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I Have Postural Orthostatic Intolerance Syndrome

Otherwise known as POTS 20 People

    I Hope Its Pots...

    i am NOT diagnosed with pots syndrome officially. i am in the process of being diagnosed, and i truly believe this is the condition that Ive suffered for over a year now. my name is katy and im 19 years old. i didnt write this for someone who has pots to read and feel better...
    kbarrios93 kbarrios93 18-21, F Oct 23, 2012

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    Pots And Oi

     I have a condition called Postural Orthostatic Tachycardia Syndrome and Orthostatic Intolerance. Both conditions fall under the category of Dysautonomia: problems with the body's autonomic system. The conditions are not particulalry well known in the medical...
    POTSRecovery POTSRecovery 41-45, F Feb 18, 2010

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    Related Experiences

    Over a year ago I was diagnosed with Postural Orthostatic Tachycardia Syndrome. I've battled high school with this non curable disease, but I now I graduated and it is time for me...
    heyycutie16 heyycutie16 18-21, F 3 Responses Jul 13

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    So glad to have found this. The only other POTS groups I am a part of are on Facebook and I don't really want my friends knowing how much I struggle. Feeling comfort in the...
    Zebra223 Zebra223 26-30, F 1 Response Jul 3

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    Hey fellow POTSies! Just out of curiosity, what does everyone do as far as work/job/careers if anything? And if you are in school, what activities/sports/etc are you involved in...
    Ktglisson87 Ktglisson87 26-30, F 3 Responses Jul 3

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    I want to express my frustration without offending anyone. I get very down on myself when I read about other POTSies who are athletes or can run. I am extremely happy for them that...
    Zebra223 Zebra223 26-30, F 2 Responses Jul 3

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    Have any of you tried to go gluten free cuz of pots?? I just recently did and wondered what other people's experience has been with it?
    Ktglisson87 Ktglisson87 26-30, F 1 Response Jul 4

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    I have had POTS since the last two months of my eighth grade year. It took until December for my illness to finally be diagnosed as POTS. But even though I had a diagnoses I still...
    POTSforever POTSforever 16-17, F 1 Response Jul 5

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    Do any of you have terrible memory loss/brain fog, severe muscle degeneration, feel extremely weak?
    POTSforever POTSforever 16-17, F 3 Responses Jul 15

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    There is hope. Learn about some of my experiences with pots and how I have learned to cope and help lessen my symptoms! I've been dealing with pots for a year now so I can promise...
    cassidybute cassidybute 18-21, F Jul 16

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    Does any one have cognitive memory loss?
    POTSforever POTSforever 16-17, F 2 Responses Jul 18

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    Have any of you been in physical therapy and did what they told you to a gotten injured? This has happened to me several times.
    POTSforever POTSforever 16-17, F 1 Response Jul 18

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    My mom has POTS and I need help understanding it more
    lilmisslouhoo lilmisslouhoo 13-15, F 2 Responses Jul 2

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    I was wondering if anyone in the US knows of a great POTS clinic. I tried the mayo clinic program and it didn't help. I need a clinic that can help with my muscle degeneration...
    POTSforever POTSforever 16-17, F 3 Responses Jul 9

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    Is there anyone who has pain in night, too? I had a Transposition of the superior mesenteric artery in Germany by Prof. Sandmann last year. At first the result was very good. I...
    lebenskuenstlerin lebenskuenstlerin 46-50, F Jul 21

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    4 months I had rotator cuff surgery with a full recovery expected. Needless to say after several phydical therapy tratments and pain meds I had little to no relief. Finally after...
    fancyface19 fancyface19 46-50, F a week ago

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    I am 13 now. I was diagnosed with it when I was 12. For a year my life was on hold. I had a major bypass surgery and now i am all better now. Please tell me if there is someone...
    princesshayray princesshayray 13-15, F 1 Response Jul 21

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    So I do not have Lupus, but I was wondering if anyone could give me a little bit of feedback. I went to a neurologist a few years ago for muscle twitching everywhere. He...
    Anxiousgirl13 Anxiousgirl13 18-21 1 Response Jun 30

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    I am 47 years old and was diagnosed with Postural Orthostatic Tachycardia 10 years ago. It was a very upsetting realization after 2 years of searching for answers. I unfortunately...
    cjpcar cjpcar 46-50, F a week ago

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    I have postural kyphosis due to years of obesity. Since losing about 130lbs, It has become ever prominant, and I'm very self-concious about it to the point that is robs me of all...
    CloseButNoGuitar CloseButNoGuitar 26-30, M Jul 8

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    Hey everyone...I'm new to EP and thought I'd use it as a way to express things I don't talk about often. I am 25 years old and have been disabled and sick for the last 3 years. I...
    Buttercup789 Buttercup789 22-25, F 1 Response a week ago

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    Anybody who has POTS have photophobia (sensitivity to light)? Mine is really bad and worsening. I don't know if it's another symptom of POTS or should I get checked out
    december789 december789 16-17, F 1 Response 6 hrs ago

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    Hi, im Hollie im 14 and I've had Duane syndrome since I was born. Because of my Duane syndrome it means I can't move my left eye at all to the left. This really annoys me because...
    HMace HMace 13-15, F 1 Response Jun 30

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    For about a year I've been considering divorcing my wife of nearly 8 years. Our relationship has never been great. We are great friends, but horrible lovers/spouses. We do things...
    randomtiger45 randomtiger45 31-35, M 1 Response Jul 1

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    Hello! I'm Kristina, I'm 18 years old. In February this year I was diagnosed Swyer syndrome. Although I'm trying to get used to require me to help people who know I'm going through...
    kika96 kika96 18-21, F 2 Responses Jul 8

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    My daughter is a little over one year old. ( I don't like talking in months)She has Down Syndrome. I don't treat her differently from my other kids. Her needs are a little...
    Kryzta Kryzta 26-30, F 1 Response Jul 8

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    My husband has Asperger's Syndrome. I am having a difficult time with our marriage. We have been married two years. He is a good provider and has good traits, such as being...
    Solfeggio Solfeggio 36-40, F 4 Responses Jul 11

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    Barth syndromeFewer than 200 living males are known worldwide with this disease. Symptoms vary largely between patients, from life threatening to non-existant. No patient has all...
    Uncertain153 Uncertain153 26-30, M 1 Response 5 days ago

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    I learned only a few years ago that I have Asperger's Syndrome and am clumsy as well as frequently speak very wierdly sometimes, and am socially awkward. I am also narrow minded in...
    Fenrirfenn Fenrirfenn 18-21, M 4 Responses Jul 3

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    Blatinasrock Blatinasrock 26-30, F Jul 4

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    In 2011 I gave birth healthy beautiful baby. She was perfect and I loved her from the first time I saw her beautiful curly mop on her head and that chubby little face. As a mother...
    SweetAlibis SweetAlibis 26-30, F Jul 8

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    My husband and I were in a motorcycle wreck in Feb. (2 days after our wedding in India). I'm interested in getting to know other people dealing with Compartment Syndrome, in hopes...
    JenniferLakhlani JenniferLakhlani 36-40, F Jul 13

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    I have Russell silver syndrome. It has given me health problems,I am way under the average weight for a normal 15yr old, I am 4'9 and will no longer grow.
    EvaJL EvaJL 13-15, F Jul 13

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    I've just found out today I have Carpal Tunnel Syndrome .. it's hard for me to participate in Color Guard ..and soon I feel like I would have to stop ..bc the pain is crucial
    lynn1497 lynn1497 16-17, F 5 days ago

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    UK SUFFERERS - PLEASE GET IN CONTACT! So, I've never really wanted to write my story. Not because I am afraid or ashamed, but because I am so bored of talking about it, it makes...
    scharx scharx 18-21 Jul 1

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    UK SUFFERERS - PLEASE GET IN CONTACT! So, I've never really wanted to write my story. Not because I am afraid or ashamed, but because I am so bored of talking about it, it makes...
    scharx scharx 18-21 1 Response Jul 1

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    Hi When I was pregnant 5 years ago I had this urge for rubber, the smell and taste of it! All through my pregnancy I chewed on rubber bands, I then found it wasn't enough so I...
    Louloub1969 Louloub1969 41-45, F Jun 30

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    I feel like my universe is just so out of alignment.....everything i have known for so long is just not there anymore :0(
    itswonder4all itswonder4all 41-45, F 3 Responses Jun 30

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    Hello im Amiee i'm 17 going on 18 on July 20th you may have remembered my mothers post Cheryl about my condition. I am still having the hip pain in both my hips. I had the MRI of...
    KiraAyita KiraAyita 16-17, F Jun 30

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    It has been seven weeks since I woke with severe ear pain. I had a few weeks of dizziness and what seem to feel like water in my ear before that. I went to ER later that day...
    ksrooney ksrooney 56-60, F Jul 1

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    I have never heard of it but apparently its an obsessive disorder and people with borderline personality and anxiety disorder have it. I don't know how i am going to stop because i...
    Gentleandlovingsoul Gentleandlovingsoul 36-40, F Jul 1

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    I've always suffered from SSS and Misophonia since I was very young. Recently it's gotten very difficult for me. I have been getting over whelmed or over come with feelings and...
    Danicakes9 Danicakes9 13-15, F Jul 1

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    Cfil26 Cfil26 18-21, F 1 Response Jul 1

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    I had to have a hysterectomy maybe 3-4 years ago. I have a hard time even now, seeing women who are pregnant with children. I never had that chance. Always had fibrous tumors in my...
    mrsklemzak mrsklemzak 36-40, F 2 Responses Jul 3

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    scottmarg scottmarg 26-30, M 5 Responses Jul 3

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    Update: Divorce. I hope you're all doing well, and wanted to give you an update, since we've all considered divorcing our asp. spouse (or many of us at least). I got lucky in a...
    Mannon Mannon 36-40 3 Responses Jul 4

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    In October I had an abortion. I've gone through the stages of grief, though it was painful I understood it and so did others. But then there were the emotions and thoughts that I...
    DizzieDazie DizzieDazie 18-21, F Jul 5