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I Have Schizencephaly

A Schizencephaly anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Schizencephaly. You're not alone. 32 People

    My 10 Month Old Has Septo Optic Dysplasia And Schizencephaly And Is Blind.

    Hi I am 20 years old and I am in the US Army. My 10 month old daughter has septo optic dysplasia and schizencephaly.Consequently she is also legally blind. It came as shock since the drs at first told me i was crazy and that she was fine. Me being her mother I new something was...
    zionsmomm zionsmomm 18-21 3 Responses Feb 5, 2012

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    Grandma

    I am a 47 year old mom of 4 from Hampton Virginia who is awaiting the arrival of my first grandchild that is due November 23rd.  A few weeks ago we were told that the baby had a stroke in utero and that she would need further testing.  On October 5th we traveled to Philadelphia...
    Kazziexo Kazziexo 46-50 1 Response Oct 7, 2011

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    First Canine Reported To Have Open Lipped Schizencephaly - Cletus' Story

    I am the proud owner of Cletus the Bloodhound, a 2 year old Bloodhound mix who has the first reported case of open lipped schizencephaly in a canine. I adopted Cletus when he was only 8 weeks old and I have to say it was not I who chose him, it was my other dog, Magnum, who I...
    dsilber dsilber 36-40 Oct 25, 2012

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    My Life Saver

    i found out i was pregnant when i was 15 then through testing the doctors ran test on my tummy and baby and told me my baby boy had schizencephaly ,i froze. i am now 26 with a ten year old son who i was told would never walk ... and he does ! , well at three . he has never talked...
    dariansmom dariansmom 26-30 3 Responses May 9, 2012

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    Kiyanah Marie

    My daughter was born with an extremely rare condition called Schizencephaly which is classified as a developmental delay, it took us almost a year for her to be diagnosed because she had no physical abnormalities, once an mri was finally taken we found the answer that we were...
    kiitee13 kiitee13 18-21 2 Responses Feb 7, 2013

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    So Much Uncertainity

    I'm 33 years old and just learning I was born with Schizencephaly.  Now with learning this, all the signs and symptoms that started back when I was about 12 or 13 make sense now... I was told they were panic attacks and anxiety right up until 2 years ago when I had a MRI...
    groovygirl75 groovygirl75 31-35, F 9 Responses Oct 23, 2009

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    My Daughter Has Schizencephaly.

    hi , were from the uk.my daughter is 17months of age and was diagnosed with hemiplegia just after her first birthday. we got her mri results back last month which show she has schizencephaly on the left side of her brain. the cleft it from the front to the side.i am new to all...
    chelseab chelseab 18-21 4 Responses Feb 24, 2011

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    I Have Schizencephaly

    I was diagnosed with both schizencephaly and cerebral palsey when I was five. I had been having difficulties walking and doing other things my entire life, just about. We went to so many doctors appointments that I feel like I spent most of my childhood in a doctors office. I had...
    Meig Meig 16-17 1 Response Aug 30, 2012

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    Related Experiences

    Hello fellow EP members.I go by fruitypunch15.I would like to share a personal experience with you.I have been going threw some personal issues.As of last week both my parents...
    Fruitypunch15 Fruitypunch15 31-35 17 hrs ago

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    I am happy to be a strong women. Yet deep I Inside, I wish that I didn't have to be..at least always. I have never met a man who was as strong or willing to be strong for me or...
    wanthimtoNEEDme wanthimtoNEEDme 41-45, F 2 Responses 13 hrs ago

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    I'm the type of person who gets infatuated very quickly but hardly ever acts on those feelings. Instead I'll just daydream all day about that person and then eventually realize...
    Lynn794 Lynn794 18-21, F 3 hrs ago

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    I have seven. A dragonfly/phoenix to represent rebirth, a gryphon to represent strength, the cliche feather turning to birds with "Freiheit" scrawled under it (but its my own...
    dontyouunderstand dontyouunderstand 18-21 19 hrs ago

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    I'm great friends with this boy right, and we have been for more than a year. Now I love having heaps of friends at times, but we just like to walk and talk with our little group...
    PaintOverItBlack PaintOverItBlack 22-25, F 2 Responses 14 hrs ago

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    alright, well. no one wants to hear about this in real life, so I'm sure no wants to hear it here either. I kind of want to get what happened at Brynn Marr (mental hospital) and...
    scarlettuniverse scarlettuniverse 13-15, F 1 Response 4 hrs ago

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    There is none or very little honor today. My dad wasen't much good for anything. But he did teach me three things. Never to lie, never to steal, and when you give your word you...
    davideo1952 davideo1952 61-65, M 11 hrs ago

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    I don't know if I have an unique name but where I live I think that I do cuz I haven't run across anyone with the same first I have and I live in a small town my name is Cayla I do...
    caylafleming caylafleming 31-35, F 1 Response 11 hrs ago

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    I think there's no recipe for happiness in our lives. I hear people say all the time they supposedly have everything in life- a loving family, friends, a girlfriend or boyfriend...
    Gayooshit16 Gayooshit16 16-17, F 2 Responses 7 hrs ago

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    I haven't thought about it in at least 4 months, but today I was overwhelmed with stress and it resulted in what I can only describe as an attack of some sort, where I was so...
    super563 super563 13-15, M 1 Response 7 hrs ago

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    Okay, so I have a really big crush on a guy who is a year older than me at my school.(He is a sophomore).He's super cool and like...really attractive. And I think he's been kinda...
    Hadz212 Hadz212 13-15, F 1 Response 4 hrs ago

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    I have been recovering from PF for almost 6 months now. I have done acupuncture, physical therapy, stretches and most recently graston techniques. My heel pain is almost gone...
    rmjan rmjan 36-40 1 Response 1 hr ago

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    I have since I was in 6th grade. I was starting to really take in the fact that I was adopted. I didn't understand at the time it was for the best. I've been pushed and pulled in...
    BornBroken BornBroken 13-15, F 41 mins ago

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    I finally have my first crush. It is on a boy I became friends with this year. Early on in the year he didn't really have many friends, but I thought that he was really nice and...
    MyFriendPug MyFriendPug 13-15, F 39 mins ago

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    Ok so recently i owned up to this girl who i had taken i liking to by telling her that i like her, and to my surprise she said that she liked me too. Thankfully the place we were...
    pizzaandmusicarebae pizzaandmusicarebae 22-25, F 20 hrs ago

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    When I was young used to feel.....in fact, was close to normal up until about 7 years old.... That is when my ASPD first began to show up..... But, over the past few years, I...
    SAFFRONtheBLOODYqween SAFFRONtheBLOODYqween 13-15, F 3 Responses 18 hrs ago

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    I've been having a series of reoccurring dreams recently. Which is rather odd for me as I rarely ever remember the dreams I have in the first place. Yet as the dream progresses...
    snowberry75 snowberry75 36-40, F 7 Responses 18 hrs ago

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    All in one click of a button.... Wow and it's strange and real I almost don't know how to process it honestly... I can't really put it in to words , *sigh*.... Now I'm up at 5am...
    Prettibrowngirl Prettibrowngirl 70+, F 16 hrs ago

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    I have been hurt many times in my life but i can understand why. Im normally anxious and it doesnt make people attracted to a coward who fears people. I still figure out why im so...
    tokyo60s tokyo60s 31-35, F 2 Responses 15 hrs ago

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    Aftermath of being cheated on. Don't do it. PRAY:Family Court Parent Agreement Today STBX refuses to just sit and work out plan for kids. We are using a Mediatir (Canadien ) she...
    MrHeartaFire MrHeartaFire 41-45, M 4 Responses 14 hrs ago

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    I have problem with my step son... He is 17 yrs old and he will be 18 yrs old next month... He moved out because of me actually if he don't give me hard time, there's no problem...
    zenwahs8 zenwahs8 31-35, F 14 hrs ago

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    I have the most amazing boyfriend anyone could ever have he has been there since day 1 and always puts a smile on my face and is there when I need him he has put up with the crap...
    Hayhay4302 Hayhay4302 13-15, F 13 hrs ago

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    I accidentally forgot my meds two days in a row... Im not feeling too good. I remember being told coming off of them could sometimes be worse than the original depression. But...
    RebeccaJane00 RebeccaJane00 18-21, F 12 hrs ago

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    His preference does NOT make him any less physically attractive. He is the most good looking man I have ever seen (onscreen or in person). And I have seen him in person! :D
    MagHow MagHow 22-25, F 8 hrs ago

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    I do have a curvy body. From top to bottom. I'm not flat. I have 36D boobs. My waist is super tiny. My *** is huge. 😘😘
    misscameron13 misscameron13 16-17, F 2 Responses 7 hrs ago

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    Has anyone tried Emu oil? I have eczema around my eyes and lotions eventually end up in my eyes. I'm always worried that something will get into my eyes and make me go blind. But...
    DemonDreaminn DemonDreaminn 22-25, F 6 hrs ago

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    me and my boyfriend have been together for 7 years have a son together and for those 7 years he has been caught flirting online with multiple girls..you might say then just leave...
    mzlonely01 mzlonely01 22-25, F 1 Response 5 hrs ago

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    I'm a DV survivor and field professional who works with employers to help improve their response to domestic violence in the workplace. Currently, I'm helping my clients learn why...
    lfair lfair 36-40, F 5 hrs ago

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    For the second time I'm posting about this, I really don't know why.... Maybe it's just myself longing for it. When two hearts are meant for each other no distance is too far, no...
    lostgirl112 lostgirl112 13-15, F 1 Response 5 hrs ago

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    I have one amazing boyfriend. He is very very very very sweet and laid back. We talk on the phone for hours. We met on Facebook lol, turns out he went to my school but graduated...
    lorrena19 lorrena19 18-21, F 4 hrs ago

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    Just wondering who knows what causes their anxiety or you have anxiety and don't know what causes it. I have anxiety but I don't know why or how
    wildgreywolf1979 wildgreywolf1979 31-35, M 5 Responses 3 hrs ago

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    So, to all those I've had conversation with, in real life of course and the few here, I have deducted I give off an energy that says you can trust me with your life story, the bad...
    TheAmazinglyAwkwardSpiderJoe1 TheAmazinglyAwkwardSpiderJoe1 18-21, M 1 Response 3 hrs ago

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    I have lots of imaginary friends and I love them to death. They mean everything to me, but sometimes I get upset because I get this bad feeling that they actually are just...
    ImaginaryBFF ImaginaryBFF 16-17, F 3 hrs ago

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    So, today in the morning I woke up to use the restroom and I looked in the mirror and saw what was a handprint on my chest. I know I slept on my back all night and did not dream...
    Jclove1 Jclove1 18-21, F 3 hrs ago

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