Post

I Have Ramsay Hunt Syndrome

A Ramsay Hunt Syndrome anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Ramsay Hunt Syndrome. You're not alone. 27 People

    Secuelas Del Síndrome De Ramsay-hunt

    Hola a todos: Primero les pido disculpas por escribir en español, pueden usar Google Translator para entender. Les cuento que en el año 2005 fui diagnosticado con una Bruselosis, que me dejó a muy mal traer, perdí la audición de mi oído derecho totalmente y el 96% de mi o...
    sladordrav sladordrav 41-45, M Dec 24, 2012

    Your Response

    Cancel

    Ramsay Hunt Syndrome.

    Abouth three months ago I had a lot of pain in my mouth, I came out off the Night shift, went to bed and woke up a few hour later with halve my face paralised. At first it was diagnosed as Bells Palsy, but now it is Ramsay Hunt. It changes my way of life. I still have to work for...
    renzey renzey 61-65, M 2 Responses Oct 27, 2011

    Your Response

    Cancel

    Newley Diagnosed Rhs

    ...so I'm 24 and feel awful. I was diagnosed with shingles lastweek, and then started to experience lots of things I thought I was making up. Tingling scalp, one side of my throat was "not there" hard to swallow. Pain in my ear neck and jaw all on the left side. Eye dryness and...
    Emmarawlings46 Emmarawlings46 22-25 4 Responses Jun 26, 2011

    Your Response

    Cancel

    Aimee's Ramsey Hunt Story

    In February 2012, I really started not to feel myself, just feeling abit down and couldn't seem to snap out of it! This was really not like me, I kept brushing it off but I just couldn't seem to shift it. Eventually I got an ear infection so I nipped off to the doctors and got...
    Aimeemee28 Aimeemee28 26-30, F Nov 13, 2013

    Your Response

    Cancel

    It has been seven weeks

    since I woke with severe ear pain. I had a few weeks of dizziness and what seem to feel like water in my ear before that. I went to ER later that day because my jaw area went numb, and my left eye felt heavy and tired. The ER doctor asked about bumps on my ear, and never knowing...
    ksrooney ksrooney 56-60, F Jul 1

    Your Response

    Cancel

    Recently Diagonosed Rhs..any Advice...i'm Miserable!!!

    I went to the Emergency Room back in January and was misdiagnosed with an ear infection...I was able to somewhat function, Drive, work, etc untill very recently I went to my GP and she told me I Have RHS. She found shingles in my ear, prescribed me steriods, anti virals and...
    monicanivens monicanivens 26-30 Mar 2, 2012

    Your Response

    Cancel

    Ramsay Hunt Syndrome Life

    I've had what is finally diagnosed as Chronic Ramsay Hunt Syndrome (ll) for 22 years. Maybe more. It is a very challenging disease. Not many people have ever heard of it...Doctors included. It is painful and debilitating.
    windrivermaiden windrivermaiden 41-45 4 Responses Mar 9, 2011

    Your Response

    Cancel

    A Year On And Finally Diagnosed Any Advice!

    I am a 22 year old student who has now been 'officially' diagnosed with Ramsay Hunt Syndrome and I don't really know where to start or how to start moving forward. About a year ago I was at the time diagnosed with Bell's Palsy however I kept having more and more symptoms that...
    LittleContender LittleContender 22-25, F 4 Responses May 12, 2013

    Your Response

    Cancel

    Ramsey Hunt Cougar

    i am shocked at my doctors who have told me its nothing it will get better,  there is nothing wrong with your tongue.  thanks to an aquaintance i was told of this disease and did a lot of reading and ready to go and rip my doctors head off i can tell you.    i live in Orbost...
    lorrainerobertson2 lorrainerobertson2 51-55 2 Responses Jun 5, 2011

    Your Response

    Cancel

    WOW.... Reading this about RHS2 is

    so me. I was 34yrs old when I was diagnosed. I did a steroid pack for my allergies and by the 3rd day bells palsy took the face. Then by the 4th day it took the left side of the body. They found it through my spinal tap. (I was 8yrs old with my 1st case of palsy and 3x's again...
    Tonya73 Tonya73 41-45, F May 2

    Your Response

    Cancel

    The Rhs Rollercoaster

    A healthy 27 year old I'd just moved to London from Australia. I was working long hours at a pub, partying a little too hard and took a one week nanny job in Switzerland even though I was pretty run down and tired. I went swimming in the Rhine river and on my return to London had...
    cjuk2010 cjuk2010 26-30 2 Responses Apr 10, 2012

    Your Response

    Cancel

    Related Experiences

    I am 15 years old I have Russell Silver Syndrome however the doctors did not diagnose me until I was 13 luckily I don't have all of the side effects however I am only 4'9 and...
    UNIJordanQUE UNIJordanQUE 13-15, F 2 Responses Sep 3

    Your Response

    Cancel
    All my life, I’ve felt different, like I just don’t quite belong in any group that I’m a part of. Trying to fit in has led to me to trouble. I’ve drank heavily, smoked weed...
    empoweredh22 empoweredh22 22-25, M 1 Response Aug 16

    Your Response

    Cancel
    I am at a loss and need some help! I went to urgent care in February because I had this horribly terrible rash that itched uncontrollably and was painful. I had clusters of what...
    SweetJFowler SweetJFowler 26-30, F 1 Response Aug 17

    Your Response

    Cancel
    And through Asperger syndrome, I met a good friend on this website. Since then, we have met in person and he and I are beyond best friends; we are true brothers and always will be...
    chubbystringbean chubbystringbean 22-25, M 1 Response Sep 1

    Your Response

    Cancel
    When I found out about 18 months ago I have Aspergers Syndrome (im late 30's) It actually came as a relief to me to know there was a reason as to why I think and act different to...
    troubleatmill troubleatmill 36-40, M 4 Responses Sep 7

    Your Response

    Cancel
    With help from my psychologist (who's very successful and specialized in autism, along with other things.) shed a light over a little something that I've been thinking about for a...
    MissClueless MissClueless 16-17, F 3 Responses 2 days ago

    Your Response

    Cancel
    I used to really hate myself, I honestly did. But now, I'm happy I have what I have. When I was in elementary school, I never talked to anyone, I would walk around the playground...
    ThatRobotChick ThatRobotChick 18-21, F 4 Responses Aug 29

    Your Response

    Cancel
    My doctor put me on levelen and told me to skip the white pills, so that I wouldn't ovulate. She told me to take the while pills once every six months to allow my body to keep...
    ChloeMaay ChloeMaay 18-21, F Aug 16

    Your Response

    Cancel
    https://www.kickstarter.com/projects/2084036675/artistic-autistic-awareness?ref=email My Kickstarter application is finally live. I have autism and I find the preconceptions...
    TheNakedPoet TheNakedPoet 41-45, M 1 Response Aug 18

    Your Response

    Cancel
    I need help I can't find a girl that likes me and I mange to suppres. My tics really well and you would only really know if someone told you and well I think the girls I try to get...
    Sproketsocet Sproketsocet 18-21, M 2 Responses Aug 20

    Your Response

    Cancel
    I have had RLS for about 5 years. It started after I tore my hamstring from my sits bone. At first it was constant. I couldn't sleep, I couldn't stand in one place for long or...
    Deedle623 Deedle623 51-55, F 1 Response Aug 25

    Your Response

    Cancel
    I have suffered with CVS my entire life, from age two to now (Im 17). Along the way I've learned how to cope and help my episodes. All these helpful tricks may work for you but are...
    Platinumryan Platinumryan 16-17 Sep 4

    Your Response

    Cancel
    I've taken 2 clonzepam, and a Requip, and two aspirins. I have stretched and rolled on my foam roller. It's 2:00 am and it will not stop. So tired. Need to sleep.
    Deedle623 Deedle623 51-55, F 2 Responses Sep 5

    Your Response

    Cancel
    I was diagnosed at age 8 with Sjogren's (I am now 22 years old) I have never talked to another person with the disease but would love to. As you know if you have this as well...
    hollyphoenix92 hollyphoenix92 22-25, F 1 Response Sep 5

    Your Response

    Cancel
    I don't have episodes as much as I used to but now it's just 24/7 burning and pain. Will this ever stop?
    Cvsgirl1222 Cvsgirl1222 16-17, F 6 days ago

    Your Response

    Cancel
    have plans for tonight? well too damn bad! Your getting bruises, cuts, pulled muscles, and a nice concussion, enjoy!
    thetalkingmushroom thetalkingmushroom 18-21, M 1 Response 5 days ago

    Your Response

    Cancel
    One of my more persistent tics is groping. If i notice, feel(like in a hug or brushing against me), or remember what they feel like, i have to grab a woman's breasts. I don't think...
    thetalkingmushroom thetalkingmushroom 18-21, M 1 Response 5 days ago

    Your Response

    Cancel
    Do any of you keep like dairy/journal
    shadowfluffy6 shadowfluffy6 18-21, F 2 Responses Aug 16

    Your Response

    Cancel
    Got it from my dad. I'm not as bad as he is cause I fight to make it not define who I am. Though at first I felt bad but then I felt happy cause I'm gonna get money from the...
    YLIhououin YLIhououin 18-21, M 3 Responses Sep 1

    Your Response

    Cancel
    Uncoordinated Somehow, I'm reluctant to get hit with a ball, bat, shoe, kid, or some out of the blue object when I walk into a school gym. Now every time I walk anywhere near...
    kelseytoby1337 kelseytoby1337 16-17 2 Responses Sep 2

    Your Response

    Cancel
    Another terrible night. Why does it take nearly an hour for the requip and clonzepam to kick in? I will take them earlier, tonight, but they make me loopy. I tried pickle juice...
    Deedle623 Deedle623 51-55, F 3 Responses Sep 6

    Your Response

    Cancel
    So, not many people know of this and I think it might be a good idea to raise some awerness. Albright is a generic defect or mutation that basically makes my bones weak. I get 1...
    shadow2233 shadow2233 18-21, M 2 Responses 1 day ago

    Your Response

    Cancel
    Please help! Could someone clarify whether my symptoms could be endometriosis? I have been ill for over a year now and though many other conditions have been ruled out by my GP, a...
    NattieC NattieC 22-25, F Aug 25

    Your Response

    Cancel
    I have Asperger's Syndrome It helps me find it difficult to talk to girls in the real world that probably why I'm single but I can't change it I was born with it but it upsets me...
    JonnyBurrows10 JonnyBurrows10 18-21, M 3 Responses Aug 31

    Your Response

    Cancel
    I have always enjoyed quietness. I don't like babies crying or people talking loudly on the phone, or people whispering in lectures.. I moved back home halfway through my second...
    leo1292 leo1292 22-25, F 1 hr ago

    Your Response

    Cancel
    Upon first inspection of this site, I could already tell there was multiple "drama queens" and arrogant people on this website. Most of these so called "hunters" seem to have a sob...
    ToastyToaster ToastyToaster 70+ 2 Responses Aug 19

    Your Response

    Cancel
    This is more of a question, actually.. Hi, I am looking into starting demon hunting. Despite what my profile states, I'm 13, soon to be 14. (I figured there was some sort of an age...
    crestfallenAffliction crestfallenAffliction 16-17, F 3 Responses Aug 31

    Your Response

    Cancel
    I just recently found out that some members of my family on my dad's side are hunters. My dad gave it up to live a "normal" life, but I want to keep hunting the supernatural going...
    XDraconianX XDraconianX 13-15, F 2 Responses Sep 3

    Your Response

    Cancel
    If you are looking for a group of hunters, I'm offering you a chance to join. Message me privately or reply in the comments.Only if you are serious about this will you be able to...
    TheWhiteCrossOrder TheWhiteCrossOrder 70+, F 2 Responses Aug 16

    Your Response

    Cancel
    People who think it will be cool to hunt was wrong I hunted a deer... I felt really bad after. I had to miss other deer when I select my deer I shot I was surprise I shot I shot it...
    RainbowWolf13 RainbowWolf13 13-15, F Aug 17

    Your Response

    Cancel
    My dad was a hunter he disappeared 2 years ago I know he's dead or probably is anyway I am trying to be like him I'm an only child and I can't contact anyone of his old contacts I...
    JessOConnor JessOConnor 16-17, F 3 Responses Aug 20

    Your Response

    Cancel
    Let me say this right now...I really don't care how many hunters are going to be offended by this post but this needs to be put out there! I am a Wolf Therian and to see this just...
    HeatherNightmare HeatherNightmare 16-17, F Aug 25

    Your Response

    Cancel
    I ghost hunt around my house and had good experiences but am going ghost hunting at a hotel for the first time in November what is the best equipment to go with
    andrewj2014 andrewj2014 18-21, M Aug 29

    Your Response

    Cancel
    Still hunting refers to the ancient art of quietly walking a few steps, pausing, and looking... until one spots a leg or curve of a rump or some partial outline of the game. Much...
    2ndHandLion 2ndHandLion 41-45, T Aug 31

    Your Response

    Cancel
    Why do u hunters kill us We can love We can bring peace We can make joy And we have feelings BUT we all have a bad side everyone hunters,vamps,humans, and werewolves
    RainbowWolf13 RainbowWolf13 13-15, F 1 Response Aug 25

    Your Response

    Cancel
    When I was 26 year old I found out I got Klinefelter Syndrome I get a hormone testosterone needle every 12 weeks for the rest of my life.
    blackcat055 blackcat055 41-45, M 5 days ago

    Your Response

    Cancel
    Having Aspergers Syndrome is quite challenging for me. I have always felt like a ghost or a being living in another world in high school. Because of my particular interests, I have...
    loveVictorandDumas loveVictorandDumas 16-17, F 1 Response Aug 21

    Your Response

    Cancel