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I Have Ramsay Hunt Syndrome

A Ramsay Hunt Syndrome anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Ramsay Hunt Syndrome. You're not alone. 29 People

    Recently Diagonosed Rhs..any Advice...i'm Miserable!!!

    I went to the Emergency Room back in January and was misdiagnosed with an ear infection...I was able to somewhat function, Drive, work, etc untill very recently I went to my GP and she told me I Have RHS. She found shingles in my ear, prescribed me steriods, anti virals and...
    monicanivens monicanivens 26-30 Mar 2, 2012

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    Aimee's Ramsey Hunt Story

    In February 2012, I really started not to feel myself, just feeling abit down and couldn't seem to snap out of it! This was really not like me, I kept brushing it off but I just couldn't seem to shift it. Eventually I got an ear infection so I nipped off to the doctors and got...
    Aimeemee28 Aimeemee28 26-30, F 1 Response Nov 13, 2013

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    Secuelas Del Síndrome De Ramsay-hunt

    Hola a todos: Primero les pido disculpas por escribir en español, pueden usar Google Translator para entender. Les cuento que en el año 2005 fui diagnosticado con una Bruselosis, que me dejó a muy mal traer, perdí la audición de mi oído derecho totalmente y el 96% de mi o...
    sladordrav sladordrav 41-45, M 1 Response Dec 24, 2012

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    Ramsay Hunt Syndrome Life

    I've had what is finally diagnosed as Chronic Ramsay Hunt Syndrome (ll) for 22 years. Maybe more. It is a very challenging disease. Not many people have ever heard of it...Doctors included. It is painful and debilitating.
    windrivermaiden windrivermaiden 41-45 5 Responses Mar 9, 2011

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    A Year On And Finally Diagnosed Any Advice!

    I am a 22 year old student who has now been 'officially' diagnosed with Ramsay Hunt Syndrome and I don't really know where to start or how to start moving forward. About a year ago I was at the time diagnosed with Bell's Palsy however I kept having more and more symptoms that...
    LittleContender LittleContender 22-25, F 5 Responses May 12, 2013

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    The worse thing is the paralysis

    and not being able to be expressive anymore with my face. I used to have a lovely smile and now it's gone. I hope that it's temporary...It's been about a week and the paralysis is worse.
    istajam istajam 41-45, F 3 Responses Sep 30, 2014

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    WOW.... Reading this about RHS2 is

    so me. I was 34yrs old when I was diagnosed. I did a steroid pack for my allergies and by the 3rd day bells palsy took the face. Then by the 4th day it took the left side of the body. They found it through my spinal tap. (I was 8yrs old with my 1st case of palsy and 3x's again...
    Tonya73 Tonya73 41-45, F May 2, 2014

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    Ramsay Hunt Syndrome.

    Abouth three months ago I had a lot of pain in my mouth, I came out off the Night shift, went to bed and woke up a few hour later with halve my face paralised. At first it was diagnosed as Bells Palsy, but now it is Ramsay Hunt. It changes my way of life. I still have to work for...
    renzey renzey 61-65, M 2 Responses Oct 27, 2011

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    It has been seven weeks

    since I woke with severe ear pain. I had a few weeks of dizziness and what seem to feel like water in my ear before that. I went to ER later that day because my jaw area went numb, and my left eye felt heavy and tired. The ER doctor asked about bumps on my ear, and never knowing...
    ksrooney ksrooney 56-60, F 2 Responses Jul 1, 2014

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    Newley Diagnosed Rhs

    ...so I'm 24 and feel awful. I was diagnosed with shingles lastweek, and then started to experience lots of things I thought I was making up. Tingling scalp, one side of my throat was "not there" hard to swallow. Pain in my ear neck and jaw all on the left side. Eye dryness and...
    Emmarawlings46 Emmarawlings46 22-25 4 Responses Jun 26, 2011

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    Ramsey Hunt Cougar

    i am shocked at my doctors who have told me its nothing it will get better,  there is nothing wrong with your tongue.  thanks to an aquaintance i was told of this disease and did a lot of reading and ready to go and rip my doctors head off i can tell you.    i live in Orbost...
    lorrainerobertson2 lorrainerobertson2 51-55 3 Responses Jun 5, 2011

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    The Rhs Rollercoaster

    A healthy 27 year old I'd just moved to London from Australia. I was working long hours at a pub, partying a little too hard and took a one week nanny job in Switzerland even though I was pretty run down and tired. I went swimming in the Rhine river and on my return to London had...
    cjuk2010 cjuk2010 26-30 3 Responses Apr 10, 2012

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    I have autism and it feels to me like im in a whole different universe not in a good way though and everyday im always fighting myself not accepting change and just bein self...
    aaronpayne aaronpayne 22-25, M 18 hrs ago

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    My memories of 5th grade are for the most part negative. I started at a new school when I was in 5th grade and I was 10 years old at the time and wore dresses and white pantyhose...
    allisonhashope allisonhashope 13-15, F 18 hrs ago

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    I getting my hunters safety course certificate today
    wolfie2191 wolfie2191 22-25, M 1 day ago

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    I've always been much better than most men at multitasking, I wonder whether that is due to the Klinefelter Syndrome?
    KSPerson KSPerson 46-50, M 1 Response 1 day ago

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    I've never heard of nor seen any Hunter that specializes in supernatural hunting. I'm not going to say they arnt real. but I would like to see for myself that they are. I'm a...
    shadewolf7 shadewolf7 18-21, M 2 Responses 1 day ago

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    how is it with someone with aspergers syndrome? I have it. I had one serious relationship. I wonder if its very miserable being with me. since she cheated and my other short...
    kittyanthony kittyanthony 22-25, M 1 Response 2 days ago

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    Well I'm finally ready to do some hardcore hunting instead of just menacing vermin with my throwing hatchets. Last night hubby took me to the sporting store to see about getting my...
    NerdModeActivate NerdModeActivate 31-35, F 1 Response 2 days ago

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    I was just recently diagnosed with fap - gardeners syndrome .. It's very scary at 17 having to deal with this , and since it is as rare as it is I have no one to share it with or...
    Escapeyourthoughts32 Escapeyourthoughts32 18-21 2 Responses 3 days ago

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    I was diagnosed when I was 13. And I've gotten worse and worse. It's so exhausting even getting to the toilet. Headaches every day, noise just goes right through me. My muscles...
    MissRainDrops97 MissRainDrops97 18-21, F 1 Response 3 days ago

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    I start a project. When it is almost through, i think of a better project and ignore the current and the cycle continues.
    Timmoh Timmoh 16-17, M 4 days ago

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    I am a 32-year-old male. I got sick with the stomach flu at age 12 and was left with rumination syndrome, or something close. Within a couple of weeks of getting sick, I...
    nthgmvs nthgmvs 31-35, M 4 days ago

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    Been house hunting today with my boyfriend and I think I've found the one!😍😍😍😍
    Lonelyhannah18 Lonelyhannah18 18-21, F 1 Response 4 days ago

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    I'm super hype for Monster Hunter X, just kind of wish it was for a home console instead of 3DS
    ZscorpioFG ZscorpioFG 18-21, M 5 days ago

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    Hi im 16 and i've had rumination syndrome for 2 years now. When it first started happening for what i can remember it was only tiny bits that would come back up after i ate and...
    brookechambers2 brookechambers2 16-17, F 6 days ago

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    Anyone wanna play some monster hunter 4 ultimate? I'm open to anything just message me and we can play. I'm hr 600+
    Lilyian Lilyian 18-21, F 2 Responses 6 days ago

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    Hey I am 15 and have had rumination syndrome/disorder for almost a year now. I hid it from my parents for 4 months because I was so horribly ashamed about it. I thought that it was...
    renee2018 renee2018 13-15, F Aug 21

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    I have aspergers, mood disorder and depression when life is hard I feel that nobody cares I exist and I eat and write on here and play Rachel plattens fight song or look at my...
    FattyWithAttitude FattyWithAttitude 13-15, F Aug 21

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    I am an experienced Hunter and if anyone needs anything please contact me, I will be more than willing to help
    MajoraCasCat MajoraCasCat 16-17, F 1 Response Aug 21

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    I recently found out I have ORS and will need another suregy (14th since I was 19) to remove the remnant and clean up the cysts and tumors that have grown since the original...
    Deena76 Deena76 36-40, F Aug 18

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    any hunters in ireland , looking for help
    Callum100 Callum100 18-21, M 1 Response Aug 17

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    I might have AS. Any tips on how to manage it so as to avoid hurting people around me more (my spouse and family)?
    LolaHaze9 LolaHaze9 22-25, F Aug 17

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    Do you guys only hunt evil supernaturals that harm people? Or also dragon shifters, Nekos, Werewolves(not lycans), werecats, Angels( people that use wing spells), and everything...
    Diyani0537 Diyani0537 13-15, F 7 Responses Aug 16

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    I really need your help, I know you all are strangers but please... I think I have aspergers, the things I do in my daily life isn't "normal" to others. first off hi, I'm Andrew...
    deleted deleted 26-30 3 Responses Aug 16

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    none of you actually hunt do you ,i mean it's just a tv show lol ,is this a joke or what ,so confused reading this page right now
    Callum100 Callum100 18-21, M 2 Responses Aug 16

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    Any hunters in Arkansas? Trying to get my name out to everyone. I'm an open contact. Message me as you need help.
    evermarity evermarity 18-21, M 2 Responses Aug 15

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    Can someone tell me what cvs is and explain what happens when you u have it
    CelticDragon561 CelticDragon561 51-55, M 1 Response Aug 15

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    Cvs cyclic vomiting syndrome is something I have and it sucks so much! Is there a way to add this is the category??
    deleted deleted 26-30 1 Response Aug 14

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    After 15 months FINALLY I have an answer. My symptoms were severe leg edema that turned into pitting edema swollen arms swollen hands and fingers with the curvature of my fingers...
    wandawoof2015 wandawoof2015 51-55, F 2 Responses Aug 13

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    My 1 year old son was diagnosed last month with Williams Syndrome. It is a genetic disorder caused by a deletion of 26 genes on the long arm of chromosome 7. We found out after he...
    cthuluwhovian cthuluwhovian 22-25, F Aug 13

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