Post
Experience Project iOS Android Apps | Download EP for your Mobile Device

I Have Postural Orthostatic Intolerance Syndrome

Otherwise known as POTS 25 People

    I Hope Its Pots...

    i am NOT diagnosed with pots syndrome officially. i am in the process of being diagnosed, and i truly believe this is the condition that Ive suffered for over a year now. my name is katy and im 19 years old. i didnt write this for someone who has pots to read and feel better...
    kbarrios93 kbarrios93 18-21, F Oct 23, 2012

    Your Response

    Cancel

    Pots And Oi

     I have a condition called Postural Orthostatic Tachycardia Syndrome and Orthostatic Intolerance. Both conditions fall under the category of Dysautonomia: problems with the body's autonomic system. The conditions are not particulalry well known in the medical...
    POTSRecovery POTSRecovery 41-45, F Feb 18, 2010

    Your Response

    Cancel

    I want to make a POTS group

    that meets once a week or once a month. Who lives In Wisconsin and has POTS?
    december789 december789 16-17, F 1 Response Sep 10

    Your Response

    Cancel

    Related Experiences

    I don't remember a day where I actually felt normal. Could run. Didn't have my parents yell at me for "not controlling my symptoms". People asking why my legs are all red and...
    HebBay HebBay 18-21, F 1 Response 3 days ago

    Your Response

    Cancel
    After 4/5 years of being called lazy when I feel too weak to move, or that it is all in my head, I was finally diagnosed with POTS yesterday. My parents aren't dealing with it well...
    anon1995 anon1995 18-21, F 4 days ago

    Your Response

    Cancel
    I was just recently diagnosed with POTS and I don't really know what it means and the doctor hadn't really told me anything about it. But reading a little about it makes it make...
    nutmeg14 nutmeg14 13-15 Nov 2

    Your Response

    Cancel
    In year 1992, I came down with Ramsay-Hunt Syndrome. Its been a long battle. My face first paralyzed on one side and three months later, the other. This has affected my vision...
    Gustavp Gustavp 70+, M Nov 16

    Your Response

    Cancel
    Anyone else here have this illness?
    leyla29 leyla29 26-30, F Nov 15

    Your Response

    Cancel
    I have a twin brother that survived Guillain-Barré Syndrome or GBS. He was diagnosed at the age of six and it took a year for him to get treatment and get over the disorder. GBS...
    tinytornado95 tinytornado95 18-21, F 1 Response 1 day ago

    Your Response

    Cancel
    I have been self-diagnosed with rumnation syndrome and am 100% sure that I have diagnosed correctly. This syndrome is making me refuse to eat. I am disgusted with my subconscious...
    sassyanus sassyanus 18-21 Nov 3

    Your Response

    Cancel
    Obviously, intolerance is an important part of our lives, but it is intolerance towards things that destroy, not toward people. Prejudice, I believe, usually comes through...
    brokenat5 brokenat5 61-65, M 1 Response Nov 4

    Your Response

    Cancel
    ** I do not have Timothy Syndrome, my baby sister does, but she's too little to share her story ** My little sister was born a year and a month ago, premature. She was tiny and...
    allydoe allydoe 18-21, F Nov 19

    Your Response

    Cancel
    Hi, I was diagnosed with Limited Crest Syndrome around twelve years ago, having asked what it was I was told, too complicated, look it up on the internet....Anyway have the usual...
    gillybee77 gillybee77 66-70, F Nov 1

    Your Response

    Cancel
    Pedophiles is my top...followed by any and all abusers. I cannot stand people with bad manners. There is no need or excuse for it. I hate people who preach only never having...
    ultimatehacker ultimatehacker 26-30, M Nov 6

    Your Response

    Cancel
    Fear of life We are a living part of creation empowered by spirit. Inside each living creature lives a soul. It pushes us drives us affects us in every possible way. Every faith...
    anamikanta anamikanta 31-35 Nov 9

    Your Response

    Cancel
    I was so happy when this apartment became available to me since I so wanted to move away from my verbally abusive ex-boyfriend who lived in the same building where I lived and was...
    heartprotection heartprotection 41-45, F 1 Response Nov 13

    Your Response

    Cancel
    My life will never be the same. In 2011, an extremely traumatic event happened to me and since then my life had never been the same. It's easiest to just list the thingsthat were...
    XxAlphaCentaurixX XxAlphaCentaurixX 26-30, T 1 Response Nov 19

    Your Response

    Cancel
    yeah it's called being better than you. B.T.Y. syndrome
    NotBiasedBAM NotBiasedBAM 18-21, M Oct 29

    Your Response

    Cancel
    I have had a college soccer career ending concussion. It's frustrating yes. Days are hard and few understand. But I am blessed and when I get frustrated I take a deep breath and...
    am0116 am0116 18-21, F Nov 2

    Your Response

    Cancel
    Marfan syndrome is the cause.
    MiddleSister45 MiddleSister45 41-45, F Nov 17

    Your Response

    Cancel
    I was only diagnosed at 16. It's been really hard for me though. I nearly failed out of high school. I can't focus. And pretty much have all the symptoms that show I have it...
    yourbrowneye yourbrowneye 18-21, M 1 Response Nov 1

    Your Response

    Cancel
    Shock is obviously the first reaction but having then seen and spoke to her in a strange way I feel relief for her. This might help people who know anyone that is suffering with...
    MeSolumRelinquatis MeSolumRelinquatis 31-35, F Nov 2

    Your Response

    Cancel
    I was diagnosed with CIDP when I was 12 (year 7) and I laughed when they told me because even though I had no idea what it was and the name was such a mouthful, I was relieved to...
    AlexPeyton AlexPeyton 18-21, F Nov 2

    Your Response

    Cancel
    I got a really bad call from the school yesterday. He's been supposedly acting out in class. He says his teacher never believes when he says another student is picking on him. My...
    flypiggie flypiggie 26-30, F 1 Response Nov 4

    Your Response

    Cancel
    I learned I had it at age 5 and they said I was lucky to be alive. The only downside is that I have trouble learning in school
    metalchick18 metalchick18 18-21, F 1 Response Nov 4

    Your Response

    Cancel
    My whole life, I've been attracted to dry, dusty things. As a child, I used to volunteer to clean erasers at school so I could inhale the dust, but I never had a craving to...
    FaceFaceFace2 FaceFaceFace2 18-21, F Nov 9

    Your Response

    Cancel
    I had a nervous breakdown 20 years ago and wasn't hospitalized. I lost my children to rich people and was homeless for 20 years. I have OCD< ADD, Fatherless Daughter Syndrome...
    growth60 growth60 61-65, F 1 Response Nov 9

    Your Response

    Cancel
    Its harmed me a lot. I was bullied mercilessly up until the end of high school, and I'm still worried that people would want to exclude me socially. Although I now appear to be...
    Almostanonymous Almostanonymous 22-25, M 2 Responses Nov 9

    Your Response

    Cancel
    Does anyone have anything other than POTS?
    december789 december789 16-17, F 1 Response Nov 10

    Your Response

    Cancel
    I suffer from ibs (irritable bowel syndrome) I am 13 years old and it sucks and hardly anyone has it at my age and honestly no one understands me it affects my everyday life I can...
    emilycatherine emilycatherine 13-15, F 1 Response Nov 11

    Your Response

    Cancel
    I started having symptoms at age twelve but I had a complete brake down my junior year of high school. I was trying to balance high school, cosmetology school, and my pots symptoms...
    alyssaanna alyssaanna 18-21, F Nov 13

    Your Response

    Cancel
    It turns out I have polycystic ovary syndrome and that causes my testosterone levels to be dangerously high, estrogen to be dangerously low, insulin to be really screwed up...
    polyglotparrot polyglotparrot 13-15, F Nov 14

    Your Response

    Cancel
    I was looking for the group "I have a hard life", but this group doesn't seem to exist. I guess my life has been pretty hard so far. It certainly has never been easy. But what...
    AmIAMaleHSP AmIAMaleHSP 26-30, M 1 Response Nov 16

    Your Response

    Cancel
    I eat every type of soap anyone I can get my hands on sometimes my tongue is yellow and I have really bad side pains but I cant stop. I eat a bar of soap a month n it relaxes me...
    semorec semorec 18-21, F Nov 16

    Your Response

    Cancel
    This will be long and rambly, mostly because this is the first place I've found where I can vent to others who may be in similar situations that’s not FB related where everyone I...
    lisabug75 lisabug75 36-40, F 4 Responses Nov 17

    Your Response

    Cancel
    I found out when i was 13 years old and found out i cant have kids i tried Treatments gels tablets everything nothing worked so i went to anabolic steroids like dbol and it was...
    chris0478 chris0478 22-25, M Nov 18

    Your Response

    Cancel
    Hmm lets see.. My aspergers was pretty bad back when I was younger, but I managed to learn how to simply read situations from facial changes. I still have trouble finding my own...
    oracnid oracnid 16-17, M 2 Responses Nov 19

    Your Response

    Cancel
    I've just gotten into toothpaste. I really want to eat it, but I have to control myself. Better get some gum, lol
    NatashaRose NatashaRose 18-21, F 2 Responses Nov 19

    Your Response

    Cancel
    I think. I'm no doctor, but I was reading the symptoms and I know I know that's no way tell tell if you have it. I'm emotionless, I don't make eye contact, I'm clumsy and awkward...
    SunsetTears SunsetTears 18-21, F 6 days ago

    Your Response

    Cancel
    So many people without it have no idea of the pain it brings along. Today, I'm meeting with the Lender for our new house, and I can't control the neck tics and I'm hurting on a 8...
    jeepers92 jeepers92 41-45, M 2 Responses 5 days ago

    Your Response

    Cancel
    This experience message is for anyone who currently suffers from Hidradenitis Suppurativa (HS). PLEASE read my entire post before commenting, I have an EXTREMELY IMPORTANT and...
    starlits0ul starlits0ul 26-30 4 days ago

    Your Response

    Cancel
    So glad to have found a forum on which to share my experience with Aspergers. I'm hoping for some ideas and strategies to better cope. Both my Husband and Stepson are afflicted...
    Aspierollercoasterride Aspierollercoasterride 36-40, F 1 Response 3 days ago

    Your Response

    Cancel
    So, when we get our dogs as puppies, we're technically kidnapping them in a way, right? Since they have no inkling as to what is happening, to them it's kidnapping I suppose. (Or...
    LiveForAnotherDay LiveForAnotherDay 13-15, F 2 Responses 3 days ago

    Your Response

    Cancel
    Hi, Im new to this site, and anything like this. I recently found out that my BF, and as of last month, Husband has AS. I am not a Doctor, but he has all the characteristics and...
    Metalmissys Metalmissys 46-50, F 1 Response 3 days ago

    Your Response

    Cancel
    I think I have Aspergers, I love arts so much I think it's the only life where I want to be, I love seeing great murals an architect designs, I can get obsessed and lost when I...
    perennialsorrows perennialsorrows 31-35, F 4 Responses 7 hrs ago

    Your Response

    Cancel