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I Have Ramsay Hunt Syndrome

A Ramsay Hunt Syndrome anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Ramsay Hunt Syndrome. You're not alone. 29 People

    WOW.... Reading this about RHS2 is

    so me. I was 34yrs old when I was diagnosed. I did a steroid pack for my allergies and by the 3rd day bells palsy took the face. Then by the 4th day it took the left side of the body. They found it through my spinal tap. (I was 8yrs old with my 1st case of palsy and 3x's again...
    Tonya73 Tonya73 41-45, F May 2, 2014

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    Ramsay Hunt Syndrome.

    Abouth three months ago I had a lot of pain in my mouth, I came out off the Night shift, went to bed and woke up a few hour later with halve my face paralised. At first it was diagnosed as Bells Palsy, but now it is Ramsay Hunt. It changes my way of life. I still have to work for...
    renzey renzey 61-65, M 2 Responses Oct 27, 2011

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    Ramsay Hunt Syndrome Life

    I've had what is finally diagnosed as Chronic Ramsay Hunt Syndrome (ll) for 22 years. Maybe more. It is a very challenging disease. Not many people have ever heard of it...Doctors included. It is painful and debilitating.
    windrivermaiden windrivermaiden 41-45 5 Responses Mar 9, 2011

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    Newley Diagnosed Rhs

    ...so I'm 24 and feel awful. I was diagnosed with shingles lastweek, and then started to experience lots of things I thought I was making up. Tingling scalp, one side of my throat was "not there" hard to swallow. Pain in my ear neck and jaw all on the left side. Eye dryness and...
    Emmarawlings46 Emmarawlings46 22-25 4 Responses Jun 26, 2011

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    Secuelas Del Síndrome De Ramsay-hunt

    Hola a todos: Primero les pido disculpas por escribir en español, pueden usar Google Translator para entender. Les cuento que en el año 2005 fui diagnosticado con una Bruselosis, que me dejó a muy mal traer, perdí la audición de mi oído derecho totalmente y el 96% de mi o...
    sladordrav sladordrav 41-45, M 1 Response Dec 24, 2012

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    The Rhs Rollercoaster

    A healthy 27 year old I'd just moved to London from Australia. I was working long hours at a pub, partying a little too hard and took a one week nanny job in Switzerland even though I was pretty run down and tired. I went swimming in the Rhine river and on my return to London had...
    cjuk2010 cjuk2010 26-30 3 Responses Apr 10, 2012

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    It has been seven weeks

    since I woke with severe ear pain. I had a few weeks of dizziness and what seem to feel like water in my ear before that. I went to ER later that day because my jaw area went numb, and my left eye felt heavy and tired. The ER doctor asked about bumps on my ear, and never knowing...
    ksrooney ksrooney 56-60, F 2 Responses Jul 1, 2014

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    Ramsey Hunt Cougar

    i am shocked at my doctors who have told me its nothing it will get better,  there is nothing wrong with your tongue.  thanks to an aquaintance i was told of this disease and did a lot of reading and ready to go and rip my doctors head off i can tell you.    i live in Orbost...
    lorrainerobertson2 lorrainerobertson2 51-55 3 Responses Jun 5, 2011

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    The worse thing is the paralysis

    and not being able to be expressive anymore with my face. I used to have a lovely smile and now it's gone. I hope that it's temporary...It's been about a week and the paralysis is worse.
    istajam istajam 41-45, F 3 Responses Sep 30, 2014

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    Recently Diagonosed Rhs..any Advice...i'm Miserable!!!

    I went to the Emergency Room back in January and was misdiagnosed with an ear infection...I was able to somewhat function, Drive, work, etc untill very recently I went to my GP and she told me I Have RHS. She found shingles in my ear, prescribed me steriods, anti virals and...
    monicanivens monicanivens 26-30 Mar 2, 2012

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    A Year On And Finally Diagnosed Any Advice!

    I am a 22 year old student who has now been 'officially' diagnosed with Ramsay Hunt Syndrome and I don't really know where to start or how to start moving forward. About a year ago I was at the time diagnosed with Bell's Palsy however I kept having more and more symptoms that...
    LittleContender LittleContender 22-25, F 5 Responses May 12, 2013

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    Aimee's Ramsey Hunt Story

    In February 2012, I really started not to feel myself, just feeling abit down and couldn't seem to snap out of it! This was really not like me, I kept brushing it off but I just couldn't seem to shift it. Eventually I got an ear infection so I nipped off to the doctors and got...
    Aimeemee28 Aimeemee28 26-30, F 1 Response Nov 13, 2013

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    I have klinefelters syndrome abd always desire to become wife or something! Finally i accepted my feeling and to be femboy or sissy in 40 age!
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    ExtrovertedAspie ExtrovertedAspie 31-35, M 3 days ago

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    WALTER PALMER, a dentist in MN, paid $55,000 to illegally lure a well known, collared, protected lion from a game reserve in Zimbabwe. This lion was the mascot of the reserve and...
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    I was diagnosed with PTS almost 3 years ago after undergoing surgery to remove a bone spur. I still don’t have full use of my arm and still suffer pain, but have learned what...
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    I have been hunting since I was very young. Probably around 5 years old. Mostly bird hunting and some deer hunting back then with my father. I have learned to have a real love...
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    jacquelinejones jacquelinejones 46-50 1 Response 6 days ago

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    I need help understanding this. I'm very new to this hunting thing and my knowledge on demons is very limited. I would like if an experienced demon hunter would explain to me all...
    FS196 FS196 16-17, F 3 Responses 6 days ago

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    It's been a while since I've been on here. Some of you may know me, most of you probably will not. Before I issue this warning I would like to recap what led up to my discovery...
    kirkman1990 kirkman1990 18-21, M 2 Responses a week ago

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    Phew!!! Major dramas in a group I help admin on Facebook. (Hostile takeover and rescue attempts for a group of 20 000 aspies) I am going to have a busy couple of days. What with...
    jacquelinejones jacquelinejones 46-50 1 Response a week ago

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    I do. However, I constantly talk to myself, act out scenes and think negative. It's ruining my life and it's decreasing my time to practice drawing.
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    They yell at you that you're not normal. That you always **** things up. You leave to your room, crying. You overhear them in the other room: What did we do wrong? How could we not...
    EurydiceKallos EurydiceKallos 18-21, F 8 Responses Jul 23

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    my boss had a good point this label and every other label that people are diagnosed with is stupid some idiot decided back in the 1930s that whatever human being back then till...
    aaronpayne aaronpayne 22-25, M Jul 23

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    I have autism but my question is how does autism come about is it vaccinattions or is it because of use of drugs idk but id like to see in the future a cure or maybe our government...
    aaronpayne aaronpayne 22-25, M 1 Response Jul 22

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    so i found out i have polycystic ovary syndrome a few days ago and it sucks since me and my husband have been trying and now reading about it is making me even more down about it...
    sweety7268 sweety7268 22-25, F Jul 21

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    I just wanted to put this out there because there's an overwhelming amount of misconception within these sort of topics. No, this has nothing to do with the Hollywood show...
    hongkongfuiz1234 hongkongfuiz1234 16-17, F 3 Responses Jul 21

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    I like to hunt food for my family
    Trevorhunts Trevorhunts 13-15, M 1 Response Jul 20

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    Hi, I am male and retired and was diagnosed with EF in July 2014. I started treatment in August 2014 and now it is a year later and I am already much better. I hope that gives you...
    mogfitz mogfitz 66-70, M Jul 20

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    My best friend just got diagnosed with Aspergers. It's been really hard for her. Is there anything anyone can suggest that might help her cope with the news? Also does anyone have...
    ThinspirationNation ThinspirationNation 18-21, F 6 Responses Jul 18

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    I admit there were times I didn't want to be this. I admit there were days in which all I did was cry, asking God or whatever kind of diety is up there watching why did I have to...
    elsasaunt elsasaunt 16-17, F 2 Responses Jul 18

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    You know. If there's one thing I would change about my life it would be the years of 'trying to be normal' that I am now trying to dismantle. I am seeing so many parts of myself...
    jacquelinejones jacquelinejones 46-50 3 Responses Jul 18

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    hey i just got told i have this and i have no idea what it means can someone please help me?
    deleted deleted 26-30 1 Response Jul 18

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    Kenson Hunte is a nationally recognized fitness and health leader with great years of experience. During his college days, he was introduced to Pilates as a strengthening and...
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