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I Have Ramsay Hunt Syndrome

A Ramsay Hunt Syndrome anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Ramsay Hunt Syndrome. You're not alone. 29 People

    Ramsay Hunt Syndrome.

    Abouth three months ago I had a lot of pain in my mouth, I came out off the Night shift, went to bed and woke up a few hour later with halve my face paralised. At first it was diagnosed as Bells Palsy, but now it is Ramsay Hunt. It changes my way of life. I still have to work for...
    renzey renzey 61-65, M 2 Responses Oct 27, 2011

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    Newley Diagnosed Rhs

    ...so I'm 24 and feel awful. I was diagnosed with shingles lastweek, and then started to experience lots of things I thought I was making up. Tingling scalp, one side of my throat was "not there" hard to swallow. Pain in my ear neck and jaw all on the left side. Eye dryness and...
    Emmarawlings46 Emmarawlings46 22-25 4 Responses Jun 26, 2011

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    Secuelas Del Síndrome De Ramsay-hunt

    Hola a todos: Primero les pido disculpas por escribir en español, pueden usar Google Translator para entender. Les cuento que en el año 2005 fui diagnosticado con una Bruselosis, que me dejó a muy mal traer, perdí la audición de mi oído derecho totalmente y el 96% de mi o...
    sladordrav sladordrav 41-45, M Dec 24, 2012

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    The worse thing is the paralysis

    and not being able to be expressive anymore with my face. I used to have a lovely smile and now it's gone. I hope that it's temporary...It's been about a week and the paralysis is worse.
    istajam istajam 36-40, F 2 Responses Sep 30

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    Ramsay Hunt Syndrome Life

    I've had what is finally diagnosed as Chronic Ramsay Hunt Syndrome (ll) for 22 years. Maybe more. It is a very challenging disease. Not many people have ever heard of it...Doctors included. It is painful and debilitating.
    windrivermaiden windrivermaiden 41-45 4 Responses Mar 9, 2011

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    Aimee's Ramsey Hunt Story

    In February 2012, I really started not to feel myself, just feeling abit down and couldn't seem to snap out of it! This was really not like me, I kept brushing it off but I just couldn't seem to shift it. Eventually I got an ear infection so I nipped off to the doctors and got...
    Aimeemee28 Aimeemee28 26-30, F Nov 13, 2013

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    A Year On And Finally Diagnosed Any Advice!

    I am a 22 year old student who has now been 'officially' diagnosed with Ramsay Hunt Syndrome and I don't really know where to start or how to start moving forward. About a year ago I was at the time diagnosed with Bell's Palsy however I kept having more and more symptoms that...
    LittleContender LittleContender 22-25, F 4 Responses May 12, 2013

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    The Rhs Rollercoaster

    A healthy 27 year old I'd just moved to London from Australia. I was working long hours at a pub, partying a little too hard and took a one week nanny job in Switzerland even though I was pretty run down and tired. I went swimming in the Rhine river and on my return to London had...
    cjuk2010 cjuk2010 26-30 2 Responses Apr 10, 2012

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    It has been seven weeks

    since I woke with severe ear pain. I had a few weeks of dizziness and what seem to feel like water in my ear before that. I went to ER later that day because my jaw area went numb, and my left eye felt heavy and tired. The ER doctor asked about bumps on my ear, and never knowing...
    ksrooney ksrooney 56-60, F Jul 1

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    Ramsey Hunt Cougar

    i am shocked at my doctors who have told me its nothing it will get better,  there is nothing wrong with your tongue.  thanks to an aquaintance i was told of this disease and did a lot of reading and ready to go and rip my doctors head off i can tell you.    i live in Orbost...
    lorrainerobertson2 lorrainerobertson2 51-55 2 Responses Jun 5, 2011

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    WOW.... Reading this about RHS2 is

    so me. I was 34yrs old when I was diagnosed. I did a steroid pack for my allergies and by the 3rd day bells palsy took the face. Then by the 4th day it took the left side of the body. They found it through my spinal tap. (I was 8yrs old with my 1st case of palsy and 3x's again...
    Tonya73 Tonya73 41-45, F May 2

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    Recently Diagonosed Rhs..any Advice...i'm Miserable!!!

    I went to the Emergency Room back in January and was misdiagnosed with an ear infection...I was able to somewhat function, Drive, work, etc untill very recently I went to my GP and she told me I Have RHS. She found shingles in my ear, prescribed me steriods, anti virals and...
    monicanivens monicanivens 26-30 Mar 2, 2012

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    Related Experiences

    In year 1992, I came down with Ramsay-Hunt Syndrome. Its been a long battle. My face first paralyzed on one side and three months later, the other. This has affected my vision...
    Gustavp Gustavp 70+, M Nov 16

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    I learned I had it at age 5 and they said I was lucky to be alive. The only downside is that I have trouble learning in school
    metalchick18 metalchick18 18-21, F 1 Response Nov 4

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    I think. I'm no doctor, but I was reading the symptoms and I know I know that's no way tell tell if you have it. I'm emotionless, I don't make eye contact, I'm clumsy and awkward...
    PsychedelicSmile PsychedelicSmile 18-21, F 4 days ago

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    So many people without it have no idea of the pain it brings along. Today, I'm meeting with the Lender for our new house, and I can't control the neck tics and I'm hurting on a 8...
    jeepers92 jeepers92 41-45, M 2 Responses 3 days ago

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    Its harmed me a lot. I was bullied mercilessly up until the end of high school, and I'm still worried that people would want to exclude me socially. Although I now appear to be...
    Almostanonymous Almostanonymous 22-25, M 2 Responses Nov 9

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    Had it for around six hours now :(
    TreeHuggingHippie000 TreeHuggingHippie000 41-45, F 2 Responses Nov 5

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    Honestly, learning I had it destroyed my hopes of being able to belong in society. Sorry i'm not being positive about my experience but that doesn't make it any less real. Let me...
    Darknessisgrowing Darknessisgrowing 18-21, M 4 Responses Nov 6

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    Do any of get to do anything alone?
    shadowfluffy6 shadowfluffy6 18-21, F 5 Responses Nov 11

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    I've suffered with RLS most of my 55 years. Found out gluten is a huge trigger. Especially at night. Take Requip 4mgs at night also. Definitely helps avoiding gluten.
    Sirkutter Sirkutter 51-55 Nov 15

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    It turns out I have polycystic ovary syndrome and that causes my testosterone levels to be dangerously high, estrogen to be dangerously low, insulin to be really screwed up...
    polyglotparrot polyglotparrot 13-15, F Nov 14

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    I am creating my cactus family based on the characters of The Princess Bride, so far I have the brutish Fezzik, the agile Inigo, the wise Vizzini and I still have to hunt for my...
    erikaninetyseven erikaninetyseven 16-17, F Nov 10

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    Pro Outfitters is a reputed company in Mound City, US, that has been organizing hunting trips to some of the exotic locations in Missouri, Kansas & Nebraska for the past ten years...
    martin765 martin765 22-25, M Nov 3

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    I don't know why people just block me for literally no reason when I haven't even done anything negative. I never insulted or harassed anyone, so I don't know why people feel the...
    SgtRecker97 SgtRecker97 16-17, M 2 Responses Nov 12

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    I have been self-diagnosed with rumnation syndrome and am 100% sure that I have diagnosed correctly. This syndrome is making me refuse to eat. I am disgusted with my subconscious...
    sassyanus sassyanus 18-21 Nov 3

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    ** I do not have Timothy Syndrome, my baby sister does, but she's too little to share her story ** My little sister was born a year and a month ago, premature. She was tiny and...
    allydoe allydoe 18-21, F 6 days ago

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    I do not see the sport in hunting, how can it be a sport when the animal is unaware of the implications and the rules of the game. They are living their lives as they were made to...
    katyarty katyarty 51-55, F 1 Response Oct 29

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    Hunters are growing in my area. I don't know why; me and my pack don't kill people (Hunters included) and nobody has Shifted in front of civilians. I'm terrified; they know my name...
    Chaos42249 Chaos42249 13-15 1 Response 1 day ago

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    Giving to recent events in my life as a hunter, I've decided to help where I can. I know even with my last post some of you will continue to try living this life so I figured one a...
    SH1ELDS SH1ELDS 31-35 Nov 1

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    I hunt Deer Hogs Pigs Bears I never hunt rabbits I luv them too much And I will NEVER EVER hunt wolves The pic is my first deer I ever killed
    RainbowWolf13 RainbowWolf13 13-15, F 5 Responses 3 days ago

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    I just received the worst beating of my life. I literally believed it was the end for me. As I lay here trying to heal I've realized something. The first time I really watched the...
    SH1ELDS SH1ELDS 31-35 Nov 1

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    I just received the worst beating of my life. I literally believed it was the end for me. As I lay here trying to heal I've realized something. The first time I really watched the...
    SH1ELDS SH1ELDS 31-35 1 Response Nov 1

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    Is there anyone out there who believes it's ok to wear fur or leather, or it's ok to eat meat, but not ok to hunt? I don't personally hunt much. Very rarely. But I find it funny...
    music4thesoul music4thesoul 46-50, M 2 Responses Nov 6

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    Alright.....so this is to the ones calling me a killer and murderer. Like I said before in my last post, I am who I am so go F yourself. some didn't get the message and decided to...
    christendream christendream 16-17, M 1 Response Nov 14

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    For some reason, I really want to be a ghost hunter. It'll be awesome to be able to hunt ghosts with my friends or people I just met
    EDMISLIFEANDHAPPINES EDMISLIFEANDHAPPINES 18-21, F 1 Response Oct 31

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    Even though I'm a girl and ghost hunting it's apparently a mans thing. But I want to going a ghost hunting team.
    EDMISLIFEANDHAPPINES EDMISLIFEANDHAPPINES 18-21, F 1 Response Oct 31

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    #2.Needing some rest after a serious hunt and can't cause everyone you close your eyes you keep seeing the remnants of the hunt. Our you had your *** handed to you and and can't go...
    SH1ELDS SH1ELDS 31-35 Nov 9

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    I've been squirrel hunting for almost 10 years now. I've killed a lot of squirrels and enjoy being in the woods, and enjoy spending time hunting with my family
    possum1995 possum1995 18-21, M 1 Response Nov 11

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    Hi, I was diagnosed with Limited Crest Syndrome around twelve years ago, having asked what it was I was told, too complicated, look it up on the internet....Anyway have the usual...
    gillybee77 gillybee77 66-70, F Nov 1

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    My life will never be the same. In 2011, an extremely traumatic event happened to me and since then my life had never been the same. It's easiest to just list the thingsthat were...
    XxAlphaCentaurixX XxAlphaCentaurixX 26-30, T 1 Response 6 days ago

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    I'm a single 11-year old girl in 6th grade who loves to hunt and cook
    buggy43003 buggy43003 22-25, F Oct 25

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    I. Am headed thru ohio to go hunting anyone want to chat?
    october004 october004 31-35, M 1 Response Oct 30

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    I wanna go hunting bright and early in the morning
    MeganDawnn MeganDawnn 16-17, F Nov 1

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    I need excitement so yeah I wanna hunt for ghosts and get horrible results!
    Blankminds Blankminds 13-15, F Nov 3

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    I have often imagined spending a day hunting a boar or hog, kill it, bring it back for it to be put on a spit and for family and friends to enjoy a meat feast, I imagine nothing...
    guptavish guptavish 31-35 Nov 4

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    That bull **** , hunting is good , I have don't it from be a baby **** up antis cuntx
    reececlarke reececlarke 13-15, M 1 Response Nov 7
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