I Have Schwannomatosis

A Schwannomatosis anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Schwannomatosis. You're not alone. 7 People

    Chronic Pain

    I have Schwannomatosis and have tumours on my spinal cord about 30 of them and they give me so much pain I am in quite a deep depression. It took 15 years to get diagnosed and got treated very bad by doctors in the uk. I use a wheelchair because even though I can walk a little...
    Anandadas Anandadas
    41-45, M
    5 Responses Feb 16, 2010

    Related Experiences

    I've made an appointment with a GP tomorrow morning and I'm going to ask her to give me some Ativan or anything that I can use to keep my panic attacks at bay. I've tried...
    BlueJinx BlueJinx
    26-30, F
    Apr 4
    Don't you think we NEED to have a drunken party??πŸ˜•To say goodbyeeeeeeeeeeeee to Eeeee Peeeeee???πŸ˜…I'm up for it - but I'm sure I'll be joining any virtual party from my chair...
    BSTisapain BSTisapain
    46-50, F
    1 Response Apr 4
    why am I posting stuff for. sometime I think I leaf it out. school was great today. to bad I don't have parents. cause it's parents day at school tomorrow. it's sad for me.
    kasydragon kasydragon
    22-25, F
    1 Response Apr 4
    I'd like one but i have a lot of issues and it's like sometimes there's no girl out there who would want me because of those issues I have It's not a priority for me to be in a...
    Dtrax8181 Dtrax8181
    26-30, M
    Apr 4
    Jealousy is one hell of a thing. My cousin and I haven't spoke to each other for YEARS and we used to be the tightly knitted ones. One evening, she texted me telling me she got...
    lunamcmxcix lunamcmxcix
    16-17, F
    5 Responses Apr 4
    It has taken 37 ssri none worked I began cymbalta 6 months ago depression very low pain barely noticeable but I have a choice to use a C2 fur break through pain I have been...
    Vocevaiver123 Vocevaiver123
    46-50, F
    Apr 4
    I have an imaginary lover, but is strange the fact he is a giant teddy-bear (in real, i own him). I like to sleep on him and cuddle with him, to see movies with him and to have sex...
    beatwis beatwis
    18-21, F
    Apr 4
    I'm reading all of your comments at the crack of dawn because deep down I am feeling so depressed and down because of this. I'm a second-semester freshmen and I feel really lonely...
    Helloimjoy Helloimjoy
    18-21, F
    1 Response Apr 4
    Why is so much cymbalta hate and I have had none these side effects is there anyone who like myself who finally began sleeping as I once did and feel less to no pain only use C2's...
    Vocevaiver123 Vocevaiver123
    46-50, F
    Apr 4
    So, my Bulimia used to be about control....a way to stop my emotions. If I was upset or hurt I would B/P so I could somewhat stop feeling. I have started keeping track of what I...
    angelpumpkin36 angelpumpkin36
    36-40, F
    1 Response Apr 4
    New Home for the ILIASM Community Folks dealing with sexless marriages have -- for years -- sought and offered support at the Experience Project in the experience β€œI Live In A...
    ILIASMAllie ILIASMAllie
    46-50, F
    Apr 4
    54. I think I am generally insecure about my looks. I always think that no man will want to be seen in public with me, show me to his friends because I'm not that 10/10 Russian...
    UnicornsOfHope UnicornsOfHope
    26-30
    Apr 4
    Do you think the following blurb (from the About section on Experience Again) could possibly be written by someone who has been working on EP?? "A feeling of desolation...
    BSTisapain BSTisapain
    46-50, F
    2 Responses Apr 4
    52. Sometimes I worry about my sanity. I give my attention and focus to a man quite quickly- though, never my heart. I have only met him 2-3 times. But we talk and speak almost...
    UnicornsOfHope UnicornsOfHope
    26-30
    Apr 4
    If you have Facebook for Iphone/Ipod look someone up then go on the search again then scroll down to posts "name here" likes. You can see everything, also replace posts with photos...
    Paleandpolluted86 Paleandpolluted86
    26-30, F
    Apr 4
    Sometimes I wish Seth Rogen could knock me up so we could have a baby together and then he could play fetch with it like a dog. ...is this only a "Me" wish?? Or is this every girl...
    ERMAHGERD1 ERMAHGERD1
    26-30, F
    1 Response Apr 4
    I was on a spaceship in outer space with all of my classmates and we were sitting in a small theater area with a stage. The band MCR was playing just for us specially. I made an...
    MidnightMeraki MidnightMeraki
    16-17, F
    Apr 4
    #1. Starting today I'm gonna write one down every night till ep shuts. So let's get started. Out of all the people in the world I'll probably be one among a very few to...
    Abi936 Abi936
    22-25, M
    5 Responses Apr 4
    It happened when I had a private class with a pre-school student. He is just 5 yo. Now, I do stupid and senseless actions/ reactions sometimes and boy... how I did it bad today. So...
    ChannelingTruth ChannelingTruth
    26-30, F
    2 Responses Apr 4
    hi guys not long till EP freeze's hope u found off places to go I have. two off them I've join. one is appliestome com . can't remember the other one name. but my user name is the...
    slivereyes slivereyes
    36-40, F
    1 Response Apr 4
    i need a wedge mistress or a girl wedge buddy. i am 17 and am very curious about wedges. i have never received a wedge but sometimes i pull up my underwear a little. i need someone...
    Manuel000 Manuel000
    18-21, M
    Apr 4
    i need a wedge mistress or a girl wedge buddy. i am 17 and am very curious about wedges. i have never received a wedge but sometimes i pull up my underwear a little. i need someone...
    Manuel000 Manuel000
    18-21, M
    Apr 4
    i need a wedge mistress or a girl wedge buddy. i am 17 and am very curious about wedges. i have never received a wedge but sometimes i pull up my underwear a little. i need someone...
    Manuel000 Manuel000
    18-21, M
    Apr 4
    i need a wedge mistress or a girl wedge buddy. i am 17 and am very curious about wedges. i have never received a wedge but sometimes i pull up my underwear a little. i need someone...
    Manuel000 Manuel000
    18-21, M
    Apr 4
    https://youtu.be/i56AkejYpdE I know I shouldn't but I Love my dark side because I believe in justice so for all the people who was bullied a kid into suicide, or slaughter animals...
    Kornisone Kornisone
    26-30, F
    3 Responses Apr 4
    dear Chip, i got the tickets baby... I'm so sorry i missed her appearance the first time around. but some how, some way... i knew that she would be coming back to this tiny...
    VeritasAequitas VeritasAequitas
    31-35, F
    Apr 3
    I have a lot on my mind I don't know if I will be able to sleep tonight
    littlerayofsunshine666 littlerayofsunshine666
    13-15, F
    4 Responses Apr 3
    I had a dream the other night in which I was Michael Jackson (never mind that I am a Caucasian woman in real life). I was staying at a villa with some people and for whatever...
    AlacrityMelancholy AlacrityMelancholy
    41-45, F
    1 Response Apr 3
    Dozens have been killed in the conflict and deadly fighting over the Nagorno-Karabakh region. In fact, Armenia has long been perceived as the thorn in the side of its geographical...
    bsvetlana7654321 bsvetlana7654321
    41-45, F
    Apr 3
    Mine is an Intellectual disability. Mine used to be mild but now, it isn't much anymore. Sometimes, it is mild. I had it because i was born a pre mature baby and i had some ripped...
    deleted deleted
    26-30
    1 Response Apr 3
    I keep visualizing my life. I can't tell if it's in the future or intended to be the moment I'm currently in. It makes me question every choice I've ever made. makes me regret the...
    nielle24 nielle24
    22-25, F
    1 Response Apr 3
    Tonight is a sad night. It's one of those what should I do nights. The child is at granny's. The hubs is either in the living room or his bedroom, not sure which. I have...
    bethany444 bethany444
    46-50, F
    1 Response Apr 3
    So I got some really ****** news. I might have to be hospitalized for 2 reasons: 1. ( not to gross anyone out ) but I might have an infection inside my nose cause I woke up had...
    SuchHorribleThings SuchHorribleThings
    16-17, F
    1 Response Apr 3
    ...Yeah, I'm abnormal and am more likely to fall in love with a work of art over an actual person. This includes statues, paintings, and, as you all have guessed, fictional...
    howlsowls howlsowls
    16-17, F
    2 Responses Apr 3
    I have to pee kind of bad right now. I'm planning until holding it until Friday, though. I have a strong bladder. I already feel some pain. I'd love to be tortured. Can someone pm...
    Gabbylovesjustin Gabbylovesjustin
    22-25, F
    1 Response Apr 3
    I love having one. Sadly I don't have many contacts yet. Im straight so $_exting isn't going to happen sorry guys :) but I don't mind chatting gay bi or trans people about things...
    jarocho jarocho
    22-25, M
    Apr 3
    I had a scary dream last night and I know this isn't the first time I've had this dream as if felt familiar upon waking up. Here it is: I'm in a house with a few people, it's...
    ADCue44 ADCue44
    18-21, F
    4 Responses Apr 3
    I always wanted to have super powers as a little boy. I wanted the ability to grow bigger. I always wanted to be a giant, so I wish I could embiggerate myself to epic proportions...
    Profweird Profweird
    22-25, M
    Apr 3
    Anyone wanting to have gay anal in Aberdeen? I'm 16, no older than 35
    xxFraserxx xxFraserxx
    16-17, M
    Apr 3
    50. I'm so in touch with myself that I am out of touch myself. Everything is a routine and I no longer have any real feelings for any emotions. I feel quite numb. I am numb. Even...
    UnicornsOfHope UnicornsOfHope
    26-30
    Apr 3
    I do get very deep in my fantasies and i love sharing them with people who are open to accept them and even enjoying being in that moment! I love to create stuff which i have not...
    pleasuretobehere pleasuretobehere
    26-30, M
    Apr 3
    When I was in Junior High the whole class got it one at a time, for misbehaving substitute teacher. Our science teacher was strict and didn't tolerate talking or not doing what...
    davedexp davedexp
    56-60, M
    1 Response Apr 3
    My wife and have had many threes ones with her girlfriend but I would really like to try mfm. I've got a best friend that packs a 10" beast and I want to want her enjoy it. Not...
    Shootinone1 Shootinone1
    26-30, M
    1 Response Apr 3
    Call of Duty zombies dream, love this because I get to be with my two favorite characters Nikolai and Dempsey! I ended up on the catwalk in Call of Duty zombies Der Rise. I...
    CaptainDragoness CaptainDragoness
    18-21, F
    Apr 3
    Just got done downloading 78 solid color anime wallpapers. They are really nice to look at. I have them set on a slide show to change every minute. Can you believe that? 78...
    jasonBK1 jasonBK1
    18-21, M
    Apr 3
    Anyone else have one? If you do comment down below, don't be shy I don't judge
    unknown0726 unknown0726
    13-15, F
    4 Responses Apr 3
    My therapist lied to me. Instead of telling me that she had married months ago and was pregnant, so she couldn't take sessions, she told me that I was at fault because I couldn't...
    lonelylifeindia lonelylifeindia
    26-30, M
    Apr 3
    I can't wait to have kids , I know it's no going be easy but it's something I always wanted and I know when time is right GOD will allow to have one & I know it will be the...
    deleted deleted
    26-30
    1 Response Apr 3
    They don't scare me so much anymore. I realized I was beginning to overcome my fear when I was home alone at night watching a movie and felt something touch me after feeling it...
    thisisnotanexit thisisnotanexit
    26-30, F
    1 Response Apr 3
    Friday was rough for us. I responded to something you said about my friends being jealous of me over you. I said it was more like pity for me. You bristled. I persisted. Obviously...
    lilimartelini lilimartelini
    51-55, F
    Apr 3
    When you sleep too much. 4 hours ago I had a dream about Charlie Sheen. Being his daughter and switching in the dream and being his girlfriend. Saw him grow up and had a family...
    LeahLovee LeahLovee
    70+, F
    7 Responses Apr 3
    Its funny when people ask if I have any piercings? I tell them yes and show them all the holes from when I was really into body peircing, the only peircing I wear now is nipp rings...
    Haze94 Haze94
    22-25, F
    2 Responses Apr 3
    anybody online wanna make me burst? i just woke up and have to pee. what tortures my bladder: teasing about water, listening to water, drinking water, no crossing legs...
    controlmybladder controlmybladder
    22-25, F
    9 Responses Apr 3
    I am 50 years old and completely paralysed by my fear of v*. My husband and I went to a party last week and by the evening after, 10 of us that went were sick. Some virus must...
    Whitelilyrose Whitelilyrose
    46-50
    1 Response Apr 3
    Armen Berjikly could have had the decency to make sure his brainchild (ep) didn't decay & drip through the floorboard.... even a rock solid foundation has gaps
    deleted deleted
    26-30
    1 Response Apr 3
    Does anyone else constantly try to hide their trich? I feel like no one understands and my parents don't believe it's a real disorder. I have basically no eyelashes and I buy eye...
    kellyu22 kellyu22
    13-15, F
    2 Responses Apr 3
    I don't have any anymore thank God. I used to have them as a kid and they were scary to me that I thought it would happen in real life. I had them for weeks about my neighbor...
    Niceguy890 Niceguy890
    26-30, M
    Apr 3
    Does anyone have all these symptoms for 3 week? And only one week of feeling normal? Pain areas: in the breast, abdomen, back, joints, muscles, pelvis Gastrointestinal...
    mnutz mnutz
    36-40, F
    Apr 3
    I have a 13-year-old girl with thick curly hair. I still brush her hair because it always gets in knots. For a long time, she has wanted to just cut it off. But I don't want to let...
    imAddison imAddison
    13-15, F
    Apr 3
More Stories