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I Have Postural Orthostatic Tachycardia Syndrome

A Postural Orthostatic Tachycardia Syndrome anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Postural Orthostatic Tachycardia Syndrome. You're not alone. 796 People

    Having pots has changes my life completely in the morning I can't just get out if bed,I have to drink 1 full glass of water because when I get out of bed my heart rate jumps from a...
    Megan2020 Megan2020 13-15, F 2 Responses Jan 26

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    What Do You Tell People Who Don'T Get It? - I am recently diagnosed and believed to have had POTS since childhood. My own mother knows I have POTS but continues to down play or...
    cantSTANDstanding cantSTANDstanding 26-30, F 5 Responses Jun 9, 2013

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    Please please respond if you are relatable. My anxiety with POTS has become so extreme and i am constantly worrying about every little thing in my body and always thinking...
    cassidybute cassidybute 18-21, F Mar 26

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    Does anyone have pots with high bp instead of low?
    jmsparky jmsparky 41-45, M 5 Responses Feb 17

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    Looking For Some Support (pots) - My name is Jane, 16 years old, and I was recently diagnosed with severe POTS. My symptoms began with general weakness, shortness of breath, and...
    jayne16 jayne16 16-17 3 Responses Dec 27, 2012

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    If I wanted to go to a tanning bed would I still get tan? Or Because of my pots. Or even laying out in the sun for hours or will I stay pale :(?
    Megan2020 Megan2020 13-15, F 1 Response Mar 25

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    Pots Syndrome..help For A Helpless Situation (getting Diagnosed)? - Let me start by saying I have not been officially diagnosed with pots..which is where I need advice. I am 21...
    possiblypots possiblypots 18-21, F 3 Responses Feb 15, 2013

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    Anyone on disability? Im going to apply and am wondering what its like, any advice? I know Ill be denied the first time and it can take years to be approved but thats it. Im a bit...
    winterwind222 winterwind222 26-30, F 1 Response Jan 28

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    Life Changing 3 Months Of My Life -             During Fall Parent-Teacher Conferences I began to feel ill but thought nothing of it. The illness...
    wambold wambold 26-30, F 10 Responses Jan 28, 2010

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    I was diagnosed on a tilt table test in November of last year. It has been a really hard road to even get this diagnosis. It took almost 3 years before a doctor even suggested...
    livingfornothing livingfornothing 31-35, F 1 Response Mar 11

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    I have been struggling with fatigue with pots for the last 15months. Has anyone found anything to help this?
    Kas25 Kas25 22-25, F 1 Response Apr 6

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    Postural Orthostatic Tachycardia Syndrome Is What I Have... - i'm 26 years old.. and i was diagnosed with mitral valve prolapse when i was 22 and when i was 23 , i was diagnosed...
    Anonymousgirls411 Anonymousgirls411 26-30, F 1 Response Oct 8, 2013

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    I Hate POTS!! - So here is my story...August 14, 2008: While driving down the road I have this sharp pain in my left chest and i start to black out. I manage to get pulled over and...
    g04th g04th 36-40, M 14 Responses Feb 1, 2010

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    I Cant. Im Feeling Potsy - I can't... I'm feeling POTSy. I feel like I say this all the time. Luckily the people who are around me understand, which has not always been the case...
    LaurenMarieF LaurenMarieF 26-30 3 Responses Apr 10, 2011

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    I have just been put on 10 sodium tablets per day. This is apparently meant to help my POTS, has this worked for anyone else?
    justplainhollyjayne justplainhollyjayne 13-15, F 1 Response Mar 24

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    I was diagnosed with POTS five years ago, my sophomore year in high school, but I got "sick" my freshman year. It took almost a full year, and countless tests, to discover that I...
    daniellee07 daniellee07 18-21, F 1 Response Feb 10

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    Symptoms get worse around menstrual cycle - I've heard other women with POTs report an increase of symptoms near their menstrual cycle. This just started happening to me and I...
    ovalsquare ovalsquare 16-17, F 2 Responses Mar 1

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    Pots Success Story - I was just talking to someone about my experience with Postural orthostatic tachycardia syndrome (P.O.T.S.) when I was younger. Back then, there wasn't a whole...
    dliebner dliebner 22-25 7 Responses Jan 12, 2011

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    My son who is actually fifteen has the diagnosis of Pots.
    Diversity2014 Diversity2014 31-35, F Feb 28

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    Well its back to square one again. My new medication, it worked as in stopped me fainting but gave me a severe allergic reaction, now I have burnt, rashy skin & it's ugly. Im too...
    Paigemb Paigemb 16-17, F Feb 27

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    I'm 14 and ive recently been diagnosed with pots, im a high achieving teen and always wondering why just living was so much harder for me...its basically really ruined my life and...
    Hannah136 Hannah136 16-17, F 2 Responses Feb 11

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    Pots Is Ruining My Life. - Back in Septemeber, I woke up one moring, with stomach pain, thinking maybe, I was just being a woman, I went on with my day, went off to school, in...
    kantieau kantieau 18-21 27 Responses Jul 26, 2010

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    To anyone interested in a support group/personal experience blog about my experience with POTS, just copy and paste this link and check it out! please comment anything to add or to...
    cassidybute cassidybute 18-21, F Mar 25

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    I'm 15 years old almost 16 getting ready to drive. I always had big dreams. I wanted to go to Stanford, I got straight A's, I always tried to be the best of the best. I know now...
    shybutkindd shybutkindd 13-15, F 3 Responses Mar 18

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    Last night around 2:00 I went to the ER. I had a migraine my mom gave me my medicine about 15min later my heart started racing it's never happened like that before. When we...
    Megan2020 Megan2020 13-15, F 2 Responses Feb 28

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    Hi I'm 15 years old and last month I was diagnosed with POTS it was really hard for me because I didn't know what to Except I went down to the Mayo not knowing exactly what I was...
    Megan2020 Megan2020 13-15, F 3 Responses Jan 17

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    An Idiot's Guide To Pots, By An Idiot - This is a general guide to POTS. I've found that medications like beta blockers, antidepressants, and so on have very different affects on...
    Gone119 Gone119 22-25, M 5 Responses May 19, 2012

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    Losing Strength - Im trying so hard, but I can't control how my body feels and I don't have any money. I want so badly to be better and work again and fix my car but i don't have...
    kbarrios93 kbarrios93 18-21, F 5 Responses Nov 12, 2012

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    I need someone to talk to. I feel so alone
    A10371232 A10371232 18-21, F 5 Responses Mar 11

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    Adding to my previous post - no one around me understands pots, my mum knows I'm ill but gets frustrated at me telling her how I feel and says she is fed up of hearing I'm ill, my...
    potsie2222 potsie2222 18-21, F 4 Responses 3 days ago

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    Has anyone else experienced random bruising with POTS? I've had what appears to be a large bruise appear on my thigh and wondered if this was part of POTS.
    justplainhollyjayne justplainhollyjayne 13-15, F Mar 23

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    I Want My Old Life Back - So I started feeling somewhat better and thought that I would be okay to go to the school football game last night. I felt okay all day and didn't do...
    Gabycastellano Gabycastellano 18-21, F 3 Responses Sep 28, 2013

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    Is playing sports a good idea for a POTSie? I believe I have had a mild case of POTS for most of my life, but it has recently been brought to my attention. My symptoms aren't as...
    ovalsquare ovalsquare 16-17, F 2 Responses Feb 17

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    I have Postural Tachycardia Syndrome, as I only have issues with my heart rate not my blood pressure when standing. Does anyone else have this? What helps? I'm waiting on a call...
    Konig316 Konig316 26-30, F 3 Responses Mar 30

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    I am new to this as I noticed several posts about pots syndrome I was wondering if someone could help me? I have suffered with this since I was 14 (I am now 19) but was only...
    potsie2222 potsie2222 18-21, F 3 days ago

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    Fighting - I am so tired right now, I can barely keep my eyes open. I want sleep to come so bad. I want to lay in my own inner calm, but I can't. Sleep is my drug, and wakefulness...
    Seabreeze843 Seabreeze843 13-15 Feb 28, 2012

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    I Am At Death's Door - I am going to keep this as short as i can, so i'll be short worded so as to get in all my symptoms and span of my medical history.  I am 33 now, mother...
    hilbiligrl hilbiligrl 31-35, F 16 Responses Oct 5, 2010

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    I Wish - I wish There was somebody anybody around that knew exactly how I felt and understood what I meant, someone that could truly understand the pain I'm in and how sick I feel
    Gabycastellano Gabycastellano 18-21, F 1 Response Sep 26, 2013

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    Life As I Know It - I have had POTS for almost 6 years, but I have only had a formal diagnosis for a week. I found POTS on the internet about 4 years ago and I immediately...
    musicaholic440 musicaholic440 22-25, F 3 Responses Mar 15, 2011

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    At least, I think I might. I've been experiencing really strange symptoms for the last 4 years or so. It started with fainting spells. Well, I call them fainting spells only...
    kuristitches kuristitches 18-21, F 1 Response Jan 28

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    Living With Pots Syndrome - I became sick in june of this yr with what was thought to be a virus. Little did I know that worse was to come. I had tachycardia real bad and when I...
    greeneyes28326 greeneyes28326 46-50, F 16 Responses Aug 25, 2010

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    Years Of Misdiagnosis - Hi, I'm Lia. I'm 23. I just got diagnosed with POTS a year and a half ago. However I was sick for years before they finally figured it out. I started...
    liarenee liarenee 22-25, F 2 Responses Nov 10, 2013

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    I'm in track this year doctors say it's good to stay active. Especially if you have pots I never thought of myself as a runner but joining track made me realize you don't have to...
    Megan2020 Megan2020 13-15, F 1 Response Apr 7

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    Feeling pretty miserable right now, so tired of never having the energy to do anything and if I do manage to its always ruined/cut short by me fainting or getting dizzy and feeling...
    ncp87 ncp87 26-30, F 2 Responses Feb 20

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    The Depression. - I've had pots for about six years now but was just diagnosed a year and a half ago. My symptoms aren't as bad as many other people's but my days get hard. I do my...
    PobBarbie12 PobBarbie12 18-21, F 4 Responses Nov 9, 2013

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    I have a mild form of POTS. I have low blood pressure and always feel so dizzy. My hands go numb when I get my heart rate up. Everybody thought I was crying wolf because I feel...
    mcshort6443 mcshort6443 18-21, F Jan 14

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    It Has Been One Year Since I Was Diagnosed With Postural Orthostatic Tacycardia Syndrome - Last year I went to a cardiologist and was told that I have Dysautonomia 3 weeks later on...
    saltys saltys 18-21, M 2 Responses Nov 11, 2013

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    Most People Just Don't Understand Pot's!!!!! - I have had syndrome for over 2years, I,m getting better thank god. it was a long road and a very painful one. The problem I,m...
    Ihavepotssyndrome Ihavepotssyndrome 41-45, F 4 Responses Sep 7, 2012

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    Bedridden With Postural Orthostatic Tachycardia Syndrome - I have Postural orthostatic Tacycardia Syndrome and have been bedridden for nearly 5 years.I have low blood volume and no...
    gillyann gillyann 56-60 17 Responses Dec 6, 2008

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    I Don't Know If This Has Been Posted Yet, But It Might Get A Smile So.. - you know you have pots when. 1. You spend more time horizontal than vertical. 2. You can always pee...
    heyitsdanielle heyitsdanielle 16-17, F 19 Responses Mar 6, 2012

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