A SAPHO Syndrome anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with SAPHO Syndrome. You're not alone.
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Members Sharing the Experience "I Have Sapho Syndrome"
16 Members
This Experience at a Glance
Story highlights
These snippets show some of the most common themes mentioned in this experience's stories:
These snippets show some of the most common themes mentioned in this experience's stories:
- " it was only 10 years ago that I finally found out what was wrong with me - I had had yet another set of Xrays and my Orthapedic Consultant said there was nothing wrong with my bones - at this stage I started to cry, I couldn't understand how I was in so much pain with my bones and was being told there was nothing wrong - the Consultant called in one of his Radiologists to get a second opinion and..."
And the Story Awards Go to...
Most Popular: Do I Really Have Sapho?
Most Recent: Fellow Sapho Suffer
Statistics:
44% of people who have this experience are in their thirties, 25% are in their fifties, and 25% are in their forties. 100% of people who have this experience are women.
You may cite any I Have Sapho Syndrome statistics, provided you link back to this page
Check out this group's What Is It Like To Have Sapho Syndrome guide, where people with this experience share their tips and hints.
Members said this page is also related to:
Do You Have Sapho Syndrome? , What is it like to Have Sapho Syndrome? ,Have Sapho Syndrome personal stories, Have Sapho Syndrome personal experiences
Other experience groups that have been combined into this group include: None yet.
Other experience groups that have been combined into this group include: None yet.
This is an experience group where everyone says: I Have Sapho Syndrome. It features support, personal stories and experiences, advice, chat, talk, forums, videos, pictures and resources from real people, just like you.
It's free to join, and the people in this group would love to meet you! If you've had this experience, or plan on having it in the future, simply click 'Me Too' or 'Plan To' and add it to your experiences. As you add more experiences, we're better able to
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