I Have Porphyria Cutanea Tarda

A Porphyria Cutanea Tarda anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Porphyria Cutanea Tarda. You're not alone. 13 People

    What Now?

    It has been nine months since I first showed signs of PCT.  I was only diagnosed with PCT last month and my head is spinning still.  I am happy to find there are others out there because I have so many questions relating to living with PCT.  Spring is coming...
    Sunless1 Sunless1
    56-60, F
    1 Response Apr 12, 2010

    Pct And Agent Orange

    My father has horrible symptoms of PCT.  During Vietnam, 50,000 tons of Agent Orange were dumped where he served.  I know his skin (PCT) issues have to do with this exposure.  Does anyone know anything about other veterans experiencing this?  Currently, he has been treated...
    galtris galtris
    36-40, F
    May 28, 2011

    Summer Is On the Way

    i found out i had porphyria about 3 year ago now. Im still tryin to do one day at a time. but with the summer comming soon i just have to stay indoors more and that gets hard to do. i need to get some better sunglasses this year too.
    maryraynejane maryraynejane
    26-30, F
    1 Response Jan 14, 2009
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