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I Have Postural Orthostatic Intolerance Syndrome

Otherwise known as POTS 33 People

    Pots And Oi

     I have a condition called Postural Orthostatic Tachycardia Syndrome and Orthostatic Intolerance. Both conditions fall under the category of Dysautonomia: problems with the body's autonomic system. The conditions are not particulalry well known in the medical...
    POTSRecovery POTSRecovery 41-45, F Feb 18, 2010

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    I Hope Its Pots...

    i am NOT diagnosed with pots syndrome officially. i am in the process of being diagnosed, and i truly believe this is the condition that Ive suffered for over a year now. my name is katy and im 19 years old. i didnt write this for someone who has pots to read and feel better...
    kbarrios93 kbarrios93 18-21, F Oct 23, 2012

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    I want to make a POTS group

    that meets once a week or once a month. Who lives In Wisconsin and has POTS?
    december789 december789 16-17, F 1 Response Sep 10, 2014

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    I was just wondering

    if any fellow potsies have any careers advice? I unfortunately had to stop mainstream school (as many of us have had to) as well as home education so consequently have no exams or qualifications. Obviously, as well as dealing with pots this makes it increasingly hard to know...
    justhollyjayne justhollyjayne 16-17, F Jul 22

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    Related Experiences

    Would like to hear from anyone who would be willing to share serotonin syndrome experiences.
    monser monser 56-60, M 2 Responses 6 hrs ago

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    Soooo i have an older bro with aspergers syndrome..... He's a little different though coz unlike most aspergers he is very loud and ttries to b sociable. It took me a long time to...
    Avreich Avreich 22-25, M 7 hrs ago

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    I have to say, that this has been an extremely long road. My husband has Asperger's. We didn't know, we had a pretty normal life for the first two years or so. After we had a...
    DeeDoo1 DeeDoo1 41-45, F 1 day ago

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    I was diagnosed with Basal Cell Nevus Syndrome in July 2015. Basal Cell Nevus Syndrome is a rare genetic disorder that affects 1 out of 100,000 people. I have a 50% chance of...
    Damocles19 Damocles19 13-15, M 1 day ago

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    I do not have ATS but my 13 y/o daughter does. She was originally diagnosed w/ a heart condition known as Polymyphoric Preventricular Tachycardia at that time she was in softball...
    mindy918 mindy918 36-40, F 2 days ago

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    I have Asperger's syndrome and Selective mutism. I do talk but sometimes my voice cuts off and I am unable to, I can't explain this but it can be quite a hinderance. I feel that I...
    Randompi Randompi 13-15, F 1 Response 3 days ago

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    I'm a 13 year old girl. and I have Brown Syndrome. As much as I try to ignore it. it prohibits me from doing more than people would think. I can't play staring games with my...
    Jay3421 Jay3421 13-15, F 3 days ago

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    please join gitelman/bartter buddies on fb. we have a great support system
    lilmomma1411 lilmomma1411 26-30 3 days ago

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    hey everyone. I have a group on fb called gitelman/bartter buddies. please join. we support eachother and learn from others.
    lilmomma1411 lilmomma1411 26-30 3 days ago

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    My husband is a sweet man with Asperger's. The Asperger traits are mild in him, he has a job, he's social and has a normal kind of empathy. Still, It hurts. at times I feel like my...
    Gonnamakeapie Gonnamakeapie 36-40, F 1 Response 4 days ago

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    I think. Thirty years I have been living my life believing I have an autoimmune disease called scleroderma. Along with hypothyroidism, which also has been with me for 30 years...
    lethalea lethalea 46-50, F 4 days ago

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    I have autism and it feels to me like im in a whole different universe not in a good way though and everyday im always fighting myself not accepting change and just bein self...
    aaronpayne aaronpayne 22-25, M 4 days ago

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    Just because I have Aspergers doesn't mean there's anything wrong with me, my final grades in high school were average and I'm considered to be one of the smartest people in my...
    BriarRose96 BriarRose96 18-21, F 1 Response 5 days ago

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    I've always been much better than most men at multitasking, I wonder whether that is due to the Klinefelter Syndrome?
    KSPerson KSPerson 46-50, M 1 Response 5 days ago

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    how is it with someone with aspergers syndrome? I have it. I had one serious relationship. I wonder if its very miserable being with me. since she cheated and my other short...
    kittyanthony kittyanthony 22-25, M 1 Response 6 days ago

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    I can't seem to go in a public bathroom if someone is in there. This ruins my school days and field trips where I've had to hold it in until I get a free moment at school. My...
    GhettoMemeing GhettoMemeing 13-15, F 1 Response 6 days ago

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    I was just recently diagnosed with fap - gardeners syndrome .. It's very scary at 17 having to deal with this , and since it is as rare as it is I have no one to share it with or...
    Escapeyourthoughts32 Escapeyourthoughts32 18-21 2 Responses a week ago

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    I am a 32-year-old male. I got sick with the stomach flu at age 12 and was left with rumination syndrome, or something close. Within a couple of weeks of getting sick, I...
    nthgmvs nthgmvs 31-35, M Aug 25

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    Hi im 16 and i've had rumination syndrome for 2 years now. When it first started happening for what i can remember it was only tiny bits that would come back up after i ate and...
    brookechambers2 brookechambers2 16-17, F Aug 24

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    Does anybody have a GOOD experience with their Aspergers partner? For a while I thought I might've been attracted to somebody with the disorder, but everything on here sounds so...
    deleted deleted 26-30 3 Responses Aug 22

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    I have just recently began the paleo diet in hopes to curb my pcos. so far on this journey, prior to the paleo diet change, I have lost 50 pounds from regular diet and exercise but...
    11Disasterpiece11 11Disasterpiece11 22-25, F Aug 22

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    Hey I am 15 and have had rumination syndrome/disorder for almost a year now. I hid it from my parents for 4 months because I was so horribly ashamed about it. I thought that it was...
    renee2018 renee2018 13-15, F Aug 21

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    I have aspergers, mood disorder and depression when life is hard I feel that nobody cares I exist and I eat and write on here and play Rachel plattens fight song or look at my...
    FattyWithAttitude FattyWithAttitude 13-15, F Aug 21

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    I'm proud to have it. My councillor told me I '10x the women any bully will ever be' and I know that's a good thing. I'm a minority, one of a small percentage effected by this...
    Randompi Randompi 13-15, F Aug 20

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    Has anyone ever been to POTS Treatment Center in Dallas, TX? We have been saving up for me to go there and I was wondering if it helps at all.
    TavynKeylee TavynKeylee 13-15 Aug 18

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    Oh Goddddd...Lactose Intolerance. I inadvertently ate something that contained milk, and now I'm sick and in pain. My stomach is bloated and hurts and I'm nauseous. I hope I'm not...
    Carissimi Carissimi 56-60, F 3 Responses Aug 18

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    I recently found out I have ORS and will need another suregy (14th since I was 19) to remove the remnant and clean up the cysts and tumors that have grown since the original...
    Deena76 Deena76 36-40, F Aug 18

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    I have had CRPS for 5 years. I am a flight attendant and had a passenger fall on me. I first noticed weakness in my legs and a shooting pain down my legs and severe low back pain...
    dedelocken dedelocken 51-55, F Aug 17

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    I might have AS. Any tips on how to manage it so as to avoid hurting people around me more (my spouse and family)?
    LolaHaze9 LolaHaze9 22-25, F Aug 17

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    I really need your help, I know you all are strangers but please... I think I have aspergers, the things I do in my daily life isn't "normal" to others. first off hi, I'm Andrew...
    deleted deleted 26-30 3 Responses Aug 16

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    Syndrome from The Incredibles is what happens when you don't outgrow your emo phase.
    mattinsula mattinsula 16-17, M 1 Response Aug 16

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    I do I have asperger syndrome
    Pedro1202 Pedro1202 18-21, M Aug 15

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    Hi I don't personally have fibromyalgia, but I am with a US company for all natural products that help various medical conditions, products for pain/inflammation for instance, let...
    carolgem carolgem 46-50, F 1 Response Aug 15

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    Can someone tell me what cvs is and explain what happens when you u have it
    CelticDragon561 CelticDragon561 51-55, M 1 Response Aug 15

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    Cvs cyclic vomiting syndrome is something I have and it sucks so much! Is there a way to add this is the category??
    deleted deleted 26-30 1 Response Aug 14

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    Within the last year, I have been diagnosed with PS. Unlike some of the stories I've glimpsed on here, it primarily is my dominant right hand. My hand was always small and...
    HypoplasticHand HypoplasticHand 18-21, F 1 Response Aug 14

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    I have only known I have had pots for about 7 months now. I will be a sophomore in high school. I really wanted to letter in volleyball but I don't see that happening. :( I have...
    99lynn 99lynn 13-15, F 2 Responses Aug 14

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