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I Have Schwannomatosis

A Schwannomatosis anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Schwannomatosis. You're not alone. 8 People

    Chronic Pain

    I have Schwannomatosis and have tumours on my spinal cord about 30 of them and they give me so much pain I am in quite a deep depression. It took 15 years to get diagnosed and got treated very bad by doctors in the uk. I use a wheelchair because even though I can walk a little...
    Anandadas Anandadas 41-45, M 6 Responses Feb 16, 2010

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    Related Experiences

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    Sometimes there's specific people you have a thing for, for me it's worse because I know that our relationship is very one sided and that there is only a professional interest in...
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    What songs can u relate to? which Lyrics? mine would be Savages by Marina and the diamonds amazing singer my gave in fact "one man could build a bomb another run a race to...
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    Life feels very foreign to me these days. I go through the motions, count my blessings, do the best I can (I think)...but it's like I'm on a path I have never walked before and...
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    Does anyone out there have Chromesthesia? I can't seem to find anyone that has it similar to how I do... If there is a sudden loud noise that I'm not expecting, then something will...
    maisyworry maisyworry 18-21, F 1 hr ago

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    I have ticker-tape synesthesia (visually seeing the words people say next to them, apparently it is a rare type?) along with a few other types. I have been diagnosed today by a...
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    I'm 21, almost 22 and have never had a boyfriend/girlfriend. And I've only ever been kissed once just after high school. Recently I've started making friends for a change and one...
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    I'm interested in someone but I have a ten reasons why I should not even think of approaching him. One, I'm extremely shy. Two, he's head over heels over someone else. Three...
    sarasakun sarasakun 18-21, F 1 hr ago

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    I had the worst experience I have ever had last night with friends cause we was sat have a laugh and I decided to go home early because I wanted to see my dad before he went to...
    ljayymale ljayymale 18-21, M 1 Response 1 hr ago

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    The invisible pain. No one believes the level of pain this chronic disease causes.. I hate it so much.. being in pain on and off since 20 after acute pancreatitis I spent 7months...
    stefx85 stefx85 26-30, M 2 hrs ago

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    Yeah, i just have to say this. SOME people here on EP have a stinking habit of sticking their nose in sh*t they know nothing about. Just saying that, if you don't know half of the...
    Chezsoldierr Chezsoldierr 18-21, F 8 Responses 2 hrs ago

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    I'm 60 male and married. drive a truck over the road during the week and have time. message me if you want to chat.
    volvoman60 volvoman60 56-60, M 1 Response 3 hrs ago

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    Im not well in English.. But im having a story which i cant share with anyone.! Im from a country where love is crime. No parents here accept love marriage. Only 25% parents will...
    unsaidluv unsaidluv 18-21, F 1 Response 3 hrs ago

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    Im a 15 year old teen with a dual simian. So far what ive read basically describes me;impulsive,stubborn and lazy if doing what i do not like. recently however, things have been...
    AlixanderT AlixanderT 13-15, M 3 hrs ago

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    Anybody else have these and enjoy the feeling? Must be somebody?
    Wantingsex75 Wantingsex75 36-40 2 Responses 4 hrs ago

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    I see why the men in the Middle East smoke hookah, it's so calming I love the apple .. I go on slow night because it's really easy going , and chill the owners son comes out and...
    Prettibrowngirl Prettibrowngirl 70+, F 4 hrs ago

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    Over the past year or two, I've been finding it more and more difficult to distinguish between when I'm dreaming and when I'm conscious. My dreams feel more vivid than real life...
    Surreal657 Surreal657 22-25, F 1 Response 4 hrs ago

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    When I was five, my mom noticed I held my head over to the left side, I went to physio and got a sheet of exercises. I did them until 6th grade when it got better. Then it got...
    Lottieh1911 Lottieh1911 13-15, F 5 hrs ago

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    I used to have so much self respect.. Now I have very little.. I've done stupid things that have thrown my integrity on the line to try and win someone back into my life
    Catho Catho 18-21, F 5 hrs ago

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    Yes I have. It's more easier to talk through there. Send me a message if you want me to add you. ✌ Girls only.
    collegegirl96 collegegirl96 18-21, F 3 Responses 5 hrs ago

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    I just found out I got it today, and I cried, I haven't told my mom yet, but she has an idea. I called her crying and she came an picked me up, she knows I slept with someone...
    CleosMoon CleosMoon 22-25 1 Response 6 hrs ago

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    I'm still in ptsd recovery, even years after the event. A lot of triggers I've been treated for and have moved past, for the most part. The one I can't escape or even work with is...
    omgwut omgwut 41-45, M 1 Response 7 hrs ago

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    Hey. I'm new at making Littlest Pet Shop videos. I used to make videos of these a few years ago when I was ten to eleven, but I stopped and deleted my account what I used at the...
    BeccaAna16 BeccaAna16 16-17, F 7 hrs ago

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    Because of the fact that I was molested I thought that touching private parts was a type of game so I did it with other kids. I never forced anyone. I just asked because I just...
    Lookin4answers123 Lookin4answers123 13-15, F 1 Response 7 hrs ago

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    I could not sleep for a week because I was freaking out about getting pregnant. I convinced myself that I had nausea, fatigue, tiredness. After spending hours researching, I have...
    deleted deleted 26-30 Jul 28

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    Do you ever wonder if someone that you know in your daily life is on this site and you have no idea? ...maybe that guy who only writes about urinating in his pants is actually...
    BeachBumMom BeachBumMom 31-35, F 21 Responses Jul 28

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    I have end stage kidney failure. I only had one good kidney when I was born. The other was smaller and failed first. The thing is I am on dialysis for the rest of my life. Do I...
    comfi comfi 51-55, M Jul 28

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    I went to a counselor today, and I definitely related to her quite a bit, I filled out these question forms, and I apparently have severe anxiety. Then my mom started crying...
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    I have dark brown skin and I hate it. I don't know why people wish they had it. It's like a dark brown skin. :( I wish I was lighter or white.
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    deleted deleted 26-30 3 Responses Jul 28

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    xxSatansDemonxx xxSatansDemonxx 18-21, M Jul 28

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    lately I have been very nervous when playing my music people. what can I do to be more confident and not as nervous
    Dean6736 Dean6736 46-50, M Jul 28

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    ImStrongerThanThat ImStrongerThanThat 22-25, F Jul 28

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    It seems when I am here with my friends I am either crying or laughing so hard I pee my pants. O.oBut whichever I am doing I am glad I'm doing it with y'all crazy whackados! So I...
    pinkstarburst pinkstarburst 41-45, F 3 Responses Jul 28