Post

I Have Small Fiber Peripheral Neuropathy

Group for support for individuals afflicted with this painful degenerative nerve disorder. Come find friends, advice, acceptance, and understanding. 164 People

    Small Fiber Peripheral Polyneuropathy

    It has been an awful experience. I have turned the wrong way one day and had a pinched nerve on L4/L5. After a year of non-stop pain, a couple of Cortisone shots and a physical therapy I had an L4/L5 discectomy. It took about a year and a half for the nerve to heal, but it did...
    lichthardtl lichthardtl 51-55, F 2 Responses Jul 18, 2013

    Your Response

    Cancel

    Trying To Stay Positive Despite So Much Pain.

    I am 31 and have my health has slowly been getting worse since I was a teenager. I have had various symptoms and spent most of the last fifteen years going from one doctor to the next. I had a million blood test, MRI's and all the other alphabet soup type names test you can have...
    EricBC563 EricBC563 31-35, M 3 Responses Jan 6, 2013

    Your Response

    Cancel

    I have small fiber peripheral neuropathy,

    I'm unable to walk balance, no feeling in my finger tips, always in pain 24 plus. When I have a flare up I could be in bed from 2 weeks to 2 months. I've been given several meds and they all screw my mind up. I'd rather have a brain and deal with the pain. Does anyone know...
    doc3242000 doc3242000 51-55, F 4 Responses Feb 12

    Your Response

    Cancel

    I Have Found Something Which Seems To Really Help My Idiopathic Small Fiber Neuropathy

    Neuropathic pain background: I had been diagnosed with fibromyalgia 30 years ago. I developed carpal tunnel in the 1990's. In 2005 I had cataract surgery with complications that turned into chronic "sympathetically mediated nerve pain" which caused me pain whenever I used my eyes...
    KathleenJ KathleenJ 61-65, F 2 Responses Aug 17, 2013

    Your Response

    Cancel

    Update On Taking Neuropathy Support Formula Supplement

    I last wrote this past weekend 12/16/12. I had stopped taking the Dr.'s prescribed Gabapentin 300mg x 2 pills 4x's per/day because I was gaining no pain relief and only felt "zoned out." The pain in my toes and feet were at a 15 on a pain scale of 1-10 and also suffer from...
    alatres alatres 51-55, M 5 Responses Dec 18, 2012

    Your Response

    Cancel

    Going Slowly Crazy

    Hi, I'm Danie from Melbourne Australia. If you ask one neurologist, I have SFPN. If you ask another, I don't. I'm 35 years old and have been dealing with the unknown for over 10 years and the last 18 months I have been off work and on crutches. I can't seem to find a lot of...
    DanieTreg DanieTreg 36-40, F 4 Responses Mar 28, 2013

    Your Response

    Cancel

    My Neuropathy

    I have neuropathy,idiopathic, I have had it for 7yrs and 2 of those yrs I have had almost no symptoms till 3 wks ago. I have been getting pins and needles and burning in feet and hands,so Im worried that it might get worse. when I first got neuropathy the pain was so severe that...
    jacikyra123 jacikyra123 51-55, F 1 Response Aug 29, 2013

    Your Response

    Cancel

    The Biggest Challenge I Ever Had

    I am 34 years old, I have been in pain every single day for the last 8 months, I was originally diagnosed with peripheral Neuropathy after a couple wrong diagnoses. My condition continues to worsen despite the 300mg of gabbapentin I was taking. My GP started giving me 500mg of...
    kgorgei kgorgei 36-40, F 5 Responses Apr 19, 2012

    Your Response

    Cancel

    Update On Treatment: Alpha Lipoic Acid

    Sorry that I haven't posted for awhile. Since my last post I have undergone approximately 40 K- Laser treatments. I have feeling bilaterally in the two smaller toes (4th and 5th pinky toes) of my feet. Bottom of my feet from the arch back to heel is now normal without pain or...
    alatres alatres 51-55, M 3 Responses Apr 30, 2013

    Your Response

    Cancel

    I Am Worried

    The Dr told me yesterday to do a skin biopsy. He said I have short nerves neuropathy. I don't feel nothing, only something in my foots. He gave me an antidepressive. He told me that this medicine will ure me . You think it so?
    Tawe Tawe 56-60, F 1 Response May 11, 2013

    Your Response

    Cancel

    Can Someone Please Help!!!!!

    Hi there,  My name is Julie, and I am from the US,I have been fighting with diabetes for 3 years now.I have been suffering with my feet mostly my right foot for a little over a year now and seems like it has been getting worse as time goes by. It's starting to go in the back of...
    julienaquin julienaquin 51-55 2 Responses Nov 8, 2011

    Your Response

    Cancel

    Gabapentin

    hi well hope you are all doing better than me at the moment. i have been trying the drug gabapentin, this is the second time i have tried. the last time tried it a few weeks ago i did not take to it. being a glutton for punishment i thought i would try it again, big mistake! i...
    deleted deleted 26-30 5 Responses Oct 18, 2009

    Your Response

    Cancel

    It Is Written, He Shall Never Give Us More Than We Can Bear (1Corinthians 10:13)

    Hi to all Thanks for a place to interact with people who know what..."It is like"! What a long strange trip its been for all of us with sfpn. I have lived with multiple health problems since 1995. In 2007 I woke to painful cramped arms and hands and within 2 weeks my feet and...
    ezrest ezrest 56-60, M 2 Responses Sep 10, 2011

    Your Response

    Cancel

    My Update, "It Can Get Better"

    Not sure if you read my first story, "The Biggest Challenge I ever had." If you did then you know that I was suffering! I wrote on here just to let other people, especially younger victims of Neuropathy that your not alone. I knew I felt alone and that was making everything...
    kgorgei kgorgei 36-40, F 1 Response Mar 18, 2013

    Your Response

    Cancel

    2 Years In

    My pain began 2 years ago in the balls of my feet (like walking on hard hot rocks), and has spread to the whole soles of both feet and especially all toes. I describe the pain as burning ice. I started with podiatrists, rheumatologists, vascular, orthopedic, and neurologists...
    suz9753 suz9753 61-65, F 2 Responses May 6, 2013

    Your Response

    Cancel

    In Pain And Scared

    I have been diagnosed with idiopathic small fiber sensory neuropathy approx one year ago.  After going to two different neurologist in my town, I was getting no answers.  A MRI showed that I have 8 lesions in my brain and several on my spine, which could indicate MS but there...
    Leasalynne Leasalynne 41-45 4 Responses Mar 30, 2011

    Your Response

    Cancel

    It Is Not In My Head!

    .I am a 39 year old mom of 3 and happily married. Last March I had an car accident. After about 3 months I started to exhibit a variety of symptoms.  I was having itching feet, burning sensations in my feet and legs. I also was having this uncontrolable spasms. They looked like...
    msphun msphun 36-40, F 6 Responses Mar 8, 2011

    Your Response

    Cancel

    Diagnosed With Sfn Now What?

    Im a 34 year old dad who has been seeing neurologist after neurologist for 10 years. I was an athelete and in my early twenties I started experiencing numbness in my inner thigh on my right side. the numbness slowly progressed and after finding a particular doctor, I was...
    mcavs1616 mcavs1616 31-35 3 Responses Oct 9, 2012

    Your Response

    Cancel

    I Was Diagnosed With Small Fiber Neuropathy

    Hello everyone, Iam on here to share my health problems and to find some kind of support and understanding of the condition. Iam a lady of 31 years old, unemployed since 2 years ago but being compelled to look for work.I was diagnosed recently but i have had symptoms since more...
    vanchrist09 vanchrist09 31-35, F 2 Responses Aug 4, 2012

    Your Response

    Cancel

    I Have Large & Small Fiber Idiopathic Sensorimotor Peripheral Neuropathy

    That's right since about April 2011 @ age 23 years old(nearly two years ago). It's started with muscle twitching, then progressed to muscle-aches & pains,numbness (pins & needles), sensory loss, tremors etc. I'm on Neurontin 300mg twice a day, Nadolol 20mg daily(beta-blocker that...
    MrSamGary87 MrSamGary87 22-25 1 Response Dec 16, 2012

    Your Response

    Cancel

    If I Have A Disability, Will My Children Too

    A week after being diagnosed with Peripheral Neuropathy an incurable nerve disorder, it's got me thinking. I don't know how I contained this disease so how can I protect my kids. Or is this a lossing cause, is it written in their faith to be burden with this agony too. So of...
    Purple30 Purple30 26-30 5 Responses Nov 29, 2010

    Your Response

    Cancel

    I Was Diagnosed With Small Fiber Neuropathy 3 Years Ago

    Hi there,I have been living with very severe Small Fiber Neuropathy for about three years now. I am on Gabapentin 1200 mg 3 times daily the maximum daily allowed. I started out with the minimum and gradually increased throughout the years, I also take Tramacet with the Gabapentin...
    melbeauty melbeauty 31-35, F 7 Responses Jan 20, 2012

    Your Response

    Cancel

    Living With Small Fiber Peripheral Neuropathy

    I have been recently diagnosed with SFPN.  I've actually had symptoms for over 10 years but was previously diagnosed as simple peripheral neuropathy due to low magnesium levels.  It began in the tip of my right big toe and progressed rather slowly to include both feet...
    amraelle amraelle 51-55, F 9 Responses May 25, 2009

    Your Response

    Cancel

    Treatment ?? For Small Fiber Peripheral Neuropathy

    Wat do u do??? Treat site of discomfort, treat pain?? Or treat location of where it began from??
    Purple30 Purple30 26-30 3 Responses Nov 26, 2010

    Your Response

    Cancel

    Just Curious

    I was diagnosed yesterday after 7 months of agonizing pain and test after test. My doctor called me on the phone and told me the diagnosis but nothing about treatment, or what I can do to just have 5 mins without pain or to be able to walk up a flight of stairs without feeling...
    staciesmith524 staciesmith524 36-40 3 Responses Jan 21, 2011

    Your Response

    Cancel

    Neuropathy. 25 Year Old Male.

    im 25. male. im scared because since 9-3-12 i started having neuropathy symptoms that have only gotten worse and continue to get worse. started as mild tingling. then turned into electrical shock feelings in small spots of the skin all over my body at random times throughout the...
    Mustang0227 Mustang0227 22-25, M 1 Response Oct 24, 2012

    Your Response

    Cancel

    Small Fiber Neuropathy Along With A Couple More Things Carpel Tunnel Being One

    Hi i' ve now been living with this almost two years each day is different and harder. I am angry with this whole situation and sometimes i don't know how to feel or think. No one seems to understand what it is that I go through from day to day. Some I ask the question why me? is...
    kimbone kimbone 36-40 4 Responses Nov 7, 2010

    Your Response

    Cancel

    Are We All Going Crazy, Insane Or Both?

    I know that we can all agree that we are living a nightmare every day, every hour and every second! None of us ever knew about this disease (if it is a disease) nor would we have ever cared to learn about it, in all our past lives. But here we are and now what should we do? I...
    alatres alatres 51-55, M 1 Response Dec 16, 2012

    Your Response

    Cancel

    A Challenge To Get Through The Day

    I am 50 years old and was first diagnosed with Peripheral Neuropathy. 5 years ago I had a burning sensation in my right foot, but thought nothing of it. The pain increased and when both feet felt like I was walking on shards of glass I went to see my primary care doctor. He sent...
    Love62 Love62 46-50 1 Response Aug 31, 2012

    Your Response

    Cancel

    Living With Neruopathy

    Okay here is my story my Neruopathy started around 2005 ait came one so suddenly. It started as a miner irrateion of I couldn't stand have my feet covered. I ignored the sympotmns. Fast forword to 2007 I was going to sleepone night and all of the sudden this horrbile burning...
    Angelheart360 Angelheart360 31-35 3 Responses Dec 17, 2010

    Your Response

    Cancel

    I Have Has SNN For More Than 40 Years.

    I can swear it is tough but you can have a quality of life if you really are willing to seek out ways of coping with wthe degeneration of you nervious system. I'm doing less and less, but decited to enjoy it more and more. I never try to do more than I can physically do no matter...
    beleichtamer beleichtamer 61-65, F 3 Responses Oct 26, 2013

    Your Response

    Cancel

    Long Road

    Mine started 4 years ago when I was thrown from my horse, suffered a severe concussion. Within 4 weeks my feet were feeling funny, then things change bi- latterly as usual moved to my calves, then my hands, my forearms, my shoulders then the band of nerves that wraps around from...
    eubanksdee eubanksdee 51-55 Jul 4, 2013

    Your Response

    Cancel

    Hello Members

    I am Zurie the creator of this group and I am very astonished to see how we've grown!  I would like to add to the suggestions for pain management post so that any of us or others checking out our page can look there as well so if you have any suggestions please add them.  I am...
    Zurie Zurie 26-30, F 3 Responses Dec 7, 2011

    Your Response

    Cancel

    Sfn And Acupuncture

    Today I had my first acupuncture treatment. I am also on a regime of chinese herbs. Is anyone doing similar to get rid of this problem?
    petermal petermal 61-65 Dec 17, 2012

    Your Response

    Cancel

    I Have Just Been Diagnosed, But Why Is It Happening?!!! Please Share Tests You Have Had Done..

    I will post my story later, but my main question to everyone is: How did you get to the root of the problem for what is causing your SFN??!!! I hate the neurologist I finally saw, who ordered my nerve biopsy, for saying, "Sometimes we just don't know what the cause is, I am just...
    notlivinginparadise notlivinginparadise 51-55 11 Responses Oct 4, 2012

    Your Response

    Cancel

    Are We All Going Crazy, Insane Or Both?

    I know that we can all agree that we are living a nightmare every day, every hour and every second! None of us ever knew about this disease (if it is a disease) nor would we have ever cared to learn about it, in all our past lives. But here we are and now what should we do? I...
    alatres alatres 51-55, M 2 Responses Dec 16, 2012

    Your Response

    Cancel

    Peripheral Neuropathy

    Thankyou for all those people contributing to this site .I too have felt alone with this disease when diagnosed with it , especially as they cannot find a cause for it, despite many tests plus 3 MRI's . I have refused to take medications up to this point if they are just to...
    Takeoverbid Takeoverbid 66-70, F Nov 21, 2013

    Your Response

    Cancel

    Has anyone had any results with alternative

    treatments while taking prescribed medication?
    lolo1990 lolo1990 22-25, F 2 Responses Apr 27

    Your Response

    Cancel

    My Story

    My story started more than 2 yrs ago with tingling on hands, feet and face. All the tests including spinal tap came negative. Then started pain on right wrist and then next day, on the left wrist and the next day both legs. Started gabapentin in smaller doses, increasing the...
    seemr seemr 31-35, F 1 Response Feb 1, 2013

    Your Response

    Cancel

    I have just been diagnosed with small fiber

    sensory poly neuropathy, after 14 years of trying to find out what is wrong. Throughout all of the different wrong diagnosis I have already tried all of the medications available to treat this. Currently I am taking a combination of Cymbalta and noretripylene with limited...
    koendd koendd 56-60, F 2 Responses May 7

    Your Response

    Cancel

    My Story So Far With SFPN

    Hello,I am pleased to have found this group.My story began in 2012 when I noticed numbness and tingling on the side of my left foot.This spread to my big toe and then to my right foot.From there it has begun in my hands.I am currently undergoing tests via my Neurologist and am on...
    bearmack bearmack 51-55, M 1 Response Oct 14, 2013

    Your Response

    Cancel

    And So The Clouds Clear...

    If you haven't please read my "The greatest challenge I ever had" story for full background. Short and sweet I have neuropathy. I have had it now, I guess almost a full year. In my last story, I tell about the tests and the emotions. But for those of you going through this right...
    kgorgei kgorgei 36-40, F 1 Response Aug 3, 2012

    Your Response

    Cancel

    An Answer to My Pain

    I saw a neuromuscular specialist.  He diagnosed me with small fiber peripheral neuropathy with autonomic dysfunction.  I was previously diagnosed with fibromyalgia and although I'm happy I have a diagnosis that I can understand better, it scares me what could happen.
    Zurie Zurie 26-30, F 4 Responses Sep 22, 2008

    Your Response

    Cancel

    Is Sfn A Life Sentence....

    I HAD AN ALLERGIC REACTION TO BACTRIM TWO MONTHS AGO AND FROM WHAT DOCTORS CAN TELL SMALL FIBER NEUROPATHY WAS HOW MY BODY REACTED. THE NEUROLOGIST SEEMS CONFIDENT THAT IT WILL GO AWAY IN @ 6 MONTHS. UNFORTUNATELY, I CAN FIND NO POSITIVE INFORMATION THAT TELLS ME THIS. IRONICALLY...
    IZZY76 IZZY76 56-60, F 3 Responses Apr 17, 2012

    Your Response

    Cancel

    Feeling Lost But Staying Strong

    I was diagnosed with autonomic and small nerve fiber neuropaty about 6 mths ago. 4 yrs ago after I had my 3rd child I started having aches and pains in my back legs and arms. I was tired all the time and have frequent migraines. I am only 30 and atleast have 4 days a week that I...
    annreece annreece 31-35, F Mar 15, 2013

    Your Response

    Cancel

    The Story Of Me

    I was diagnosed with small fiber peripheral neuropathy about 2 years ago, but I have been suffering with it for nearly 10 years. After seeing every kind of doctor you can imagine, and being told I had everything except what I had (including one doctor telling me I had worms in my...
    pippinsb pippinsb 36-40, F 3 Responses May 26, 2013

    Your Response

    Cancel

    Trial And Error.

    I have probable small fiber neuropathy. I found this site while I was researching possible testing and diagnostic tools. Is anyone here in Australia? I've had autonomic studies done at RPA with small fiber neuropathy detected due to not sweating on my lower limbs. I have been...
    jimmybro jimmybro 22-25, F Oct 2, 2013

    Your Response

    Cancel

    Is There Hope?

    My symptoms started 10 years ago. It started in my feet with tingling and numbness. I went to several specialists including Mayo Clinic in Rochester. They diagnosed me with small fiber neuropathy. The specialist at Mayo said it would be gone in 1 year. As I said, that was...
    cfro cfro 61-65, F 1 Response Aug 23, 2013

    Your Response

    Cancel

    Diabetic Neuropathy

    im  25 and have sensroy neuropathy in the legs, i am wheelchair bound because of pain and am wondering if there is anyone else out there that has been using a wheelchair because the pain is so severe that u cant walk?
    combatfan1985 combatfan1985 22-25 8 Responses Nov 23, 2010

    Your Response

    Cancel

    First Treatment Of K Laser In Conjunction With Neuropathy Support Formula

    I start ed K Laser Therapy today on both my feet. Per my previous posts I am still taking the Lyrica and tylennol and oxycodine (at night to try and get me to sleep). I had read on the internet that K Laser treatment can help "cure" damaged nerves if caught early! Again I am...
    alatres alatres 51-55, M 1 Response Jan 11, 2013

    Your Response

    Cancel

    Related Experiences

    Your Response

    Cancel
    I hate when people point them out :/ it makes me embarrassed and I quickly hide them from sight, while everyone says they are so cute! I also can't use a regular xbox control...
    Doof00 Doof00 18-21, F 1 Response Aug 11

    Your Response

    Cancel
    They are tiny. When I was younger, I had to play an instrument for music class and I chose the piano.... Such a bad choice, I couldn't play the chords properly. The next year, my...
    eugeengel eugeengel 16-17, F 3 Responses Aug 10

    Your Response

    Cancel