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I Have Polycystic Kidney Disease

Personal Stories, Advice, and Support 66 People

    Is Kidney Failure In Your Future Polycystic Kidney Disease?

    I Find This Checker to estimate Your Current Polycystic Kidney Disease Futhure. After 9 questions, it estimates the risk to develop Kidney Failure and provides some guidance for you. May it help you! http://www.kidneyabc.com/PKDquestionnaire.html
    winnewu winnewu 41-45, F 1 Response Oct 1, 2012

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    What A Life..

    My name is Kayla, I have pkd, it has effected my life alot, when i was three years old, i got very sick, my mom was worryed, they took me to the er, they couldnt help, i was n pain and very dehydrated. They sent me to kansas city, by alumblance. There they found out my sickness...
    kaylaewen kaylaewen 18-21 2 Responses Jan 13, 2012

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    A Green Light

    Have you ever heard of micro-Chinese medicine osmotherapy whixh shrinks the cysts and reduces the surface of your enlarged kidneys???? http://www.youtube.com/watch?v=JETVKmnkx8M Share any information you have about it , please...
    olgerta olgerta 22-25, F Aug 27, 2013

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    Polycystic Kidney Disease

    Recently during an MRI, it was found that I have multiple growths throughout my kidneys, liver, area, one which is massive on the kidney. The doctor sent the MRI disc off to a doctor who specializes in this disease who diagnosed me with polycystic kidney disease.. I hurt a...
    fancythecat fancythecat 51-55, F 7 Responses May 8, 2010

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    Military Status With Pkd

    I was diagnosed with ADPKD in 2010 and have been in the military for over 12 years. I am currently living overseas and concerned about my future options. It all started with a few ER visits because of serious abdominal and back pains. It took about one year before I realized I...
    Forward4ME Forward4ME 31-35, M 6 Responses Aug 25, 2012

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    ..er... Well It's A Long One. So Much So That I Have Written A Book

    if you google tell me if this hurts than add lulu then the first find should have my page first 11 pages available- mostly comments from those who have read it mick
    fenal fenal 56-60, M Jan 19, 2013

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    Diagnosed 2 Yearz Ago

    I was diagnosed with PKD in Feb 2010. I am a 60 year old woman with no family history of PKD. I also have multiple cysts on my liver. I had many kidney infections as a teen and kidney stones twice in my 30's but have been in good health otherwise. I went to the dr because of...
    chezlinda77 chezlinda77 56-60 2 Responses Feb 25, 2012

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    I Will Never Eat Chocolate Any More

    Chocolate is regarded to stimulate the enlargement of renal cysts. Caffeine increases the quantity of the messenger protein cyclic AMP. This can trigger cyst fluids to secrete, thus to enlarge all renal cysts, causing more damages to kidneys. Cyclic AMP can increase the renal...
    winnewu winnewu 41-45, F May 7, 2012

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    It Has Taken Over My Life...

    I was diagnosed with PKD when I was 17 years old. I had visited doctors before, because I had terrible back pains. However, they all said the same things: I was a dancer, I had just started menstruating, nothing to worry about; it happens in teen girls. Until I fell ill with...
    MerellD MerellD 22-25, F 3 Responses Apr 28, 2012

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    Just Diagnosed

    Confirmed diagnose yesterday that I am likely to have PKD even though no symptom yet. I didn't know much about the decease until now and looking up information on the website horrifies me. Now I know how I will live my life in 10-15 years. I don't regret knowing it because it...
    danelionspromise danelionspromise 26-30, F 5 Responses Feb 24, 2011

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    15-months Pregnant

    In April of 2001, I was diagnosed with Polycystic Kidney Disease. During a routine physical, my very thorough doctor felt something odd around the abdomen. Concerned about uterine cysts, fairly common and usually benign, she sent me for an ultrasound. Sure enough, I did indeed...
    Jonesman Jonesman 36-40, F 10 Responses Sep 8, 2008

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    Pkd By: Kelsey Bell About Raquel Rosado

    When I started researching for my anatomy and physiology paper I really wanted to choose a disease that hit home. Instead of choosing from the prepared topics I went a little off track and a little more personal. You don’t understand how much a disease can impact people’s...
    leuqarrosado leuqarrosado 18-21, F 3 Responses May 15, 2012

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    How Live Well With Pkd

    Once I hear that “PKD looks good on you”, it really make me appreciated about it. Here are the share suggestions about how to live well with PKD. 1. If you live in a PKD family, an appropriate diet management is suggested, especially for the one who is with the disease...
    winnewu winnewu 41-45, F 1 Response May 3, 2012

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    6 Year Old Child Diagnosed With Polycystic Kidney Disease

    My son was hospitalized on sunday for abdominal pain. They did a CT scan and found cysts on his kidneys. They diagnosed him with PKD based on the fact that my husband, all of his brothers, all of their cousins, my husband's mother, and his cousin's father have the disease. As I...
    sweetzebragirl sweetzebragirl 26-30, F 5 Responses Feb 14, 2011

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    PKD Issues

    Hello , My story starts with the death of my father when I was 2. PKD. related. My family also lost my aunt and grandmother , also PKD related. When I was 12 I was diagnosed with PKD. I had a fantastic childhood and youth and did not develop any issues until I was approx 28...
    beachtracks beachtracks 41-45, M 1 Response Jul 24, 2013

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    Life With Pkd1

    I am currently 28years old. I was diagnosed by ultrasound when i was 17 due to a bad UTI. I have not had one since thank goodness and have not had a lot of issues yet. My father had PKD1 as well and just passed away in January this year due to heart complications stemming from...
    smvanam smvanam 26-30 2 Responses Apr 3, 2012

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    Teal Ink

    I am 24 years old and throught my entire life thet imebombs i was born with have told me you cant do this and you cant do that. I abused alcohol for a long time trying to deal with it. I am pretty alone with this disease as i am the only person with in a large radius that has it...
    akoerbel1988 akoerbel1988 22-25, M 1 Response Apr 10, 2013

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    Do You Love Your Kidneys?

    At first, I didn’t. They were a source of pain and some embarrassment. They got in the way of my male “macho” self-image. They were the points of my vulnerability. I hated them, and always referred to them as “my damn kidneys.” This was so for over 40 years...
    RichP48 RichP48 61-65, M 2 Responses May 14, 2012

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    Do Any Other PKD People Exercise While Wearing A Heart Rate Monitor

    Does anyone, with PKD, exercise with a heart rate monitor? Hi have had five different heart rate monitors over the last 10 years and they all show my heart rate going up to 212 and as low as 25. Has anyone else experienced this? I have no symptoms of dizziness or heart...
    binab binab 56-60, F 1 Response Sep 17, 2013

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    Growing Up I Had That Sinking Feeling

    In the back of my mind I always knew that my body would someday betray me. It was just a feeling. I was right. I remember it as if it were yesterday. My husband is an army surgeon and we were living in Ft. Campbell, KY visiting family back in Wisconsin. It was a hot sunny...
    KyCat KyCat 56-60 1 Response Jul 11, 2013

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    What Causes Polycystic Kidney Disease

    What Causes Polycystic Kidney Disease Polycystic Kidney Disease passes on from generation to generation. Many factors can trigger Polycystic Kidney Disease, but gene problem is the dominant cause for various cysts in kidneys.
    kidneycares kidneycares 22-25, M 2 Responses Oct 5, 2012

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    I Wish They Understood What My Insides Feel Like

    my kidneys stretch from my ribs to my hips. my liver from the right side of my abdomen to the left. i have constance pian inbetween my shoulder blades in my sternum and the left side of my abdomen. the pain level is always a 5 and then without warning it goes off the richter...
    februar februar 46-50 1 Response Mar 1, 2013

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    Kidney Disease Can Destroy The Things You Love To Do

    Kidney Disease can destroy the things you love to do, but it doesn't have to. PKD can mean more than just pain and pot belly. As you know, PKD means pain. But you may not know it can also mean destruction — not just of your kidneys, but of the things you love to do. The longer...
    winnewu winnewu 41-45, F May 8, 2012

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    Related Experiences

    I have stage 4 chronic kidney disease since last nov. Of 2013,right before Thanksgiving. And I do have couple donors to help me but I guess the hospital is still gonna take awhile...
    letsbestrong letsbestrong 31-35, F 4 days ago

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    I have a kidney available for a person who needs it. I am a healthy adult male. 42 years old, non smoker and very rare drinker. Non meat eater for 20+ years. Donation...
    bushido62 bushido62 41-45 1 Response Jun 24

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    Anyone deal with uric acid kidney stones. I hate these dam things. And now the uric acid is causing somthing I thought only men got not girls!! Gout. I am to young for this. I can...
    JMay1994 JMay1994 18-21, F Jul 6

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    Well I find out tommarow at what stage my disease😁doctor said stage 2 but after seeing other xrays I believe it's stage 3 nervous about surgery and want them to skip the four...
    jeffbelcher jeffbelcher 41-45, M Jun 30

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    My son who is 15 has been diagnosed with kienbochs disease - they have put ha wrist in a cars and are hoping that the blod flow to the bones will return normally - we are in New...
    raegem raegem 46-50, F 3 days ago

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    In 5th grade I started to notice that my back was begging to look like a hump like shape. My mom said it was cause of the way I stood and I needed to stand up straighter and not...
    InsecureEcho InsecureEcho 13-15, F 1 Response Jul 6

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    Oct 2012, Dr told me I have PD. Take medicine, but have good days and bad days. PD mostly affects my legs. When meds ware off, my legs hurt. Can not sleep, have to walk to...
    rjk01 rjk01 66-70, M 3 Responses Jul 7

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    Hello. I was diagnosed with A.D. 5 years ago, and 5 years before that I was diagnosed with Type 1 Diabetes. I am currently 20 weeks pregnant (and it has been terrible thus far!) I...
    jenyeaz jenyeaz 22-25, F 3 days ago

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    i remember how happy I was when I had my first real poop after being diagnosed with crohns.
    helreb helreb 18-21, F 1 Response Jul 9

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    My symptoms started when I was 16. I began to experience widespread joint, muscle pain, and headaches. I was seen by multiple doctors who said that I was perfectly fine and just...
    eeeck eeeck 26-30 3 days ago

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    Looking for people who have server Menieres Disease and has had the shunt surgery on my left ear but now I'm getting in my right ear
    gborron gborron 46-50, F 2 Responses 3 days ago

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    I was diagnosed with GoodPasture Syndrome last summer. A little too late. Doctor had my results from a urinalysis, and my proteins were greater than 500, among other labs that...
    funkydivachick funkydivachick 26-30, F Jul 10

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    My mom want to donate her kidney. her blood group is AB+. Anyone interested?? please reply fast.
    anusayap anusayap 46-50 Jun 25

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    my name is Nawaz Siddiqui from India i want to sell my kidney my blood group is AB+ , no bad habit ,by God's Grace i am healthy my contact no. is +91 8688472795 urgent.
    nawazsiddiqui nawazsiddiqui 31-35, M 1 Response Jun 26

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    I am a 30 year old single mother of 3 and I am o+ and live in South Africa. I am willing to donate my kidney but to someone who is willing to pay all my medical and travel...
    goodsamaritaninsa goodsamaritaninsa 31-35 Jul 4

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    I want to sell my kidney as i am in big financial problem... contact me if u are serios at +919767237227
    naresh007n4 naresh007n4 22-25, M 1 Response Jul 7

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    i also want to sell my kidney.. i'm 30 yo.. my contact is 09067543003
    bunskie bunskie 26-30, M Jul 14

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    iwant to sale my kidney money urgent, i 'm lahiru from sri lanka, contact me +94 771 095501
    lahiru0099 lahiru0099 22-25, M 6 days ago

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    I want to donate my Kidney for free ? Anyone ?
    Wasanmid Wasanmid 22-25, F 1 Response 2 days ago

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    Hi my boyfriend needs a kidney transplant. He had one when he was 5 from his brother and it failed. He has been given less than 5 years to live. No one in his family is a match and...
    emzilini emzilini 18-21, F 2 Responses 1 day ago

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    I had a kidney transplant a year ago (5/13) and I read stories about a second chance and new beginnings and what not. I dont feel like that but sometimes feel guilty for not...
    Dougwaters Dougwaters 46-50, M 1 Response Jul 10

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    hello, i am lalith jain from bangalore i want to sell my kidney,blood group is AB +(POSITIVE),age 37,healthy and fit,i have home problem,num--9972942389,9341397614,pls only serious...
    lolt345 lolt345 31-35, M Jul 14

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    hello, i am lalith jain from bangalore i want to sell my kidney,blood group is AB +(POSITIVE),age 37,healthy and fit,i have home problem,num--9972942389,9341397614,pls only serious...
    lolt345 lolt345 31-35, M 1 Response Jul 14

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    I have CIDP- I am 21. I was diagnosed last year after being wrongly diagnosed for two years. My main problem is severe pain- it started with pinching feelings in my toes and slowly...
    dobermanlady93 dobermanlady93 18-21, F Jun 25

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    I have CIDP- I am 21. I was diagnosed last year after being wrongly diagnosed for two years. My main problem is severe pain- it started with pinching feelings in my toes and slowly...
    dobermanlady93 dobermanlady93 18-21, F Jun 25

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    I'm 20 years old and have been suffering with HS for about 4 years now. Looking at me I don't think anyone would ever guess that I struggle with this and only a handful of people...
    AlexandraSavannah AlexandraSavannah 18-21, F 3 Responses Jun 28

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