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I Have Schizencephaly

A Schizencephaly anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Schizencephaly. You're not alone. 30 People

    Kiyanah Marie

    My daughter was born with an extremely rare condition called Schizencephaly which is classified as a developmental delay, it took us almost a year for her to be diagnosed because she had no physical abnormalities, once an mri was finally taken we found the answer that we were...
    kiitee13 kiitee13 18-21 1 Response Feb 7, 2013

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    My Life Saver

    i found out i was pregnant when i was 15 then through testing the doctors ran test on my tummy and baby and told me my baby boy had schizencephaly ,i froze. i am now 26 with a ten year old son who i was told would never walk ... and he does ! , well at three . he has never talked...
    dariansmom dariansmom 26-30 2 Responses May 9, 2012

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    My Daughter Has Schizencephaly.

    hi , were from the uk.my daughter is 17months of age and was diagnosed with hemiplegia just after her first birthday. we got her mri results back last month which show she has schizencephaly on the left side of her brain. the cleft it from the front to the side.i am new to all...
    chelseab chelseab 18-21 4 Responses Feb 24, 2011

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    So Much Uncertainity

    I'm 33 years old and just learning I was born with Schizencephaly.  Now with learning this, all the signs and symptoms that started back when I was about 12 or 13 make sense now... I was told they were panic attacks and anxiety right up until 2 years ago when I had a MRI...
    groovygirl75 groovygirl75 31-35, F 9 Responses Oct 23, 2009

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    My 10 Month Old Has Septo Optic Dysplasia And Schizencephaly And Is Blind.

    Hi I am 20 years old and I am in the US Army. My 10 month old daughter has septo optic dysplasia and schizencephaly.Consequently she is also legally blind. It came as shock since the drs at first told me i was crazy and that she was fine. Me being her mother I new something was...
    zionsmomm zionsmomm 18-21 3 Responses Feb 5, 2012

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    I Have Schizencephaly

    I was diagnosed with both schizencephaly and cerebral palsey when I was five. I had been having difficulties walking and doing other things my entire life, just about. We went to so many doctors appointments that I feel like I spent most of my childhood in a doctors office. I had...
    Meig Meig 16-17 1 Response Aug 30, 2012

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    Grandma

    I am a 47 year old mom of 4 from Hampton Virginia who is awaiting the arrival of my first grandchild that is due November 23rd.  A few weeks ago we were told that the baby had a stroke in utero and that she would need further testing.  On October 5th we traveled to Philadelphia...
    Kazziexo Kazziexo 46-50 1 Response Oct 7, 2011

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    Related Experiences

    To be completely honest, I denied it for some time. I haven't actually done any kind of official test, but I have a nurse practitioner and a number of knowledgeable individuals who...
    Kavka Kavka 18-21, M 16 hrs ago

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    I'm 31 years old and have been battling back problems for the last 15 years. It used to come on just once in awhile, a little pain in the lower back, some tingling down my right...
    jeneral3015 jeneral3015 31-35, F 12 hrs ago

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    I'm 16 years old.There are 10 days till my birthday.I've been depressed for good 3 years.My whole puberty was a great mess.One year and two months ago,I got bulimic.Before that,I...
    mystiquebelle mystiquebelle 13-15, F 9 hrs ago

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    HI , Im 24 years old , im a man . the thing about me is i am not quite sure if i have cauda Equina , i didnt have an accident or any truama , my pain first started at my right foot...
    Atrilundy Atrilundy 22-25, M 1 Response 12 hrs ago

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    *Walks up to counter* “Hi, I would like to order a man, athletic build, cute face- maybe with a little scuff on it;), very kind, charming, and intelligent; and that will be all...
    MW1321 MW1321 18-21, M 2 Responses 17 hrs ago

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    oh the battle with the body has been a living nightmare from hell as you all know so well. I have so many physical problems, I just get that look from the doctors. urggg So I have...
    mommaceitta mommaceitta 51-55, F 9 hrs ago

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    I have yet to see anyone about it or get an official diagnosis, but I think I have paranoid or disorganized schizophrenia. I have been experiencing auditory, visual, and even...
    e524 e524 18-21, F 1 Response 6 hrs ago

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    I really want to experience this since I never have before. I've never had a mutual bond with someone in which we feel strongly for each other. I am jealous of other people who...
    Dreamer32 Dreamer32 22-25, F 3 Responses 5 hrs ago

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    I'm new to EP.. I was told by my close friend that it was a great app that would help me deal with having herpes. Basically I was in a relationship with a guy for over a year...
    cb180696 cb180696 16-17, F 2 Responses 1 hr ago

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    #2 on my list of "Things I am proud of about me": 2. I’m not lazy/selfish/spoiled. I guess I’m not exactly sure what I would call this, but basically when I see people doing...
    shannonymous shannonymous 18-21, F 1 hr ago

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    If I had friends! 😫😭 I mean I have friends, socially, but nobody asks to hang out with me or asks me to join them on something, unless its my sister and her friends. Maybe...
    ashalew ashalew 22-25, F 14 hrs ago

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    I suffer awful anxiety attacks since 10 years every day. I also have social anxiety and have had panic attacks outside the house. I was on meds 10 years ago as it all started...
    angel8i angel8i 31-35, F 1 Response 14 hrs ago

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    I Have this collection of ribbons because use them when i have a haircut first week the hair sometimes dosen't look so good or because i must go for a haircut and didn't found time...
    blackweirdcat blackweirdcat 46-50, F 12 hrs ago

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    I'm a teacher who moved to a small town because I was supposed to get married. Didn't happen and now I have nothing and no one in my life. I have no one to call or talk to. I'm...
    srta srta 26-30, F 2 Responses 7 hrs ago

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    I am 13 and I have had pimples since 4th grade, and now I am in 7th grade and it has gotten so bad I don't want to go anywhere. But the worst part is I make it worse for myself...
    fabbeauty fabbeauty 18-21 6 hrs ago

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    I feel like I have no chance of being in a proper relationship... I had a girls night out with some friends last night which was fun, but I found myself feeling like the 'grenade...
    charllymarie charllymarie 18-21, F 4 Responses 5 hrs ago

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    Lots of things in mind these days. Lots of memories, that I didn't have on the surface. I have things to say that I'm not ready to say. I don't even think I'm ready to write them...
    WickedScullyOfTheWest WickedScullyOfTheWest 31-35, F 5 hrs ago

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    I don't understand why men are obsessed with their penis size and why the assume if they have a large penis, they suddenly know how to have sex. And then they have the gall to...
    ErraticallyGrey ErraticallyGrey 22-25, F 5 Responses 3 hrs ago

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    Another incident from when I was 14, one which is burned into my memory in excruciating detail. It happened a few weeks after my naked picture had made the rounds at school, and...
    reader123456789012 reader123456789012 22-25, F 1 Response 3 hrs ago

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    Hi there I have had ADHD for the last 30+ yrs and let me tell you I have had my ups and downs and things can get challenging at time I know I have found something that has worked...
    MrThriving MrThriving 36-40, M 3 hrs ago

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    I have very dark hair, dark eyelashes and eyebrows. I started to get the odd grey hair when I was 20. It seems to be a common thing for darker hair i guess. I have a guy friend who...
    SmashedUpSanity SmashedUpSanity 26-30, F 1 Response 42 mins ago

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    A lot of people (mainly guys) have said my voice is very soothing. I don't really agree but ehh.
    lexix0 lexix0 16-17, F 6 Responses 18 hrs ago

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    Last night I had a dream that felt good when I was having it but now I am awake I find it disturbing. I was with a crowd of people (in my mind, I seemed to associate them with...
    T4RD15 T4RD15 26-30 16 hrs ago

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    While at uni I was at a party and one of the lecturers was there. She was about 35 and I was 19, and we had a wonderful time at the party, and ended up kissing while we were...
    PinkyPinks PinkyPinks 31-35, F 5 Responses 11 hrs ago

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    "After A While" After a while you learn the subtle difference between holding a hand and chaining a soul and you learn love doesn't mean leaning and company doesn't always mean...
    mommaceitta mommaceitta 51-55, F 9 hrs ago

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    Just today... my mom called me an ungrateful egotist. It hurts a lot when your only purpose is to help others..and when you have helped. She is attacking me as if I was some kind...
    sparkydream sparkydream 16-17, F 1 Response 8 hrs ago

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    getting updates from my challengers.... i LIGHT UP when i read these: "I am half way done with 21 day fix. I am down about 5 pounds and about 25 pounds in 2 1/2 months. It feels...
    felismina felismina 36-40, F 1 Response 6 hrs ago

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    I am at the point in life where I have "disposable income" and I can buy nice stuff. I hate it when I walk into nice stores / specialty shops and I am ignored. I am looking for a...
    Kickingtires Kickingtires 51-55, M 1 Response 6 hrs ago

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    I carry it everywhere, spent 2 years of my life on it -.- made a lot of friends with this ipad so basically I have friends on my finger tips. If u Destroy my ipad, u destroy the...
    LoverBoyMike LoverBoyMike 18-21, M 5 hrs ago

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    I don't think he deserves a letter but I know that writing one will make me feel better so I'm doing this for me. I want to thank you for helping me get over him, but I also want...
    Dreamer32 Dreamer32 22-25, F 5 hrs ago

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    So my boyfriend and I have been together alittle over two years and hes leaving tomorrow for work. We are inseperable and he is my best friend. I have cried all day.knowing I will...
    stephyblueyes14 stephyblueyes14 26-30, F 3 hrs ago

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    All of the women of in my family have ESP. We've always had from the beginning. We all different forms of ESP. But is it strange that every female in my moms side of the family...
    SimplyZero SimplyZero 13-15, F 1 Response 2 hrs ago

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    The thing that makes me most angry about people who constantly lie to you, is the fact they think you are not smart enough to figure out they are lying. When you have, they persist...
    JustmeraeAgain JustmeraeAgain 46-50, F 2 Responses 2 hrs ago

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    I have no one but me. I immerse myself in books, crafts and games to drown out the fact that I am totally alone. Granted, I do love being alone, but it would be nice to know...
    CraftsInStitches CraftsInStitches 31-35, F 3 Responses 47 mins ago

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      Hi, this is something that's not that easy to talk to people about, so I thought this would be a good place to vent it. Im 30 & I have almost no family (& no 'really close...
    Shybi30 Shybi30 26-30, F 1 Response 31 mins ago

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    My 3rd great grandmother never drank Coffee, her husband was a judge and he made a wrong conviction, the family of the victim decided to kill him, they knew that he drank coffee...
    projectgwyn101 projectgwyn101 16-17, M 19 mins ago

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    I lost my father to cancer on February 8, 2014 . I was just shy of turning 16 . He's missed so much in these past 2 1/2 months . I think it gets harder everyday . He should be...
    awkwardprincess98 awkwardprincess98 16-17, F 1 Response 17 hrs ago

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    Besides getting cheated on ...there's always been this other boy who's always trying to grab my attention He's a football, baseball& basketball player for my school he's very...
    elitedancer14 elitedancer14 13-15, F 16 hrs ago

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    It's not a song to sing. In fact, I have many. I won't die, before I fulfil all of them. Nothing will kill me, before that.
    AyushCR7 AyushCR7 13-15, M 1 Response 14 hrs ago

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    Napa Anti-Renovation Specter By Paul Dale Roberts, HPI Esoteric Detective HPI (Hegelianism Paranormal Intelligence) International https://www.facebook.com/#!/groups...
    PaulDaleRoberts PaulDaleRoberts 51-55, M 13 hrs ago

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    He is a teenager , and when my husband is away he keeps me satisfied. Should have done it years ago
    wendy1979 wendy1979 31-35, F 1 Response 12 hrs ago

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    I went to the movie theater today to see Rio 2 (pretty good movie) as my sister wanted me to go and meet two of her friends. And everything was going decently to me, but after the...
    CeruleanWolf CeruleanWolf 18-21, F 12 hrs ago

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    I was in a foreign land, a sort of wilderness. I discovered a tunnel in the outdoors with the walls ceiling and floor full of vines and there were large spiders nesting amongst it...
    AngelofPink AngelofPink 18-21, F 1 Response 12 hrs ago

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    I'm home alone with my brother for 4 days..all my family have gone away for 4days...as much as I like being Alone my anxiety makes me feel like I'm on the edge all the time and I...
    pardz pardz 22-25, M 11 hrs ago

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