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I Have Postural Orthostatic Intolerance Syndrome

Otherwise known as POTS 17 People

    I Hope Its Pots...

    i am NOT diagnosed with pots syndrome officially. i am in the process of being diagnosed, and i truly believe this is the condition that Ive suffered for over a year now. my name is katy and im 19 years old. i didnt write this for someone who has pots to read and feel better...
    kbarrios93 kbarrios93 18-21, F Oct 23, 2012

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    Pots And Oi

     I have a condition called Postural Orthostatic Tachycardia Syndrome and Orthostatic Intolerance. Both conditions fall under the category of Dysautonomia: problems with the body's autonomic system. The conditions are not particulalry well known in the medical...
    POTSRecovery POTSRecovery 41-45, F Feb 18, 2010

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    Related Experiences

    I have Postural Tachycardia Syndrome, as I only have issues with my heart rate not my blood pressure when standing. Does anyone else have this? What helps? I'm waiting on a call...
    Konig316 Konig316 26-30, F 3 Responses Mar 30

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    I am new to this as I noticed several posts about pots syndrome I was wondering if someone could help me? I have suffered with this since I was 14 (I am now 19) but was only...
    potsie2222 potsie2222 18-21, F 5 days ago

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    I have just been put on 10 sodium tablets per day. This is apparently meant to help my POTS, has this worked for anyone else?
    justplainhollyjayne justplainhollyjayne 13-15, F 1 Response Mar 24

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    Please please respond if you are relatable. My anxiety with POTS has become so extreme and i am constantly worrying about every little thing in my body and always thinking...
    cassidybute cassidybute 18-21, F Mar 26

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    I have been struggling with fatigue with pots for the last 15months. Has anyone found anything to help this?
    Kas25 Kas25 22-25, F 1 Response Apr 6

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    I'm in track this year doctors say it's good to stay active. Especially if you have pots I never thought of myself as a runner but joining track made me realize you don't have to...
    Megan2020 Megan2020 13-15, F 1 Response Apr 7

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    Adding to my previous post - no one around me understands pots, my mum knows I'm ill but gets frustrated at me telling her how I feel and says she is fed up of hearing I'm ill, my...
    potsie2222 potsie2222 18-21, F 4 Responses 5 days ago

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    Has anyone else experienced random bruising with POTS? I've had what appears to be a large bruise appear on my thigh and wondered if this was part of POTS.
    justplainhollyjayne justplainhollyjayne 13-15, F Mar 23

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    To anyone interested in a support group/personal experience blog about my experience with POTS, just copy and paste this link and check it out! please comment anything to add or to...
    cassidybute cassidybute 18-21, F Mar 25

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    If I wanted to go to a tanning bed would I still get tan? Or Because of my pots. Or even laying out in the sun for hours or will I stay pale :(?
    Megan2020 Megan2020 13-15, F 1 Response Mar 25

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    My daughter has smas and is being cured by tilting upside down at a 45% angle on her back with arms over her head.She was looking at a surgical feeding tube after two years of...
    racheldunkley racheldunkley 41-45, F Apr 6

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    I have finally told my parents I have Asperger's! Well, I sent them a brief email, I'm still a tad angry that they weren't the ones telling me, 40 years ago. I shall see what...
    Teab Teab 41-45, M 1 Response 6 hrs ago

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    Adrenal Fatigue, Hypothyroidism, Heavy metal toxins, elevated melatonin, low vitamin D, food intolerances Its best to start from the beginning, so here goes….I have been a...
    AnxietySoldier AnxietySoldier 36-40, M 1 Response Mar 24

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    Okay this very rare virus I contacted just over 26 years ago. Now I still can't get up from the ground in the sitting position without help. Do more exercise to strengthen your...
    JohnCrighton JohnCrighton 51-55, M 2 Responses Mar 27

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    My little girl is now a woman. She is 20 years old and engaged to be married. I'm so happy for her. My little girl is getting married. I'm leaving the house to her and her...
    betweenthe10andthequeen betweenthe10andthequeen 56-60, M 1 Response Mar 28

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    So I am 21 years old and I suffer from Poly Cystic Ovarian Syndrome, I have done my research and unfortunately it comes with so many issues. But it is common and I would love to...
    o1Nadia1o o1Nadia1o 18-21, F 1 Response Mar 28

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    Was diagnosed back in high school. Felt like it held me back from many things. Yea, I did go 2 dances, junior and senior prom, but people treated me like I was retarded. I'm highly...
    HottRoddTX HottRoddTX 26-30, M 4 Responses Mar 28

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    It happened again. I have PMDD and I manage it by diet, but I gave into the craving for Cinnamon Toast Cruch- made myself sick. I am (as much as possible) a clean-eater. Last time...
    Kasekosmos Kasekosmos 18-21, F Mar 28

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    Hello, I'm a mother of one handsome 9 month old boy. When my husband and I left the hospital June 29, 2013. We were never told that our son was born with Poland Syndrome. After his...
    Bernadzikowski Bernadzikowski 26-30, F 2 Responses Apr 2

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    Intramarine Isolation Syndrome. It is what I have, my disease. Cool. Quiet. Sometimes green, sometimes blue. Dark, or shining in the sun, but it always feels like no one ever...
    WickedScullyOfTheWest WickedScullyOfTheWest 31-35, F Apr 6

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    I have Tourette's syndrome.
    mrhollingswortg1992 mrhollingswortg1992 22-25, M Apr 8

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    I found out I had Poland's Syndrome in my 30s ( I am now 48) when I was referred to a plastic surgeon. Had an operation but had to remove the implant as my chest cavity kept...
    gamordente gamordente 46-50, M Apr 12

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    I have a question for everyone :) So I was diagnosed with Asperger's Syndrome a few years ago and am aware about it for a while now. Lately, however I have been having random...
    EurydiceKallos EurydiceKallos 16-17, F 3 Responses 3 days ago

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    when i was eight, i was diagnosed with a condition named turner syndrome. there were so many life changes, like having to get a shot every night before bed and going to the doctor...
    rachelrubin01 rachelrubin01 13-15, F 1 day ago

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    I really need someone who knows what is going on to help me make sense of things. My partner of just over a year.. has spent the year breaking up with me. I am always fighting...
    maveric01 maveric01 41-45, F 1 Response Mar 20

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    I'm at a crossroads now, as I have four young children with my husband of 8 years, who has undiagnosed Autism. I have always just given my husband his way. I thought I was just...
    GMetz34 GMetz34 31-35, F Mar 20

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    Wow I dont know where to start.... after having being misdiagnosed on 12/27/2012 and sent home when i arrived because i was in so much pain i could not walk. Returned to the ER on...
    momndom momndom 31-35, F 3 Responses Mar 22

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    Mild cp, deformed hand, poor vision and hearing, poor teeth, weak heart, something undiagnosed with my brain (sort like a stroke but not), type 2 diabetes, psoriasis, soliios, ADHD...
    dacraww dacraww 22-25, M Mar 23

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    Well my dad used to tell me off for eating. I always had a revved up metabolism which continued well into my teens. I could rival any teenage boy. But I was active- I never...
    NekroNomikon NekroNomikon 18-21, F 1 Response Mar 24

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    I was diagnosed with TS when I was very young. My case is mild and my tics are slight but I do feel the internal side effects of TS like anxiety, hyper vigilance, and some OCD. I...
    artMusicBrew artMusicBrew 36-40, M Mar 24

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    I have just been put on 10 sodium tablets per day. This is apparently meant to help my POTS, has this worked for anyone else?
    justplainhollyjayne justplainhollyjayne 13-15, F 1 Response Mar 24

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    I have a brother with asperger but he was never diagnosed with asperger's. He was with some neurologists through childhood but all the time was the same thing "attention deficit...
    emi92 emi92 18-21, F 1 Response Mar 25

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    Originally diagnosed with a bacterial ear infection, I actually had Shingles that lead to Bells palsy / Ramsey Hunt syndrome, with the usual symptoms. This is the first time I've...
    johnsonfamily38 johnsonfamily38 51-55, M 3 Responses Mar 26

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    I am the middle of 5 2 older brothers 2 younger sisters. My brothers were always allowed to do what ever they want. Stay up late,drive, and lots of other fun stuff. My parents took...
    Jimmy1313 Jimmy1313 22-25, M Mar 26

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    But it's not what everyone thinks it is. When you say 'aspergers', people think of socially awkward people who are obsessed with computers or science. But in reality, it's a lot...
    sarah19597 sarah19597 16-17, F 7 Responses Mar 27

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    I was just diagnosed a few months ago but I think I've had it for a few years now. The doctors actually found the tumor in my chest before they realized my eye drooping was Horner...
    Pinkyjolie Pinkyjolie 26-30, F 1 Response Mar 27

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    I have a really bad habit of eating flour. Its a really embarrassing habit so I try to keep it to myself but knowing there's other people with the same problem gives me comfort. I...
    KimmyO4Lifeex33 KimmyO4Lifeex33 16-17, F Mar 28

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    As a child I suffered from Exploding Head Syndrome.
    needlessthings needlessthings 31-35, M Mar 28

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      My 8 year old daughter has just been diagnosed with Melas after her first episode. She encountered loss of sensation down her right side, but this has now returned. We are...
    21sienna 21sienna 41-45, M Mar 31

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    My dad was exposed to it in Vietnam. My parents were told by a doctor I was slightly affected. Result? Brittle, easily broken teeth. Was told that by the time I was 35, I would...
    daddyj2008 daddyj2008 36-40, M 1 Response Mar 31

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    headcaches, dizzziness, like flu feeling in the head, im seying everything like in slow motion, heaviness of whole body, and everything combied together it making wierd feeling...
    rihcrissy rihcrissy 31-35, M Apr 1

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    I was 26 years old when I got GBS. I was a new mom of a four month old baby girl. Before she was born I had taught 1st grade. The plan was to take a year off from teaching then go...
    mommabrick5 mommabrick5 46-50, F 1 Response Apr 7

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    I have been diagnosed with POTS and misdiagnosed with various other things for 6 years now. I've learned that the most frustrating part about POTS is that it's an "invisible...
    LivingwithPOTS20 LivingwithPOTS20 18-21, F 2 Responses Apr 8

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    When I was a child my parents knew something was different about me, and I was actually delayed in both speech and motor skills. (uncommon for aspies ;o it is more actually common...
    PerfectInsanity1988 PerfectInsanity1988 26-30, F 2 Responses Apr 11

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    As a young teen I was just constantly thrown on pain killers for back and hip pain. It wasn't until Nov last year it was diagnosed as Fibromyalgia. My energy levels just...
    XanthiaJo XanthiaJo 22-25, F 1 Response a week ago

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    I personally don't have CFS but my mother has it and it's been one of the most difficult things to deal with on a daily basis. I have determined that my mothers stress levels...
    IamLerato IamLerato 22-25, F 1 Response 6 days ago

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    I need some feed back. Can anyone please explain their headaches with pots? I want someone to relate to so I can stop thinking I have a brain tumor
    cassidybute cassidybute 18-21, F 1 Response 5 days ago

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    She was found dead in her bedroom at 4am yesterday. No news yet with regards to the cause. She was one of those crazy party girls. But there was something wrong. For as...
    NekroNomikon NekroNomikon 18-21, F 4 Responses 5 days ago

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    I started with pain at the first of January. Woke up one morning with the feeling that I was being stabbed in the shoulder with a knife. Used heat/ice thinking I had pulled a...
    msv123 msv123 51-55, F 2 Responses 4 days ago