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I Have Ramsay Hunt Syndrome

A Ramsay Hunt Syndrome anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Ramsay Hunt Syndrome. You're not alone. 29 People

    The Rhs Rollercoaster

    A healthy 27 year old I'd just moved to London from Australia. I was working long hours at a pub, partying a little too hard and took a one week nanny job in Switzerland even though I was pretty run down and tired. I went swimming in the Rhine river and on my return to London had...
    cjuk2010 cjuk2010 26-30 3 Responses Apr 10, 2012

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    Ramsay Hunt Syndrome.

    Abouth three months ago I had a lot of pain in my mouth, I came out off the Night shift, went to bed and woke up a few hour later with halve my face paralised. At first it was diagnosed as Bells Palsy, but now it is Ramsay Hunt. It changes my way of life. I still have to work for...
    renzey renzey 61-65, M 2 Responses Oct 27, 2011

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    Aimee's Ramsey Hunt Story

    In February 2012, I really started not to feel myself, just feeling abit down and couldn't seem to snap out of it! This was really not like me, I kept brushing it off but I just couldn't seem to shift it. Eventually I got an ear infection so I nipped off to the doctors and got...
    Aimeemee28 Aimeemee28 26-30, F 1 Response Nov 13, 2013

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    WOW.... Reading this about RHS2 is

    so me. I was 34yrs old when I was diagnosed. I did a steroid pack for my allergies and by the 3rd day bells palsy took the face. Then by the 4th day it took the left side of the body. They found it through my spinal tap. (I was 8yrs old with my 1st case of palsy and 3x's again...
    Tonya73 Tonya73 41-45, F May 2, 2014

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    The worse thing is the paralysis

    and not being able to be expressive anymore with my face. I used to have a lovely smile and now it's gone. I hope that it's temporary...It's been about a week and the paralysis is worse.
    istajam istajam 41-45, F 3 Responses Sep 30, 2014

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    Secuelas Del Síndrome De Ramsay-hunt

    Hola a todos: Primero les pido disculpas por escribir en español, pueden usar Google Translator para entender. Les cuento que en el año 2005 fui diagnosticado con una Bruselosis, que me dejó a muy mal traer, perdí la audición de mi oído derecho totalmente y el 96% de mi o...
    sladordrav sladordrav 41-45, M 1 Response Dec 24, 2012

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    Recently Diagonosed Rhs..any Advice...i'm Miserable!!!

    I went to the Emergency Room back in January and was misdiagnosed with an ear infection...I was able to somewhat function, Drive, work, etc untill very recently I went to my GP and she told me I Have RHS. She found shingles in my ear, prescribed me steriods, anti virals and...
    monicanivens monicanivens 26-30 Mar 2, 2012

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    Newley Diagnosed Rhs

    ...so I'm 24 and feel awful. I was diagnosed with shingles lastweek, and then started to experience lots of things I thought I was making up. Tingling scalp, one side of my throat was "not there" hard to swallow. Pain in my ear neck and jaw all on the left side. Eye dryness and...
    Emmarawlings46 Emmarawlings46 22-25 4 Responses Jun 26, 2011

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    A Year On And Finally Diagnosed Any Advice!

    I am a 22 year old student who has now been 'officially' diagnosed with Ramsay Hunt Syndrome and I don't really know where to start or how to start moving forward. About a year ago I was at the time diagnosed with Bell's Palsy however I kept having more and more symptoms that...
    LittleContender LittleContender 22-25, F 5 Responses May 12, 2013

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    It has been seven weeks

    since I woke with severe ear pain. I had a few weeks of dizziness and what seem to feel like water in my ear before that. I went to ER later that day because my jaw area went numb, and my left eye felt heavy and tired. The ER doctor asked about bumps on my ear, and never knowing...
    ksrooney ksrooney 56-60, F 2 Responses Jul 1, 2014

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    Ramsey Hunt Cougar

    i am shocked at my doctors who have told me its nothing it will get better,  there is nothing wrong with your tongue.  thanks to an aquaintance i was told of this disease and did a lot of reading and ready to go and rip my doctors head off i can tell you.    i live in Orbost...
    lorrainerobertson2 lorrainerobertson2 51-55 3 Responses Jun 5, 2011

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    Ramsay Hunt Syndrome Life

    I've had what is finally diagnosed as Chronic Ramsay Hunt Syndrome (ll) for 22 years. Maybe more. It is a very challenging disease. Not many people have ever heard of it...Doctors included. It is painful and debilitating.
    windrivermaiden windrivermaiden 41-45 5 Responses Mar 9, 2011

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    Related Experiences

    I have Asperger's Syndrome which is a high functioning form of autism. I got diagnosed at 7, but my parents told me I was BORN with it. I guess I was born abnormal after all. I...
    maialove maialove 22-25, F 1 Response 5 days ago

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    Hello fellow CES survivors my heart is out to you all I had surgery on March 4 2015 laminectomy/discectomy emergency decompression was paralyzed for 30 hours .This syndrome is one...
    clint03 clint03 36-40, M a week ago

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    There are 2 wonderful doctors who work with a team of other doctors and specialist at Mayo Clinic in Scottsdale and Phoenix Arizona. These doctors are amazing. They are doctors...
    bgrady15 bgrady15 51-55, F 19 hrs ago

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    I haven't been diagnosed yet. my Dr is trying to eliminate anything else it could be, but I am suffering. I'm having a hard time going to work everyday cuz i can't get out of...
    kareenmarie kareenmarie 36-40, F Apr 30

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    Breaking up is never easy regardless of condition. For someone with aspergers its all the more difficult. All the little things you would do in the day which revolved around having...
    Sakaratte Sakaratte 26-30, M 1 Response May 1

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    Hard decisions are never easy whether you have a condition or not. You have to do what is best for you even if it hurts someone else. When you really care about someone often the...
    Sakaratte Sakaratte 26-30, M May 3

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    I do. However, I have no talent in anything whatsoever, I waste a lot of time and not to mention I wasted my life pretending to be someone I wasn't and never will be. I have a lot...
    FoxFan64 FoxFan64 13-15, M 2 Responses May 5

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    God why are people with autism spectrum disorders so retarded and sensitive? They need to buck up! Okay so two weeks ago my other autistic friend spend the night with me because I...
    JoyJoy7 JoyJoy7 22-25, F 7 Responses May 11

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    I don't understand eye contact or facial expression I remember Making friends with someone once we talked for a while and eventually the topic somehow went into disability's, When...
    Autumnflowers Autumnflowers 18-21, F 8 Responses May 13

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    I often use my imagination in a way to create or recreate the reality to better understand some situations or to comfort my insecurities when needed. Sometimes I find myself into...
    RichardAndon RichardAndon 22-25, M May 16

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    Nowadays I blend in with society pretty well, but in kinder garden my symptoms were showing a lot and I got humiliated over and over by the sixth graders telling me "you should do...
    ortwin ortwin 16-17, M 1 Response May 17

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    It's the mild variant which just means people don't realize that I actually have a problem and thus hate me. It causes a lot of problems including with social interaction, and...
    omutsukimi omutsukimi 18-21, M 3 Responses May 19

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    Hi this is my first time on here, just cane on to get some peoples real experiences. I'm sick of reading threw endless pages of things I don't understand with all the long words...
    pinklady2989 pinklady2989 22-25, F 6 days ago

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    I had a terrible experience the day before i had emergency surgery...i woke up one morning not being able to get out of bed because of the pain so i called an ambulance was taken...
    jszymecki1234 jszymecki1234 31-35, F 4 days ago

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    Hi I wanted to post that I am with a company in the US for all natural products for various medical conditions, one product that helps inflammatory issues, another product that...
    carolgem carolgem 46-50, F 4 days ago

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    Hi wanted to share my facebook page www.facebook.com/healthyproductswithcarol where I try to keep up often with testimonials from past users to show how our products have helped...
    carolgem carolgem 46-50, F 3 days ago

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    Live near NYC, does anyone know a hospital that specializes in PTS? Two rotator cuff surgeries on left shoulder, 15 months of PT and now have PTS. In pain frequently and wake up...
    satsmo satsmo 46-50, M 1 day ago

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    first of all I found this by chance and I almost started crying. I was diagnosed with PS when I was born. my right hand was small and webbed with the middle digits missing and my...
    Everrisingmoon Everrisingmoon 18-21, F May 1

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    When I was a kid I never felt the same as any of my peers. They were always too loud, too rude, or too confusing for me to want to interact with. Most would bully me for my...
    Wandering2 Wandering2 18-21, F 1 Response May 4

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    my Dr is trying to eliminate stuff before he diagnosis me with cfs. he recently did a mono test and drug test (which was my psychiatrist idea). I wonder what he'll try next...
    kareenmarie kareenmarie 36-40, F 1 Response May 4

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    i want every cytomegalo patient to please read my testimony,my name is Tee Tee. i was cytomegalo (CMV) positive since 2013 and it affected my life. I would like to advise people...
    teeteebaby teeteebaby 31-35, F May 12

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    I started with pain in right shoulder blade on April 2, 2015 and diagnosed on May 15, 2015 with PTS. The pain is severe on the right arm, elbow, forearm, hand and fingers...
    hankvankat hankvankat 56-60, M 1 Response May 18

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    I'm a bit hesitant to add this to my experiences as I don't know for sure if I suffer from it, but due to my habit of checking the internet whenever something is not right...
    RealLifePerson RealLifePerson 26-30, M 1 Response May 21

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    Hi, I've had CFS for many years. I go out when I'm feeling ok but on the whole I'd prefer to be able to speak to people online. I'm happy and upbeat. CFS doesn't mean all we...
    LizardW13 LizardW13 46-50, F 3 days ago

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    Cure to PTS Go to GNC and buy viamin b, fish oil, lecithin, and arginine supplements. Get the tablets. Take a dose of two tablets of each every morning and every night. Once the...
    ljade18 ljade18 26-30, M 2 days ago

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    It's more of a tourette's of the mind for me. If I'm around certain people, all these unwanted thoughts come to my mind but I never actually vocalize them.
    zarpanzur zarpanzur 26-30, M 1 day ago

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    I'm a little concerned that I may have Benign Fasciculation Syndrome. I sometimes experience random pain on parts of my body and I have a lot of muscle twitches. I really wish I...
    moose73630 moose73630 16-17, M 1 Response May 7

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    I constantly have dreams that I have wings on my back and I fly all over the place. When I wake up I feep like I have phantom limb syndrome because I can still feel them even...
    QuanMarquis QuanMarquis 22-25, M 1 Response May 17

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    I'm being such a **** baby right now.. Wahh everything is annoying life is hard wahhh Ah but I should probably get this checked out before school starts. The whole point of waiting...
    junedew junedew 18-21, F 1 day ago

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    Ok so I read my palms for fun but basically I have really weird palms ...because if u can see my head and heart lines are connected...I just have one line instead of 2... I looked...
    ERMAHGERD1 ERMAHGERD1 22-25, F 1 Response May 10

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