I Have Pyoderma Gangrenosum

A Pyoderma Gangrenosum anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Pyoderma Gangrenosum. You're not alone. 42 People

    Aunt Of PG Patient

    My 22 year old niece has been dealing with PG for over a year and half. She has had many surgeries to relieve pressure and infection. Is on constant pain meds. My question to everyone is: Are you able to function in life with this disease? Do you work, drive, go to school...
    teetaa7 teetaa7
    56-60
    3 Responses Jul 16, 2013

    Newly Diagnosed

    I am newly diagnosed with PG. I had been treated by many years (3-5) with compression wraps by my PCP and a would specialist. I believe I was misdiagnosed. I now have a new (and most wonderful) Dr who treats me, the entire patient, as well as my wound. I have been very...
    beckybear beckybear
    61-65
    5 Responses Apr 23, 2013

    Has anyone looked in to

    or been accepted into the phase III clinical trial for treating PG with Gevokizumab? I desperately want to be admitted into this trial and would like to know what any other person's experience has been. They are only enrolling 58 patients. ???
    michelem951 michelem951
    41-45, F
    1 Response Aug 5, 2015

    My Daughter

    Hi Im wondering if someone out there can help us.My daughter was diagnosed with chrons in grade 8 she is 21 now. She has had her colon removed her rectom just this past year. She has phaderma on her legs and has had for almost 2 yrs now any suggestions on how to make it better.
    dfila38 dfila38
    46-50
    2 Responses Aug 4, 2011
    bevlucy bevlucy
    70+, M
    Aug 10, 2015

    Recently Diagnosed With PG

    I dont know if it's related, but last summer, ended up in the hospital, having bled out, don't remember anything from that. What all took place I believe was possibly the start of this problem. Anyway, this whole past year I have had issues with healing since then, catching...
    onepetcow onepetcow
    56-60, F
    2 Responses Aug 13, 2013

    Pyoderma Gangrenosum Of The Breast

    I have PSPG after having breast implants replaced and am still on steroid treatment. The side effects are almosst as bad as the condition and I am suffering severe depression while tapering down the steroids. I am looking for some sort of support group to help me deal with the...
    danaeok danaeok
    56-60, F
    3 Responses Aug 5, 2011

    I started noticing tiny bumps all over my body

    sometime in 2010, I thought I had chicken box. In fact the doctor confirmed it, however It all cleared up after a week. About six months later I had another severe breakout , this time around I saw a dermatologist and he did a biopsy of which the result was 'Chronic non specific...
    banksojut banksojut
    36-40, M
    1 Response Mar 18, 2015

    Flaring Again

    I've been living with Rheumatoid Arthritis since the late 80's. In 2001 I was given the additional diagnosis of PG. It started as a lesion on the outside of my left ankle. I thought it was just a blister from a new pair of sandals that had gotten infected. It wouldn't heal and it...
    LisaGay LisaGay
    41-45, F
    2 Responses Apr 27, 2012

    My Story

    It started with a few cuts not healing, or healing very slow and always getting infected. Then a scrape on my thumb went bad very quick, I was treated with oral antibios, and finally it did heal. Next a few mths later was a cut on middle finger-same hand, infection spread very...
    staceyhartt staceyhartt
    36-40, F
    2 Responses Apr 18, 2012
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