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I Have Restless Leg Syndrome Sometimes

Personal Stories, Advice, and Support 111 People

    I Run A 10k Every Night...

    Hi All, I'm new to this group. Here's my story... 5 years ago I underwent a sleep study in the hospital. Big deal... all it did was confirm I have a 'severe and violent case of what they called PMD (periodic movement disorder)'!  The study showed that I move...
    resultscoach resultscoach 51-55, F Apr 22, 2010

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    RLS Under Control, More Or Less

      I began having bouts of RLS when I was in my mid-70s. My physician prescribed Requip which was quite effective. I recently started having joint pain, for which my physician prescribed Tramadol. I looked up Tramadol on the Internet and found that one of its off-label...
    fric fric 70+ 1 Response Jul 18, 2008

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    A Mind of Their Own

    Once in a while I'll get RLS and it really ******' annoying! It's like my legs did a bunch of speed and didn't share with the rest of me. My legs take on a mind of their own and refuse to listen to reason. Nothing will stop them until its run it's course.
    zillaron zillaron 51-55, M 3 Responses Jul 11, 2009

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    Heeb Be Jee Bees

    I hate the feeling of RLS, I suffered with it nightly for around the past 15 years or so.  I keep getting older.  Anyhow, I suffered nightly, and then I wondered what would happen if I ate a banana every night before bed.  My mom's Dr told her to eat a banana every...
    looneylulu looneylulu 46-50, F 4 Responses Jul 11, 2009

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    It's Hell. the Feeling Is Horrible

    It makes me feel like I need to get up and run 10 miles eventhough i'm tired and sleepy. I cannot prevent the movement. If I try to control it the leg will jerk anyways and make the nerve feeling worse. My doctor put me on something called seniment that they use for parkinsons...
    Kindal Kindal 46-50, F 5 Responses Jul 19, 2009

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    Last Night Was Horrible

    I've been searching on the net about my condition and I think I have it. My leg is sensitive to cold. It doesn't like cold breeze of fan or air conditioner. It doesn't like cold floor. It doesn't like anything cold! It's weird because only my left leg is like that. I'd sleep...
    jadeandrei jadeandrei 26-30, F 1 Response Jan 13, 2013

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    I *had* Restless Legs Before It Was Common

    I had restless leg syndrome back in the mid-80's when I was about 45. I had never heard of it...and even my doctor, the head neurologist at a large hospital, had no idea what it was. It simply was not something that was fully understood back then. My doctor gave me only...
    uncorked uncorked 66-70 2 Responses Oct 17, 2008

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    RLS Sucks.

    There have been many times when I had to get up out of bed and walk around just to get rid of this awful nonstop squirmish feeling in my legs.  I don't really know if this comes along with MS or not, but it sure is difficult to deal with.  My husband too, as I toss and...
    Neveah Neveah 16-17, F 2 Responses Jun 21, 2008

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    Rls Symptoms Aggravated When Dieting

    I have tried dieting a number of times and find the RLS symptoms become more severe, even in the daytime.  Has anyone had similar experiences and does anyone know if there have been studies relating to whether people who have RLS are more likely to be overweight? ...
    deleted deleted 26-30 1 Response Jan 14, 2010

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    Magnesium, Magnesium

    I did ballet until I was 25 and always blamed that for the crampiness I felt, . .  at about 34 a chiro pointed out that I was low on magnesium, now I can recognise the muscle symptoms and dose up,. . . . haven't had restless legs in years XXX
    merran merran 41-45 Feb 15, 2009

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    Requip Tolerance Growing?

    I have had sleep problems for many years.  The sypmtoms all point to RLS.  I began taking requip one year ago, and a 0.50 mg dose was very effective.  I have needed progressively higher doses for the same effectiveness and am now taking 3.0 mg dose.  The...
    deleted deleted 26-30 5 Responses Aug 12, 2009

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    Pills Cause It,doesnt Start In Your Brain

    all people on experience should list their meds as these are the leading cause of most of their problems.due to your herniated back you are taking meds for pain,,migrane,sleep,sinus,etc.my wife had one herniated disc and i know what agony you must be going thru.took her to...
    REDDOG444 REDDOG444 61-65 1 Response Jun 29, 2011

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    Even With Mono

    Even when my energy levels are a third of what they usually are, I keep noticing that I'm moving or bouncing my leg. I usually do it all the time; in school, at home, on the bus, on the train, in the cinema, in restaurants. None of my friends notice it, only two people have...
    Topclasswanker Topclasswanker 16-17, M 2 Responses Feb 7, 2011

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    Continuous Symptoms

    I have suffered from RLS for about two years.I have been unhealthy all my life so I put the leg symptoms and pain on the back burner.But I,'ve reached a point of non stop pain.In many different forms.The worse is the fire like feeling sometimes it's as if someone is sticking a...
    112062tm 112062tm 46-50, F Jan 17, 2013

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    Suffer At Night

    I have been suffering with RLS since 2008 buy I didnt know what it was. It has gotten much worse this past year. I cant sleep at night no matter what i do. It is a terrible thing to live with....
    naynay1994 naynay1994 41-45 Sep 13, 2013

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    Yes, Sometimes I Do

    I inherited this disorder from my Mom's side of the family, and I rarely am troubled by it, thank God, but when I am, only medicine will quiet it down. My Mom has this problem FAR worse than I do, so I can't help but pity her, that way. My Dad didn't have any problems like this...
    GodsLovedMan GodsLovedMan 41-45, M 1 Response Oct 22, 2012

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    Not My Rls

    I do not personally have RLS but a close friend does.  I recently read that so research  is going on using pheumatic compression devices such as the hospitals use for bed bound patients to prevent blod clots seem to work well in the treatment of RLS.  Has anyone...
    Mars789 Mars789 70+ Jul 19, 2009

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    Twitching Like An Epileptic

    RLS has to be one of the most annoying afflictions known to man. All you want to do is sleep and your body just won't let you. You try and fight the feeling to move your leg, but you cant. It must be a cousin to tourettes syndrome. It doesnt happen all the time, just certain meds...
    francineo francineo 41-45, F 5 Responses May 9, 2008

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    Bouncy Leg

    I hate when my leg starts ******* and I can't get it to stop. Bouncing up and down up and down. THe more I focus on it to try to stop, it gets faster and worse. If I put my hand down to steady it, then my other legs starts *******. I wish it was something that could be...
    deleted deleted 26-30 1 Response Jul 16, 2010

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    Sucks so bad and nobody knows except

    for my parents. My dad has it also. It usually only happens during cold weather by also when I'm about to fall asleep or especially when I'm at the movies-_- I can't sit or stay still for long periods of time because I get this tingly feeling in my legs and sometimes it gets so...
    yesenia33 yesenia33 16-17, F 2 Responses Dec 6, 2013

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    I have had RLS most all my life.

    It started out mild with mostly feeling like I couldn't sit still. Over the years, it has progressed. At night, I get the antsy feeling along with my legs twitching. My poor husband has been kicked and left bruised many a night. Unless you have experienced this, you have no...
    chloe433 chloe433 56-60, F Mar 8

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    Hi Kylee Here

    hi i have this horrible restless syndrome and its just horrible.....Ive had it for a few years now though only this year i got some pills  for it called ropin which i take at night. i hate the feeling it gives esp when you cant sleep. 
    deleted deleted 26-30 1 Response Jan 26, 2011

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    I had what I thought was piriformis

    until it became chronic, simultaneous with my toes becoming restless. That sounded more like RLS. Then I had an inspiration and started wearing a small backpack with two fifteen pound barbells in it, and walking around or just standing with it on while I work (I paint), whenever...
    echinoderm echinoderm 51-55, M Jul 24

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    Rls Hell

          I am having a night from Hell with my restless legs....    When i first started taking requip it was awesome.  Just one Mg took care of my restless legs for a year or more.  Then  I had to up my dosage to 1 1/2  and that worked for a while.  But lately I feel the...
    letasnow letasnow 56-60 May 20, 2012

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    16 With Severe Rls?

    I have restless leg syndrome, but it is not sometimes, it is absolutly ALL the time.At school have have trouble concentrainting and paying attention because all I can think about is the crawling and twitching feeling in my legs with the uncontrolable urge to move.When I finally...
    Enzai Enzai 18-21, F 7 Responses Jan 26, 2010

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    Really Bad Rls

    My RLS is getting out of control.  I am now taking 12mg Requip in the evening.  I started 12 last Sunday.  If I take less, forget it.  I am afraid I am building a tolerance level to this drug as I started on 1mg last February. The Requip makes...
    kerikbk kerikbk 41-45, F 3 Responses Dec 5, 2009

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    I Hate It Like Everyone Else That Has It

    so i have rls and of course i hate it and i no that there is meds for it but my mom wont let me take it cuz its also for parkinsins... that just sucks very badly its like sometimes i feel like my legs start tensing up an di need to move them for them to loosen up other times its...
    XscreamingXinsideX XscreamingXinsideX 13-15, F Jul 19, 2009

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    Another sleepless night.

    Got stressed today and sleep will not come. Legs hurt and are creepy crawly. Meds are doing nothing. Ughhhh...........
    chloe433 chloe433 56-60, F 2 Responses Mar 16

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    I have had RLS for almost 40 years.

    A few years ago, i had to visit my chiropractor and he asked me if I ever tried doing stretching exercises b4 bed. I have tried prescription drugs that had worked sometimes but had stopped taking them due to cost. Anyway, I have been doing exercises for about 3 years b4 bed and...
    lakeluver lakeluver 66-70, M 2 Responses Apr 21

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    Its So Annoying.

    i have RLS sometimes and its so annoying. unfortunately it runs in my family my brother has RLS all the time and has to take medicine for it. when the doctor asked him what it felt like, at five years old my brother explained it as ''my legs feel frustrated''the doctor said it...
    cantbreakfree cantbreakfree 16-17, F 5 Responses Feb 21, 2011

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    White Vinegar

       I rub white Vinegar onto my legs’ and it works great.
    Dewduster Dewduster 66-70, M 24 Responses Jan 4, 2010

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    Rls Affects My Entire Life

    I don't know how long I've suffered from RLS, but I can remember as a child my mom, then my dad after mom died, rubbing my legs at night. I could not sit for long car rides, and to sit in church for an hour was a painful event. I didn't know why I had this restless feeling, and...
    jiggstrixie92 jiggstrixie92 51-55, F 3 Responses Sep 2, 2011

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    Efing Sucks.

    It is only 7 and my legs are already acting up.  It seems like they get worse the more tired you are.  It's like, all you want to do is sleep, but your legs are having those feelings and you can't.  Mine ache and I have to constantly stretch them, which...
    BellasHappyPlace BellasHappyPlace 18-21, F 1 Response Jan 3, 2010

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    Anyone Have Any Rls Home Remedies To Try?

    Ok so I have had RLS for about 4 years now and I was previously taking 10mg of Requip but stopped because I was takling about 8 other meds with it also. I also have IBS and suffer severe migraines and have 2 herniated discs in my lower back. Enough abou that...Anyway, The RLS...
    aprilsmith128 aprilsmith128 31-35 2 Responses Jun 5, 2011

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    Embarassing Moments With Rls

    i have had RLS for many years.  it was just a few years ago that i learned its name and that there was medicine for it. until the med i had found some exercises that helped some.  otherwise, it's just a sleepless night of walking around and doing exercises. i have found that...
    arizdove arizdove 61-65, F 2 Responses Apr 29, 2011

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    Related Experiences

    I have had RLS for about 5 years. It started after I tore my hamstring from my sits bone. At first it was constant. I couldn't sleep, I couldn't stand in one place for long or...
    debbiedee623 debbiedee623 51-55, F 1 Response 4 days ago

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    I have been diagnosed with Asperger syndrome. Sometimes it just seems like it doesn't fit at all except the unsocial part as most of my routines has fallen apart well I guess this...
    Joiss Joiss 18-21, M 1 Response Aug 10

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    I used to really hate myself, I honestly did. But now, I'm happy I have what I have. When I was in elementary school, I never talked to anyone, I would walk around the playground...
    ThatRobotChick ThatRobotChick 18-21, F 1 Response 18 hrs ago

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    All my life, I’ve felt different, like I just don’t quite belong in any group that I’m a part of. Trying to fit in has led to me to trouble. I’ve drank heavily, smoked weed...
    empoweredh22 empoweredh22 22-25, M 1 Response Aug 16

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    I am at a loss and need some help! I went to urgent care in February because I had this horribly terrible rash that itched uncontrollably and was painful. I had clusters of what...
    SweetJFowler SweetJFowler 26-30, F 1 Response Aug 17

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    I actually don't know for sure if I have Sjogren's; my second appt with the rheumy isn't until the 19th. I've had horrible dry mouth, throat, eyes, etc., for a while now (3+yrs). I...
    Notasouthernbelle Notasouthernbelle 36-40, F 3 Responses Aug 6

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    Calling all women with POS!!! I haven't had a period in a year. The past week or so I have been lightly spotting with severe cramps. Yet still no period! Has this happened to...
    TheUnpredictable9 TheUnpredictable9 18-21, F Aug 11

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    I have had raynauds since at least 4 years old, but I didn't know what it was until about 13yrs old. This disease has been so frustrating because I feel like nobody understands it...
    allisondela allisondela 18-21, F Aug 14

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    My doctor put me on levelen and told me to skip the white pills, so that I wouldn't ovulate. She told me to take the while pills once every six months to allow my body to keep...
    ChloeMaay ChloeMaay 18-21, F Aug 16

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    https://www.kickstarter.com/projects/2084036675/artistic-autistic-awareness?ref=email My Kickstarter application is finally live. I have autism and I find the preconceptions...
    TheNakedPoet TheNakedPoet 41-45, M Aug 18

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    I need help I can't find a girl that likes me and I mange to suppres. My tics really well and you would only really know if someone told you and well I think the girls I try to get...
    Sproketsocet Sproketsocet 18-21, M 2 Responses Aug 20

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    I am always looking for ways to meet up with other people who have aspergers in public sessions but here in Cheshire the only options are specialist social events such as the...
    gc12091985 gc12091985 26-30, M 2 Responses 3 days ago

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    Last night, I my wife took the clipper and shaved ALL my hair below my neck. My chest, back, shoulders, bums, front and legs! I already feel so naked and sexy, I can't imagine what...
    SoumisCH SoumisCH 41-45, M 1 Response Aug 17

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    I love my legs and I think they're very sexy
    cjohnson1983 cjohnson1983 31-35, F 3 Responses 2 days ago

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    It comes and goes, sometimes I'll encourage it and other times I'll ignore it. Kind of like an obnoxious friend :P
    FallingUp23 FallingUp23 13-15, M Aug 4

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    I have a dirty mind all the time. I just can't help it :)
    abbeyx69 abbeyx69 13-15, F 7 Responses Aug 17