I Have Sprengel Deformity

A Sprengel Deformity anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Sprengel Deformity. You're not alone. 8 People

    I Have 2 Daughters Who Have Sprengel's

    My 2 daughters( now 13 and 16 years old) were diagnosed with Sprengel when they were 3 months and 1,5 years old. They are both not operated. My oldest daughter is the "worst" and we couldn't find someone then who would operate, because its very rare in the netherlands. We were...
    lallys lallys
    46-50, F
    1 Response Jul 2, 2012

    I I've been suffering with this condition

    and the pain is to much to deal with attending physio again but basically nothing they can ....does anyone any thoughts on this if so please help
    noelaine noelaine
    46-50, F
    1 Response May 7, 2015
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