I Have Spasmodic Torticollis

Spasmodic Torticollis anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Spasmodic Torticollis. You're not alone. 14 People

    Son With Torticollis

             We have a Son that lost most of his sight in one eye from an accident about 4 years ago, resulting in Spasmotic Torticollsi in which he experienced  severe neck turning and pain along with major depression.   We went through all of the recommendations and the...
    Rotarydrive Rotarydrive
    70+
    3 Responses Jan 16, 2011

    New Neck Brace I Invented Pending Patent,i Have Torticollis From A Side Effect From A Medication

    Hello, ,    i just joined the group ,i have torticollis also known as cervical dystonia, caused from a serious permanant side effect from a medication called resperadol that i took for over 10 years for mental illness ,i want to let the group know i invented a neck brace...
    shanesbrace shanesbrace
    41-45
    1 Response Feb 16, 2011

    Struggling Daily

    I have been suffering from dystonia for about 3 years now. At first, I wasn't aware that I was suffering as a result of a neurological issue. I have always allowed myself to become really stressed out with daily life and thought my tight neck muscles and daily headaches were a...
    lorfor lorfor
    31-35, F
    Jan 13, 2013

    Botox No Longer Effective

    I have had spasmodic torticollis for about 17 years and have been receiving Botox for about 15 years. It took 2 years to determine it was torticollis. The Botox is no longer effective. Has this happened to anyone and what are you now doing?
    Teeter17 Teeter17
    66-70, F
    1 Response Nov 24, 2013
More Stories