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I Have Small Fiber Peripheral Neuropathy

Group for support for individuals afflicted with this painful degenerative nerve disorder. Come find friends, advice, acceptance, and understanding. 189 People

    It Is Written, He Shall Never Give Us More Than We Can Bear (1Corinthians 10:13)

    Hi to all Thanks for a place to interact with people who know what..."It is like"! What a long strange trip its been for all of us with sfpn. I have lived with multiple health problems since 1995. In 2007 I woke to painful cramped arms and hands and within 2 weeks my feet and...
    ezrest ezrest 56-60, M 2 Responses Sep 10, 2011

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    A Challenge To Get Through The Day

    I am 50 years old and was first diagnosed with Peripheral Neuropathy. 5 years ago I had a burning sensation in my right foot, but thought nothing of it. The pain increased and when both feet felt like I was walking on shards of glass I went to see my primary care doctor. He sent...
    Love62 Love62 46-50 1 Response Aug 31, 2012

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    Update On Taking Neuropathy Support Formula Supplement

    I last wrote this past weekend 12/16/12. I had stopped taking the Dr.'s prescribed Gabapentin 300mg x 2 pills 4x's per/day because I was gaining no pain relief and only felt "zoned out." The pain in my toes and feet were at a 15 on a pain scale of 1-10 and also suffer from...
    alatres alatres 51-55, M 5 Responses Dec 18, 2012

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    I have just been diagnosed with small fiber

    sensory poly neuropathy, after 14 years of trying to find out what is wrong. Throughout all of the different wrong diagnosis I have already tried all of the medications available to treat this. Currently I am taking a combination of Cymbalta and noretripylene with limited...
    koendd koendd 56-60, F 2 Responses May 7, 2014

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    An Answer to My Pain

    I saw a neuromuscular specialist.  He diagnosed me with small fiber peripheral neuropathy with autonomic dysfunction.  I was previously diagnosed with fibromyalgia and although I'm happy I have a diagnosis that I can understand better, it scares me what could happen.
    Zurie Zurie 26-30, F 4 Responses Sep 22, 2008

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    Diabetic Neuropathy

    im  25 and have sensroy neuropathy in the legs, i am wheelchair bound because of pain and am wondering if there is anyone else out there that has been using a wheelchair because the pain is so severe that u cant walk?
    combatfan1985 combatfan1985 22-25 8 Responses Nov 23, 2010

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    Neuropathy. 25 Year Old Male.

    im 25. male. im scared because since 9-3-12 i started having neuropathy symptoms that have only gotten worse and continue to get worse. started as mild tingling. then turned into electrical shock feelings in small spots of the skin all over my body at random times throughout the...
    Mustang0227 Mustang0227 22-25, M 2 Responses Oct 24, 2012

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    I'm still trying to figure out

    if I indeed have Small Fiber Peripheral Neuropathy. I'm a 52 year old male that is currently experiencing severe burning feet with no real explanation. It started about 5 months ago. I have been to my doctor who has ordered blood work and found my B12 to be a little low but not...
    allanhillier allanhillier 51-55, M 1 Response Sep 26, 2014

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    If I Have A Disability, Will My Children Too

    A week after being diagnosed with Peripheral Neuropathy an incurable nerve disorder, it's got me thinking. I don't know how I contained this disease so how can I protect my kids. Or is this a lossing cause, is it written in their faith to be burden with this agony too. So of...
    Purple30 Purple30 26-30 5 Responses Nov 29, 2010

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    I'm 37 years old and roughly 5 years ago I

    started to notice mild cramping in my toes at night. Slowly this cramping turned into pins and needles and it startred to creep from my toes into my foot. Fast forward 5 years and now I'm in pain every waking hour. I forget what its like to not have pain in my feet. I cant sleep...
    Fenuch Fenuch 36-40, M Jan 13

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    And So The Clouds Clear...

    If you haven't please read my "The greatest challenge I ever had" story for full background. Short and sweet I have neuropathy. I have had it now, I guess almost a full year. In my last story, I tell about the tests and the emotions. But for those of you going through this right...
    kgorgei kgorgei 36-40, F 2 Responses Aug 3, 2012

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    I'm 37 years old and roughly 5 years ago I

    started to notice mild cramping in my toes at night. Slowly this cramping turned into pins and needles and it startred to creep from my toes into my foot. Fast forward 5 years and now I'm in pain every waking hour. I forget what its like to not have pain in my feet. I cant sleep...
    Fenuch Fenuch 36-40, M Jan 13

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    Can Someone Please Help!!!!!

    Hi there,  My name is Julie, and I am from the US,I have been fighting with diabetes for 3 years now.I have been suffering with my feet mostly my right foot for a little over a year now and seems like it has been getting worse as time goes by. It's starting to go in the back of...
    julienaquin julienaquin 51-55 2 Responses Nov 8, 2011

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    Trial And Error.

    I have probable small fiber neuropathy. I found this site while I was researching possible testing and diagnostic tools. Is anyone here in Australia? I've had autonomic studies done at RPA with small fiber neuropathy detected due to not sweating on my lower limbs. I have been...
    jimmybro jimmybro 26-30, F Oct 2, 2013

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    Long Road

    Mine started 4 years ago when I was thrown from my horse, suffered a severe concussion. Within 4 weeks my feet were feeling funny, then things change bi- latterly as usual moved to my calves, then my hands, my forearms, my shoulders then the band of nerves that wraps around from...
    eubanksdee eubanksdee 51-55 Jul 4, 2013

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    Sfn And Acupuncture

    Today I had my first acupuncture treatment. I am also on a regime of chinese herbs. Is anyone doing similar to get rid of this problem?
    petermal petermal 61-65 Dec 17, 2012

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    I'm 37 years old and roughly 5 years ago I

    started to notice mild cramping in my toes at night. Slowly this cramping turned into pins and needles and it startred to creep from my toes into my foot. Fast forward 5 years and now I'm in pain every waking hour. I forget what its like to not have pain in my feet. I cant sleep...
    Fenuch Fenuch 36-40, M 3 Responses Jan 13

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    I was diagnosed in January 2015

    but have been dealing with problems since August 2014. It started with terrible pain in my legs...so bad I left work and went to the doctor. After 3 MRIs, countless blood tests, 2 nerve tests, 2 neurologists and skin biopsies I found out there is damage to my small fiber nerves...
    tmd1982 tmd1982 31-35, F 1 Response Apr 10

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    Is There Hope?

    My symptoms started 10 years ago. It started in my feet with tingling and numbness. I went to several specialists including Mayo Clinic in Rochester. They diagnosed me with small fiber neuropathy. The specialist at Mayo said it would be gone in 1 year. As I said, that was...
    cfro cfro 61-65, F 2 Responses Aug 23, 2013

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    I have been not been officially diagnosed with

    small fiber neuropathy and am waiting for more blood tests to come back and to get a skin biopsy. I went to USF Health in florida after 6 months of suffering with this awful condition. So far all tests have been normal. I went through 6 MRI's, ultrasounds, CT's, and extensive...
    Melissa1959 Melissa1959 56-60 3 Responses Apr 5

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    I Was Diagnosed With Small Fiber Neuropathy 3 Years Ago

    Hi there,I have been living with very severe Small Fiber Neuropathy for about three years now. I am on Gabapentin 1200 mg 3 times daily the maximum daily allowed. I started out with the minimum and gradually increased throughout the years, I also take Tramacet with the Gabapentin...
    melbeauty melbeauty 31-35, F 7 Responses Jan 20, 2012

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    My Story So Far With SFPN

    Hello,I am pleased to have found this group.My story began in 2012 when I noticed numbness and tingling on the side of my left foot.This spread to my big toe and then to my right foot.From there it has begun in my hands.I am currently undergoing tests via my Neurologist and am on...
    bearmack bearmack 51-55, M 1 Response Oct 14, 2013

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    Going Slowly Crazy

    Hi, I'm Danie from Melbourne Australia. If you ask one neurologist, I have SFPN. If you ask another, I don't. I'm 35 years old and have been dealing with the unknown for over 10 years and the last 18 months I have been off work and on crutches. I can't seem to find a lot of...
    DanieTreg DanieTreg 36-40, F 4 Responses Mar 28, 2013

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    I Have Found Something Which Seems To Really Help My Idiopathic Small Fiber Neuropathy

    Neuropathic pain background: I had been diagnosed with fibromyalgia 30 years ago. I developed carpal tunnel in the 1990's. In 2005 I had cataract surgery with complications that turned into chronic "sympathetically mediated nerve pain" which caused me pain whenever I used my eyes...
    KathleenJ KathleenJ 61-65, F 3 Responses Aug 17, 2013

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    I'm 37 years old and roughly 5 years ago I

    started to notice mild cramping in my toes at night. Slowly this cramping turned into pins and needles and it startred to creep from my toes into my foot. Fast forward 5 years and now I'm in pain every waking hour. I forget what its like to not have pain in my feet. I cant sleep...
    Fenuch Fenuch 36-40, M 1 Response Jan 13

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    I Was Diagnosed With Small Fiber Neuropathy

    Hello everyone, Iam on here to share my health problems and to find some kind of support and understanding of the condition. Iam a lady of 31 years old, unemployed since 2 years ago but being compelled to look for work.I was diagnosed recently but i have had symptoms since more...
    vanchrist09 vanchrist09 31-35, F 3 Responses Aug 4, 2012

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    My Story

    My story started more than 2 yrs ago with tingling on hands, feet and face. All the tests including spinal tap came negative. Then started pain on right wrist and then next day, on the left wrist and the next day both legs. Started gabapentin in smaller doses, increasing the...
    seemr seemr 31-35, F 1 Response Feb 1, 2013

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    Update On Treatment: Alpha Lipoic Acid

    Sorry that I haven't posted for awhile. Since my last post I have undergone approximately 40 K- Laser treatments. I have feeling bilaterally in the two smaller toes (4th and 5th pinky toes) of my feet. Bottom of my feet from the arch back to heel is now normal without pain or...
    alatres alatres 51-55, M 3 Responses Apr 30, 2013

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    I'm 37 years old and roughly 5 years ago I

    started to notice mild cramping in my toes at night. Slowly this cramping turned into pins and needles and it startred to creep from my toes into my foot. Fast forward 5 years and now I'm in pain every waking hour. I forget what its like to not have pain in my feet. I cant sleep...
    Fenuch Fenuch 36-40, M Jan 13

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    I was diagnosed in September 2015.

    over the years it's been firbromyalgia, restless legs, neck and back problems. This year was given a bisopy. I was positive for small fiber neuropathy. I have hypothroid. which is in check with meds, prediabetic according to A1c and triglyceride Are in moderate high range...
    jmjkpl jmjkpl 56-60, M Mar 28

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    Is Sfn A Life Sentence....

    I HAD AN ALLERGIC REACTION TO BACTRIM TWO MONTHS AGO AND FROM WHAT DOCTORS CAN TELL SMALL FIBER NEUROPATHY WAS HOW MY BODY REACTED. THE NEUROLOGIST SEEMS CONFIDENT THAT IT WILL GO AWAY IN @ 6 MONTHS. UNFORTUNATELY, I CAN FIND NO POSITIVE INFORMATION THAT TELLS ME THIS. IRONICALLY...
    IZZY76 IZZY76 56-60, F 3 Responses Apr 17, 2012

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    I was just diagnosed with SFPN.

    I am 67 yrs old and very active. This started years ago when I had a spinal tap go very badly and my left side felt as if I had be electrocuted. It led to a deep depression for me. I had the pins and needles in my feet, legs, and arms. After a long time on amitriptaline and...
    hopeudance hopeudance 66-70, F 1 Response Sep 7, 2014

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    Small Fiber Peripheral Polyneuropathy

    It has been an awful experience. I have turned the wrong way one day and had a pinched nerve on L4/L5. After a year of non-stop pain, a couple of Cortisone shots and a physical therapy I had an L4/L5 discectomy. It took about a year and a half for the nerve to heal, but it did...
    lichthardtl lichthardtl 51-55, F 2 Responses Jul 18, 2013

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    The Story Of Me

    I was diagnosed with small fiber peripheral neuropathy about 2 years ago, but I have been suffering with it for nearly 10 years. After seeing every kind of doctor you can imagine, and being told I had everything except what I had (including one doctor telling me I had worms in my...
    pippinsb pippinsb 36-40, F 3 Responses May 26, 2013

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    I'm 47 and just got diagnosed

    after 2 years of having every test you can imagine except the skin punch test . I am having that in about 2 weeks ! I am wondering what kind of meds work for people? I also have migraine and take meds for that and a neck injury
    katiofvabeach katiofvabeach 46-50, F 1 Response Mar 22

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    I have SFN a 'definitive' diagnosis of SFN

    after several years. Obtained through Thermal Threshold Testing. A simple test that I had done privately in London. It is useful having a diagnosis but as yet no treatment other than Pregablin. To mange the pain I have learnt 'pain management techniques' via a psychologist and...
    dereksi dereksi 61-65, M 1 Response Jan 29

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    Peripheral Neuropathy

    Thankyou for all those people contributing to this site .I too have felt alone with this disease when diagnosed with it , especially as they cannot find a cause for it, despite many tests plus 3 MRI's . I have refused to take medications up to this point if they are just to...
    Takeoverbid Takeoverbid 66-70, F Nov 21, 2013

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    I Have Just Been Diagnosed, But Why Is It Happening?!!! Please Share Tests You Have Had Done..

    I will post my story later, but my main question to everyone is: How did you get to the root of the problem for what is causing your SFN??!!! I hate the neurologist I finally saw, who ordered my nerve biopsy, for saying, "Sometimes we just don't know what the cause is, I am just...
    notlivinginparadise notlivinginparadise 51-55 11 Responses Oct 4, 2012

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    I Have Has SNN For More Than 40 Years.

    I can swear it is tough but you can have a quality of life if you really are willing to seek out ways of coping with wthe degeneration of you nervious system. I'm doing less and less, but decited to enjoy it more and more. I never try to do more than I can physically do no matter...
    beleichtamer beleichtamer 61-65, F 3 Responses Oct 26, 2013

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    Hello Members

    I am Zurie the creator of this group and I am very astonished to see how we've grown!  I would like to add to the suggestions for pain management post so that any of us or others checking out our page can look there as well so if you have any suggestions please add them.  I am...
    Zurie Zurie 26-30, F 3 Responses Dec 7, 2011

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    It Is Not In My Head!

    .I am a 39 year old mom of 3 and happily married. Last March I had an car accident. After about 3 months I started to exhibit a variety of symptoms.  I was having itching feet, burning sensations in my feet and legs. I also was having this uncontrolable spasms. They looked like...
    msphun msphun 36-40, F 6 Responses Mar 8, 2011

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    My Neuropathy

    I have neuropathy,idiopathic, I have had it for 7yrs and 2 of those yrs I have had almost no symptoms till 3 wks ago. I have been getting pins and needles and burning in feet and hands,so Im worried that it might get worse. when I first got neuropathy the pain was so severe that...
    jacikyra123 jacikyra123 51-55, F 1 Response Aug 29, 2013

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    2 Years In

    My pain began 2 years ago in the balls of my feet (like walking on hard hot rocks), and has spread to the whole soles of both feet and especially all toes. I describe the pain as burning ice. I started with podiatrists, rheumatologists, vascular, orthopedic, and neurologists...
    suz9753 suz9753 61-65, F 2 Responses May 6, 2013

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    Small Fiber Neuropathy Along With A Couple More Things Carpel Tunnel Being One

    Hi i' ve now been living with this almost two years each day is different and harder. I am angry with this whole situation and sometimes i don't know how to feel or think. No one seems to understand what it is that I go through from day to day. Some I ask the question why me? is...
    kimbone kimbone 36-40 4 Responses Nov 7, 2010

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    Trying To Stay Positive Despite So Much Pain.

    I am 31 and have my health has slowly been getting worse since I was a teenager. I have had various symptoms and spent most of the last fifteen years going from one doctor to the next. I had a million blood test, MRI's and all the other alphabet soup type names test you can have...
    EricBC563 EricBC563 31-35, M 3 Responses Jan 6, 2013

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    Living With Small Fiber Peripheral Neuropathy

    I have been recently diagnosed with SFPN.  I've actually had symptoms for over 10 years but was previously diagnosed as simple peripheral neuropathy due to low magnesium levels.  It began in the tip of my right big toe and progressed rather slowly to include both feet...
    amraelle amraelle 51-55, F 9 Responses May 25, 2009

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