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I Have Schwannomatosis

A Schwannomatosis anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Schwannomatosis. You're not alone. 7 People

    Chronic Pain

    I have Schwannomatosis and have tumours on my spinal cord about 30 of them and they give me so much pain I am in quite a deep depression. It took 15 years to get diagnosed and got treated very bad by doctors in the uk. I use a wheelchair because even though I can walk a little...
    Anandadas Anandadas 41-45, M 6 Responses Feb 16, 2010

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    Related Experiences

    It's real hell to live with it.I can't make friends,i have hard time talking to some people,i avoid eye contact,i walk around in circles all the time,i shake my hands,twirl my...
    00pleasehelpme00 00pleasehelpme00 18-21 1 Response 5 hrs ago

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    nothing has changed since all of this begun...every effort i make to return to god only makes things worse...i have prayed, tried to stand on faith, cried[still do] begged and...
    brokenhope4ever brokenhope4ever 46-50, F 1 Response 5 hrs ago

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    I really need to tell this story without revealing who I am. Thank you for reading if you are and thank you ep for letting me let it all out. It's a long story and I really can't...
    seabird9 seabird9 16-17, F 2 Responses 16 hrs ago

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    How do you find a happy? What is a happy? People say get a hobby it makes you happy.yes I have this disorder I think but I am self diagnosing myself people think I have bipolar and...
    char3249 char3249 18-21, F 16 hrs ago

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    I literally have no life what so ever, I have been going through a tough time with depression latey and the only time I interact with people is on EP, when I was 17 I was in a real...
    Youmeansomething Youmeansomething 18-21, M 13 hrs ago

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    I really have a dysfunctional family. It was an arranged marriage for my parents. My father married my mother out of greed. My mother is a high ranking government official and...
    Kurecca Kurecca 22-25, M 1 Response 10 hrs ago

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    This is my blessing. I love gardening, nothing better than fresh food you have put the time and energy to grow...I grew with a very big garden, always fruit and vegetables to be...
    quianominorleo quianominorleo 36-40, M 7 hrs ago

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    Wow...Just a bleep of a journey. Here's my story. I was working at a doctor's office in an eyeglass store. January 2013 came around. I started noticing increasing pain in my lower...
    Slayme Slayme 36-40, F 1 Response 1 hr ago

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    Still in school, feeling stuck. This feeling is old now, its been a part of me for so long. A new feeling has come around though. Lately I've felt disconnected from everyone, like...
    John992 John992 22-25, M 16 hrs ago

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    The most amazing place I have been to after visiting many countries. They have so much culture and such warm people, the beaches are amazing and they just seem so content with life...
    SumoN87 SumoN87 26-30, M 16 hrs ago

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    I'm CJ from Alabama. I'm 15 years old. I was straight with a girlfriend, but I've recently had gay fantasies. I've imagined making love to a cute and sexy bottom boy. I just wasn't...
    cjfrombama cjfrombama 13-15, M 2 Responses 15 hrs ago

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    Sometimes we forget what we do have because were always looking at what we don't have
    willowknight willowknight 22-25, F 2 Responses 14 hrs ago

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    Do not read or scroll down first!!!!! WOMEN! Is it true? :( Do we men always have s3x on our minds? Is this all you think about us?? *makes a sad face* OK! B4 scrolling down...
    Sazzio Sazzio 22-25, M 3 Responses 12 hrs ago

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    There is a part of me who thinks this is just too good to be true. I still miss my ex and of course I am sad...but i am been released from the feelings of utter and complete...
    Beckarae Beckarae 31-35, F 10 hrs ago

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    I was 11, the only person who sees me naked is my lil brother at the time, we were close and i saw him too. One time when I was waking up I felt pain on one of my balls and I then...
    Roan1990 Roan1990 22-25, M 1 Response 10 hrs ago

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    My sister is such and narcissistic idiot that it pains me to be around her. She blames everyone for her horrible lot in life and believes people owe her things. She whines about...
    HigherCalling HigherCalling 22-25, F 1 Response 10 hrs ago

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    So about three weeks ago I got this odd pain that went from my neck into my left scapula area. I went to the chiropractor and had an adjustment. Felt somewhat better for just a...
    ornursetab ornursetab 41-45, F 10 hrs ago

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    I am. 45 years old, throughout my childhood, I would have dizzy spells and blackouts, doctors said I was making it up for attention. At 18, I had a serious attack, heart began...
    i1u4eel2 i1u4eel2 41-45, M 9 hrs ago

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    It may sound complete B.S so you are warned in advance. Still want to read? OK then. Knowing that I don't have the valid means to defends my actions, my point of view or my logic...
    YMITheWayIM YMITheWayIM 36-40, M 8 hrs ago

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    My BDD was under control for one month and now it's back again. It was triggered after looking at my Facebook profile picture. At the time I uploaded it I really liked how I looked...
    fluffyunicorn fluffyunicorn 18-21, F 1 Response 7 hrs ago

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    I Am Getting Bored Of Humanity And myself. All of it. I don't want to act. Or to step up to the plate and "become" something. I just want to chill out. And be whatever I am. I feel...
    brushfirefairytales brushfirefairytales 26-30, F 7 hrs ago

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    Here is a strange one, I don't know if anybody here has experienced something similar...? I keep having a recurring dream of a place that I know for a FACT I have never visited...
    Phaedrus1975 Phaedrus1975 36-40, M 2 Responses 3 hrs ago

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    I haven't in a while though. Life's been so good lately and I don't plan on thinking about it ever again. But when I was younger I did. I've thought about it seriously three times...
    genericidiot genericidiot 16-17, F 1 Response 2 hrs ago

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    So I'm 18 and still live at home. My parents have always been really strict. Like CRAZY strict! I've lost count of the amount of spankings I've gotten, how many times I've been...
    Fluffyful Fluffyful 18-21, F 2 Responses 34 mins ago

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    Hi guys. I'm 22 years old. The History with my girlfriend and I: We dated briefly in high school before she went off to college. She's a girl who is well kept and doesn't look...
    daveR80 daveR80 22-25, M 33 mins ago

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    I think I might have three spirit guides so far, but I'm not entirely sure. The first one I met was the toad. It happened when I was 14, a few weeks before Christmas. I had been...
    Torapie Torapie 22-25, F 3 Responses 17 hrs ago

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    I have haphephobia--the fear of being touched. I don't remember how it started, I don't even remember noticing it. I knew I was uncomfortable with having people get too close...
    baconette baconette 18-21 1 Response 17 hrs ago

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    I do, he lives down the street. He's seriously the nicest person I've ever met aside from that he looks like a blonde freaking Andy Biersack. I also have absolutely no chance with...
    EmbraceForever EmbraceForever 13-15, F 1 Response 16 hrs ago

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    It is 3 AM here and I am so tired I can only use voice to speech to text this message and I mean type but I am so sad like sad is it everything sad because I am sad I don't think I...
    char3249 char3249 18-21, F 1 Response 16 hrs ago

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    I have a morbid sense of humor, which tends to scare away people.
    zed2223 zed2223 18-21, M 4 Responses 16 hrs ago

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    .....thinking about it. I may have been here a while!!
    picklebobble picklebobble 46-50, M 1 Response 15 hrs ago

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    I just saw a comment towards an 18 year old girl saying "you're 18 and never have given a blow job? How is that possible?" Is it just me or is it good that she hasn't done that...
    akaShaun akaShaun 16-17, M 5 Responses 15 hrs ago

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    I was in an accident and hurt really bad when i turned 27. It was my birthday and id been drinking and decided itd be a good idea to get on one of those kids razor scooters the...
    shinjorai shinjorai 36-40, M 15 hrs ago

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    Well pretty much what it says above...she doesn't care at all that I love her and have showed her for the longest time..
    shariakugan64 shariakugan64 18-21, M 2 Responses 14 hrs ago

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    I've been a member on this site for quite a while now. I have made numerous friends and helped numerous people. It's also helped me when I was down to pick myself up again... But...
    EmmaLangley99 EmmaLangley99 13-15, F 14 hrs ago

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    Not really anymore I used to have lots but things changed. Iv been in a relationship for nearly 2 years and feel so comfortable with him that I don't really make an effort with...
    willowknight willowknight 22-25, F 14 hrs ago

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    "http://www.wattpad.com/story/23557567-adira" +Adira - description: Have you heard about the new girl? I think her name's Adira. Someone told me she's different.I made a story...
    imjustateenager imjustateenager 13-15, F 12 hrs ago

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    I was at a bar and had to go to the bathroom. At this bar they didn't have urinals instead they had a trough. As i was standing there peeing i heard a female voice in the only...
    tbobo1 tbobo1 46-50, M 2 Responses 12 hrs ago

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    Cheated on again...when will I learn? I let the first time go by, because it hadn't even been for a week, and you didn't have feelings for that girl. And I thought you still loved...
    WintersSoldier2 WintersSoldier2 18-21, F 5 Responses 12 hrs ago

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    I'm so sick and tired of just sitting around. I want to fix things that I messed up! I want to do something about the things that I hate in my life. But I just can't. Everything...
    Chips007 Chips007 18-21, M 12 hrs ago

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    He used to have an ep account on here. Now it's gone. Just deleted, literally within this last half hour. I guess after I found out he deleted it. I posted on his white board...
    WintersSoldier2 WintersSoldier2 18-21, F 1 Response 12 hrs ago

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    I love fat girls, and a little while back got into the idea of getting fatter. I've always been a big guy so why not get bigger. I'd love to have a bbw to stuff me for week on end...
    GG1man GG1man 18-21, M 11 hrs ago

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    SO! Me, lukeskywalker89 and crazybeautiful32 have an idea. We are looking for a guy who is a cancer to be in our crazy lil group. He has to be open-minded, non-judgemental, funny...
    Artz4Life Artz4Life 16-17, F 3 Responses 11 hrs ago

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    Have you ever thought about how cats work? How they move and how they twist and turn. It's fascinating what you mind thinks about. 😳
    n0xiousunris3 n0xiousunris3 16-17, F 3 Responses 11 hrs ago

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    SO! Me, lukeskywalker89 and crazybeautiful32 have an idea. We are looking for a guy who is a cancer to be in our crazy lil group. He has to be open-minded, non-judgemental, funny...
    Artz4Life Artz4Life 16-17, F 11 hrs ago

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    When I am about to sleep I always imagine myself having a life I wish . So every night I have a dream about it. And they seem so real in the morning. Has any one ever had my...
    Lovestones Lovestones 26-30, F 3 Responses 10 hrs ago

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