I Have Popliteal Pterygium Syndrome

A Popliteal Pterygium Syndrome anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Popliteal Pterygium Syndrome. You're not alone. 9 People

    Popliteal Pterygium Syndrome & My Family

    I am a 29 year old wife, mom, & step mom. I have a wonderful step son & 2 beautiful daughters. This syndrome is very rare however it is hereditary. My husband, 13yr old step son & my 4 yr old daughter all have this syndrome. My step son has...
    rgibson5 rgibson5
    7 Responses Dec 18, 2008

    Searching For Others With Pps

    I am a 29 year old mother of 2 beautiful boys. my oldest is 9, and is not effected by PPS, however my youngest is 4 and does have PPS. It is something that has become a normal part of our lives. I hope to meet up with other's who have this same syndrome, and share some...
    cyeater1 cyeater1
    3 Responses Apr 24, 2010

    Hey, 20 year old student here,

    just joined. I was born with Pop, I have so many questions I can't even begin. I've spent my whole life looking to talk to people who know what I have and don't look at me like I have 8 heads when I try to teach them how to spell it.
    tooyoungtobeme tooyoungtobeme
    22-25, T
    Feb 24, 2016
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