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I Have Scoliosis

Personal Stories, Advice, and Support 519 People

    Brace Yourself

    My name is Katie VanderKooi, and I’m a 21 year old spinal fusion survivor! I was diagnosed with idiopathic scoliosis when I was 6, after telling my parents that my back hurt. It was mild (with one 18 degree curve), so the doctor told us to keep an eye on it. Nothing needed to...
    kvand335 kvand335 22-25, F 1 Response Oct 27, 2013

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    Living With Scoliosis

    I am 32 year old asian male and have been living with scoliosis since I was 15 years old.  It wasn't so bad when I was a young kid but as I grew into a young adult, I realized how difficult it is to live with scoliosis.  For many years, I felt out of place and...
    Souacide Souacide 31-35 2 Responses Nov 23, 2008

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    DEALING With It

    WELL, I HAD IT SINCE I WAS IN MY EARLIER TEEN.I WAS IN CONSTANT PAIN.. AS I GREW OLDER AND I STARTED WORKING,THAT'S WHEN IT REALLY STARTED HURTING THE MOST.STANDING ON MY FEET JUST ABOUT EVERY DAY WAS A PAIN.I WAS TAKING PAIN MEDICATION,MUSCLE RELAXER TO PUTTING A HOT PAD ON IT...
    barbee barbee 51-55, F 2 Responses Jun 29, 2008

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    Scoliosis...

    I found out I had a mild case of scoliosis when I had a physical done when I was 12. They made me go once a year for about the next 3 years but it didn't change. I am now 20 and I just had a kid and I asked for an epidural during labor. The anesthesiologist started talking about...
    Natnat1130 Natnat1130 18-21, F 1 Response Oct 27, 2013

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    I found out a couple of years ago

    that I have scoliosis. Had a MRI on my back because I have extreme pain in my lower back that runs up to my neck.
    emtl2155 emtl2155 46-50, M 2 Responses Mar 14

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    Scoliosis

    I only found out I have scoliosis 8 months ago, but I've probably had it for four years. My shoulders are quite uneven and I have an awful ribhump on my right rib. Its always bothered me my whole life, and as I've started losing weight, its always stayed the same,still clearly...
    abbsie202 abbsie202 16-17, F 2 Responses Aug 4, 2013

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    So one day my back started hurting

    so bad I had chronic headaches and trouble walking. I was having trouble sleeping and doing the things I love, like running and ceramics. So my mother took me to the chiropractor, she then sent me to get X-rays. I then did not see or her back from her for 2-3 weeks. Then I had...
    xgabbersx xgabbersx 18-21, F 2 Responses Jan 28

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    So Much Waiting ...

    I am 16 years old. I was diagnosed with scoliosis late last year. I found out about my scoliosis when my mum noticed my prominent right shoulder blade. I went to the GP and then a hospital but although I had an X-ray taken I wasn't given the option to see it as they were not...
    Justanoxymoron Justanoxymoron 16-17, F 1 Response Sep 28, 2013

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    The 'typical' Issues

    I was diagnosised with scoliosis when I was 11.  I wore a TLSO brace for a year with no positive results in curvature.  I ended up having surgery (fusion with harrington rod) in 1982.  I have not had too many problems with my back.  I think most has been...
    EricaABQ66 EricaABQ66 36-40, F 5 Responses Jan 11, 2008

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    Someone share their story with me?

    I'll share mine. I don't want to feel alone anymore than I do
    kaitlyncurvygirl99 kaitlyncurvygirl99 13-15, F 4 Responses Nov 29, 2013

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    Nervous For Surgery

    I'm preparing for scoliosis surgery for June 21, 2013 (less than a month away!!!). I've never had back surgery before, so this is pretty scary. If anybody has any advice, it would be gratefully appreciated. I was diagnosed with scoliosis when I was nine, almost five years ago...
    deleted deleted 26-30 4 Responses May 26, 2013

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    How To Be More Comfortable In Your Own Skin

    So, I was diagnosed with Scoliosis when I was about 4 y.o unfortunately the doctors were not very familiar with the diagnosis and thought it was a good idea to give me physical therapy. My chest area become even more pronounced (entire upper body) and I still needed surgery. I...
    ivanessa89 ivanessa89 22-25, F Jul 15, 2013

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    how much it affects my life personally

    So I have something known as scoliosis which doesn't let u walk straight and it makes me sad knowing I have it because people think low of expetations from me and it makes me feel like **** anyways I recently got a second oppinion from a doctor( which is basically another doctor...
    tylertoulon tylertoulon 16-17, M 2 Responses Aug 1, 2013

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    My Scoliosis Surgery Journey

    Hey my name is Leslie, and most likely if you are reading this you have scoliosis or know someone who does. I'm here to share my experience about finding out about my scoliosis and my surgery. I would love to answer any questions you have to make your experience a more pleasant...
    leslieann007 leslieann007 16-17, F 10 Responses Jul 17, 2009

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    I am 22 and found out about a year ago I have

    scoliosis. It is a rather confusing situation as originally it was thought I had hip dysplasia then leg length discrepancy then it was proven I didn't have these conditions and actually I have scoliosis. The scoliosis hadn't been investigated as 2 years ago it was said I had no...
    Boxer91 Boxer91 22-25, F 2 Responses Feb 17

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    I Can Never Forget

    Although joined this group a while ago, I never got to write info about my scoliosis; and I also try to forget. Anyway.... I was diagnosed with scoliosis when I was around 15, at that time I was really scared. I was vaguely aware of a condition called scoliosis, since I remember...
    MissKnight MissKnight 18-21, F 1 Response Jul 10, 2013

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    My back is killing me.

    Going to try and sleep off this pain. Goodnight and shall post tomorrow. Nu-night.
    toxicsmile toxicsmile 13-15, F 1 Response May 11

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    Runs In Th Family...

    my aunt my dad, my sister, my brother (who had the corrective operation) and me - bring on the intensive physiotherapy...  
    sapphiresky sapphiresky 16-18, F 7 Responses Dec 14, 2007

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    Non Surgical Recovery Of Scoliosis

    After being on chiropractic treatments for close to 3 years now, I'm still researching on how to reduce my curvature from my s1 to coccyx since my doctor has made it clear that he can only fix my lumbar curvature from l1 to l5. And so here are my research findings (thank God...
    EvaYav EvaYav 26-30, F 4 Responses Nov 28, 2013

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    Scoliosis :b

    7th grade. Girls were tested for Scoliosis. I knew my back always hurt, I knew something was wrong. I was sick the day of the testing. 9th grade, my back was worse. My gardian angel must haves ent me my miraculous Chiropractor. Dr.Cooper. He said he doubted he could fix it , but...
    Alicia4rmFHS Alicia4rmFHS 16-17, F 2 Responses Apr 17, 2008

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    Went to the back specialist.

    . She took a scan of my back... It was the worst scan yet.. Meaning it's not getting better.... And the pain is so bad ... I can't walk.. Nor sleep
    xgabbersx xgabbersx 18-21, F 2 Responses Jan 29

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    Scoliosis

    At 17 my son was diagnosed with a rare form that appears during a growth spurt. 2 10 degree curves at that point , by 21 they had gone to 2  65 degree curves ,5 surgeries and bacterial meningitis we almost lost him.He had the best doctors in the country , now he is 2 inches...
    redheadsrule redheadsrule 36-40, F 8 Responses Aug 31, 2007

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    My Scoliosis Journey. On To Surgery

    My name is Allison. I am 17 years old, turning 18 in June, 2011,and i have scoliosis. *This story is also posted under the group "I Have had scoliosis surgery"* My story goes like this: When I was 13 and in the 8th grade, my friend said that her doctor thought she had scoliosis...
    almariemc almariemc 18-21, F 5 Responses Jun 7, 2011

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    Celeste The Girl With Scoliosis ~.~

    Well what should I start off with? I am 12 years old and in 2011, back when my little self was barely 10, I had a cough, maybe even bronchitis, Doctor Yumi told my mom and I to go to the hospital to get and X-Ray. We waited for what seemed like forever. When I was called I...
    ObsessedWithElsa ObsessedWithElsa 16-17, F 4 Responses Oct 24, 2013

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    I Was Diagnosed With Scoliosis Year Ago

    I had scanes on my back a year ago for my scoliosis and said it was not that bad.I think its getting worst becuase cant breathe as good and if I twist my body I can hear breath sounds one shoulder higher than the other and my bones are sticking out more than they use to in my...
    kellner27 kellner27 18-21, F 1 Response Jul 10, 2013

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    Schroth Method Helped Me

    Went to Schroth clinic a long time ago but was too young to do the exercises consistently, then I eventually forgot them. Back started to hurt so I did some internet searching about scoliosis exercises and I found SpineHarmony (http://www.spineharmony.com) which has Schroth...
    rambobambo rambobambo 41-45, M 2 Responses Sep 6, 2010

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    I'm A Scolio Girl:)

    hey! so yup, I've got scoliosis. I've already had 2 surgeries since 2010. mine was really bad...when my family discovered that what i was suffering from was indeed scoliosis my cob angle by that time was at 63 degrees! then by the time we found a hospital and raised the cash...
    CharNimzy CharNimzy 18-21, F 1 Response Jul 9, 2013

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    Mild Scoliosis For 7 Yrs?

    hey ya'll.Im new,so you"ll have to forgive me if i do something wrong..lol just am wondering how i got this?i was completely healthy all my life and then I degenerative disc disease,djd and now they tell me i have scoliosis? my back is deteriorating rapidly but they wont even...
    debbielinton debbielinton 41-45, F 2 Responses Aug 29, 2013

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    I Knew Something Was Wrong

    My back has had problems for years. I have gone to the doctors for a physical and they would tell me there was a problem but it wasnt a big enough concern for an xray. I have been over weight before so I thought me being a bit over weight made my back hurt. When I walked...
    MysteriousShadow MysteriousShadow 18-21, F 1 Response Sep 10, 2011

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    Never Knew

    For the last 4 years especially, I have been dealing with sciatic nerve pain, then abnormal knee swelling and pain back to back. My physical therapist and chiropractor have been working with me over time to reduce it to a point where i can at least walk, stand, or sit without...
    Shokliva Shokliva 22-25, F 2 Responses Apr 10, 2013

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    Scoliosis Surgery Should Be Last Resort!

    I feel scoliosis surgery should only be considered as a last resort; i.e., if you are truly hunched over and disabled from Scoliosis. If you absolutely have to do it, get yourself a good anesthesiologist to attend you with adequate pain medications while in hospital. If you have...
    cornerthree cornerthree 46-50, F 2 Responses Dec 28, 2012

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    My Sister Has Scoliosis Too.

    My mom just told me the news. My 17 year old sister has scoliosis at 12 degrees. She hasn't told my sister yet. This honestly hurts me so much. I don't want her to have to deal with this. It's horrible having scoliosis. It's also depressing. I can't help but cry. It's just not...
    ObsessedWithElsa ObsessedWithElsa 16-17, F 2 Responses Oct 29, 2013

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    If anyone wants my story

    or has question you can always ask me whatever I am an open book.(:
    abrokendreamer abrokendreamer 13-15, F Apr 27

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    Ive Got It

    I wish I didn't but I do. I've had scoliosis since I was 12 I'm 20 I remember going places with my friemds and I couldn't walk as far as them I had to constantly sit down because of the pain it was embarising but they understoond my condition and were nice about i. But over the...
    mattyboyyx mattyboyyx 22-25, M 3 Responses Mar 15, 2012

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    Scoliosis Doesn't Prevent You From Accomplishing Your Dreams, In The Long Run.

    Since about 2 years ago, i have discovered that i have scoliosis. I have an S shaped spine; 10 degrees upper back and 10 degrees lower back. Its not much compared to many people, but at that age (and probably still am) my dream was to become a police officer or go into the army...
    simplyawesome3 simplyawesome3 18-21, F 1 Response Jul 10, 2011

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    Just Diagnosed

    I'm 18 and at the beginning of the year i noticed that my right hip was slightly higher than my other one, i started getting mild pain around my pelvic/lower back area and in june i finally went to see what was going on. My Doctor took a look and told me it could be scoliosis and...
    LaurenEmma95 LaurenEmma95 18-21, F Aug 31, 2013

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    Having Scoliosis!!!

    Hi my name is Tristan, and on November 20,2007 two days after my 11th birthday, i went for an annual check-up. when the doctor came in my mention to the doctor about my back arched and i wasn't standing the way i should be. he told me to bend over and touch my toes, when i did a...
    tmissie9 tmissie9 18-21, F 2 Responses Jul 23, 2013

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    I'm 14, and when my mother was about my age,

    she had an accident in a horse. Long story short, her spine was pulled out of place. Now years later, the effects have been passed on to me through genetics. I was wondering if there was anything which could help me? Is there a way for my back to look normal? I'm really self...
    InTheAutumnBreeze InTheAutumnBreeze 13-15, F 2 Responses Jul 8

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    Scoliosis After 50 Y.o.

    Good day. In the age of 8 years old I was operated in a cause of scoliosis. Now I am 55 y.o. and have some serious problems of my scoliosis such as a pain and progressive thorax deformation. I would like to know are there some methods  to treat such people. God bless you...
    Serg Serg 51-55 2 Responses May 26, 2008

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    Conquer Scoliosis

    I had my first backache when I was 19. At that point of time I was a real active person with a bright future and a thriving career. However, the backache didn't stop. It became worse over the days and slowly the constant dull aching pain became a constant companion for years to...
    EvaYav EvaYav 26-30, F 3 Responses Nov 14, 2013

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    A Year Later...

    I just found out a year ago that I have scoliosis. After my back gave out on Christmas eve of 2006 I decided that my back hurt extremely bad and this was not a normal thing that should be happening to a 17 year old. I went to the chiropractor where they did a x-ray and come to...
    OneLifeToLive OneLifeToLive 18-21, F 2 Responses May 26, 2008

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    "miracles Happen"

    At the "almost mature" age of 15, i was diagnosed with an "S" scoliosis during a check-up at the Philippines. After obtaining an x-ray, little did i know that it had already reached a severe 45 degrees! I was super shocked due to the fact that i didn't feel any type of pain in...
    michellio michellio 16-17, F 3 Responses Jul 19, 2011

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    I Have Found A Cure!!!

    I developed scoliosis when I was 12 years old I am now 29. Over the past 17 years my scoliosis got worse and worse to the point that I was in pain and discomfort on a daily basis. My hips & shoulders were uneven, my rib cage completley twisted which effected how my internal...
    GrowerGirl GrowerGirl 26-30, F 9 Responses Nov 7, 2009

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    29 Years Old, Just Found Out How Bad My Scoliois Is

    I remember one time when I was younger, the doc said something about having minute Scoliosis -- I had no idea what it meant, and was a minor. The doc never mentioned anything after to that, and to my mom's knowledge she never knew. I am now 29 and recent nerve/back pain had me...
    herhello55 herhello55 26-30, F 2 Responses Apr 2, 2013

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    Nothing More They Can Do

    I was diagnosed with Scoliosis when I was 11, I had a 56 degree curve just about the position of my shoulder blade. I was put in a brace for a five month period, but the curve continued to get progressivly worse. I was diagnosed in June and by November my curve was at 97 degrees...
    lonelybrokenhearted lonelybrokenhearted 16-17, F Feb 2, 2009

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    My Life Dealing With Scoliosis...with School and Others.

    I was diagnosed with scoliosis at age 12.  It was also during my school days in gradeschool. My curvature was 58 degrees, "S" shape. It was really hard to swallow and accept the fact that I had scoliosis and also finding out that I needed surgery. While my family...
    purplejuice450 purplejuice450 13-15, F 2 Responses Jul 1, 2009

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    I have minor scoliosis

    and i can tell you, it doesn't feel minor, sometimes when i have back pains i can't make any sudden movements or it will hurt so badly that sometimes i can't breathe. Sometimes it's just constant annoying pain, and sometimes it feels like someone stabbing a pencil into the back...
    DiapyBoi DiapyBoi 16-17, M 5 Responses Dec 29, 2013

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    62 Year Old Woman Contemplating Scoliosis Surgery

    I am in the research phase but must say I am scared to death. I have minimal symptoms now but my curve is 88 degrees and it will get worse. I'm single and live alone with no family nearby. Has anyone at my age had this surgery and can you share what the first 6 months are...
    merylmeg merylmeg 61-65, F Jul 27, 2013

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    So I have decided to write more about my

    scoliosis and also give all those beautiful girls and boys some pointers. ❤ Remember despite what you look like you are beautiful and we should be happy. We aren't all boring straight like everyone else. I know it's what everyone wants but you kinda gotta live with what you...
    ObsessedWithElsa ObsessedWithElsa 16-17, F 3 Responses Jan 19

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    My Battle With Scoliosis

    I was diagnosed with spinal scoliosis in the 6th grade around the age of 12. I was the only person at my school who had to stay after the screening so i knew something was up. When they told me, i remember just balling outside of the classroom and my mom came to get me from...
    writingmyrelease writingmyrelease 26-30, F 3 Responses Apr 20, 2010

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    My Daughter Has Scoliosis!

    I don't have scoliosis, but my daughter (age 11, not old enough to register) has it. She's going to be 12 the 21st of July and she was diagnosed some time in April. Her curve is pretty bad (I can't find the X-ray image) at her age and was told to wear a night back brace. Some...
    mekello mekello 36-40, F 2 Responses Jul 3, 2012

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    My Scoli Story

    Hiya, My name is Sarah. I'm 13 years old. I like to play travel basketball and softball. I am really athletic and smart. In 6th grade (last year) My mom and I went to my doctor for a physical so I could try out for my schools basketball team, where I was diagnosed (if your...
    LilMissInLoveWithHerBestfriend LilMissInLoveWithHerBestfriend 13-15, F 4 Responses Dec 29, 2012

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    Related Experiences

    Since around the time I was 8, At every physical I had I was told that I had a curve in my spine, I thought nothing of it until I went for my physical when I was 11, the doctor...
    HelloLittleTurtle HelloLittleTurtle 13-15, F Jul 1