was hospitalized on sunday for abdominal pain. They did a CT scan and found cysts on his kidneys. They diagnosed him with PKD based on the fact that my husband, all of his brothers, all of their cousins, my husband's mother, and his cousin's father have the disease. As I...
    sweetzebragirl sweetzebragirl 26-30, F 5 Responses Feb 14, 2011

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    Life With Pkd1

    I am currently 28years old. I was diagnosed by ultrasound when i was 17 due to a bad UTI. I have not had one since thank goodness and have not had a lot of issues yet. My father had PKD1 as well and just passed away in January this year due to heart complications stemming from...
    smvanam smvanam 26-30 2 Responses Apr 3, 2012

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    A Green Light

    Have you ever heard of micro-Chinese medicine osmotherapy whixh shrinks the cysts and reduces the surface of your enlarged kidneys???? http://www.youtube.com/watch?v=JETVKmnkx8M Share any information you have about it , please...
    olgerta olgerta 22-25, F Aug 27, 2013

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    I have polycystic kidney disease.

    The largest cyst measures 6cm in right and 5cm in left kidney. the latest scan report says that 'corticomedullary differentiation lost in with paper thinning of cortex'. Is it a serious problem? I am taking medicines to control BP only.
    aneetasree aneetasree 31-35, F Aug 22

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    Diagnosed 2 Yearz Ago

    I was diagnosed with PKD in Feb 2010. I am a 60 year old woman with no family history of PKD. I also have multiple cysts on my liver. I had many kidney infections as a teen and kidney stones twice in my 30's but have been in good health otherwise. I went to the dr because of...
    chezlinda77 chezlinda77 56-60 2 Responses Feb 25, 2012

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    I Wish They Understood What My Insides Feel Like

    my kidneys stretch from my ribs to my hips. my liver from the right side of my abdomen to the left. i have constance pian inbetween my shoulder blades in my sternum and the left side of my abdomen. the pain level is always a 5 and then without warning it goes off the richter...
    februar februar 46-50 1 Response Mar 1, 2013

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    Teal Ink

    I am 24 years old and throught my entire life thet imebombs i was born with have told me you cant do this and you cant do that. I abused alcohol for a long time trying to deal with it. I am pretty alone with this disease as i am the only person with in a large radius that has it...
    akoerbel1988 akoerbel1988 26-30, M 1 Response Apr 10, 2013

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    Do Any Other PKD People Exercise While Wearing A Heart Rate Monitor

    Does anyone, with PKD, exercise with a heart rate monitor? Hi have had five different heart rate monitors over the last 10 years and they all show my heart rate going up to 212 and as low as 25. Has anyone else experienced this? I have no symptoms of dizziness or heart...
    binab binab 56-60, F 1 Response Sep 17, 2013

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    15-months Pregnant

    In April of 2001, I was diagnosed with Polycystic Kidney Disease. During a routine physical, my very thorough doctor felt something odd around the abdomen. Concerned about uterine cysts, fairly common and usually benign, she sent me for an ultrasound. Sure enough, I did indeed...
    Jonesman Jonesman 36-40, F 11 Responses Sep 8, 2008

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    Military Status With Pkd

    I was diagnosed with ADPKD in 2010 and have been in the military for over 12 years. I am currently living overseas and concerned about my future options. It all started with a few ER visits because of serious abdominal and back pains. It took about one year before I realized I...
    Forward4ME Forward4ME 31-35, M 6 Responses Aug 25, 2012

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    polycystic kidney disease runs through my dads

    side of the family. I was diagnosed 4 months ago when my menstrual cycle was not right I had a ultra sound and they found cysts not only on my kidneys but on my ovaries as well. the ones on my ovaries were 6cm, 5.4cm, 7cm.
    chlo3ann3 chlo3ann3 13-15, F Oct 4

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    What A Life..

    My name is Kayla, I have pkd, it has effected my life alot, when i was three years old, i got very sick, my mom was worryed, they took me to the er, they couldnt help, i was n pain and very dehydrated. They sent me to kansas city, by alumblance. There they found out my sickness...
    kaylaewen kaylaewen 18-21 2 Responses Jan 13, 2012

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    Just Diagnosed

    Confirmed diagnose yesterday that I am likely to have PKD even though no symptom yet. I didn't know much about the decease until now and looking up information on the website horrifies me. Now I know how I will live my life in 10-15 years. I don't regret knowing it because it...
    danelionspromise danelionspromise 26-30, F 5 Responses Feb 24, 2011

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    What Causes Polycystic Kidney Disease

    What Causes Polycystic Kidney Disease Polycystic Kidney Disease passes on from generation to generation. Many factors can trigger Polycystic Kidney Disease, but gene problem is the dominant cause for various cysts in kidneys.
    kidneycares kidneycares 22-25, M 2 Responses Oct 5, 2012

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    PKD Issues

    Hello , My story starts with the death of my father when I was 2. PKD. related. My family also lost my aunt and grandmother , also PKD related. When I was 12 I was diagnosed with PKD. I had a fantastic childhood and youth and did not develop any issues until I was approx 28...
    beachtracks beachtracks 41-45, M 1 Response Jul 24, 2013

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    Related Experiences

    I have crohn's disease . I was diagnosed in 2003 , I would say I'm a very strong person with all the pain I go through . but it seems ever since I had my daughter 7 years ago I've...
    queenbee03 queenbee03 22-25, F Dec 10

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    I thought I needed a good vent so here goes. Sorry if there is TMI. Every since I started my period when I was 11 I would be in excruciating pain, I would have to have time off...
    xxkerry1990xx xxkerry1990xx 22-25, F 1 Response Dec 2

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    That is not funny , millions are dying every day , but the media don't show it , I have seen this virus first hand , please don't make light of it , it may come to your doorstep...
    fromthemtoyou fromthemtoyou 31-35, M 4 Responses Nov 20

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    I have always felt like I want to die but can't kill myself because of what it would do to my family but mainly my daughter who I am so close to, I just don't want to face the hell...
    tealc2961 tealc2961 36-40, M 2 Responses 21 hrs ago

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    So I have a very specific problem that I can't go a day without thinking about. I have this disorder called episodic ataxia type 2, and if you haven't heard of it (which is likely...
    theskyisarainbow theskyisarainbow 16-17, M 6 days ago

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    I was diagnosed when i was 3 and when i was 10 i got really sick and stayed in the hospital for over a year, it was hard but now im on a new medication that really helps.
    Hmaster69 Hmaster69 18-21, M Nov 19

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    It started out as red eyes, muscle weakness in the legs then a emergency blood transfusion, then told i have chronic kidney disease stage 3, then told im otherwise healthy but...
    shoshoneone shoshoneone 26-30, F 1 Response 1 day ago

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    I have a Demyelinating Disease. MS is also one of these diseases but mine is a new type. I have lesions scattered through out my brain and on the underside of my Corpus Collosum...
    BCulp38 BCulp38 41-45, F 1 Response Nov 23

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    From the time that I was 7 years old, I have been medicated. I have been on 30+ drugs my entire life. First was Ritalin, that made me a walking zombie. From then on anti...
    sicknfaith83 sicknfaith83 31-35, F Dec 2

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    Kidney stone is a hard, crystalline mineral material formed within the kidney or urinary tract. Symptoms of kidney stone are severe pain and blood in the urine. Holac Hospital is...
    holachospital holachospital 22-25, M Dec 4

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    A few years ago, I moved from the east coast of the United States to the southwest to go back to university after taking a year long break from school, and I didn't know a single...
    uglyhands uglyhands 22-25, F Dec 4

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    So, my mother is still alive, but is now bed bound. That makes her angry, so she gets doped up to calm her down. Her kidneys may be failing...will find out tomorrow. She sees...
    Myzery Myzery 31-35, F 1 Response Dec 4

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    Thomas Marvelli is a popular Ophthalmologist, working at Marvel Eye Center. He is M.D. from Loyola University Stritch School of Medicine, Maywood, IL. He loves his job as a...
    ryangibello ryangibello 61-65, M Dec 5

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    hi i am a male of 22years. my blood group is b+ve i would like to donate my kidney in return of some amount. kindly contact me for the same. my phone no. +918005436658.
    abhineetkushwaha abhineetkushwaha 22-25, M Nov 18

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    hi am a male of 22 years. my blood group is B+ve . i Have never had any sort of drugs or alcohol in my life. i am fit an would like to donate my kidney in return of some amount...
    abhineetkushwaha abhineetkushwaha 22-25, M Nov 18

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    i want to sale my kidney my blood A positive i need money only 4 lacks pls. contact me 9999396488 i am in Delhi
    anees7660 anees7660 31-35, M Dec 2

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    This happens to me when I was 7 years old , I was out playing in the road where i was living at the time. I was sick It came out a light green colour looking like scrambled eggs...
    1barebrit 1barebrit 41-45, M Dec 3

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    It's very urgent. I'm 30 yrs old and healthy with no addictions. I'd want to sell one of my kidneys in exchange for financial support. If a person is in dire need of one then my...
    rajatsen rajatsen 26-30, M Dec 4

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    I want to sell my kidney urgently blood grp O+ only b.Coz of money. I have to pay lots of money to people who helped me in my loss of business.. Pls feel free to contact in india...
    Ashwin98268 Ashwin98268 26-30, M Dec 4

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    Please help me to come out from my financial problems, i would like to sell my Kidney, please contact 09840369759 - i dont have passport
    uthamravi14 uthamravi14 26-30, M Dec 5

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    healthy, 42 year old male in IL willing to provide one of my kidneys for mutually beneficial arrangement. All testing and travel costs to be paid by recipient. My blood type is B...
    bushido62 bushido62 41-45 1 Response Dec 5

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    I am Kate, My health is Very Good no problem atoll need to donate my Organ (Kidney)for financial reason in lieu some good amount to solve my family problem.
    Kate890 Kate890 22-25, F Dec 8

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    Until you walk a mile in my shoes, it will be very easy to say "it's all in your head!" "You need to learn to cope!" Or my favorite, "is this even a real thing?" Misophonia...
    Annaelaine Annaelaine 13-15, F 1 Response Dec 7

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