I Have Pseudotumor Cerebri

I was diagnosed 3 years ago. I felt like a hypochondriac prior to my diagnosis due to the onset of bizarre symptoms. Fast forward three years and here I am today with a VP shunt. My blessings: restored vision after being legally blind...

Hi im heather and I have ptc/iih. I am a happily married mama of 4 who loves Jesus. I was diagnosed in jan of 2012 and have since had 2surgeries. Optic nerve sheath fenestrations on both eyes.my last one 3wks ago. Im slowly learning to...

My story starts with a headache that began in May of 2007.  I thought it was stress related, and didn't give it a whole lot of thought for a month or so.  Sometimes i would get dizzy, light headed - have some funky vision...

i first diagnose with ptc when i was 13 years old.
i had a very painful headache and i couldnt see very good everythin was blurry.
i went to a doctor that said its migraine and gave me some pills that didnt help to the pain at all...

Well hey there everyone! My name is Erika and I was diagnosed with pseudotumorcerebri at the age of 20. It all started over Christmas break 2011, I was living with a family from my church near the college I go to so I could work. Every...

I was diagnosed at the age of 17 and have been living with this for 9 years now. In the begining I didn't realize what it really meant but after many ears and lots of research I have a better idea. I would like to hear others...

My name is Katelin and I have Pseudotumor Ceribri, I was first diganosed when I was 13-years-old. SInce finding relief after about a year of having it then it has been back twice. I am now on my third time with it.

It all started at a...

I had my second LP today. This experience was by far much better than my first LP. My opening pressure was at a 48 and they drained 40 ccs and brought me down to 8. My first LP was done by the radiology department at my hospital, this...

I will try to make it short since i was first diagnosed with pseudo tumor when i was 16 and i am now 37.  As the same as so many others, i was a teen it got further along with the headaches,vomiting,lose of vision before it was found...

Hi, my name is Gina. I was diagnosed with PTC almost 7 years ago. I have had 19 spinal taps, currently take Diamox and pain meds to get through most days. I had gastric bypass surgery 3 years ago and lost 175lbs...and although great for...

I am a 42 year old lady that was diagnosed after months of dizzy spells, vision issues, ear ringing, nausea, vomiting, slow to have an accurate thought, and crippling headaches!! I went to a neurologist who asked me if my headaches got...

Hi, my name is Erica, and I was diagnosed with PTC in January 2013 at the age of 31. I thought I had a severe case of the flu. I went to my dr to get checked and was sent home with a z pack. When I woke up the next morning, I had the...

I took my 6yr old daughter for her annual check up.  She is a skinny little thing who has always been in perfect health.  It was her pediatrician and his new resident.  The resident to her doc to check her...

I have had headaches for years to the point that I was actually used to having a headache almost everyday. About 2 months ago it started getting pretty bad but I was still working 50 hours a week on my feet all day I was used to...

Don't know anything about this. Any.advice will b helpful.

A few years ago, I experienced headaches; this was unusual because up until that point in time a rarely experienced headaches.  Then one day I started seeing "rings."  I later found out that these silvery-gray...

I am a 44 year old woman who was diagnosed with PTC in 1998.  At that time, I could not find much info about this disease, so I was happy to run across this site.  Since 1998 I have had 6 Lumbar Punctures all being positive...

Hello everybody, My name is Alexandra I'm 19. I was diagnosed with this illness almost 1year ago a few days before my 18TH birthday. This pass year has been a rollercoaster ride. I have had 3 surgeries not included a Laser eye surgery...

Hi.  This is an update from a previous experience I wrote.  Here goes.  I am Angel, and I am currently 21 years old, and on my "third bout" with PtC.  I was originally diagnosed with PtC when I was 13...

A year ago I had a severe migraine that lasted for two days.  I never get headaches so this was hard for me. After two days I had some severe head tremors,  numbness on the left side of my face, and vision problems.  I...