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I Have Raynaud's Syndrome

which is a fancy way of saying my hands and feet turn purple, red, and/or white when cold 82 People

    My Story .

    i joined this group to relate to others like me but i guess I'm first to share my story . I'm 17 and I've had symptoms of raynauds for about 7 years and i was just recently diagnosed . I'm on medicine - lisinopril- thats supposed to help but it doesn't .and I'm sure you can...
    phantasi phantasi 16-17 12 Responses Jan 15, 2008

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    Living With Raynauds

    Go to http://livingwithraynauds.blogspot.com for my story. 
    krissymp krissymp 36-40, F Dec 1, 2009

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    On The Purple Hand

    I was diagnosed about one... maybe two years ago, but I've had weird hands since I remember. It was better after year of treatment but recently I feel annoying pain in my hands when temperature is changing. The peak was reached when they was completly purple except a few bright...
    SharWartard SharWartard 16-17, F Nov 12, 2010

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    I hate it!!! Sometimes it becomes painful

    and at night if it starts to happen I can't sleep because it hurts. Yesterday it got so bad I had 3 pairs of socks on and 2 pairs of gloves and it still took about two hours for it to go away. I hate the winter I wish summer would come faster so it wouldn't be so severe.
    musicluvr17 musicluvr17 18-21, F 2 Responses Jan 25, 2014

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    My Fingers

    I have Raynaud's.. I went to my family doctor who said it was no big deal and to keep my hands warm...I am always cold...once my hands hit cold air or cold water they turn pure white...and sometimes blue...I have noticed my feet are starting to hurt in the cold as well...I was...
    redrows3 redrows3 36-40 Dec 17, 2010

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    I Think That I Have Raynaud's Syndrome...

    I 'm 19 year old(guy) and I think that I have Raynaud's Syndrome because when it's cold my hands becoming blue/purple with some reddish points but that's not hurting me at all, instead I feel nothing and generaly I like being in cold!On the other hand, my mother has similary...
    stace22 stace22 18-21 1 Response Jan 25, 2012

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    My Raynauds

    I was diagnised with Raynauds Syndrome about a year ago.  I am a 65 year old female ho has bee to every Dr. that you can think of and nobody seems ti be able to help me.  The are not 100% sure it is Raynauds.  My fingers will turn very dark blue, almost black and...
    paw22345 paw22345 61-65 3 Responses May 17, 2010

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    It's winter again, a favorite time

    for people with raynaud's syndrome. [sarcasm]. I'm 13 and fairly confident I have raynaud's. You know if you put a lot of pressure on the tip of a finger and let go it turns a bit yellow for just a second, then the blood rushes back and turns it flesh colored or red? Well, for...
    Olive1329 Olive1329 13-15, F 1 Response Dec 9, 2013

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    More Than An Hour's Worth Of Pain

    I have read most of your stories and I can see that all of you can relate to me in some way. I don't know how long I have had this condition all I know is that I've had it since I can remember. When I was younger it didn't bother me as much as it does now though. Since this...
    bubblynng08 bubblynng08 22-25, F 2 Responses Mar 2, 2011

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    Eating Triggers It

    My doctor when I was 35 said I was crazy when I told him eating a cheeze-it made my fingers turn white. He said that's not logical and I told him I was diagnoised at 19 and I live with it every day. It's not crazy to think my body would take care of digestive activities over...
    Kshumsky Kshumsky 41-45 May 20, 2012

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    Bump In The Road!

    I found out that I had raynauds in my hands and feet in November of 09. I have only had it for 4 months and havent really got any answers from my doctors on medication. I have had tons of tests done and thankfully I dont have anything bad but I do have very high inflammation...
    frostytips frostytips 22-25, F 2 Responses Feb 20, 2010

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    Cold

    When I was in 8th grade I was standing out in the cold waiting for my mom. When she picked me up I complained that I couldn't feel my middle toe. She said it was from the cold. When we got home I began to panic because it really felt like it was gone. So I removed my shoe...
    Irishgirly Irishgirly 16-17, F 5 Responses Nov 17, 2009

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    Raynaud's Syndrome----------sucks!!

    I have Raynard's Syndrome and have to work outside as part of my job.........I loose all feelings in my fingers after only a few minutes.  I wear two pairs of gloves and hand warmers........nothing works to make this condition better.:(   Doctor has tried me...
    williebe williebe 51-55, M 4 Responses Jan 17, 2010

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    Yes They're Blue, Yes They're White, Yes They're Red, And Yes They Hurt

    I was diagnosed with Raynauds and Lupus 18 years ago.  My lupus has been under control for about 4 years, but my Raynauds is getting out of control.  I have had a finger ulcer for several years due to the Raynauds.  When my ulcer is active, it is the most horrific...
    yestheyareblue yestheyareblue 36-40 Nov 25, 2010

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    Now That It'S Getting Cold Out...

    Welcome back Raynauds. Nothing makes it eAsier to survive a cold winter without my fingers and toes feeling and looking like they are going to fall off! (Sarcasm check; positive) Reynauds, I believe (too long since diagnosis and too lazy to google to confirm) is a circulatory...
    Astroluxgal Astroluxgal 26-30, F Oct 17, 2013

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    I Just Had A Brilliant Idea, Maybe A Few Minutes Ago......

    I drew how it would work as well can't post it yet though but I will explain....... 1 Get two plastic hospital gloves or whatever, and a normal glove. 2 put on one of the plastic gloves on the preffered hand. 3 fill the other with enough water so you can still move your fingers...
    Acchbellon Acchbellon 18-21, M 1 Response Dec 8, 2012

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    It's Good to Know I'm Not Alone

    My friends and I have always joked about my "freakish" hands. When we're in a public place and they act up they'll stop and examine them and make me do things to try to get them back to normal and it often draws the attention of people we don't even know. Everyone seems to have...
    uvadell uvadell 31-35, F 1 Response Feb 2, 2008

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    Rainbow Girl

    rainbow taste the skittles... that is what the kids in middle school used to say to me because my hands turned colors. i have raynauds pretty bad. my hands are always red and they turn blue whenever i'm nervous cold or really mad. cold temperatures are the worst. it hurts to use...
    lvnn88 lvnn88 22-25, F 1 Response Mar 29, 2012

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    I have had raynauds since at least 4 years old,

    but I didn't know what it was until about 13yrs old. This disease has been so frustrating because I feel like nobody understands it except the people that suffer from it. If I try to explain it to someone I'm like "my hands get cold and hurt really bad and turn yellow" but...
    allisondela allisondela 22-25, F 3 Responses Aug 14, 2014

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    Has Anyone With Raynaud's Tried . . .

    All kidding aside, has anyone with Raynaud's tried a mild dose of male ED meds? A fractioanl dose of Viagra, 25 - 50mg for instance?
    OhSoShy OhSoShy 41-45, M 4 Responses Jul 29, 2011

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    How I Was Healed Of Raynaud's

    Hello all,   I wanted to share the story of how I was healed of Raynaud's.   About a year after having chemotherapy in 2005 I developed Raynaud's - above all in my hands, and occasionally in my feet. This was very, very unpleasant and irritating for me, even...
    adanepst adanepst 31-35, M 1 Response Feb 19, 2010

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    I Live With Raynaud's

    I was diagnosed with Raynaud's about 4 years ago during the winter.  My feet were swolen, discolered and very painful.  After finding out what it was and how to deal with it, it has gotten much better over the past few years.  I wear double or tripple layer of...
    dncr4180 dncr4180 26-30, F 2 Responses Mar 25, 2010

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    I Have Raynaud's Syndrome

    I'm 16 and I've had Raynauds all my life, but its only recently been diagnosed (about a year ago). My fingers and toes are ALWAYS ice cold- its actually gotten to a point where they may feel extremely cold to someone holding my hand but they feel normal, even warm, to me as I am...
    aliceturner aliceturner 16-17, F 2 Responses Nov 30, 2011

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    I Have Raynaud's

     i am 55 and have been playing hand drums for 15 years. so i have the vibration thing. i eat well but SMOKE. ha. i always thought i mite get raynaud's for some reason...  now i have it in two fingers. i was hoping this was a big discussion group for raynaud's...
    raynaud raynaud 51-55 Jul 31, 2009

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    Hi, I'm New And I Have Raynauds.

      I've had raynauds since i was about 14, i remember back then it wasn't so bad and i must have got along fine with it. When i was in university my housemate heard a piece on the radio that described symptoms that were eerily familiar to what she'd seen with my hands. I...
    mischa91 mischa91 26-30, F 2 Responses Sep 24, 2012

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    White Fingers

    Hi, I'm 15 and have suffered from raynauds for about 3 years. At first it was not that bad and I could deal with it but its gotten really bad. I have not met anyone with it and when I tell people it hurts they dont exactly believe me. To them all they see is white wierd fingers...
    abiglass abiglass 13-15 2 Responses Jan 31, 2013

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    Apparently

    So apparently I have this thing where the blood vessels in your limbs constrict when they hit the cold. So that is why my toes and fingers turn blue when I sit too long at the computer in the winter. And why my lips turn blue when I swim. And it is also why it took me under 30...
    Allergic Allergic 22-25, F 11 Responses Jun 16, 2011

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    It Hurts

    This stupid Raynauds acts up in the cold weather making the blood vessels constrict stopping blood flow,The colors don't really hurt what hurts is when the feeling is coming back and the circulation starts again.  That's  when the pain comes .People say Oh well...
    34Einnor 34Einnor 66-70 Feb 7, 2010

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    Related Experiences

    Today I keep feeling so freezing cold though the Central Weather Bureau it's 20.9 C at 14:15 the highest temperature and it's 12.4 C at 21:45, probably because I lack social...
    ExileMyself ExileMyself 26-30, F 18 mins ago

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    Been there since November... I've got a heap of meds that ain't helping I've been seeing the physiotherapist for several months now..that's not helping either... Now he has...
    expressomarkie expressomarkie 46-50, M 4 hrs ago

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    Actually I've had more friend's here than I care to admit, but it's my own fault that I've lost most of them. There are a few reasons that I've lost so many.. some through...
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    Does it ever occur to women.. That a guy might like to have a plan.. Because he's nervous! He's not sure that he could just get to you and you'd response if he said: ' I like you...
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    Getting old fears me. True. I am shocked that i am no longer a teenager, but why is it like only my age increases? I feel like my mentality when i was a teenager is the same as i...
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    im in the early stages of carpal tunnel syndrome in my right hand. i dont wear a brace yet. i go through pain and numbness in my fingers. its kinda weird.
    noaht43 noaht43 41-45, T 2 days ago

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    Thick blood (also known as hypercoagulability, Antiphospholipids, and Hughes Syndrome) is a condition where the blood is more viscous (thicker and stickier) than normal. The...
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    There's the oldest There's the youngest There's the only boy And then there's me...
    DreamRiver DreamRiver 18-21, F 2 Responses 3 days ago

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    Another bout has struck me down, looks like another few days of severe rest. Lucky me(!)
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    Broken Heart Syndrome is real. SO happy I DiDN'T GET THAT! But I was HEARTBROKEN for MANY, MANY months. It took another guy to help me forget and keep me distracted but that dude...
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