Post
Experience Project iOS Android Apps | Download EP for your Mobile Device

I Have Postural Orthostatic Intolerance Syndrome

Otherwise known as POTS 25 People

    I want to make a POTS group

    that meets once a week or once a month. Who lives In Wisconsin and has POTS?
    december789 december789 16-17, F 1 Response Sep 10

    Your Response

    Cancel

    Pots And Oi

     I have a condition called Postural Orthostatic Tachycardia Syndrome and Orthostatic Intolerance. Both conditions fall under the category of Dysautonomia: problems with the body's autonomic system. The conditions are not particulalry well known in the medical...
    POTSRecovery POTSRecovery 41-45, F Feb 18, 2010

    Your Response

    Cancel

    I Hope Its Pots...

    i am NOT diagnosed with pots syndrome officially. i am in the process of being diagnosed, and i truly believe this is the condition that Ive suffered for over a year now. my name is katy and im 19 years old. i didnt write this for someone who has pots to read and feel better...
    kbarrios93 kbarrios93 18-21, F Oct 23, 2012

    Your Response

    Cancel

    Related Experiences

    I don't remember a day where I actually felt normal. Could run. Didn't have my parents yell at me for "not controlling my symptoms". People asking why my legs are all red and...
    HebBay HebBay 18-21, F 1 Response Nov 24

    Your Response

    Cancel
    It took the doctors almost 3 years to diagnose me. At first, they thought it was anxiety or depression. I was thrown around from hospital to hospital for about 2 1/2 years until a...
    Kristoe103095 Kristoe103095 18-21, F Nov 29

    Your Response

    Cancel
    After 4/5 years of being called lazy when I feel too weak to move, or that it is all in my head, I was finally diagnosed with POTS yesterday. My parents aren't dealing with it well...
    anon1995 anon1995 18-21, F Nov 23

    Your Response

    Cancel
    I set up a blog for people with POTs to follow me as I undertook a charity bike ride last June, I've never done biking and suffered from POTs, I've now updated my blog and would...
    PotsieGirl PotsieGirl 41-45, F Dec 10

    Your Response

    Cancel
    Six years ago I broke my left foot. Nothing major, 6 weeks in plaster and then it will be ok. The cast came off, the bone had healed but the top of my foot was hyper sensitive to...
    barefootshirtless barefootshirtless 41-45, M Dec 9

    Your Response

    Cancel
    A few days ago, I hurt so badly that I needed help to make it through the day, so I emailed the following to some of my closest friends. I hope and pray that each of you that has...
    UncleEkipS UncleEkipS 51-55, M 3 days ago

    Your Response

    Cancel
    I have Hypermobility Ehlers Danlos Syndrome (EDS). I also have Postural Orthostatic Tachycardia Syndrome/dysautonomia (POTS). Ehlers Danlos syndrome is a connective tissue...
    jahoz jahoz 41-45 a week ago

    Your Response

    Cancel
    I have a twin brother that survived Guillain-Barré Syndrome or GBS. He was diagnosed at the age of six and it took a year for him to get treatment and get over the disorder. GBS...
    tinytornado95 tinytornado95 18-21, F 1 Response Nov 26

    Your Response

    Cancel
    it was twenty four years ago when I had bouts of severe stomach pain. the kind of pain that would double you over. it was scary because I was pregnant at the time. I thought...
    regalshewolf regalshewolf 41-45, F 1 Response Dec 2

    Your Response

    Cancel
    I got diagnosed when I was 3 and I have it in both eyes. Just a few months before that I had a brain tumor. I can not begin to image what kind of stress this put my parents under...
    macyl macyl 18-21, F Nov 30

    Your Response

    Cancel
    I am well acquainted with how disruptive motherhood can be to a woman's personal and professional autonomy. I will not be waxing poetic about it either (today of all days). I too...
    Tannasheart Tannasheart 46-50, F 2 Responses 4 days ago

    Your Response

    Cancel
    I'm so glad I found this. Many of your stories are so similar to mine. I've seen twenty six doctors, having been diagnosed with fibromyalga, chronic migraines, osteoarthritis and...
    jsxburt jsxburt 46-50, F 1 day ago

    Your Response

    Cancel
    I have mixed feelings about the nerf rebelle toys. it's good that nerf is finally marketing to girls, but at the same time they seem to be saying "okay you still can't play with...
    ZenaMarie ZenaMarie 22-25, F 2 Responses Nov 29

    Your Response

    Cancel
    I just can't comprehend hate. why would you have any feeling at all toward someone for being different, except maybe intrigue... Worry about yourself. nobody's lifestyle involves...
    adventurestallion adventurestallion 22-25, M 1 Response Dec 2

    Your Response

    Cancel
    I was diagnosed with Duane Syndrome in my right eye when I was just a baby, when my Dad noticed I couldn't move my eye. From a very early age I remember being in the hospital...
    baaraah baaraah 18-21, F Dec 5

    Your Response

    Cancel
    Hey All, I'm a 28 year old female with what I think is CVS. Every few months I am awoken in the middle of the night with the worst stomach ache in the centre of my abdomen and I...
    starjj starjj 26-30, F 1 Response Dec 7

    Your Response

    Cancel
    I think more so than fathers, the permanent visible change when you come out to your family usually comes from the mothers. I think it stems from the fact that mothers care way too...
    kiddishguy kiddishguy 26-30, M 2 Responses Dec 9

    Your Response

    Cancel
    Three score and ten years ago I popped out of my mother's womb and landed on the surface of this great Earth of ours. Blessed with keen powers of observation and an ever...
    paulie138 paulie138 66-70, M 1 Response Dec 9

    Your Response

    Cancel
    I found out I had Duane Syndrome in both of my eyes when I was around 6 years old but it only started to seriously impact my life when I was 12. From what I remember my vision used...
    Ashleyc97 Ashleyc97 16-17, M Dec 12

    Your Response

    Cancel
    I was diagnosed with HAS a few days ago - The initial cause was that I am experiencing eye issues and saw an ophthalmologist who then referred me to a neurologist who made the...
    barbarasayshi barbarasayshi 41-45, F 1 Response Dec 13

    Your Response

    Cancel
    Hi there. Since I was born I have been diagnosed with marfan syndrome. Little did I know, being an infant, I was on the verge of having many issues in life. They may not have been...
    ChrisSFTY ChrisSFTY 18-21, M 6 days ago

    Your Response

    Cancel
    so, i have problems with Anxiety. and right now, it's a problem. I hate having Anxiety, specially now that it has gotten worse but not frequent. Today[12-15-2014] I got...
    StopxLaughingxSammy StopxLaughingxSammy 22-25 5 days ago

    Your Response

    Cancel
    i think Asperger Syndrome is very similar to Obssesive Compulsive Personality Disorder...
    Hanahbee Hanahbee 31-35, F 2 Responses 5 days ago

    Your Response

    Cancel
    Yea, just as it says, I have Aspergers Syndrome. It's tough at times. Yea, I have a great understanding of logic but the fact I don't understand emotions. Nor do I understand and...
    Tnert357 Tnert357 18-21, M 2 Responses 16 hrs ago

    Your Response

    Cancel
    Hello my name is johnny.......i was born with goldenhar syndrome.......i was born in mexico city where doctors their said that theirs nothing they can do.....so my lovely mother...
    johnnycash4814 johnnycash4814 26-30, M 1 Response 5 hrs ago

    Your Response

    Cancel
    So many people without it have no idea of the pain it brings along. Today, I'm meeting with the Lender for our new house, and I can't control the neck tics and I'm hurting on a 8...
    jeepers92 jeepers92 41-45, M 2 Responses Nov 22

    Your Response

    Cancel
    So, when we get our dogs as puppies, we're technically kidnapping them in a way, right? Since they have no inkling as to what is happening, to them it's kidnapping I suppose. (Or...
    LiveForAnotherDay LiveForAnotherDay 13-15, F 2 Responses Nov 24

    Your Response

    Cancel
    I think I have Aspergers, I love arts so much I think it's the only life where I want to be, I love seeing great murals an architect designs, I can get obsessed and lost when I...
    perennialsorrows perennialsorrows 31-35, F 4 Responses Nov 27

    Your Response

    Cancel
    I was finally diagnosed as being on the spectrum on November 2nd, 2014. The test used was the Gilliam Asperger's Disorder Scale and it was a three hour test done over three visits...
    lyricalongings lyricalongings 31-35, F 1 Response Dec 7

    Your Response

    Cancel
    The doctor finally told me I have it a year ago but so far no one believes it. Looking to meet others who would like to talk about it.
    keravon keravon 51-55, M 1 Response Dec 8

    Your Response

    Cancel
    I've tried to use it to my advantage. I'm gifted with writing and I believe Aspergers along with an abusive home environment help to give me that as well as other skills. Being...
    KnaisGuy KnaisGuy 22-25, M 3 Responses Dec 8

    Your Response

    Cancel
    I was diagnosed with F84.5 ...... Asperger's Syndrome is an interesting foot note on the diagnostic scale of what is know 'autism spectrum disorder' a lot of harm was done when...
    Homejames Homejames 51-55, M 1 Response Dec 8

    Your Response

    Cancel
    This **** is no joke. The pain is pretty severe. I plan on having surgery, but I have to wait till after Christmas.
    Xplictt Xplictt 22-25, M Dec 11

    Your Response

    Cancel
    I've struggled all my life socially. I never made a single friend until I turned 14. I was always "that weird, quiet girl." People were cruel to me and I could never figure out why...
    SecretGaygent SecretGaygent 22-25, F 5 Responses a week ago

    Your Response

    Cancel
    Hi, I'm 43 and I think I have pica because I'm really addicted to eating ice and smelling washing powder. It's only one brand of washing powder I crave for(I'm not worried about...
    smurft smurft 41-45, F 5 days ago

    Your Response

    Cancel
    Recently diagnosed. Diagnosis seems a bit pointless seeing as there's no cure but I suppose it will stop me wasting my time looking for a solution. I wonder what to do with a life...
    Dontcare8 Dontcare8 26-30, F 1 Response 2 days ago

    Your Response

    Cancel
    This experience message is for anyone who currently suffers from Hidradenitis Suppurativa (HS). PLEASE read my entire post before commenting, I have an EXTREMELY IMPORTANT and...
    starlits0ul starlits0ul 26-30 Nov 23

    Your Response

    Cancel
    Hi, Im new to this site, and anything like this. I recently found out that my BF, and as of last month, Husband has AS. I am not a Doctor, but he has all the characteristics and...
    Metalmissys Metalmissys 46-50, F 1 Response Nov 24

    Your Response

    Cancel
    I can't meet people's gazes. I have single minded focus on certain things. I am clumsy (found a way to help that.) I usually end a conversation just because I can't continue it, I...
    Ditum Ditum 18-21, M Nov 28

    Your Response

    Cancel
    From the time that I was 7 years old, I have been medicated. I have been on 30+ drugs my entire life. First was Ritalin, that made me a walking zombie. From then on anti...
    sicknfaith83 sicknfaith83 31-35, F Dec 2

    Your Response

    Cancel
    I thought I needed a good vent so here goes. Sorry if there is TMI. Every since I started my period when I was 11 I would be in excruciating pain, I would have to have time off...
    xxkerry1990xx xxkerry1990xx 22-25, F 1 Response Dec 2

    Your Response

    Cancel
    A few years ago, I moved from the east coast of the United States to the southwest to go back to university after taking a year long break from school, and I didn't know a single...
    uglyhands uglyhands 22-25, F Dec 4

    Your Response

    Cancel