I Have Pyoderma Gangrenosum

A Pyoderma Gangrenosum anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Pyoderma Gangrenosum. You're not alone. 42 People

    Recently Diagnosed With PG

    I dont know if it's related, but last summer, ended up in the hospital, having bled out, don't remember anything from that. What all took place I believe was possibly the start of this problem. Anyway, this whole past year I have had issues with healing since then, catching...
    onepetcow onepetcow
    56-60, F
    2 Responses Aug 13, 2013

    My Daughter

    Hi Im wondering if someone out there can help us.My daughter was diagnosed with chrons in grade 8 she is 21 now. She has had her colon removed her rectom just this past year. She has phaderma on her legs and has had for almost 2 yrs now any suggestions on how to make it better.
    dfila38 dfila38
    2 Responses Aug 4, 2011

    Flaring Again

    I've been living with Rheumatoid Arthritis since the late 80's. In 2001 I was given the additional diagnosis of PG. It started as a lesion on the outside of my left ankle. I thought it was just a blister from a new pair of sandals that had gotten infected. It wouldn't heal and it...
    LisaGay LisaGay
    41-45, F
    2 Responses Apr 27, 2012
    bevlucy bevlucy
    70+, M
    Aug 10, 2015

    Has anyone looked in to

    or been accepted into the phase III clinical trial for treating PG with Gevokizumab? I desperately want to be admitted into this trial and would like to know what any other person's experience has been. They are only enrolling 58 patients. ???
    michelem951 michelem951
    46-50, F
    1 Response Aug 5, 2015

    Newly Diagnosed

    I am newly diagnosed with PG. I had been treated by many years (3-5) with compression wraps by my PCP and a would specialist. I believe I was misdiagnosed. I now have a new (and most wonderful) Dr who treats me, the entire patient, as well as my wound. I have been very...
    beckybear beckybear
    5 Responses Apr 23, 2013

    Pyoderma Gangrenosum Of The Breast

    I have PSPG after having breast implants replaced and am still on steroid treatment. The side effects are almosst as bad as the condition and I am suffering severe depression while tapering down the steroids. I am looking for some sort of support group to help me deal with the...
    danaeok danaeok
    56-60, F
    3 Responses Aug 5, 2011

    I started noticing tiny bumps all over my body

    sometime in 2010, I thought I had chicken box. In fact the doctor confirmed it, however It all cleared up after a week. About six months later I had another severe breakout , this time around I saw a dermatologist and he did a biopsy of which the result was 'Chronic non specific...
    banksojut banksojut
    36-40, M
    1 Response Mar 18, 2015

    My Story

    It started with a few cuts not healing, or healing very slow and always getting infected. Then a scrape on my thumb went bad very quick, I was treated with oral antibios, and finally it did heal. Next a few mths later was a cut on middle finger-same hand, infection spread very...
    staceyhartt staceyhartt
    36-40, F
    2 Responses Apr 18, 2012

    Aunt Of PG Patient

    My 22 year old niece has been dealing with PG for over a year and half. She has had many surgeries to relieve pressure and infection. Is on constant pain meds. My question to everyone is: Are you able to function in life with this disease? Do you work, drive, go to school...
    teetaa7 teetaa7
    3 Responses Jul 16, 2013
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