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I Have Schizencephaly

A Schizencephaly anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Schizencephaly. You're not alone. 31 People

    So Much Uncertainity

    I'm 33 years old and just learning I was born with Schizencephaly.  Now with learning this, all the signs and symptoms that started back when I was about 12 or 13 make sense now... I was told they were panic attacks and anxiety right up until 2 years ago when I had a MRI...
    groovygirl75 groovygirl75 31-35, F 9 Responses Oct 23, 2009

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    Kiyanah Marie

    My daughter was born with an extremely rare condition called Schizencephaly which is classified as a developmental delay, it took us almost a year for her to be diagnosed because she had no physical abnormalities, once an mri was finally taken we found the answer that we were...
    kiitee13 kiitee13 18-21 2 Responses Feb 7, 2013

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    Grandma

    I am a 47 year old mom of 4 from Hampton Virginia who is awaiting the arrival of my first grandchild that is due November 23rd.  A few weeks ago we were told that the baby had a stroke in utero and that she would need further testing.  On October 5th we traveled to Philadelphia...
    Kazziexo Kazziexo 46-50 1 Response Oct 7, 2011

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    I Have Schizencephaly

    I was diagnosed with both schizencephaly and cerebral palsey when I was five. I had been having difficulties walking and doing other things my entire life, just about. We went to so many doctors appointments that I feel like I spent most of my childhood in a doctors office. I had...
    Meig Meig 16-17 1 Response Aug 30, 2012

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    First Canine Reported To Have Open Lipped Schizencephaly - Cletus' Story

    I am the proud owner of Cletus the Bloodhound, a 2 year old Bloodhound mix who has the first reported case of open lipped schizencephaly in a canine. I adopted Cletus when he was only 8 weeks old and I have to say it was not I who chose him, it was my other dog, Magnum, who I...
    dsilber dsilber 36-40 Oct 25, 2012

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    My 10 Month Old Has Septo Optic Dysplasia And Schizencephaly And Is Blind.

    Hi I am 20 years old and I am in the US Army. My 10 month old daughter has septo optic dysplasia and schizencephaly.Consequently she is also legally blind. It came as shock since the drs at first told me i was crazy and that she was fine. Me being her mother I new something was...
    zionsmomm zionsmomm 18-21 3 Responses Feb 5, 2012

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    My Life Saver

    i found out i was pregnant when i was 15 then through testing the doctors ran test on my tummy and baby and told me my baby boy had schizencephaly ,i froze. i am now 26 with a ten year old son who i was told would never walk ... and he does ! , well at three . he has never talked...
    dariansmom dariansmom 26-30 3 Responses May 9, 2012

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    My Daughter Has Schizencephaly.

    hi , were from the uk.my daughter is 17months of age and was diagnosed with hemiplegia just after her first birthday. we got her mri results back last month which show she has schizencephaly on the left side of her brain. the cleft it from the front to the side.i am new to all...
    chelseab chelseab 18-21 4 Responses Feb 24, 2011

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    Related Experiences

    I think I want to end my life. Its so hard having people in your life that you love and care about treat you like crap . There has been so many times when I tried to slit my wrist...
    insanebeauty insanebeauty 22-25, F 1 Response 1 hr ago

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    Well. I thought I met the most wonderful beautiful human being in my life when I met him. He was everything I asked for and wanted in a man. He was strong, hard working, caring...
    aqua83 aqua83 26-30 1 Response 1 hr ago

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    I'd like friends whole value honesty above all else, and will give it to me as they see it no matter how they think I will feel about it. That doesn't mean I want to befriend jerks...
    LukeW20 LukeW20 18-21, M 1 Response 1 hr ago

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    Words of wisdom: When the toilets at work don't flush properly don't keep flushing. Merry Christmas to our neighbours on the floor below us.. I have your weather prediction for...
    aquagrl aquagrl 31-35, F 1 Response 50 mins ago

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    He just f-ing proposed. And I said no. But. I'm only 16. I couldn't have said yes...
    Cassandrahere Cassandrahere 16-17, F 44 mins ago

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    I Sooo Have the hots for Caitlin Stasey Phoebe Tonkins Gia Anne-Marie Felicitas Nd Raeen Roes Wilson ^?^
    ChubbiixBunnii ChubbiixBunnii 13-15, F 34 mins ago

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    My name is Jessica and I am 30 years old residing in Atlanta Georgia. I really would like to find a man who would like to have a baby and impregnate me.
    Jessicafsu84 Jessicafsu84 26-30, F 3 Responses 33 mins ago

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    Why do I have to pay a college money if they are just going to reject me
    benj3 benj3 16-17, M 2 Responses Nov 27

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    I hate when people get mad or offended if you correct them. Excuse me for correcting your spelling or pronunciation, so you don't come off as a dumbass. Or if you correct someone...
    AjLeePunk AjLeePunk 22-25, F 1 Response Nov 27

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    I have two older brothers and one younger brother, all of them can be pretty annoying sometimes. No sisters either so..lovely
    FriendOfARazor FriendOfARazor 18-21, F 2 Responses Nov 27

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    Sad predicament I know, but when I look back, I can see that the happiest times in my life have always been when I was between being in love. I felt like "Yay! I'm finally over...
    aag311 aag311 41-45, M 2 Responses Nov 27

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    I have horrible anxiety. It's with me all day every day, never goes away. Mind is racing, chest is pounding, I can't concentrate most of the time. It sucks. I usually just act like...
    barbee0 barbee0 13-15, F 7 Responses Nov 27

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    Yes I do it makes me upset with myself i have been able to cope with it but sometimes I burst into a firecracker and I just feel terrible. :(
    yeahis18 yeahis18 18-21, F Nov 27

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    I'm a cutter, and burner. When I'm alone with my feelings I have to let them go by just one cut or one small burn. That's my secret, can you keep it?
    LenaBena1430 LenaBena1430 16-17, F 1 Response Nov 27

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    Facebook/Twitter/Instagram: People who write daily novels on their statuses. Same story every day. Usually somewhere along the lines of counting their daily blessings or how much...
    bombchu bombchu 22-25, F Nov 27

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    ^.^ Yupp i do not have a problem at all
    Hopeisinme Hopeisinme 18-21, F 2 Responses Nov 27

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    If I hear any song twice I can sing it myself on the identical pitch and even breathing technique as the original. Most people can't notice a difference. I honestly can sing on...
    Istaysecret Istaysecret 13-15, F Nov 27

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    Anyone take anything for anxiety? What works for you? I'm a overly sensitive person and have panic attacks sometimes, and get stressed very easily.
    fletcherx fletcherx 26-30, M 10 Responses Nov 27

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    A really good friend of mine passed away in the last week. He got sober about the same time as me about a couple of months after I stopped drinking so did he. I met him on his...
    nunos nunos 51-55, M 4 Responses Nov 27

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    I had trichotillomania since I was 12 years old. I would pull my hair out everyday. Recently I have to shave my head due to the pulling. I want to stop but my brain does not want...
    BrownBeeCa BrownBeeCa 26-30, F 2 Responses Nov 27

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    Yes I'm still a virgin and I'm glad Iam :) cos nowadays there aren't to many ppl that still have there virginity
    Foreveralone89 Foreveralone89 22-25, M Nov 27

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    being in lifestyle I have experienced so many things, but one thing I still want is with two women being a mother and a daughter.
    txsnowcat txsnowcat 46-50, M 6 Responses Nov 27

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    i love piercings and tattoos, i have 2 piercings down below, I`m thinking of getting another 1, anybody else got any or thinking of getting sum?
    ukguy75 ukguy75 36-40, M 2 Responses Nov 27

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    Forget yesterday, it has already forgotten you. Don't sweat tomorrow, you haven't even met. Instead open your eyes and your heart to a truly precious gift.. TODAY
    throwawaychild throwawaychild 46-50, M Nov 27

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    My father had a girlfriend they lived in their own houses my father died and we found he had changed his will a few days before he died leaving half his house to us his children...
    hawthornefairy123 hawthornefairy123 56-60, F Nov 27

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    You want weapons? We're in a library. Books are the best weapon in the world. This room's the greatest arsenal we could have. Arm yourself!
    SuperWomanFly SuperWomanFly 22-25, F Nov 27

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    Except, change the "Sometimes" to "Whenever I don't have to focus on something real and important, and sometimes even then".
    ADawnS ADawnS 18-21, F Nov 27

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    I haven't been on this app in a while so I'm just gonna post a bunch of random things about me.
    ThaQueen2 ThaQueen2 18-21, F Nov 27

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    I asked someone on here to stop "hearting" their own responses because it's ridiculous, but they denied it so I made this tiny video to teach them a lesson. Haha I have too much...
    TaoTao90 TaoTao90 22-25, F 1 Response Nov 27

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    My cousin and I like the same guy... I told her how I felt about him during the summer before she even knew he existed. She completely forgot and I don't want to come out and...
    smurfinaround smurfinaround 18-21, F 1 Response Nov 27

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    I am 51 years old now and the events of my childhood continue to set me back. As much as I try to overcome them, I find that life seems to be getting harder instead of easier. I...
    Soulsurvivor83 Soulsurvivor83 51-55, F 3 Responses Nov 27

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    I have two and already dreaming of a third one. It is true. Ink is addictive
    h4ll h4ll 22-25, F 5 Responses Nov 27

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    I have only had 2 serious relationships in my life. The first I was very young and married him. The second was a rebound. But now that I am on my own I'm finding it easier to move...
    hazeleyedangel68 hazeleyedangel68 46-50, F Nov 27

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    I wonder what would have happened had I pursued skateboarding more
    ForTheFallen ForTheFallen 22-25, M Nov 27

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    Theres someone who wronged me, and hurt me very deeply that I no longer speak to. However, we do still have some mutual friends and I've found out that things aren't going so well...
    CatL0105 CatL0105 22-25, F 4 Responses Nov 27

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    I've never been in a relationship and I never will I haven't even had my first kiss yet. I will forever be single
    jstaples534 jstaples534 16-17, M 1 Response Nov 27

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    Random Thought #569,027: I don't put much stock in all these self-help psychology books. Maybe I'd have more faith in them if I saw them on the shelves of SANE people.
    NotHisBabydoll NotHisBabydoll 41-45, F 11 Responses Nov 27

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    BLACK FRIDAY because only in America do people trample each other to death for a flat screen at a walmart only 8 hours after allegedly being thankful for what they have...
    AntonioV AntonioV 46-50, M 4 Responses Nov 27

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