I Have Steatocystoma Multiplex

A Steatocystoma Multiplex anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Steatocystoma Multiplex. You're not alone. 41 People

    Steatosyctoma Hell

    Hi everyoneI am a 43 year old woman who has had sm since the age of 8.  I have the cysts all over my whole body with palms of hands and soles of feet as the only areas that are free.  I suffer from multiple boils/abcesses all the time and have hundreds of scars to go with the...
    Velvetene Velvetene
    41-45
    7 Responses Oct 11, 2011

    Account Of My Experience

    Olá   Meu nome é Anna, tenho 28 anos e moro no Brasil. Eu e meu irmão somos portadores de Steatocystoma Multiplex desde os 13 anos, herdamos a doença de nossa mãe que também apresenta a mesma patologia. As principais áreas afetadas do meu corpo são as costas, o pescoço...
    annacruz82 annacruz82
    26-30
    2 Responses Jan 6, 2011

    Had It Most Of My Life.

    I'm 53 and have had sm since about 12. The only place I don't have it is on palm of hands and bottom of feet. Have tried a few things over the years, accutane, antibiotics, even surgeries, with little improvement. I have a great derm and great plastic surgeon. together they keep...
    cantfixit cantfixit
    56-60
    1 Response Apr 12, 2013

    When Will Be The End Of My Tears

    Hi guys, I started to notice a number of cyst under my armpity when i was 13 am now 22yrs old,they then  increase behind my back,chest and around the neck. I began to attend to the hospital after i join the O-level studies, i was given different types of medicine some they...
    lutinvo lutinvo
    18-21
    Mar 12, 2012

    Biggest Frustration? My Skin!!!

    hi guys, i'm 32 yrs old, i'm a Filipina, i have SM since i was 13 it started to came out more as i aged. right now i have it around my neck, chest, armpit, abdomen area, lower arms, back, butt and at the back of my thighs. i have few on my neck and armpits. but i have a lot of...
    flaws14 flaws14
    31-35
    2 Responses Jul 26, 2010

    I Would Like To Cure It

    is there any one know how to treat that disease
    ngowi ngowi
    22-25, M
    Sep 25, 2013

    Teatments

    Hi all, I have had SM for roughly 15 years now and I am now ready to do something about it. I have been in talks with a company in Seoul, Korea who say they have treated over 500 cases. I have sent them photo's of my condition and they have ran through time frames, costings and...
    hab84 hab84
    31-35, M
    4 Responses Aug 29, 2013

    Desperate For Sticking Needles In Them

    I'm 28 now and diagnosed for Steatocystoma Multiplex by the age of 17. ( After being misdiagnosed for acne for a long time, taking a few pills and using different kinds of medicated creams). It started when I was 12 or 13. These bumps were not unknown to me...my mother and...
    sabina23 sabina23
    31-35, F
    2 Responses May 24, 2011

    I Have Ups And Downs With My Sm

    I first noticed a couple of small cysts at the side of my ribcage when I was 16, but from a couple of years before that I had a pitted-looking chest, right on my breastbone where my bra sits, which I had always assumed was acne as I also suffered with that (though only moderately...
    CF86 CF86
    26-30
    1 Response Mar 5, 2012

    This is Kob's experience.

    (His Steatocystoma multiplex experience) He lives in Europe. http://steatocystoma-multiplex.webs.com/
    nadiclinic nadiclinic
    51-55, M
    2 Responses Mar 30, 2015

    My Story

    Hey everyone. I think I've had this cognition for 12 years. The cysts have appeared over the years and I've always been too afraid to go to the doctor about it, didn't really know what it was. Just thought it was acne. I recently went to a dermatologist and they diagnosed it...
    Maekep Maekep
    26-30
    2 Responses Jan 10, 2013

    I Am Not My Skin

    I've had this skin disorder since about age 12 or 13. I am now 37. I learned early on that there's nothing I can do about it so I just live with it and try to be positive. I feel that one day I will stumble upon a cure for this disease. I might find it in a book or on the...
    onlyskindeep onlyskindeep
    36-40
    Jul 27, 2008

    A Glimmer Of Hope...

    I am 62 years old and have had steatocystoma multiplex most of my life.  I can tell you that it seemed to get worse when my hormones were raging in my younger days or when I was under tremendous stress in my life.  Now that I'm older, it is lessening.  My father told me...
    joeyw1949 joeyw1949
    61-65
    1 Response May 22, 2012

    Look Above And Beyond Imperfection

    prior to realizing what i have, i have skin allergies, my skin is sensitive to sun, perfume, and im allergic to seafood and poultry and chocolate. when i was 26 years old i noticed that scratching the skin under my arm reveals unusually bumpy white stuff. so i went to the...
    riverstorm riverstorm
    31-35, F
    Aug 7, 2013

    I too have SM. At first I was terrified

    that something was seriously wrong with me and I was going to die. I was relieved when I finally found out what was wrong, I had a genetic condition. The doc that diagnosed me was really cool, she gave me great advice and took pictures of my chest to show her medical students...
    KhalJordel KhalJordel
    36-40, M
    1 Response Feb 8, 2015
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