I Have Sjogren's Syndrome


Read true personal stories, chat & get advice, support and help from a group of 49 people who all say I Have Sjogren's Syndrome

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21 Stories

Hi Fellow Sjoggies!

I'm a fifty-something woman living in the Pacific Northwest. Seven years ago my life changed dramatically. I went from being an active...

The Invisible, Silent Disease

I have an invisible, silent disease.  I never know what to expect from day to day.  I am learning to make the best of the good days and...

Another Little Confirmation

I'm Ava and 48. Had a lip biopsy two weeks ago and it showed sialadensis. Not sure of its spelling. I've had dry eyes and dry throat for...

Eye Spasms And Sjogren's

Hi to all, i was wondering if anyone else has been experiencing eye spasms? My left ey will not quit twitching, its been months now, and my...

I Have Sjogrens, Lost All Hope

I'm 17 and after 4 years of being ill I was finally diagnosed this year, certain medicines didn't work. I am just completely exhausted that...

Sjogren's Syndrome

It took me a long time to get that diagnosis.  And while it's not the best diagnosis, at least now I know.  While I was dealing...

Living With Sjogrens

When I was around 20 yres old I woke up one morning and had my legs covered from feet to the thigh with a purple large splothcy mess it...
Members Sharing the Experience "I Have Sjogren's Syndrome"
49 Members
This Experience at a Glance
Story highlights
These snippets show some of the most common themes mentioned in this experience's stories:
  • " The goal is to build a large, public access database of unbiased, anecdotal data about Sjogren's syndrome treatments..."
  • "Being a wardrobe stylist was my dream..."
  • "Â Rateadrug is an independent data gathering and information website that does not accept funding or advertisement from drug companies..."
And the Story Awards Go to...
Statistics:

24% of people who have this experience are in their fifties, 22% are in their forties, and 18% are in their thirties. 90% of people who have this experience are women.

You may cite any I Have Sjogren's Syndrome statistics, provided you link back to this page
Check out this group's What Is It Like To Have Sjogrens Syndrome guide, where people with this experience share their tips and hints.

Here are a few tips...
  • for me it is good days verses bad days, when you are having a bad day (flare) try to listen to you body and rest. I feel alone sometimes, no one really can relate to what we go through, or fatham the turmoil that our bodies put us through. Prayer helps!
Members said this page is also related to: Do You Have Sjogren's Syndrome? , What is it like to Have Sjogren's Syndrome? ,Have Sjogren's Syndrome personal stories, Have Sjogren's Syndrome personal experiences

Other experience groups that have been combined into this group include: None yet.
This is an experience group where everyone says: I Have Sjogren's Syndrome. It features support, personal stories and experiences, advice, chat, talk, forums, videos, pictures and resources from real people, just like you. It's free to join, and the people in this group would love to meet you! If you've had this experience, or plan on having it in the future, simply click 'Me Too' or 'Plan To' and add it to your experiences. As you add more experiences, we're better able to recommend interesting people to you that share many of your personal experiences.

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