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I Have Schizencephaly

A Schizencephaly anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Schizencephaly. You're not alone. 32 People

    Grandma

    I am a 47 year old mom of 4 from Hampton Virginia who is awaiting the arrival of my first grandchild that is due November 23rd.  A few weeks ago we were told that the baby had a stroke in utero and that she would need further testing.  On October 5th we traveled to Philadelphia...
    Kazziexo Kazziexo 46-50 1 Response Oct 7, 2011

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    Kiyanah Marie

    My daughter was born with an extremely rare condition called Schizencephaly which is classified as a developmental delay, it took us almost a year for her to be diagnosed because she had no physical abnormalities, once an mri was finally taken we found the answer that we were...
    kiitee13 kiitee13 18-21 2 Responses Feb 7, 2013

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    My Life Saver

    i found out i was pregnant when i was 15 then through testing the doctors ran test on my tummy and baby and told me my baby boy had schizencephaly ,i froze. i am now 26 with a ten year old son who i was told would never walk ... and he does ! , well at three . he has never talked...
    dariansmom dariansmom 26-30 3 Responses May 9, 2012

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    So Much Uncertainity

    I'm 33 years old and just learning I was born with Schizencephaly.  Now with learning this, all the signs and symptoms that started back when I was about 12 or 13 make sense now... I was told they were panic attacks and anxiety right up until 2 years ago when I had a MRI...
    groovygirl75 groovygirl75 31-35, F 9 Responses Oct 23, 2009

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    My 10 Month Old Has Septo Optic Dysplasia And Schizencephaly And Is Blind.

    Hi I am 20 years old and I am in the US Army. My 10 month old daughter has septo optic dysplasia and schizencephaly.Consequently she is also legally blind. It came as shock since the drs at first told me i was crazy and that she was fine. Me being her mother I new something was...
    zionsmomm zionsmomm 18-21 3 Responses Feb 5, 2012

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    First Canine Reported To Have Open Lipped Schizencephaly - Cletus' Story

    I am the proud owner of Cletus the Bloodhound, a 2 year old Bloodhound mix who has the first reported case of open lipped schizencephaly in a canine. I adopted Cletus when he was only 8 weeks old and I have to say it was not I who chose him, it was my other dog, Magnum, who I...
    dsilber dsilber 36-40 Oct 25, 2012

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    I Have Schizencephaly

    I was diagnosed with both schizencephaly and cerebral palsey when I was five. I had been having difficulties walking and doing other things my entire life, just about. We went to so many doctors appointments that I feel like I spent most of my childhood in a doctors office. I had...
    Meig Meig 16-17 1 Response Aug 30, 2012

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    My Daughter Has Schizencephaly.

    hi , were from the uk.my daughter is 17months of age and was diagnosed with hemiplegia just after her first birthday. we got her mri results back last month which show she has schizencephaly on the left side of her brain. the cleft it from the front to the side.i am new to all...
    chelseab chelseab 18-21 4 Responses Feb 24, 2011

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    I went through hell and back to get my degree but I'm still not happy. At my graduation I didn't care to stay I just wanted to leave. Everyone was rejoicing around me and I'm just...
    CrystalKlear17 CrystalKlear17 18-21, F 2 Responses 3 hrs ago

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    A smaller circle to me means a closer bond to those of you with which I share a particular connection. Some of you fill my heart with great spirit. Some ignite my soul with fiery...
    Loverofpeace Loverofpeace 41-45, F 2 hrs ago

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    So I have chicken pox! Kudos to my son lol. On a serious note never thought I would have this at my age, I remember using calamine lotion as a kid so figured I had it before or...
    Mama86 Mama86 26-30, F 42 mins ago

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    I think everyone is entitled to beliefs and opinions. Obviously we all have them and I think everyone has the right to be heard as long as it is said in a non demeaning way and as...
    stargirl58 stargirl58 26-30, F 1 Response 5 hrs ago

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    Silverfeather1993 Silverfeather1993 18-21, F 3 hrs ago

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    Yeah, his name is Tyler, one of my personalities. I honestly don't know what is his deal. For as long as I can remember, he's been trying to ruin my life, always getting rid of my...
    Silverfeather1993 Silverfeather1993 18-21, F 3 hrs ago

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    I'm 25 years old, female and Ive been ruminating as long as I can remember. Maybe it developed when I was very young? As far as I know, Ive always had it and Ive always just...
    Cintilatingsynchrony Cintilatingsynchrony 22-25, F 5 hrs ago

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    Apologizing doesn't have to be admittance of guilt, or regret. If you've done something that hurt someone you care about, you can apologize just to let them know you care. There's...
    LIVISHA LIVISHA 18-21, F 1 Response 5 hrs ago

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    Is it normal to have social anxiety but to not fear public speaking?
    biancaxxb biancaxxb 18-21, F 2 Responses 3 hrs ago

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    I have a condition called micropenis. I am only 5cm down there. I hate my life.
    lifewithamicropenis lifewithamicropenis 18-21, M 2 hrs ago

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    I'm so stupid. My mother is like an evil beast who feeds on happiness. Except she feeds on gossip. A court battle for custody of my little sister and I is coming up in July. It...
    Nickbailes Nickbailes 16-17, M 2 hrs ago

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    I don't like any of my friends. I am literally typing this sitting with them. I am really quite around them because I feel awkward talking with them. I want to make new friends but...
    skittlequeen skittlequeen 16-17, F 1 hr ago

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    Mi casa - Turn you on (My favorite song)After many battles with my heart I have decided to cave in and come right out and admit I am crushing big time onJ' Something..... he is...
    Pand0rasCharm Pand0rasCharm 70+, F 50 mins ago

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    i really really want to try breast milk i dont why but i just do i think ill like it but my girlfriend thinks shell end up getting breast cancer *sigh* if there is any females in...
    Bobbylee71 Bobbylee71 18-21, M 20 mins ago

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    It's like a jungle in there. it's not my fault though! i JUST moved into a new place and i dnt really have anywhere to put my stuff so its scattered. and also when i cnt find...
    Muffin19 Muffin19 18-21, F 2 Responses May 2

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    Any cool people still here? i also have an instagram. my posts are movies,music,books,birds,selfies... i don't need followers but friends. if you are same,please let me know.
    deleted deleted 26-30 1 Response May 2

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    You miss a person and miss talking to him. You wake up, call him, hoping to start your day with a nice conversation. But that conversation did not go as you had hoped. He did not...
    LoneDolll LoneDolll 26-30, F 4 Responses May 2

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    "Giving up" and "Letting go" carry the same meaning. However, giving up sounds more negative compared to letting go. That's just how powerful words can be, that's why we have to be...
    deleted deleted 26-30 1 Response May 2

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    Thankfully I haven't broken any bones yet haha. I have a messed up knee from an injury, sucks.
    deleted deleted 26-30 May 2

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    My night time anxiety can be the worse sometimes... I hate it! I have such high anxiety tonight, and I don't exactly know why. To the point where all of the sudden I have trouble...
    PsychGirl94 PsychGirl94 18-21, F 5 Responses May 2

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    I've had a miscarriage and am no longer with my ex husband. after that having a baby is all I want regardless if I'm with someone or not. I have a bf... we don't use protection, he...
    LUzunov LUzunov 18-21, F 8 Responses May 2

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    I don't have time to clean it. I have ADD, and between school work, stress, my job, and my social life, I just don't have time. Also doesn't help that I'm an alcoholic
    BowtiesRcool BowtiesRcool 22-25, M May 2

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    Well, when I say friend, I mean my grandmom. but she was the first person who died who was really close to me. and I'm old enough to have it effect me more. My grandpa died when I...
    BowtiesRcool BowtiesRcool 22-25, M May 2

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    Always-have had this vision.....yes-I chop off a ladies hair-am female-however, then allow, the beautiful lady-to cut/chop off my hair-in whatever way she likes!!!
    deleted deleted 26-30 1 Response May 2

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    I can make up my mind, have it figured out and the change my mind again and again and again. I never settle and it makes me annoyed. I just can't figure out what is best. It's over...
    1lonelydaisy 1lonelydaisy 41-45 1 Response May 2

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    I've noticed lately that lol really means I have nothing else to say. LOLOLOL
    RedHwaiting RedHwaiting 18-21, F 5 Responses May 2

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    This morning I got up feeling really nauseous, so I called to report myself sick, because I already threw up 4 times on an empty stummach. She told me to come over and just try...
    mydailylifeasme mydailylifeasme 18-21, F 2 Responses May 2

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    i have had my faith in people restored by my professor in college. He started teaching my class three years ago. I wait for his lecture from one week to the other. he is the main...
    candles700 candles700 22-25, F May 2

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    9 years of friendship and still counting. Our friendship is exactly what I imagine friendships should be like. It's the simplest things that make me realize how much I love her n...
    candles700 candles700 22-25, F 1 Response May 2

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    So I'm looking for advice or something along the lines of help.... As many of you know I'm a person who has had his fair share of experiences, so I can deal with many things, but...
    Arizv11 Arizv11 22-25, M May 2

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    I've known my best friend since we were 7 years old, now we're 18 and we have spent most of our life together. I had my girlfriends and he had his, but recently I've been having...
    LipieCastro LipieCastro 18-21, M 1 Response May 2

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