I Have Scoliosis

Personal Stories, Advice, and Support 622 People

    I got diagnosed 6 months ago

    and everyday it just gets worse and harder to push on and keep positive. I often get shortness of breath and sometimes cannot even get out of bed. Medication tried so far hasn't worked, I just need someone to talk to in a similar position...
    KIXviper KIXviper
    18-21, F
    2 Responses Mar 6, 2015

    I have scoliosis. My name is Suzette.

    I'm a 14 year old north Jersey girl. I'm also a curvy girl as i have a 34-36* curve in my spine. In about a week i will get my first fitting and consultation for my brace and i was wondering if any of you have had experiences with a brace and what should I expect.
    suzie1201 suzie1201
    13-15
    3 Responses Aug 1, 2015

    My Scoli Story

    Hiya, My name is Sarah. I'm 13 years old. I like to play travel basketball and softball. I am really athletic and smart. In 6th grade (last year) My mom and I went to my doctor for a physical so I could try out for my schools basketball team, where I was diagnosed (if your...
    LilMissInLoveWithHerBestfriend LilMissInLoveWithHerBestfriend
    13-15, F
    3 Responses Dec 29, 2012

    Scoliosis ruined my life.

    I love sport and I was about to join academy with specialization on sport, but I was diagnosed with scoliosis and doctor told me, I can't do any sport anymore. I'd rather have crooked back than give up on my dream.
    deleted deleted
    26-30
    2 Responses Sep 27, 2015

    Ive Got It

    I wish I didn't but I do. I've had scoliosis since I was 12 I'm 20 I remember going places with my friemds and I couldn't walk as far as them I had to constantly sit down because of the pain it was embarising but they understoond my condition and were nice about i. But over the...
    deleted deleted
    26-30
    2 Responses Mar 15, 2012

    They just found out my scoliosis existed this

    year. Thankfully if i had been younger, they would've put me in a brace. But it's 25 degrees to the right and it makes me have curves on one side of my body, and the other side i have no curves. So in other words, i hate swimsuit season.
    Megsupermario Megsupermario
    18-21, F
    1 Response Jan 1, 2015

    Watched my friends play Just Dance 4 today

    and it hurts me to realise that i would never be able to dance well (or dance).....or maybe i am just afraid of trying.
    mdlyrehc mdlyrehc
    18-21, F
    1 Response Jan 5, 2015

    Scoliosis

    At 17 my son was diagnosed with a rare form that appears during a growth spurt. 2 10 degree curves at that point , by 21 they had gone to 2  65 degree curves ,5 surgeries and bacterial meningitis we almost lost him.He had the best doctors in the country , now he is 2 inches...
    redheadsrule redheadsrule
    36-40, F
    8 Responses Aug 31, 2007

    My Daughter Has Scoliosis!

    I don't have scoliosis, but my daughter (age 11, not old enough to register) has it. She's going to be 12 the 21st of July and she was diagnosed some time in April. Her curve is pretty bad (I can't find the X-ray image) at her age and was told to wear a night back brace. Some...
    mekello mekello
    36-40, F
    1 Response Jul 3, 2012

    My doctor is telling me I can't be considered

    for surgery until I am at least 42 degrees. I hear some doctors say 30 degrees and above. What does your doctor say? Any tips on helping me get comfortable while sleeping would help. My back kills me when I'm laying in bed.
    haleydrapeaux haleydrapeaux
    18-21, F
    2 Responses Aug 5, 2015

    My mother was rubbing my back one night

    and she felt as if I was missing some ribs on my left side. She got worried and when she told me to bend down she saw my spine wasn't straight. I got diagnosed last year in October at the Shriners children's hospital, I had 44 degrees meaning I was one degree close to surgery. I...
    carazami carazami
    16-17
    Oct 25, 2015

    My Mum noticed it a year ago

    when I bent over in front of her while wearing a tight shirt and my mum noticed that my back was asymmetrical. Like, the left side of my hip goes in more than my right side does, which looks more fat. I've also noticed that when my shoulders are relaxed my left one is higher...
    JazzRL JazzRL
    18-21, F
    Jul 27, 2015

    I was diagnosed with lumbar scoliosis

    when I was 17. Didn't even know I had it until I had to do a physical for school. I started going to an orthopedic every six months for xrays. Found out my curvature is relatively mild (about 30 degrees); however, I have quite a bit of spinal rotation. Stopped going there after...
    jessiretro jessiretro
    26-30, F
    4 Responses Aug 24, 2014

    I have mild scolosis ,due to bad posture

    and me being very tall . Tall ppl would have this problem cause they have a lot of. Bones and their muscles are not developed hence resulting in the subluxation of the spine or curvate of the spine :) :) :) ::).
    asianahyang96 asianahyang96
    18-21, M
    Sep 14, 2014

    My upper spine is 7 degrees

    and my lower spine is 17 degrees . I get back pain if I'm moving around a lot . Sleeping on my back forget it .
    kittenmajor kittenmajor
    22-25, F
    Dec 19, 2015

    I was diagnosed 1 1/2 months ago.

    My curvature is not high enough for surgery and since i am still growing the doctor has me getting massages every week that will guide my spine to not increase. The massage therapist suggested i get heller work as she has seen scoliosis solved with it. I go to the heller worker...
    kristyn01 kristyn01
    13-15, F
    May 20, 2015

    My Life Dealing With Scoliosis...with School and Others.

    I was diagnosed with scoliosis at age 12.  It was also during my school days in gradeschool. My curvature was 58 degrees, "S" shape. It was really hard to swallow and accept the fact that I had scoliosis and also finding out that I needed surgery. While my family...
    purplejuice450 purplejuice450
    13-15, F
    3 Responses Jul 1, 2009

    My Sister Has Scoliosis Too.

    My mom just told me the news. My 17 year old sister has scoliosis at 12 degrees. She hasn't told my sister yet. This honestly hurts me so much. I don't want her to have to deal with this. It's horrible having scoliosis. It's also depressing. I can't help but cry. It's just not...
    ObsessedWithElsa ObsessedWithElsa
    18-21, F
    3 Responses Oct 29, 2013

    My Battle With Scoliosis

    I was diagnosed with spinal scoliosis in the 6th grade around the age of 12. I was the only person at my school who had to stay after the screening so i knew something was up. When they told me, i remember just balling outside of the classroom and my mom came to get me from...
    writingmyrelease writingmyrelease
    26-30, F
    5 Responses Apr 20, 2010

    Hello everyone.. I was diagnosed 5 years ago

    and I'm 19 now, I was offered the surgery but because I was so young we refused it and went down the exercise method instead.. I am constantly in pain with my back, I can't remember a day where I haven't experienced some pain.. It makes me miserable and I hate it
    Victoriaa95 Victoriaa95
    18-21, F
    1 Response Jul 17, 2015

    I was diagnosed with scoliosis at age 14.

    At the time 14 degree curve. I never had pain until my 20's and started seeing a chiropractor in my 30's. I have no children and decided that because I didn't want to make my curvature worse. In 2011 I was 41 and diagnosed with double curve both 30 something curvature. I have...
    Christianaca Christianaca
    41-45
    1 Response Sep 15, 2015

    I have mild scoliosis.

    About a year ago I was 13% off. I don't know what I am now. I'm probably going to see a doctor again soon and I'm scared I'm going to have to start wearing a back brace. Can anyone tell me what it's like?
    Brimmless Brimmless
    18-21, F
    3 Responses Nov 15, 2014

    I'm A Scolio Girl:)

    hey! so yup, I've got scoliosis. I've already had 2 surgeries since 2010. mine was really bad...when my family discovered that what i was suffering from was indeed scoliosis my cob angle by that time was at 63 degrees! then by the time we found a hospital and raised the cash...
    CharNimzy CharNimzy
    18-21, F
    2 Responses Jul 9, 2013

    So I have decided to write more about my

    scoliosis and also give all those beautiful girls and boys some pointers. ❤ Remember despite what you look like you are beautiful and we should be happy. We aren't all boring straight like everyone else. I know it's what everyone wants but you kinda gotta live with what you...
    ObsessedWithElsa ObsessedWithElsa
    18-21, F
    3 Responses Jan 19, 2014

    Conquer Scoliosis

    I had my first backache when I was 19. At that point of time I was a real active person with a bright future and a thriving career. However, the backache didn't stop. It became worse over the days and slowly the constant dull aching pain became a constant companion for years to...
    EvaYav EvaYav
    31-35, F
    2 Responses Nov 14, 2013

    I have very severe scoliosis a 45 degree curve

    and it constantly hurts and my ribs are shaped weird and my hips are out of line
    OIGirl18 OIGirl18
    18-21, F
    4 Responses Aug 5, 2015

    Hi there. Well I have severe scoliosis with

    about 58.6 degrees. I have thoracic/lumbar scoliosis. I didn't know about it until earlier this year which was already too late. My mom wouldn't let my have surgery because she thinks that it wouldn't help me. I've been experiencing lots of pain lately too. Its hard for me to...
    ohangela ohangela
    16-17, F
    2 Responses Nov 12, 2014

    Scoliosis Pain management Loss of feeling in

    leg Beginning to experience loss of bladder and fecal control
    Mar11855 Mar11855
    56-60, F
    Jul 27, 2015

    I Had It

    When i had scoliosis I used to get bullied a lot about it so last July I had a 2 stage surgery to correct it it was meant to Be be 4 hours to take a rib out it ended up being 7 and the correction of the spine took 14 hours I do get some back pain but it ant that bad and know I...
    Abbie143 Abbie143
    18-21, F
    Mar 29, 2013

    Can anyone tell if I have scoliosis just by

    looking at the front side ?
    kittenmajor kittenmajor
    22-25, F
    6 Responses Dec 20, 2015

    I found out I had scoliosis

    when I was 12 I'm 15 now and most days I can't get out of bed I don't know how to live anymore
    NoahCudmore NoahCudmore
    16-17, M
    2 Responses Feb 1, 2015

    We had to take an examination in 7th grade,

    and the ladies loudly announce my degrees of the curvatures to the whole group of girls. I was embarrassed and afraid. Everyone kept talking about it. Soon, I went to the doctors, and they said it was 42 degrees. When I found out, I got depressed, but I had to wear the...
    MisunderstoodGirl69 MisunderstoodGirl69
    13-15, F
    May 17, 2015

    I had it at birth. Had surgery

    for it in yr 4. MSG me to ask more :)
    Nickstar13 Nickstar13
    13-15, F
    2 Responses Aug 10, 2014

    So I want to know what everyone's curvature is.

    I have two curves but my top one is the worst. They are 55 and 35. Before my first surgery they were 60 and 30 so I have a consultation to hopefully have another one. I also want to know how you've treated it. I wore a back brace, that I hated, for 5 years from 8-13. I've had...
    FIeener FIeener
    26-30, F
    1 Response Mar 8, 2015

    Just Diagnosed

    I'm 18 and at the beginning of the year i noticed that my right hip was slightly higher than my other one, i started getting mild pain around my pelvic/lower back area and in june i finally went to see what was going on. My Doctor took a look and told me it could be scoliosis and...
    LaurenEmma95 LaurenEmma95
    18-21, F
    Aug 31, 2013

    DEALING With It

    WELL, I HAD IT SINCE I WAS IN MY EARLIER TEEN.I WAS IN CONSTANT PAIN.. AS I GREW OLDER AND I STARTED WORKING,THAT'S WHEN IT REALLY STARTED HURTING THE MOST.STANDING ON MY FEET JUST ABOUT EVERY DAY WAS A PAIN.I WAS TAKING PAIN MEDICATION,MUSCLE RELAXER TO PUTTING A HOT PAD ON IT...
    barbee barbee
    51-55, F
    2 Responses Jun 29, 2008

    Someone share their story with me?

    I'll share mine. I don't want to feel alone anymore than I do
    kaitlyncurvygirl99 kaitlyncurvygirl99
    16-17, F
    5 Responses Nov 29, 2013

    Brace Yourself

    My name is Katie VanderKooi, and I’m a 21 year old spinal fusion survivor! I was diagnosed with idiopathic scoliosis when I was 6, after telling my parents that my back hurt. It was mild (with one 18 degree curve), so the doctor told us to keep an eye on it. Nothing needed to...
    kvand335 kvand335
    22-25, F
    1 Response Oct 27, 2013

    I Have Found A Cure!!!

    I developed scoliosis when I was 12 years old I am now 29. Over the past 17 years my scoliosis got worse and worse to the point that I was in pain and discomfort on a daily basis. My hips & shoulders were uneven, my rib cage completley twisted which effected how my internal...
    GrowerGirl GrowerGirl
    26-30, F
    9 Responses Nov 7, 2009

    Scoliosis Surgery Should Be Last Resort!

    I feel scoliosis surgery should only be considered as a last resort; i.e., if you are truly hunched over and disabled from Scoliosis. If you absolutely have to do it, get yourself a good anesthesiologist to attend you with adequate pain medications while in hospital. If you have...
    cornerthree cornerthree
    46-50, F
    1 Response Dec 28, 2012

    Celeste The Girl With Scoliosis ~.~

    Well what should I start off with? I am 12 years old and in 2011, back when my little self was barely 10, I had a cough, maybe even bronchitis, Doctor Yumi told my mom and I to go to the hospital to get and X-Ray. We waited for what seemed like forever. When I was called I...
    ObsessedWithElsa ObsessedWithElsa
    18-21, F
    3 Responses Oct 24, 2013

    I was born with it and finally at the age of 16

    my mum took me to the doctor to be diagnosed. I have seen two physiotherapist who have given me exercises to do for my bad. I'm grateful that my spine is it too bad, thankfully I don't need surgery. I have worked a camera operator where I had to carry this big heavy camera on my...
    Dreamprojector Dreamprojector
    22-25, F
    3 Responses Aug 7, 2014

    Non Surgical Recovery Of Scoliosis

    After being on chiropractic treatments for close to 3 years now, I'm still researching on how to reduce my curvature from my s1 to coccyx since my doctor has made it clear that he can only fix my lumbar curvature from l1 to l5. And so here are my research findings (thank God...
    EvaYav EvaYav
    31-35, F
    3 Responses Nov 28, 2013

    Has anyone had lumbar fusion surgery to correct

    the curvature in the spine? I have and it's been wonderful.
    Mariahehe Mariahehe
    22-25, F
    4 Responses Jan 14

    I was diagnosed with Scoilios nearly three

    years ago, at the age of 11. I have been wearing a brace and have been getting good results so far! I would love to talk to someone who understands and is going through the same thing 😊💕
    ElleJohnsonDuggan ElleJohnsonDuggan
    16-17, F
    3 Responses Aug 27, 2014

    I have minor scoliosis

    and i can tell you, it doesn't feel minor, sometimes when i have back pains i can't make any sudden movements or it will hurt so badly that sometimes i can't breathe. Sometimes it's just constant annoying pain, and sometimes it feels like someone stabbing a pencil into the back...
    HiiroTenshi HiiroTenshi
    18-21, M
    6 Responses Dec 29, 2013

    Are there other people out there

    who thinks it's pointless to find a boyfriend/girlfriend because they are going to dump you as soon as they see your scars and back?
    Laraamani Laraamani
    22-25, F
    4 Responses Aug 6, 2015

    went to the doc yesterday to find out

    that my spine is extremely messed up.. eugh.. makes me antsy to think that my spine, the thing keeping my body together, is not normal :L eugh..
    SammiSakura SammiSakura
    16-17, F
    1 Response Mar 6, 2015
    haleydrapeaux haleydrapeaux
    18-21, F
    7 Responses Aug 6, 2015

    sigh.. after i attended a mass i just cant

    resist over thinking of that girl who has a sexy body, i felt insecure :( i know it is a sin, but im just a humankind who got easily beaten by insecurities, sometimes...
    davinesarah davinesarah
    18-21, F
    1 Response Jan 4, 2015

    I found out a couple of years ago

    that I have scoliosis. Had a MRI on my back because I have extreme pain in my lower back that runs up to my neck.
    emtl2155 emtl2155
    46-50, M
    3 Responses Mar 14, 2014

    Well i found out i had scoliosis

    when i was 17? Yeah 16 or 17. Im now 18. Its minor from what the doctors have told me and also what i have seen compared to many persons who i see with scoliosis. Its not rapidly growing either , I guess cause I dont have much growth left. I do have pain in my back but they dont...
    legzydawly legzydawly
    18-21
    2 Responses Jul 29, 2014

    Went to the back specialist.

    . She took a scan of my back... It was the worst scan yet.. Meaning it's not getting better.... And the pain is so bad ... I can't walk.. Nor sleep
    xgabbersx xgabbersx
    18-21, F
    2 Responses Jan 29, 2014
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