I Have Scleroderma, Linear

A Scleroderma, Linear anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Scleroderma, Linear. You're not alone. 24 People

    My Daughter Has Linear Scleroderma (en Coupe De Sabre)

    At age 4, my daughter was diagnosed with Linear Scleroderma (En Coupe De Sabre).  This is an even rarer form of the already rare Rheumatic disease Linear Scleroderma.  The odds that she would have such a condition were so remote that we first thought there must be...
    peterson1964 peterson1964
    41-45, M
    14 Responses Sep 17, 2008

    Hi, I'm a 20 year-old-girl from Finland

    and I was diagnosed with en coup de sabre when I was 17, but I have had it for 6-7 years. Since diagnosed I have been going to a skin doctor twice a year (not this year though because I moved to England for a year). In my opinion it hasn't progressed, but being a girl it has...
    deleted deleted
    Apr 24, 2015

    My Experience With En Coup De Sabre and Some Explanation

    I'm doctor, and I have linear morphea, sometimes known as Linear or En Coup de Sabre Scleroderma. It began when I was 4, and it progressed until about 10 years old. The only doctor (dermatologist) that knew the disease enough to diagnose it said it would have an effect on the...
    PeaceWeapon PeaceWeapon
    22-25, M
    21 Responses Sep 27, 2008

    I had a strange 'white spot' appear in my hair

    and skin on my head when I was 14-15. When I was about 53-54, a 'dent' appeared in the center of my forehead. It has connected to the white spot further up on my head. The line now extends down to the top of my nose.
    r9h9 r9h9
    56-60, M
    1 Response Jan 7, 2015

    Hi everyone, I don't have scleroderma

    but I hope you can help me, it's about my sister. She is 24 yrs old and the last 10 days we have been noticing a line on her forehead. Very thin, the skin of the line is perfectly normal and elastic. One doctor said it's the beginning of coup de sabre and the other two she saw...
    Geole Geole
    31-35, F
    1 Response Mar 11, 2014

    I Am Terrified

       hey everyone! I have had lupus for many years. Along with sjogrens and reynauds. I was diagnosed four years ago with CREST and scelederma. I am scared because of the prognosis. I can only hope the benlysta drug comes available soon. I believe it will...
    goldieinpain goldieinpain
    41-45, F
    2 Responses Oct 1, 2009


    I was diagnosed with the above about three years ago after having my second major neck operation.  It started in my hands and feet. I went to doctors and the all were puzzled until I went to a specialist who knew what it was straight away.  My hands now are basically crippled...
    heatherark heatherark
    1 Response Oct 29, 2011
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