I Have Sickle Cell Anemia

Personal Stories, Advice, and Support 43 People

    Another Chapther

    Hi Everyone I have a long story about my journey with sickle cell, but will give you my most resent chapters. I was diagnosed with sickle cell anemia at 6 mos. old. I will be 42 in September. I’m married with two kids, son 19 and daughter 10 yrs old. I was born and raised in...
    HUGSLife HUGSLife
    41-45, M
    Aug 7, 2012

    I have sickle cell anemia I'm 24 years young

    I've had a left hip replacement a left shoulder replacement I need a right hip replacement soon this disease has literally put my life at a stand still like how can I work a normal job? Truth is I can't sooo being the bright positive young girl that I am I chose a different path...
    LoveMiranda LoveMiranda
    26-30, F
    3 Responses Feb 14, 2014

    My wife called me yesterday with some

    dissoppinting news. She told me our little 2 month princess hospital screenings came back positive for sickle cell. I was immediately crushed and devastated! I have been emotional every since I heard the news. I never cry around my wife because she will be a nervous wreck, I...
    breakingnews30 breakingnews30
    31-35, M
    4 Responses Feb 15, 2014

    Moving Forward

    I was diagnosed with Sickle Cell Anemia when I was 5 months old. I am currently 31 years old and actively pursuing my Bachelor's in English. I survive on SSI payments and Medicaid. This is not the way I want to continue to live. I want to work and make a life for myself but I...
    DeanReeve DeanReeve
    31-35, M
    1 Response Apr 8, 2013

    Hello Everyone

    Hello my name is niecey and i have sickle cell anemia i've beenh living with the disease all my life and i've been picked on and a people have made a markery Out of me. But i'm still standing strong i love my family and friends i have a good support system i'm really believe that...
    Youngflossie21 Youngflossie21
    22-25, F
    Aug 7, 2013

    I Have Sickle Cell Anemia Disease!!!

    Tabboo Tabboo
    31-35, F
    4 Responses Feb 5, 2010

    I have sickle cell disease

    and it is very annoying
    Alisha4690 Alisha4690
    16-17, F
    2 Responses Oct 13, 2014

    No matter how many times I tried to forget my

    stomachache it seems that the pain cannot forget me.. AHH!!
    DrHope DrHope
    22-25, F
    Apr 11, 2014

    I was diagnosed when I was six months old with

    type sd (I know its rare). Currently I am sixteen and have been on hydroxyurea since i was 10. That has helped me a lot and when I was younger I was being hospitalized about twice a year with crisises and infections. Once I even had meningitis in Denmark with doctors who didn't...
    sarahjoergensen sarahjoergensen
    18-21, F
    2 Responses Jan 20, 2015

    I had osteomyelitis (bone infection) due to a

    salmonella septicaemia when I was 11 years old, it almost drove me out of life, but fortunately my body recovered although I had to wear a wheelchair for almost 3years and do a lot of physiotherapy. Now at 25yo, I still struggle with the sequels of the osteomyelitis, with a last...
    deleted deleted
    May 26, 2015

    Do any of you guys sometimes suffer from an

    acute pain in the ribs and a feeling that you cannot breathe and then it subsides ? I've been having this kind of crisis since I was a child and no one could diagnose what was actually happening...
    deleted deleted
    1 Response Jun 3, 2015

    hi my name is sheila

    and i have sickel cell im so angry because i have sickel cell the older i get the worst it gets and i dont know what to do im always in the hospital always in pain and it never stops but i just have to keep strong and hang im there
    west822 west822
    46-50, F
    3 Responses Jan 2, 2014

    The doctors asked my mother

    when she was pregnant with me did she want to terminate the pregnancy because I would be born with sickle cell anemia. I hate being in pain and sometimes I don't feel normal. Because of my sickle cell I have also been diagnosed with scoliosis, curving of the spine and together...
    StellaDonner StellaDonner
    22-25, F
    2 Responses Apr 7, 2015

    Hi, I'm a 9th grader

    who needs help with a school project. Could anyone here who has experienced sickle cell please help me with a few questions? I'd really appreciate it a lot. 1. When were you diagnosed with sickle cell? 2 How did sickle cell affect your daily life? 3 What kind of medicine did...
    pleasehelpme73 pleasehelpme73
    41-45, M
    Apr 10, 2016

    Hi I am Angela from Kenya.

    Am 25 years old and was born with sickle cell anemia(full blown).Am managing it but I won't lie,it has not been an easy road.Currently am told that am at a critical age where my crisis attacks will be more than normal,that is true .But well that sounds like everyday in my life...
    ElizabethKere ElizabethKere
    26-30, F
    2 Responses Dec 4, 2014

    My name is spencer I'm 20 years old

    and I have sickle cell anemia. It's something I've come to terms with. I have my days when I feel fine, other days I'm in so much pain that I can't even move. My headaches are so severe that I feel blind. Hopefully I can find support from people.
    angelface121 angelface121
    22-25, F
    3 Responses Sep 14, 2014

    For the past week Ive been in the hospital 3

    times in sever pain. Sickle cell is no joke. The pain is unbelievable and unbearable.
    StellaDonner StellaDonner
    22-25, F
    1 Response Apr 15, 2015

    You Live And You Learn....

    ...Well my story is my life! I wish this wasnt true but I feel as if I live one big story. Where to begin? I was diagnosed at nine months old, I was in and out of the hospital three to four weeks out of a month, year after year. It was hard for my mother to go back and...
    Lastwords Lastwords
    26-30, F
    3 Responses Jan 19, 2010

    Standing Out

    Boy oh boy is it a pain to live with sickle cell. Mine is chronic & I'm 16 yrs of age. I've been through alot already. I've attended school every single day this year but thats because I push myself to. Every now and then it has cost me quality of my grades because I continuously...
    RosaRod666 RosaRod666
    18-21, F
    4 Responses Mar 13, 2012
    DrHope DrHope
    22-25, F
    May 7, 2014
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