I Have Pulmonary Hypertension

Pulmonary Hypertension anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Pulmonary Hypertension. You're not alone. 5 People

    My condition is called Eisenmeinger syndrome.

    I am 28. I have PH. Was Dx when I was 4 with a heart condition called atrial ventricular septal defect. Basically, none of my valves grew together. Therefore I basically have 1 chamber. I was Dx with PH when I was 7. After I had died three times. I was told I wouldn't make it...
    Immaweirdone Immaweirdone
    26-30, F
    Nov 19, 2015

    Ph With Crossed Fingers And Prayers

    i just been diagnosed and right now on oxigen. i don't know how i got it or where. first, i was in the hospital with a problem of shorthoness of breath. there i find out i have copd. after returning home on low oxigen i find out by pulmonogist that i may have Ph. now on for...
    playfun playfun
    Mar 1, 2012

    Two More Days.

    So I am extremely nervous for Tuesday. That's when I go get another echo-cardiogram done to see how the PH has progressed. Two days after that, I start my senior year in high school. I am so nervous! When they tested my oxygen level and lung strength, it all came back perfect...
    ssluciano ssluciano
    18-21, F
    1 Response Aug 11, 2013
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