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I Have Schizencephaly

A Schizencephaly anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Schizencephaly. You're not alone. 31 People

    My Life Saver

    i found out i was pregnant when i was 15 then through testing the doctors ran test on my tummy and baby and told me my baby boy had schizencephaly ,i froze. i am now 26 with a ten year old son who i was told would never walk ... and he does ! , well at three . he has never talked...
    dariansmom dariansmom 26-30 3 Responses May 9, 2012

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    So Much Uncertainity

    I'm 33 years old and just learning I was born with Schizencephaly.  Now with learning this, all the signs and symptoms that started back when I was about 12 or 13 make sense now... I was told they were panic attacks and anxiety right up until 2 years ago when I had a MRI...
    groovygirl75 groovygirl75 31-35, F 9 Responses Oct 23, 2009

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    I Have Schizencephaly

    I was diagnosed with both schizencephaly and cerebral palsey when I was five. I had been having difficulties walking and doing other things my entire life, just about. We went to so many doctors appointments that I feel like I spent most of my childhood in a doctors office. I had...
    Meig Meig 16-17 1 Response Aug 30, 2012

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    My 10 Month Old Has Septo Optic Dysplasia And Schizencephaly And Is Blind.

    Hi I am 20 years old and I am in the US Army. My 10 month old daughter has septo optic dysplasia and schizencephaly.Consequently she is also legally blind. It came as shock since the drs at first told me i was crazy and that she was fine. Me being her mother I new something was...
    zionsmomm zionsmomm 18-21 3 Responses Feb 5, 2012

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    Grandma

    I am a 47 year old mom of 4 from Hampton Virginia who is awaiting the arrival of my first grandchild that is due November 23rd.  A few weeks ago we were told that the baby had a stroke in utero and that she would need further testing.  On October 5th we traveled to Philadelphia...
    Kazziexo Kazziexo 46-50 1 Response Oct 7, 2011

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    My Daughter Has Schizencephaly.

    hi , were from the uk.my daughter is 17months of age and was diagnosed with hemiplegia just after her first birthday. we got her mri results back last month which show she has schizencephaly on the left side of her brain. the cleft it from the front to the side.i am new to all...
    chelseab chelseab 18-21 4 Responses Feb 24, 2011

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    First Canine Reported To Have Open Lipped Schizencephaly - Cletus' Story

    I am the proud owner of Cletus the Bloodhound, a 2 year old Bloodhound mix who has the first reported case of open lipped schizencephaly in a canine. I adopted Cletus when he was only 8 weeks old and I have to say it was not I who chose him, it was my other dog, Magnum, who I...
    dsilber dsilber 36-40 Oct 25, 2012

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    Kiyanah Marie

    My daughter was born with an extremely rare condition called Schizencephaly which is classified as a developmental delay, it took us almost a year for her to be diagnosed because she had no physical abnormalities, once an mri was finally taken we found the answer that we were...
    kiitee13 kiitee13 18-21 2 Responses Feb 7, 2013

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    Related Experiences

    ...but if you have a giant heart maybe you can cover the gaping wounds.
    4BlackForest 4BlackForest 36-40, F 1 Response 40 mins ago

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    I havent seen him for a couple months now, and even though I know he's working I keep dreaming about him having another woman/ a second life and I worry that he may be cheating on...
    Streptococcus Streptococcus 18-21, F 27 mins ago

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    I've had a few pregnancy scares and a chemical pregnancy. And it;s just made me want it even more. I want someone that I can love and that would love me back. I want to hold a...
    BruisedLoveSickFool BruisedLoveSickFool 22-25, F 1 Response Jan 27

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    They're not my friends, they're my best friends. I only have two best friends and both of them happen to be gay. They are the peanut butter to my jelly. They mean everything to me...
    Vagabond01 Vagabond01 16-17, F Jan 27

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    I have been seeing this guy for over a year. we have great chemistry. we laugh and we can talk for hours. but he never compliments me. he says that we are just friends even tho we...
    BruisedLoveSickFool BruisedLoveSickFool 22-25, F Jan 27

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    I know that is not true, but emotion can sometimes trump intellect. I have plenty to offer to the "right" people and to society, except for material wealth, business sense, blind...
    Doviov Doviov 41-45 Jan 27

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    Today I had to run a mile and I wore knee high socks to school, so instead of asking to go to my locker and being that one stupid person, I just decided to run (and fast) without...
    noaaaaa noaaaaa 13-15, F Jan 27

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    I can't look at myself without wanting to cry anymore... **** this... I'm going to start purging as soon as my lip piercing heals... I need to lose 30 more pounds and I WILL get...
    MrCutBleedSmile MrCutBleedSmile 18-21, M 2 Responses Jan 27

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    Ever since I can remember, I've always had a lot of trouble talking to people. I only had one friend up until my freshman year in high school. I didn't even know what social...
    ElvenQueenKayla ElvenQueenKayla 16-17, F 2 Responses Jan 27

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    I have had trich for some time... I was a young child, and I would pull out my eyelashes and eyebrows. Right now, I mostly pull out my eyelashes and the hair on my head. It's not...
    ElvenQueenKayla ElvenQueenKayla 16-17, F 1 Response Jan 27

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    Because your journey to a certain point in your life has taken you through a few twists and turns, you may be questioning whether you are on the right track. Since there have been...
    pyeito pyeito 31-35, M Jan 27

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    I have two and will be getting a third
    1poker 1poker 22-25, F 4 Responses Jan 27

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    I was attracted to a man that worked with my dad when I was very young, people already in relationships, certain relatives. NOT NORMAL and very frustrating. And I have a hard time...
    Tabooyou24 Tabooyou24 22-25, F 5 Responses Jan 27

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    I am not sure if this is a form of sleep paralysis, but I have once woken up from a nightmare in which a woman stabbed me in the spine with a large needle. I woke up sweating and...
    x3SilverWincanx3 x3SilverWincanx3 18-21, F 1 Response Jan 27

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    In my current situation I can't make a move, but I'm running out of time to have any real relationship. Plus I have no idea if she feels that way about me
    AnthonyC123 AnthonyC123 18-21, M Jan 27

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    Anyone else have monologues with themself when they are alone in the house? I always do this. It's not something i have even thought about until now. It's really weird. I think i...
    ThinkingCat ThinkingCat 18-21, F 2 Responses Jan 27

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    I've always seen coworkers have affair after affair. So many "happily married" people having affairs with other "happily married" coworkers. I had a crush on one happily married...
    bongbabexo bongbabexo 31-35, F Jan 27

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    Its been 3 years since my best friend and first love came into my life.She was the sunshine that lit up my dark night.She Made me forget all my hardships back home.we did all kinds...
    Adrianaung Adrianaung 16-17, M Jan 27

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    Lmao!!! I was in the grocery store yesterday. OOH look! A new ketchup bottle with 25% extra, Cool! I took the stuff I was going to buy to the counter (keep in mind that the...
    InnocentPigeon InnocentPigeon 70+ 3 Responses Jan 27

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    I have always grown up nudist. We just don't get dressed in the morning, its no big thing like we have to be naked all the time n stuff. My best friends (and my brother/sisters...
    purplelimeboyy purplelimeboyy 13-15, M 3 Responses Jan 27

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    Crazy neighbor swears and yells abuse at us for no reason. If her dog barks she screams abuse about our cat even though it's usually inside and not anywhere near the dog! She hung...
    Amillionstars Amillionstars 36-40 1 Response Jan 27

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    My story is an odd one im sure. I was conceived via an anonymous ***** donor who is my biological father, so someone i have never met and can never meet. My mom had me this way...
    samboooo samboooo 22-25, F 1 Response Jan 27

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    So I like this girl who is a friend of a friend, and she used to like me back. But then I did some **** that I'm not proud of and she found out through the grapevine. I didn't have...
    rssooch rssooch 18-21, M 1 Response Jan 27

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    Since my anaesthetic several days ago, my brain has been going crazy especially when I sleep. I have so many dreams in a night, but this one was a special one when I had a nap. I...
    uggh uggh 22-25, F 1 Response Jan 27

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    I have a terrible experience with family members my mother was on the phone once and I heard her put my family and myself down to my sister in law she seems to like to talk about...
    Bella70 Bella70 41-45, F 1 Response Jan 27

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    I dont have many friends at school. I dont know why. I am shy but I am approachable. people dont just approach me. I know many people in the school and they know me too . They talk...
    faye08 faye08 18-21, F Jan 27

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    The fact that he's moved on so easily, that he's so able to say to me that he has a new girlfriend, it is killing me inside. I try to act strong, put a smile on my face and wish...
    grace97eun grace97eun 16-17, F 6 Responses Jan 27

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    you don't get to choose if you got hurt in this world.. but you do have some say in who hurts you..
    li17 li17 26-30, F Jan 27

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    I've had women friends; like a str8 guy has guy friends. Have never really had desire to be with a woman. Never had desire to chase after one.
    Scott1954 Scott1954 56-60, M 1 Response Jan 27

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    And no, we don't have twin powers. 😂
    goaliegirl222 goaliegirl222 13-15, F Jan 27

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    I'm 26 and have been single for my entire life. I was close to a relationship once when I was 22 and had my first kiss; but then he decided to go back to his ex, so ever since then...
    worrier07 worrier07 26-30, F 7 Responses Jan 27

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    My family members (from my father's side) look insecure about themselves. My uncles, my grandparents, even my father share this insecure personality. 1- Usely hesitate before...
    simotaqi simotaqi 22-25 Jan 27

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    So I have been on a journey trying to quit my addictions. So far I have quit smoking cigarettes(weed is a different story). I have quit coffee(this was sooooo hard and still is...
    orcore orcore 36-40, F 1 Response Jan 27

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    This is my outlet so I hope that you understand. Why do you get mad because I conversate with other women. I haven't slept with any of them, yet. You can sleep with other men but...
    bigsarge6996 bigsarge6996 41-45, M Jan 27

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    Screaming voices. None that I can control, only ones in my head. Nothing that I can make out or understand, just loud buzzing and chanting. Bees swarming outside your ear and you...
    alyssakayart alyssakayart 18-21, F Jan 27

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    We spend so much time and precious energy engaged in mutual animosity, hatred and hostility, and it all seems to come very naturally. I guess that's the nature of the human...
    MindBodySpirit MindBodySpirit 46-50, M Jan 27

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    Everyday I think about the people who are in my life.. I think about them and snort because of how odd they are haha. Other than snorting, I smile at the thought of having them in...
    mercifulpennies mercifulpennies 18-21, F Jan 27

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    My father has suffered from anxiety and depression most of my life. I am trying to find out what his trigger points are so I can help him try not to freak out. I know that his...
    ColumbiaTiger ColumbiaTiger 46-50, M 1 Response Jan 27

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