I Have Raynaud's Phenomenon

Personal Stories, Advice, and Support 47 People

    I was diagnosed last year,

    I have typical symptoms but my doctor said its extreme, my hands get a little cold and got pure whit e and when they warm the pins and needles start. It's a pain, then they start burning. It sucks when you're a musician, been playing since I was four but now I struggle so much.
    indigo21 indigo21
    18-21, F
    Apr 3, 2014

    It hurts like a ***** right

    now . **** cold weather :( purple, red, and yellow feet.... How pretty -.-
    Rosaalie Rosaalie
    22-25, F
    2 Responses Jul 10, 2014

    Had this for a few years,

    but it got worse and worse it now affects my nipple 😪😳 so painful! Now being tested for a underlying problem to see why it effects my nipple as it is very rare! 😞
    LiilyPad LiilyPad
    26-30, F
    Mar 18, 2015

    I get really cold feet

    and hands. The feet can at times look grayish. Usually just very red and so cold they hurt. I think I have Raynauds due to possible ehlers danlos or my POTS
    shannonsjourney shannonsjourney
    18-21, F
    Mar 18, 2015

    Basic Info I Just Found

    As there's no stories in the group I thought I'd just add a quick one of some basic info I found on the (UK) National Health Service website... This is a repost , it is not my writing. Raynaud's phenomenon (usually just called Raynaud's) is a common condition of the blood...
    TheLuckyHobo TheLuckyHobo
    31-35, M
    7 Responses Nov 11, 2010

    I'm An Artist

    and I'm scared of losing my fingers when I am asleep. =((( It's mainly my index fingers that are affected by this, but it often spreads to other fingers too and my thumbs if I get particularly cold. The effect comes on from only a little cold though, and I can only get my...
    TheLuckyHobo TheLuckyHobo
    31-35, M
    Nov 11, 2010

    Zombie Hands

    One of my husband's favorite nick names for me when I try to 'steal his heat' by snuggling up to him. I've had this condition ever since I can remember. I remember telling my dad I was cold and he would tell me, "You shouldn't be cold! You aren't cold." And then I would touch him...
    araneidae araneidae
    22-25, F
    Nov 8, 2011

    Want To Treat Your Raynaud's?

    I was diagnosed with Raynaud's my sophomore year of high school, the disease restricted my life so much I couldn't do many of the things I love -- like skiing. I decided I wanted to cure my Raynaud's so I started a blog to share information with the community and track my...
    Natalie370 Natalie370
    2 Responses Nov 12, 2010

    Can doing drugs cause this disease?

    I got a blood test that shows there's an underlying health condition that's causing it., My rheumatoid count is off. Anyone have information?
    Rosaalie Rosaalie
    22-25, F
    2 Responses Jul 9, 2014
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