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I Have Primary Lateral Sclerosis

Primary Lateral Sclerosis anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Primary Lateral Sclerosis. You're not alone. 33 People

    ...not yet and hope not,

    but they are hinting at it. It started with a diagnosis of stenosis, poor walking and back pain, a laminectomy with no resultant improvement in walking. I have "sort of" drop foot, with the neurologist calling it that but the ortho surgeon did not. It has some life and is not...
    Isaac6 Isaac6 61-65 Sep 19

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    I Have Pls And I Feel Alone With This Diagnosis.

    i found out for sure i had pls 1-11. my husband died 2-11. i would not have been able to care for him since i need help myself now. i fell on 4-25-13 and fractured my wrist in two places, so i cannot use my walker. i am in a wheelchair now, having pt on my shoulder, then...
    remila remila 70+ 1 Response May 31, 2013

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    I was diagnosed 2 years ago

    and recently I have gotten so much worse. I lived alone and now have live in aids to make sure I can walk safely even with a walker. My speech is very hard to understand and I am extremely depressed and anxious(despite meds and therapy). Does anyone have any advice re my...
    peggytunick peggytunick 66-70, F Jun 14

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    Preliminary Dx Pri

    I had opened an account as pinkglasses, but try as I might, I could not log into it. I received a message from FUNGIRLMMM, but I couldn't read it cuz I couldn't log in. If you see this, please try me here. I would love to talk to someone with this "thing." I'd known something...
    roseglasses roseglasses 51-55, F 3 Responses Feb 23, 2012

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    I Have Primary Lateral Sclerosis

    I'm a new member to this website. I thought I'd join in hopes to connect with others living with Primary Lateral Sclerosis. I was diagnosed with PLS in 2006. It seemed to come on out of nowhere. I began feeling a strange buzzing feeling in my feet and legs, it was very annoying...
    mmk7 mmk7 56-60 2 Responses Jul 24, 2013

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    This is my first contact with a PLS forum,

    even though it's been seven years since my first symptom appeared and a year-and-a-half since I got my "official" diagnosis. I'm a 75-year-old widow and, like many of you, was a healthy specimen until this thing came from out of nowhere. I had a Baclofen pump implanted three...
    OzGirl14 OzGirl14 70+, F 1 Response Aug 4

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    PLS

    Just diagnosed finally yesterday. At least now i can actually call it something! A year of wondering and no answers has been the most difficult part. I can deal with the symptoms better now that i know what i'm dealing with! Bill
    martin56 martin56 56-60, M 1 Response Apr 30, 2013

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    PLS Diagnosed In May 2012

    I am a white female in my mid 60's, and I have no voice. Otherwise, I am fairly healthy. My PLS/ALS specialist insists that I let her install a PEG even though I am still able to swallow. I am scared-to-death! Can anyone share an acceptable alternative? Also, would anyone...
    PatriciaDodson PatriciaDodson 66-70, F Sep 28, 2013

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    Hello I have had PLS

    for 8 years now(diagnosed at 47). I am 52 now and still have problems with understanding what is happening to me. There are so many different things that have gone on with me and yet none of them neurologist say are related to this disease. I am having a hard time believing...
    Gduke Gduke 51-55, M 1 Response Dec 12, 2013

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    23 March

    Just heard the news, you have primary lateral scerosis.Not sure what that means all i know is i have a hard time walking.I am trying to stay positive and thinking about all of the things i can do , not the things icant do. All i keep saying to myself is it could be worse. 
    23march 23march 46-50 2 Responses May 9, 2011

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    I was accepted into the NIH undiagnosed

    diseases program in January of 2014. I have PLS also. I keep thinking somehow I can turn this around. Beat the odds so to speak. My new doctor at UCSD told me Thursday that I should do the things in life I want to do NOW. Also informed me that I am not going to beat this...
    christinasperos christinasperos 61-65, F 4 Responses Mar 24

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    Primary Lateral Sclerosis Sufferer From Australia

    Hi everyone.  I was diagnosed with pls 4 years ago.  I'm now 43.  I ve always been a good second generation italian catholic boy.  Never smoked, did drugs, i don't drink and never fooled around.  Damm i wish i had my time back again knowing what i...
    viewbank viewbank 41-45, M 3 Responses Mar 15, 2010

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    Why Is This Happening

    My name is Kevin G. I live in Lynn Ma. with my wife/partner of 20 years and our son who turned 18 in Jan. Late 2009 into early 2010 I noticed a tremor in my right hand. It was starting to get worse when my doctor recommended I see a neurologist. After a series of standard...
    golf4kev golf4kev 51-55, M 4 Responses Apr 13, 2013

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    from early childhood my mother said i was

    always clumbsy i help down a job for 22 years as an stna i just started haven alot of leg aches and keep tripping while i tried to walk my mother ust to have to come in to my room and rub my legs beacause they hurt so bad doctors would tell her it was growing pains well come...
    suzzy67 suzzy67 46-50, F Aug 20

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    Very Fustrated!

    I was diagnosed with PLS about 1 month ago . After 2 MRI's , CT scan , A SPINAL TAP and several blood tests the Neuroligist determined that by a process of elimination that I have PLS . I have gone from going to the gym 3 times a week and working full time to being unable to...
    Deroy Deroy 46-50, F 1 Response Oct 16, 2013

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    Diagnosed in 2002 with ALS then went to Mayo in

    Rochester, they said after 2 weeks ,no ALS ,we don't know but no ALS ,went back home doctor says PLS . All I can say is after all this time is Autoimmune ,as it seems to go slow .
    conniegeo1 conniegeo1 66-70 Feb 8

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    Related Experiences

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    I am writing this to show you that you can live with MS fairly comfortably if you are fortunate enough to find the right medication that works for you and have a good support...
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    I am 17 years old - 18 in November - and I have struggled with my weight and wanting to lose weight since I was 15 years old. I've been told many times that I do the things I do...
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    I was dx n 2009 with r.r.ms. I've done all kinds of therapies & changed my diet. I take daily vitamins 7 anti inflammatory suplements 2 help me. I did Copaxone 1 year.. shots sucks...
    sparradia sparradia 36-40, F 1 day ago

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    Cage Conditioning is usually a 30 minute higher depth interval coaching class, made by nine time earth MMA winner Matt Hughes. Incorporating conditioning drills that MMA fighters...
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    attached is a picture of my xray. i am worried i gave my daughter her primary complex. does this xray indicate TB?
    kumagski kumagski 26-30 Oct 1

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    attached is a picture of my xray. i am worried i gave my daughter her primary complex. does this xray indicate TB? 
    kumagski kumagski 26-30 1 Response Oct 1

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    My snapchat is primarysolution
    blackveilacolyte blackveilacolyte 22-25, M a week ago

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    My girlfriend, who is my primary caretaker, took our brand new son to another state to visit her grandparents. My parents are unable to care for me these days because shortly after...
    DisabledBoy DisabledBoy 18-21, M 1 Response Sep 28

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    Somewhere In Asia Is A Magyar(Hungarian)Guy Who Doesn't Know His True Heritage-Before I was born my dad tried to immigrate from Yugoslavia to America in the early 1990s.There he...
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    I'm going to write out my entire life story. It's not very long, but if you're interested then do to ahead and read it. Born in a small town called Swindon, on the 8th of August...
    TheWonkyRook TheWonkyRook 16-17, M 4 Responses 4 days ago

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    I have just started college, I have been bullied for the past 6 years at primary school and high school, I have experienced terrible moments. My girlfriend left me during February...
    SidneyCoughlan SidneyCoughlan 16-17, M 2 Responses 3 days ago

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    I have, within the last 2 months, developed hyperthyroidism due to my amiodarone medication for irregular heart rate which I have been on for 3 years. In these 3 years, my heart...
    Rob3P Rob3P 46-50, M 10 hrs ago

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    So like I have a huge crush on my civics teacher. He's not really as attractive as people would think, but his intelligence and personality is really attractive to me. We have a...
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    I have had endometriosis for years. After a miscarriage, then years of infertility, then laparoscopy, I had a healthy pregnancy of twins. Shortly after their birth, the dreaded...
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    I saw a documentary on Winston Churchill and I began to think he would have been an amazing man to cuddle! That is random..... We go to war to fight for Peace. Those who win...
    Tasha15Girl Tasha15Girl 13-15, F 29 mins ago

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    It all goes back to my childhood, I loved my mom and dad with all my heart but yet never received love back from them . The only person to ever love me as much , if not more , as...
    imperfectbeauty imperfectbeauty 18-21, F 1 Response 22 hrs ago

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    My husband and I have been married for almost 5 years. The whole time even when we dated has been full of abusive ways. I am so lost by the fact that he doesn't exactly...
    Anyonehome Anyonehome 26-30, F 22 hrs ago

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    I would say I'm decently attractive, and have actually had couple of opportunities to have girlfriends, and everytime it's about to happen I shut them out. I honestly tell it is...
    Miguelthemustang Miguelthemustang 18-21, M 1 Response 22 hrs ago

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    The girl can stay, but i don't want you here I said the day Shoeblack apperared in the house bringing a girl with him. She has nowhere to stay and I told her you will take care of...
    redribbonbook redribbonbook 46-50 21 hrs ago

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    Sometimes I cannot stop fantasizing about killing people who have offended my senses of justice and respect for basic human dignity. Today I had such an experience: there's this...
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    If you do drugs don't have a kid. If you are having sex with various people don't have a kid. Therefor if you are mentally or physically unstable Don't Have A Kid.
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    I'm kyah and I'm 14 years of age I have distal arthrogryposis type 1 I have had 8 operations so far and more to come I just wanted to see if I can related to anyone :)
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    I think I might have it actually I'm not 100% sure Since July my beautiful silky usually greasy hair has become very dry and brittle and my scalp is very dry and flaky. I've been...
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    Hey I'm kyah and I'm 14 years old I was diagnosed with distal arthrogryposis type 1 I have had some pretty rough patches I have 12 scars and 8 operations so far I just wanted to...
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    vaiuba vaiuba 26-30, F 1 Response 18 hrs ago

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    I am allowed nothing. We have school holidays now I have to get up every morning at 6 and go to bed at 9. I have to help doing all things in the house with my mother and when I am...
    noflowersforyou noflowersforyou 13-15, F 3 Responses 18 hrs ago

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    I have spent most of my life by myself. I never really had much for fiends. There are very few people i keep in regular contact with only 3/4 if you count my brother who lives with...
    whatisi whatisi 26-30, M 18 hrs ago

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    In 2008 my 3 year old Nephew Chaince died from strangulation from a mini blind cord. He died a week after Christmas, in some ways I am lucky to have known and lost many people in...
    davidmuhn davidmuhn 46-50, M 18 hrs ago
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