I Have Spasmodic Torticollis

Spasmodic Torticollis anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Spasmodic Torticollis. You're not alone. 14 People

    Struggling Daily

    I have been suffering from dystonia for about 3 years now. At first, I wasn't aware that I was suffering as a result of a neurological issue. I have always allowed myself to become really stressed out with daily life and thought my tight neck muscles and daily headaches were a...
    lorfor lorfor
    31-35, F
    Jan 13, 2013

    Son With Torticollis

             We have a Son that lost most of his sight in one eye from an accident about 4 years ago, resulting in Spasmotic Torticollsi in which he experienced  severe neck turning and pain along with major depression.   We went through all of the recommendations and the...
    Rotarydrive Rotarydrive
    3 Responses Jan 16, 2011

    New Neck Brace I Invented Pending Patent,i Have Torticollis From A Side Effect From A Medication

    Hello, ,    i just joined the group ,i have torticollis also known as cervical dystonia, caused from a serious permanant side effect from a medication called resperadol that i took for over 10 years for mental illness ,i want to let the group know i invented a neck brace...
    shanesbrace shanesbrace
    1 Response Feb 16, 2011

    Botox No Longer Effective

    I have had spasmodic torticollis for about 17 years and have been receiving Botox for about 15 years. It took 2 years to determine it was torticollis. The Botox is no longer effective. Has this happened to anyone and what are you now doing?
    Teeter17 Teeter17
    66-70, F
    1 Response Nov 24, 2013
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