I Have Sly Syndrome

A Sly Syndrome anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Sly Syndrome. You're not alone.

    My Son Have Sly Syndrom

    My son Peter is 13 years old he was diagnosis with sly syndrome at the age of 6, as a parent is very confusing to see my son as a normal little boy getting older fast and going through a lots of changes , at the age of 11 Peter stop walking . Now there is lots of things I do...
    pj2000 pj2000
    Jul 21, 2013
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