I Have Sapho Syndrome

I was married 32 years and serving jehovah. I had a heart attack I died and was given a 2nd chance at life. At heart rehab I met a wonderful guy we became freinds then more. I didn't plan on this tohappen howevder I was molested at 16...

Hi all,for those who think they have SAPHO Syndrome, think again - it is an extremely hard Syndrome to diagnose - I was constantly going to Orthapedic Specialists for years with pain in my bones and always told there was nothing wrong...

I have been told that I exhibit the many symptoms of SS.... All I know is the things I have tried to comat the various symptoms help minimally..... What symptoms are you experiencing? I experience episodic fatigue, muscle...

I have recently been diagnosed with SAPHO syndrome after being basically fobbed off for years
I have complained of painful and aching shoulder joints since the age of 13 and been repeatedly told it was just inflamed rotary cuffs and...

I was diagnosed by a Rheumatologist with Sapho syndrom 5 years ago after a MRI scan showed changes in my spine.   Since that time the only symptoms that I have are a mild case of Psoriasis under the hair line on my neck and...

Im 16, and when i was 8 years old i complained of backpain, my parents took me to the doctors where they said it was growing pains. a few weeks later my parent took me to hospital because i was complaining of back...

I started having back pain in my teens. But the really bad stuff started in July of 2009. Excruciating Chest pain that began in my sternum and has now taken over my entire ribcage. I was DX'd with Undiffrentiated Spondylitis which...

Its all a little scarey and overwhelming at the moment. Treatment options are very limited as I am still breastfeeding my baby and would really like to have another one. This leaves me with some difficult decisions.
Does anyone know if...

Hi, there is a page on Facebook that is dedicated to Sapho syndrome and people get together to share their stories in large numbers for this rare illness. It is very helpful to hear people's results on different treatment and just...

I can't believe I finally found someone else who suffers from Sapho I thought I was going mad with the symptoms of painful flare ups which. Nothing seems to help