A Pycnodysostosis anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Pycnodysostosis. You're not alone.
ı have pycnodysostosis too.ı wonder who is have this illness.
I ´m from chile and I have picnodysostosis, my e mail is firstname.lastname@example.org
in my family 3 of us have A Pycnodysostosis and we already under gone some ORIF procedure for recovery from Fractures and we looking for some good orthopedic surgeons