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I Have Spondylolisthesis

Spondylolisthesis anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Spondylolisthesis. You're not alone. 214 People

    I got diagnosed last year (2013) in November

    and have been in Physiotherapy ever since. It's not high grade, but it is enough to bother me. We found out that the misalignment happens in my sleep due a weird sleeping position, so now I'm wearing a back brace (TLSO) to bed in order to keep my spine straight. That seems to...
    Ryan130376 Ryan130376 36-40, M May 23

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    I find myself trying to find more people like

    me. However not coming across many. I see many of you have grade 1-2 slips, not to many with a grade 4-5 slip like me. Not any that I have read who have been told they will be paralized from the waist down in a few years. Having no one to talk to is depressing. I don't want to...
    Alli6372 Alli6372 31-35, F 2 Responses Jan 20

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    Hi, i have grade 5 spondylolisthesis,

    i was diagnosed when i was a freshmen in high school. My athletic career went down the drain! i have had four back surgeries, probably a 5th after i graduate from college to remove the screws but from nerve damage, i now have foot drop. I am only 20 years old. pretty crazy if...
    Ginaabean Ginaabean 18-21, F Mar 25

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    Living With The Condtion

    Hi, It all started when i fell down some stairs when i was in my teens causing my condition to be worse. At the time i didn't know i had a problem until I suffered severly with my back. It took Two years and different Dr's before being diagnosed. I had surgery to help which...
    MIni01 MIni01 41-45, F 1 Response Feb 21, 2013

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    I have been diagnose with spondylolisthesis

    grade 3 and awaiting spinal fusion surgery l5 s1 and l4 and decompression.....I should be going in within the next 4-6 week.....I'm 28 years old and have a beautiful 16 month old daughter which I can't enjoy any activities with because of all the pain I have on a daily basis...
    Gussy031486 Gussy031486 26-30, F 1 Response May 31

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    Can't Sleep More Than 2 Hours

    I'll try to be brief. When I was 13 years old, I learned how to water ski. After skiing a few times, I started taking risks and tried to ride the wake of the boat. Well, of course I fell many times. One particular time, I fell hard. I was tired and went to get in the boat. Well...
    prissyrabbit prissyrabbit 41-45, F 2 Responses Oct 16, 2013

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    Degenerative Spondy

    So I am a 43 yr old hairstylist who has been standing at her job for 25 yrs and was diagnosed with degenerative spondyloisthesis. L4L5 apparently I have fairly advanced degeneration of the vertebra. I have tried special shoes, chiropractic, TENS, stretching, heat patches and I...
    TSnelson TSnelson 41-45, F 1 Response Aug 16, 2013

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    Living With Grade Iv Spondyloisthesis

    I am 28 years old and have grade IV spondylolisthesis. I underwent 17 hours of surgery in 2008 to fuse the problematic area (L4, L5 and S1) with titanium plaques. I first felt something wasn’t right at the age of 20 but the experts I saw in the U.K didn’t believe my back had...
    erasec83 erasec83 26-30 4 Responses Nov 22, 2011

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    Just Been Told I Have Spondylolisthesis

    I found out just over a week and a half ago that I have spondylolisthesis at the age of 28. At first I didn't take it all that well, the day after I found out I spent the day in tears, I couldn't contain myself, the tears just flood out, even in the que to pick my kids up from...
    Twingirls2007 Twingirls2007 26-30 8 Responses Jul 8, 2011

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    New Spondylolisthesis Website!

    I have created a new website for people with spondy, it is the first site that has forums and capabilities for others to share their experiences, ask questions to others and seek all the information they need to help them. There is some specific forums for parents and young...
    nikkicollier999 nikkicollier999 18-21 1 Response Mar 24, 2012

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    I Have Spondylolisthesis And Just Want To Talk To People Who Feel The Way I Do

    I am 49 years old soon to be 50 i have be dealing with my on going back problems since i got into the nursing field. I started out as a nurse's aide in high school and have always known that i wanted to be a nurse. So after high school i got married and did not go to nursing...
    toollady toollady 51-55, F 1 Response May 28, 2013

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    Anyone Else Experienced Similar To This?!

    Hi, i a 16 and currently a training dancer as a dancer injury is quite common and we are generally prone to it! So anyways I certain that I had torn my hamstring so my mum paid for me to have private PT where when doing a diagnosis said he feels it could relate to my back I then...
    Dancer0996 Dancer0996 16-17 Nov 21, 2012

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    A Single Operation Can Change Your Whole Life

    I am a 16 year old girl who had spondilosthesis since I was 4 years. It has taken over my life. My back is ugly and deformed. I have spent all my childhood in and out of the hospital. I've been on crutches for 3 years because I was too weak to walk properly. I have finally...
    Heihei123456 Heihei123456 18-21, F 2 Responses Apr 25, 2013

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    Just Found Out.

    I just found out I have grade 1 Spondylolisthesis. I told my doctor about my back pain not thinking he could actually do much (as it turns out I was right), but he sent me to get an x-ray. Which I was never planning on doing, since I go to college for dance.. my plan was to...
    priderock priderock 22-25, F 2 Responses Mar 28, 2013

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    So Glad I'm Not Alone.

    I am so glad there are other people who know what I'm going through. :o) A few years ago, I was living with mostly dull aches, and all the way to sharp, shooting pains in my left hip(or so I thought).  I really don't know how long it had been that way, I just lived with it...
    cmchamp13 cmchamp13 31-35, F 1 Response Feb 8, 2012

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    I Got Some Good News

    i played a lot of basketball in my teens and through my early 20's. After one game (@ age 16) my back was in a total spasm - one of my teammates had to untie my shoes! Diagnosis: back spasm, no x-ray, conservative treatment: muscle relaxants, warm bath, knees to chest, board...
    Stripesmom Stripesmom 51-55 1 Response May 11, 2011

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    Spondylolisthesis & Gi Problems

    Hi everyone! I found out 3 days ago I have level II spondo. I also had juvenile bunions. I have been going to doctors for the past 3 years for various symptoms for my GI tract. I would like anyone else who has various GI symptoms like IBS, constipation, heartburn with their...
    LizzyS LizzyS 26-30 2 Responses Aug 18, 2010

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    Laying Flat On My Back...again

    Hi my name is Marianne and am on my back again trying to heal so I can go to work.i am 56 years old and love my job as a hospice nurse. The pain I have had over the years has increased .... Now I have numbness in my thighs butt down my leg to my foot. Having my second epidural in...
    Myrn42189 Myrn42189 56-60 Nov 3, 2012

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    Newbie. Morning is bad don't know why?

    Don't remember getting any numbers associated with my diagnosis. 54 yrs old have had issues since 30s worse in last year. Stopped jogging but would like to know what physical activity is ok? Did PT work for any of you? Diagnosed this summer and that was all dr offered other than...
    emayess emayess 51-55, F 1 Response Dec 25, 2013

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    Hi, I was diagnosed a

    while ago with grade 1 spondylolisthesis. I had back pain and irritation in my legs and hips for a while before the diagnosis and thought no more of it other than symptoms of working out or simple fatigue from my job. I handled things myself for the most part with lots of...
    twilburn8 twilburn8 26-30 1 Response May 10

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    I was diagnosed with grade 1 slippage

    when I was 10. I was a competitive gymnast. My back had been hurting and I had thought it was just a muscle. I played soccer one day at school. I could barely walk during the game. After I sat down I couldn't get back up. I still play sports (quit gymnastics) so It always acts...
    sia909 sia909 13-15, F 1 Response Aug 11

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    My Spondylolisthesis Saga...

    No, I am not in pain 24/7, and I am very thankful for that. What I do have, as a result of my spondy is a neurogenic bladder. That means that my bladder isn't connected to my brain. About five or so years ago, I began having problems urinating. It was getting more and more...
    pipermac pipermac 56-60, M Apr 24, 2013

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    Part Of The 'lucky' 1%

    Ok, so i guess i start at the beginning? I initially went to my doctors complaining of lower back pain and pain in my hips, i'd been suffering for about a year (it only started due to waitressing). Due to my age she sent me for an x-ray. This came back showing i had a 'Pars...
    RawryW RawryW 22-25, F Sep 10, 2013

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    Spine Fusion In L3 L4 & L5 - - To Fuse Or Not To Fuse - Ay That Is The Question - Help

    I've got Spondylolisthesis and it's recommended that I get my L3,4& 5 fused.I'm 50. I also have DDD, Osteoarthritis, Sciatica, Arachnoditis, Scoliosis, AND every Disk in my Lumbar area is herniated on both sides.I DO NOT WANT Fusion, but don't think I have a choice. I sound like...
    EldoradoKennedy EldoradoKennedy 46-50, M 1 Response Jan 4, 2011

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    Extreme Lower Back Pain

    I have been told I have a Grade 4 slippage at S1, not only am I in extreme pain my left foot is also numb. In 96 I had fusion on L-5-4 & 3. That fusion is solid. It's below that now that is the problem. I have been dealing with this for 10 months now, the doctor I have been...
    misrenegade misrenegade 61-65, F 1 Response Jul 22, 2013

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    31 Year Old Dance Instructor With Spondylolisthesis

    Hi, I am new to the forum. I was diagnosed with spondylolisthesis less then a year ago. It was graded at a level 1. I also have osteoarthritis with some micro fractures and a bulging disc in the L5. I was told that my condition is most likely from being very athletic at a very...
    jen1dance52 jen1dance52 31-35 1 Response Jan 7, 2011

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    Just Diagnosed

    I was just diagnosed with grade II Spondylolisthesis . I am starting physical therapy next week. I was seen by the orthopedic specialist, and he referred me to a Neurosurgeon. Living with the pain is unbearable at times;however, I refuse to let this diagnosis define my future...
    bforsman bforsman 31-35 2 Responses Oct 12, 2012

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    I Have Retrolisthesis

    Hi I am new to the site,I am 57yr old lady, and  I was diagnosed with Degenerative Disc Disease and Retrolisthesis back in August last year, my life has gone downhill rapidly since about April last year, suddenly started getting bad lower back pain and terrible pains in hip and...
    Suedella Suedella 56-60, F Jan 4, 2011

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    I am 48 and was diagnosed with

    Spondylolisthesis at 24 when I was in a car accident. I was an athlete and had worked through various pains throughout my life and didn't think much of it other than they explained it was degenerative. I've had times when I was in pain for weeks and every weekend after...
    ranger170 ranger170 46-50, F Feb 11

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    Diagnosed 4wks After Birth Of Second Baby

    I came down with sudden back pain when my newborn was 3wks old. It was so severe i would scream into a pillow & could not work out where the pain was coming from. After a week of acupuncture & trying to look after my 2 babies it got worse. I woke one morning & could not put my...
    3 Responses Jan 30, 2013

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    I Would Love To Hear Off Anyone In The Same Boat!!

    Hi all,Well seen as I have just joined this group I guess I should start by telling my story of how I got here!! Any advice or anyone who wants to chat who are going through the same as me would be much appreciated!!I woke up one Sunday morning last September 2011 and an hour...
    gemmadarby gemmadarby 26-30 8 Responses Mar 2, 2012

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    Spondy Has Overtaken My Life

    I have had Spondy for most of my life (since childhood). It used to be a random thing where it would come and go by doing something to agitate it, but over the last couple years, I'm noticing it getting worse. The flare ups are happening more, even though I live a healthy...
    JD01 JD01 31-35, F 19 Responses Sep 2, 2010

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    Hmm... I Have Spondylolisthesis, And Have A Few Questions...

    Hi, I'm a 35yr old (female) and have a grade 1 spondylolisthesis at L5/S1.  My consultant recommends that I have a spinal fusion as the pain affects everything I do in my day to day life.  The pains that I get shooting across my buttocks and down my legs are unbearable, and...
    jac2211 jac2211 31-35 12 Responses May 15, 2011

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    I Want My Back/leg To Stop Hurting!

    Hello!  I am a 48 year old woman who was diagnosed with Grade 2 S1-L5 Spondylolisthesis almost a year ago.  It all started on June 21, 2010....it was my first day back to work after being off for 6 weeks for a Hysterectomy.  I began to have pain in my right butt cheek...
    smiller0206 smiller0206 46-50 5 Responses Jul 13, 2011

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    Not Good!

    I am a once extremely actively 41 year old with stage four spondolythesis. I was diagnosed with scoliosis when I was thirteen. I didn't wear the hideous all encompassing body brace that I was to wear all day except to bathe. Nothing else was done. I remember being around ten and...
    1yosemitejenn 1yosemitejenn 41-45, F Jan 28, 2013

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    I'm A Son Of A Spondylolisthesis Patient About To Recieve Surgery

    November 25, 2012 I've come for some guidence and clarification. My mother was born deformed and over the years, having three kids her condition has worsened, she is 44 years old. She is leaving for on the 12th of December for surgery if she is home for x-mas we do not know...
    NobleEffort NobleEffort 13-15 2 Responses Nov 25, 2012

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    Bilateral Pars Defect With Grade 2-3 Slippage L1 S5

    I was diagnosed 5 years ago.  I haven't been back to a doctor for this condition since then as there doesn't seem to be a cure.  How does everyone deal with the everyday pain and limitations.  I have searched the internet for years trying to find something that...
    kathy90 kathy90 56-60, F 4 Responses Mar 24, 2010

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    A Life Changed

    I had surgery in december 2009 just after I turened 18 to fix grade 2 spondylolisthesis. L5/S1 was rapidly slipping and a clear lump on my back (which was the slipped spine) stuck out. My surgeon at Hallamshire Hospital in Sheffield said there was clear bilateral pars defect and...
    graceandstrength graceandstrength 18-21, F 3 Responses Dec 13, 2011

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    I'm 33 and a Paramedic

    that recently was injured on the job. They found Grade 2 almost 3 degenerative Spondy. In April it was a grade 1 and I had no idea until I had X-Rays that were taken in April sent to my spine doc. That being said I have had pain that has become worse and worse over the past...
    Mac0317 Mac0317 31-35, M 1 Response Jan 11

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    Unwelcome Bump In The Road...

    I'm here at a crossroads - surgery or not.  Five years ago there was a "pars defect" and then two and a half years ago testing showed a grade two slippage at the L5-S1 level (isthmic, unstable).  After six months of PT...
    rkymtnbloom rkymtnbloom 56-60, F 17 Responses Nov 27, 2009

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    10 Yr. Old Daughter Just Had Surgery

    She broke both the pars coming off the L5 unknown to us all. She never complained of pain until she became very active in sports. The bones had worn away. There was a cm between them. Her disc was slipped, squished, and she had a grade 1 slip. Therapy did nothing. She...
    Kasey79 Kasey79 41-45 1 Response Aug 27, 2012

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    Hopeful Victim Of Spondylolisthesis

    I am 29 years old and was very healthy and active all of my life. I danced, played soccer, softball and did karate growing up. A season didn't go by without me being involved in at least one activity. When I was 16 years old and playing soccer on 2 different teams, I began having...
    MetalChick07 MetalChick07 26-30, F 1 Response Dec 19, 2012

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    Confused Alone And Terrified

    I'm so glad to finally find a place where people will understand what I'm going through!!I'm 22 and have been suffering with leg and back pain since I was 15, All started when I used to dance and I began experiencing shooting pains down my left leg. This was palmed off as...
    lindsb lindsb 22-25 5 Responses Jan 10, 2012

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    Hi I’m Nadine I’m 37 And I Have Had Spondylolisthesis For 15 Years Now

    Hi I’m Nadine I’m 37 and i have had spondylolisthesis for 15 years now, i have tried many different medications and different types of pain relief such as acupuncture , hydrotherapy , spinal injections, back brace and physio. I found the spinal injection help a lot but...
    nadedolly nadedolly 36-40, F 2 Responses Mar 23, 2012

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    Going Thru This Again...

    I had spinal fusion done in 1998 for Spondylolisthesis at the age of 42 fusing the L5 to S1.  It took over a year to recover, since I had several other things go wrong at the same time, but once I  recovered I felt great and was doing things I...
    sugarnspice33 sugarnspice33 51-55, F 4 Responses Sep 27, 2009

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    11 Years Old With Spondylolisthesis

    My life with spondylolisthesis at first was absolutely one of the worst times of my life, I am very flexible and double jointed so when I was little I did gymnastics, karate, and cheerleading. By the time I was in middle school I barely could walk without feeling severe pain in...
    inulover1319 inulover1319 18-21, F Sep 5, 2012

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    I Was Diagnosed With Spondylolysis But Now I Am Pain Free!!!

    I am 39 years old asian woman living in The Netherlands. I came across this site and I felt so sad after reading some sad stories. First of all, I was diagnosed with spondylolysis( L5-S1 grade1) when I was 26 years old....since then I was living in pain....the pain strikes when I...
    asianbuttefly asianbuttefly 36-40, F 1 Response Sep 8, 2012

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    I Am 29 Years Old And Have Spondy

    Hello I'm 29 years old and I have spondylolisthesis in my L5 grade 2 I was diagnosed at age 27 I went to the chiro that my sister recommended I got an xray and diagnosed. I went for only 2 adjustments but wasnt able to keep up with it because I couldn't afford it. Then a year...
    Martinie13 Martinie13 26-30 Oct 11, 2012

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    5 Year Old Daugther With Grade 3 Lumbar Spondylolisthesis - Scared Mom

    I am also new here. My daughter was diagnosed today with lumbar spondylolisthesis grade 3 on the 4th lumbar. She also has mild scoliosis, which is surprisingly enough an unrelated issue. At the moment, they are watching her since she is so young. They don't know if she is in pain...
    MomofNoelle MomofNoelle 31-35 4 Responses Oct 28, 2010

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    My Husband Is 27 Years Old Suffering From Spondylolisthesis

    Well, where do I begin?  My husband got hurt at work (salesperson/account manager) where he basically was doing his usually duty of stocking shelves at a supermarket of the product he sold.  He was lifting a couple of cases which wasn't out of the ordinary OR nothing...
    boo1027 boo1027 26-30, F 5 Responses Sep 30, 2009

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    My Spondylolisthesis Is Now A Level Three: What To Do?

    Hi! I've had problems with my spine all of my life, beginning with congenital spinal deformities. I had scoliosis surgery as a teenager. I was always scrawny and kind of awkward/uncoordinated as a child, but I got strong when I was given physical therapy exercises prior to...
    KaraLin KaraLin 51-55 4 Responses Oct 3, 2011

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    Exercise With Grade 1?

    Hey guys I have spondylolisthesis grade 1, just like my father before me did. It started last winter (I'm 18 now). I had really bad pain in my legs, but since I started taking an antidepressant (a SNRI), using a lumbar support in the car, sitting with better posture, and doing...
    noahlschneider noahlschneider 18-21, M 2 Responses Jul 31, 2013

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    Related Experiences

    It's real hell to live with it.I can't make friends,i have hard time talking to some people,i avoid eye contact,i walk around in circles all the time,i shake my hands,twirl my...
    00pleasehelpme00 00pleasehelpme00 18-21 1 Response 3 hrs ago