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I Have Schizencephaly

A Schizencephaly anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Schizencephaly. You're not alone. 31 People

    My Daughter Has Schizencephaly.

    hi , were from the uk.my daughter is 17months of age and was diagnosed with hemiplegia just after her first birthday. we got her mri results back last month which show she has schizencephaly on the left side of her brain. the cleft it from the front to the side.i am new to all...
    chelseab chelseab 18-21 4 Responses Feb 24, 2011

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    Grandma

    I am a 47 year old mom of 4 from Hampton Virginia who is awaiting the arrival of my first grandchild that is due November 23rd.  A few weeks ago we were told that the baby had a stroke in utero and that she would need further testing.  On October 5th we traveled to Philadelphia...
    Kazziexo Kazziexo 46-50 1 Response Oct 7, 2011

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    Kiyanah Marie

    My daughter was born with an extremely rare condition called Schizencephaly which is classified as a developmental delay, it took us almost a year for her to be diagnosed because she had no physical abnormalities, once an mri was finally taken we found the answer that we were...
    kiitee13 kiitee13 18-21 2 Responses Feb 7, 2013

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    My 10 Month Old Has Septo Optic Dysplasia And Schizencephaly And Is Blind.

    Hi I am 20 years old and I am in the US Army. My 10 month old daughter has septo optic dysplasia and schizencephaly.Consequently she is also legally blind. It came as shock since the drs at first told me i was crazy and that she was fine. Me being her mother I new something was...
    zionsmomm zionsmomm 18-21 3 Responses Feb 5, 2012

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    I Have Schizencephaly

    I was diagnosed with both schizencephaly and cerebral palsey when I was five. I had been having difficulties walking and doing other things my entire life, just about. We went to so many doctors appointments that I feel like I spent most of my childhood in a doctors office. I had...
    Meig Meig 16-17 1 Response Aug 30, 2012

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    First Canine Reported To Have Open Lipped Schizencephaly - Cletus' Story

    I am the proud owner of Cletus the Bloodhound, a 2 year old Bloodhound mix who has the first reported case of open lipped schizencephaly in a canine. I adopted Cletus when he was only 8 weeks old and I have to say it was not I who chose him, it was my other dog, Magnum, who I...
    dsilber dsilber 36-40 Oct 25, 2012

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    So Much Uncertainity

    I'm 33 years old and just learning I was born with Schizencephaly.  Now with learning this, all the signs and symptoms that started back when I was about 12 or 13 make sense now... I was told they were panic attacks and anxiety right up until 2 years ago when I had a MRI...
    groovygirl75 groovygirl75 31-35, F 9 Responses Oct 23, 2009

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    My Life Saver

    i found out i was pregnant when i was 15 then through testing the doctors ran test on my tummy and baby and told me my baby boy had schizencephaly ,i froze. i am now 26 with a ten year old son who i was told would never walk ... and he does ! , well at three . he has never talked...
    dariansmom dariansmom 26-30 3 Responses May 9, 2012

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    Related Experiences

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    jamieh3 jamieh3 46-50, F Jul 22

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    I want to have a boy first. They can be a big brother and protect their sisters.
    MakaylaCorlisa MakaylaCorlisa 13-15, F 1 Response Jul 22

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    Help! Haha I have a long haired German shepherd male. His name is Grizzly and he's a little over a year old. But he has really bad separation anxiety. He is attached at the hip to...
    Bop2012 Bop2012 18-21, F 2 Responses Jul 22

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    Almost a year ago I was raped. At the time I had moved out of my Mom's house and started living with my at the time boyfriend. At the hospital when I was able to see everyone and...
    Christuh Christuh 18-21, F 3 Responses Jul 22

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    hey all ! ... this is important and big. can i have a small time of yours, just little.. few minutes.. i sign up here around a year back to share my story with people and i did. i...
    heartless2 heartless2 22-25, M 1 Response Jul 22

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    This is a follow up for my story "what doesn't kill you makes you stronger" My name is grace. I am now 16 years old and I just got my correction surgery last week! I had a muscle...
    marinagrace marinagrace 13-15, F 1 Response Jul 22

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    Hello my names Julia and I am 19 years old. I was diagnosed with hsv 1 last week. A week or two prior to my out break and diagnosis my boyfriend brought up that he had a "heat rash...
    jujubear47 jujubear47 18-21, F 1 Response Jul 22

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    hey all ! ... this is important and big. can i have a small time of yours, just little.. few minutes.. i sign up here around a year back to share my story with people and i did. i...
    heartless2 heartless2 22-25, M 1 Response Jul 22

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    hey all ! ... this is important and big. can i have a small time of yours, just little.. few minutes.. i sign up here around a year back to share my story with people and i did. i...
    heartless2 heartless2 22-25, M 3 Responses Jul 22

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    hey all ! ... this is important and big. can i have a small time of yours, just little.. few minutes.. i sign up here around a year back to share my story with people and i did. i...
    heartless2 heartless2 22-25, M 1 Response Jul 22

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    hey all ! ... this is important and big. can i have a small time of yours, just little.. few minutes.. i sign up here around a year back to share my story with people and i did. i...
    heartless2 heartless2 22-25, M 1 Response Jul 22

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    I get really angry so easily... I'd be laughing and someone would say something I didn't like and I'll get so angry! If I debate something with someone, I get so mad i have to...
    faithandfree faithandfree 16-17, F 1 Response Jul 22

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    I have been writing on this site a lot lately and tonight he asks who the hell do you keep texting?! I told him I'm just responding to posts which is partly true. But now I feel...
    tlee5001 tlee5001 22-25, F 8 Responses Jul 22

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    Like today i do t know why i have so much on my mind that i cant sleep even though i am tired i cant
    desirejanice desirejanice 22-25, F 2 Responses Jul 22

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    hey all ! ... this is important and big. can i have a small time of yours, just little.. few minutes.. i sign up here around a year back to share my story with people and i did. i...
    heartless2 heartless2 22-25, M Jul 22

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    hey all ! ... this is important and big. can i have a small time of yours, just little.. few minutes.. i sign up here around a year back to share my story with people and i did. i...
    heartless2 heartless2 22-25, M Jul 22

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    I'm starting my Senior Year soon. I still don't know where I'm going to attend college. I have not even done my SAT. I'm so scared about the future. I'm not even sure what I want...
    Gabs96 Gabs96 18-21, F 3 Responses Jul 22

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    hi everyone i have a crew on gta online (Xbox) and i would like to have more members , so if anybody wants to join plz leave a message
    jojo12380 jojo12380 18-21, M Jul 22

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    This is a group to help people with sadness in their lives, if you wanna become part of this group guys, message heartless2, the creator of this group, for info. We don't judge at...
    TheGuy147 TheGuy147 16-17, M 2 Responses Jul 22

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    I want to be a actress so I am looking up schools to get more experience but I have no luck so yeah but I act all the time I will so a couple lines off of my favorite shows and...
    LonleyWolf99 LonleyWolf99 13-15, F Jul 22

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    hey all ! ... this is important and big. can i have a small time of yours, just little.. few minutes.. i sign up here around a year back to share my story with people and i did. i...
    heartless2 heartless2 22-25, M Jul 22

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    Yeah and thats killing me inside. I have many friends online but not even a single one in personal. I just always feel jealous when i see a large group of guys going out on...
    mahdiraza mahdiraza 16-17, M 3 Responses Jul 22

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    Let's see if I can write my random without getting in trouble tonight. I woke and ., you know .. ;-) .., but that that did not really solve my issue, My mind stayed where it had no...
    Sunshine0615 Sunshine0615 36-40, F 2 Responses Jul 22

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    I have to say, never thought an animal would actually feel like companion but he does. I encourage anyone feeling down or alone to get a pet. Hard work to maintain one but well...
    jag08 jag08 36-40, M 1 Response Jul 22

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    Sadly though I have like no friends at all right now. :(
    EFairy EFairy 18-21, F 11 Responses Jul 22

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    Every night since I was 5 i believe. I remember more nightmares than nice random dreams. Lots of flying when i was younger until recently last month. Lots of shadows and places I...
    xHI5x xHI5x 22-25 3 Responses Jul 22

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    It's way past midnight, and I have a feeling it's going to be another sleepless night :(
    Santi0924 Santi0924 18-21, M Jul 22

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    Wow went looking to find one special man to have a great affair ending up finding many guys looking for a flavor of the week. I wonder if there are any men looking to find one or...
    kgirl79 kgirl79 31-35, F 3 Responses Jul 22

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    i have attraction towards my son...
    elinarose37 elinarose37 36-40, F 1 Response Jul 22

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    I get so bad at times that I shake and vomit. Heck if I'm really stressed I sometimes go for almost a week without sleep. I know others have it worse off but it sucks. I'm...
    shyguy38 shyguy38 18-21, M 3 Responses Jul 22

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    It happened at two. I hated that floor of hospital where she stayed. It was aweful. Everyday she suffered the affects of chemo. It totally sucked. I still feel the hurt from...
    joesuekiss joesuekiss 31-35 Jul 22

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    I thought I would share this here. I was updating my profile, and noticed that EP had kindly put a text on my page, saying that I have no friends and pretty much begging visitors...
    ConcreteSleeper ConcreteSleeper 31-35, M 4 Responses Jul 22

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    Anyone else have a long haired German Shepherd? They're amazing❤️
    Bop2012 Bop2012 18-21, F 4 Responses Jul 22

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    For the love of God!! Not to be mean or anything but if you want to end your life there is the internet! You don't need help googling suicide methods. There are sooo many websites...
    littlegirl03 littlegirl03 18-21, F Jul 22

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    Ok today my step mum cornered me and asked the question which I feared most. The issue is my fiancée is pregnant by her ex and we are to be married soon and I am still virgin...
    Phalguni9 Phalguni9 22-25, M 2 Responses Jul 22

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    This really started out as a problem caused by my mother, as she never seemed to be able to recognise when a book was a sequel of another book. I have been given a lot of books...
    Avotica Avotica 18-21, F Jul 22

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    It might be the only thing that I'm good at People and I don't really chat Everything else I try I'm bad Makes me at times sad In poetry I'm really good Most of the time it comes...
    Anderson73 Anderson73 18-21, M Jul 22

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    Everyone does haha. We all have these thoughts that come to us and we're like wtf ?
    Answeringyou35 Answeringyou35 18-21, F Jul 22

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    I dream of my dad, who just died, often. But he doesn't look like himself completely. Hel have a few totally wrong components, like wrong hair and ear lobes. Ill realize this or...
    genuinelywise genuinelywise 18-21, F 3 Responses Jul 22

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