I Have Pyropoikilocytosis

A Pyropoikilocytosis anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Pyropoikilocytosis. You're not alone. 3 People

    My Baby Has Hereditary Pyropoikilocytosis.

     Almost two years ago now, my little girl was born with this rare blood disorder. To this day no one can really answer my questions, nor share their experience with this disorder. I am posting our story in hopes to reach someone out there with this disorder or with...
    koolaidmom koolaidmom
    3 Responses Sep 29, 2008
More Stories