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I Have Postural Orthostatic Intolerance Syndrome

Otherwise known as POTS 25 People

    I Hope Its Pots...

    i am NOT diagnosed with pots syndrome officially. i am in the process of being diagnosed, and i truly believe this is the condition that Ive suffered for over a year now. my name is katy and im 19 years old. i didnt write this for someone who has pots to read and feel better...
    kbarrios93 kbarrios93 18-21, F Oct 23, 2012

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    I want to make a POTS group

    that meets once a week or once a month. Who lives In Wisconsin and has POTS?
    december789 december789 16-17, F Sep 10

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    Pots And Oi

     I have a condition called Postural Orthostatic Tachycardia Syndrome and Orthostatic Intolerance. Both conditions fall under the category of Dysautonomia: problems with the body's autonomic system. The conditions are not particulalry well known in the medical...
    POTSRecovery POTSRecovery 41-45, F Feb 18, 2010

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    Related Experiences

    After being diagnosed and being put on a bunch of new medications, I gained 30 lbs in a matter of months. I was even eating healthier and trying to work out as much as I could...
    Samm86 Samm86 18-21, F 1 Response Sep 5

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    Just recently I began researching on middle child traits. I've found out that middle child syndrome is very real and it's not only me who suffers from it. Growing up, I have...
    123eat 123eat 22-25, F 1 Response Aug 24

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    My mom and I have WPW. She was diagnosed when she was in her 50's. She talked about having a racing heart with each of her pregnancies. After she was diagnosed with WPW, one of...
    milesdeb milesdeb 61-65 Sep 3

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    DSPS probably began for me in my teenage years. I didn't know what it was and had no name for it. Like many other people's experience with DSPS, it was assumed that I was lazy or...
    softgreenhourglass softgreenhourglass 36-40, M 1 Response Sep 9

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    It's been almost two years since I learned I had this. It is great knowing that I'm not alone, and that I'm not a terrible person... But now what? I'm unemployed, I don't have the...
    WantingToHope WantingToHope 18-21 6 days ago

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    I am. 45 years old, throughout my childhood, I would have dizzy spells and blackouts, doctors said I was making it up for attention. At 18, I had a serious attack, heart began...
    i1u4eel2 i1u4eel2 41-45, M 19 hrs ago

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    Im 23 and it's not that I'm irresponsable or that i like to play videogames or things that most peter pan's would do it's just that i never had a teen age life i always lived the...
    rivera1 rivera1 22-25, M 6 days ago

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    My name is Kate. I live in Oscar, Louisiana. I started experiencing symptoms in November of 2012 while pitching in a softball game. It all started with right shoulder pain. I was...
    Katedebetaz Katedebetaz 13-15, F 2 Responses Aug 24

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    I'm 18 and every time I look at myself in my bra & panty..I stare. I stare at my reflection and I'm happy with how I was born; bare left chest no pectorals/nipple/muscle just my...
    ardorzie ardorzie 18-21, F 1 Response Aug 22

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    I used to really hate myself, I honestly did. But now, I'm happy I have what I have. When I was in elementary school, I never talked to anyone, I would walk around the playground...
    ThatRobotChick ThatRobotChick 18-21, F 4 Responses Aug 29

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    And through Asperger syndrome, I met a good friend on this website. Since then, we have met in person and he and I are beyond best friends; we are true brothers and always will be...
    chubbystringbean chubbystringbean 22-25, M 1 Response Sep 1

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    I don't think I have pica syndrome or if it's just a nutrition deficiency but when I get a bath or something I sometimes have a chew on the sponge or something because I like the...
    lucymichelle lucymichelle 13-15, F 1 Response Sep 1

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    I have pica and I have done for as long as I can remember. Unlike most people who have the syndrome/disorder I have had cravings for a WIDE variety of things throughout my...
    Pandasaurusrex Pandasaurusrex 18-21 Sep 2

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    Hello my name is Mark Miller. I was diagnosed with Klinefelters Syndrome when I was 4 years old. My parents knew something was wrong when I could not speak words until I was 7...
    Mark7Miller Mark7Miller 18-21, M 1 Response Sep 3

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    I am 15 years old I have Russell Silver Syndrome however the doctors did not diagnose me until I was 13 luckily I don't have all of the side effects however I am only 4'9 and...
    UNIJordanQUE UNIJordanQUE 13-15, F 2 Responses Sep 3

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    I'm not sure why I get mood swings but it seems like everyday there are numerous ups and downs. I think they might be attributable to my digestion and various allergies and...
    fiendforlife fiendforlife 31-35, M Sep 3

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    Hi my name is Jaime I am 29 years old and in 2006 I was diagnosed with a very rare kidney disease called Gittleman's Syndrome its so rare that not very many people in the United...
    GSwife1313 GSwife1313 26-30 Sep 4

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    So all my posts got deleted because they were too inappropriate. Lol people are pathetic couldn't handle what I have to say I guess. (;
    dontjudgeme1782 dontjudgeme1782 18-21, F 5 Responses Sep 6

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    When I was 26 year old I found out I got Klinefelter Syndrome I get a hormone testosterone needle every 12 weeks for the rest of my life.
    blackcat055 blackcat055 41-45, M Sep 11

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    With help from my psychologist (who's very successful and specialized in autism, along with other things.) shed a light over a little something that I've been thinking about for a...
    MissClueless MissClueless 16-17, F 3 Responses a week ago

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    I am a 28 year old mother of two young children and a wife. In February of this year 2014 I was rushed into surgery do to CES. The surgery took care of the back and right leg pain...
    korinne44 korinne44 26-30, F 1 Response 4 days ago

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    Asperger's Syndrome has caused me many problems regarding social behavior (what i should, and shouldn't do). I screwed up today, and am really upset about it. Hopefully you guys...
    TyphlosionWolf TyphlosionWolf 18-21, M 1 day ago

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    So about three weeks ago I got this odd pain that went from my neck into my left scapula area. I went to the chiropractor and had an adjustment. Felt somewhat better for just a...
    ornursetab ornursetab 41-45, F 19 hrs ago

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    After my first bad concussion I became much more susceptible to them. Post concussion syndrome is terrible.
    Kingshelman Kingshelman 31-35, M 2 Responses Aug 25

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    I have had RLS for about 5 years. It started after I tore my hamstring from my sits bone. At first it was constant. I couldn't sleep, I couldn't stand in one place for long or...
    Deedle623 Deedle623 51-55, F 1 Response Aug 25

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    Please help! Could someone clarify whether my symptoms could be endometriosis? I have been ill for over a year now and though many other conditions have been ruled out by my GP, a...
    NattieC NattieC 22-25, F Aug 25

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    I have had bloating and gas, alternating with constipation and hemorrhoids, and was told I had irritable bowel syndrome, for several years now. in 2006, I went through some very...
    gastricwoman gastricwoman 51-55 Aug 30

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    I have Asperger's Syndrome It helps me find it difficult to talk to girls in the real world that probably why I'm single but I can't change it I was born with it but it upsets me...
    JonnyBurrows10 JonnyBurrows10 18-21, M 3 Responses Aug 31

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    Wow!!! For as long as I can remember I have had cravings for weird non-eatable objects. I remember exactly when it started, I was about three my Mom and Dad had this ugly, green...
    RedVinekiss RedVinekiss 31-35, F Sep 3

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    I have suffered with CVS my entire life, from age two to now (Im 17). Along the way I've learned how to cope and help my episodes. All these helpful tricks may work for you but are...
    Platinumryan Platinumryan 16-17 Sep 4

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    I am not sure if I am diagnosed or not. My dr said I have tietze but he never did any real test on me. But the problems I am having are the same as with tietze, so that's who he...
    zerudahima zerudahima 22-25, F 2 Responses Sep 4

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    I've taken 2 clonzepam, and a Requip, and two aspirins. I have stretched and rolled on my foam roller. It's 2:00 am and it will not stop. So tired. Need to sleep.
    Deedle623 Deedle623 51-55, F 2 Responses Sep 5

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    Does anyone spike a fever when they have episodes?
    december789 december789 16-17, F Sep 5

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    I was diagnosed at age 8 with Sjogren's (I am now 22 years old) I have never talked to another person with the disease but would love to. As you know if you have this as well...
    hollyphoenix92 hollyphoenix92 22-25, F 1 Response Sep 5

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    That's what I thought when I read about Asperger's . I knew I had dyslexia. But I had difficulties that people with dyslexia don't have . So I thought co morbid . I wondered about...
    interlink2 interlink2 46-50, M Sep 7

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    Okay so I've always had this thing where light makes me sneeze. If I've been inside all day long, say at work or home, and then I leave the house, the moment the sunlight hits my...
    HVVENEZIA HVVENEZIA 22-25, M 1 Response Sep 7

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    My first hint that something wasn't right was walking back to our cruise ship with my daughter. I was having a hard time walking and thought maybe it was sciatica. I barely made...
    NixEgirl NixEgirl 56-60 1 Response Sep 7

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    I wish I could talk to my Aspie husband about the issues I have with our relationship, but as soon as I say anything, he gets so defensive and turns it back on me or becomes...
    TiffanyPerkins TiffanyPerkins 36-40, F 2 Responses Sep 9

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    I call my self an oddity. There are so many strange things about me i keep most of them hidden. Like my Pica. I told my mom once but we are mexican (she doesn't belive in Pica...
    mashuthanna mashuthanna 22-25, F Sep 9

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    In my early teens around 2000, I created a Myspace account. This man named Chuck added me. Of course I was fine with it because he was into anime and manga and being a young teen I...
    dreaminginjune dreaminginjune 22-25, F Sep 9

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    I don't have episodes as much as I used to but now it's just 24/7 burning and pain. Will this ever stop?
    Cvsgirl1222 Cvsgirl1222 16-17, F Sep 9

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    For many years I have "craved" really-hot radishes. I buy up to 6 bunches per week, and somewhat panic when I run out before shopping day. I only stopped for a short time...
    Omma41 Omma41 70+, F Sep 10

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    Born with rate condition called kfs klippel feil syndrome they only operate I've been told on few people with condition if bad enough I had an operation on my spine was told they...
    aromantic2012 aromantic2012 31-35 1 Response Sep 11

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    have plans for tonight? well too damn bad! Your getting bruises, cuts, pulled muscles, and a nice concussion, enjoy!
    thetalkingmushroom thetalkingmushroom 18-21, M 1 Response Sep 11

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