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I Have Ramsay Hunt Syndrome

A Ramsay Hunt Syndrome anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Ramsay Hunt Syndrome. You're not alone. 29 People

    Recently Diagonosed Rhs..any Advice...i'm Miserable!!!

    I went to the Emergency Room back in January and was misdiagnosed with an ear infection...I was able to somewhat function, Drive, work, etc untill very recently I went to my GP and she told me I Have RHS. She found shingles in my ear, prescribed me steriods, anti virals and...
    monicanivens monicanivens 26-30 Mar 2, 2012

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    It has been seven weeks

    since I woke with severe ear pain. I had a few weeks of dizziness and what seem to feel like water in my ear before that. I went to ER later that day because my jaw area went numb, and my left eye felt heavy and tired. The ER doctor asked about bumps on my ear, and never knowing...
    ksrooney ksrooney 56-60, F 2 Responses Jul 1, 2014

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    The Rhs Rollercoaster

    A healthy 27 year old I'd just moved to London from Australia. I was working long hours at a pub, partying a little too hard and took a one week nanny job in Switzerland even though I was pretty run down and tired. I went swimming in the Rhine river and on my return to London had...
    cjuk2010 cjuk2010 26-30 3 Responses Apr 10, 2012

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    Aimee's Ramsey Hunt Story

    In February 2012, I really started not to feel myself, just feeling abit down and couldn't seem to snap out of it! This was really not like me, I kept brushing it off but I just couldn't seem to shift it. Eventually I got an ear infection so I nipped off to the doctors and got...
    Aimeemee28 Aimeemee28 26-30, F 1 Response Nov 13, 2013

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    Ramsay Hunt Syndrome Life

    I've had what is finally diagnosed as Chronic Ramsay Hunt Syndrome (ll) for 22 years. Maybe more. It is a very challenging disease. Not many people have ever heard of it...Doctors included. It is painful and debilitating.
    windrivermaiden windrivermaiden 41-45 5 Responses Mar 9, 2011

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    Ramsay Hunt Syndrome.

    Abouth three months ago I had a lot of pain in my mouth, I came out off the Night shift, went to bed and woke up a few hour later with halve my face paralised. At first it was diagnosed as Bells Palsy, but now it is Ramsay Hunt. It changes my way of life. I still have to work for...
    renzey renzey 61-65, M 2 Responses Oct 27, 2011

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    The worse thing is the paralysis

    and not being able to be expressive anymore with my face. I used to have a lovely smile and now it's gone. I hope that it's temporary...It's been about a week and the paralysis is worse.
    istajam istajam 41-45, F 3 Responses Sep 30, 2014

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    A Year On And Finally Diagnosed Any Advice!

    I am a 22 year old student who has now been 'officially' diagnosed with Ramsay Hunt Syndrome and I don't really know where to start or how to start moving forward. About a year ago I was at the time diagnosed with Bell's Palsy however I kept having more and more symptoms that...
    LittleContender LittleContender 22-25, F 5 Responses May 12, 2013

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    Ramsey Hunt Cougar

    i am shocked at my doctors who have told me its nothing it will get better,  there is nothing wrong with your tongue.  thanks to an aquaintance i was told of this disease and did a lot of reading and ready to go and rip my doctors head off i can tell you.    i live in Orbost...
    lorrainerobertson2 lorrainerobertson2 51-55 3 Responses Jun 5, 2011

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    Newley Diagnosed Rhs

    ...so I'm 24 and feel awful. I was diagnosed with shingles lastweek, and then started to experience lots of things I thought I was making up. Tingling scalp, one side of my throat was "not there" hard to swallow. Pain in my ear neck and jaw all on the left side. Eye dryness and...
    Emmarawlings46 Emmarawlings46 22-25 4 Responses Jun 26, 2011

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    Secuelas Del Síndrome De Ramsay-hunt

    Hola a todos: Primero les pido disculpas por escribir en español, pueden usar Google Translator para entender. Les cuento que en el año 2005 fui diagnosticado con una Bruselosis, que me dejó a muy mal traer, perdí la audición de mi oído derecho totalmente y el 96% de mi o...
    sladordrav sladordrav 41-45, M 1 Response Dec 24, 2012

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    WOW.... Reading this about RHS2 is

    so me. I was 34yrs old when I was diagnosed. I did a steroid pack for my allergies and by the 3rd day bells palsy took the face. Then by the 4th day it took the left side of the body. They found it through my spinal tap. (I was 8yrs old with my 1st case of palsy and 3x's again...
    Tonya73 Tonya73 41-45, F May 2, 2014

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    Related Experiences

    My therapist was setting up my new treatment plan and had been talking about how she wanted to find a new diagnosis for me, because she felt my difficulties went beyond the...
    Emeryael Emeryael 26-30, F 6 hrs ago

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    Seriously, taking me hunting or fishing could be a date - yeah I'm pretty cheap(; Lol but seriously being in the woods is my favorite thing. You sit there (for deer season...
    lovebug773 lovebug773 13-15, F 1 day ago

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    Could be me. Need to schedule an appointment and get assessed.
    Western9 Western9 36-40, M 2 days ago

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    I don't mind Aspergers. It has benefited my intelligence greatly, and I have a small group of friends who understand that I may not be the most entertaining or talkative person in...
    XenonVirus XenonVirus 13-15, M 3 days ago

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    I'm a hunter in training and I have never watched the supernatural, what does that mean?
    Katiana111 Katiana111 13-15, F 1 Response 3 days ago

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    Being a supernatural hunter isn't as glamours as Hollywood makes it out to be it's something that while frighten you to your core. If you don't do your job correctly these things...
    Katiana111 Katiana111 13-15, F 2 Responses 3 days ago

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    Hate the empty nest. Use to have sons friends Ina bs out...so quite here. On a good note ...grocery bill has gone way down.
    sharipie sharipie 51-55, F 2 Responses 4 days ago

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    I've always been a weird child. I didn't make many friends and i was a total geek. When I was around 10 my father died. Ever since then i have always felt this weird grip on my...
    DemonHunterOswin DemonHunterOswin 18-21, F 1 Response 4 days ago

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    i am looking for a demon hunter to train me better to fight the dark
    demonslay demonslay 13-15, M 4 days ago

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    Want to know me better? Autism is funny. And terrifying. (Just like EP really) Just now, as I sat reading a short passage of keywords about autism titled 'Am I OKay' I did my...
    jacquelinejones jacquelinejones 46-50 3 Responses 4 days ago

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    i need a close group of demon hunters so teach me to better fight the dark
    demonkill demonkill 13-15, M 5 days ago

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    I was diagnosed from my kidney doc after a Biopsy that I had sjogrens, but my Rhuemetologist says no ( I don't like him and am changing to a new one) I already have kidney disease...
    katsass katsass 46-50, F 6 days ago

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    and am glad there are others out there that have it too, because i'm not crazy.(At least not half as crazy as they were making me out to be)But...I would never, ever wish this...
    katiebabydoll13 katiebabydoll13 26-30, F 6 days ago

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    Im 16 and I struggle with Poland syndrome just as much as everyone else. I was fortunate in my case as I am only missing my right peck and an arm muscle. Other than that, I have no...
    FreeWilly04 FreeWilly04 16-17, M 1 Response Jun 25

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    I am a 14 year old boy living in Tennessee, I have been a very quiet, shy, and emotional person, these past few years I would stay locked in my room and never come out unless it...
    santana772 santana772 13-15, M 1 Response Jun 24

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    It's been 5 years. Thanks mom. Life isn't ******* fair. Sometimes I think what's the meaning of this all. What am I supposed to do in this world? What is my purpose? My...
    Nethery Nethery 18-21, F 1 Response Jun 24

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    I was diagnosed with Raynards in 1987 and then with CREST Syndrome in 1989. It was a scary time for me as my doctor called my whole family in and told them I has 3 to 4 years to...
    1990ppaul 1990ppaul 51-55 Jun 23

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    I know a person can die from a broken heart (Broken Heart Syndrome ) and I wonder if a person can die from an empty heart?
    5catjenny 5catjenny 61-65, F 2 Responses Jun 22

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    Daimyan is 9 and our journey began at his birth. He would like to ask everyone for support on a new support group on facebook. Search LUNAR to find it. Thank you
    LunarDayDay LunarDayDay 36-40, M Jun 22

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    I think a good male friend of mine may have Klinefelter syndrome. He fits many of the symptoms mentioned online including he is tall, a bit socially awkward, very wide hips and...
    pennyjd pennyjd 36-40, F Jun 22

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    FIRST I want to ask if any of you have had or thought about having surgery done to fix the webbed-neck and low hairline most of us are born with? I’m considering having it...
    CousinV CousinV 18-21, F Jun 21

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    Hello. My name is Tazi, short for Thazienne. I am an aspiring hunter, but I can't seem to find any cases. I'd be grateful if someone could help me with finding some. There aren't...
    Macalo2 Macalo2 13-15, F 3 Responses Jun 19

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    My mom has Huntington's. We found out about it when I was a freshmen in high school. It's been difficult. I felt ashamed when I'd overhear people making fun of her, embarrassed...
    mangachick88 mangachick88 18-21, F Jun 18

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    Asperger's Syndrome in high school was tough. I didn't have a lot of friends and I was alone a lot but still hung out with a few peers. I remember being in the vocal club and band...
    AspieGirl97 AspieGirl97 18-21, F 4 Responses Jun 18

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    Hi I am Penny and have CVS. I've had it now for 2 plus years and am having a hard time dealing with it. It is so difficult to deal with right now, my life is on hold. Does it...
    PHowland PHowland 51-55, F Jun 18

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    Pro Outfitters, a premier hunting lodge that is owned and operated by Brad Gannaway, is situated in Mound City, Missouri. This full service lodge has been offering world class...
    martin765 martin765 22-25, M Jun 18

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    hi, i am kiran and i have poland syndrome pretty fun say becoz recently i came to knw to that i'm suffering from it. All of my life till now i was wondering why is my right chest...
    kirankoundinya kirankoundinya 22-25, M Jun 17

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    Sometimes having Aspergers Syndrome sucks ****. I got diagnosed when I was a little girl. My dad said i was born with it. I guess I AM born learning disabled. Anyways, I didn't...
    ArtLover24 ArtLover24 22-25, F 1 Response Jun 16

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    I have Aspergers not only that I also had speech problem. I didn't talk in full sentences till I was 5 years old. When I was in school it was hard for me to make friends because I...
    GuyFromTennessee GuyFromTennessee 41-45, M Jun 16

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    When I first got diagnosed with polycystic ovaries my first and instant reaction was to google the syndrome to find out as much as I could about disease I knew very little about...
    cocochanel92 cocochanel92 22-25, F 1 Response Jun 16

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