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I Have Primary Lateral Sclerosis

Primary Lateral Sclerosis anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Primary Lateral Sclerosis. You're not alone. 29 People

    23 March - Just heard the news, you have primary lateral scerosis.Not sure what that means all i know is i have a hard time walking.I am trying to stay positive and thinking about...
    23march 23march 46-50 2 Responses May 9, 2011

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    Very Fustrated! - I was diagnosed with PLS about 1 month ago . After 2 MRI's , CT scan , A SPINAL TAP and several blood tests the Neuroligist determined that by a process of...
    Deroy Deroy 46-50, F Oct 16, 2013

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    I was accepted into the NIH undiagnosed diseases program in January of 2014. I have PLS also. I keep thinking somehow I can turn this around. Beat the odds so to speak. My new...
    christinasperos christinasperos 61-65, F Mar 24

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    I Have Pls And I Feel Alone With This Diagnosis. - i found out for sure i had pls 1-11. my husband died 2-11. i would not have been able to care for him since i need help myself...
    remila remila 70+ 1 Response May 31, 2013

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    I Have Primary Lateral Sclerosis - I'm a new member to this website. I thought I'd join in hopes to connect with others living with Primary Lateral Sclerosis. I was diagnosed...
    mmk7 mmk7 56-60 1 Response Jul 24, 2013

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    Primary Lateral Sclerosis Sufferer From Australia - Hi everyone.  I was diagnosed with pls 4 years ago.  I'm now 43.  I ve always been a good second...
    viewbank viewbank 41-45, M 3 Responses Mar 15, 2010

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    Preliminary Dx Pri - I had opened an account as pinkglasses, but try as I might, I could not log into it. I received a message from FUNGIRLMMM, but I couldn't read it cuz I couldn...
    roseglasses roseglasses 51-55, F 3 Responses Feb 23, 2012

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    PLS Diagnosed In May 2012 - I am a white female in my mid 60's, and I have no voice. Otherwise, I am fairly healthy. My PLS/ALS specialist insists that I let her install a PEG...
    PatriciaDodson PatriciaDodson 66-70, F Sep 28, 2013

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    Why Is This Happening - My name is Kevin G. I live in Lynn Ma. with my wife/partner of 20 years and our son who turned 18 in Jan. Late 2009 into early 2010 I noticed a tremor in my...
    golf4kev golf4kev 46-50, M 5 Responses Apr 13, 2013

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    Hello I have had PLS for 8 years now(diagnosed at 47). I am 52 now and still have problems with understanding what is happening to me. There are so many different things that...
    Gduke Gduke 51-55, M 1 Response Dec 12, 2013

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    PLS - Just diagnosed finally yesterday. At least now i can actually call it something! A year of wondering and no answers has been the most difficult part. I can deal with the...
    martin56 martin56 56-60, M 1 Response Apr 30, 2013

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    Diagnosed in 2002 with ALS then went to Mayo in Rochester, they said after 2 weeks ,no ALS ,we don't know but no ALS ,went back home doctor says PLS . All I can say is after all...
    conniegeo1 conniegeo1 66-70 Feb 8

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    Related Experiences

    I take low dose naltrexone for Multiple Sclerosis. It is the only medication I take . I was diagnosed in 2006. Initially I did rebif *****. They made EVERY symptom worse. Now I'm...
    Secretme52 Secretme52 61-65, F 1 Response Mar 24

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    My daughter has fetal anti convulsant syndrome, she is not the only child I know with FACs that has cholestetoma. She was dianosed wih chronic bi-lateral cholesteatoma with...
    Trelissa Trelissa 18-21, F Mar 19

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    I had two brain MRIS within 2 years and both came back clear for MS but found out I have retention cysts in my sinuses. I am so confused. Do I push a spinal MRI or LP? I had optic...
    njoy13 njoy13 31-35, F 1 Response Mar 28

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    CAT Caterpillar ET Diagnostic Adapter is obd2repair PC-based service tool. CAT Caterpillar ET can access Electronic Control Modules (ECMs) from a personal computer. CAT ET 2011A V1...
    obd2repair obd2repair 22-25, F Mar 19

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    What the heck? About three and a half years ago I began to get soreness and stiffness in my hips, legs, and shoulders that increased steadily until I got to my doctor after weeks...
    DavidScott7 DavidScott7 56-60, M 1 Response Mar 24

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    TMI.... Or not enough? A week ago I had no idea what renal colic was. I knew it was bad and not something I wanted. A week ago a baby was still not entirely out of the question...
    owchimama owchimama 31-35, F Mar 25

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    Have you ever saw someone from primary school that went to different high school then yourself then you run in to her at the shops and think to yourself man she's gorgeous.
    arronwashington arronwashington 13-15, M 1 Response Mar 28

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    Love this website….was wondering about the after effects …since no one mentioned resting until I went to my own primary care doctor. I'm tired and usually very high energy, can...
    Namoonga Namoonga 61-65, F Mar 30

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    My kids are my life! I have two beautiful daughters aged 12 and 17. God was good to me. I'm so lucky to have them and I will cherish them forever! They are going up so fast! Gone...
    Sandyshaw13 Sandyshaw13 36-40, F 3 Responses Mar 31

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    Confused Little Girl- I did not even know I had a biological father until a judge ordered me to his custody in Europe. Before that I lived with my widowed stepfather. My mother had...
    StandoffishBrat StandoffishBrat 18-21 Apr 1

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    I have nobody. My parents try to avoid me, as I was a mistake anyway, they don't love me, they have even admitted that to me themselves. My sister's don't love me either, they look...
    insidiousdeath insidiousdeath 18-21, F 1 Response Apr 3

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    Hey I just wanna say about my experience. I have Trichotillomania which is a condition where you pull out your eyelashes. It was when I was in about year 4/5 of primary school and...
    Cookzie Cookzie 13-15, F 2 Responses 5 days ago

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    My first experience of ASMR that I can remember was when I was in primary school and somebody in my class was helping me with my maths work and him writing in my book and talking...
    Aenoria Aenoria 18-21, F 1 Response 5 days ago

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    I'm a girl with a very deep voice . When I was in primary school ,little children would come up to me and ask "Are u a boy"I always taught there was something wrong with me because...
    Eva8227 Eva8227 13-15, F 1 Response 2 days ago

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    I have a question for everyone :) So I was diagnosed with Asperger's Syndrome a few years ago and am aware about it for a while now. Lately, however I have been having random...
    EurydiceKallos EurydiceKallos 16-17, F 2 Responses 4 hrs ago

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    FOR MEN WHO LIKE TROPHY WOMEN: The prettier they are the more psycho they are... only in the most rare cases will you find the one who isn't.. even then she still requires a lot...
    destinyisfate destinyisfate 22-25, F 2 Responses 2 hrs ago

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    I don't think I'd ever tell anyone but I might as well. I have Schizoaffective Disorder which, in a basic definition, it's like Bipolar and Schizophrenia, some people have...
    PitchDaffy PitchDaffy 22-25, F 9 mins ago

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    I actually stopped a while back. Not really, like last year after Christmas. It's hard but I did and I'm proud of myself. My girlfriend looked down on me for it, though she has...
    ExileTraveler ExileTraveler 13-15, F 4 hrs ago

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    I was born with one leg shorter than the other and had a couple of leg lengthening ops which never worked. Im now 29 and have been suffering with severe back pain which spreads...
    daddyhaggis daddyhaggis 26-30, M 3 hrs ago

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    Yes, I sometimes do. I sometimes, but only some times, want to have an illicit affair, with all of the things that comes with this. And when I say this, of course, because it is me...
    Lgl700 Lgl700 51-55, M 2 hrs ago

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    Since, childhood i have been waking up at 6am in the mornings :) i have the habit of combing my hair always and looking my self into the mirror, i always saw myself pretty with my...
    shlproy123 shlproy123 26-30, F 1 hr ago

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    There has been no official diagnosis. But, all my life I have felt very different from everyone else. Job after job I have had a difficult time forming close relationships and...
    pottersclay pottersclay 41-45, F 1 Response 4 hrs ago

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    I woke up randomly at 3:30 this morning and haven't gone back to sleep. My stomach was fine and I was just stressed. A few minutes after I thought that I started having sort of gas...
    Raynbowe Raynbowe 22-25, F 1 hr ago

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    I have worn jeans of all types over the years from baggy bell bottoms to skinny squeeze to get foot in, from plain to fitted designer, some with embezzlement and fancy thread but...
    CdKimmi CdKimmi 61-65, M 21 mins ago

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    I dont have bad grammar i just type with no punctuation because i want to write sentences so long that people will run out of breath reading it and suffocate.
    InsaneNefelibata InsaneNefelibata 18-21, F 2 Responses 5 hrs ago

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    I can't stand it anymore. Every single day I have bad panic attacks.
    bellahblue bellahblue 13-15, F 1 Response 5 hrs ago

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    I needing girls to talk to and am looking for friend I would to try find sum 1 from uk but more from Scotland so to add me u have to be 16+
    scottishbigguy scottishbigguy 22-25, M 4 hrs ago

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    Follow me in Instagram I have lots of gaming stuff up and airsoft but mostly random thins - ig is - scottishwar1
    scottishbigguy scottishbigguy 22-25, M 4 hrs ago

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    So I have this huge crush on this girl at my park I seen her a couple times and then one day I was with my friends and uncle he's 24 I'm 14 she's 13 any ways before I fell her I...
    KingNevarez KingNevarez 13-15, M 4 Responses 4 hrs ago

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    Stranger: "You have a nice face!" Me: "Thanks, my parents gave it to me."
    Lunarflowerrr Lunarflowerrr 22-25, F 2 Responses 4 hrs ago

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    Its hard for me to be serious when it comes to verbally saying i care and love the people i really love because we just show it and all though we fight a lot we know we have each...
    Islandkween Islandkween 18-21, F 3 hrs ago

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    Unfortunately I have twice but don't plan on doing it again anytime soon. Whenever the though even crosses my mind, I go straight to my books and music.
    rapfordays rapfordays 18-21, F 1 Response 3 hrs ago

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    I have a kick account but I rarely get on it
    Maddya Maddya 18-21, F 3 Responses 3 hrs ago

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    I have a love heat shaped scar on my knee from when I slipped and dropped a jug of juice when I was little 💗
    Luce13579 Luce13579 16-17, F 2 hrs ago

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    Lmao! This is the best exp here! Haha it completely defines me except for two big details: I'm bi (so I like a lot more people) and I have HUGE crushes on people. Which, I've come...
    chrisisyourfriend chrisisyourfriend 16-17, M 1 hr ago

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    Accidents - My appetite is healthy but my stomach is weak, spicy foods can flat out be murder on my digestive system especially if there is a complex sauce of some kind on it...
    Monstermaster13 Monstermaster13 22-25, M 8 mins ago

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    I feel like more people should have experienced this.
    LadyMerida LadyMerida 16-17, F Mar 17

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    This is a note to someone who means so much to me. One day I might try to get ahold of him, but he will probably never see this: I lost my memory, yes. But I still remembered...
    LovelyChaoticDay LovelyChaoticDay 18-21, F 1 Response Mar 17

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    My life has forever changed from the past 2 years. I am no longer myself! Who used to just live in today and not worry about anything. Now I have become this hard rock. Someone who...
    endlesslyyyforever endlesslyyyforever 18-21, F 1 Response Mar 17

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    My mum died when i was 8 years old from a drug overdose, and my father passed away November 2nd last year in a car crash. I feel so empty without my dad, he was amazing, I am 22...
    danylxmichael danylxmichael 22-25, F 2 Responses Mar 17