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I Have Schwannomatosis

A Schwannomatosis anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Schwannomatosis. You're not alone. 8 People

    Chronic Pain

    I have Schwannomatosis and have tumours on my spinal cord about 30 of them and they give me so much pain I am in quite a deep depression. It took 15 years to get diagnosed and got treated very bad by doctors in the uk. I use a wheelchair because even though I can walk a little...
    Anandadas Anandadas 41-45, M 6 Responses Feb 16, 2010

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    If there are any ladies in the UK on here that fancy a haircut be that a short haircut or simply a trim then please message me! I would love to meet up. Or if you aren't from the...
    Hairlover2900 Hairlover2900 18-21, M 1 hr ago

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    I've been having dreams where I am left alone at my parents house, because they have to attend a dinner or something and I can't go. I'm currently living in an apartment in a...
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    Do any of you have empathy?
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    No I havent but would be cool to see this ep ghost I have read about in the stories here.
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    I am so happy and grateful that I have a wonderful sense of calm with a smile so big it touches my ears while having tears of joy and a heart so full of love it feels like it's...
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    hey guys it's have a small youtube channel I create music called nightcore link here https://m.youtube.com/#/channel/UCQsSwR1FoQcJdwXHkQZkq9Q if you could check it out that would...
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    Another post going into my life and how I feel My boyfriend Max came over yesterday and stayed the night. Really love that man :-* Now I'm procrastinating about a film me and my...
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    I have lost 38 pounds and I have like 40 more that I would like to lose before July and August time frame. I just need to lose mostly in my thighs, breasts and in my arms. Wouldn't...
    Tutu7 Tutu7 61-65, F 2 Responses Jan 10

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    Realizing walking around that people can't see much of who you are... And you don't have to tell them much of anything.. So, there's nothing much to be anxious about.. You can keep...
    chaekowski chaekowski 26-30, M Jan 10

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    OK. I got involved in a thread in another group, (and it's been very helpful) but maybe this group will have some members who can relate, so I'll post here as well. I'm in...
    BinaryBill BinaryBill 61-65, M 1 Response Jan 10

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    I wish I could go walk outside and have fun, but it's just not that easy to do anymore. Before I could go out to the mall, go to school, and walk all over town without a worry in...
    Hipstercatlover Hipstercatlover 16-17, F 2 Responses Jan 10

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    I'm feel like I'm crazy many times. One time I have this crazy idea of skinny dipping a late summer night when me and my wife was out alone driving the car. I trow all my cloth...
    realcomplicated realcomplicated 26-30, M 2 Responses Jan 10

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    Just had to block someone . First time for everything. I'm not the type to get disrespected on a post that I made ... No time for it . That's what they have the block button for...
    reddmarie reddmarie 18-21, F Jan 10

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    Actually, I cannot wait to have more kids. I already have five boys. I would really love to have a couple girls, if possible. I am married and off the pill and my husband never...
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    Elzielle Elzielle 22-25, F 1 Response Jan 10

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    My room is so messy that I have to watch were I walk to avoid stepping on important items. Normally that isn't an issue. But when other people are in my room I have to watch them...
    Windseer Windseer 26-30, M Jan 10

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    I am sixteen years old and I have always pictured myself having a family of my own. Two months ago I was told I would never be able to support a child of my own due to damage of my...
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    I have to say there is one thing I have always wanted to do is be involved in a charity event .where I am the victim where it is drown a hiker .i am excited that they have chosen...
    Leeswalking Leeswalking 41-45, M 1 Response Jan 10

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    I have some friends, a few wonderful and lovely friendships. But too often I'm alone and lonely. I don't blame anyone but myself, though. I never seem to find the right way to open...
    PauliesWalnuts PauliesWalnuts 56-60, M Jan 10

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    I always have been a good human, I always have helped people whenever they needed it the most, no matter if they were not close to me, but whenever I needed some favour nobody had...
    friendsseeker friendsseeker 18-21, M Jan 10

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    Since there's no cake I'm going to be strong and not feel sorry for myself for once! I've been f*cked over for the last time... I'm not dating anymore. Self preservation is...
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    As I make it known how many countries I have been too.my count encluding South America and Cetral America . Not to.mention the United States i saw. the things I did like sleeping...
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    CreepypastaFan2016 CreepypastaFan2016 16-17, F Jan 10

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    I only have 18 right about now. I love the way scars look, the droplets of blood seeping, the vibrant scabs. I'd love to have more someday! The pain is worth it.
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    Hey everyone, I am lemuwinks and I will be sharing an personal experience! One day, I was in my house by myself while, my mom and dad were at work. I decided to go to my landlords...
    lemuwinks lemuwinks 16-17, M Jan 10

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    skyeccaa skyeccaa 26-30, F Jan 10

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    There are numerous older men in the world who are single and seeking someone special in their life. For all such men, AgeMeet.com has been created as a reliable online platform to...
    skyeccaa skyeccaa 26-30, F 1 Response Jan 10

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    There are numerous older men in the world who are single and seeking someone special in their life. For all such men, AgeMeet.com has been created as a reliable online platform to...
    skyeccaa skyeccaa 26-30, F Jan 10

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    There are numerous older men in the world who are single and seeking someone special in their life. For all such men, AgeMeet.com has been created as a reliable online platform to...
    skyeccaa skyeccaa 26-30, F Jan 10

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