I Have Schamberg's Disease

Schamberg's Disease anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Schamberg's Disease. You're not alone. 137 People

    I have a daughter with Schamberg's disease.

    She is only 4 years old. I noticed it when she was 2 1/2 and tried to get it diagnosed ever since. I've ready MANY professional articles and inputs from people with the same diagnosis and came upon this site. My question to you all is have any of you experimented with your food...
    Mindajr Mindajr
    31-35, F
    Nov 12, 2015

    Schamberg Solution - Yes

    Well let's say I had Schamberg's disease. 20 years ago I was diagnosed with this most uncomfortable disease, diagnosis was from a biopsy. For 12 years I had a severe case that went from the belt line to my feet. My socks were always bloody around my ankles and I itched like crazy...
    jimahl jimahl
    61-65
    5 Responses Sep 14, 2008

    My Story With Shaumbergs

    I learned I had Shaumbergs a little over 2 years ago and for me, it hasn't become much of a problem.  I was seeing my rheumatologist for fibromyalgia which is my major health problem along with migraines and he noticed that I had this rash on my legs.  I had noticed it somewhat...
    barblovesroses barblovesroses
    51-55
    1 Response Jan 29, 2012

    I have not had an official diagnosis,

    but I'm very confident I have Schamburg's disease. I've had plenty of blood work, and a biopsy in 2008. I have seen two primary care doctors times, and an oncologist. All say I appear healthy and can only shrug their shoulders. I have a referral to Johns Hopkins, a top medical...
    luganute luganute
    31-35, M
    Sep 26, 2015

    Diagnosed 55years Ago.when I Was 19.

    The only thing I,ve noticed over the years is increased itchiness . I,m long past worrying about the appearance of my legs. It seems they bother me more at night now.
    1959rn 1959rn
    70+
    Oct 28, 2012

    I first developed a rash on

    both of my arms in 2008. Since then I have seen 9 doctors and the 9th doctor was the first one who could identify the rash. He told me there is no medication and the only treatment was ultra violet treatments. I have had six and it is worse then it has ever been. I see the...
    Anstead Anstead
    70+, F
    1 Response Sep 16, 2014

    My Mom Cured Me Of My Schamberg Disease.

    I havent had Schambergs now for near on twenty years. I had it for around 4 years. One would turn up on my leg somewhere. Small at first then it would start to get bigger and slowly it would move. It would be very itchy and unsightly. Specialist said it was the brown variety. My...
    luckyone05 luckyone05
    46-50, M
    1 Response Sep 22, 2012

    Schamberg Cure?

    About a year ago, I noticed a small red patch on the side of my waist. It was scaly and pretty itchy. I thought nothing of it and thought it was just my eczema. A year later and I see that the spots have grown even more. I freaked out and hoped it wasn't anything serious to my...
    michelle21689 michelle21689
    22-25, F
    4 Responses Aug 28, 2012

    Schamberg'S Disease

    I was diagnosed with Schamberg's disease back in 2007 and i haven't had a sign of it again until 2 weeks ago ...Everyone that see's it on my legs will say it looks like you have ring worm ..I understand there is a cream that Avon puts out  and it is called ANEW LASER FOR LEGS so...
    sanblair sanblair
    66-70, F
    2 Responses Jun 17, 2013

    I've Had Schamberg's For About 6 Months And I Think I Finally Found Something That Works!

    Hi Everyone, I am a 33 year old female and have had a bad case of Schamberg's for about 6 months now. I realized that I think it's been coming and going for a few years now, but it was only a small spot or patch and it would go away on it's own. About six months a go I had a...
    mhmaria mhmaria
    36-40
    4 Responses Sep 1, 2013

    Spots Disappearing After 12 Years

    Twelve years ago I was diagnosed with Schamberg's Disease which the doctor said was the worse case he had ever seen. I had spots on top of my feet, lower and upper legs front and back, stomach , inside of arms and under arms. I had thousands of spots. For several years I tried...
    coastallady coastallady
    61-65
    3 Responses Oct 29, 2009

    I Was Diagnosed With Schamberg's Disease Last Month.

    It appeared as a red rash around both ankles, this was a day that I had been walking for 7 hours. This was on a Thursday There was no itching or pain, just the rash. I went to a family dr Friday morning. He had no idea what it was. On Monday, I went to the dermatologist...
    haleymax haleymax
    66-70
    Nov 18, 2013

    I Have Schambergs For Over 16 Yes

    Hi, my name is Trisha and I have had schambergs for over 16 years now . Wasn't diagnosed till late I saw 2 physicians who had no clue, then the derm Said take a biopsy. They came back schambergs. Derm and doctor Just printed stuff on the Internet for me and said there wasn't much...
    Candycorncats Candycorncats
    36-40
    3 Responses Jul 24, 2011

    Capillaritis Update - Phototherapy Plus

    Update 1/13/2013: I'm happy to report that more two and a half years after my first petechiae patches appeared, I seem to have found a solution for my symptoms. While my disease is probably capillaritis (leaky capillaries) as opposed to Schamberg's (which often includes symptoms...
    RunningR RunningR
    26-30
    3 Responses Dec 9, 2010

    Schamberg'S

    I am a 38 year old female recently diagnosed with this. Its been very frustrating with the doctor telling me there is no cure and to continue to take steroids that make me feel awful. It has affected both my lower legs with many bright red spots now spreading once I stop taking...
    brandeejean brandeejean
    41-45, F
    Mar 2, 2013

    My Schamberg'S Disease Story And Effects Of High Levels Of Vitamin C

    Four weeks ago after visiting several doctors a dermatologist finally diagnosed me with Schamberg's Disease. The dermatologist told me that it could take up to six months to clear. I went online and read everything I could find to try to find answers to all my questions. Three...
    caliorange caliorange
    41-45
    1 Response Apr 7, 2013

    The Only Thing Thathas Worked For My Schamberg's Breakouts...

    Hello fellow sufferers! I've had to deal with this scourge for years. I was diagnosed at 16 - I'm now 48! I will usually have a terrible breakout, and then go for a year or two with clear legs. When I was younger, the only thing any doctor would give me was a script for fancy...
    Besprizornye Besprizornye
    46-50
    1 Response Mar 3, 2012

    Shambergs - Vitamin C Worked For Me

    I was diagnosed with shambergs disease 3 weeks ago. Six weeks prior I developed a rash on the front of both my lower legs, side and underneath feet and a little bit on my hands. I thought I'd had a reaction to something so took antihistimine for a week, but having no...
    kiwigirl9 kiwigirl9
    31-35, F
    12 Responses Sep 24, 2011

    Don't Look At My Leg

    I'm 18 and a female, like other girls I like showing my legs, but no, I have this ring worm looking spot that spreads, its dumb. Anyways I got a biopsy and they said it wouldn't scar and found out I have schambergs, this would happen. It did scar so now my leg is more noticable...
    hotcflyer hotcflyer
    18-21
    2 Responses Nov 10, 2012

    Schamberg Frustration

    I was diagnosed with Schamberg's this past week.  I guess I should be relieved that at least I now have a name associated with all the symptoms but instead I feel worse.  My doctor appeared very flippant saying"No known cause, no cure, no treatment. You...
    hope4444 hope4444
    51-55, F
    5 Responses Sep 27, 2009

    20 Years Later It Returned

    When I was 19 I got massive red dots when I landed in Mexico on a school trip, they must have formed while on the plane. I had to wait until I returned to Canada to see a doctor. Test after test no idea what caused it. My dermatologist said it was Vasculitis Purpora. Never knew...
    Sun2011 Sun2011
    36-40
    3 Responses Nov 7, 2011

    Pepper Dash Mommy

    after 12 years of having my rash have just been told its schamberg disease! only to be told there is no cure!! just my luck,glad ive found others like me and that they have found their own cures, will defently give them a try as legs ent seen sun in a while!!!
    butt21 butt21
    41-45
    Nov 26, 2012

    Shambergs A Right Pain

    Well it took 12 months and many creams tried which did nothing for my GP to refer me the dermatology dept at our local hospital! 10 months later my appointment came through ! what started with itchy redness on one leg has now developed onto both legs both arms all over my...
    tinman28 tinman28
    51-55, M
    Sep 28, 2012

    My Experience With Schamberg's

    At the beginning of this year, I noticed a spot on the back of my leg that looked like it was made up of multiple red dots. I showed it to my husband and he mentioned that maybe it was a bruise... the capillaries looked broken. I didn't think much of it, but over the next few...
    simplyjodie simplyjodie
    31-35
    6 Responses Apr 17, 2012

    I Was Treated In Just A Little Over A Year!!

    Hi everyone, I just wanted to let you know about the course of treatment I took in order to get rid of my spots. A little over a year ago I discovered my first spot. It remained the only one until about 6 months later when I would find a new spot or two somewhere on my body. It...
    hopeitwillhelpyou hopeitwillhelpyou
    31-35, F
    1 Response Sep 14, 2013

    All In The Family?

    So I'm 22, a college girl who's always been proud of my long legs and usually running around barefoot, in a tank top and shorts, on the sunniest of days, burning and tanning. My grandma passed away this past winter from T cell lymphoma, cancer of the T cells which led to severe...
    rosalieren rosalieren
    22-25, F
    1 Response Jun 26, 2012

    There Is Hope!

    Hi everyone! I was diagnosed with Schamberg's disease last year. It started with this weird rash on my inner thigh and then spread to my shins and forearms. Doctors told me there was nothing I could do. I was devastated at the thought of having an incurable disease for the rest...
    kortnisamaha kortnisamaha
    18-21
    3 Responses Feb 20, 2011

    Diagnosed Yesterday...

    Hi! I have had orange spots for over 6 months, but first I thought it was an allergie, then 2 doctors failed to provide a proper diagnosis. I was diagnosed yesterday, but after reading online I found it odd the dermatologist didn't request  exams... However, I'm quite...
    isabeau82 isabeau82
    26-30, F
    2 Responses Feb 18, 2009

    I Hate It!

    I am a 34 year old woman and I was diagnosed with Schamberg's disease in March. I had the first episode in late October with brownish red patches on my lower limbs. I went to 3 doctors who gave me diagnosis varying from psoraisis to eczema. Because Schamberg's apparently has no...
    soniash soniash
    31-35
    2 Responses Jul 15, 2011

    My Diagnosis

    I recently got diagnosed with this disease but before I did they were certain it was ring worm. After several treatments they had to do a biopsy just to say they did not know what this was and after sending it to a different facility this is what I got back..that is was...
    ashley20121 ashley20121
    22-25, F
    2 Responses Oct 9, 2012

    I Was Diagnosed June 10 2010 With Schamberg's.

    I had a spot on my left leg 4 year ago size of a quarter and my doctor told me it was exema.  I was given number of different steroid creams but it didn't help I was told tanning was good for exema I tried that and it was looking good.  Two week ago my doctor send me...
    50u4eorpj0 50u4eorpj0
    51-55
    6 Responses Jun 11, 2010

    Seeing Results For The First Time In 2 Years

    In August 2011 I found a couple of red spots on my foot and tried to self treat with anti-fungals. Three months later there were three or more patches of spots on each foot or ankle, and I went to my GP to see if they could identify them. None of the Drs had seen it before, and...
    sumax sumax
    56-60
    3 Responses May 27, 2013

    I was recently diagnosed (April 2015) with

    "progressive pigmented purpura," specifically Schamberg's disease. I noticed small clusters or patches of orange-brown "pin-*****" dots on my legs and some of them went away while more formed in other places. My dermatologist initially thought it was nummular dermatitis that was...
    JulieAndBailey JulieAndBailey
    22-25
    Dec 8, 2015

    I Have Schamberg' S Disease...................

    I was just diagnosed last week with Schamberg's disease. My dermatologist told me it is not serious. He told me the rash on my lowere legs will fade.
    Prinney Prinney
    56-60
    Nov 20, 2012

    New To The Disease

     I am 48 and have always tanned and do drink Alcohol ,Just found out what the bothersome red rash like bumps were on my lower legs, Schamberg's , someone posted that drinking and tanning contribute to there's... it all started on my right leg, about the same time my foot Dr told...
    Mrsb401 Mrsb401
    46-50
    1 Response Jan 30, 2012

    Just Diagnosed With Schamberg's Disease

    Hi all, I'm a 41 year old female, Mother of 2, and work full time. My health background: I am in overall pretty good health, with mild asthma and allergies. I started getting allergy shots last May, and have build up a tolerance, now going only once a week. I was diagnosed...
    Aleigho Aleigho
    41-45, F
    Sep 6, 2013

    Doctor, Now A Patient

    I am a family practice doctor and had never heard of this disease untill I was diagnosed about 3 weeks ago by a dermatologist. Even my internist had no idea what it was. It started out w/ a patch on my leg and now I am covered everywhere other than my face and hands...
    momdoc momdoc
    41-45, F
    2 Responses Mar 12, 2010

    Schamberg's... I Thought It Was A Joke.

    When I first saw a dermatologist, he took one look at my leg and said, "oh, that's schamberg's disease." I actually thought he was joking and muffled out a laugh because that sounded way too serious. No way these spots on my leg was a disease!? I was told I have a textbook case...
    cassandrach cassandrach
    26-30
    8 Responses Apr 7, 2011

    Clobetasol Propionate Works For Schamberg's Disease?

    I went to see the dermatologist about a month ago and i was diagnosed with schamberg's disease. The doctor gave me clobetasol propionate ointment usp, 0.05%. It is a corticosteroid medicine. The doctor told me to use it 2 times a day. Those rashes on my legs look lighter...
    kalayw kalayw
    18-21
    4 Responses Jan 11, 2013

    Ugly Legs

    I have been having this situation for several years now with little to no progress...MD number four finally said I had schamberg's and I've been researching since...I've started on biorutin and oil of oregano...haven't tried the hose....other md's put me on different creams with...
    cb35 cb35
    66-70, F
    Mar 31, 2012

    Caught Early

    I was diagnosed a couple of years ago. I had red-ring shaped marks on my lower legs. A biopsy was done and it proved to be Schambergs. I was referred to a dermatologist. He had me stop taking aspirin which I was taking daily for heart health as many people do. After stopping...
    Utah76 Utah76
    56-60
    1 Response Feb 12, 2013

    Why Do I Have This?

    Like the rest of you, I have Schamberg's Disease, and my biggest concern is why can't anyone tell us how we got this or why we have it.  I have been told by my dermatologist that it is not connected to my existing hematological or neurological issues, but I am curious to know if...
    panlexcie panlexcie
    51-55
    11 Responses Apr 18, 2011

    Hopeful

    Hi Im 54 yr old female and after much distress emotionally about the ugly disfiguration in colour on my feet and legs, I was diagnosed by a skin specialist today. I'm so grateful to see your Vit C recommendation as I'm supposed to use cortisone cream for it , but having...
    CheriRose CheriRose
    51-55, F
    1 Response Mar 27, 2012

    I Have Shambergs and I Have Found a Cure For Mine

    I have been diagnosed with Shambergs and watched in misery as existing patches grew and reddened and new patches appeeared weekly on my legs and hips over the space of 2 years i had several trips to the doctors/hospitals and was just about to fork out for a private consultation...
    blondie85 blondie85
    22-25
    2 Responses May 28, 2009

    Recently Diagnosed

    Hey all, brand new here, and glad I could find this place! Been in the United States Navy for 6 months now, and curious as to the severity of this condition. As many of you have experienced it for sometime now, I was wondering if you think this is a condition that might lead to...
    Nullveer Nullveer
    22-25, M
    Oct 8, 2012
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