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I Have Seizures

Personal Stories, Advice, and Support 93 People

    Miracles Do Happen

    I had a rare seizure disorder that only 30 other people had ever been known to have. Most ended up deaf or mute. I went from the smartest in my class to having the vocabulary of a five year old. I had a 20 minute seizure and then started having strange brain activity as i slept...
    cheer93hearts cheer93hearts 16-17, F 2 Responses Jun 22, 2008

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    Yep And Tired Of It...

    I'm getting so many tests done on me and everything my meds are getting changed because they still have no idea what's wrong. I ended up asking my doctor for a prescription for diapers because I lose my bladder when I have seizures. There's no telling when I have them, it just...
    Cutie2013 Cutie2013 18-21, F 1 Response Oct 16, 2013

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    I Would Rather Have Seizures Than The Meds Side Effects

    ok last 11 years i have been having seizures.i am 43. i started with a Grand Mal up in my bedroom, i went to hospital and they put it down as a one off. But 1 month later i had another Grand Mal seizure. they said at the age of 32 i had got Epilepsy. so my seizures started...
    defoekeane defoekeane 36-40, M Sep 27, 2013

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    New Diagnosis

    So, I got a diagnosis for my seizures yesterday at the hospital. It is neurological, but they don't know what is causing it. They put me on a seizure medication called kappra. It helps with the convulsions, but doesn't stop the seizures completely. It only makes the seizures less...
    Cutie2013 Cutie2013 18-21, F 3 Responses Sep 9, 2013

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    Question?

    i've had seizures for 12 years. just partial seizures on one side. It has greatly effected my life even tho i try not to let it. i was just wondering if seizures could be cause by stress or depression? or if any of you have more seizures when your stressed? it seems like this...
    nevrenoughsleep nevrenoughsleep 18-21 1 Response Sep 4, 2008

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    I Have Seizures

    I was diagnosed with Partial Seizures when I was in my early 20's my seizures occur when I have my menstrual cycle before, during and after. My seizures also occur when I have stress and other given times with out any reason. I am taking Tegretol ever since and was put on...
    Selena1994 Selena1994 41-45, F 1 Response Nov 8, 2012

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    I Hate My Seizures

    10 long years now, my brain has been in a mess. I have 3-4 seizures a month. My Neurologist gives me medication for epilepsy, i take Phenytoin and Phenobarbital, but they cant stop the seizures. i have had EEGS , i am awaiting results of my Lumbur puncture. I had my first fit in...
    defoekeane defoekeane 36-40, M 1 Response Sep 24, 2013

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    Buckley4U Buckley4U 36-40, F Mar 10

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    It's Been a While

    Had them once a year every year from ages 0-6, and then i had two more recently. They don't know what causes them but they do know they are harmless. I have experienced things many people would never experience and I have gotten a point of view of life that no one else has so in...
    ellensmiles ellensmiles 16-17, F 1 Response Jul 16, 2009

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    First Time...

    Feb 20th -08....   Did not like, and wish to cancel my subscription kthx.   .
    Vox Vox 26-30, F Mar 30, 2008

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    I'm on herbal adrenal medicine

    which is helping with some symptoms that may or may not be related. But in any case, it is starting to bring down the abdominal swelling that made me look 5 months pregnant for the last year or so. I can now fit into a skirt I haven't been able to wear for a while.
    Buckley4U Buckley4U 36-40, F Mar 7

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    I'm Losing My Mind

    I'm 43 and 19 months ago I had began having severe seizures that were uninterrupted. I was hospitalized for 4 1/2 weeks of which I remember nothing. After I was released I was told that at one point, I was having seizures at the rate of one per minute and my parents were told...
    Imabuff Imabuff 41-45, F 2 Responses Nov 1, 2013

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    It started when I was a few months old.

    My family was camping in the wilds, and I got overheated and had severe seizures continuously for a whole day. My family managed to get to a farmhouse where they phoned a doctor friend of theirs, who told them to put me in a bathtub full of ice, so they did. For my whole life...
    Buckley4U Buckley4U 36-40, F 4 Responses Feb 12

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    Two Grand Mals That I'm Sure Of; Dizziness, Tongue-biting, Bed-wetting

           I had at least two grand mal seizures in recent years. A grand mal seizure is characterized by physical convulsions, and may cause: loss of bladder control, biting of one's tongue, drooling.  I have had those symptoms.  A person having a seizure is unconscious...
    MDenise MDenise 31-35, F 1 Response Jan 14, 2012

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    I Live Healthy And Have Seizures

    I developed and maintain a healthy lifestyle. I exercise, have a vegetarian diet, do not smoke, and rarely drink along with never going overboard. I look and feel good as far as health is concerned. As is obviously known to all who read this, I also have seizures. They...
    asert12345678 asert12345678 31-35, M 1 Response Apr 2, 2012

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    I Hate Having Them

    I hate having seizures, especially in large group scenes, I feel so embarrassed and I feel that I have caused a major scene. I even apologise for having them and say I am sorry for causing a scene. It really gets to me and sometimes I am so nervous about looking people in the eye...
    hhue hhue 26-30, F 7 Responses Sep 16, 2012

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    Can Seizues Damage Your Brain?

    I've been having seizures for many years now. I'm not sure but I think it's doing something to my brain. For reason I think and react really slowly and in alot of pictures my eyes seem to look dull, like I'm half sleep. Also I see auras and stars whenever I have seizures...
    OceanUndertow OceanUndertow 22-25, F 2 Responses Feb 27, 2012

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    Epilepsy In a Temporal Lobe

    This morning, I had a seizure. They are petit-mal seizures and I am scared of them. I feel that my personality changes, as if I have multiple personality disorder. My parents told me that I blacked out this morning. With my novel (that I am currently reading) on the table, I had...
    SisterGoldenHair SisterGoldenHair 22-25, F 2 Responses Aug 26, 2008

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    Yet another posting in this category.

    .. I really appreciate everyone who is kind and helpful or chatty on these topics and others. It's so nice to be able to connect with people on the basis of shared experience! Being human is not so terribly bad when we have one another. (Yes God too, but I wanted to make a...
    Buckley4U Buckley4U 36-40, F Mar 10

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    They Are Real

    I have been having seizures since I was 14 years old. People thought that I faked them when I was in school. I hated school for that reason. I would lose all sense of time and wouldn't know what was going on. I would become violent telling everyone I did not know them. It was...
    Cutie2013 Cutie2013 18-21, F Feb 28, 2013

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    Don't Know

    I had another seizure at the gym today on the treadmill and I feel that they don't want me there (been feeling that way for some time). They said that they will no longer let me be on the treadmill. I am thinking about leaving that one and going to another. 
    asert12345678 asert12345678 31-35, M 3 Responses Jun 5, 2012

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    Seizures

    I had my first seizure when I was 13. I woke up to my mom telling me everything was okay and ambulance asking if I knew what happened. The only thing I could do was stare. The doctors didn't put me on any meds or anything and I was fine til I had one a year later. They put me on...
    Ace43262 Ace43262 18-21, F 1 Response Jul 29, 2013

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    Having Epilepsy Makes Me Feel Like An Outcast

    It all started when i was in 7th grade. I was constantly dizzy and i kept having really bad headaches on the right side of my head. So my mom took me to the doctor in Omaha,NE which is near where we live and they did an MRI and we found out that i had an arachnoid cyst on the...
    amk51789 amk51789 18-21, F 3 Responses Jul 26, 2008

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    Seizure Disorder

    Starting in 7th grade they started they have done tests and weird brain scans and haven't figured out what is causing them the first one I had the doctor told me it was of the ADD medication I was taking I was taken off the adderall the next seizure I had was almost 2 years later...
    Mattdudeman Mattdudeman 18-21, M Jan 5, 2012

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    imyoitgirlashlee imyoitgirlashlee 13-15, F 2 Responses Jan 29

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    Seizure Disorder... Coming Out

    Well, long story short... I was told in September 2011 that I have a seizure disorder. It was August 29th that I had another 'episode' that landed me in ER. I'm so grateful to the Dr. who FINALLY took the time to talk to me and ask me questions. He called in a neurologist who...
    Freedom901 Freedom901 36-40, F 1 Response Jan 23, 2012

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    First Time Non-epileptic Seizure Lastnight...uhuhuh

    So Wow! As some of u who may know, or any of those who've read my headline in the recent past, i have been suffering from a horrible toothache, which as time has passed, has gone from getting better to worse! Unfortunately, I have not been able to go back and visit the dentist...
    RetroRaven RetroRaven 26-30, F 1 Response Nov 19, 2008

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    My Dad

    I don't but my dad does. I remember the first time my dad had a seizure I was pretty young so it freaked me out I didn't know what to do. Of course now I know what to do in this situation. My dad had to take an early retirement from the security company he use to work for because...
    mak314 mak314 26-30, F Nov 25, 2007

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    I Have Seizures

    At the age of eight, I had my first seizure. It was during a trip to a carnival. After third grade ended, I was feeling good about myself. My parents and I took a trip to a carnival in Downtown Houston. The day was like any other day. I dressed myself in my favorite shorts and...
    dave0903 dave0903 18-21, M 1 Response Jan 16, 2010

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    Update; I Have Had Several Seizures

    I have grand mal seizures, the ones involving convulsions. They look very bad and may indicate something terribly wrong at the moment. I had the first one that I knew about, in April 2008, when I was 29.  In the morning when I was still in bed.  My dad witnessed it.  He heard...
    MDenise MDenise 31-35, F 1 Response Aug 1, 2013

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    Paroxysmal Nonepileptic Events

    I have migraines and became aware that they could cause seizure like events when a friend started having them.  I went over my symptoms with a doctor and found out that it was in my chart that I had them as well but they are so common that he didn't think it was important to...
    alisheaskylar alisheaskylar 26-30, F 2 Responses Aug 12, 2008

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    January 24, 2007...

    ... was the day I passed out in Spanish class. I had been feeling ill. Light headed and depressed, I had started seeing auras and I had this intense feeling that if I fell asleep, I would feel better. One hour later, I woke up and I was sitting on the floor, confused at what had...
    LoraliSophia LoraliSophia F Jan 14, 2008

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    Seizure

    New Post | My Blog Seizure I had a seizure on Dec 28 and it feels like im slowly being dragged behind the bushes to be beaten . On the 28th I lost my job because I was a driver and soon there after things were looking up unemployment took over half a month to kick...
    Loudenslager Loudenslager 26-30, M Feb 23, 2010

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    Yes..i Have Absence Seizures

    I am 47 yrs old...sure I been ahving absence seizure anad they ahev gone unnoticed..I ahve PKu ...phenylketonuria..nad thats what causes them..If anyone wanta to tlak..Im here...
    scooter63 scooter63 46-50, F 1 Response Jun 28, 2011

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    I had a bad seizure last night.

    Don't remember anything except I felt like the whole house was rocking like a boat and my partner helped me to bed and I laid down. I couldn't talk and started banging my head on the wall hard and my partner held my head so I didn't hurt myself any further. Paramedics came and...
    Viciouspistols Viciouspistols 22-25, F 2 Responses Mar 26

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    New @ This...

    I just got out of the hospital after my first time experience with seizures. They have no idea why they suddenly came about, it's anyones best guess. The first guess is head trauma I experienced about 5 years ago, the second guess is my body just has a bad electrical system so to...
    HalfMyHeart HalfMyHeart 19-21, F 6 Responses Oct 18, 2007

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    Related Experiences

    Hello I'm Red. I have Tonic Clonic and Absent seizures. It is scary to have seizures and it hurts. I shake and shake and groan and my eyes turn completely white. I try to close my...
    RedtheEmerald RedtheEmerald 13-15, F 4 Responses Apr 5

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    http://www.bcepilepsy.com/files/Information_Sheets/All_About_Partial_Seizures.pdf This is a pretty comprehensive description, along with suggestions on how to handle situations...
    Buckley4U Buckley4U 36-40, F 1 Response Apr 7

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    No official diagnosis yet but it most likely CD. I have had migraines for 3 years. About 3 months ago I 'passed out.' I really don't remember myself. Here is what I do remember...
    Ajokd Ajokd 36-40, F Mar 22

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    I don't actually have this as far as I know. But I definitely do have seizures, still trying to get a diagnosis, and I want to watch this group and find out what I can about PNES...
    Buckley4U Buckley4U 36-40, F 1 Response Apr 10

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    Misguided deliverance attempts. When the doctors refused to help me, I allowed other people to try - with disastrous results. In some cases I didn't actually allow it, but rather...
    Buckley4U Buckley4U 36-40, F 3 Responses Apr 7

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    This is exactly what happens to me and gets mis-labelled as 'anxiety' or whatever. http://www.bcepilepsy.com/files/Information_Sheets/All_About_Partial_Seizures.pdf All About...
    Buckley4U Buckley4U 36-40, F 1 Response Apr 7

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    27F just diagnosed, it all started with seizures 3 months ago, I was about to go to bed and my hands went tingly, then my arms, and my breathing become shallow, I had terrible...
    brandedangel brandedangel 26-30, F 2 Responses Mar 21

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    I've had epilepsy since I was 10. When it started it was only in my sleep and we thought I was just moving around a lot but I would frequently end up on the floor. Once I was told...
    alittlemoresonic42 alittlemoresonic42 18-21, F 1 Response 4 days ago

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    This morning I saw my mother having a seizure. She has had walking seizures before in the middle of the night, where basically she just gets the heebie jeebies and walks around all...
    Birdspiritgirl Birdspiritgirl 13-15, F Mar 19

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    Hey everyone my name is Aneesah and I have just been diagnosed with psychosis and mild depression.Just a little history :so last year this time i tried to commit suicide i...
    Larutan Larutan 18-21, F 1 Response 6 days ago

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    Hi! My name is Natasha. I'm new to this so bear with me. I used to think that God didn't care about me. I hated Him and even started to doubt his existed. I didn't believe in Him...
    LoveNeverFails21 LoveNeverFails21 18-21, F 2 Responses 3 days ago

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    I've had it since I was 8. Its familial. Typically its been VERY easy to control with medicine. I had a string of seizures a few months ago but its whatever. I've always thought of...
    ChloeCat19 ChloeCat19 18-21, F 1 Response 2 days ago

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    I'm 31 years old and have been battling back problems for the last 15 years. It used to come on just once in awhile, a little pain in the lower back, some tingling down my right...
    jeneral3015 jeneral3015 31-35, F 3 hrs ago

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    To be completely honest, I denied it for some time. I haven't actually done any kind of official test, but I have a nurse practitioner and a number of knowledgeable individuals who...
    Kavka Kavka 18-21, M 7 hrs ago

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    I'm 16 years old.There are 10 days till my birthday.I've been depressed for good 3 years.My whole puberty was a great mess.One year and two months ago,I got bulimic.Before that,I...
    figliadellatempesta figliadellatempesta 13-15, F 25 mins ago

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    *Walks up to counter* “Hi, I would like to order a man, athletic build, cute face- maybe with a little scuff on it;), very kind, charming, and intelligent; and that will be all...
    MW1321 MW1321 18-21, M 1 Response 8 hrs ago

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    HI , Im 24 years old , im a man . the thing about me is i am not quite sure if i have cauda Equina , i didnt have an accident or any truama , my pain first started at my right foot...
    Atrilundy Atrilundy 22-25, M 1 Response 3 hrs ago

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    If I had friends! 😫😭 I mean I have friends, socially, but nobody asks to hang out with me or asks me to join them on something, unless its my sister and her friends. Maybe...
    ashalew ashalew 22-25, F 5 hrs ago

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    I suffer awful anxiety attacks since 10 years every day. I also have social anxiety and have had panic attacks outside the house. I was on meds 10 years ago as it all started...
    angel8i angel8i 31-35, F 1 Response 5 hrs ago