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I Have Schwannomatosis

A Schwannomatosis anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Schwannomatosis. You're not alone. 7 People

    Chronic Pain

    I have Schwannomatosis and have tumours on my spinal cord about 30 of them and they give me so much pain I am in quite a deep depression. It took 15 years to get diagnosed and got treated very bad by doctors in the uk. I use a wheelchair because even though I can walk a little...
    Anandadas Anandadas 41-45, M 6 Responses Feb 16, 2010

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    Related Experiences

    So many of my ideas have changed so drastically lately! It's nuts! Part of me wonders if this is just a stage or if this is for good. I used to be so conservative. Believed in...
    saundra04 saundra04 26-30, F 1 hr ago

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    I'm only 21 and I've been suffering from back and neck pain for nearly 2 years now. i was in a bad car accident last june that had made my back pain even worse ( i had already...
    darnswell13 darnswell13 18-21, F 8 hrs ago

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    I recently let go of this guy who I believed that was my twin flame. A month or two later I meet another guy and we clicked instantaneously, just like that. They're born in the...
    krimsonlove krimsonlove 22-25, F 1 Response 8 hrs ago

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    I was diagnosed with Thalassemia when I was pregnant but they didn't specifically indicate if what kind. They just wanna make sure that my baby's dad(my partner that time) wont...
    Shansai84 Shansai84 26-30, F 1 Response 7 hrs ago

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    I was 11 when I first read about Nostradamus' prophetic poem. It was in a sub culture book which was in a bookshelf of the elementary school. Raised in rural Japan and wasn't much...
    katsuobushi katsuobushi 36-40, M 6 hrs ago

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    Hi, I am looking for people who can relate to me. - once had an enviable relationship with God the Father (talked everyday, enjoyed His Presence, etc.) - now feel no conviction...
    alwaysthinking742 alwaysthinking742 22-25, M 3 Responses 4 hrs ago

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    I can't remember the last time I felt this way! I have a crush.. We share many similar beliefs, right down to the existence of aliens , lol... I can't wait for my "first date" with...
    LilVixen17 LilVixen17 16-17, F 1 hr ago

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    Hello fellow CES survivors my heart is out to you all I had surgery on March 4 2015 laminectomy/discectomy emergency decompression was paralyzed for 30 hours .This syndrome is one...
    clint03 clint03 36-40, M 10 hrs ago

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    When I was a kid (third grade or less), I used to have dreams so vivid to the point where I (think) can feel things.... For example: One time, I had a dream where I was at the top...
    salmon140301 salmon140301 13-15, F 8 hrs ago

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    I have clothing line in which I have my personal brand and my awareness brand helping non-profit organizations. www.mikextomcouture.com www.instagram.com/mikextomcouture
    MikexTom MikexTom 31-35, M 7 hrs ago

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    I have two older sisters. They're 24 and 20. The eldest is nice but the other takes me for granted. The other day she was looking for a stylus for her iPad. She needed it to study...
    Quarantined Quarantined 13-15, M 5 hrs ago

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    Do we meet each other by chance, or is fate? Are we placed in each others lives for reason, or are we floating aimlessly in and out of each others lives? I choose to believe we are...
    angeleyes4urpleasure angeleyes4urpleasure 41-45, F 4 Responses 1 hr ago

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    I promised someone I would go to her baby shower today. I don't know anyone else but her there. I was trying to think if ways to get out of it but I can't. I been freaking out all...
    hiddenjem hiddenjem 22-25, F 4 Responses 55 mins ago

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    had a crush on my teacher, I dont know, but at some point it felt like he did to. I was 18 in my senior year. he was my favorite teacher, and I his favorite student. he use to...
    meliena meliena 18-21, F 44 mins ago

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    Who else has a WattPad? I have one and I need more reads and votes. We'll mostly comments to keep my going. I have a maze runner fan fiction. And more! If you would please go check...
    Brittni73 Brittni73 13-15, F 37 mins ago

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    Ah, it's great to return back to EP. Just wanted to say to everyone, have a great weekend, and Happy early Memorial Day
    EmoryDelf EmoryDelf 18-21, M 1 Response 9 hrs ago

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    Lately some of you guys in my circle have been treating me very poorly and rude and I honestly don't think that's right to be treating me or anyone for that matter that way...
    ReachingNirvana ReachingNirvana 22-25, M 1 Response 9 hrs ago

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    Sometimes I dream that I woke up and started my day and I'll be bummed out that I have class on Saturday but then I'll wonder why the campus is even open. Then I'll be happy that...
    candycat13 candycat13 18-21, F 7 hrs ago

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    I don't really believe in good/bad or right/wrong from a moral perspective but I do believe in rationality and irrationality. Lets face it , some people's minds and actions have no...
    SoleExecutioner SoleExecutioner 18-21, F 1 Response 7 hrs ago

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    Yesterday I'd felt like I was still awake though I was sleeping, if that makes sense at all. I had a dream about living in this little worn down shack and for some reason I was...
    Britt4ny Britt4ny 70+, F 7 hrs ago

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    One thing I've found helpful on this journey (so far) is imagining that existence is one giant river and I am but a drop, flowing with the current rather than trying to push back...
    PaxTerra PaxTerra 18-21, F 4 hrs ago

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    Do y'all have any idea how much I hate going to the grocery store?
    pinkstarburst pinkstarburst 41-45, F 9 Responses 4 hrs ago

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    Hi im a newbie...i have a lot on my mind and it is a complicated story and i need advice...
    2xheartbroke 2xheartbroke 22-25, F 5 Responses 4 hrs ago

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    I was diagnosed with an intestinal disease not long ago which causes malabsorbtion among many symptoms. After visiting many specialists, doctors it turns out that it's...
    XYZoli XYZoli 26-30, M 3 hrs ago

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    I started talking to this boy. It took me months to get to start to like him back. But in the end I'm glad I got to know him, I'm glad he was there for me for awhile. But I still...
    lovebugg11 lovebugg11 18-21, F 2 Responses 3 hrs ago

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    Age 11 tried to hang myself Age 15-16 cutting (not deep enough) Age 17 overdose (planned and failed should have died but didn't) if God has a plan for me he'd better show me now
    Callistowed Callistowed 16-17, M 2 hrs ago

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    Everything happened is like a dream. But I know I have to wake up.
    sillygirl1314 sillygirl1314 22-25, F 1 Response 2 hrs ago

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    I took a skinny dip with a male colleague when we had an overnight stay in Cornwall after a business meeting. I've been close to him since my divorce and he rather acts as my...
    Suerob1006 Suerob1006 26-30, F 4 Responses 2 hrs ago

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    The light has faded. Where are you and what is your truth. Only have words left with no ending. Fragmented. Sending light to your darkness.
    ausgirl1 ausgirl1 36-40, F 1 Response 1 hr ago

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    After I watch intense movies I do. Like I just saw ClevelandAbduction and it was very graphic and last night I have a dream that my friends and I replaced the girls.
    germany100 germany100 18-21, F 1 hr ago

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    I have been seen naked by everyone I know lol. I like being naked so if any of my friends come over to my house I'm most likely naked. most of them get naked too.
    EmmaWilliamss EmmaWilliamss 18-21, F 2 Responses 1 hr ago

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    I have a crush.on Nico Do Angelo and Leo.Valdez...They are.so.hot.to me.whyyy
    AngelOfHell AngelOfHell 16-17, F 1 Response 58 mins ago

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    Wish I were in a place where I would be free from judgment... Where I would feel the love no matter how I screw things up!!! Where I would not have to prove to anyone that I...
    Mikey022 Mikey022 18-21, F 1 Response 37 mins ago

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    I'm 18 and I'm wanting to join the military but I have B.E. Does anybody know a friend or a friend of a friend who has B.E and has successfully joined the military? I've wanted to...
    itsJonny itsJonny 18-21, M 1 Response Apr 23

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    In friendship as in business I always try to go the extra mile, and I have noticed it is never crowded there
    GJOFJ3 GJOFJ3 56-60, M 4 Responses Apr 23

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    I definitely should have been born a woman. Every time I am dressed up in a dress or something all I think about is being a woman in every way. The thing is I dress up almost...
    Jenni0127 Jenni0127 51-55, T Apr 23

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    I'm actually the partner with chronic pain. My wonderful wonderful boyfriend does everything he can to support me. To you partners, what's the best way that he/she show you...
    ashtonmallory ashtonmallory 18-21, F Apr 23

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    Love her. We always have each others backs no matter what. Always there for each other on bad days. Always do everything together. Absolutely love having such a loyal and...
    WhiskeyRoger369 WhiskeyRoger369 16-17, M Apr 23

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    Guys, you've got to stop messing with girls' hearts. Why would you flirt with a girl if you have no intention of loving her? And when I say love, I don't mean that nasty love, I...
    RavenS45 RavenS45 18-21, F Apr 23

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    Only now, do I understand the phrase "relationships take work." A wonderful woman suddenly appeared in my life. Literally a dream girl. She was there for my taking. Yet I lost her...
    NYDom4ticklishsubfemLTR NYDom4ticklishsubfemLTR 46-50, M 1 Response Apr 23

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