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I Have Schizencephaly

A Schizencephaly anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Schizencephaly. You're not alone. 31 People

    My 10 Month Old Has Septo Optic Dysplasia And Schizencephaly And Is Blind.

    Hi I am 20 years old and I am in the US Army. My 10 month old daughter has septo optic dysplasia and schizencephaly.Consequently she is also legally blind. It came as shock since the drs at first told me i was crazy and that she was fine. Me being her mother I new something was...
    zionsmomm zionsmomm 18-21 3 Responses Feb 5, 2012

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    Kiyanah Marie

    My daughter was born with an extremely rare condition called Schizencephaly which is classified as a developmental delay, it took us almost a year for her to be diagnosed because she had no physical abnormalities, once an mri was finally taken we found the answer that we were...
    kiitee13 kiitee13 18-21 2 Responses Feb 7, 2013

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    My Life Saver

    i found out i was pregnant when i was 15 then through testing the doctors ran test on my tummy and baby and told me my baby boy had schizencephaly ,i froze. i am now 26 with a ten year old son who i was told would never walk ... and he does ! , well at three . he has never talked...
    dariansmom dariansmom 26-30 3 Responses May 9, 2012

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    My Daughter Has Schizencephaly.

    hi , were from the uk.my daughter is 17months of age and was diagnosed with hemiplegia just after her first birthday. we got her mri results back last month which show she has schizencephaly on the left side of her brain. the cleft it from the front to the side.i am new to all...
    chelseab chelseab 18-21 4 Responses Feb 24, 2011

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    So Much Uncertainity

    I'm 33 years old and just learning I was born with Schizencephaly.  Now with learning this, all the signs and symptoms that started back when I was about 12 or 13 make sense now... I was told they were panic attacks and anxiety right up until 2 years ago when I had a MRI...
    groovygirl75 groovygirl75 31-35, F 9 Responses Oct 23, 2009

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    I Have Schizencephaly

    I was diagnosed with both schizencephaly and cerebral palsey when I was five. I had been having difficulties walking and doing other things my entire life, just about. We went to so many doctors appointments that I feel like I spent most of my childhood in a doctors office. I had...
    Meig Meig 16-17 1 Response Aug 30, 2012

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    Grandma

    I am a 47 year old mom of 4 from Hampton Virginia who is awaiting the arrival of my first grandchild that is due November 23rd.  A few weeks ago we were told that the baby had a stroke in utero and that she would need further testing.  On October 5th we traveled to Philadelphia...
    Kazziexo Kazziexo 46-50 1 Response Oct 7, 2011

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    First Canine Reported To Have Open Lipped Schizencephaly - Cletus' Story

    I am the proud owner of Cletus the Bloodhound, a 2 year old Bloodhound mix who has the first reported case of open lipped schizencephaly in a canine. I adopted Cletus when he was only 8 weeks old and I have to say it was not I who chose him, it was my other dog, Magnum, who I...
    dsilber dsilber 36-40 Oct 25, 2012

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    Related Experiences

    Here’s something that I am sure that not most of you would think about. And don’t go saying I have no life now. I just think of things and put them into my own theory about...
    Artz4Life Artz4Life 16-17, F 7 hrs ago

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    Not that i want a relationship with the piece of Sh1t ...but i really wish i could have a father...Any kind of figure that is like a father to me...I have always been without a...
    EmoNekoNiki EmoNekoNiki 18-21, F 1 hr ago

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    To be socially accepted you have to look the part, walk the walk or have a large enough group who have similarities. But what if someone doesn't have things in common with anyone...
    MaraIsNotKawaii MaraIsNotKawaii 13-15, F 1 Response 6 hrs ago

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    When I was a teenager I was in perfect health, mentally and physically. I haven't been completely sober since I was 19, and I am 32. I have either been high or drunk. Those two...
    iamokaynow iamokaynow 31-35, M 2 Responses 3 hrs ago

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    i don't know.. i have these twisted feelings about everything.. confusion on what is wrong based on what i know and what i feel tomorrow is the day that my mother gave birth to me...
    shenghuidai shenghuidai 26-30, F 3 hrs ago

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    (Filipino-English) Well,here I am, a typical teenager. I'm 18 and NBSB (No Boyfriend Since Birth). I don't know, maybe I'm just not that beautiful for guys to have an interest...
    higalove higalove 18-21, F 2 hrs ago

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    It's been awhile friends... Ive been in no contact for over a year. It's been GREAT. I waited to share this story until I was ok, and then came a period of not wanting to talk...
    Misstaco Misstaco 26-30, F 1 Response 2 hrs ago

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    Since i was a little girl i have had nothing but trouble. I'm 18 now i have issues but if i say i need help my brother tells me there's nothing wrong and i just want something...
    EmoNekoNiki EmoNekoNiki 18-21, F 1 hr ago

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    I am a 44 yr old male who passed my first kidney stone when I was 12 and I was diagnosed with Medullary Sponge Kidney in 2004 when I had to give up my job as an X-Ray Tech because...
    stoner2 stoner2 41-45, M 8 hrs ago

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    One of the benefits of being me, is that my hair grows fairly quickly. A lot of guys my age are starting to lose theirs! Consequently. I have to get it cut. Now. I don't have the...
    picklebobble picklebobble 46-50, M 4 hrs ago

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    A couple months ago I found out I have lung cancer. I haven't told my younger brother yet for fear that he will get hurt. Im doing chemo pills and they are really taking a toll on...
    19alexanderknight95 19alexanderknight95 18-21, M 3 hrs ago

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    My loneliness is starting to take a toll on my body. I never thought I could experience loneliness this deep. Maybe its equivalent to the counterpart of how I felt happiness with...
    Listening2us Listening2us 26-30, F 1 hr ago

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    I was molested when I was 6 by my baby sitters son. I was date raped twice. I have been physically and emotionally abused by a past boy friend. I never said a word to anyone. I hid...
    kc07 kc07 36-40, F 1 Response 10 hrs ago

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    So here is the story. I am 36yrs old, back in april I met a girl who had just turned 19 a few days earlier. She said she liked my motorcycle and I offered her a ride and she...
    OldViking OldViking 36-40, M 1 Response 5 hrs ago

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    The constant attraction and repulsion of thoughts in general is a delicate but turbulent prone. One must be careful when handling their thoughts. The juggling act is meant to...
    AquariusLife AquariusLife 26-30, F 1 Response 4 hrs ago

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    My experience is a result of two adoptions. First my son at 3 weeks of age and secondly my daughter a year later also 3 weeks old. Both children had the same love, opportunities...
    Joeyandjana Joeyandjana 66-70, M 4 hrs ago

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    They're generally very boring, blogs. I have one but I don't write anything, I think I made one entry, no replied or probably ever saw it. Occasionally there are some good blogs...
    dontcareforlabels dontcareforlabels 41-45, M 2 hrs ago

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    I have some awesome EP friends: Dancingbear70, IZZYNUDIST, Toymanx ,StarLily71, Kandi41 ,Izzypie, mistervince, and many more. I love to have a great place to vent. Thank you...
    NotmyCircusNotmymonkeys NotmyCircusNotmymonkeys 41-45, F 1 Response 1 hr ago

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    It's turned it's tables. The stress from so so so many things have made me just not be able to swallow anymore. I taste. Spit.. I don't even want to binge anymore. But what's...
    skinfeeder skinfeeder 26-30 9 hrs ago

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    Okay.. I'm willing to skype with those people who wants somebody to listen to them .. Or if you have any problem.. I'll be your friend:)
    Toffee23 Toffee23 22-25, F 2 Responses 9 hrs ago

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    Me and my girlfriend have maintained a very good relationship for the past years despite the difficulties and problems that cropped up. One of these problems has been my girlfriend...
    fireblastm fireblastm 26-30, M 9 hrs ago

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    I have a bucketlist, stuff on that list include going gator hunting, skydiving, swimming with sharks and playing a prank so HUGE it'll become viral on YouTube, lol.
    jadejohn1295 jadejohn1295 13-15, F 1 Response 8 hrs ago

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    I'm A person who believes in big dreams and ideas. I'm a high school student from India. And i always had a dream of studying at the Cambridge University. i wanna go there for my...
    CuteButterflyGirl CuteButterflyGirl 13-15, F 1 Response 8 hrs ago

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    I often wake up, realize my life sucks and have no good reason to get out of bed, and try to get right back sleep. I like dreaming too much, but at last my dreams are enjoyable.
    williamM92 williamM92 18-21, M 7 hrs ago

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    I like to wake up just enough naked that I know it turns my man on. He doesn't have to wonder how far the naked goes:) he can start at the nipple and work his way diwn,
    zhoie zhoie 31-35, F 8 Responses 7 hrs ago

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    I've been dating someone for 5 years now. When I first met him, he was a bit of a drifter & party boy, but over the years he's changed a lot - he's now studying engineering...
    missypetunia missypetunia 26-30, F 1 Response 7 hrs ago

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    If you're heading farther south looking for some great East Coach beaches, glimpse no even more than Virginia, which offers countless miles of shoreline. Virginia is property to...
    Jenipe Jenipe 31-35, M 1 Response 6 hrs ago

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    It's been just over three months since I changed my phone number and initiated no contact with my mother, her husband and my aunt. Since going no contact, there was a death in the...
    ankhgirl ankhgirl 26-30, F 1 Response 6 hrs ago

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    I'm a huge death metal lover and I have all of Cannibal Corpse's albums and recently got the last one I needed which was "A Wretched Spawn" great album!
    ValhallaAwaits ValhallaAwaits 18-21, M 1 Response 6 hrs ago

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    got a text from a unknown number that said Ziggy played guitar, jamming good with Wierd and Gilly, And The Spiders from Mars. and my first thought was man I have that on vinyl...
    OldViking OldViking 36-40, M 1 Response 5 hrs ago

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    Never cease to explore and latch on to the current wave. For when that wave turns, you may have a debased sense of life. Riding on the wave for too long will cause instability and...
    AquariusLife AquariusLife 26-30, F 1 Response 5 hrs ago

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    Oh yes I do - actually have 4 of them . One called me less than 5 minutes ago to remind me of something I planned months ago . Anyone want 4 sisters ?
    Mommaofdiva Mommaofdiva 46-50, F 5 hrs ago

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    This is so hilarious and annoying at the same time. I must be a target for people phishing or similar type of defrauding, I've had since the start of September no less than 40...
    PoeticMute PoeticMute 31-35, M 3 Responses 5 hrs ago

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    I picked a lot tonight. I pick the bottom of my feet. I get infections from open wounds in my feet. I pick both of them, but the left one is the one I pick the most. I've been...
    SeaOfMonsters SeaOfMonsters 26-30, F 5 hrs ago

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    Sad that guns make me happier then people :( more loyal and more reliable the dose who claim to have my back. Im not proud to think like this but its rare for me be happy and when...
    EBestest EBestest 18-21, M 4 hrs ago

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    i aam a gay female and almost all of my ex's cheated on me with a guy. except one...my current gf. What is up with that. Anybody else have this experience?
    GallyG GallyG 41-45, F 3 hrs ago

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    So I saw the man I adore today and he started walking in pace with me and my instinct was to get as far away from him as I could so I just walked away. Is it bad that when I am...
    colourofmoonlight colourofmoonlight 18-21, F 3 Responses 2 hrs ago

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    But that doesn't mean I'd deny people from messaging me ...I mean I would like to keep in close contact with those people I find more connected with...which doesn't imply any moral...
    TheShalottLady TheShalottLady 61-65, F 3 Responses 2 hrs ago

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    Is there anyone in Colorado denver area that would like to have some fun ....im into most anything (guys or girls) (gay straight bi) hit me up maybe we could meet up and see where...
    girllybutt girllybutt 22-25, M 2 hrs ago

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    I have dreams about falling through ice and drowning. For instance, this one time I was standing along a rivers edge watching the spring ice break up, all of a sudden the ice under...
    mongoheadmonster mongoheadmonster 31-35, M 1 Response 2 hrs ago