I Have Primary Biliary Cirrhosis


A Primary Biliary Cirrhosis anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Primary Biliary Cirrhosis. You're not alone.

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27 Stories

Recently Diagnosed....

Here's my story: I went to see my general practitioner for a check up in the fall of 2011 and ran some blood tests because I am on an...

I Have Pbc And I Am Scared

I just found out that  I have PBC and I dont know what to expect, I go for a liver biopsy on Friday, to find out the stage of it, and so...

Mine

So, back in February I went to the hospital for some pro-op tests before a Workers Comp related back surgery. They called me and told me my...

Do I Have Pbc??

dear users, supporters and caregivers I am from Bangladesh, needless to say that the medical treatment for cirrhosis is not that much...

I Was Diagnosed With Pbc 2 Years Ago

My husband and I started a business together, we bought a property in Mont Tremblant to rent because we have always loved going there for...

Fatigue With Pbc

I have recently found out that the latest thinking is that the level of Fatigue is related to Anti Mitochondrial Antibodies and not...

Some Good News For Once

Hello Fellow PBCers: I was first diagnosed in 2010 and I've been a member of the PBCers Digest since the day I was diagnosed. I rarely...
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Members Sharing the Experience "I Have Primary Biliary Cirrhosis"
54 Members
This Experience at a Glance
Story highlights
These snippets show some of the most common themes mentioned in this experience's stories:
  • "Once with the doctor I found out that my liver enzymes were very high GGT, ALT etc normal ranges being between 0 - 45 and my numbers were in the 800s..."
And the Story Awards Go to...
Statistics:

33% of people who have this experience are in their fifties, 30% are in their thirties, and 28% are in their forties. 100% of people who have this experience are women.

You may cite any I Have Primary Biliary Cirrhosis statistics, provided you link back to this page
Check out this group's What Is It Like To Have Primary Biliary Cirrhosis guide, where people with this experience share their tips and hints.

Here are a few tips...
  • Its like having a death sentance.
  • 2months ago I went to docs becoss i noticed my hands were very stiff in the morning, he sent me 4 blood tests, returned and told all was ok, but the stiffness did not dissapear so made another appointment, been 2 docs today and she said i had PBC.
  • no real idea what to think or feel, looked it up.......should i b worried?
Members said this page is also related to: Do You Have Primary Biliary Cirrhosis? , What is it like to Have Primary Biliary Cirrhosis? ,Have Primary Biliary Cirrhosis personal stories, Have Primary Biliary Cirrhosis personal experiences

Other experience groups that have been combined into this group include: None yet.
This is an experience group where everyone says: I Have Primary Biliary Cirrhosis. It features support, personal stories and experiences, advice, chat, talk, forums, videos, pictures and resources from real people, just like you. It's free to join, and the people in this group would love to meet you! If you've had this experience, or plan on having it in the future, simply click 'Me Too' or 'Plan To' and add it to your experiences. As you add more experiences, we're better able to recommend interesting people to you that share many of your personal experiences.

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