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I Have Schwannomatosis

A Schwannomatosis anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Schwannomatosis. You're not alone. 7 People

    Chronic Pain

    I have Schwannomatosis and have tumours on my spinal cord about 30 of them and they give me so much pain I am in quite a deep depression. It took 15 years to get diagnosed and got treated very bad by doctors in the uk. I use a wheelchair because even though I can walk a little...
    Anandadas Anandadas 41-45, M 6 Responses Feb 16, 2010

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    Related Experiences

    So after 9 years of emotional torture "we are gonna be together", "I'm not ready", "I messed up I want you back" (after I just wed) TO after you wed "I'm not happy, I want you to...
    SuzanneTS SuzanneTS 31-35, F 20 hrs ago

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    Round 2 ~ it's been 2 years now that I have had Polymyositis now I have tried all the medications that was offer Prednisone, plasmapheresis, Rixuan, Ivig, Methotrexate...
    MrsOnenonly MrsOnenonly 26-30, F 2 hrs ago

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    I can't talk to anyone anymore, I've always said I had trust issues and didn't talk to many, but I don't think I realized how many I did talk to. Now I talk to maybe one person who...
    auntnichole auntnichole 18-21, F 1 hr ago

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    Her and I have been working together for only a few weeks. I had brought her flowers and a card, but it wasn't until later that I found out she had a boyfriend. I feel that I have...
    marques30s marques30s 31-35, M 1 Response 21 hrs ago

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    Hiya, After a stonker of an argument with my mum last night I have discovered that she may be a narcissist and it may not all be me? I'm 33 and sitting here in floods of tears...
    mcctaurina mcctaurina 31-35 18 hrs ago

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    I've been wanting to post about this for a while because it really worries me and I desperately want to reach out to others with the same problem as my friend. I will NOT be...
    daintyduck daintyduck 16-17, F 12 hrs ago

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    Please someone tell me whether or not these are signs that I have BPD. - I'm 18 years old and will be 19 in December. -I'm a lefthander. - I'm the eldest child. -I have a very...
    DestinationUnknown1995 DestinationUnknown1995 18-21, F 1 Response 11 hrs ago

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    *may turn into rant* I'm a really open person, and accepting about pretty much everything, but there's just 3 things I can't stand; offensive jokes, homophobia, and perverts...
    loveyourselfalwaysxx loveyourselfalwaysxx 13-15, F 6 Responses 6 hrs ago

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    I am so glad that I have people that are looking out for me and helping me. I don't think I could have gotten through today with out the help of two of my friends. Life has taken a...
    Madhatter135 Madhatter135 18-21, F 5 hrs ago

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    I am a 43 year old orphan. I know that people have lost their parents much younger than I have. But I feel lost and alone. I lost the people in my life who knew me best, who...
    idontgiveafuckasaurus idontgiveafuckasaurus 41-45, F 1 Response 4 hrs ago

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    I have random tremors that occur especially when I talk to my friends or hang out with them I have mini tremors that feel like they're inside my abdomen. I feel like my speech is...
    SammiSakura SammiSakura 13-15, F 1 hr ago

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    This time around last year, I met this guy. We were seniors in high school. We used to hang out every day in lunch. We would talk and text every day. On my birthday, he took me out...
    galvangirl galvangirl 16-17, F 5 Responses 22 hrs ago

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    Annoyed..some people really pissmeoff..I hate how insensitive some people are especially when I try to always be considerate of there F-cking feelings..not only that but they never...
    seeminglypossible seeminglypossible 22-25, F 2 Responses 19 hrs ago

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    Hi all, I'm new :-). I hope you can help me. I have fallen in love with someone who has a girlfriend. I know that this is wrong but there is nothing I can do about my feelings...
    whoami8555 whoami8555 36-40, F 2 Responses 12 hrs ago

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    My son, Kaden, is 5. I'm fairly new to the whole Indigo, Crystal child thing, but I can't help wonder about him. Maybe even a rainbow child, I'm not really sure. One thing I am...
    hasjgirl hasjgirl 31-35, F 11 hrs ago

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    This love started many years ago.. 8ysr+ She is my first and i love her alot. It was very brief but it was true and pure. We hadnt even slept together but the feeling was good. We...
    uprisingneed uprisingneed 26-30, M 4 Responses 10 hrs ago

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    It's one of those days again where I feel super lonely! I don't have a bf anymore, school is becoming really stressful and I am trying to hold it all together, for my family and my...
    madusand madusand 18-21, F 7 hrs ago

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    I know it sounds crazy, but I want twins. Only because I'm not getting any younger. And I want to have two more babies. I just want to have my 2 and get it over with. So that I don...
    CreoleItalianwoman CreoleItalianwoman 31-35, F 1 Response 6 hrs ago

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    I have grown weary of debating theology with Christians that wanna convert me and anyone else in the vicinity. I could debate things over and over and over but the same damn topics...
    Cetacean Cetacean 36-40, M 1 Response 4 hrs ago

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    I recently become single and went to a party with a coworker who I've kind of had a crush on. I knew he had a girlfriend so I didn't try anything and kept it very friendly. That...
    arielm11878 arielm11878 18-21, F 3 hrs ago

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    I am Afanasy from Russian. Recently I came across a new tool labeled VAG KM+IMMO Tool. Much reputation is given to the odometer correction tool in many Russian vehicle forums. So I...
    lindacai lindacai 22-25, F 1 hr ago

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    I am in love with my boss and she doesn't know it. She knows that I like her, due to the flowers and cards that I bought her, but I later found out that she had a boyfriend. I feel...
    marques30s marques30s 31-35, M 21 hrs ago

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    Recently I have experienced incidents at work where I have done something and I don't remember doing it. It's only when someone else at work shows me the evidence of what I've done...
    Bowlingdiva111 Bowlingdiva111 36-40, F 19 hrs ago

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    I adore children and I've always wanted to have kids of my own. Ideally lots of them. In my early 20s I lived in Tahiti, French Polynesia, for two years and I really admired the...
    EmperorJulian EmperorJulian 46-50, M 17 hrs ago

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    After listening to the song about 1,000 times, I think I have found the messages behind this song. One of them is that you should always be yourself. One of the verses says "You...
    coltonfawley coltonfawley 13-15, M 1 Response 15 hrs ago

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    I'm a 14 year old boy in 8th grade and the girls at school all go around looking really HOT! I wish I could have a girlfriend but I'm not allowed to. My mommy and big sister keep...
    littlebobby6 littlebobby6 13-15, M 2 Responses 14 hrs ago

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    I got diagnosed on tuesday. 2 days ago. and idk how to handle it. I guess I've had it for a while bit didn't no what it was Iwas so scared. I went to a terrible doctor in Feburary...
    bloombutterfly bloombutterfly 18-21, F 14 hrs ago

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    "The truth is a snare: You cannot have it without being caught." At times we are not ready to have it, yet we act as if we are all prepared to swallow it!!!
    hiddentears hiddentears 22-25, F 10 hrs ago

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    That moment when your 4 year old cousin would rather have an iPad than a baby doll. *sigh* kids do not even have imaginations anymore . -.-
    AEHeroine AEHeroine 18-21, F 4 Responses 10 hrs ago

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    I have watched my husband have sex with his bf and loved watching him.He has also watched me with my bf.
    rhondag48 rhondag48 51-55, F 8 hrs ago

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    I was working as a counsellor for a professional courses study centre and I had to receive and make calls as well for the same. Now this person called for some course enquiry and...
    swan87 swan87 26-30, F 8 hrs ago

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    Ya I have not once I'm 17 now the only women I have kissed is my mom but that's about it wich I don't really count a kiss it's more of just a good bye kiss on the cheek pretty...
    PabloBoyyyy PabloBoyyyy 16-17, M 2 Responses 7 hrs ago

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    I just got home from the doctors. She took one look and confirmed my fear. We couldn't even do a full exam because I was in too much pain. I left in tears, spent a good hour on the...
    mbellz424 mbellz424 22-25, F 3 Responses 6 hrs ago

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    :( that's all I want in life it's my dream to get married and have kids I can't we it happening but I have pland what I would really like the wedding to be like but the girl gets a...
    Rossthayer Rossthayer 22-25, M 6 hrs ago

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    Ever since a young age I have been travelling. The list has slowed down, but so far, I have been to: England Wales Scotland France Germany Belgium Luxembourg Spain Portugal Greece...
    thepotatochip thepotatochip 22-25, M 1 Response 5 hrs ago

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    I have X'ed all of my known family, who have betrayed me. I don't care your background, I trust no one :(
    bettyzoe bettyzoe 26-30, T 3 hrs ago

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    First and foremost, I do not have diabetes. I am an imposter but, with Halloween coming up tomorrow I have a question: what kind of candies/delicious things are safe for diabetic...
    mlynnikens mlynnikens 22-25, F 2 hrs ago

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    When you get some very adult conversations going here. There is a very good chance that it will be deleted. Then if it should continue you will be DELETED. I notice a few...
    CP1262 CP1262 51-55, M 2 hrs ago

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    My husband comes home and yells at me everyday. It's always something I did wrong. I didn't call him the moment I left work or I have not called about dinner. I gave medicine to...
    tmh2058 tmh2058 26-30, F 1 Response 1 hr ago

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    It's going to be a long night... I get home from shopping at several stores...I detest shopping. DETEST it! Only to find my mother in the family room pumped up on morphine and...
    Myzery Myzery 31-35, F 1 hr ago

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    Lol I would have a boyfriend if I wasn't so picky. XD I'm an all or nothing person.
    InvaderGashloog InvaderGashloog 70+, F 1 Response 22 hrs ago

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    Hahaha this depends who the human is! If they're a nice human then I have an equal amount of Sympathy, if not? Yea that's a different story...
    thatcrazyveggo thatcrazyveggo 13-15, F 1 Response 22 hrs ago

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    Everyday god brings someone in your life whether they are either good or bad but today was different from others god brought me a young lady who could understand and help everyone...
    avishek20 avishek20 26-30, M 1 Response 21 hrs ago

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    Hi I have got a small penis if u want to see it me messages me
    DjDiaper97 DjDiaper97 16-17, M 20 hrs ago

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    I always new that I was heading for a dead end, To tell you the truth ALCHOL is my only best friend it makes me feel good and it's always there for me but it's also my worst enemy...
    SunshineH316 SunshineH316 22-25, F 1 Response 20 hrs ago

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    it used to be me in her arms not so long ago, my voice she wanted to hear last, my vords she wanted to view fisrt.... was it all a dream. Now she spends her night in her arms and...
    chanjen chanjen 41-45, F 2 Responses 20 hrs ago