I Have Ramsay Hunt Syndrome

A Ramsay Hunt Syndrome anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Ramsay Hunt Syndrome. You're not alone. 28 People

    Recently Diagonosed Rhs..any Advice...i'm Miserable!!!

    I went to the Emergency Room back in January and was misdiagnosed with an ear infection...I was able to somewhat function, Drive, work, etc untill very recently I went to my GP and she told me I Have RHS. She found shingles in my ear, prescribed me steriods, anti virals and...
    monicanivens monicanivens
    26-30
    Mar 2, 2012

    Ramsey Hunt Cougar

    i am shocked at my doctors who have told me its nothing it will get better,  there is nothing wrong with your tongue.  thanks to an aquaintance i was told of this disease and did a lot of reading and ready to go and rip my doctors head off i can tell you.    i live in Orbost...
    lorrainerobertson2 lorrainerobertson2
    51-55
    3 Responses Jun 5, 2011

    Secuelas Del Síndrome De Ramsay-hunt

    Hola a todos: Primero les pido disculpas por escribir en español, pueden usar Google Translator para entender. Les cuento que en el año 2005 fui diagnosticado con una Bruselosis, que me dejó a muy mal traer, perdí la audición de mi oído derecho totalmente y el 96% de mi o...
    sladordrav sladordrav
    41-45, M
    1 Response Dec 24, 2012

    Ramsay Hunt Syndrome Life

    I've had what is finally diagnosed as Chronic Ramsay Hunt Syndrome (ll) for 22 years. Maybe more. It is a very challenging disease. Not many people have ever heard of it...Doctors included. It is painful and debilitating.
    windrivermaiden windrivermaiden
    41-45
    5 Responses Mar 9, 2011

    Ramsay Hunt Syndrome.

    Abouth three months ago I had a lot of pain in my mouth, I came out off the Night shift, went to bed and woke up a few hour later with halve my face paralised. At first it was diagnosed as Bells Palsy, but now it is Ramsay Hunt. It changes my way of life. I still have to work for...
    renzey renzey
    61-65, M
    2 Responses Oct 27, 2011

    The worse thing is the paralysis

    and not being able to be expressive anymore with my face. I used to have a lovely smile and now it's gone. I hope that it's temporary...It's been about a week and the paralysis is worse.
    istajam istajam
    41-45, F
    3 Responses Sep 30, 2014

    The Rhs Rollercoaster

    A healthy 27 year old I'd just moved to London from Australia. I was working long hours at a pub, partying a little too hard and took a one week nanny job in Switzerland even though I was pretty run down and tired. I went swimming in the Rhine river and on my return to London had...
    cjuk2010 cjuk2010
    26-30
    3 Responses Apr 10, 2012

    It has been seven weeks

    since I woke with severe ear pain. I had a few weeks of dizziness and what seem to feel like water in my ear before that. I went to ER later that day because my jaw area went numb, and my left eye felt heavy and tired. The ER doctor asked about bumps on my ear, and never knowing...
    ksrooney ksrooney
    56-60, F
    2 Responses Jul 1, 2014

    Newley Diagnosed Rhs

    ...so I'm 24 and feel awful. I was diagnosed with shingles lastweek, and then started to experience lots of things I thought I was making up. Tingling scalp, one side of my throat was "not there" hard to swallow. Pain in my ear neck and jaw all on the left side. Eye dryness and...
    Emmarawlings46 Emmarawlings46
    22-25
    4 Responses Jun 26, 2011

    A Year On And Finally Diagnosed Any Advice!

    I am a 22 year old student who has now been 'officially' diagnosed with Ramsay Hunt Syndrome and I don't really know where to start or how to start moving forward. About a year ago I was at the time diagnosed with Bell's Palsy however I kept having more and more symptoms that...
    LittleContender LittleContender
    22-25, F
    5 Responses May 12, 2013

    WOW.... Reading this about RHS2 is

    so me. I was 34yrs old when I was diagnosed. I did a steroid pack for my allergies and by the 3rd day bells palsy took the face. Then by the 4th day it took the left side of the body. They found it through my spinal tap. (I was 8yrs old with my 1st case of palsy and 3x's again...
    Tonya73 Tonya73
    41-45, F
    May 2, 2014

    Aimee's Ramsey Hunt Story

    In February 2012, I really started not to feel myself, just feeling abit down and couldn't seem to snap out of it! This was really not like me, I kept brushing it off but I just couldn't seem to shift it. Eventually I got an ear infection so I nipped off to the doctors and got...
    Aimeemee28 Aimeemee28
    26-30, F
    1 Response Nov 13, 2013

    Related Experiences

    My attacks started 6yrs ago,woke up one morning and felt really sick,like a virus but it kept coming back every other day. I feel it was triggered by stress and a tender tum as I...
    SoothingSoozie SoothingSoozie
    41-45, F
    1 Response Apr 19
    My 3rd grader has struggled in school from Headstart up to this very point. I noticed delays in his speech right before two years old. I expressed my concerns to his pediatrician...
    Vette601 Vette601
    36-40, F
    Apr 19
    Well my story is a lot like some of yours, I started young on comet and sometimes dirt from my backyard... I like to eat things with gritty texture for most of my childhood and...
    BadMomKira BadMomKira
    22-25, F
    1 Response Apr 19
    Hey.. My name is Thomas and i have Poland's syndome. I was born in 1970 and didn't know what it even was til i was around 28. I had a really hard time growing up. Kids can be very...
    tommymac70 tommymac70
    41-45, M
    Apr 17
    My symptoms of WPW started about the time that I was in the fifth grade. One day I was home and I felt really dizzy, to the point that I had turned white all over and felt as if I...
    adrienleigh adrienleigh
    13-15, F
    Apr 17
    Hi, I was just diagnosed with SMA Syndrome after 10 years of my stomach being sick and multiple hospitalizations for being unable to eat or drink. I currently have a j tube after...
    jaclynleigh6 jaclynleigh6
    22-25, F
    Apr 17
    I am a 23 year old female who suffers from Poland's Syndrome. It's actually good to know there are some people out there who can relate to all the daily problems PS creates. We...
    uocgreece uocgreece
    22-25, F
    Apr 17
    I am 19 now, almost 20... I haven't been on here for a few years, but I think I'll give it a go. My parents and I thought I had Chronic Fatigue Syndrome for 4 years before...
    Invisibleninja12 Invisibleninja12
    18-21, F
    Apr 17
    A description of today's episode: I went home from work vomiting today. This time I was actually driving and puking at one point on my way home. Thanks to 'Murica for plastic...
    Doomflower Doomflower
    31-35, F
    3 Responses Apr 16
    HECK NO! Cant you just leave the animals be in peace? You hunters are like terrorists. Terrorizing the innocent animal, stripping them away from their families! This is their...
    XXLovelyPoisonXX XXLovelyPoisonXX
    22-25, F
    7 Responses Apr 14
    Hello I'm Michelle but call me kris.I am from the USA.I suffer from bipolar as well as anxiety.
    deleted deleted
    26-30
    2 Responses Apr 14
    Hi my name is Sherrie and i was diagnosed as a teenager. I am 58 years old now and i have whst i would call a good life. I am married for 30 years and we have adopted 3 children...
    Sherrie50 Sherrie50
    56-60
    Apr 13
    when I'm in my hybrid beast form us pack goes hunting at night. we only hunt animals. we try not to harm humans but if they **** us off or attack us then we will attack back. I...
    gedwmandy gedwmandy
    18-21, F
    Apr 12
    I'm pretty sure being aspie has.it has its ups and downs.It messes up relationships so badly for me.
    deleted deleted
    26-30
    3 Responses Apr 11
    Can you help me become a hunter? Hi, I'm student and I want to become real hunter. Maybe you think, I just want to be "cool" but I really want to make a difference, save people...
    lakny lakny
    16-17, F
    2 Responses Apr 11
    Chubs and Nubs were supposed to stay in our garage, to control the mouse population. Then we decided to move, but they didn't like their new surroundings, so they became house cats...
    Boshie Boshie
    66-70, F
    Apr 10
    This is my story. It is long, but I hope you all can relate to it. A year ago I went on a catholic retreat called Kairos and I gave a speech on my ideals and how to find them and...
    cmom96 cmom96
    18-21, F
    Apr 9
    So... I make straight A's, never get in trouble, win school awards and awards in general. I'm on a scholarship team and I'm eligible for many other ones... I do all the house work...
    deleted deleted
    26-30
    1 Response Apr 9
    I'm so hurt that I can't even read all the experiences because my tears are in the way
    deleted deleted
    26-30
    2 Responses Apr 8
    My boyfriend hasn't been diagnosed or anything, but I was watching a programme about Asberger's and something resonated with me. If he does have it, I'm sure it's only mild, but it...
    anniechan anniechan
    18-21, F
    2 Responses Apr 7
    I was born with PruneBelly Syndrome (lack of abdominal muscles) I had some corrective surgery at age three and the dr cut through and removed my navel, so I don't really remember...
    Jmacaroon Jmacaroon
    51-55, F
    Apr 7
    30 reasons i love my Aspie (or just a individual person wich i was lucky to met) This is my story, and Just mine. U dont need to relate. Because every person is different, with...
    deleted deleted
    26-30
    Apr 6
    i hate that i can't communicate effectively. i know that my husband gets frustrated to the point of disgust. i just assume not talk to anyone. i have chronic pain and fatigue to...
    LITVET LITVET
    41-45, F
    1 Response Apr 5
    Hello,My name is Jon, that is all you need to know about me really, I am interested in becoming a "Hunter" if that's what you want to call it. I have browsed "magic" and "occult...
    JonHunter832773 JonHunter832773
    18-21, M
    1 Response Apr 2
    I hunt and banish evil beings with the help of the good ones! Anybody know some places I can go where paranormal/supernatural activity is high?
    Greendragonwolfkin Greendragonwolfkin
    16-17, M
    2 Responses Apr 1
    I'm a 19 year old Male and I was diagnosed with wpw when I was 15 years old for 4 years I have basically ignored my symptoms but in recent years it has become increasingly...
    faiquzaki faiquzaki
    18-21, M
    Mar 30
    Most of what I've heard of people with Asperger's Syndrome or autism indicates lack of affection. How common is it for children or adults with ASD to want a lot of hugs? I'm...
    GreenButtercup GreenButtercup
    36-40, F
    Mar 30
    How do I miss thee, let me counts the way hmph (smiling to myself) Dare I say its too much, or maybe not enough. My heart compels me to miss you until the end of time; every...
    ollifer ollifer
    36-40, F
    Mar 29
    I'm endlessly sick, I have chills but I'm still to anxious to call in sick tomorrow incase they hate me, I'm the only marketing executive on right now.
    Imnotok2 Imnotok2
    18-21, F
    Mar 29
    I had a dream where I Was a fire man and we had about 1000 kids in a firetruck which then crashes when we're in the mountains, only to have hundreds of kids fall into a pit of...
    Thtguywitglasses Thtguywitglasses
    13-15, M
    Mar 29
    I have a place in the woods,where my soul goes when its tired.There's a box made of old lumber.where I sit to rest,and a deskwhere I writeapologies and amends.A tiny pond at the...
    ManOnTheMoon68 ManOnTheMoon68
    46-50, M
    2 Responses Mar 29
    Kind of random, but I haven't had my cup today, maybe that's why I'm thinking about it. I typically work early mornings, like 5 in the morning early. So, I get my typical order at...
    deleted deleted
    26-30
    Mar 29
    does anyone have kids and have been dealing with this the whole time? how do you handle taking care of your child with the possibility of an attack lurking around every corner? how...
    stallins stallins
    31-35, T
    Mar 29
    I think I have BDD but not sure I saw a character from a TV show say and do the exact same thing as I do. While everybody who watches the show was asking "why is he not eating but...
    PositiveStateOfMind PositiveStateOfMind
    22-25, M
    Mar 29
    45. EP is coming to an end and I still haven't found my dear friend "michalb". I don't know if you still use this site but if you do please do get in touch with me before destiny...
    UnicornsOfHope UnicornsOfHope
    26-30
    Mar 29
    How does one become a hunter? I've been having this feeling that I don't want a normal, 9-5 job lifestyle, I want to do something more and I want to save people. Please message me...
    mrix mrix
    18-21, F
    Mar 29
    ...Which I love to have pulled;)/~
    RebelOfSouthernEnvy396 RebelOfSouthernEnvy396
    41-45, F
    4 Responses Mar 29
    1- Travel somewhere where the culture is drastically different to the one where I live 2- Backpack across Europe for a year and meet fun, diverse people on the way 3- Go skinny...
    SkyouInSpace SkyouInSpace
    16-17, F
    4 Responses Mar 29
    Never lie, if you're married never have extra marital affair,if you're single never fall for some who is married. It may b fun for while but for your own happiness you're...
    deleted deleted
    26-30
    1 Response Mar 29
    Never lie, if you're married never have extra marital affair,if you're single never fall for some who is married. It may b fun for while but for your own happiness you're...
    deleted deleted
    26-30
    Mar 29
    EP is shutting down?!! Noooo! I know I haven't posted much up for the last few months due to being super busy with work and remote family issues but I don't really want to say...
    deleted deleted
    26-30
    Mar 29
    Forgot to post this dream and it was pretty cool. It started out I was in Breaking Bad. Walt was about to go to this shootout with a bunch of bad guys and skylar was worried about...
    Hush92 Hush92
    18-21, F
    Mar 29
    Please someone help me! Am my husband an Asperger? I married for ten years. My husband is an honest, quiet man, responsible and with good temper. However, the worst part is I can...
    ChuChu256 ChuChu256
    36-40, F
    3 Responses Mar 29
    This is a second marriage for my husband. We both have two children from previous relationships and one daughter together. My husband was able to adopt my two kids and we have 50...
    confidenz confidenz
    31-35, F
    Mar 29
    My fiancé and I have been trying to since July of last year I pray I can give him the little girl he wants and deserves he has two boys already :)
    serendipity786 serendipity786
    26-30, F
    1 Response Mar 29
    I have a hard time explaining to people that I have adhd but in not in the slightest hyperactive. My ability to focus and comprehend is terrible and that's why im diagnosed with...
    cassmar10 cassmar10
    18-21, F
    1 Response Mar 29
    well here is how my mind would process it that information if someone said they had a crush on me. I am a girl in RL but changed my gender to male out of boredom. 1.They are...
    nostalkerswelcome nostalkerswelcome
    22-25
    Mar 29
    But I've also learned things from other places too ...😕 This is why I'm concerned about the photo albums I have on here ...😳 Some abandoned websites go on for months or even...
    BSTisapain BSTisapain
    46-50, F
    7 Responses Mar 29
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