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I Have Ramsay Hunt Syndrome

A Ramsay Hunt Syndrome anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Ramsay Hunt Syndrome. You're not alone. 24 People

    Aimee's Ramsey Hunt Story - In February 2012, I really started not to feel myself, just feeling abit down and couldn't seem to snap out of it! This was really not like me, I kept...
    Aimeemee28 Aimeemee28 26-30, F Nov 13, 2013

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    A Year On And Finally Diagnosed Any Advice! - I am a 22 year old student who has now been 'officially' diagnosed with Ramsay Hunt Syndrome and I don't really know where to start or...
    LittleContender LittleContender 22-25, F 4 Responses May 12, 2013

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    The Rhs Rollercoaster - A healthy 27 year old I'd just moved to London from Australia. I was working long hours at a pub, partying a little too hard and took a one week nanny job...
    cjuk2010 cjuk2010 26-30 2 Responses Apr 10, 2012

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    Ramsay Hunt Syndrome. - Abouth three months ago I had a lot of pain in my mouth, I came out off the Night shift, went to bed and woke up a few hour later with halve my face...
    renzey renzey 61-65, M 2 Responses Oct 27, 2011

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    Ramsey Hunt Cougar - i am shocked at my doctors who have told me its nothing it will get better,  there is nothing wrong with your tongue.  thanks to an aquaintance i was told of...
    lorrainerobertson2 lorrainerobertson2 51-55 2 Responses Jun 5, 2011

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    Ramsay Hunt Syndrome Life - I've had what is finally diagnosed as Chronic Ramsay Hunt Syndrome (ll) for 22 years. Maybe more. It is a very challenging disease. Not many people have...
    windrivermaiden windrivermaiden 41-45 4 Responses Mar 9, 2011

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    Recently Diagonosed Rhs..any Advice...i'm Miserable!!! - I went to the Emergency Room back in January and was misdiagnosed with an ear infection...I was able to somewhat function...
    monicanivens monicanivens 26-30 Mar 2, 2012

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    Newley Diagnosed Rhs - ...so I'm 24 and feel awful. I was diagnosed with shingles lastweek, and then started to experience lots of things I thought I was making up. Tingling scalp...
    Emmarawlings46 Emmarawlings46 22-25 4 Responses Jun 26, 2011

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    Secuelas Del Síndrome De Ramsay-hunt - Hola a todos: Primero les pido disculpas por escribir en español, pueden usar Google Translator para entender. Les cuento que en el año...
    sladordrav sladordrav 41-45, M Dec 24, 2012

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    Related Experiences

    I have Tourette's syndrome.
    mrhollingswortg1992 mrhollingswortg1992 22-25, M a week ago

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    I started with pain at the first of January. Woke up one morning with the feeling that I was being stabbed in the shoulder with a knife. Used heat/ice thinking I had pulled a...
    msv123 msv123 51-55, F 29 mins ago

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    I was diagnosed at the age of 17. Up until that point i spent my life with the perallasis and docters not knowing what it was. They thought i had a type od muscular distrophy and i...
    tabitha35 tabitha35 31-35, F Mar 19

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    So I am 21 years old and I suffer from Poly Cystic Ovarian Syndrome, I have done my research and unfortunately it comes with so many issues. But it is common and I would love to...
    o1Nadia1o o1Nadia1o 18-21, F Mar 28

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    Was diagnosed back in high school. Felt like it held me back from many things. Yea, I did go 2 dances, junior and senior prom, but people treated me like I was retarded. I'm highly...
    HottRoddTX HottRoddTX 26-30, M 4 Responses Mar 28

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    I found out I had Poland's Syndrome in my 30s ( I am now 48) when I was referred to a plastic surgeon. Had an operation but had to remove the implant as my chest cavity kept...
    gamordente gamordente 46-50, M 4 days ago

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    11 yrs ago I was a custodian at a local Christian School! I was walking from the main office to the gymn when, out of nowhere, my legs and arms began to feel as if someone was...
    terryb47 terryb47 46-50, M Mar 16

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    All the sounds I hear are extremely loud. I may have been like this my whole life, but it's getting worse now. People talking, laughing, babies crying, cars, machines, phones...
    mad95 mad95 18-21, F 1 Response Mar 16

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    I was diagnosed with TS when I was very young. My case is mild and my tics are slight but I do feel the internal side effects of TS like anxiety, hyper vigilance, and some OCD. I...
    artMusicBrew artMusicBrew 36-40, M Mar 24

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    I am the middle of 5 2 older brothers 2 younger sisters. My brothers were always allowed to do what ever they want. Stay up late,drive, and lots of other fun stuff. My parents took...
    Jimmy1313 Jimmy1313 22-25, M Mar 26

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    I was just diagnosed a few months ago but I think I've had it for a few years now. The doctors actually found the tumor in my chest before they realized my eye drooping was Horner...
    Pinkyjolie Pinkyjolie 26-30, F 1 Response Mar 27

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    I personally don't have CFS but my mother has it and it's been one of the most difficult things to deal with on a daily basis. I have determined that my mothers stress levels...
    IamLerato IamLerato 22-25, F 1 Response 2 days ago

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    Wow I dont know where to start.... after having being misdiagnosed on 12/27/2012 and sent home when i arrived because i was in so much pain i could not walk. Returned to the ER on...
    momndom momndom 31-35, F 3 Responses Mar 22

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    I am 32 years old, diagnosed three years ago. I have had 5 surgeries on my leg and 3 on my shoulder. I am on anti-depressants, nerve painkillers, anti-inflammatories and...
    gimpy55 gimpy55 31-35, F Mar 26

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    But it's not what everyone thinks it is. When you say 'aspergers', people think of socially awkward people who are obsessed with computers or science. But in reality, it's a lot...
    sarah19597 sarah19597 16-17, F 7 Responses Mar 27

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    Another sleepless night. Got stressed today and sleep will not come. Legs hurt and are creepy crawly. Meds are doing nothing. Ughhhh...........
    chloe433 chloe433 56-60, F 2 Responses Mar 16

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    I get reconstruction surgery July 16th!!! SO excited, but not being able to play field hockey because of it is going to suck. I'm terrified of going under but I don't even care...
    marinagrace marinagrace 13-15, F 6 days ago

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    Anyone with this won't to talk ? Just diagnosed today and would love to talk to others with it
    Mum2one Mum2one 22-25, F 1 Response 1 day ago

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    Originally diagnosed with a bacterial ear infection, I actually had Shingles that lead to Bells palsy / Ramsey Hunt syndrome, with the usual symptoms. This is the first time I've...
    johnsonfamily38 johnsonfamily38 51-55, M 3 Responses Mar 26

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    I have Postural Tachycardia Syndrome, as I only have issues with my heart rate not my blood pressure when standing. Does anyone else have this? What helps? I'm waiting on a call...
    Konig316 Konig316 26-30, F 3 Responses Mar 30

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    Hey, I'm Ashley. I'm 18 years old and I've had vitilligo for 7 years now. It started with a small spot on my neck. I didn't think anything of it. I thought it honestly came from...
    ashhxox ashhxox 18-21, F 1 Response Mar 16

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    My names Alaina, I'm 17, and about three years ago I was diagnosed with Chiari Malformation Type 1. So freshman year of high school I started having really bad headaches, and found...
    burtala burtala 16-17, F Mar 27

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    Do you want to know what ****** me off in the worst way anyone can imagine? Self-absorbed, self-righteous, egotistical, cruel, rude, judgmental ********. Do you know where I find...
    kcoop123 kcoop123 18-21, F 1 Response Mar 19

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    Okay this very rare virus I contacted just over 26 years ago. Now I still can't get up from the ground in the sitting position without help. Do more exercise to strengthen your...
    JohnCrighton JohnCrighton 51-55, M 2 Responses Mar 27

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    First I want to say that I AM NOT A DEMON HUNTER! I'm posting this to find out a bit more about demon hunters. I'm writing a book and I need to find out a bit more about demon...
    Interpational Interpational 22-25, F 1 Response Apr 1

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    being a ghost hunter or in other words a paranormal investigator is my biggest dream. I've always been interested in the paranormal and it would be my dream to be a paranormal...
    silentgirl1234 silentgirl1234 13-15, F 1 Response Apr 4

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    I have been an avid Hunter since the age of 9 , when I went for my first Dove hunt in Brawley CA As a Child Graduate of the NRA Saftey Course , and being raised half of my...
    TsavoHunter TsavoHunter 36-40, M 5 days ago

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    Looking expand my digital resources on hunting. They can range from any topic, as well as any aspects of hunting.
    jimmyrustles jimmyrustles 22-25, M 1 Response Mar 16

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    Looking expand my digital resources on hunting. They can range from any topic, as well as any aspects of hunting.
    jimmyrustles jimmyrustles 22-25, M Mar 17

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    Looking expand my digital resources on hunting. They can range from any topic, as well as any aspects of hunting.
    jimmyrustles jimmyrustles 22-25, M Mar 17

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    Looking expand my digital resources on hunting. They can range from any topic, as well as any aspects of hunting.
    jimmyrustles jimmyrustles 22-25, M 3 Responses Mar 17

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    I don't hunt with a gun. I use a crossbow and hunting knife. I'm very skilled with both weapons. I'm also skilled with other weapons as well.
    WhyYouMadTho18 WhyYouMadTho18 18-21, F 2 Responses 1 day ago

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    "I Am a Demon Hunter" Heh... Surprised to even see this.. I came here to ask you all Demon hunters or what ever you people are if you have been witnessing weird things happening...
    unknown1122 unknown1122 13-15 1 Response Mar 21

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    As I said, in the days to come I would be telling what's happened so far.I guess I'l start with the newest demon hunter on the team up here in newyork, she lives not far down the...
    Shotgunkwala Shotgunkwala 16-17, M 3 days ago

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    Hey! I'm Cassie, Cassie Burkhard, i'm 14 years old, i'm portuguese and i want to become a supernatural hunter if there is any one that could help me, to learn more about this...
    CassieBurkhard CassieBurkhard 13-15, F 2 days ago

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    Two last night! In the first, I was still in highschool I guess. I was on the bus ride home after a long and exhausting day and the girl sitting next to me asked if I wanted to go...
    PinkMellow PinkMellow 18-21, F 3 Responses Mar 18

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    Hello, I'm a mother of one handsome 9 month old boy. When my husband and I left the hospital June 29, 2013. We were never told that our son was born with Poland Syndrome. After his...
    Bernadzikowski Bernadzikowski 26-30, F 2 Responses Apr 2

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    Intramarine Isolation Syndrome. It is what I have, my disease. Cool. Quiet. Sometimes green, sometimes blue. Dark, or shining in the sun, but it always feels like no one ever...
    WickedScullyOfTheWest WickedScullyOfTheWest 31-35, F Apr 6

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    Gypsy Shack Haunting By Paul Dale Roberts, HPI Esoteric Detective HPI (Hegelianism Paranormal Intelligence) International https://www.facebook.com/#!/groups/HPIinternational...
    PaulDaleRoberts PaulDaleRoberts 51-55, M Apr 6

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    I am new to this as I noticed several posts about pots syndrome I was wondering if someone could help me? I have suffered with this since I was 14 (I am now 19) but was only...
    potsie2222 potsie2222 18-21, F 1 day ago

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    This lul of working, eating, etc... Without being able to deer hunt is killing me! Anybody else?
    mouse0283 mouse0283 31-35, M 1 Response Mar 18

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    Ok..someone? enlighten me? demon hunter?
    Stephanie2211 Stephanie2211 41-45, F 3 Responses Mar 19

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    I love to hunt. But more to be in the woods away from everyone and everything the quiet of a dawn. Man I wish it was season
    october004 october004 31-35, M Apr 5