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I Have Schizencephaly

A Schizencephaly anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Schizencephaly. You're not alone. 33 People

    First Canine Reported To Have Open Lipped Schizencephaly - Cletus' Story

    I am the proud owner of Cletus the Bloodhound, a 2 year old Bloodhound mix who has the first reported case of open lipped schizencephaly in a canine. I adopted Cletus when he was only 8 weeks old and I have to say it was not I who chose him, it was my other dog, Magnum, who I...
    dsilber dsilber 36-40 Oct 25, 2012

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    My Daughter Has Schizencephaly.

    hi , were from the uk.my daughter is 17months of age and was diagnosed with hemiplegia just after her first birthday. we got her mri results back last month which show she has schizencephaly on the left side of her brain. the cleft it from the front to the side.i am new to all...
    chelseab chelseab 18-21 4 Responses Feb 24, 2011

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    So Much Uncertainity

    I'm 33 years old and just learning I was born with Schizencephaly.  Now with learning this, all the signs and symptoms that started back when I was about 12 or 13 make sense now... I was told they were panic attacks and anxiety right up until 2 years ago when I had a MRI...
    groovygirl75 groovygirl75 31-35, F 9 Responses Oct 23, 2009

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    My Life Saver

    i found out i was pregnant when i was 15 then through testing the doctors ran test on my tummy and baby and told me my baby boy had schizencephaly ,i froze. i am now 26 with a ten year old son who i was told would never walk ... and he does ! , well at three . he has never talked...
    dariansmom dariansmom 26-30 3 Responses May 9, 2012

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    Kiyanah Marie

    My daughter was born with an extremely rare condition called Schizencephaly which is classified as a developmental delay, it took us almost a year for her to be diagnosed because she had no physical abnormalities, once an mri was finally taken we found the answer that we were...
    kiitee13 kiitee13 18-21 2 Responses Feb 7, 2013

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    My 10 Month Old Has Septo Optic Dysplasia And Schizencephaly And Is Blind.

    Hi I am 20 years old and I am in the US Army. My 10 month old daughter has septo optic dysplasia and schizencephaly.Consequently she is also legally blind. It came as shock since the drs at first told me i was crazy and that she was fine. Me being her mother I new something was...
    zionsmomm zionsmomm 18-21 3 Responses Feb 5, 2012

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    I Have Schizencephaly

    I was diagnosed with both schizencephaly and cerebral palsey when I was five. I had been having difficulties walking and doing other things my entire life, just about. We went to so many doctors appointments that I feel like I spent most of my childhood in a doctors office. I had...
    Meig Meig 16-17 1 Response Aug 30, 2012

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    Grandma

    I am a 47 year old mom of 4 from Hampton Virginia who is awaiting the arrival of my first grandchild that is due November 23rd.  A few weeks ago we were told that the baby had a stroke in utero and that she would need further testing.  On October 5th we traveled to Philadelphia...
    Kazziexo Kazziexo 46-50 1 Response Oct 7, 2011

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    Related Experiences

    Hey!! So I have been living with hearing impairment since I was about 11 years old. They said at first it was a defect and would not progress after I finished growing. It didn...
    Wochie08 Wochie08 22-25, F 27 mins ago

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    I would like to have a boyfriend.message me
    OnlyMeehA OnlyMeehA 13-15, F 40 mins ago

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    Most days when I feel on edge from the time my feet hit the floor until I lay my head down at night. It's difficult to have friendships, and work is very trying. Occasionally I...
    WittyTwit WittyTwit 26-30, F 1 Response 43 mins ago

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    I have ADHD I don't like it I foreget things a loyt
    lovekitten12345 lovekitten12345 13-15, F 1 Response 48 mins ago

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    As the title of this place implies I don't and I seem to have the magic power of msking the few new friends I make every now and then, angry for just geing who I am and beong...
    LozzyFromRome LozzyFromRome 46-50, M 2 Responses 1 hr ago

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    I have a whiplash injury and am currently in a neck brace and back brace! Anyone want to chat?
    alex527 alex527 41-45, M 1 hr ago

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    and I hope no one catches it - but it is contagious and everyone will get it at some point or another. **often times random thoughts are great things to have
    Newconvo1 Newconvo1 41-45, M 1 Response 1 hr ago

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    Quitting MDD - my story Hi friends, I posted about quitting MDD a couple months ago and just wanted to give everyone an update and offer whatever help I can. I have been...
    BuddhistAddict BuddhistAddict 26-30 1 hr ago

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    "I have a confession"... get it?
    Newconvo1 Newconvo1 41-45, M 1 hr ago

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    Give thanks, to everything you have. Including your troubles.
    jjoe01 jjoe01 41-45, M 1 hr ago

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    She has his heart in a way that I don't I see him in a way that she can't She hold his hand And I own his smile She gives him butterflies I give him laughter We each have a...
    Villainess4life Villainess4life 31-35, F 1 hr ago

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    Sometimes I want to scream, I have trust issues, i meet someone and as soon as I open up, I become an object!
    Megansback Megansback 31-35, F 2 Responses 1 hr ago

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    I no longer obsess about anything. I am now indifferent toward life, I do not know if this is good or bad. But I have decided to live life according to my own advice, keeping an...
    Johnny050 Johnny050 46-50, M 5 Responses 1 hr ago

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    I have a crush on Bass from Mega Man...he's so hot.
    danieth danieth 13-15, F 2 hrs ago

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    A lot actually you won't believe that I have 10 siblings right well I do thanks to mom and dad
    QueenBrianna1st QueenBrianna1st 13-15, F 1 Response 2 hrs ago

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    Death is solace . I think the most satisfying thing would be to have nothing at all. I think the mind needs a break, I'd consider it hell if I died and woke up in another body with...
    Shahedansharif Shahedansharif 16-17, M 2 hrs ago

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    Im so, so proud of myself! Today I had my college audition, and I had to wake up at 5am to get ready, (I didn't go to bed until 1am last night, so I'm running off not even 4 hours...
    Hipstercatlover Hipstercatlover 16-17, F 5 Responses 2 hrs ago

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    I don't know what to say about this. All I know is that I swear far too much and get into too many arguments. I have done things in the past that I'm not proud of. I've shouted at...
    skeletoncliquetop skeletoncliquetop 13-15, F 1 Response 2 hrs ago

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    My current picture may not be the best take that would make my face look beautiful, as a matter of fact, I think it makes me face look weird and different from my "normal" face...
    MissGaga MissGaga 22-25, F 1 Response 2 hrs ago

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    One 15, the other 8. My teenager is turning out to be a lovely young lady, always catching the boys' eyes and interests. And she isn't stuck-up about her looks (I raised her better...
    MarloesB MarloesB 36-40, F 3 hrs ago

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    i have no where to go since azeroth is a fantasy place
    warcraftlover16 warcraftlover16 18-21, M 3 hrs ago

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    And I don't need one. I have healthy snacks and the internet. :)
    Tutu7 Tutu7 61-65, F 4 hrs ago

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    Me and my best friend made a bet if I he won the game of FIFA 16 we would have to fu*ck my mum while she slept but if I won we would have to fu*ck his mum while she slept. He ended...
    MrVaderOfTheSith MrVaderOfTheSith 18-21, M 5 hrs ago

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    I have ten, but most are small so they are easy to hide. My biggest and most favorite are branches with autumn leaves that snake up my back and peek over my shoulder. I love how...
    PoizonApple PoizonApple 31-35, F 3 Responses 5 hrs ago

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    I have a new what I think is a ocd issue, I can't wait for stuff. It makes me anxious. If I'm in line my first thought is get out of there now. I'm waiting now to do taxes and I'm...
    Dorkfish711 Dorkfish711 26-30 5 hrs ago

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    I like the fact that I have a weapon that can put a smile of someone's face, even if I personally can't!! (:
    Pilotbob75 Pilotbob75 36-40, M 1 Response 5 hrs ago

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    Have you ever really dance on the edge? Is there something still scaring you?
    PierceTheVeiI PierceTheVeiI 13-15, F 1 Response 5 hrs ago

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    Very eclectic always have been from a very young age from military band music through to pop rock gospel I think you get the picture I'll listen to anything !!!!!!!
    chris7379 chris7379 41-45, M 6 hrs ago

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    It was the spring of my freshman year in college, and I had recently broken up with the first guy I’d ever slept with. I was in a coed dorm, and M lived across the hall, a good...
    Multiversality Multiversality 46-50, F 2 Responses 7 hrs ago

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    What does everyone REALLY think about this "hobby". Do you think its almost NSA? How do feelings not develop? I tried it with an exboyfriend and I seriously shouldn't gave done it...
    CJC78 CJC78 36-40, F 7 hrs ago

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    if you have deep nice voice,i probably can pass out. anyone skype with me cos i need to sleep..insomniac is hell
    blackandwhiteperpule blackandwhiteperpule 31-35, F 7 hrs ago

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    I am really a ****** up guy!! I mess everything I encounter in my daily life. I am not even a normal guy.I am a guy who acts abnormal. I am guy who thinks random thoughts. I am a...
    TheMomentITouchedYou TheMomentITouchedYou 18-21, M 1 Response 7 hrs ago

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    I just hate my brain so much. I want to splatter it all over the walls like it deserves but I just don't have the courage and I kind of don't want to die. It is a very confusing...
    Tinchi Tinchi 22-25 7 hrs ago

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