I Have Russell Silver Syndrome

Russell Silver Syndrome anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Russell Silver Syndrome. You're not alone. 38 People

    Russell Silver Syndrome

    My nephew, he will be 10 months the 21st. He was just diagnoised last month. His mother and grandparents are having a hard time dealing with it. Can anyone give positive and negative advice that will get them through this???
    ashleymartin081285 ashleymartin081285
    22-25
    5 Responses Jul 5, 2009

    Hi my name is Edward,

    I was diagnosed with Russell Silver Syndrome when I was every young. I'm 18 now and about to go off to college. My whole life I have known about my condition and been very open with sharing about it to people, even doing presentations to some of my science classes in my school...
    EdwardLayman EdwardLayman
    18-21, M
    1 Response Mar 17, 2015

    18 Year Old Looking For Kindred Spirits. People With Rss That Understands Me.

    My name is Terric, I am fun, outgoing and love to sing. I am also 4'7" and weigh 70 pounds. I am not afraid to play football or basketball with normal sized people, but it is hard to date. I just wish I knew others who were like me. I think it would be so much easier to maintain...
    terrickb terrickb
    18-21
    5 Responses Oct 28, 2012

    I have Russell silver syndrome.

    It has given me health problems,I am way under the average weight for a normal 15yr old, I am 4'9 and will no longer grow.
    Lilred17 Lilred17
    18-21, F
    Jul 13, 2014

    I was born weighing two pounds

    and couldn't eat on my own. I wasn't eating food of any kind and was diagnosed with RSS when i was an infant. At first i was put on a N G tube (a tube that went down my nose and into my stomach) and then was put on a G tube (a Micky Button). I didn't eat at all during the day...
    RTKDcarmichael1stdegree RTKDcarmichael1stdegree
    22-25, M
    1 Response Feb 25, 2015

    Lost 6lbs in one year.

    With a severe growth hormone deficiency that's dangerous. I'm losing a lot of hair and I can't eat as much as I used to, every time I try to eat a lot I get nauseous. And my energy levels are terrible. Now my doctor is having me a thousand blood tests to see if we missed...
    Lilred17 Lilred17
    18-21, F
    Sep 2, 2015

    Silver Rusell

    -- My 9 year old sons also diagnosed with silver rusell, still, look like 5 year old. I am very much interested to know your experience and how your son looks now. I am very worried as can not go for growth hormone treatment very long as this is expensive in India. We gave her...
    bhawna bhawna
    31-35
    5 Responses Jun 16, 2009

    Now Things Adds Up With The First 11 Years Of His Life

    My son who is almost 12 has delt with alot of medical problems one being very under weight and under height among many other medical issues such as migrains, heart murmur and ADHD. Knowing what i know now the problem started with his first bottle feeding in the hospital. December...
    LittleMan2000 LittleMan2000
    41-45, F
    2 Responses Nov 11, 2012

    I've noticed that this topic is followed by

    quite a few parents of children with RSS, as well as young persons who are looking for others who can relate to them, so I thought I should make this post to help some people. This is a short account of my struggles with mild asymmetry and short stature. I'm currently 19 years...
    EmbracetheInfinite EmbracetheInfinite
    18-21, F
    3 Responses Jun 23, 2014

    Success Story

    Do not fear - there is much you can do to help your RSS kids and a positive future in to look forward to!  My son was diagnosed as infant - 3.5 lbs at full-term birth with leg length discrepancy.  He's been on growth hormone since 3 - is average height / weight and...
    lcarter26 lcarter26
    46-50
    Jul 7, 2011

    Hi Folks

    hello, my son has rss and my wife and i were looking for a nice support group. our son is 5, he weighs 21lbs. no mental issues, he's as sharp as any 5 yr old. he starts school this year and my wife is so worried about him getting bullied. im assuming he'll be placed in a special...
    catfish05 catfish05
    36-40
    5 Responses Jul 10, 2011

    Hi all. My daughter has just been diagnosed

    with Russell Silver Syndrome. She is 15 months old, 71cm in height and weighs 15lb 14oz. We literally got told last Friday. My husband and I have had our bloods taken to find out if she got enough growth hormone at point of conception or if the growth hormones she got were...
    nolanl1 nolanl1
    31-35, F
    Nov 12, 2015

    I am 15 years old I have Russell Silver

    Syndrome however the doctors did not diagnose me until I was 13 luckily I don't have all of the side effects however I am only 4'9 and nowhere near a normal weight for my age, I don't like going clothes shopping with my friends as I can't get clothes from the adult section and...
    UNIJordanQUE UNIJordanQUE
    16-17, F
    3 Responses Sep 3, 2014

    Ho La Silver Russel :)

    ciao a tutti,sono Nicola un ragazzo di 14 anni abitante in Italia, sono affetto dalla silver russel da appena nato,sono un ragazzo di piccola statura con le solite caratterictiuche della malattia; non mi lamento i questa malattia anzi io ringrazio di essere affetto da una...
    nicolaventimiglia99 nicolaventimiglia99
    16-17, M
    1 Response Nov 15, 2013

    I'm a 20 year old male from Australia with

    Russell Silver Syndrome and I hate it. I have learning disabilities because of it, girls aren't interested in me because they think I'm not attractive or they just don't see anything good in me because of it, I've been rejected a lot. I have often been bullied, been called...
    Madferit95 Madferit95
    18-21, M
    2 Responses Oct 27, 2015

    20 Years Old With Russell Silver Syndrome With A Baby On The Way :)

    Hello I am a 20-year-old Woman who was diagnosed with Russell Silver Syndrome when I was an infant. I am here to say that having RSS, I was the most outspoken and social throughout my child/high school years :) I am happily married with a baby on the way. I don't ponder on RSS...
    BlessedMini BlessedMini
    22-25, F
    5 Responses Jul 28, 2012
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