I Have Stuve-wiedemann Syndrome

A Stuve-Wiedemann Syndrome anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Stuve-Wiedemann Syndrome. You're not alone.

    Possible Oldest Survivor Of Stuve-wiedemann Syndrome

    My name is Cami and I am 22 years old and my sister is 20. Although we have both gone most of our lives not having a diagnosis, I have recently been genetically tested and diagnosed with Stuve-Wiedemann Syndrome. My geneticist has told me that I am the oldest documented case that...
    camismith08 camismith08
    22-25, F
    3 Responses Apr 9, 2012
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