I Have Sacral Agenesis

A Sacral Agenesis anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Sacral Agenesis. You're not alone. 19 People

    A Bit More Info On My SA...

    In a follow up to my earlier story, a little more info. I was born with the condition SA and have a sister who has not got the condition. My legs never developed properly so they were amputated at about 18 months of age. My condition does cause me problems with bladder control...
    Davyoda Davyoda
    1 Response Feb 13, 2013

    I'm 31 Years Old And Have Sacral Agenesis.

    I was diagnosed with sacral agenesis at a very young age. My mother knew continued to tell the doctors that something wasn't right. They kept telling her that she needed to relax and not push me in the potty-training process. Soon enough, they finally looked into it and did in...
    2 Responses Jan 14, 2013

    Fertility And All That Jazz

    As a guy with SA I've been trying to find out what the chances of having children might be with my condition. If anyone has any good sites to check out or stories to share I would be very grateful..
    Davyoda Davyoda
    1 Response Feb 11, 2013

    I was born with SA so have various issues such

    as incontinence, erectile dysfunction etc.. Just recently I have been looking into ways of pleasuring myself with what I have. I read about prostate massage and invested in massager but due to my condition I am having trouble finding my prostate.. Any advice on this would be...
    Davyoda764 Davyoda764
    51-55, M
    1 Response Jan 24, 2014

    Hey Guys/Girls im a 16 year old guy

    and i have SA. I was born with the condition and had the same things said to my parents like everyone else with SA has been told blah blah blah. Anyway obviously i wasn't going to ever be able to walk and we were told that very early on. Unlike a lot of people my legs were never...
    JackColbert5 JackColbert5
    18-21, M
    1 Response Dec 6, 2013

    My Story

    This is not something i planned on doing one day at 3 in the morning.  The mind wanders, and after a long time of searching i found something... remotely close to what i was looking for.Somebody else with the same disease.  I can't say its a burden, but i can't call it a gift...
    Cotton21 Cotton21
    5 Responses Aug 28, 2011

    I Have Sa

    Hello,I'm a female, 29 (soon to be 30) yr old and was born with SA. I don't know anyone else with my same/similar condition, and recently, I have been going online and searching for people to connect with. I have been encountering peoples' stories and it has been comforting in...
    chyatt82 chyatt82
    2 Responses Mar 24, 2012

    Hi Guys/ Girls. I Am 33 and have SA as well.

    I have also never met anyone that I know had SA. I guess no one is going to come out and tell you . I don't tell people . Glad to have found this group. After reading some of the other things people have written I feel safe to elaborate a little.   I have had various issue with...
    DianaOfThemyscira DianaOfThemyscira
    31-35, F
    1 Response Jan 25, 2013
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