-
kgo4th
So here is my story...August 14, 2008: While driving down the road I have this sharp pain in my left chest and i start to black out. I manage to get pulled over and catch my breath, I thought I was having a heart attack and dying. So...
Read full story
See comments
Written on February 1st, 2010
3 Rate Ups
4394 Views
-
kbarrios93
Im trying so hard, but I can't control how my body feels and I don't have any money. I want so badly to be better and work again and fix my car but i don't have the means to do it. I can't seem to do anything anymore. I want clean...
Read full story
See comments
Written on November 12th, 2012
7 Rate Ups
639 Views
-
gillyann
I have Postural orthostatic Tacycardia Syndrome and have been bedridden for nearly 5 years.I have low blood volume and no quality of life, i suffer with a tight chest,breathlessness,pooling of the stomach and legs,low blood pressure and...
Read full story
See comments
Written on December 6th, 2008
3 Rate Ups
3063 Views
-
heyitsdanielle
you know you have pots when.
1. You spend more time horizontal than vertical. 2. You can always pee on command. 3. You have an excuse for not being able to pass a sobriety test. Pray that a police office never stops you and asks...
Read full story
See comments
Written on March 6th, 2012
3 Rate Ups
2253 Views
-
Ihavepotssyndrome
How to manage with pots when your home alone all day, what do you do when you have a bad episode?? Can anyone out there give me some advice?
Read full story
See comments
Written on April 19th, 2013
1 Rate Up
127 Views
-
1sweetloralei
I am a 36 yr old married mother of two small children and I am living with POTS struggles on a daily basis. I was officially diagnosed in May 2009 but have had the majority of the symptoms since 2007. I've suffered from migraines...
Read full story
See comments
Written on July 15th, 2010
7 Rate Ups
5154 Views
-
imstrongerthanyouthink
I am getting my tilt table test soon. Can anyone tell me what to expect? Was it terrible?
Read full story
See comments
Written on April 20th, 2013
1 Rate Up
150 Views
-
emmy51899
It started when I was only 8. I loved to play soccer until I couldn't breath and the other kids mocked me. I quit when the season was over. I kept getting worse and worse but nobody knew what it was. They were like ohh it just asthma...
Read full story
See comments
Written on April 19th, 2013
1 Rate Up
105 Views
-
wambold
During Fall Parent-Teacher Conferences I began to feel ill but thought nothing of it. The illness progressed into a constant state of lightheartedness and fatigue. I finally went to the...
Read full story
See comments
Written on January 28th, 2010
4 Rate Ups
2538 Views
-
Kinakierra
I had a pretty active life style, waking up at 5am to go to high school everyday, participating in a fitness club at my school, singing in the school choir etc. I graduated with honors from my high school, and everything was going great...
Read full story
See comments
Written on January 6th, 2013
17 Rate Ups
1191 Views
-
Mstoock
Is it normal to have breathing problems when you have POTS? I'm having extreme difficulty taking in a deep breath. It also feels like i'm gasping for air. Should i have it checked out and go to the hospital. My dad is really worried...
Read full story
See comments
Written on May 24th, 2013
1 Rate Up
33 Views
-
kantieau
Back in Septemeber, I woke up one moring, with stomach pain, thinking maybe, I was just being a woman, I went on with my day, went off to school, in progressivly got worse, I couldn't stand anymore, I called my mom and made her come get...
Read full story
See comments
Written on July 26th, 2010
3 Rate Ups
3511 Views
-
cabbamondi
In 2009 i was in a horrific cheer-leading accident. While back spotting a flyer, she fell on top of my head knocking me to the ground which i then hit my head on the gym floor that was not protected with mats. The next thing i remember...
Read full story
See comments
Written on May 1st, 2013
1 Rate Up
98 Views
-
greeneyes28326
I became sick in june of this yr with what was thought to be a virus. Little did I know that worse was to come. I had tachycardia real bad and when I stood up I felt like my legs were going to give out. I was so tired and just couldn't...
Read full story
See comments
Written on August 25th, 2010
3 Rate Ups
4387 Views
-
schlicha
I have just been diagnosed with POT's last week, after about a year of struggling to find an adequate and knowledgeable doctor to diagnose my problems. After three cardiologists and numerous people telling me its all in my head, I...
Read full story
See comments
Written on May 21st, 2013
1 Rate Up
48 Views
-
LifeIsWorthIt
This is probably going to be long, so bear with me. I got my first "dizzy spell" when I was 12. Just doing our traditional family walk after our Thanksgiving meal, I started trailing behind my brother and uncle, trying to call to them...
Read full story
See comments
Written on May 6th, 2013
1 Rate Up
91 Views
-
polkinsc
I am a 42 year old male that teaches high school and is a bi-vocational pastor. I have a 12 year old and this is my journey to POTS. It has taken 15 years to come up with something that makes sense and puts all the facts of what I...
Read full story
See comments
Written on May 24th, 2013
1 Rate Up
38 Views
-
POTSRecovery
"I just completed a POTS study in Dallas , Texas . It is an exercise study in which they take you off all of your medications and put you on a specialized exercise regimen. It starts with all seated exercises like the cardio...
Read full story
See comments
Written on February 24th, 2010
3 Rate Ups
4089 Views
-
Dance545
Hi im 16 and was diagnoised with pots nearly 2 years ago. I was dancing 9 hours a week until that one day everything changed. I did not have a clue about pots, but i read all the time, not like i dont have enough time lol. I havent been...
Read full story
See comments
Written on April 22nd, 2013
1 Rate Up
187 Views
-
heatherm1
Hi y'all! I'm a 31 year old mother of three. Recently, my doctor told me I may have pots. He told me to change my diet and take sodium supplements and would recheck my labs in a month. Now, a month later, I asked him if he was still...
Read full story
See comments
Written on May 13th, 2013
1 Rate Up
99 Views
Other experience groups that have been combined into this group include: None yet.
This is an experience group where everyone says:
I Have Postural Orthostatic Tachycardia Syndrome. It features support, personal stories and experiences, advice, chat, talk, forums, videos, pictures and resources from real people, just like you.
It's free to join, and the people in this group would love to meet you! If you've had this experience, or plan on having it in the future, simply click 'Me Too' or 'Plan To' and add it to your experiences. As you add more experiences, we're better able to
recommend interesting people to you that share many of your personal experiences.
Login or
Register to get started in seconds.