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I Have Schwannomatosis

A Schwannomatosis anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Schwannomatosis. You're not alone. 7 People

    Chronic Pain

    I have Schwannomatosis and have tumours on my spinal cord about 30 of them and they give me so much pain I am in quite a deep depression. It took 15 years to get diagnosed and got treated very bad by doctors in the uk. I use a wheelchair because even though I can walk a little...
    Anandadas Anandadas 41-45, M 6 Responses Feb 16, 2010

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    Related Experiences

    I have only been with one guy but I haven't had sex in a month. He is 23 in 17. I have the same symptoms as a UTI and yeast infection and I have treated myself for both of them...
    Fuckeverything9 Fuckeverything9 16-17, F 3 hrs ago

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    I was told I have PTSD around August 2014, along with depression and anxiety... The doctor/counselor actually told me it's a pretty severe case of all 3. It stems from my...
    Firefighter2893 Firefighter2893 18-21, M 4 Responses 3 hrs ago

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    I would not label myself and alcoholic or as having an addiction to alcohol but I feel that my relationship with it could very easily spin out of control were I to allow it. I...
    ginaramone ginaramone 18-21, F 1 Response 2 hrs ago

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    I have herpes for 2yrs, n I'm crying almost everynight, I hate herps, I was fed up with  discrimination n I thought it the end of my dating life n I will never have a baby...
    harryyang1990 harryyang1990 22-25, M 3 hrs ago

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    Dear Future, I dont love casually. When I love, its fierce. Its my soul ripped wide open and raw. It is my whole heart on display, giving you full access to ALL of me Its all I...
    MzPhoenix MzPhoenix 31-35, F 2 Responses 2 hrs ago

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    I moved out of home, 6 hrs away from all my family, friends and girlfriend 10 months ago for my first real permanent full job to pursue my career. Initially everyone was very...
    rgroundsy rgroundsy 22-25, M 1 Response 1 hr ago

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    I'm at a weekend away with a club I'm part of, and someone when they were drunk said "No one likes you Amber, you should just leave." I know that if I think about this logically...
    Ambernonymous Ambernonymous 18-21, F 1 hr ago

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    I have a tendency to stay up late at night wondering about the future. Im curious about what my life will be like in the next few years. Where will I be? What will I be doing...
    GreenEyess GreenEyess 16-17, F 1 Response 3 hrs ago

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    I have lost count. The last two were in November and December 2014. I think that makes somewhere between 12 and 15 psychiatric hospitalizations since 2009. Most of them were TDO's...
    Shonnie Shonnie 22-25, F 3 hrs ago

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    I have a crush on this really nice guy that i've known since I was 9. I sit with him in some of my classes
    heyheynatalie heyheynatalie 22-25 1 Response 3 hrs ago

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    My latest Dx is MDD with psychotic features and PTSD. I am also a cutter and in recovery from bulimia. Previous Dx included schizoaffective disorder NOS, Bipolar 1 rapid cycling...
    Shonnie Shonnie 22-25, F 2 hrs ago

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    I haven't slept for two sleeps now, I need someone to tell me corny jokes or something, I need to laugh...
    insomniastrikes insomniastrikes 16-17, F 2 Responses 1 hr ago

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    I think I have a few personalities 1 for home Anther for friend Last school
    cou01 cou01 13-15, M 38 mins ago

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    I have a new favorite song!! It's by one directions it's called night changes.. I have never listened to one direction before BUT this song came on the radio and I love it!!
    jenniferkaye09 jenniferkaye09 22-25, F 1 Response Mar 2

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    I hate when guys only have female friends. Guys with females friend they seem to **** them. If they don't ever make moves on the girl friends they have a crush on the girl. I don...
    lorrena19 lorrena19 18-21, F 1 Response Mar 2

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    I think my boyfriend and I will be great parents when the time comes. I'm such a patient and loving person and so is he. He's in the military so I know our kids will be well...
    isndd isndd 18-21, F Mar 2

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    I am 22 years old and have had CRIPPLING emetophobia for as long as I can remember. In fact, my fear is so bad that I can't even stand to hear or read the "v" word...so browsing...
    hummingbirdbullets hummingbirdbullets 22-25, F 1 Response Mar 2

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    I wish I had a friend I could play guitar with. I haven't had any friend's in over 10 years.
    mitchmiller1969 mitchmiller1969 41-45, M Mar 2

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    Okay this might going to be a long post Does this ever happen to you that you are living a ****** life and then you are straight transported to cloud 9 then again everything comes...
    eriloves1D eriloves1D 16-17, F 3 Responses Mar 2

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    I posted my alopecia experience I have alopecia totalis Check it?
    eriloves1D eriloves1D 16-17, F Mar 2

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    About an hour of actual sleep and I have to be at work at 4am. I try not rely on sleeping pills, as I don't like the idea of taking medication unless it's absolutely necessary, but...
    AmayaTsuki AmayaTsuki 26-30, F 1 Response Mar 2

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    I have the potential to be a really strong, attractive and intellectual woman but sometimes lack confidence. Every year my laziness and sometimes my lack of fashion sense for...
    alostone alostone 22-25, F Mar 2

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    I'm afraid I won't know what an ****** feels like because of my disability and I'll have an accident during intercourse.
    confusedGirl84 confusedGirl84 26-30, F 1 Response Mar 2

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    People always said I have soup cooler lips or DSL LIPS (Diick sucking lips) it's annoying though. And I kiss mostly white guys with small lips so I feel sorry for them because mine...
    kjonesr kjonesr 18-21, F 3 Responses Mar 2

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    why is there nobody in central iowa usa on here?? I really want to have some kind of physical interaction soon. I can't find anyone remotely close to my area to go out with shop...
    transgirl28 transgirl28 26-30, T Mar 2

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    Some of you will know about my horrific trash TV habit. I also have an addiction to trash Youtube videos..I mean EP has kind of taken over a lot of the time I used to spend on it...
    Blondiex15 Blondiex15 36-40, F 6 Responses Mar 2

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    I've had self image issues for as long as I can remember.. I'm so scared of what people will think of me. I have an obsession of looking perfect, and I'm never 100% happy with how...
    Dreamer2221 Dreamer2221 18-21, F 6 Responses Mar 2

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    for the past few days i haven't posted in instagram haha for some reason psss.. let's be quite ;)
    KarenDew KarenDew 18-21, F Mar 2

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    What does a hockey player and an Amish girl have in common?
    adhane05 adhane05 22-25, M 1 Response Mar 2

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    I have kept open mind to new ideas and experiences- as they say, a ship is safe in harbo, but that's not what ships are for. Accepting some level of risk in life is important. You...
    Zelaleme Zelaleme 46-50, F Mar 2

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    yes i have when they put me in a mental hospital. i was detained. it made me feel like a criminal and not a sick person at all . it made me feel i did somethink wrong.and i was...
    furrycats furrycats 31-35 Mar 2

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    The Alter that found this website, created this profile hadn't been around in a while, it's been about a month and They feel like They did when they joined, alone. In a few days...
    Anubis111 Anubis111 22-25, T 1 Response Mar 2

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    I have addictions and it eats me inside. I need to fight them and change my life.
    tarjawhore tarjawhore 22-25, M Mar 2

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    I would like to discuss my symptoms and share with others who have this condition,I have suffered from jaw pain for almost 3 years,the locking or inflammation is terrible and is...
    sar2015 sar2015 31-35, F Mar 2

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    Well, I USED to have a crush tho. The funny thing is, I'm taller than him but he's one year older than me. Isn't that awkward? Does height matters to you? All of you? I've been...
    StaceeWadd StaceeWadd 13-15, F 3 Responses Mar 2

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    Hey everybody!! I have had the SKYLA IUD for maybe over 2 months now? I haven't had any issues except I am a little concerned about my skin. I rarely break out but it seems like...
    faithengen1 faithengen1 22-25, F 1 Response Mar 2

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    I slept for a little bit over an hour.. my face and head hurts so bad. I have a full day ahead of me school work and work not counting homework.
    SunshineLaura SunshineLaura 18-21, F 1 Response Mar 2

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    I daydream almost everyday, I pace subconsciously when I do, I often daydream about anime, I also have crushes on the anime characters, right now it's hetalia, do you daydream...
    Nordic5angel Nordic5angel 13-15, F 5 Responses Mar 2

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    Have you had a bad experience while you were skinny dipping? Or just butt naked for no reason?
    Gutterbox Gutterbox 18-21, M 6 Responses Mar 2

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    I absolutely hate it when people are so culturally insensitive. Like why do you have to exclude people just because of their culture.. Smh
    Gutterbox Gutterbox 18-21, M Mar 2

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    It's actually kind of irritating. My gf has completely lost her libido, and I'm just left with myself, my hand and the weirdness that is the internet. Although, I'm not sure what...