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I Have Schamberg's Disease

Schamberg's Disease anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Schamberg's Disease. You're not alone. 118 People

    There Is Hope! - Hi everyone! I was diagnosed with Schamberg's disease last year. It started with this weird rash on my inner thigh and then spread to my shins and forearms...
    kortnisamaha kortnisamaha 18-21 3 Responses Feb 20, 2011

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    Hopeful - Hi Im 54 yr old female and after much distress emotionally about the ugly disfiguration in colour on my feet and legs, I was diagnosed by a skin specialist today. I'm so...
    CheriRose CheriRose 51-55, F 1 Response Mar 27, 2012

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    Schamberg's... I Thought It Was A Joke. - When I first saw a dermatologist, he took one look at my leg and said, "oh, that's schamberg's disease." I actually thought he was joking...
    cassandrach cassandrach 26-30 8 Responses Apr 7, 2011

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    My Mom Cured Me Of My Schamberg Disease. - I havent had Schambergs now for near on twenty years. I had it for around 4 years. One would turn up on my leg somewhere. Small at first...
    luckyone05 luckyone05 46-50, M 1 Response Sep 22, 2012

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    Spots Disappearing After 12 Years - Twelve years ago I was diagnosed with Schamberg's Disease which the doctor said was the worse case he had ever seen. I had spots on top of my...
    coastallady coastallady 61-65 3 Responses Oct 29, 2009

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    I Hate It! - I am a 34 year old woman and I was diagnosed with Schamberg's disease in March. I had the first episode in late October with brownish red patches on my lower limbs. I...
    soniash soniash 31-35 2 Responses Jul 15, 2011

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    I Was Treated In Just A Little Over A Year!! - Hi everyone, I just wanted to let you know about the course of treatment I took in order to get rid of my spots. A little over a...
    hopeitwillhelpyou hopeitwillhelpyou 26-30, F 1 Response Sep 14, 2013

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    I Have Shambergs and I Have Found a Cure For Mine - I have been diagnosed with Shambergs and watched in misery as existing patches grew and reddened and new patches appeeared...
    blondie85 blondie85 22-25 2 Responses May 28, 2009

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    Capillaritis Update - Phototherapy Plus - Update 1/13/2013: I'm happy to report that more two and a half years after my first petechiae patches appeared, I seem to have found a...
    RunningR RunningR 26-30 3 Responses Dec 9, 2010

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    Is This Poison Ivy? - Riding home from a caving trip in 1988 my ankles began to itch-a lot! Our cave access had involved first entering a limestone mine where it appeared someone...
    asciguy asciguy 51-55 Dec 9, 2011

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    The Only Thing Thathas Worked For My Schamberg's Breakouts... - Hello fellow sufferers! I've had to deal with this scourge for years. I was diagnosed at 16 - I'm now 48! I will...
    Besprizornye Besprizornye 46-50 1 Response Mar 3, 2012

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    Schamberg Cure? - About a year ago, I noticed a small red patch on the side of my waist. It was scaly and pretty itchy. I thought nothing of it and thought it was just my eczema. A...
    michelle21689 michelle21689 22-25, F 4 Responses Aug 28, 2012

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    My Story With Shaumbergs - I learned I had Shaumbergs a little over 2 years ago and for me, it hasn't become much of a problem.  I was seeing my rheumatologist for fibromyalgia...
    barblovesroses barblovesroses 51-55 1 Response Jan 29, 2012

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    New To The Disease -  I am 48 and have always tanned and do drink Alcohol ,Just found out what the bothersome red rash like bumps were on my lower legs, Schamberg's , someone...
    Mrsb401 Mrsb401 46-50 1 Response Jan 30, 2012

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    I've Had Schamberg's For About 6 Months And I Think I Finally Found Something That Works! - Hi Everyone, I am a 33 year old female and have had a bad case of Schamberg's for about...
    mhmaria mhmaria 31-35 3 Responses Sep 1, 2013

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    My Schamberg'S Disease Story And Effects Of High Levels Of Vitamin C - Four weeks ago after visiting several doctors a dermatologist finally diagnosed me with Schamberg's Disease...
    caliorange caliorange 41-45 Apr 7, 2013

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    Diagnosed 55years Ago.when I Was 19. - The only thing I,ve noticed over the years is increased itchiness . I,m long past worrying about the appearance of my legs. It seems they...
    1959rn 1959rn 70+ Oct 28, 2012

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    I Was Diagnosed With Schamberg's Disease Last Month. - It appeared as a red rash around both ankles, this was a day that I had been walking for 7 hours. This was on a Thursday...
    haleymax haleymax 61-65 Nov 18, 2013

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    All In The Family? - So I'm 22, a college girl who's always been proud of my long legs and usually running around barefoot, in a tank top and shorts, on the sunniest of days...
    rosalieren rosalieren 22-25, F 1 Response Jun 26, 2012

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    I Just Found Out That I Have Schamberg's Disease - Mine started out as a bruise on my right calf, that faded but never went away. At first the doctor thought it was a reaction to...
    cuddlebeardee cuddlebeardee 51-55, F 2 Responses Jun 23, 2009

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    I Have Schambergs For Over 16 Yes - Hi, my name is Trisha and I have had schambergs for over 16 years now . Wasn't diagnosed till late I saw 2 physicians who had no clue, then the...
    Candycorncats Candycorncats 36-40 3 Responses Jul 24, 2011

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    Schamberg'S Disease - I was diagnosed with Schamberg's disease back in 2007 and i haven't had a sign of it again until 2 weeks ago ...Everyone that see's it on my legs will say it...
    sanblair sanblair 61-65, F 2 Responses Jun 17, 2013

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    I Have Schamberg' S Disease................... - I was just diagnosed last week with Schamberg's disease. My dermatologist told me it is not serious. He told me the rash on my...
    Prinney Prinney 56-60 Nov 20, 2012

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    My Experience With Schamberg's - At the beginning of this year, I noticed a spot on the back of my leg that looked like it was made up of multiple red dots. I showed it to my...
    simplyjodie simplyjodie 31-35 6 Responses Apr 17, 2012

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    Diagnosed Yesterday... - Hi! I have had orange spots for over 6 months, but first I thought it was an allergie, then 2 doctors failed to provide a proper diagnosis. I was...
    isabeau82 isabeau82 26-30, F 2 Responses Feb 18, 2009

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    I Have Had Schamberg's Disease For Years - I have had Schamberg's Disease, but it was not diagnosed until a few months ago.  Mine is on my shins and comes and goes, but has...
    hhenri hhenri 36-40 May 15, 2009

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    Just Diagnosed With Schamberg's Disease - Hi all, I'm a 41 year old female, Mother of 2, and work full time. My health background: I am in overall pretty good health, with mild...
    Aleigho Aleigho 41-45, F Sep 6, 2013

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    Ugly Legs - I have been having this situation for several years now with little to no progress...MD number four finally said I had schamberg's and I've been researching since...I...
    cb35 cb35 66-70, F Mar 31, 2012

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    20 Years Later It Returned - When I was 19 I got massive red dots when I landed in Mexico on a school trip, they must have formed while on the plane. I had to wait until I...
    Sun2011 Sun2011 36-40 2 Responses Nov 7, 2011

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    Schamberg'S - I am a 38 year old female recently diagnosed with this. Its been very frustrating with the doctor telling me there is no cure and to continue to take steroids that...
    brandeejean brandeejean 36-40, F Mar 2, 2013

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    Doctor, Now A Patient - I am a family practice doctor and had never heard of this disease untill I was diagnosed about 3 weeks ago by a dermatologist. Even my internist had no...
    momdoc momdoc 41-45, F 1 Response Mar 12, 2010

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    Shambergs A Right Pain - Well it took 12 months and many creams tried which did nothing for my GP to refer me the dermatology dept at our local hospital! 10 months later my...
    tinman28 tinman28 51-55, M Sep 28, 2012

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    My 4year Old Has This Diease, Why Does It Act Up Before He Runs Fever. - After countless Dr appts we were diagnosed with Shambergs. He has it all over his mid section, and this is...
    tabjeremy tabjeremy 31-35 2 Responses Jan 19, 2012

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    Embarassed to Wear Shorts - When I wear shorts or sandals, I'll be asked what is wrong with my legs. They have brown patches all over my legs, I don't want to wear shorts or...
    Clacky Clacky 51-55 2 Responses Feb 4, 2009

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    Schamberg Solution - Yes - Well let's say I had Schamberg's disease. 20 years ago I was diagnosed with this most uncomfortable disease, diagnosis was from a biopsy. For 12 years I...
    jimahl jimahl 61-65 5 Responses Sep 14, 2008

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    Don't Look At My Leg - I'm 18 and a female, like other girls I like showing my legs, but no, I have this ring worm looking spot that spreads, its dumb. Anyways I got a biopsy and...
    hotcflyer hotcflyer 18-21 2 Responses Nov 10, 2012

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    Schamberg Frustration - I was diagnosed with Schamberg's this past week.  I guess I should be relieved that at least I now have a name associated with all the...
    hope4444 hope4444 51-55, F 5 Responses Sep 27, 2009

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    I Was Diagnosed June 10 2010 With Schamberg's. - I had a spot on my left leg 4 year ago size of a quarter and my doctor told me it was exema.  I was given number of different...
    50u4eorpj0 50u4eorpj0 51-55 6 Responses Jun 11, 2010

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    Why Do I Have This? - Like the rest of you, I have Schamberg's Disease, and my biggest concern is why can't anyone tell us how we got this or why we have it.  I have been told by...
    panlexcie panlexcie 51-55 11 Responses Apr 18, 2011

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    Recently Diagnosed - Hey all, brand new here, and glad I could find this place! Been in the United States Navy for 6 months now, and curious as to the severity of this condition...
    Nullveer Nullveer 22-25, M Oct 8, 2012

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    Shambergs - Vitamin C Worked For Me - I was diagnosed with shambergs disease 3 weeks ago. Six weeks prior I developed a rash on the front of both my lower legs, side and...
    kiwigirl9 kiwigirl9 46-50, F 11 Responses Sep 24, 2011

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    Schamberg Disease Makes For Ugly Ankles - About 1 year ago someone ask me how I burned my ankle. I looked down and noticed, what I now know was, Schamberg's disease. It has...
    loveadog loveadog 51-55, M 1 Response Mar 9, 2010

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    Pepper Dash Mommy - after 12 years of having my rash have just been told its schamberg disease! only to be told there is no cure!! just my luck,glad ive found others like me and...
    butt21 butt21 41-45 Nov 26, 2012

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    My Diagnosis - I recently got diagnosed with this disease but before I did they were certain it was ring worm. After several treatments they had to do a biopsy just to say they...
    ashley20121 ashley20121 22-25, F 2 Responses Oct 9, 2012

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    Caught Early - I was diagnosed a couple of years ago. I had red-ring shaped marks on my lower legs. A biopsy was done and it proved to be Schambergs. I was referred to a...
    Utah76 Utah76 56-60 1 Response Feb 12, 2013

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    Clobetasol Propionate Works For Schamberg's Disease? - I went to see the dermatologist about a month ago and i was diagnosed with schamberg's disease. The doctor gave me...
    kalayw kalayw 18-21 3 Responses Jan 11, 2013

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    Seeing Results For The First Time In 2 Years - In August 2011 I found a couple of red spots on my foot and tried to self treat with anti-fungals. Three months later there were...
    sumax sumax 51-55 3 Responses May 27, 2013

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    I think I might have Cushing's Disease. Looking for someone who can explain what they went through with this.
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    I've had symptoms of Crohn's Disease since I was 13. Having gone through four doctors and two negative colonoscopies (among other tests), it was kind of a relief when I was finally...
    Maeliss Maeliss 18-21, F Apr 7

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    I was first diagnosed when I was about 10 and I am now almost 35. I have been treated with many different forms of both topical ointments and oral steroids over the years...
    RizzB RizzB 31-35, F Mar 27