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I Have Restless Leg Syndrome Sometimes

Personal Stories, Advice, and Support 117 People

    RLS Under Control, More Or Less

      I began having bouts of RLS when I was in my mid-70s. My physician prescribed Requip which was quite effective. I recently started having joint pain, for which my physician prescribed Tramadol. I looked up Tramadol on the Internet and found that one of its off-label...
    fric fric 70+ 1 Response Jul 18, 2008

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    I have had RLS most all my life.

    It started out mild with mostly feeling like I couldn't sit still. Over the years, it has progressed. At night, I get the antsy feeling along with my legs twitching. My poor husband has been kicked and left bruised many a night. Unless you have experienced this, you have no...
    chloe433 chloe433 56-60, F Mar 8

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    Hi Kylee Here

    hi i have this horrible restless syndrome and its just horrible.....Ive had it for a few years now though only this year i got some pills  for it called ropin which i take at night. i hate the feeling it gives esp when you cant sleep. 
    deleted deleted 26-30 1 Response Jan 26, 2011

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    xxalicerosexx xxalicerosexx 16-17, F 1 Response 2 days ago

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    A Mind of Their Own

    Once in a while I'll get RLS and it really ******' annoying! It's like my legs did a bunch of speed and didn't share with the rest of me. My legs take on a mind of their own and refuse to listen to reason. Nothing will stop them until its run it's course.
    zillaron zillaron 51-55, M 3 Responses Jul 11, 2009

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    I Hate It Like Everyone Else That Has It

    so i have rls and of course i hate it and i no that there is meds for it but my mom wont let me take it cuz its also for parkinsins... that just sucks very badly its like sometimes i feel like my legs start tensing up an di need to move them for them to loosen up other times its...
    XscreamingXinsideX XscreamingXinsideX 13-15, F Jul 19, 2009

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    Rls Symptoms Aggravated When Dieting

    I have tried dieting a number of times and find the RLS symptoms become more severe, even in the daytime.  Has anyone had similar experiences and does anyone know if there have been studies relating to whether people who have RLS are more likely to be overweight? ...
    deleted deleted 26-30 1 Response Jan 14, 2010

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    Anyone Have Any Rls Home Remedies To Try?

    Ok so I have had RLS for about 4 years now and I was previously taking 10mg of Requip but stopped because I was takling about 8 other meds with it also. I also have IBS and suffer severe migraines and have 2 herniated discs in my lower back. Enough abou that...Anyway, The RLS...
    aprilsmith128 aprilsmith128 31-35 2 Responses Jun 5, 2011

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    Bouncy Leg

    I hate when my leg starts ******* and I can't get it to stop. Bouncing up and down up and down. THe more I focus on it to try to stop, it gets faster and worse. If I put my hand down to steady it, then my other legs starts *******. I wish it was something that could be...
    deleted deleted 26-30 1 Response Jul 16, 2010

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    I Run A 10k Every Night...

    Hi All, I'm new to this group. Here's my story... 5 years ago I underwent a sleep study in the hospital. Big deal... all it did was confirm I have a 'severe and violent case of what they called PMD (periodic movement disorder)'!  The study showed that I move...
    resultscoach resultscoach 51-55, F Apr 22, 2010

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    Even With Mono

    Even when my energy levels are a third of what they usually are, I keep noticing that I'm moving or bouncing my leg. I usually do it all the time; in school, at home, on the bus, on the train, in the cinema, in restaurants. None of my friends notice it, only two people have...
    Topclasswanker Topclasswanker 16-17, M 2 Responses Feb 7, 2011

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    Heeb Be Jee Bees

    I hate the feeling of RLS, I suffered with it nightly for around the past 15 years or so.  I keep getting older.  Anyhow, I suffered nightly, and then I wondered what would happen if I ate a banana every night before bed.  My mom's Dr told her to eat a banana every...
    looneylulu looneylulu 46-50, F 4 Responses Jul 11, 2009

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    Not My Rls

    I do not personally have RLS but a close friend does.  I recently read that so research  is going on using pheumatic compression devices such as the hospitals use for bed bound patients to prevent blod clots seem to work well in the treatment of RLS.  Has anyone...
    Mars789 Mars789 70+ Jul 19, 2009

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    Yes, Sometimes I Do

    I inherited this disorder from my Mom's side of the family, and I rarely am troubled by it, thank God, but when I am, only medicine will quiet it down. My Mom has this problem FAR worse than I do, so I can't help but pity her, that way. My Dad didn't have any problems like this...
    GodsLovedMan GodsLovedMan 41-45, M 1 Response Oct 22, 2012

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    16 With Severe Rls?

    I have restless leg syndrome, but it is not sometimes, it is absolutly ALL the time.At school have have trouble concentrainting and paying attention because all I can think about is the crawling and twitching feeling in my legs with the uncontrolable urge to move.When I finally...
    Enzai Enzai 18-21, F 7 Responses Jan 26, 2010

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    White Vinegar

       I rub white Vinegar onto my legs’ and it works great.
    Dewduster Dewduster 66-70, M 24 Responses Jan 4, 2010

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    I have had RLS for almost 40 years.

    A few years ago, i had to visit my chiropractor and he asked me if I ever tried doing stretching exercises b4 bed. I have tried prescription drugs that had worked sometimes but had stopped taking them due to cost. Anyway, I have been doing exercises for about 3 years b4 bed and...
    lakeluver lakeluver 66-70, M 3 Responses Apr 21

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    Embarassing Moments With Rls

    i have had RLS for many years.  it was just a few years ago that i learned its name and that there was medicine for it. until the med i had found some exercises that helped some.  otherwise, it's just a sleepless night of walking around and doing exercises. i have found that...
    arizdove arizdove 61-65, F 2 Responses Apr 29, 2011

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    Rls Affects My Entire Life

    I don't know how long I've suffered from RLS, but I can remember as a child my mom, then my dad after mom died, rubbing my legs at night. I could not sit for long car rides, and to sit in church for an hour was a painful event. I didn't know why I had this restless feeling, and...
    jiggstrixie92 jiggstrixie92 51-55, F 3 Responses Sep 2, 2011

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    Sucks so bad and nobody knows except

    for my parents. My dad has it also. It usually only happens during cold weather by also when I'm about to fall asleep or especially when I'm at the movies-_- I can't sit or stay still for long periods of time because I get this tingly feeling in my legs and sometimes it gets so...
    yesenia33 yesenia33 16-17, F 2 Responses Dec 6, 2013

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    Suffer At Night

    I have been suffering with RLS since 2008 buy I didnt know what it was. It has gotten much worse this past year. I cant sleep at night no matter what i do. It is a terrible thing to live with....
    naynay1994 naynay1994 41-45 Sep 13, 2013

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    RLS Sucks.

    There have been many times when I had to get up out of bed and walk around just to get rid of this awful nonstop squirmish feeling in my legs.  I don't really know if this comes along with MS or not, but it sure is difficult to deal with.  My husband too, as I toss and...
    Neveah Neveah 16-17, F 2 Responses Jun 21, 2008

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    Last Night Was Horrible

    I've been searching on the net about my condition and I think I have it. My leg is sensitive to cold. It doesn't like cold breeze of fan or air conditioner. It doesn't like cold floor. It doesn't like anything cold! It's weird because only my left leg is like that. I'd sleep...
    jadeandrei jadeandrei 26-30, F 1 Response Jan 13, 2013

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    Rls Hell

          I am having a night from Hell with my restless legs....    When i first started taking requip it was awesome.  Just one Mg took care of my restless legs for a year or more.  Then  I had to up my dosage to 1 1/2  and that worked for a while.  But lately I feel the...
    letasnow letasnow 56-60 May 20, 2012

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    Really Bad Rls

    My RLS is getting out of control.  I am now taking 12mg Requip in the evening.  I started 12 last Sunday.  If I take less, forget it.  I am afraid I am building a tolerance level to this drug as I started on 1mg last February. The Requip makes...
    kerikbk kerikbk 41-45, F 3 Responses Dec 5, 2009

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    It's Hell. the Feeling Is Horrible

    It makes me feel like I need to get up and run 10 miles eventhough i'm tired and sleepy. I cannot prevent the movement. If I try to control it the leg will jerk anyways and make the nerve feeling worse. My doctor put me on something called seniment that they use for parkinsons...
    Kindal Kindal 46-50, F 5 Responses Jul 19, 2009

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    Continuous Symptoms

    I have suffered from RLS for about two years.I have been unhealthy all my life so I put the leg symptoms and pain on the back burner.But I,'ve reached a point of non stop pain.In many different forms.The worse is the fire like feeling sometimes it's as if someone is sticking a...
    112062tm 112062tm 46-50, F Jan 17, 2013

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    Magnesium, Magnesium

    I did ballet until I was 25 and always blamed that for the crampiness I felt, . .  at about 34 a chiro pointed out that I was low on magnesium, now I can recognise the muscle symptoms and dose up,. . . . haven't had restless legs in years XXX
    merran merran 41-45 Feb 15, 2009

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    Its So Annoying.

    i have RLS sometimes and its so annoying. unfortunately it runs in my family my brother has RLS all the time and has to take medicine for it. when the doctor asked him what it felt like, at five years old my brother explained it as ''my legs feel frustrated''the doctor said it...
    cantbreakfree cantbreakfree 18-21, F 5 Responses Feb 21, 2011

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    Twitching Like An Epileptic

    RLS has to be one of the most annoying afflictions known to man. All you want to do is sleep and your body just won't let you. You try and fight the feeling to move your leg, but you cant. It must be a cousin to tourettes syndrome. It doesnt happen all the time, just certain meds...
    francineo francineo 41-45, F 5 Responses May 9, 2008

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    I had what I thought was piriformis

    until it became chronic, simultaneous with my toes becoming restless. That sounded more like RLS. Then I had an inspiration and started wearing a small backpack with two fifteen pound barbells in it, and walking around or just standing with it on while I work (I paint), whenever...
    echinoderm echinoderm 51-55, M Jul 24

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    Requip Tolerance Growing?

    I have had sleep problems for many years.  The sypmtoms all point to RLS.  I began taking requip one year ago, and a 0.50 mg dose was very effective.  I have needed progressively higher doses for the same effectiveness and am now taking 3.0 mg dose.  The...
    deleted deleted 26-30 5 Responses Aug 12, 2009

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    Pills Cause It,doesnt Start In Your Brain

    all people on experience should list their meds as these are the leading cause of most of their problems.due to your herniated back you are taking meds for pain,,migrane,sleep,sinus,etc.my wife had one herniated disc and i know what agony you must be going thru.took her to...
    REDDOG444 REDDOG444 61-65 1 Response Jun 29, 2011

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    Efing Sucks.

    It is only 7 and my legs are already acting up.  It seems like they get worse the more tired you are.  It's like, all you want to do is sleep, but your legs are having those feelings and you can't.  Mine ache and I have to constantly stretch them, which...
    BellasHappyPlace BellasHappyPlace 18-21, F 1 Response Jan 3, 2010

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    I *had* Restless Legs Before It Was Common

    I had restless leg syndrome back in the mid-80's when I was about 45. I had never heard of it...and even my doctor, the head neurologist at a large hospital, had no idea what it was. It simply was not something that was fully understood back then. My doctor gave me only...
    uncorked uncorked 66-70 2 Responses Oct 17, 2008

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    Another sleepless night.

    Got stressed today and sleep will not come. Legs hurt and are creepy crawly. Meds are doing nothing. Ughhhh...........
    chloe433 chloe433 56-60, F 2 Responses Mar 16

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    Related Experiences

    And today has been the most miserable day. I've never had it throughout the day before only at night, but the three hour drive back home I felt it the whole time. Trying a new...
    amcgarity amcgarity 22-25 Sep 21

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    So about three weeks ago I got this odd pain that went from my neck into my left scapula area. I went to the chiropractor and had an adjustment. Felt somewhat better for just a...
    ornursetab ornursetab 41-45, F 1 Response Sep 21

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    I have Asperger's syndrome and so I'm quite socially awkward. People just never take me seriously or think I'm a freak. I'm almost 17 now and I'm really worried that I will never...
    vivi9298 vivi9298 16-17, F 5 Responses Oct 6

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    ...and I like it. What a crazy thing to happen right as I'm falling asleep, and sometimes it's SO LOUD! Sometimes it's my name, of all things. If anyone reads this and doesn't know...
    incorporealist incorporealist 36-40, M 1 Response Oct 9

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    hello need urgent help on cauda equina i have l4 l5 disc central disc protusion from last two years but recently i have a lot of tingling in my testicle area and from last two...
    karansapra karansapra 31-35, M Oct 8

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    I'm so over it! Getting constant cramps every day and sometimes it hurts so much I have to sit down and nearly cry. Tried going on the pill and it made the pain worse. I hardly...
    wannaplay122 wannaplay122 18-21, F 2 Responses Oct 9

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    I was diagnosed at 14 with PCOS and when the nurse told me, I just broke down and cried.. I semi expected to get it but I didn't want my fears to be true, my mum had it and a...
    BennetWitch BennetWitch 18-21, F 1 Response Oct 11

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    Asperger's Syndrome has caused me many problems regarding social behavior (what i should, and shouldn't do). I screwed up today, and am really upset about it. Hopefully you guys...
    TyphlosionWolf TyphlosionWolf 18-21, M 2 Responses Sep 20

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    12 months ago I got very serious pancreatitis caused by a vary rare hereditary condition that I have since found out I have called familial chylomicronemia syndrome or (FCS). (FCS...
    frog2000 frog2000 26-30, F Sep 27

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    Asperger’s Syndrome From another planet to earth, I look around at all the people that pile on earth’s grounds. Questioning their social norms, studying their eye contact...
    kelseytoby1337 kelseytoby1337 16-17 3 Responses Oct 11

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    People judge me a lot when they find out that I have Asperger's.
    AveryWeinstein AveryWeinstein 16-17, F Sep 21

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    I have pcos and I'm SO upset about it. I'm 20 years old & I ready wanna have kids cause I'm scared it will take me forever to get pregnant anyways! I'm not overweight but I'm so...
    lovebarbiex0 lovebarbiex0 18-21, F 1 Response Sep 22

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    I think I have Zollinger because it now takes me a LOT of Rabeprazole to suppress GERD symptoms
    RegHandford RegHandford 66-70, M 1 Response Sep 22

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    Apparently I have high functioning asbergers but low functioning autism..??? Confused!
    CheeseBomb500 CheeseBomb500 16-17, M 1 Response Sep 26

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    My sister has recently started to have severe vomiting that last up to 3-4 days, for two months. It correlates with her period. This time it was so bad she had to go to the ER...
    MissNinaBee MissNinaBee 31-35, F Sep 26