I Have Prurigo Nodularis

A Prurigo Nodularis anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Prurigo Nodularis. You're not alone. 37 People

    I have had P.N for a couple years now.

    The first time it got really bad, I went to the doctor and was prescribed steroids. They helped of course, but now, about a year or two later, it started to come back in the same spot. This time however, I had an ointment made from CBD's form a cannabis plant. (Yes, marijuana...
    Nicole11288 Nicole11288
    26-30, F
    1 Response May 3, 2015


    Doctors keep treating me for eczema and I'm not getting better.
    jimdim jimdim
    41-45, F
    1 Response Aug 24, 2013

    It appears I have gotten my PN under control.

    I know this will not work for everyone but it is working great for me. I take 1,000mg of L-LYSINE with 500mg of Vitamin C in the morning and again at night. I also purchased a L-LYSINE ointment which I apply to new bumps and ones that have encrusted 2-3 times a day. I...
    yorkieczar yorkieczar
    2 Responses May 20, 2015

    Getting Closer To Figuring Out PN

    Hi. I have had PN for seventeen years. I now have few sores, and a lot of lesions on my arms, particularly my left. I have been amazed at how ignorant and arrogant the dermatologists have been, including being told that I should see a psychiatrist when I finally asked for a...
    donabeth donabeth
    61-65, F
    1 Response Sep 7, 2013

    Found A Cure!

    I've had Prurigo Nodularis on my upper back for about 12 years. I have tried everything -- both over-the-counter and prescribed -- to no avail. A few weeks ago, someone told me about O'Keefe's Working Hands Cream. They said it was the best cure for eczema they had ever used...
    HeatherThyme HeatherThyme
    2 Responses Oct 1, 2012

    Found Great Improvement

    I have had prurigo nodularis for 20 years, most doctors told me it was my fault and if I just stopped scratching they would go away. Not true. I finally found a dermatologist in Fl. who prescribed for me an antibiotic which is specific for the skin. It is called Doryx (generic...
    marion888 marion888
    70+, F
    Jun 24, 2013

    I Really Wish This Wasnt Happening To Me

    I had the most prettiest skin ever. But now since 2005, i am so embarrassed. I cover up long sleeves and pants. I was finally diagnosed with Prurigo Nodularis in 2010. It took that long to know what was going on with me. Since 2009, I havent had luck with employment to have the...
    wishitwasntme wishitwasntme
    41-45, F
    2 Responses Jul 5, 2012

    Prurigo Nodularis Can Get Better

    I am a 68 year old male, retired, and have had prurigo nodularis for almost seven years.  In July of 2004, my dermatologist in Michigan misdiagnosed the rash on my legs as eczema and put me on a variety of topical ointments and prednisone, which had no effect. The 'rash' spread...
    Billis Billis
    66-70, M
    2 Responses Mar 24, 2011

    Prurigo Noduralis

    hello i have this really bad skin disease ,i never try something so iching as this and in Denmark the support to this is nothing ,i never felt so desperate talking to a doctor and she just stay there looking at me. It start for 1 year ago and more and more each day. i FEEL...
    smadsen smadsen
    3 Responses Nov 28, 2012
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