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I Have Schwannomatosis

A Schwannomatosis anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Schwannomatosis. You're not alone. 7 People

    Chronic Pain

    I have Schwannomatosis and have tumours on my spinal cord about 30 of them and they give me so much pain I am in quite a deep depression. It took 15 years to get diagnosed and got treated very bad by doctors in the uk. I use a wheelchair because even though I can walk a little...
    Anandadas Anandadas 41-45, M 6 Responses Feb 16, 2010

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    Related Experiences

    I find cheating to be the most vile and disgusting thing someone can do to another when it comes to relationships. I have no experience in this field, but I know for one that...
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    Criminological Theories - An Introduction (1) One core course in any criminal justice program is pertaining to "criminological theories" - which essentially outlines major crime...
    ryleechristine ryleechristine 22-25, F 1 hr ago

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    Very heartbroken and confused. My bf and I have been together for a year. He is 10 years older than me. Our relationship was a series of ups and downs. The first few months were...
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    I have bad issues with abandonment , ever since my father abandoned me , and then my " soulmate " did too which goes to show you he may have been mine but was I his ? We never...
    Delusionalkrysti Delusionalkrysti 22-25, F 2 hrs ago

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    I have 4 cats (Luna, Kitty, Snow and Lillian), all cute girls with different personalities and habits. I used to have 5, but the oldest one passed away a few months ago due to...
    BayoKitty BayoKitty 18-21, F 3 hrs ago

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    Psssst I have a secret! Everybody listen! Are you listening? :P My sexy babe and I have quite a few secrets with eachother and not a single person will ever find out any of them...
    wedgieshurtalot wedgieshurtalot 16-17, F 1 Response 3 hrs ago

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    I've been reflecting on a lot of things today. My anxiety level felt like it was through the roof. It probably didn't help that I was pretty hungover. If I could describe what...
    pnw21 pnw21 22-25, M 1 Response 2 hrs ago

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    To anyone who isn't a victim if this vicious pain from CRPS. You have to please understand how it feels when you think we're "crazy," "overreacting", or "putting on an act". These...
    TCL009 TCL009 41-45, F 1 hr ago

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    That all secondary responses (responses to the responses to a post) be a different color not just you and the author of the post. I can't tell you how many times I have mistaken a...
    Harlequingal93 Harlequingal93 18-21, F 2 hrs ago

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    I am becoming even more aware that my EP was not just hacked but the hacker changed/re-wrote most of my stories around. I am sorry if anyone who has read what is supposed to be my...
    stigmafree stigmafree 31-35 2 hrs ago

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    To be honest, I never been diagnosed, but I have a very sour idea of what I think I look like. I honestly see myself as the ugliest person. Someone could carry the same features as...
    DevilDollie DevilDollie 18-21, F 2 hrs ago

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    I wish I could just link to my Facebook page so everyone here can see that I'm a great looking guy with a fantatsic social life, lots of friends most are in the movie business like...
    Elcoman115 Elcoman115 51-55, M 2 hrs ago

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    On the 19th I had my first lower lumbar surgery. I broke my back November 11, 2012. I'm scared now. after the surgery the surgeon stated that I will need it fused in a matter of...
    BrandiLyn09 BrandiLyn09 22-25, F 1 Response 1 hr ago

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    On the 19th I had my first lower lumbar surgery. I broke my back November 11, 2012. I'm scared now. after the surgery the surgeon stated that I will need it fused in a matter of...
    BrandiLyn09 BrandiLyn09 22-25, F 1 hr ago

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    I have a small brown birthmark at my lower back. Read about birthmarks and past lives on some sites and now I believe I was stabbed in my previous life. XD
    Dove06 Dove06 18-21, F 1 hr ago

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    horrible, horrible, horrible night. As usual. Why am I medication, if the medication isn't even going to last through the night? The tremors won't stop, the pain won't fade. My...
    MeowOnMe MeowOnMe 18-21, F 1 hr ago

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    I have a crush on someone that is already talking to someone else and I didn't know that when I started to talk to her and it hurt like a mother ****** when I found out. Idk what...
    Brudy6 Brudy6 18-21, M 1 Response Nov 22

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    I have quite a few actually. Some are from when I was little and got into mischief (I was a tomboy growing up and did everything boys did just to become "one of the guys") and...
    SaraBear87 SaraBear87 26-30, F 3 Responses Nov 22

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    well, here we go again...it's one of "those" nights...when I'm trying to sleep, but then all of the sudden the pain, and the tremors, and the tightness begins. It's not the worse I...
    MeowOnMe MeowOnMe 18-21, F 3 Responses Nov 22

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    Chamomile tea is pointless unless you like drinking things that taste like ****. >.> By the time you've masked the flavour with sugar you've nullified the calming effects that it's...
    Friability Friability 18-21 2 Responses Nov 22

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    My legs and knees are bad because bicycles! I also have a lot of cats... And the rest is when I was doing self harm or got angry and punched the wall. I also punched glass once...
    TransmutedHeart TransmutedHeart 18-21, F Nov 22

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    as much as i love my family, i would really appreciate it if they stop belittling me academic wise. it's always "Why are you so effin stupid?" "Do you have any common sense in that...
    julesju julesju 16-17, F 1 Response Nov 22

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    I am having a nondescript day, boring and on the depressed side. Would be good to have a conversation with someone -- either a heart-to-heart talk, or just shooting the breeze.
    kingaroo kingaroo 61-65, M Nov 22

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    "I would rather cuddle than have sex. If you're good with grammar, you'll get it ."
    AWomanofSubstance AWomanofSubstance 31-35, F 1 Response Nov 22

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    I was 8 years old when my aunt killed herself. My family has a long history of depression and eventually it took my beautiful aunt. I don't know my father. My mother's grandparents...
    idekkkkkkkkkkk idekkkkkkkkkkk 18-21, F 1 Response Nov 22

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    Love my sister but she can be a right BRAT at times. She's as different from me as it could be being a right tomboy but I love her to bits! But she got herself into right trouble...
    Susanna96 Susanna96 16-17, F 5 Responses Nov 22

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    that awkward moment when everyone in the group talks and you are the one with nothing to say.even if you have something to say you would be worried that you might not be not...
    Camouflage Camouflage 18-21, M 7 Responses Nov 22

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    Our troubles may not be easily shadowed by anothers,and maybe we have a right to feel alone. However,it just might give us something to think about.   
    diggler diggler 41-45, M 1 Response Nov 22

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    I frequently get flashbacks of previous dreams that I had years ago. Is that normal? I'll see something familiar while driving in the car or on tv and I'll instantly be brought...
    cicisays13 cicisays13 26-30, F Nov 22

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    1 die in all alone 2 have cancer 3 heart attack 4 the system of our country 5 insane people in public 6 night time 7 having anxiety feelings 8 trouma of sexual abuse 9 forgetting...
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    I Forever Have A Deep Scar On My Chest......Kinda Like Sagat Only It Was From A Knife Not An Uppercut
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    FXCK!!! She's a total mind fxck!!! She's a beautiful mind fxck.... And I can't have her. She's like 18 or something like that, blue eyes and dreadlocks - she is perfection! But...
    MixedJayy MixedJayy 16-17, F Nov 22

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    Elleshore81 Elleshore81 31-35, F 1 Response Nov 22

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    Just woke up from the craziest nightmare. I recently learned an old friend now lives in Thailand. She grew up 2 hours away from where I live. I hada nightmare that I went to go...
    katariffik katariffik 31-35, F 2 Responses Nov 22

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    Thought for the day: "Whenever you're feeling powerless, remember that a single one of your půbįc hairs can shut down a successful restaurant." Have a nice weekend.
    BloviatingBuffoon BloviatingBuffoon 70+, F 6 Responses Nov 22

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    when people say 'you don't look your age' , what?! who the hell are you comparing me to? O_O are you saying that all 20 year olds have a look, the average black female has a look...
    InnocentBitesizeChocolate InnocentBitesizeChocolate 18-21, F 5 Responses Nov 22

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    This trashy woman probably in her 30's walked up to me in the park and slapped me. I never even saw her before hand nor knew her, wtf? Lets just say she probably won't slap anybody...
    TheAnonymousTroll TheAnonymousTroll 13-15, M Nov 22

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    Split Personality : She used to have a great personality,but it split. :Dlol!!  
    diggler diggler 41-45, M 1 Response Nov 22

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    With my job I am social. With my dysfunctional disagreeable family I am pretty social. But when I get off work, or when I wake up on my day off, I just want someone to spend the...
    Peacepuppy Peacepuppy 22-25, F 13 Responses Nov 22

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    Ok riddle me this. There are sooooo many lonely people in the world, which indeed at times I am one. So why, when there are so many lonely people, aren't more connecting? making...
    Chrye Chrye 51-55, F 3 Responses Nov 22

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    Occasionally it suits me, but it rarely does. I'd love to be like most people my age who have one, but I don't. :(
    Reallifeperson Reallifeperson 22-25, M 2 Responses Nov 22

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    So I met this girl on my vacation in Spain this summer and everything went fine. When I went home to Sweden we've been talking a lot and added each other on Facebook. Home in...
    Hajhaj01 Hajhaj01 22-25, M 1 Response Nov 22

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    So many people without it have no idea of the pain it brings along. Today, I'm meeting with the Lender for our new house, and I can't control the neck tics and I'm hurting on a 8...
    jeepers92 jeepers92 41-45, M 2 Responses Nov 22

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    I had a ski accident during my sophomore year of high school. I don't remember anything from that day, or weeks after it. I did not suffer sever damage in any area, but rather mild...
    cfarr cfarr 18-21, F 1 Response Nov 22

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