Post
Experience Project iOS Android Apps | Download EP for your Mobile Device

I Have Raynaud's Syndrome

which is a fancy way of saying my hands and feet turn purple, red, and/or white when cold 75 People

    I Have Raynaud's

     i am 55 and have been playing hand drums for 15 years. so i have the vibration thing. i eat well but SMOKE. ha. i always thought i mite get raynaud's for some reason...  now i have it in two fingers. i was hoping this was a big discussion group for raynaud's...
    raynaud raynaud 51-55 Jul 31, 2009

    Your Response

    Cancel

    Cold

    When I was in 8th grade I was standing out in the cold waiting for my mom. When she picked me up I complained that I couldn't feel my middle toe. She said it was from the cold. When we got home I began to panic because it really felt like it was gone. So I removed my shoe...
    Irishgirly Irishgirly 16-17, F 5 Responses Nov 17, 2009

    Your Response

    Cancel

    It Hurts

    This stupid Raynauds acts up in the cold weather making the blood vessels constrict stopping blood flow,The colors don't really hurt what hurts is when the feeling is coming back and the circulation starts again.  That's  when the pain comes .People say Oh well...
    34Einnor 34Einnor 70+ Feb 7, 2010

    Your Response

    Cancel

    Has Anyone With Raynaud's Tried . . .

    All kidding aside, has anyone with Raynaud's tried a mild dose of male ED meds? A fractioanl dose of Viagra, 25 - 50mg for instance?
    OhSoShy OhSoShy 41-45, M 4 Responses Jul 29, 2011

    Your Response

    Cancel

    Living With Raynauds

    Go to http://livingwithraynauds.blogspot.com for my story. 
    krissymp krissymp 36-40, F Dec 1, 2009

    Your Response

    Cancel

    My Story .

    i joined this group to relate to others like me but i guess I'm first to share my story . I'm 17 and I've had symptoms of raynauds for about 7 years and i was just recently diagnosed . I'm on medicine - lisinopril- thats supposed to help but it doesn't .and I'm sure you can...
    phantasi phantasi 16-18 12 Responses Jan 15, 2008

    Your Response

    Cancel

    Hi, I'm New And I Have Raynauds.

      I've had raynauds since i was about 14, i remember back then it wasn't so bad and i must have got along fine with it. When i was in university my housemate heard a piece on the radio that described symptoms that were eerily familiar to what she'd seen with my hands. I...
    mischa91 mischa91 26-30, F 2 Responses Sep 24, 2012

    Your Response

    Cancel

    More Than An Hour's Worth Of Pain

    I have read most of your stories and I can see that all of you can relate to me in some way. I don't know how long I have had this condition all I know is that I've had it since I can remember. When I was younger it didn't bother me as much as it does now though. Since this...
    bubblynng08 bubblynng08 22-25, F 2 Responses Mar 2, 2011

    Your Response

    Cancel

    Yes They're Blue, Yes They're White, Yes They're Red, And Yes They Hurt

    I was diagnosed with Raynauds and Lupus 18 years ago.  My lupus has been under control for about 4 years, but my Raynauds is getting out of control.  I have had a finger ulcer for several years due to the Raynauds.  When my ulcer is active, it is the most horrific...
    yestheyareblue yestheyareblue 36-40 Nov 25, 2010

    Your Response

    Cancel

    White Fingers

    Hi, I'm 15 and have suffered from raynauds for about 3 years. At first it was not that bad and I could deal with it but its gotten really bad. I have not met anyone with it and when I tell people it hurts they dont exactly believe me. To them all they see is white wierd fingers...
    abiglass abiglass 13-15 2 Responses Jan 31, 2013

    Your Response

    Cancel

    It's Good to Know I'm Not Alone

    My friends and I have always joked about my "freakish" hands. When we're in a public place and they act up they'll stop and examine them and make me do things to try to get them back to normal and it often draws the attention of people we don't even know. Everyone seems to have...
    uvadell uvadell 31-35, F 1 Response Feb 2, 2008

    Your Response

    Cancel

    How I Was Healed Of Raynaud's

    Hello all,   I wanted to share the story of how I was healed of Raynaud's.   About a year after having chemotherapy in 2005 I developed Raynaud's - above all in my hands, and occasionally in my feet. This was very, very unpleasant and irritating for me, even...
    adanepst adanepst 31-35, M 1 Response Feb 19, 2010

    Your Response

    Cancel

    It's winter again, a favorite time

    for people with raynaud's syndrome. [sarcasm]. I'm 13 and fairly confident I have raynaud's. You know if you put a lot of pressure on the tip of a finger and let go it turns a bit yellow for just a second, then the blood rushes back and turns it flesh colored or red? Well, for...
    Olive1329 Olive1329 13-15, F 1 Response Dec 9, 2013

    Your Response

    Cancel

    I Live With Raynaud's

    I was diagnosed with Raynaud's about 4 years ago during the winter.  My feet were swolen, discolered and very painful.  After finding out what it was and how to deal with it, it has gotten much better over the past few years.  I wear double or tripple layer of...
    dncr4180 dncr4180 26-30, F 2 Responses Mar 25, 2010

    Your Response

    Cancel

    Eating Triggers It

    My doctor when I was 35 said I was crazy when I told him eating a cheeze-it made my fingers turn white. He said that's not logical and I told him I was diagnoised at 19 and I live with it every day. It's not crazy to think my body would take care of digestive activities over...
    Kshumsky Kshumsky 41-45 May 20, 2012

    Your Response

    Cancel

    I Just Had A Brilliant Idea, Maybe A Few Minutes Ago......

    I drew how it would work as well can't post it yet though but I will explain....... 1 Get two plastic hospital gloves or whatever, and a normal glove. 2 put on one of the plastic gloves on the preffered hand. 3 fill the other with enough water so you can still move your fingers...
    Acchbellon Acchbellon 18-21, M 1 Response Dec 8, 2012

    Your Response

    Cancel

    Bump In The Road!

    I found out that I had raynauds in my hands and feet in November of 09. I have only had it for 4 months and havent really got any answers from my doctors on medication. I have had tons of tests done and thankfully I dont have anything bad but I do have very high inflammation...
    frostytips frostytips 22-25, F 2 Responses Feb 20, 2010

    Your Response

    Cancel

    My Raynauds

    I was diagnised with Raynauds Syndrome about a year ago.  I am a 65 year old female ho has bee to every Dr. that you can think of and nobody seems ti be able to help me.  The are not 100% sure it is Raynauds.  My fingers will turn very dark blue, almost black and...
    paw22345 paw22345 61-65 3 Responses May 17, 2010

    Your Response

    Cancel

    I have had raynauds since at least 4 years old,

    but I didn't know what it was until about 13yrs old. This disease has been so frustrating because I feel like nobody understands it except the people that suffer from it. If I try to explain it to someone I'm like "my hands get cold and hurt really bad and turn yellow" but...
    allisondela allisondela 22-25, F 1 Response Aug 14, 2014

    Your Response

    Cancel

    Raynaud's Syndrome----------sucks!!

    I have Raynard's Syndrome and have to work outside as part of my job.........I loose all feelings in my fingers after only a few minutes.  I wear two pairs of gloves and hand warmers........nothing works to make this condition better.:(   Doctor has tried me...
    williebe williebe 51-55, M 4 Responses Jan 17, 2010

    Your Response

    Cancel

    Apparently

    So apparently I have this thing where the blood vessels in your limbs constrict when they hit the cold. So that is why my toes and fingers turn blue when I sit too long at the computer in the winter. And why my lips turn blue when I swim. And it is also why it took me under 30...
    Allergic Allergic 22-25, F 11 Responses Jun 16, 2011

    Your Response

    Cancel

    On The Purple Hand

    I was diagnosed about one... maybe two years ago, but I've had weird hands since I remember. It was better after year of treatment but recently I feel annoying pain in my hands when temperature is changing. The peak was reached when they was completly purple except a few bright...
    SharWartard SharWartard 16-17, F Nov 12, 2010

    Your Response

    Cancel

    Now That It'S Getting Cold Out...

    Welcome back Raynauds. Nothing makes it eAsier to survive a cold winter without my fingers and toes feeling and looking like they are going to fall off! (Sarcasm check; positive) Reynauds, I believe (too long since diagnosis and too lazy to google to confirm) is a circulatory...
    Astroluxgal Astroluxgal 26-30, F Oct 17, 2013

    Your Response

    Cancel

    I hate it!!! Sometimes it becomes painful

    and at night if it starts to happen I can't sleep because it hurts. Yesterday it got so bad I had 3 pairs of socks on and 2 pairs of gloves and it still took about two hours for it to go away. I hate the winter I wish summer would come faster so it wouldn't be so severe.
    musicluvr17 musicluvr17 16-17, F 2 Responses Jan 25, 2014

    Your Response

    Cancel

    My Fingers

    I have Raynaud's.. I went to my family doctor who said it was no big deal and to keep my hands warm...I am always cold...once my hands hit cold air or cold water they turn pure white...and sometimes blue...I have noticed my feet are starting to hurt in the cold as well...I was...
    redrows3 redrows3 36-40 Dec 17, 2010

    Your Response

    Cancel

    I Have Raynaud's Syndrome

    I'm 16 and I've had Raynauds all my life, but its only recently been diagnosed (about a year ago). My fingers and toes are ALWAYS ice cold- its actually gotten to a point where they may feel extremely cold to someone holding my hand but they feel normal, even warm, to me as I am...
    aliceturner aliceturner 16-17, F 2 Responses Nov 30, 2011

    Your Response

    Cancel

    I Think That I Have Raynaud's Syndrome...

    I 'm 19 year old(guy) and I think that I have Raynaud's Syndrome because when it's cold my hands becoming blue/purple with some reddish points but that's not hurting me at all, instead I feel nothing and generaly I like being in cold!On the other hand, my mother has similary...
    stace22 stace22 18-21 1 Response Jan 25, 2012

    Your Response

    Cancel

    Rainbow Girl

    rainbow taste the skittles... that is what the kids in middle school used to say to me because my hands turned colors. i have raynauds pretty bad. my hands are always red and they turn blue whenever i'm nervous cold or really mad. cold temperatures are the worst. it hurts to use...
    lvnn88 lvnn88 22-25, F 1 Response Mar 29, 2012

    Your Response

    Cancel

    Related Experiences

    Hello there! I'm currently making some researches about Maladaptive Daydreaming Disorder. A disorder in which the person uses daydreaming as a defense mechanisme to escape from...
    RichardAndon RichardAndon 22-25, M 6 Responses a week ago

    Your Response

    Cancel
    Asperger's symdrome is something thats gives me a lot and takes a lot too, I can recite 100 digits of pi easily, dolve a rubix cube in 1 min 13 seconds, and tell you anything about...
    Kringle95 Kringle95 18-21, F 2 Responses Jan 20

    Your Response

    Cancel
    When you have this it's easy to become absolutely obsessed with things, and that's not easy to deal with, even when I became devastated after finishing a book series that there are...
    Dakurti99 Dakurti99 13-15, M 2 days ago

    Your Response

    Cancel
    I have it. My favorite symptom is that people with it prefer nonfiction over fiction which I do.
    bobherry bobherry 16-17, M 1 Response Jan 6

    Your Response

    Cancel
    Having more problems with my right bicept, I guess I'll talk to my doctor about it, Still under stress from an unsuccessful consult about my neck injury, Doctors seem to judge me...
    JEM404 JEM404 41-45, M Jan 17

    Your Response

    Cancel
    Post diagnosis things went sour, my carefully constructed world started collapsing around me. Everything I had done to cope with a condition I didn't realise I had became...
    Teab Teab 41-45, M Jan 20

    Your Response

    Cancel
    how do people react when you tell them you have aspergers? I am always so nervous to tell people!
    kristykaz121 kristykaz121 18-21, F 7 Responses 1 day ago

    Your Response

    Cancel
    Got in trouble at school so many times because of it. Its ruining my life to be honest.
    idfwuu idfwuu 13-15, M 4 Responses Jan 1

    Your Response

    Cancel
    This is an oddly specific group
    Gabbi97 Gabbi97 18-21, F 2 Responses Jan 12

    Your Response

    Cancel
    Which explains why everybody hates me. :D
    Symbiopsychotaxiplasm Symbiopsychotaxiplasm 26-30, F 4 Responses Jan 16

    Your Response

    Cancel
    I always wanted to meet someone with aspergers like me wish I knew someone near :(
    kittyanthony kittyanthony 22-25, M 3 Responses a week ago

    Your Response

    Cancel
    I have Asperger's Syndrome and am depressive as well, I would love new friends
    deanratzloff deanratzloff 13-15 1 Response 5 days ago

    Your Response

    Cancel
    Ok so this is important for anyone who has CFS or anything like it. I have had this illness for 4 1/2 years now, and I've been to a fair number of doctors. But it took awhile to...
    Invisibleninja12 Invisibleninja12 18-21, F 1 Response Jan 14

    Your Response

    Cancel
    My partner was diagnosed with Stiff Person Syndrome in July 2014. Due to my own ignorance about the illness and my own selfish needs of refusing to accept her sudden disability, i...
    GeekyGirl82 GeekyGirl82 31-35, F Jan 12

    Your Response

    Cancel
    I'm a 21 year old female with possible hypermobility syndrome/EDS Type 3 or fibromyalgia. My mum has hypermobile joints but hasn't been diagnosed with HMS/EDS but has been...
    Kari9349 Kari9349 18-21, F Jan 1

    Your Response

    Cancel
    A new information website has been developed for stiff-person syndrome to educate, empower, and advocate. www.thetinman.org
    TheTinManOrg TheTinManOrg 51-55 Jan 2

    Your Response

    Cancel
    Can someone please tell me they're symptoms of polycistic ovarian syndrome x
    iwantababy111 iwantababy111 16-17, F a week ago

    Your Response

    Cancel
    I hate that I am incompetent. Alright, so basically, my mom expects me to be able to do all kinds of things without being taught, because she thinks they're obvious. Well, they...
    sethdots sethdots 18-21, T 1 Response Dec 29, 2014

    Your Response

    Cancel
    It's all a question of precision .. F84.5 but that was then .... So we notice detail .. I walk into a room and notice a paper clip on the floor .. What is he doing ???? Hunter...
    TheRebelFaction TheRebelFaction 51-55, M 1 Response Dec 29, 2014

    Your Response

    Cancel
    I had my diagnosis at 19, I have several other medical problems which have resulted in very limited mobility. I have good bouts where I can move much more easily but I have 'flare...
    noonespecial44 noonespecial44 26-30, F Jan 19

    Your Response

    Cancel