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I Have Polycystic Kidney Disease

Personal Stories, Advice, and Support 74 People

    Military Status With Pkd

    I was diagnosed with ADPKD in 2010 and have been in the military for over 12 years. I am currently living overseas and concerned about my future options. It all started with a few ER visits because of serious abdominal and back pains. It took about one year before I realized I...
    Forward4ME Forward4ME 31-35, M 6 Responses Aug 25, 2012

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    I have polycystic kidney disease.

    The largest cyst measures 6cm in right and 5cm in left kidney. the latest scan report says that 'corticomedullary differentiation lost in with paper thinning of cortex'. Is it a serious problem? I am taking medicines to control BP only.
    aneetasree aneetasree 31-35, F Aug 22, 2014

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    How Live Well With Pkd

    Once I hear that “PKD looks good on you”, it really make me appreciated about it. Here are the share suggestions about how to live well with PKD. 1. If you live in a PKD family, an appropriate diet management is suggested, especially for the one who is with the disease...
    winnewu winnewu 41-45, F 1 Response May 3, 2012

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    Kidney Disease Can Destroy The Things You Love To Do

    Kidney Disease can destroy the things you love to do, but it doesn't have to. PKD can mean more than just pain and pot belly. As you know, PKD means pain. But you may not know it can also mean destruction — not just of your kidneys, but of the things you love to do. The longer...
    winnewu winnewu 41-45, F May 8, 2012

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    I Wish They Understood What My Insides Feel Like

    my kidneys stretch from my ribs to my hips. my liver from the right side of my abdomen to the left. i have constance pian inbetween my shoulder blades in my sternum and the left side of my abdomen. the pain level is always a 5 and then without warning it goes off the richter...
    februar februar 46-50 1 Response Mar 1, 2013

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    What Causes Polycystic Kidney Disease

    What Causes Polycystic Kidney Disease Polycystic Kidney Disease passes on from generation to generation. Many factors can trigger Polycystic Kidney Disease, but gene problem is the dominant cause for various cysts in kidneys.
    kidneycares kidneycares 22-25, M 3 Responses Oct 5, 2012

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    15-months Pregnant

    In April of 2001, I was diagnosed with Polycystic Kidney Disease. During a routine physical, my very thorough doctor felt something odd around the abdomen. Concerned about uterine cysts, fairly common and usually benign, she sent me for an ultrasound. Sure enough, I did indeed...
    Jonesman Jonesman 36-40, F 10 Responses Sep 8, 2008

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    What A Life..

    My name is Kayla, I have pkd, it has effected my life alot, when i was three years old, i got very sick, my mom was worryed, they took me to the er, they couldnt help, i was n pain and very dehydrated. They sent me to kansas city, by alumblance. There they found out my sickness...
    kaylaewen kaylaewen 18-21 2 Responses Jan 13, 2012

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    6 Year Old Child Diagnosed With Polycystic Kidney Disease

    My son was hospitalized on sunday for abdominal pain. They did a CT scan and found cysts on his kidneys. They diagnosed him with PKD based on the fact that my husband, all of his brothers, all of their cousins, my husband's mother, and his cousin's father have the disease. As I...
    sweetzebragirl sweetzebragirl 26-30, F 5 Responses Feb 14, 2011

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    I have known since 22

    that I have this disease. High BP has been my only symptom. Now I feel as though my torso is crowded. Breathing can be difficult especially after eating. Anyone else with this problem?
    panoon12 panoon12 31-35, F Feb 24

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    Growing Up I Had That Sinking Feeling

    In the back of my mind I always knew that my body would someday betray me. It was just a feeling. I was right. I remember it as if it were yesterday. My husband is an army surgeon and we were living in Ft. Campbell, KY visiting family back in Wisconsin. It was a hot sunny...
    KyCat KyCat 56-60 1 Response Jul 11, 2013

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    PKD Issues

    Hello , My story starts with the death of my father when I was 2. PKD. related. My family also lost my aunt and grandmother , also PKD related. When I was 12 I was diagnosed with PKD. I had a fantastic childhood and youth and did not develop any issues until I was approx 28...
    beachtracks beachtracks 41-45, M 1 Response Jul 24, 2013

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    polycystic kidney disease runs through my dads

    side of the family. I was diagnosed 4 months ago when my menstrual cycle was not right I had a ultra sound and they found cysts not only on my kidneys but on my ovaries as well. the ones on my ovaries were 6cm, 5.4cm, 7cm.
    chlo3ann3 chlo3ann3 13-15, F Oct 4, 2014

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    I Will Never Eat Chocolate Any More

    Chocolate is regarded to stimulate the enlargement of renal cysts. Caffeine increases the quantity of the messenger protein cyclic AMP. This can trigger cyst fluids to secrete, thus to enlarge all renal cysts, causing more damages to kidneys. Cyclic AMP can increase the renal...
    winnewu winnewu 41-45, F May 7, 2012

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    I was diagnosed 2 weeks

    before my 18th birthday through an ultrasound taken after contracting a very nasty kidney infection. At my age I have no real noticeable changes, just slightly higher blood pressure and recurring urinary tract infections. I know it probably sounds very silly of me to be worrying...
    theinevitablechange theinevitablechange 18-21, F Oct 11, 2014

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    Polycystic Kidney Disease

    Recently during an MRI, it was found that I have multiple growths throughout my kidneys, liver, area, one which is massive on the kidney. The doctor sent the MRI disc off to a doctor who specializes in this disease who diagnosed me with polycystic kidney disease.. I hurt a...
    fancythecat fancythecat 51-55, F 8 Responses May 8, 2010

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    It Has Taken Over My Life...

    I was diagnosed with PKD when I was 17 years old. I had visited doctors before, because I had terrible back pains. However, they all said the same things: I was a dancer, I had just started menstruating, nothing to worry about; it happens in teen girls. Until I fell ill with...
    MerellD MerellD 22-25, F 3 Responses Apr 28, 2012

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    A Green Light

    Have you ever heard of micro-Chinese medicine osmotherapy whixh shrinks the cysts and reduces the surface of your enlarged kidneys???? http://www.youtube.com/watch?v=JETVKmnkx8M Share any information you have about it , please...
    olgerta olgerta 22-25, F Aug 27, 2013

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    Life With Pkd1

    I am currently 28years old. I was diagnosed by ultrasound when i was 17 due to a bad UTI. I have not had one since thank goodness and have not had a lot of issues yet. My father had PKD1 as well and just passed away in January this year due to heart complications stemming from...
    smvanam smvanam 26-30 2 Responses Apr 3, 2012

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    Is Kidney Failure In Your Future Polycystic Kidney Disease?

    I Find This Checker to estimate Your Current Polycystic Kidney Disease Futhure. After 9 questions, it estimates the risk to develop Kidney Failure and provides some guidance for you. May it help you! http://www.kidneyabc.com/PKDquestionnaire.html
    winnewu winnewu 41-45, F 1 Response Oct 1, 2012

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    ..er... Well It's A Long One. So Much So That I Have Written A Book

    if you google tell me if this hurts than add lulu then the first find should have my page first 11 pages available- mostly comments from those who have read it mick
    fenal fenal 56-60, M Jan 19, 2013

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    Just Diagnosed

    Confirmed diagnose yesterday that I am likely to have PKD even though no symptom yet. I didn't know much about the decease until now and looking up information on the website horrifies me. Now I know how I will live my life in 10-15 years. I don't regret knowing it because it...
    danelionspromise danelionspromise 26-30, F 5 Responses Feb 24, 2011

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    Diagnosed 2 Yearz Ago

    I was diagnosed with PKD in Feb 2010. I am a 60 year old woman with no family history of PKD. I also have multiple cysts on my liver. I had many kidney infections as a teen and kidney stones twice in my 30's but have been in good health otherwise. I went to the dr because of...
    chezlinda77 chezlinda77 56-60 2 Responses Feb 25, 2012

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    Do Any Other PKD People Exercise While Wearing A Heart Rate Monitor

    Does anyone, with PKD, exercise with a heart rate monitor? Hi have had five different heart rate monitors over the last 10 years and they all show my heart rate going up to 212 and as low as 25. Has anyone else experienced this? I have no symptoms of dizziness or heart...
    binab binab 56-60, F 1 Response Sep 17, 2013

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    Teal Ink

    I am 24 years old and throught my entire life thet imebombs i was born with have told me you cant do this and you cant do that. I abused alcohol for a long time trying to deal with it. I am pretty alone with this disease as i am the only person with in a large radius that has it...
    akoerbel1988 akoerbel1988 26-30, M 1 Response Apr 10, 2013

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    Do You Love Your Kidneys?

    At first, I didn’t. They were a source of pain and some embarrassment. They got in the way of my male “macho” self-image. They were the points of my vulnerability. I hated them, and always referred to them as “my damn kidneys.” This was so for over 40 years...
    RichP48 RichP48 61-65, M 3 Responses May 14, 2012

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    Related Experiences

    I am 38 year old from India, want to sell my kidney at a mutually convenient price since am into financial constraints. I don't smoke/drink. Please contact on 7093307568
    VictorHP VictorHP 36-40, M 12 hrs ago

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    People defend doctors And pills And medical practices And military actions Then bash the disabled Or the government caring for broken While damaged By the wealthy...
    Converted Converted 46-50, M 1 Response 13 hrs ago

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    The wealthy hoard And keep the poor in poverty. And keep society from improving Which makes earth sick But earth may survive them Or explode to remove them Like some...
    Converted Converted 46-50, M 13 hrs ago

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    hi iam maha laxmi from trichy tamilnadu. i want to sell my kidney for 10- 20 laks . i need money urgently . age 23 blood group b+ contact me 9524286824 whatsup no. 9524286824 i...
    gowrimaha gowrimaha 18-21, F 1 day ago

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    My brother in law need a kidney urgently. O+ Kidney need urgently. Donor should be under 40. Donor call at No. +92-333-4506458, 0300-6703819 or 03332652785.
    Asgharsindhi Asgharsindhi 41-45, M 1 Response 1 day ago

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    I was in foster care until I was fifteen, then moved in with a boyfriend of mine in a studio apartment with ten other people, three of which never paid rent, they were homeless...
    JuniperGin JuniperGin 18-21, F 1 day ago

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    Dear Sir /Madam, Do you want to sell your kidney? Are you seeking for an opportunity to sell your kidney for money due to financial break down and you don’t know what to do, then...
    cityhospital cityhospital 36-40 2 days ago

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    Im 13 almost 14 in 9th grade and I've had Crohns for 4 years now. But I've only been diagnosed with it about 4 months ago. I've been suffering with it without knowing that it was...
    Poptart020 Poptart020 13-15, F 1 Response 3 days ago

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    I want to sell my kidney. B+ve blood group. Nkf fraud pls excuse. My whatsapp number is +919041921082
    meetv meetv 26-30, M 3 days ago

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    Because of my Crohn's, eating is incredibly difficult sometimes because I know after I eat whatever it is I'm going to end up on the toilet in a few minutes. It's especially...
    Catherdra Catherdra 22-25, F 3 days ago

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    Sigh. It's like my brain doesn't. Let me wake up until I've had every dream I'm supposed to. Tried to wake up at 10 and collapsed. Now it's 1. Whatever. 1. So anyways the first...
    PinkMellow PinkMellow 18-21, F 4 days ago

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    I want to sell my kidney due to financial problem. I am 36 Male from Sri Lanka. Having O+ blood group. No bad habits. Fit & Fine. Pls Contact +94710771717 or +94767761717
    mfmnawshard mfmnawshard 36-40, M 6 days ago

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    I was diagnosed from my kidney doc after a Biopsy that I had sjogrens, but my Rhuemetologist says no ( I don't like him and am changing to a new one) I already have kidney disease...
    katsass katsass 46-50, F 6 days ago

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    my name is murtada , im from saudi arabia 29 years old ,, i need someone to help me about darier's , because now more than 15 years I have it ,, i use medicine but noting deferent...
    murtada1986 murtada1986 26-30, M a week ago

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    Here's the picture of the lump sticking out of my knee. Unfortunately I will have this lump for the rest of my life :(
    HMC17 HMC17 13-15, M 8 Responses a week ago

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    One sunny November morning I awoke to a strange pain in 3 far spaced teeth in my lower left jaw, it was a nagging pain that almost felt more like a pressure so deep it bored...
    itwouldntbemakebelieve itwouldntbemakebelieve 22-25 a week ago

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    I have Osgood-Schlatter Disease and I hate it. It's painful, I have a permanent lump under my knee and it restricts the amount of exercise I do (which is a massive down point for...
    HMC17 HMC17 13-15, M 5 Responses a week ago

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    Hi all, I was diagnosed with bilateral (both eyes) scleritis last November 2014 and practically every day since then has been misery. I'm not new to eye disease because I also...
    polarsuds polarsuds 46-50, F