I Have Polymyalgia Rheumatica

Polymyalgia Rheumatica anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Polymyalgia Rheumatica. You're not alone. 239 People

    I have had this for about one year.

    Started with 40mg of Prednisone which gave me relief and tapered down to 2mg/daily as of 3 weeks ago. Poly came back and I am now taking 15mg/daily. I have no Poly symptoms, but life is unbearable as I have have just about every Prednisone side effect now. My Rheumatologist says...
    sgreen55 sgreen55
    66-70, M
    Dec 19, 2015

    I Have Polymyalgia Rheumatica

    I got PMR in April of 2008, overnight, extreme neck pain which just went on and on and spread to shoulders, hips, right wrist, jaw, and even the bottom of my right foot. it took me a few months to figure out what I had. I was living on an island in Scotland and the doctor there...
    Galaxy1122 Galaxy1122
    56-60, F
    2 Responses Apr 29, 2012

    No Energy

    I was sick for approximately 11 months before being diagnosed with pmr and I took the prednisone at first but it didn't agree with me, so now I take methylprednisolone. I have no energy, I constantly get headaches, and of course my joints hurt, but most of all I feel run down...
    mamasweets63 mamasweets63
    51-55, F
    2 Responses Sep 18, 2013

    Is This The Result Of My Knee Replacement?

    On Sept. 30, 2013, I had a complete replacement of my left knee. The surgery went well as did the in-patient physical therapy. Within a week I was at home and moving well with the use of a walker. I came home on Wednesday and had my first out-patient physical therapy session on...
    malewine malewine
    66-70, F
    2 Responses Nov 7, 2013

    Newly Diagnosed And On Steroids

    H i everyone, would like to make contact with other"s  with PMR, for information and support with this horrible diseaseHad the most awfull symptoms very severe , unable to roll over in bed, getting out of bed and off the toilet nearly impossible but with all my might and pushing...
    hollyhockblue hollyhockblue
    9 Responses Mar 14, 2012

    PMR - 1 YEAR IN

    Was fit and worked out usually five days/week. On Pred. most of the past year, at times as high as 40mg. Taking vit D and calcium to help avoid side effects of pred. Have been stuck at 10mg., having lots of hand/wrist/shoulder pain so I went to 11mg. and at least am functional...
    firemandave firemandave
    56-60, M
    3 Responses Oct 27, 2013

    I'm too young right? I'm 38

    but have had issues for at least 2 decades now and have been trying to get a diagnosis since then. I was misdiagnosed in 2011 at 33 years old with Fibromyalgia. Is there anyone else out there that is this young?? I'm worried that they are misdiagnosing me. My Sed Rate, Cprotines...
    rbellew12 rbellew12
    1 Response Feb 3, 2016

    Too Young

    Hi My doctor thinks I have this condition, I am only 46. Am I too young, are there others out there with this condition at my age?
    kazmac kazmac
    46-50, F
    7 Responses Nov 3, 2013

    I Think I Have Polymyalgia Rheumatica

    I have had ongoing pain now for 7 months. It first started in my gluteals and hamstrings and has progressed to hips, shoulders, back. All test for RA, lupus, and ESR, CRP have come back normal. They have wanted to put me on Prednisone but I have resisted because I know of the...
    Nursegal3 Nursegal3
    3 Responses Apr 13, 2013

    Healing without Steroids!

    update It's been two years since I was diagnosed with PMR and I wrote a lot about my experience in my first blog. It has been quite a journey. This past year I continued to work with my homeopathy, food allergy program, and my wonderful Osteopathic hands-on physician. I've...
    Determined2BWell Determined2BWell
    66-70, F
    Feb 18, 2014

    Polymyalgia For Five Years Now-

    Hi all, I have PMR for five years and am down to 2 1/2mg. prednisone after many fluctuations on doses with flare-ups. Started on 20mg with a sed rate of 40. Sed rate is now 11 yet I have bad pain in all of my fingers. Anyone else have finger stiffness and pain with PMR? I...
    health52 health52
    56-60, F
    3 Responses Sep 24, 2012

    Post PMR

    I have suffered with PMR for 2 years. My prednisone was up and down all this time until I went to the Mayo Clinic. All my side effects including unable to walk the length of my own home because of pain and unable to breath, were from being on Prednisone too long,. I was told...
    judyrio judyrio
    6 Responses Sep 3, 2013

    Pmr Even With Low Sed Rate

    Greetings, It's been just 2 months now since I woke up one morning unable to sit down or pick up a cup of coffee. I've always been a healthy, energetic active woman. I go go go all day long in the garden, running errands and driving OTHER people to their doctor appointments. I...
    Sideline2 Sideline2
    61-65, F
    4 Responses Aug 12, 2012

    Prednisone Doesn't Help Me.

    I was diagnosed with Polymyalgia about 4 months ago. Couldn't even get of bed on my own. Tried Prednisone with no results even had a couple of shots but nothing. Went for many blood tests and even went to a haematologist in case I had Leukemia, which it wasn't. My...
    Jaredean Jaredean
    56-60, F
    1 Response Jun 28, 2012

    One week I was Lindy Hopping

    and the next I couldn't bend my knees. I thought I had Lyme Disease. My inflammatory markers—CRP & Sed--were up. I had mild pain in the soft tissue behind my knees, in my hip girdle, my upper arms. My Chronology Nov 2014 -- behind the knees soft tissue cause pain. Dec 2014...
    RatherBeDancing RatherBeDancing
    66-70, F
    1 Response Jul 13, 2015

    OMG The Pain Is Overwhelming

    Hi, well my journey started in December 2012...I am a Sales Rep (55 years young) and noticed my foot had started to swell and go red. So I went to the doctor and had XRays taken. "You have arthritis in you ankle' said the doctor, "You can take some anti inflammatories and you...
    poochi1 poochi1
    4 Responses Sep 25, 2013

    Once again I'm on the internet checkout out PMR.

    Diagnosed 6 years ago. (age 62) As soon as my doctor saw me struggling to get up he immediately said "PMR". HUH? had no clue what he was talking about. Told me that if I truly had PMR the prednisone that he was prescribing would work sooner then the lab reports would return...
    namaste2 namaste2
    2 Responses Jan 8, 2014

    Recently Diagnosed With Pmr

    I believe that I have actually had this disease for approx. 9 months. Rotator cuff tears in both shoulders misled the real issue until symptoms went south To hips and legs. Pain has been debilitating. Also suffering from anemia. CRP and sed rate levels were way elevatEd...
    Cynthia4 Cynthia4
    5 Responses Nov 23, 2011

    New To PMR

    I am newly diagnosed with PMR. Caught it very quickly and have pretty good relief on 10 mg of prednisone. I am also being treated with acupuncture. I would like advice on what others do in the am in regards to any stretching and or exercises? Despite the morning pain and...
    shebagal shebagal
    2 Responses Mar 28, 2013

    Living With The Pain

    Having a virus one morning in April, not knowing what to do. Waking up thinking you restless leg syndrome. That was just the beginning. Hips, bullocks, ankles, the knees. Everything going wrong. Tried Tonic water, didn't help, pain only got worse. Finally went to MD. Tried...
    siehsta siehsta
    Sep 15, 2013

    I went to the doctors office in the beginning

    of May 2014 with pain in several joints. It continued to get worst in my neck, shoulders, wrists, and knees. I had the initial blood test in the end of May which showed markers. I ended up in the emergency room in the end of June because I was in such severe pain and the PA...
    VanessaAz VanessaAz
    56-60, F
    2 Responses Jul 14, 2014

    I was diagnosed with Poly in October,

    I was given 10 mg prednisone for 6 weeks. It did help. The Dr. then reduced to 8 mg it didn't take long and I was in agony again. It was back to 10 mg for a few weeks, then decrease to 9 mg the agony returned, and I am back on the 10 mg. I am very discouraged.
    edoody edoody
    66-70, F
    1 Response Jan 23, 2014

    I have had PMR for about 6 months now,

    and am down to 10mg of Prednisone per day. At 20mg almost no pain, at 15mg, a little pain in the mornings, now at 10mg, the pain is up but manageable. But I would like to find something other than Prednisone to treat the pain.. I will look up Heal N Soothe, I have heard that...
    Bluesntennis Bluesntennis
    66-70, M
    2 Responses Dec 3, 2014

    Polymyalgia Rhematica Is Manageable

    I have had PMR for about 3 months. Initially, I was being treated for a sprained ligament in my sacroiliac joint. As the stability and range of motion in my right hip improved, a debilitating stiffness set in across my pelvic girdle. Initially, Ibuprofen and Aleve (NSAIDs...
    jwilli290purple jwilli290purple
    3 Responses Nov 6, 2013

    A Melodrama Of Errors Updated

    About two months ago I wrote that I had tight hip flexors, a pulled muscle or tendon in my left thigh, inflammation in my left leg, arthritis in my hips that wasn't slowing me down and polymyalgia rheumatica diagnosed just a week before. At that time I was taking 15 mg of...
    marty39 marty39
    70+, M
    1 Response Sep 2, 2013

    Not Sure??

    Hi All Okay, went on BHRT for menopause, felt great, six months and my calcific tendonitis never bothered me. I went off the bio-identical hormone due to conflict with another med I needed. Within a week my calcific tendonitis was unbearable, now I was experiencing pain in...
    georgie430 georgie430
    Oct 31, 2013

    Healing Without Steroids!

    Greetings everyone, I thank you for all your posts as they helped me to be determined to find another path to healing besides steroids. I have traveled the path of many of you.  I have been through pain that kept me up most of the night, followed by more pain all day, wondering...
    Determined2BWell Determined2BWell
    66-70, F
    3 Responses Jan 8, 2013

    My husband is the sufferer,

    but doesn't use a computer. He was on Celebrex for years until it started causing stomach bleeding. His GP finally decided to have him try prednisone for one week and most of his pain was gone. He was referred to a rheumatologist who put him on prednisone. It helped the...
    Babo140 Babo140
    1 Response Sep 7, 2014

    I have been finding that I have been very tired

    and in extreme pain in my legs and upper arms. I think this has been in my body for a few years but just became unmanageable. My primary doc said it is PMR and I am waiting for the blood test to come back before I start steroids.
    grammypam3 grammypam3
    70+, F
    2 Responses May 25, 2014

    Into My Second Year With Pmr

    I woke up December 26, 2009 with stiff and sore back thigh muscles.  After 3 days of this I went to the doctor.  She diagnosed me with a pinched nerve but I was pretty sure that wasn't it.  She wanted to send me for an MRI and I said, "No".  Two days later my shoulders and...
    katiebuglove katiebuglove
    4 Responses Jun 13, 2011

    I was diagnosed in June of 2012,

    put on 30 mg prednisone, gradually got down to 2 mg/day, extreme flare ups, so much pain, couldn't get out of bed, arms and legs too painful. After 3 days, all seemed OK, but not after going back to 20 mg/day. After 2 1/2 yrs. it's still there. Had one bad flare up in August...
    rubylaker rubylaker
    70+, F
    3 Responses Oct 18, 2014

    I Too Have PMR

    I was dianosed with PMR in August of this year, 2013 . I thought I had injured my back. I tried therapy and even had traction with of course no relief. I couldn't roll over in bed, and my husband had to push against my back one morning so I could get up, and then I hobbled...
    lillakaisa lillakaisa
    70+, F
    Nov 4, 2013

    I was just diagnosed with Polymyalgia

    Rheumatica today. I have been in incredible pain for the last few months, and it had gotten to the point I didn't know how much more I could take. Just having a name for what is wrong with me is such a relief. I am going to try steroid therapy, but don't know if I can take the...
    kadebell kadebell
    51-55, F
    1 Response Apr 23, 2015

    Newly Diagnosed

    After 3 months of agony i was diagnosed 3 days ago,,was put on 20mg pred which has had hardly any affect apart from a slight headache and extreme fatigue,,how long does it take to work i am at the point of losing my job my home and my sanity!!!
    Tracey50 Tracey50
    10 Responses Mar 7, 2013

    Raised Rheumatoid Factor

    My member's name should be 'confused' because that's what I am ! A few weeks ago, my left arm was so stiff and painful upon waking, I thought I had a torn muscle. This was followed by the right arm feeling the same and I had aching in my thighs and back. The pain was excrutiating...
    Bearskin Bearskin
    1 Response Oct 22, 2012

    Was diagnosed March 2013.

    Long Story short was an active individual and within a short 3 months became extremely handicapped and in constant pain. Did the whole medical routine, sent me to a rheumatologist who wanted to start me on prednisone and anti-inflammatories. Asked the rheumatologist if she...
    persky01 persky01
    56-60, F
    7 Responses Oct 29, 2014

    Newly Diagnosed

    I am 51 years old, and about 6 months ago I started with some pain in my right upper arm. Within the next 3 months, the pain took over my arms, neck, and upper legs. I was a wreck (still feel like I am!). Went to my doc. She told me it was probably a little arthritis and...
    Suarez001 Suarez001
    51-55, F
    6 Responses Jan 11, 2013

    Is This Polymyalgia Or Some Other Immune Disorder?

    Hello all, I am really struggling at the moment with painful symptoms and am getting absolutely nowhere with my GP. I suspect I have some sort of inflammatory condition or disease, and wondered if perhaps someone might read my story and recognise anything and advise me...
    DC1962 DC1962
    9 Responses Jul 11, 2012

    Pmr = Yuk!

    After 5 months of visiting 6 drs., the PMR diagnosis was given to me 2 weeks ago with 20 mg prednisone.  I was hoping for immediate relief - but am in 80% relief.  After swimming a mile daily and walking 2 miles daily, I have had a complete halt.  Psychologically upsetting...
    SwimmerSue SwimmerSue
    2 Responses May 15, 2011

    I was just diagnosed with polymyalgia

    rheumatica. I was put on an oral corticosteroid. I am very concerned about the side effects (Osteoporosis weight gain, diabetes, high cholesterol). I have watched my diet for many years and have been able to avoid medication. Taking medication frightens me and taking multiple...
    trudye10 trudye10
    66-70, F
    1 Response Jan 1, 2014

    Did anyone else contact this disease right

    after receiving vaccinations? I contacted this disease one week after receiving TDAP and Shingles vaccinations.
    Bluesntennis Bluesntennis
    66-70, M
    1 Response Aug 22, 2014

    Never Been Sick In My Life - Until I Got Pmr - Wow!

    At 51 I thought I was lucky because I had great health all my life - never even had a cold really - all my work colleagues used to tease me, but were envious that I was so healthy.  Then a year ago I had sore upper arms, then sore hips and upper legs and finally real sore...
    happydespitepmr happydespitepmr
    51-55, F
    3 Responses Nov 26, 2011

    I told my story last September at EP Link

    but at that time I was still taking 20mg/day of prednisone and was still not in good shape. I was pain-free soon after and by December I was down to 2.5mg/day. My rheumatologist then told me to stop taking prednisone. I was OK for a few weeks. Then I started to have pains that...
    marty39 marty39
    70+, M
    3 Responses Nov 30, 2014

    Need Help In Coping

    I have PMR and have had it for at least 2 years.  I am 59 and being diabetic I cannot take prednisone due to it causing blood sugar levels to go extremely high.  I have to have my left hip replaced and as I don't have to tell any of you this a condition that is 24 hour pain...
    catbonkers catbonkers
    56-60, F
    3 Responses Dec 27, 2011

    Hi All. I am new to this site.

    I am so happy to have found it and have read all your stories. I too, had never heard of this and now do not feel so alone. I lived with pain gradually getting worse for close to a year before going to the doctor. After blood tests showing only positive ANA, SED rate normal, I...
    beachgirl5 beachgirl5
    56-60, F
    3 Responses Jun 15, 2014

    Pmr Without Steroid Treatment

    Hi, I am a 69 year old Swede who has been diagnosed with PMR some six weeks ago. Having read about the side effects with steroid treatment I decided to go for anti inflamatory tablets, diklofenak (Voltaren) as long as I can. I am on friendly terms with my GP but susptect that he...
    sommartid sommartid
    8 Responses Apr 28, 2012

    Just curious as to how others with this

    condition are doing. I was told I had PRM a year ago after suddenly coming down with what I thought was the flu. Felt awful and exhausted, with a mild fever. In a month or two, one of my hips and shoulders started to be painful. A bunch of blood tests and other tests later, the...
    GreySierra GreySierra
    61-65, M
    Jan 2, 2016

    My Journey With PMR.

    PMR couldn't have come at a worse time for me. I had just finally got it together - lost 70 pounds - was training with a personal trainer twice a week - was loving Zumba classes. For the first time in a very long time I had some self-confidence and was loving myself. In June of...
    Debp Debp
    61-65, F
    1 Response Aug 14, 2013

    From Glandular Fever To Now Pmr

    Hi Everyone,I was diagnosed with PMR last week, finally!!!! After two years of having no answers and being told by doctors oh its just the weather, or age or a past virus --- to finally know that I’m not going crazy or becoming a hypercondriact is a relief.Where my story begins...
    Bella1968 Bella1968
    3 Responses Apr 12, 2011

    Finally A Diagnosis

    I originally consulted a chiropractor because I had a pinched nerve in my neck. Next, I began to experience severe pain in both upper arms as well as both thighs. The chiropractor referred me to a neurologist who did an MRI, which indicated damage in my shoulder, disk problems...
    emlyonshsd emlyonshsd
    7 Responses Feb 6, 2011

    Need Suggestions On Working Out Am Pain

    Was recently diagnosed with polymyalgia rheumatica and am under treatment. Still have morning pain levels of 5 in spite of taking 60mg of prednisone daily. Am looking for suggestions on how to work out the morning stiffness and pain. Has anyone used a hot tub? Don't really feel...
    carolcurtis carolcurtis
    70+, F
    22 Responses Jan 22, 2011

    Ive Trained For 30 Years And Have Pmr

    At 54 ive trained all my life,running and body building (no steroids ever) i eat properly and have never smoked also no drugs.I drink alcahol in moderation.Twelve months ago i thought i had a torn muscle in my groin and sought physio.After many sessions and hospital visits it all...
    daverobbo daverobbo
    7 Responses May 11, 2012

    New Diagnosis

    Hi, am a little confused and wonder if anyone has had similar experience. Presented to Dr with pain in shoulders, pain when raising arms to wash hair and tingling in jaw.  Previous diagnosis of bursitis, tinosynivitis and general back and hip pain about 4 years ago, MRI showed...
    kbrab kbrab
    3 Responses Oct 16, 2011

    My husband actually is the one suffering from

    PMR. He was diagnosed maybe 6+ months ago with severe pain and the Prednisone helped almost immediately. While in the process of weaning off Prednisone he had an appointment with his eye doctor and his pressure was extremely elevated. We discovered only then that you should...
    cls4fl cls4fl
    70+, F
    Mar 16, 2014

    I regret you all have PR; I regret I have it.

    I'm new. . . only a few weeks, but little doubt. Loved my life. . . Previously in excellent health, a jogger (short jogs), and all types of health habits since 28, (now a trim, active 80). so, what happened ?. . I have no idea. Hell happened. . .I want it to stop . . . I...
    elenaalso elenaalso
    1 Response May 25, 2015

    Hello everyone, I am 73

    and was diagnosed with PMR (pain in shoulders, thighs and buttocks) a month ago. My GP put me on 50mg prednisone for 2 weeks, then a specialist reduced it to 40mg and now I'm on 35mg. It takes about 4hrs for the excruciating shoulder pain to subside in the morning. Does anyone...
    bubamara25 bubamara25
    70+, F
    Jun 30, 2014
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