A Postural Orthostatic Tachycardia Syndrome anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Postural Orthostatic Tachycardia Syndrome. You're not alone.
1 post. Updated 3 days ago 3 posts. Updated a while ago 7 posts. Updated a while ago |
Members Sharing the Experience "I Have Postural Orthostatic Tachycardia Syndrome"
345 Members
Related Groups to "I Have Postural Orthostatic Tachycardia Syndrome"
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This Experience at a Glance
Story highlights
These snippets show some of the most common themes mentioned in this experience's stories:
These snippets show some of the most common themes mentioned in this experience's stories:
- "I have low blood volume and no quality of life, i suffer with a tight chest, breathlessness, pooling of the stomach and legs, low blood pressure and feel dreadful all day..."
- "They scared me because it felt similar to a panic attack..."
- "Recently, I started having more and more severe chest pains and increasing periods of presyncope, and being scared, I sought help from my GP..."
And the Story Awards Go to...
Most Popular: Pots Success Story
Most Recent: An Idiot's Guide To Pots, By An Idiot
Most Commented: Sick Of Doctors Who Don't Know A Thing About Pots
Most Entertaining: Success!!! Quote From Girl Who Just Finished Dr Levine's Treatment Protocol For Pots
Saddest: I Hate POTS!!
Statistics:
90% of people in this group say this is a bad experience. 90% believe this experience makes them sad. 100% believe this is a boring experience. 80% believe this is a scary experience. 100% think this experience is hard. 100% believe they would not recommend this to others. 100% believe they find this experience unattractive in others.
29% of people who have this experience are in their teens, 27% are in their twenties, and 23% are in their thirties. 89% of people who have this experience are women.
You may cite any I Have Postural Orthostatic Tachycardia Syndrome statistics, provided you link back to this page
Check out this group's What Is It Like To Have Postural Orthostatic Tachycardia Syndrome guide, where people with this experience share their tips and hints.
Here are a few tips...
- It is like our mind telling us that we want to do something, then our body shuts down.
- Having POTS in my home makes me feel helpless...
- is like having your freedom rip away and having to depend on everyone else like you are a small child.
Related Topics
Members said this page is also related to:
Do You Have Postural Orthostatic Tachycardia Syndrome? , What is it like to Have Postural Orthostatic Tachycardia Syndrome? ,Have Postural Orthostatic Tachycardia Syndrome personal stories, Have Postural Orthostatic Tachycardia Syndrome personal experiences
Other experience groups that have been combined into this group include: None yet.
Other experience groups that have been combined into this group include: None yet.
This is an experience group where everyone says: I Have Postural Orthostatic Tachycardia Syndrome. It features support, personal stories and experiences, advice, chat, talk, forums, videos, pictures and resources from real people, just like you.
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