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I Have Postural Orthostatic Intolerance Syndrome

Otherwise known as POTS 31 People

    I want to make a POTS group

    that meets once a week or once a month. Who lives In Wisconsin and has POTS?
    december789 december789 16-17, F 1 Response Sep 10, 2014

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    I Hope Its Pots...

    i am NOT diagnosed with pots syndrome officially. i am in the process of being diagnosed, and i truly believe this is the condition that Ive suffered for over a year now. my name is katy and im 19 years old. i didnt write this for someone who has pots to read and feel better...
    kbarrios93 kbarrios93 18-21, F Oct 23, 2012

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    Pots And Oi

     I have a condition called Postural Orthostatic Tachycardia Syndrome and Orthostatic Intolerance. Both conditions fall under the category of Dysautonomia: problems with the body's autonomic system. The conditions are not particulalry well known in the medical...
    POTSRecovery POTSRecovery 41-45, F Feb 18, 2010

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    Related Experiences

    More than one, actually. They can make it very hard to communicate :/ I'm going in for multiple scans. My doctor says they want to confirm whether or not I have some rare illness...
    junedew junedew 18-21, F 1 Response 2 days ago

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    hi everyone i am about to tell you my story i used to be very violent a couple of years back. I had joined my MBA program in a prestigious college and I had a free outgoing...
    cannotdoitagain cannotdoitagain 26-30, M 2 Responses 3 days ago

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    (I actually don't "have" it anymore, as I'd be well-over dead.) I had serotonin syndrome from 2011-2013. I confused it with mania, and I had never had a seizure before, so I didn...
    grindhound grindhound 22-25, T May 12

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    I'm 13 and have known that I have Poland syndrome all my life I'm lucky though I'm only missing my right pictorial muscle, my breast is inverted and my fingers on my right hand are...
    Incorrect13 Incorrect13 13-15, F 1 Response May 19

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    I have Asperger's Syndrome which is a high functioning form of autism. I got diagnosed at 7, but my parents told me I was BORN with it. I guess I was born abnormal after all. I...
    maialove maialove 22-25, F 1 Response 5 days ago

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    I invite you all to come over to my Poland Syndrome Suppport (USA) Facebook page, this is a closed group and we are very open and willing to lend advise.
    Gene47 Gene47 46-50, M May 1

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    I invite you all to come over to my Facebook group page, Poland Syndrome Support (USA).
    Gene47 Gene47 46-50, M May 1

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    I am a 16 year old girl and I'm still in high school, that's tough as it is but I do live with polands syndrome and its makes life harder especially in this day and age. When...
    MelissaM98 MelissaM98 16-17, F 3 days ago

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    Can anyone help me with sapho syndrome. .....
    agha1234 agha1234 31-35, M 1 Response 1 day ago

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    I invite everyone that has Poland Syndrome to visit my group on Facebook it is a closed group, I look forward to seeing you all there.
    Gene47 Gene47 46-50, M 1 Response May 1

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    Hi! I'm 17 years old, and I was diagnosed with Turner's syndrome when I was a baby. At school, a lot of people don't understand me, and so I don't have a lot of friends and often...
    musiclover48 musiclover48 16-17, F 1 Response May 1

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    I have a tense relationship with my dad, our values are unimaginably different, so I usually neglect his feelings as a response to him ignoring mine, he had a heart operation...
    shadyx49 shadyx49 22-25, M May 13

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    Hi everyone, my name is Lindee and I am now 24-years-old going on my 6th year of having POTS syndrome. Aside from the dizzy spells, fatigue, anxiety, brain fog, confusion and...
    shultm1 shultm1 22-25, F May 15

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    There's two types of body - make and female. We may vary a bit in size and shape, but we're all the same and so have nothing to hide or be embarrassed of! If you're closeted and...
    PeterSp8 PeterSp8 41-45, M 3 Responses May 17

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    Here is an article about water usage. It shows that almost 1/4 of water usage is wasted on laundry. Another 1/4 is used for flushing toilets, most of which would be eliminated if...
    pinetreeguy pinetreeguy 66-70, M May 18

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    There are 2 wonderful doctors who work with a team of other doctors and specialist at Mayo Clinic in Scottsdale and Phoenix Arizona. These doctors are amazing. They are doctors...
    bgrady15 bgrady15 51-55, F 14 hrs ago

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    Yep, hyperthyroid for 15 years now. It's confusing sometimes, because I have some very hypothyroid symptoms. Fatigue, cold intolerance and weight gain, but TSH is consistently low...
    wh15hyperT wh15hyperT 61-65, F May 2

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    That is one thing I really don't like about the A.D.D. I have. It makes typing Stories here on E.P. more time-consuming than it really needs to be. I mean, I may start out every...
    Jugemu Jugemu 31-35, M 2 Responses May 7

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    I have Crest Syndrome, i'm only 20 years old, I've known about it for about 2 years now. I'm currently 14 weeks and 5 days pregnant. Just curious to know how everyone deals with...
    taylaelise taylaelise 18-21, F May 7

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    I am so glad I stumbled on this category of posts, because reading of other people's similar experiences is somehow helpful to me, although I'm sorry for all of your troubles. I...
    2323Anonymous 2323Anonymous 51-55, F May 11

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    Hello fellow CES survivors my heart is out to you all I had surgery on March 4 2015 laminectomy/discectomy emergency decompression was paralyzed for 30 hours .This syndrome is one...
    clint03 clint03 36-40, M a week ago

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    I haven't been diagnosed yet. my Dr is trying to eliminate anything else it could be, but I am suffering. I'm having a hard time going to work everyday cuz i can't get out of...
    kareenmarie kareenmarie 36-40, F Apr 30

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    There was only one moment I remember when I was little, every time I drank a bottle of Dasani water, ALL I could think of was the "taste" of a robotic voice in my head. Once I...
    GeekyGangstaGirl GeekyGangstaGirl 22-25, F 4 Responses May 1

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    Breaking up is never easy regardless of condition. For someone with aspergers its all the more difficult. All the little things you would do in the day which revolved around having...
    Sakaratte Sakaratte 26-30, M 1 Response May 1

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    first of all I found all if this by chance and I almost started to cry. I was diagnosed with PS when I was born (thank you Cali hospitals) my right hand was small and webbed and I...
    Everrisingmoon Everrisingmoon 18-21, F 1 Response May 1

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    As ive done extensive research on the matter I, along with my 3 children ages 5,4,3 all have aspergers. It is a dominant genetic, heredetary trait. It's intelligence based and for...
    turbojc20 turbojc20 22-25, M May 2

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    I've been diagnosed since I was 17 so just over a year ago yay I have a tendency to make social blunders and meltdown at the smallest things I am also a somewhat rare female Aspie
    Robinwing Robinwing 13-15 2 Responses May 2

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    Feeling sad. As an aspie, I'm wondering are we monsters? Because all we ever seem to do is hurt people. Never make them happy or feel loved, we just hurt them. It's not are...
    Amichelseaoramichris Amichelseaoramichris 18-21, T 3 Responses May 2

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    Hard decisions are never easy whether you have a condition or not. You have to do what is best for you even if it hurts someone else. When you really care about someone often the...
    Sakaratte Sakaratte 26-30, M May 3

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    I once received a message board reply that went like this: "I think it would be than fair if I get banned over this comment and I would happily accept it.But I believe I've read...
    themagicsback themagicsback 22-25, F 2 Responses May 3

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    I do. However, I have no talent in anything whatsoever, I waste a lot of time and not to mention I wasted my life pretending to be someone I wasn't and never will be. I have a lot...
    FoxFan64 FoxFan64 13-15, M 2 Responses May 5

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    I think I have reached my breaking point. I have tried everything to save my marriage and it never gets any better. I need to get out, but I'm terrified. He's told me that he will...
    TiffanyPerkins TiffanyPerkins 36-40, F 2 Responses May 6

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    I'm a little concerned that I may have Benign Fasciculation Syndrome. I sometimes experience random pain on parts of my body and I have a lot of muscle twitches. I really wish I...
    moose73630 moose73630 16-17, M 1 Response May 7

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    There's two types of people with aspergers . The ones who can't hold a conversation to save their life AND the ones who talk about anything and everything they know nonstop till...
    deleted deleted 26-30 8 Responses May 9

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    One of my reasons for being here is 2 meet peeps like me. Luckily for me, only my breast at my right hand side is affected, it hasn't grown at all, staying in boarding school and...
    4everoptie 4everoptie 16-17, F 2 Responses May 9

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    God why are people with autism spectrum disorders so retarded and sensitive? They need to buck up! Okay so two weeks ago my other autistic friend spend the night with me because I...
    JoyJoy7 JoyJoy7 22-25, F 7 Responses May 11

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    I crave baking soda ... It don't know why.. I do have low iron.. I've had several transfusions but I just can't stop.. I eat baking soda all day if I could.. N I also crave ice I...
    tee08 tee08 31-35 May 11

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    If you have a username like kingdong and hugec0ck or whatever, you're clearly suffering from LDS- little d!ck syndrome
    dirtydarkness dirtydarkness 26-30, F 9 Responses May 12

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