I Have Spinal Stenosis

Spinal Stenosis anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Spinal Stenosis. You're not alone. 256 People

    My Story - Syringomyelia-caused Stenosis

    I was diagnosed with syringomyelia 25 years ago. I subsequently had 3 surgeries to ease the pain and disability, though I have not been without either. As a result of this neuromuscular disorder and the surgeries, I have severe spinal stenosis at T5. In fact, MRIs have not...
    mcoolat50plus mcoolat50plus
    2 Responses Feb 14, 2012

    Living With Spinal Stenosis

    I have spinal stenosis but it does not have me.    I was diagnosed at age 24 with stenosis from L1 through S1.  That was 21 years ago, well before the internet.  At the time I had no idea what it was or the prognosis.  I was told I needed surgery with a 5...
    beth1max beth1max
    41-45, F
    3 Responses Oct 5, 2010

    Seems Like The End

    In 2007 I had back surgery for stenosis at L5-S1, which helped. Fast forward to 2012, I start having severe back pain from the cervical down to the lumbar area. After having the MRI and myleogram I'm diagnosed with severe stenosis throughout my entire spine and almost every disc...
    nature55 nature55
    1 Response Apr 17, 2013

    31 Year Old Male With Lumbar Stenosis (contemplating Surgery)

    Hello all. 3 or so months ago, i was lifting my son out of the tub, and felt a severe pain in my lower back. Anyway, it got progressively worse in a matter of days, and moved into my legs (predominantly my right). I went to an urgent care clinic who said it was a pinched...
    handscc handscc
    3 Responses Mar 28, 2011

    A Whole New World

    Hi, My name is Amber and I am 31 years old.  I live in Des Moines, Iowa.  I am in the process of trying to get help for my spinal stenosis, and am having a very hard time dealing with this change in my life.  I have always been an active, hardworking person, and...
    akmiller78 akmiller78
    31-35, F
    2 Responses Feb 3, 2010

    I was diagnosed Sep/14 w/cervical stenosis.

    This numbness in my hands happened quickly, I have severe neck pain, and burning in my legs and feet. I had an MRI completed and my spine doctor called me the next night telling me surgery was needed and he referred me too a neurosurgeon. My preop is 1/27/15, however, things...
    Stevegriffey3 Stevegriffey3
    41-45, M
    Dec 28, 2014

    I am 43 year old mother of two

    who feels one hundred. I ruptured a disc in 2011 and lost use of my left arm. I chose not to have surgery for the outcome would be the same according to a surgeon I saw. After 3 epidural injections my pain disappeared. I had to wait a year to put weight on my arm but I...
    spineallmess spineallmess
    46-50, F
    1 Response Jan 20, 2014

    Hello group Im not new to ep

    but its been a long while for me. just recently like last month i was diagnosed with spinal stenosis i am 27 years old but have had back pain since 2004 when i injured my lower lumbar dancing i guess it was just bad cause i was only 15 when this all began. I must say its been...
    mrsgaston mrsgaston
    26-30, F
    Feb 9, 2016


    It doesn't take long before a constant pain in the thigh muscles of both legs, that will not disappear, for you to think thats its a bit more than over exertion. A talk with my doctor meant that I probably had.. 'what most people get as they get older, a little bit of arthritis...
    trroberts trroberts
    3 Responses Nov 13, 2011

    I have congenital cervical stenosis (more about

    lumbar spine later) with severe degenerative disc disease. Saw a Neurosurgeon Monday and he says I need surgery. Problem is, I have severe lung disease and I won't know what the plan is until next Monday. He will have a big staff meeting to discuss my case this Friday and I'm...
    VixBux VixBux
    56-60, F
    2 Responses Mar 31, 2015

    History Of Spinal Problems

    Back problems have pretty much plagued me since my early 20's . I'M now 53 and have surgery scheduled on this coming Monday April 1st. I'VE been seeing pain mgmt for last 6 years and at first the epidurals -facet joint injections and rizotmies gave me considerable relief up...
    whiskeypapa whiskeypapa
    56-60, M
    2 Responses Mar 26, 2013

    Spinal Stenosis

    About ten years ago I went to my doctors complaining of severe back pain going into my legs they stated that it was muscular, after ten years of going threw hell and losing jobs they agreed to a MRI scan hey presto spinal stenosis with a l5 protrusion was diagnosed. most of the...
    rawdicko rawdicko
    6 Responses Jun 14, 2009

    My Mayo Experience - The Surgery

    I know it's been a long time since my last post, but it's been a very difficult time. I spoke to the surgeon (after an intensive examination by two Neurologists) and she came to the same conclusion that I already figured out in my mind. She decided that I required a 5 level...
    tpat1515 tpat1515
    Feb 8, 2013


    Always thinking why is this happening - too much to talk about - is it something I did ? Rants and raves going through my head and I cry - I look at my babies 2.5 and 1 year old and think will I walk with them through life or will I be a lump on the couch ? 2008 I had a fusion L5...
    RonniJean RonniJean
    36-40, F
    1 Response May 3, 2013

    Congenital Spinal Stenosis

    I can always remember discomfort as far as I can remember in my lower back since my early thirtees. I somehow got into fitness in my mid thirtees and started overdoing things by mid fiftees my discs were bulging -- I have DDD but when I went for my first MRI, the radiologist...
    mehtani123 mehtani123
    61-65, F
    Sep 4, 2013

    In 2012 I was watching a football game

    and went to stand up. When I did my right leg was numb, I had instances like this before but something was wrong. Finally I found a dr in 2014 and they did an MRI. Come to find out I have lumbar stenosis, arthritis in my back and tailbone, a severely large bulging disc at l1 s5...
    Justwantmylifeback Justwantmylifeback
    26-30, F
    1 Response Aug 2, 2015

    itried all the surgery route

    and ended up with a metal plate in my neck with no change in my condition..suffer with numbness in my whole body...with spinal stenosis...finally a friend took me to a very modern chiropractor and was worried to be bent and cracked like a pretzel...but this was a wonderful...
    derelwebb derelwebb
    56-60, F
    Nov 19, 2014

    I'm 31 years old and have been battling back

    problems for the last 15 years. It used to come on just once in awhile, a little pain in the lower back, some tingling down my right leg, usually it went away on it's own, but the few times it persisted and I'd go to the doctor they'd pat me on the hand, tell me it's a pulled...
    jeneral3015 jeneral3015
    31-35, F
    1 Response Apr 19, 2014

    Recently discovered spinal stenosis,

    misalignment of the right hip, compression fracture of the L5 and T1. I am scared as this is very new to me. I can walk now but, not for very long periods. I feel I am wheelchair bound and this is what scares me. I have resigned my position as a volunteer EMT in my area and may...
    Angstfaktor Angstfaktor
    36-40, M
    2 Responses Oct 6, 2015

    Oh Crap!

    I went back to Mayo Clinic because I cannot walk and am having severe Sciatica pains for about 3 months now. Took in my MRI and saw the Neurologist and the Neurosurgeon. They both concluded that I need to have another surgery. This time Lumbar surgery (Last time Cervical surgery...
    tpat1515 tpat1515
    May 24, 2013

    What Now

    I have just been diagnosed with Lumber Spinal Stenosis. With compression of the nerve root L5 . Have been off work for 7 weeks so far just trying to get myself mobile without causing to much discomfort it seems like two steps forward and one back. I know it could be far worse but...
    Carter6060 Carter6060
    66-70, F
    5 Responses May 22, 2013

    Fatigue After Surgery

    Does anyone else have severe "chronic fatigue" after your spinal surgery? I'm still working after my 4 spinal surgeries but am having a very hard time with fatigue. It's been 3 1/2 months since my last surgery and I can barely push myself to get up and get to work. At any slow...
    tpat1515 tpat1515
    Oct 14, 2013

    I was just recently diagnosed with cervical

    stenosis at the c5c6 level. It's been compressed to 7mm. I have a herniated disc that's causing it. I also have degeneration that's causing the herniation. I'm really scared of paralysis! Does this mean one day I will be or just in pain the rest of my life? Anyone who has been...
    swan88 swan88
    36-40, M
    1 Response Oct 9, 2014

    Here I Go Again

    Well... here I am about 7 months out from my 3rd surgery on my spine to relieve pressure on my spinal cord and I'm having significant sciatica pain, tingling and numbness in my right leg, and difficulty walking again. It seems like it's all on my right side except my doctor told...
    tpat1515 tpat1515
    May 10, 2013


    I was at work about 10mths ago and i was doing the normal routine lifting pulling and some labouring when my back just went. I was in pain and it was so weird cos when i hurt myself i usually just walk it off but with my back i could hardly walk at all. I had a few days off but...
    mattjess mattjess
    26-30, M
    1 Response May 20, 2012

    Need To Talk

    I'm writing on behalf of my dear Uncle who is a sufferer. He is 85 years old, does not have internet access and would find it valuable to have support through phone calls. Is any one willing to contact me so that I can put him in touch? He lives in Kent. Many thanks, Helen
    helenwebster2008 helenwebster2008
    May 21, 2010

    i cannot express the urgency to all .

    .to please try a chiropractor that uses alignment of the atlas of your spine and also uses an activator to align your spine ....out of the blue i could no longer feel my hands and lower body, my whole body just went numb....so i go medical doctors....and diagnosed with the...
    derelwebb derelwebb
    56-60, F
    Nov 19, 2014

    Spinal Stenosis 6 Days Post Op

     I'm 63 yrs. old and out of surgery 6 days now L 2-5 with a cyst around nerve.  My pain came on relatively quick and after about a month I couldn't't't stand it.  Went directly to my neurosurgeon (brain abscess in March) had an MRI , tried a steroid pack with little effect...
    rdougk rdougk
    1 Response Aug 29, 2011

    I have spinal stenosis,

    degenerative disc and arthritis at L 4 and L5. Am allowed to have 3 shots for pain, then may be told that I need surgery. Am very leary of surgery, but don't want to get hooked on pain pills. Any suggestions are appreciated! Thanks
    gibsoel gibsoel
    70+, F
    1 Response Apr 9, 2014

    I Have Spinal Stenosis And I Am Scheduled For Surgery In 3 Weeks

    I have know idea what to expect after surgery and I think the worse part is my husband freaking out about it more than me...just wanted to have some ppl who knew what I was going through as an outlet
    lesliea5 lesliea5
    36-40, F
    1 Response Apr 9, 2011

    Can This Be The End - Please!!!!

    So here I am sitting on my couch 3 weeks after my 4th spinal surgery. This one was on my Lumbar region, L4 to S1 fusion with "generous" stenosis removal. I also had a Stenovial Cyst in L5 nerve root pressing on my sciatica. This surgery replaced a previous L4 to L5 fusion with...
    tpat1515 tpat1515
    Jul 14, 2013

    Story Update - Mayo Clinic Visit

    So... a 2 1/2 month wait for the "appointment" at Mayo Clinic. So much pain and waiting with a scare that I would run out of pain pills once during that time, I would die without the pain pills (or so it would seem). My first Neurologist appt. was a little anti-climatic. She did...
    tpat1515 tpat1515
    3 Responses Jul 30, 2012

    Hello group! I am new to EP!

    I have Cervical Spinal Stenosis which has an impact on my entire body. My Spinal cord is actually compressed and indented on the right and left side. I have nerve damage from the nerves being pinched. I am having issues with my bladder and my bowels. I have been hospitalized 3...
    KeepCalmAndFightCSS KeepCalmAndFightCSS
    36-40, F
    Mar 27, 2016

    I Have Spinal Stenosis But God Has Me. When I Can't Go Any Further He Carries Me......

    Share my story huh? Where do I begin? I guess I'll start at a time when I lived a "normal life which would be before November 7th 2008." So, before November 7th 2008 I lived a fairly normal life. I had a job or I should say jobs since I couldn't quite find the job for me so...
    ImsavdXgraceofGo ImsavdXgraceofGo
    41-45, F
    2 Responses Mar 25, 2010

    I have been diagnosed with Spinal Stenosis

    and degenerative disc disease. Also I seem to have a bulging disc. My lower back is in a lot of pain. Meds and the epidural shots did not and do not help at all. So I just stay in constant tormenting pain all the time. My fiancé says I cry out in my sleep when I do sleep. Now...
    markemark03 markemark03
    56-60, M
    1 Response Mar 28, 2014

    Recently Diagnosed

    I woke up one day with low back pain.  It would hurt for a few hours then go away for weeks. I didn't think much of it. Then one day I woke up and I could barely walk. After about a week or so of constant pain I talked to my doctor who sent me to a specialist. From there it...
    ctredsoxfan ctredsoxfan
    21 Responses Sep 25, 2010

    Unsure Of What'S Going To Happen Now

    I'm 27 years old, I have 2 children ages 1 and 4. I have a very busy life style as a stay at home mom. I don't have any family to help me out so I do it all on my own, well with the help of my awesome husband who's working and going to school full time. For the last couple week...
    CCL85 CCL85
    Apr 21, 2013


    Life hasn't been easy on me for the past few years, but then again who has it for? I try to keep my focus on the positive & lately have been learning how to do that. It's not like we're born with instinctual characteristics that make us embrace the hard times, or sometiens i...
    kimberlylynnc kimberlylynnc
    31-35, F
    1 Response Mar 29, 2012

    Im Scared

    i have spinal stenosis for man years and it keeps getting worse i also have some neuropothy (nerve damage) including sciatica but this last month my hips and legs started to hurt very badly and now im in constant pain and cant walk and barely can sit up. I went to the hospital...
    Daddyskitten21 Daddyskitten21
    41-45, F
    8 Responses Aug 17, 2011

    Depressed And Scared

    I have known that I have spinal stenosis for about a year, however I have had back pain for many years before that. Over the past year I ended my career of 23 years because it was too physical. I have started a new career which is less physically demanding but I am still finding...
    punk157 punk157
    46-50, F
    1 Response Sep 22, 2013

    I Have Spinal Stenosis.

    I've never really done this and never really had the drive to until tonight.. My name is Alexis and I have Spinal Stenosis. I've had it for 12 years now and I am 24. I have lower lumbar Spinal Stenosis which has chained off into scoliosis. I also have these other things that are...
    xSci xSci
    3 Responses Oct 29, 2013

    It's What!?

    About three years ago I started getting pain in my lower back just above my butt, I thought it was arthritis. about a year and a half ago it was real bad and I went to a chiropractor that said ya its just arthritis. Well, after about 12 visits it was getting worse. about that...
    dneller18 dneller18
    51-55, M
    2 Responses Jan 4, 2011

    So Confused

    Hi there I am 36 and trying to figure out what the heck is going on with me. I sustained an injury at work and in the process of trying to address the pain, the doc found I had spinal stenosis. He was really laid back about it, said it wasn't a big deal, gave a a script for PT...
    nessie104 nessie104
    36-40, F
    2 Responses Nov 16, 2013

    Lumbar Spinal Stenosis

    On 11/2/07, I was at work, and went to do an ear lavage on a patient (involves washing their ear until all excess ear wax comes out). I just bent the wrong way and twisted, and displaced 3 discs in my lower lumbar region. I'd never experienced such pain. I had to have a friend...
    Warmthoughtsofyou04 Warmthoughtsofyou04
    31-35, F
    6 Responses May 7, 2008

    My S.s. Experience, Condition And A Few Questions

    Hi there, I'm 31 y/o and have had back pain since I was 19.  I was diagnosed with spinal stenosis and degenerative disc disease summer of 2009.  Although I've dealt with back pain for 12+ years, I've always been able to bounce back.  In May 2009, however...
    splar splar
    31-35, F
    2 Responses Feb 28, 2010

    The Widower

    I was first diagnosed with Spinal Stenosis in 08/2005; at that time I had pain in my lower back, hips, and thigh area, and walking was very painful. I began my first series of Epidural Steroid Shots that same month. The third shot took away all the pain except for an area on my...
    satuni satuni
    70+, M
    2 Responses Mar 23, 2012

    Recently Diagnosed

    I have had back issues all of my life. Had a herniated lumbar disc following a car accident 10 years ago. A couple of years ago, I experience horrible burning pain in the top of my thigh. That finally went away, but last year I started having severe lower back pain. X-rays...
    vsl516 vsl516
    46-50, F
    3 Responses Mar 31, 2012

    I was diagnosed with lumbar spinal stenosis in

    nov. 2015. after telling my doctor of bouts of bladder problems, and severe back pain. I've lost full control of my bladder, and there's some days thag are worse than others, and on the bad days, I can barely move, and can barely get out of bed, but I suck it up, and go about my...
    shaaka shaaka
    26-30, M
    1 Response Jan 17, 2016

    My Story

    krockwell krockwell
    41-45, F
    3 Responses Jan 21, 2011

    ACDF &Amp; Removed A Bone Spur

    Hi guys, its been a while since I posted and realized tonight that I really needed to send an update. Quick summary, my pain started in May 2012, followed by a diagnosis of Cervical Spinal Stenosis, Degenerative Disc Disease, a bulging disc at C4/5, and a ruptured disc at the C5...
    rtpbbcub rtpbbcub
    26-30, M
    1 Response Jul 9, 2013

    I got diagnosed in November 2014 at the age of

    32. It had gotten so bad ... I am in constant pain, I tried many many medications. I am so weak. I have been so depressed and don't like to be around people at all ... the medications only help for a short amount of time and it just eases the pain for a moment ... I can only sit...
    michelledw82 michelledw82
    31-35, F
    1 Response Dec 28, 2015

    Living In Pain!

    I have had neck pain for about 6 years now. I had a MRI scan about 5 years ago, which showed damage to one of the discs in my neck. I've been with a pain management clinic this whole time. I have tried almost everything, had physio, been to chiropractors, osteopaths, had all...
    Lara82 Lara82
    26-30, F
    3 Responses Dec 4, 2012
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