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I Have Schwannomatosis

A Schwannomatosis anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Schwannomatosis. You're not alone. 8 People

    Chronic Pain

    I have Schwannomatosis and have tumours on my spinal cord about 30 of them and they give me so much pain I am in quite a deep depression. It took 15 years to get diagnosed and got treated very bad by doctors in the uk. I use a wheelchair because even though I can walk a little...
    Anandadas Anandadas 41-45, M 6 Responses Feb 16, 2010

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    My mother loved me. My father loved my sister. My sister was very competitive with me and wanted always to top me. When my mother died, my advocate died. My father still likes...
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    I remember it was Halloween. We were eating s'mores in my room and I accidentally dropped a couple behind my bed and forgot about them. We went off and did other things and when I...
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    I am really anxious. No one to turn to, I do not want to be a bother to the people who are always there for me. I am afraid they would get sick of my drama and constant feeling...
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    any gainer who have Skype msg me 13-18 this is my Skype chris burns
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    My work involves addiction treatment and recovery, though, as many are in my field, I have never been an addict. HA! I was once addicted to gambling in small sweepstake parlors...
    BuckeyeBill48 BuckeyeBill48 66-70, M 2 hrs ago

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    My boyfriend doesn't believe me that I have eczema. I have had it since I was a toddler, I had it pretty bad but it eventually got better. and now I have only have it a little bit...
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    wishing I could die and almost drinking myself to it was something recent and is something I still contemplate but the only thing keeping me clinging to this F'd up life is my wife...
    lizzyObeth lizzyObeth 18-21, T 2 hrs ago

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    I would like address the people that have supported, defended, and voted for Obama. This is a serious question and only serious answers will remain; all others will be deleted. I...
    noksa noksa 46-50, M 2 Responses 3 hrs ago

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    I have to wonder...If I had made the wrong choices, if I hadn't messed it up, would I still be with him? Would I be as happy as I am now? He tore my heart to pieces and now it's...
    Terribl3Things Terribl3Things 16-17 3 hrs ago

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    I love how this whole Cecil the lion thing. I get it. It's sad, and the guys an *** for doing what he did in the way he did it but as I have heard it's not really a first for him...
    Johnviolinist823 Johnviolinist823 22-25, M 2 Responses 3 hrs ago

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    I don't trust any one..I'm very cautious and guarded with new people and even when Ive let some one in and have talked to them for a while the slightest contradiction in something...
    simpleandpossible simpleandpossible 22-25, F 1 Response 3 hrs ago

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    We all have dark sides. Anyone pretending they don't is in need of therapy. Some of us manage our dark sides better than others; some of us are mostly dark side. It varies from...
    DaveCthulhu DaveCthulhu 41-45, M 1 Response 3 hrs ago

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    Well wtf this **** sucks. You can't control who you like and it's messed up. The guy doesn't even know I exist and I can't stop liking him. I wish if I could just forget about him...
    beautifulpain96 beautifulpain96 18-21, F 1 Response 3 hrs ago

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    My family is racist. Idk why I'm not racist (which is a good thing) even though I'm surrounded with racist ******** when I grew up. Okay so I get it that my country is not diverse...
    ifyoudontmindhearmeout ifyoudontmindhearmeout 13-15, F 1 Response 4 hrs ago

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    Today I will tell my bf that I dislike the girl that he talking to. Im gonna tell him how I been feeling for these past 6 months. I hided my feeling because its selfish of me if I...
    Meow1121 Meow1121 22-25, F 1 Response 4 hrs ago

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    "She was unstoppable, not because she did not have failure and doubts, but because she continued on despite them." -author unknown
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    7/29/15 was the day I found out I had herpes. It was last week Tuesday when I started to feel ill and had extreme pain. I went to my local urgent care. My doctor asked a few...
    219Rose 219Rose 16-17, F 4 hrs ago

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    My dream started me going through a vortex. I don't remember much of what happen before then though. Once i got out of the vortex my ex boyfriend was there. He said how he was just...
    URSTRULYAngelina URSTRULYAngelina 16-17, F 5 hrs ago

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    Is there a point were you become so scared thay you become insane? i have bad anxiety and i was just wondering cause some kid was being stalked in my state and they were following...
    baeleaves baeleaves 13-15, M 6 hrs ago

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    As much as I want a social life which I'm not allowed because mother treats me like a slave and she always says" Sarah, don't think yourself a slave." Haha, she really knows how...
    SarahLou98 SarahLou98 16-17, F 1 Response 6 hrs ago

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    Resisting him is ready. I'm a very important guy because I know how to resist him. If he's in your mind insult him and fight back. Don't be a proxy and just forget it. If your...
    VolenoieFoote VolenoieFoote 31-35, M 6 hrs ago

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    I want four pretty men all in a row, naked but done up so they are very pleasing to the eye. The first I want to impale, on a thick sharp wooden stake, starting through his as...
    Domienixxx Domienixxx 26-30 1 Response 6 hrs ago

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    Heart stuff just clings to you. It is wise to stay in a place that feels allowing, that is good, feels like homecoming. Accept that you’ve been exposed to experiences where you...
    Injoy1767 Injoy1767 46-50, F 1 Response 6 hrs ago

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    I have two beautiful, wonderful, lovable, clever children. We go through thick and thin, always mirroring and gaining from each other. My eldest son has been enthusiastically...
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    I think what my life could have been like if I stood up for myself more than I do.
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    I go out on walks but always end up coming back despising the **** out of people and the general public. End up wanting to get a megaphone and yelling, "Yes, i have eczema...
    Eve34 Eve34 18-21, F 1 Response 7 hrs ago

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    I'm over here crying man... I went to the hospital because I thought I was having an ob. But it was just razor bumps that got rubbed the wrong way by my shorts. The Dr ran a whole...
    Jazmay Jazmay 18-21, F 7 hrs ago

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    I always have a tragic ending to every good dream
    NoUsernameInserted NoUsernameInserted 18-21, F 7 hrs ago

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    I have really bad hypochondria I'm scared I have cancer because my stomach is always hurting but last time I went to a doctor they just laughed and said its all mental and I did...
    Slubberdegullion Slubberdegullion 13-15, F 7 hrs ago

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    I don't have Crohn's disease. But I am truly sorry that any of you have to go through it. My boyfriend has had it since a child. However he has been in remission for most of the...
    Sunshinemms Sunshinemms 22-25, F 7 hrs ago

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    Ok where do I begin? I have a mother who doubts me and thinks I don't have any capabilities to live a normal life. My dad he is more of a mate than my dad. But he has faith in me...
    WokenandOpen WokenandOpen 31-35, M 8 hrs ago

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    I have a pacifier and can't sleep without it
    robbybaby robbybaby 18-21, M 8 hrs ago

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    Painful confession: i feel lonley but don't want to be close to anyone. I don't want friends or a husband or my own kids. I talk to my mom but i don't really feel like it means...
    HigherCalling HigherCalling 26-30, F 2 Responses 8 hrs ago

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    You know what ****** me off? When people wish mental illnesses on themselves. As if having Depression, Anxiety, Panic attacks, Borderline Personality Disorder, Complex PTSD...
    Inevitablyflawed Inevitablyflawed 18-21, F 2 Responses 8 hrs ago

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    Another brief mental hospital story: During my initial evaluation upon entering the enchanted kingdom for the third time, I told the doctor that I have a reasonable grasp of self...
    DanteBlake23 DanteBlake23 36-40, M 8 hrs ago

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    My story pt 1 (made up) During the school Year I played football and was really fit, but I had a friend named John who was overweight and so was his family. When summer came my...
    SwimmingWithJaws528 SwimmingWithJaws528 13-15, M 8 hrs ago