I Have Spina Bifida

Personal Stories, Advice, and Support 59 People

    I have spina bifida and am afraid i won't find

    somebody who will truly love me
    deleted deleted
    2 Responses Apr 18, 2015
    Kierstyne Kierstyne
    26-30, F
    2 Responses Aug 14, 2014

    I was born with spina bifida.

    I've never walked, I've always used a wheelchair to get around
    mattywheels25 mattywheels25
    31-35, M
    1 Response Feb 15, 2015

    I have dealt with Spina Bifida my whole life.

    I may be in a wheelchair but I'm just like everyone else besides the fact I can't walk. I'm not looking for pity beacuse of my disabity I wanna be treated like everyone else.
    deleted deleted
    Dec 23, 2014

    Having Spina Bifida for 21 years has gotten to

    me really fast.... My depression is worsening. I just want to die. I hate being disabled. I hate not being able to do the things that my nephews do. :'( anyone else feel this way?
    Lovelybaby18 Lovelybaby18
    22-25, F
    3 Responses Apr 4, 2015

    I have had it since birth.

    I use my wheelchair everywhere outside my house. It was only found out in 2008, message me for more :)
    Nickstar13 Nickstar13
    13-15, F
    2 Responses Aug 10, 2014

    My Story Of Have Spina Bifida Myelomeningocele:)

    I'm 17 and have spina bifida myelomeningocele,i can still walk some but not very good,i've been through,3 back surgeries waiting to get 4th scheduled soon,have a neurogenic bladder/bowels (have a appendicostomy) and do a cone enema every night,and have a bff named Kaylin:) How...
    lukebryanfan94 lukebryanfan94
    18-21, F
    3 Responses Dec 12, 2011

    When everyone else says you cant,

    faith & determination says,Yes you can
    aj32792 aj32792
    22-25, M
    Aug 15, 2014

    No matter who you are

    and what happens in your life, you still have the chance to turn your life around and be great.
    aj32792 aj32792
    22-25, M
    1 Response Jul 23, 2015

    Hard things are put in our way,

    not to stop us, but to call out our courage and strength.
    aj32792 aj32792
    22-25, M
    Aug 11, 2014

    Hi my name is Lydia I'm 16 years old I was born

    with spina bifida myelomeningocele level L5. The doctors said I would never walk and I would probably be mentally challenged. I proved them wrong when I walked at 18 months old. :)
    xLydiaLuv xLydiaLuv
    18-21, F
    4 Responses May 4, 2014

    I only just recently found out

    that I have spina bifida. I started receiving chiropractic help about 2 months ago, as I've been in pain for YEARS and never had a detailed answer as to why. I started having a lot of lower back pain at 19, around the time that I was in a car accident with my parents. Went to...
    Notasouthernbelle Notasouthernbelle
    36-40, F
    1 Response Apr 27, 2014

    I have Spina bifida myelomeningocele.

    It affects my L4 L5 region. I walk with the assistance of braces and I occasionally use my wheelchair. I don't know many people with Spina bifida. I would like to get to know some people that understand day to day life with Spina bifida
    HaleyP HaleyP
    18-21, F
    2 Responses Jul 24, 2014

    When everyone else says you can’t,

    faith & determination says,”Yes you can”
    aj32792 aj32792
    22-25, M
    Aug 15, 2014

    What is Spina Bifida?

    Spina bifida. A birth defect of the spine that occurs when the baby's spine fails to close during the first three months of pregnancy. That's why I use a wheelchair to move around.
    Hotelimpossiblefan Hotelimpossiblefan
    26-30, M
    Jun 18, 2015
    Kierstyne Kierstyne
    26-30, F
    4 Responses Aug 31, 2014

    Spinal Bifida Since Birth

    im a 14 year girl living in washington state and i had spinal bifida since birth and it is hard being in a chair. and i also have scolisis in my back and i am going have to have sergery and they are going to have to put a metil rod in my back to keep me up straight and am lucky...
    sw3522939 sw3522939
    2 Responses May 7, 2011
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