I Have Satoyoshi Syndrome

A Satoyoshi Syndrome anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Satoyoshi Syndrome. You're not alone. 8 People

    20 Years... No Answer

    If you have read any of the literature on this "syndrome" you know that it is beyond rare with around 50 diagnoses worldwide since 1967.  As my title suggests, it took me 20 years to get an answer to what was happening to me.  When I was 5, I started Kindergarten and...
    amwshorter amwshorter
    26-30, F
    1 Response Feb 10, 2010

    The Reason I Hate Myself...

    I have Satayoshi Syndrome. It started about 8 years ago. I know I had less hair that all the other girls, but my doctor just told me that I had thin hair. The spasms started but everyone said it was because I was overdoing sports. After a while, they worsened and when I returned...
    abnormalgirl abnormalgirl
    22-25, F
    5 Responses Feb 24, 2013

    Treatment Or Torture?

    I have been through practically every muscle and neuro medication to try to stop the muscle cramps associated with this monster.  Late last summer, I ended up in the hospital with low Vitamin K levels and was quickly admitted for a week.  It was here that I met my...
    amwshorter amwshorter
    26-30, F
    1 Response Feb 22, 2010
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