I Have Pycnodysostosis

A Pycnodysostosis anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Pycnodysostosis. You're not alone. 11 People


    caty1987 caty1987
    26-30, F
    Sep 27, 2014


    in my family 3 of us have A Pycnodysostosis and we already under gone some ORIF procedure for recovery from Fractures and we looking for some good orthopedic surgeons
    kknkumar1970 kknkumar1970
    46-50, M
    3 Responses Aug 18, 2013


    I ´m from chile and I have picnodysostosis, my e mail is kitrydepooh@hotmail.com
    caty1987 caty1987
    26-30, F
    2 Responses Aug 24, 2013

    hi:)ı am from turkey.

    ı have pycnodysostosis too.ı wonder who is have this illness.
    fatma97 fatma97
    18-21, F
    4 Responses Feb 5, 2014
More Stories