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I Have Schizencephaly

A Schizencephaly anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Schizencephaly. You're not alone. 32 People

    My 10 Month Old Has Septo Optic Dysplasia And Schizencephaly And Is Blind.

    Hi I am 20 years old and I am in the US Army. My 10 month old daughter has septo optic dysplasia and schizencephaly.Consequently she is also legally blind. It came as shock since the drs at first told me i was crazy and that she was fine. Me being her mother I new something was...
    zionsmomm zionsmomm 18-21 3 Responses Feb 5, 2012

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    My Daughter Has Schizencephaly.

    hi , were from the uk.my daughter is 17months of age and was diagnosed with hemiplegia just after her first birthday. we got her mri results back last month which show she has schizencephaly on the left side of her brain. the cleft it from the front to the side.i am new to all...
    chelseab chelseab 18-21 4 Responses Feb 24, 2011

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    My Life Saver

    i found out i was pregnant when i was 15 then through testing the doctors ran test on my tummy and baby and told me my baby boy had schizencephaly ,i froze. i am now 26 with a ten year old son who i was told would never walk ... and he does ! , well at three . he has never talked...
    dariansmom dariansmom 26-30 3 Responses May 9, 2012

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    First Canine Reported To Have Open Lipped Schizencephaly - Cletus' Story

    I am the proud owner of Cletus the Bloodhound, a 2 year old Bloodhound mix who has the first reported case of open lipped schizencephaly in a canine. I adopted Cletus when he was only 8 weeks old and I have to say it was not I who chose him, it was my other dog, Magnum, who I...
    dsilber dsilber 36-40 Oct 25, 2012

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    I Have Schizencephaly

    I was diagnosed with both schizencephaly and cerebral palsey when I was five. I had been having difficulties walking and doing other things my entire life, just about. We went to so many doctors appointments that I feel like I spent most of my childhood in a doctors office. I had...
    Meig Meig 16-17 1 Response Aug 30, 2012

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    Kiyanah Marie

    My daughter was born with an extremely rare condition called Schizencephaly which is classified as a developmental delay, it took us almost a year for her to be diagnosed because she had no physical abnormalities, once an mri was finally taken we found the answer that we were...
    kiitee13 kiitee13 18-21 2 Responses Feb 7, 2013

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    Grandma

    I am a 47 year old mom of 4 from Hampton Virginia who is awaiting the arrival of my first grandchild that is due November 23rd.  A few weeks ago we were told that the baby had a stroke in utero and that she would need further testing.  On October 5th we traveled to Philadelphia...
    Kazziexo Kazziexo 46-50 1 Response Oct 7, 2011

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    So Much Uncertainity

    I'm 33 years old and just learning I was born with Schizencephaly.  Now with learning this, all the signs and symptoms that started back when I was about 12 or 13 make sense now... I was told they were panic attacks and anxiety right up until 2 years ago when I had a MRI...
    groovygirl75 groovygirl75 31-35, F 9 Responses Oct 23, 2009

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    Related Experiences

    everyday I worry about becoming sad. it's like I don't trust myself. I fear that I'm going to fall back into my sad stage. but I'm strong, I really am. I survived the most...
    notsurewhyigotthisapp notsurewhyigotthisapp 13-15, F 15 mins ago

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    Hi my names Bryan I'm just a normal teenager like most people on here and I have a story to tell well when I was in like sixth or fifth grade when I was in class I had this...
    ssb4 ssb4 18-21, M 2 hrs ago

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    I have two sisters, I am the middle child. I've always been known as the different one. I don't look, act, or think the same way they do. Im the logical one whereas my sisters tend...
    anonamanda001 anonamanda001 18-21, F 2 hrs ago

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    There's some funky stuff going down in the universe ! All last week, there is chaos around me, I really hoped it would disappear over the weekend after the full moon. I do think...
    Bythelight0fthemoon Bythelight0fthemoon 36-40, F 2 hrs ago

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    You know this song that says " I KNOW IM GOOD FOR SOMETHING I JUST HAVEN'T FOUND IT YET... AND I NEED IT" it's like I'm really good at studying so i am i study hard and wanna be...
    96Charlie 96Charlie 18-21, F 3 hrs ago

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    I grew up with a dad the had very bad anger. I have my mom,brother and a sister and me. My dad always screamed at us and yelled. He once threw car keys at my mothers jaw and it...
    Jordanneedle Jordanneedle 18-21, F 2 Responses 3 hrs ago

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    My daughter sent me a text yesterday: My daughter: My sister called me with some news... Me: Oh? What news? Is she ok? My daughter: Yeah.. My dads not tho.. Me: What's happened...
    snowberry75 snowberry75 36-40, F 3 Responses 3 hrs ago

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    I hate when I get paranoid over silly little things... and it turns out that you did in fact have reason to worry. ****. How can one person have such an effect on me? It's like...
    ambivalentFriability ambivalentFriability 18-21 1 Response 4 hrs ago

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    So I have done with this many older women. It used to be a super fantasy but I am the kinda guy that hates to want something and loves making his dreams come True. So I have made...
    zbigbox zbigbox 31-35, M 2 Responses 4 hrs ago

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    Greetings, Group : ) I really need some support, so I joined a support group! Here's my story ; I'm from Alabama. Fifteen years ago I married the love of my life, and eight years...
    NomdeVoyage NomdeVoyage 51-55, F 1 Response 5 hrs ago

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    My family disowned me because I will not allow them to drink around my baby. My husband's side of the family have a very long line of severe alcoholics. My father in law died 3...
    disownedwoman disownedwoman 31-35, F 5 hrs ago

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    Yeah, so from years of physical and sexual abuse, my ear lobe is gangrening and oozing from whatever my Fake Mother and her boyfriend did to me and the deep wound on my index...
    ONESTARRYSTARRYNIGHT ONESTARRYSTARRYNIGHT 26-30, F 1 Response 5 hrs ago

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    My long haired tortoiseshell cat 🐱 hadn't been very well over the last few weeks... It started about 4 weeks ago...she seemed unable to jump up onto the sofa, something she...
    expressomarkie expressomarkie 46-50, M 6 Responses 6 hrs ago

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    SOMEONE HELP! ANY ADVICE FOR ME? My family and I have just moved to a new town and I don't know anybody here. My mom has just informed me that Thursday is Fish Camp day! So I...
    Ctcds Ctcds 13-15, F 2 Responses 7 hrs ago

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    As I say "Have a good one!" to my coworker, I wonder whether this gives away that I used to live in California? I learned this phrase while I lived in California, and I do not know...
    JoannaBe JoannaBe 41-45, F 2 Responses 7 hrs ago

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    I'm very happy I found this site – I'm glad for a venue where I can express myself and my so-called "secrets" without retribution or harm. I'm fully aware that most "Normal...
    wajh wajh 51-55, M 8 hrs ago

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    Until February 22, i was an elite athlete on an extremely competitive soccer team, and also played tennis, piano, and did well in school. Then, i got sick. we thought it was just...
    battlingpots battlingpots 16-17, F 8 hrs ago

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    I have no idea how it gets that way. I swear all do in it is sleep. Or at least any activities I do take place in or on my bed. I'm considering throwing a load of stuff out. It'll...
    HannahSavannah HannahSavannah 18-21, F 3 Responses 8 hrs ago

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    I realize, as a dude on EP, I'm lucky. For the most part I don't have to deal with asshats PMing me for no reason. But there have been a few exceptions to this throughout my years...
    iRant iRant 46-50, M 4 Responses 8 hrs ago

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    I finally went to the doctor and it seems I have shingles. Has anyone else here had it? I was told I could have it for 2 weeks, 2 months or longer. What was your experience with it...
    cpettit757 cpettit757 22-25, F 2 Responses 9 hrs ago

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    I've been married to my husband for 10 years, and he's been injecting morphine for about two of those years. We have two small children ages 5 and 1. I'm a stay at home mom and...
    rivers0ng rivers0ng 31-35, F 1 Response 9 hrs ago

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    What my day consists of: 1. Wake up. 2. Let the dog out. 3. Get my son up and get him ready for day care. 4. Make a quick breakfast. 5. Put him in front of the television...
    beyondrepair321 beyondrepair321 22-25, F 2 Responses 9 hrs ago

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    So me and my friends went on our college field trip.I know this has nothing to do with weight loss at all, but that part is coming. I wanted to include alot about what happened to...
    WhisperinAngel WhisperinAngel 31-35, F 1 Response 9 hrs ago

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    I was adopted from Guatemala and brought to the U.S. I was given up at birth I think. I don't know why my mom gave me up for adoption. All the records are in Spanish so I can't...
    SJ110 SJ110 13-15, F 9 hrs ago

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    Right okay here it goes... I have this feeling I want to go to a hardcore party, get drunk and get laid. There you go I said it. Don't judge 😂 😵 (I have been always a party...
    ghost25 ghost25 18-21, M 5 Responses 9 hrs ago

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    Yes I have I decided to have a few months off because I was kinda addicted to ep lol. But I'm back with the same account name as before. And I'm glad I have returned haha 😆
    ghost25 ghost25 18-21, M 1 Response 9 hrs ago

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    I have been lied to pretty much my whole life so far. I want to trust people but it seems like when I get to where I feel I can trust them, I catch them in a lie or something...
    SUNNYSIDEUP4 SUNNYSIDEUP4 18-21, F 10 hrs ago

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    I feel like if I fail at human interaction I have to just leave the person alone. Last night I was talking with a girl, everything was going soo well but at one point one of her...
    ElSabre101 ElSabre101 26-30, M 2 Responses 10 hrs ago

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    I have been recently diaginosed with AvPD. I'm nearly completely isolated and I don't have a social life. I'm tired of being trapped in this tiny box. I'm so terrified of being...
    PainfullyAvoidant PainfullyAvoidant 18-21, F 10 hrs ago

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    Well, to be honest, I DON'T have a big plump bottom of my own. But I wish I did since I find them to be more attractive, as long as they're shapely. And I'm told they also feel...
    Roselynne Roselynne 41-45 10 hrs ago

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    knowing me id have a crush on someone but only because I cant have them . The whole forbidden fruit thing just seems so interesting yet quite frustrating. or most likely wouldn...
    Multicolour12 Multicolour12 22-25, F 11 hrs ago

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    This is more of a question. Same story-years of this progressing without understanding but journalling. No need to list-they are the same as here with the same progressing...
    happycampersfanNfran happycampersfanNfran 41-45, F 12 hrs ago

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    Hello. I have a "working interview" for approximately 4 hours tomorrow at a local daycare/preschool and I am frightened. I have some experience with children, but not to the degree...
    swampfoot swampfoot 18-21 13 hrs ago

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    I haven't been on here in a while and have decided to post. I have a few minutes so why not right? RIGHT! It's been one helluva ride this year to say the least. I've...
    flibsley flibsley 31-35, M 13 hrs ago

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