I Have Rare Blood Condition Called Hht

Personal Stories, Advice, and Support 4 People

    42 and Still Going

    I didn't get to finish the olso known name it's called osler-weber-rendu-syndrom.1 in 5000 people have this life altering thing. Most don't know.IT run in the family blood and can skip around.My grandfarther died from it.My father has it. My brother that is 2yrs older than me...
    jeanniebennie jeanniebennie
    41-45, F
    3 Responses Sep 4, 2009

    42 and Still Going

    I didn't get to finish the olso known name it's called osler-weber-rendu-syndrom.1 in 5000 people have this life altering thing. Most don't know.If run in the family blood and can skip around.My grandfarther died from it.My father has it. My brother that is 2yrs older than me...
    jeanniebennie jeanniebennie
    41-45, F
    1 Response Sep 4, 2009
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