I Have Polycystic Liver Disease

A Polycystic Liver Disease anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Polycystic Liver Disease. You're not alone. 8 People

    I Have Pkd And Pld

    I was diagnosed with PKD and PLD when I was 33, I am now 51. For the past few years my liver has grown hugely and I am in so much pain and discomfort that there are times when I just don't want to go on. Fortunately for me I have a great liver specialist and he has pushed for me...
    Debbiedidi Debbiedidi
    51-55
    1 Response Aug 5, 2012

    Moggie64

    Hi Folks...I'm 47 year old male.. I have had PLD & PKD for a long time.. my kidneys have both been removed due to the size...7kgs.I have found it very hard to get the Dr's at the hospital I go to ,to see me to a Speacilist Liver Dr, whom deals with the Liver..it has taken years...
    moggie64 moggie64
    46-50, M
    2 Responses Dec 28, 2011

    Any Help Besides Pain Management?

    I will soon be 69 and was diagnosed 5 years ago with PLD and PKD, do not have an enlarged liver but have at least 2 or 3 cysts bursting a day. Feel like all I do is pop pills, heating pad helps some but any other suggestions from anyone? Vnoreenh
    Vnoreenh Vnoreenh
    70+, F
    1 Response May 29, 2013
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