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I Have Spinal Stenosis

Spinal Stenosis anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Spinal Stenosis. You're not alone. 236 People

    Unsure Of What'S Going To Happen Now

    I'm 27 years old, I have 2 children ages 1 and 4. I have a very busy life style as a stay at home mom. I don't have any family to help me out so I do it all on my own, well with the help of my awesome husband who's working and going to school full time. For the last couple week...
    CCL85 CCL85 26-30 Apr 21, 2013

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    I'm 31 years old and have been battling back

    problems for the last 15 years. It used to come on just once in awhile, a little pain in the lower back, some tingling down my right leg, usually it went away on it's own, but the few times it persisted and I'd go to the doctor they'd pat me on the hand, tell me it's a pulled...
    jeneral3015 jeneral3015 31-35, F 1 Response Apr 19

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    Congenital Spinal Stenosis

    I can always remember discomfort as far as I can remember in my lower back since my early thirtees. I somehow got into fitness in my mid thirtees and started overdoing things by mid fiftees my discs were bulging -- I have DDD but when I went for my first MRI, the radiologist...
    mehtani123 mehtani123 56-60, F Sep 4, 2013

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    Need To Talk

    I'm writing on behalf of my dear Uncle who is a sufferer. He is 85 years old, does not have internet access and would find it valuable to have support through phone calls. Is any one willing to contact me so that I can put him in touch? He lives in Kent. Many thanks, Helen
    helenwebster2008 helenwebster2008 56-60 May 21, 2010

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    My Story - Syringomyelia-caused Stenosis

    I was diagnosed with syringomyelia 25 years ago. I subsequently had 3 surgeries to ease the pain and disability, though I have not been without either. As a result of this neuromuscular disorder and the surgeries, I have severe spinal stenosis at T5. In fact, MRIs have not...
    mcoolat50plus mcoolat50plus 56-60 2 Responses Feb 14, 2012

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    Can This Be The End - Please!!!!

    So here I am sitting on my couch 3 weeks after my 4th spinal surgery. This one was on my Lumbar region, L4 to S1 fusion with "generous" stenosis removal. I also had a Stenovial Cyst in L5 nerve root pressing on my sciatica. This surgery replaced a previous L4 to L5 fusion with...
    tpat1515 tpat1515 61-65 Jul 14, 2013

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    The Widower

    I was first diagnosed with Spinal Stenosis in 08/2005; at that time I had pain in my lower back, hips, and thigh area, and walking was very painful. I began my first series of Epidural Steroid Shots that same month. The third shot took away all the pain except for an area on my...
    satuni satuni 70+, M 1 Response Mar 23, 2012

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    Living With Spinal Stenosis

    I have spinal stenosis but it does not have me.    I was diagnosed at age 24 with stenosis from L1 through S1.  That was 21 years ago, well before the internet.  At the time I had no idea what it was or the prognosis.  I was told I needed surgery with a 5...
    beth1max beth1max 41-45, F 3 Responses Oct 5, 2010

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    Fatigue After Surgery

    Does anyone else have severe "chronic fatigue" after your spinal surgery? I'm still working after my 4 spinal surgeries but am having a very hard time with fatigue. It's been 3 1/2 months since my last surgery and I can barely push myself to get up and get to work. At any slow...
    tpat1515 tpat1515 61-65 Oct 14, 2013

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    Here I Go Again

    Well... here I am about 7 months out from my 3rd surgery on my spine to relieve pressure on my spinal cord and I'm having significant sciatica pain, tingling and numbness in my right leg, and difficulty walking again. It seems like it's all on my right side except my doctor told...
    tpat1515 tpat1515 61-65 May 10, 2013

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    Why?

    Always thinking why is this happening - too much to talk about - is it something I did ? Rants and raves going through my head and I cry - I look at my babies 2.5 and 1 year old and think will I walk with them through life or will I be a lump on the couch ? 2008 I had a fusion L5...
    RonniJean RonniJean 31-35, F 1 Response May 3, 2013

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    Living In Pain!

    I have had neck pain for about 6 years now. I had a MRI scan about 5 years ago, which showed damage to one of the discs in my neck. I've been with a pain management clinic this whole time. I have tried almost everything, had physio, been to chiropractors, osteopaths, had all...
    Lara82 Lara82 26-30, F 2 Responses Dec 4, 2012

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    Spinal Stenosis 6 Days Post Op

     I'm 63 yrs. old and out of surgery 6 days now L 2-5 with a cyst around nerve.  My pain came on relatively quick and after about a month I couldn't't't stand it.  Went directly to my neurosurgeon (brain abscess in March) had an MRI , tried a steroid pack with little effect...
    rdougk rdougk 61-65 1 Response Aug 29, 2011

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    Will It Ever End?

    I have had spinal stenosis for maybe 8 years. At this point I am "furniture walking" around my small apartment in my son's house. My kids don' want me to live alone. ..........................................I have severe pain in my back and haven't had relief ...........has...
    lulalou lulalou 70+, F 6 Responses Nov 25, 2012

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    Gabapentin

    I was diagnosed with spinal stenosis last fall and went through the cortisone injections which did not help me. Then my doctor thought I should try acupuncture and that didn't help. He put on Gabapentin 10 days ago and that is helping. We started with 300 mg and now I am at full...
    Cathyd Cathyd 66-70 4 Responses Jun 25, 2011

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    Recently Diagnosed

    I have had back issues all of my life. Had a herniated lumbar disc following a car accident 10 years ago. A couple of years ago, I experience horrible burning pain in the top of my thigh. That finally went away, but last year I started having severe lower back pain. X-rays...
    vsl516 vsl516 46-50, F 3 Responses Mar 31, 2012

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    I Have Spinal Stenosis.

    I've never really done this and never really had the drive to until tonight.. My name is Alexis and I have Spinal Stenosis. I've had it for 12 years now and I am 24. I have lower lumbar Spinal Stenosis which has chained off into scoliosis. I also have these other things that are...
    xSci xSci 22-25 3 Responses Oct 29, 2013

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    I Have Spinal Stenosis But God Has Me. When I Can't Go Any Further He Carries Me......

    Share my story huh? Where do I begin? I guess I'll start at a time when I lived a "normal life which would be before November 7th 2008." So, before November 7th 2008 I lived a fairly normal life. I had a job or I should say jobs since I couldn't quite find the job for me so...
    ImsavdXgraceofGo ImsavdXgraceofGo 41-45, F 2 Responses Mar 25, 2010

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    Spinal Stenosis

    About ten years ago I went to my doctors complaining of severe back pain going into my legs they stated that it was muscular, after ten years of going threw hell and losing jobs they agreed to a MRI scan hey presto spinal stenosis with a l5 protrusion was diagnosed. most of the...
    rawdicko rawdicko 41-45 8 Responses Jun 14, 2009

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    itried all the surgery route

    and ended up with a metal plate in my neck with no change in my condition..suffer with numbness in my whole body...with spinal stenosis...finally a friend took me to a very modern chiropractor and was worried to be bent and cracked like a pretzel...but this was a wonderful...
    derelwebb derelwebb 51-55, F Nov 19

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    Post Surgery And Waiting For Next One

    I just had my first surgery after c3-7 collapsed. I put off the surgery and it was the wrong decision for me. Nerve groups were compressed and I am waiting for test results to see if any were severed. Now I will have to have the surgery on my lumbar region as well. I was...
    Kathyspinal Kathyspinal 46-50 4 Responses Oct 20, 2012

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    Recently Diagnosed

    I woke up one day with low back pain.  It would hurt for a few hours then go away for weeks. I didn't think much of it. Then one day I woke up and I could barely walk. After about a week or so of constant pain I talked to my doctor who sent me to a specialist. From there it...
    ctredsoxfan ctredsoxfan 41-45 21 Responses Sep 25, 2010

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    I am 43 year old mother of two

    who feels one hundred. I ruptured a disc in 2011 and lost use of my left arm. I chose not to have surgery for the outcome would be the same according to a surgeon I saw. After 3 epidural injections my pain disappeared. I had to wait a year to put weight on my arm but I...
    spineallmess spineallmess 41-45, F 1 Response Jan 20

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    I'm Looking To Find Someone with Spinal Stenosis Who's Had Surgery...

    The lower 5 lumbar segments of my spinal column are in poor condition. I suffer from neuropathy in my feet, low back pain, and pain in my legs. I receive epidural injections to my lower back about every 3 to 4 months. I use Motrin and Norco to supplement the epidural. I recently...
    jmsatc jmsatc 61-65 5 Responses Jun 6, 2010

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    I Have Spinal Stenosis

    my Dr. is great i am lucky enough to live in Canada so i was able to get approved for Medical Marihuana by the Government. When i smoke it takes the pain away, you are able to cope and not dwell on the pain as much. just a little info for everyone.
    thom10 thom10 46-50 1 Response Jan 28, 2013

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    I have been diagnosed with Spinal Stenosis

    and degenerative disc disease. Also I seem to have a bulging disc. My lower back is in a lot of pain. Meds and the epidural shots did not and do not help at all. So I just stay in constant tormenting pain all the time. My fiancé says I cry out in my sleep when I do sleep. Now...
    markemark03 markemark03 51-55, M 1 Response Mar 28

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    Story Update - Mayo Clinic Visit

    So... a 2 1/2 month wait for the "appointment" at Mayo Clinic. So much pain and waiting with a scare that I would run out of pain pills once during that time, I would die without the pain pills (or so it would seem). My first Neurologist appt. was a little anti-climatic. She did...
    tpat1515 tpat1515 61-65 3 Responses Jul 30, 2012

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    I was just recently diagnosed with cervical

    stenosis at the c5c6 level. It's been compressed to 7mm. I have a herniated disc that's causing it. I also have degeneration that's causing the herniation. I'm really scared of paralysis! Does this mean one day I will be or just in pain the rest of my life? Anyone who has been...
    swan88 swan88 31-35, M 1 Response Oct 9

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    There Is Help

    go to www.clicical trials.gov. its no cost to you. its a brace they put around your spine. its called acadia facet replacement system.
    jewles1968 jewles1968 41-45 Dec 15, 2012

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    Severe Spinal Stenosis

    I have had a bad back all my adult life.  Managed to always stay active and worked through the pain.  About 10 years ago I had a bad time with my first diagnosis of spinal stenosis and was told to have a spinal fusion.  I refused and was literally dismissed by the...
    hurtingcookie hurtingcookie 56-60, F 1 Response Nov 3, 2010

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    My S.s. Experience, Condition And A Few Questions

    Hi there, I'm 31 y/o and have had back pain since I was 19.  I was diagnosed with spinal stenosis and degenerative disc disease summer of 2009.  Although I've dealt with back pain for 12+ years, I've always been able to bounce back.  In May 2009, however...
    splar splar 31-35, F 3 Responses Feb 28, 2010

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    Im Scared

    i have spinal stenosis for man years and it keeps getting worse i also have some neuropothy (nerve damage) including sciatica but this last month my hips and legs started to hurt very badly and now im in constant pain and cant walk and barely can sit up. I went to the hospital...
    Daddyskitten21 Daddyskitten21 31-35, F 7 Responses Aug 17, 2011

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    Billie

    It doesn't take long before a constant pain in the thigh muscles of both legs, that will not disappear, for you to think thats its a bit more than over exertion. A talk with my doctor meant that I probably had.. 'what most people get as they get older, a little bit of arthritis...
    trroberts trroberts 61-65 3 Responses Nov 13, 2011

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    It's What!?

    About three years ago I started getting pain in my lower back just above my butt, I thought it was arthritis. about a year and a half ago it was real bad and I went to a chiropractor that said ya its just arthritis. Well, after about 12 visits it was getting worse. about that...
    dneller18 dneller18 51-55, M 2 Responses Jan 4, 2011

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    31 Year Old Male With Lumbar Stenosis (contemplating Surgery)

    Hello all. 3 or so months ago, i was lifting my son out of the tub, and felt a severe pain in my lower back. Anyway, it got progressively worse in a matter of days, and moved into my legs (predominantly my right). I went to an urgent care clinic who said it was a pinched...
    handscc handscc 31-35 4 Responses Mar 28, 2011

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    ACDF &Amp; Removed A Bone Spur

    Hi guys, its been a while since I posted and realized tonight that I really needed to send an update. Quick summary, my pain started in May 2012, followed by a diagnosis of Cervical Spinal Stenosis, Degenerative Disc Disease, a bulging disc at C4/5, and a ruptured disc at the C5...
    rtpbbcub rtpbbcub 26-30, M Jul 9, 2013

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    What Now

    I have just been diagnosed with Lumber Spinal Stenosis. With compression of the nerve root L5 . Have been off work for 7 weeks so far just trying to get myself mobile without causing to much discomfort it seems like two steps forward and one back. I know it could be far worse but...
    Carter6060 Carter6060 61-65, F 5 Responses May 22, 2013

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    Denied Lumbar Spinal Fusion - What to Do Now?

    September 12, 2008 I am writing to ask for your help with a serious health care situation that I am currently facing.  I have what I thought was excellent insurance coverage (through my employer-sponsored health plan) but quickly found out that this was only an illusion...
    alicesweetalice alicesweetalice 41-45 16 Responses Sep 12, 2008

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    Seems Like The End

    In 2007 I had back surgery for stenosis at L5-S1, which helped. Fast forward to 2012, I start having severe back pain from the cervical down to the lumbar area. After having the MRI and myleogram I'm diagnosed with severe stenosis throughout my entire spine and almost every disc...
    nature55 nature55 56-60 Apr 17, 2013

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    I have Spinal Stenosis.

    Was diagnosed two years ago. On bad days, it feels like a short circuit in my brain. Like the wires are live. It is all on the left side of my head. I have lost lots of strength on my left side. Doctor told me to learn to deal with the pain.
    jaml jaml 41-45, M 4 Responses Mar 29

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    Oh Crap!

    I went back to Mayo Clinic because I cannot walk and am having severe Sciatica pains for about 3 months now. Took in my MRI and saw the Neurologist and the Neurosurgeon. They both concluded that I need to have another surgery. This time Lumbar surgery (Last time Cervical surgery...
    tpat1515 tpat1515 61-65 May 24, 2013

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    Wtf!!!!!

    I was at work about 10mths ago and i was doing the normal routine lifting pulling and some labouring when my back just went. I was in pain and it was so weird cos when i hurt myself i usually just walk it off but with my back i could hardly walk at all. I had a few days off but...
    mattjess mattjess 26-30, M 1 Response May 20, 2012

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    So Confused

    Hi there I am 36 and trying to figure out what the heck is going on with me. I sustained an injury at work and in the process of trying to address the pain, the doc found I had spinal stenosis. He was really laid back about it, said it wasn't a big deal, gave a a script for PT...
    nessie104 nessie104 36-40, F 2 Responses Nov 16, 2013

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    I Have Spinal Stenosis .need Some Help Info Please ....

    Well I just got a diag for Spinal Stenosis two weeks ago . I do not know what to do .. Does anyone know if you can Apply for SSI while you are working part time ? I just don't know how to supplement my income for I can not work full time anymore . Does anyone have any suggestions...
    Travis1982 Travis1982 26-30, M 3 Responses Oct 24, 2012

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    Depressed And Scared

    I have known that I have spinal stenosis for about a year, however I have had back pain for many years before that. Over the past year I ended my career of 23 years because it was too physical. I have started a new career which is less physically demanding but I am still finding...
    punk157 punk157 41-45, F 1 Response Sep 22, 2013

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    History Of Spinal Problems

    Back problems have pretty much plagued me since my early 20's . I'M now 53 and have surgery scheduled on this coming Monday April 1st. I'VE been seeing pain mgmt for last 6 years and at first the epidurals -facet joint injections and rizotmies gave me considerable relief up...
    whiskeypapa whiskeypapa 51-55, M 2 Responses Mar 26, 2013

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    Me...

    Life hasn't been easy on me for the past few years, but then again who has it for? I try to keep my focus on the positive & lately have been learning how to do that. It's not like we're born with instinctual characteristics that make us embrace the hard times, or sometiens i...
    kimberlylynnc kimberlylynnc 31-35, F 1 Response Mar 29, 2012

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    My Mayo Experience - The Surgery

    I know it's been a long time since my last post, but it's been a very difficult time. I spoke to the surgeon (after an intensive examination by two Neurologists) and she came to the same conclusion that I already figured out in my mind. She decided that I required a 5 level...
    tpat1515 tpat1515 61-65 Feb 8, 2013

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    Spinal Stenosis And Degenerative Disc Disease

    I have had the above diseases for a few years but over the past year the pain has become much worse. I have had several steroid injections and I.M. injections but they have not helped. My doctor tells me I cannot have more steroids now. What is the next step? I am in lots of...
    7054a 7054a 66-70 3 Responses Sep 29, 2012

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    A Whole New World

    Hi, My name is Amber and I am 31 years old.  I live in Des Moines, Iowa.  I am in the process of trying to get help for my spinal stenosis, and am having a very hard time dealing with this change in my life.  I have always been an active, hardworking person, and...
    akmiller78 akmiller78 31-35, F 2 Responses Feb 3, 2010

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    Lumbar Spinal Stenosis

    On 11/2/07, I was at work, and went to do an ear lavage on a patient (involves washing their ear until all excess ear wax comes out). I just bent the wrong way and twisted, and displaced 3 discs in my lower lumbar region. I'd never experienced such pain. I had to have a friend...
    Warmthoughtsofyou04 Warmthoughtsofyou04 26-30, F 6 Responses May 7, 2008

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