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I Have Schizencephaly

A Schizencephaly anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Schizencephaly. You're not alone. 31 People

    My Life Saver

    i found out i was pregnant when i was 15 then through testing the doctors ran test on my tummy and baby and told me my baby boy had schizencephaly ,i froze. i am now 26 with a ten year old son who i was told would never walk ... and he does ! , well at three . he has never talked...
    dariansmom dariansmom 26-30 3 Responses May 9, 2012

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    My Daughter Has Schizencephaly.

    hi , were from the uk.my daughter is 17months of age and was diagnosed with hemiplegia just after her first birthday. we got her mri results back last month which show she has schizencephaly on the left side of her brain. the cleft it from the front to the side.i am new to all...
    chelseab chelseab 18-21 4 Responses Feb 24, 2011

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    I Have Schizencephaly

    I was diagnosed with both schizencephaly and cerebral palsey when I was five. I had been having difficulties walking and doing other things my entire life, just about. We went to so many doctors appointments that I feel like I spent most of my childhood in a doctors office. I had...
    Meig Meig 16-17 1 Response Aug 30, 2012

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    Grandma

    I am a 47 year old mom of 4 from Hampton Virginia who is awaiting the arrival of my first grandchild that is due November 23rd.  A few weeks ago we were told that the baby had a stroke in utero and that she would need further testing.  On October 5th we traveled to Philadelphia...
    Kazziexo Kazziexo 46-50 1 Response Oct 7, 2011

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    First Canine Reported To Have Open Lipped Schizencephaly - Cletus' Story

    I am the proud owner of Cletus the Bloodhound, a 2 year old Bloodhound mix who has the first reported case of open lipped schizencephaly in a canine. I adopted Cletus when he was only 8 weeks old and I have to say it was not I who chose him, it was my other dog, Magnum, who I...
    dsilber dsilber 36-40 Oct 25, 2012

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    So Much Uncertainity

    I'm 33 years old and just learning I was born with Schizencephaly.  Now with learning this, all the signs and symptoms that started back when I was about 12 or 13 make sense now... I was told they were panic attacks and anxiety right up until 2 years ago when I had a MRI...
    groovygirl75 groovygirl75 31-35, F 9 Responses Oct 23, 2009

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    My 10 Month Old Has Septo Optic Dysplasia And Schizencephaly And Is Blind.

    Hi I am 20 years old and I am in the US Army. My 10 month old daughter has septo optic dysplasia and schizencephaly.Consequently she is also legally blind. It came as shock since the drs at first told me i was crazy and that she was fine. Me being her mother I new something was...
    zionsmomm zionsmomm 18-21 3 Responses Feb 5, 2012

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    Kiyanah Marie

    My daughter was born with an extremely rare condition called Schizencephaly which is classified as a developmental delay, it took us almost a year for her to be diagnosed because she had no physical abnormalities, once an mri was finally taken we found the answer that we were...
    kiitee13 kiitee13 18-21 2 Responses Feb 7, 2013

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    Related Experiences

    I have blue eyes, obviously you can't tell because you cannot see my entire face. XD but they're blue. And I'm blind as a bat.
    IngensImpetum IngensImpetum 18-21, M 1 Response 1 hr ago

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    i'm sick of hearing people say''family is everything.there's nothing more than family''and they meant family means blood. NO,that is not true. I had been phisically,sexually abused...
    JerryJerryA JerryJerryA 31-35, F 2 Responses 1 hr ago

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    I have my own principles. If you dont like it. I have others.
    IncongruousAnne IncongruousAnne 26-30, F 30 mins ago

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    I use to be an alcoholic and it's been 2 and half years since I quit drinking. Four months has gone by since I quit smoking cigarettes. I also quit drinking soda pop, yes coke...
    jonnygoode74 jonnygoode74 36-40, M 1 hr ago

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    I've noticed different sub-personalities within me that affect my moods and behavior. However, I do not have a multiple personality disorder. I do not experience abrupt shifts from...
    DarkPathos DarkPathos 51-55, M 1 Response 1 hr ago

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    I have gone from a severely traumatic childhood amongst other things to a young women setting out to change the world. I will be opening my own charity towards the end of 2016...
    Kissedbyarose Kissedbyarose 22-25, F 33 mins ago

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    About three weeks ago I overdosed on Ativan. I had to go to the Emergency Room and several hours later was sent to a Mental Institution. It helped a little to go there, I learned a...
    barbee0 barbee0 13-15, F 1 Response Dec 29, 2014

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    I have a craving for a Milf right now.
    needbetter needbetter 31-35, M Dec 29, 2014

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    I really don't talk to anyone about my problems anymore... everyone else seems to have their own problems and I don't wanna give them more... so I just keep it to myself... plus I...
    smpoetry smpoetry 13-15, F 1 Response Dec 29, 2014

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    I've recently found another trigger to my anxiety : Spending money. It usually only hits me if I spend it on something I'm iffy about or I'm gambling and lose. (Excluding bets...
    akaShaun akaShaun 16-17, M 1 Response Dec 29, 2014

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    Why is it that we all want what we can't have? Or why do we want the bad over the good. Then there's the people that want us but we don't want them back. It's a vicious cycle...
    heaven89 heaven89 22-25, F 1 Response Dec 29, 2014

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    I have a kik, if u want my username, message me :P
    ItsKimmy ItsKimmy 13-15, F 2 Responses Dec 29, 2014

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    Does anyone have any like physical symptoms that they are aware of before a transition or like do you have friends, family, spouses that notice any physical signs/symptoms before a...
    xobeautynvrdiesxo xobeautynvrdiesxo 26-30, T 3 Responses Dec 29, 2014

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    So I'm looking for a specific quote. I don't remember how it exactly what it was so I was hoping you guys could help me. It talked about how "when you want someone you trying...
    skyblue914 skyblue914 16-17, F Dec 29, 2014

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    Does anyone's spouse show physical symptoms that they are about to have a transition to one of their alters? or has anyone around you ever noticed any physical signs/symptoms...
    xobeautynvrdiesxo xobeautynvrdiesxo 26-30, T 1 Response Dec 29, 2014

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    What have been your experiences with passive aggressive manipulative people ? How do you manage not wanting to drive them into a wall? Thanks.
    AquariusLife AquariusLife 26-30, F 5 Responses Dec 29, 2014

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    I am waiting for the one. But I think he will never come. To be honest I never had a boyfriend. But I did have had this someone. At that time I was still so young. But distance...
    1hatemy5elf 1hatemy5elf 16-17, F 1 Response Dec 29, 2014

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    I have no friends, only a few acquaintances including my family
    jessykjones09 jessykjones09 16-17, F 2 Responses Dec 29, 2014

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    It sucks I have been given a new tutor at my relearning centre all because I have had detentions and being keep back a year to sit tests again. She is some nerd who is also a...
    NurseC NurseC 18-21, F 4 Responses Dec 29, 2014

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    when people tell you you would look so much better if u didn't have all those spots on your face .. yeah that hurts fam
    americanhorrorstorylover americanhorrorstorylover 16-17, F 2 Responses Dec 29, 2014

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    i have a dimple on each cheek & i cant help but smile when people comment about them (:
    classylips classylips 13-15, F Dec 29, 2014

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    at this age i feel pressured to do these things...i never have and i hopefully never will.
    classylips classylips 13-15, F 5 Responses Dec 29, 2014

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    so many barriers between us...he is already in relationship... he is quiet famous in college so he don't deserve someone not bright like me. Futhermore I'm a loser compare to him...
    FelixFelicity03 FelixFelicity03 18-21, F 3 Responses Dec 29, 2014

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    💡 If you have the same ideas as everybody else but have them one week earlier than everyone else then you will be hailed as a visionary. But if you have them five years...
    expressomarkie expressomarkie 46-50, M Dec 29, 2014

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    I have social anxiety, after graduation I lost all my friends. Been wanting friends online but it hasn't worked out. I just work mostly :/ anyone want to chat?
    zeak18 zeak18 18-21 Dec 29, 2014

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    I guess this is karma for someone like me. I don't know. When I start to like someone, it always starts with an attraction. Crushes don't really last long in my case, and sometimes...
    ZeraSummers ZeraSummers 16-17, F Dec 29, 2014

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    I have a best friend whom I can discuss anything. It just amazing to be with her.we talk of everything under the sun.love sex profession emotion daytoay activities. Feel so good...
    slangs slangs 46-50, M 4 Responses Dec 29, 2014

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    How do you start…where do you begin…telling someone all the bad things you’ve seen, heard and happened to you, how the only option you had was to stay strong and survive, not...
    SensualPassionbbw SensualPassionbbw 31-35, F 3 Responses Dec 29, 2014

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    Much to the amusement of all the kids I know I have been Globophobic since I was really young. Apparently it's not such a weird phobia as google tells me it's in the top ten of...
    Blondie1978 Blondie1978 36-40, F 7 Responses Dec 29, 2014

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    Malattachment due to starvation for intimacy during early development. Caused by: Neglect and/or abuse from the female attachment figure. Most people who have this affliction are...
    Ajushi Ajushi 36-40, M 1 Response Dec 29, 2014

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    How to Have Nice Glowing Skin Without Facelift Surgery (http://luv2sex.theblogpress.com/?p=3962)
    how2stayyoung how2stayyoung 51-55, M Dec 29, 2014

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    I'm not exaggerating. Trust me. I'm normally harmless, but if I tell you I'm angry, go away. I try to treat others the way I would want to be treated. But no one treats me the way...
    DarkwingGoslyn DarkwingGoslyn 31-35 2 Responses Dec 29, 2014

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    the messages that i get make me laugh. The amount of stupidity that some people have on here is really funny. i don't know if it's just me or what, but yeah.
    madiek madiek 16-17, F Dec 29, 2014

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    An actual experience I had: A friend of mine who recently returned home from the army confided in me that he had PTSD. I helped him through some tough days, teaching him better...
    MsBree01 MsBree01 22-25, F 2 Responses Dec 29, 2014

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    Do you get the disorder since you were born or get it in your life time? i believe i dont have this when i was born, i had a lot of friends when i was child. Trauma and bullying...
    chocolattee chocolattee 22-25, M Dec 29, 2014

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    I am 40 but am told on a daily basis I look like I'm in my mid 20's. Such a compliment. But I am also then attracted to you get men. The catch is the younger men don't have the...
    Sexygirl1314 Sexygirl1314 36-40, F 3 Responses Dec 29, 2014

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    My weight loss struggle began with the birth of my first child in 2009, I didn't gain an obscene amount of weight during the pregnancy; it was after. I suffered severely from...
    readum16 readum16 26-30, F 6 Responses Dec 29, 2014

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    So I posted a post about wanting to have a baby..but I said I want to have a baby with my boyfriend and no one else. So I don't need random old people messaging me asking if they...
    wedgieshurtalot wedgieshurtalot 16-17, F 3 Responses Dec 29, 2014

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