I Have Spina Bifida

Personal Stories, Advice, and Support 59 People

    Hi my name is Lydia I'm 16 years old I was born

    with spina bifida myelomeningocele level L5. The doctors said I would never walk and I would probably be mentally challenged. I proved them wrong when I walked at 18 months old. :)
    xLydiaLuv xLydiaLuv
    18-21, F
    4 Responses May 4, 2014

    I have dealt with Spina Bifida my whole life.

    I may be in a wheelchair but I'm just like everyone else besides the fact I can't walk. I'm not looking for pity beacuse of my disabity I wanna be treated like everyone else.
    deleted deleted
    Dec 23, 2014

    My Story Of Have Spina Bifida Myelomeningocele:)

    I'm 17 and have spina bifida myelomeningocele,i can still walk some but not very good,i've been through,3 back surgeries waiting to get 4th scheduled soon,have a neurogenic bladder/bowels (have a appendicostomy) and do a cone enema every night,and have a bff named Kaylin:) How...
    lukebryanfan94 lukebryanfan94
    18-21, F
    3 Responses Dec 12, 2011

    What is Spina Bifida?

    Spina bifida. A birth defect of the spine that occurs when the baby's spine fails to close during the first three months of pregnancy. That's why I use a wheelchair to move around.
    Hotelimpossiblefan Hotelimpossiblefan
    26-30, M
    Jun 18, 2015
    Kierstyne Kierstyne
    26-30, F
    4 Responses Aug 31, 2014

    When everyone else says you can’t,

    faith & determination says,”Yes you can”
    aj32792 aj32792
    22-25, M
    Aug 15, 2014

    I have spina bifida and am afraid i won't find

    somebody who will truly love me
    deleted deleted
    2 Responses Apr 18, 2015

    I have Spina bifida myelomeningocele.

    It affects my L4 L5 region. I walk with the assistance of braces and I occasionally use my wheelchair. I don't know many people with Spina bifida. I would like to get to know some people that understand day to day life with Spina bifida
    HaleyP HaleyP
    22-25, F
    2 Responses Jul 24, 2014

    I only just recently found out

    that I have spina bifida. I started receiving chiropractic help about 2 months ago, as I've been in pain for YEARS and never had a detailed answer as to why. I started having a lot of lower back pain at 19, around the time that I was in a car accident with my parents. Went to...
    Notasouthernbelle Notasouthernbelle
    36-40, F
    1 Response Apr 27, 2014

    I was born with spina bifida.

    I've never walked, I've always used a wheelchair to get around
    mattywheels25 mattywheels25
    31-35, M
    1 Response Feb 15, 2015

    Having Spina Bifida for 21 years has gotten to

    me really fast.... My depression is worsening. I just want to die. I hate being disabled. I hate not being able to do the things that my nephews do. :'( anyone else feel this way?
    Lovelybaby18 Lovelybaby18
    22-25, F
    3 Responses Apr 4, 2015

    No matter who you are

    and what happens in your life, you still have the chance to turn your life around and be great.
    aj32792 aj32792
    22-25, M
    1 Response Jul 23, 2015

    When everyone else says you cant,

    faith & determination says,Yes you can
    aj32792 aj32792
    22-25, M
    Aug 15, 2014

    Hard things are put in our way,

    not to stop us, but to call out our courage and strength.
    aj32792 aj32792
    22-25, M
    Aug 11, 2014
    Kierstyne Kierstyne
    26-30, F
    2 Responses Aug 14, 2014

    I have had it since birth.

    I use my wheelchair everywhere outside my house. It was only found out in 2008, message me for more :)
    Nickstar13 Nickstar13
    16-17, F
    2 Responses Aug 10, 2014

    Spinal Bifida Since Birth

    im a 14 year girl living in washington state and i had spinal bifida since birth and it is hard being in a chair. and i also have scolisis in my back and i am going have to have sergery and they are going to have to put a metil rod in my back to keep me up straight and am lucky...
    sw3522939 sw3522939
    2 Responses May 7, 2011
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