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I Have Superior Mesenteric Artery Syndrome

A Superior Mesenteric Artery Syndrome anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Superior Mesenteric Artery Syndrome. You're not alone. 44 People

    What's Best To Eat?

    I was having awful pain for months and lost alot weight. I am currently 6 stone! I was lucky because I was in a French hospital with the pain and it only took then 9 days to diagnose it! But now they want to put tubes in my nose to feed me and I can't do that! I hate things being...
    Rachc0125 Rachc0125 22-25, F 4 Responses Jul 26, 2013

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    My daughter has smas

    and is being cured by tilting upside down at a 45% angle on her back with arms over her head.She was looking at a surgical feeding tube after two years of fighting to avoid surgery.The doctors had her try this while she was hospitalized.three days later was eating normally...
    racheldunkley racheldunkley 41-45, F Apr 6, 2014

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    Finally I Have An Answer

    After almost 2 years of pain,weight loss,vomiting, and no answers from my doctors...I finally have been diagnosed with SMAS. It seems the cause was my slim build, and I have only gotten smaller, basically wasting away over this past year. I have a appointment with the surgery...
    Lodom38 Lodom38 36-40, F 3 Responses Aug 28, 2012

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    I've been diagnosed with SMA syndrome

    for a year. I started experiencing symptoms at 16. I was an incredibly stressed student. I was constantly studying and taking AP classes. When I started having symptoms I lost 20 pounds in two weeks. Because I have always struggled with my body image, my family and doctor...
    jfletcher jfletcher 22-25, F Apr 26

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    First I Do Not Have SMA

    I have a good friend who is a 55 yr old lady who has been having multiple GI problems for several years. was diagnosed with Lupus and it seems every symptom she has is always blamed on the lupus. Now she has self treated herself by not eating solid foods, only certain liquids...
    Deidman Deidman 61-65 1 Response Aug 6, 2013

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    My Sma Story

    Well this all started a few years ago. Apparently some of my arteries constricted the duodenum, due to being to thin. All my life I have been made fun of for being "anerexic" i was always "bones" "twiggy" or "the skinny girl" no matter how hard I try, I still have problems...
    GettingStronger1994 GettingStronger1994 18-21, F 2 Responses Jul 21, 2012

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    Hi I'm 14 and a couple of days ago I was

    diagnosed with SMA. I had lost weight recently, and last Friday morning I woke up with severe upper gastric pain, then started sicking up bright green bile. I was admitted to hospital and I am still here now. I had a bearium xray and ultrasound along with other tests. I was...
    ngreen1 ngreen1 13-15, F Jul 8

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    So I am a 28 year old man,

    in good shape. I just found out I have SMA. I was released from the hospital after 100's of tests. But I'm glad I finally know what I have. Has anyone else wondered why these unbearable pains start later in life??? So now I'm at a crossroad, has anyone had the surgery?
    Legendary504 Legendary504 26-30, M 1 Response Jan 26, 2014

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    A new resource for those with chronic invisible

    physical illness, including SMA Syndrome: Reddit.com/r/CROCUS
    ISavedMyself ISavedMyself 26-30, F Feb 28, 2014

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    It took forever to get diagnosed.

    So many tests. I was being passed off as anorexic. only reason I'm still among the living is my dad's a retired surgeon and suspected it. he pushed and pushed to have the gi guy order a simple barium swallow to check stomach emptying. voila, it was there. without my dad...
    StarvingNotHungry StarvingNotHungry 51-55 1 Response Mar 20

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    I'M Fighting SMA.

    I'm 56, have always been fit. Lived in the gym doing weight competitions, yoga, and felt fantastic. I weighed 125 at 5'5 All muscle. Two years ago, my problems began with abdominal pain, nausea, and difficulty eating hardly anything. Weight fell off with months. I...
    Sereneme56 Sereneme56 56-60, F 6 Responses Mar 7, 2013

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    My 9 Year Old Son Has SMA

    1 year ago my 9 year old son was diagnosed with SMA after 6 months of back and forth visits to different doctors. He had severe stomach pain and would vomit and had trouble using the restroom. With the help of an amazing doctor and tons of boost/dualcal and other weight boosters...
    Candez10 Candez10 31-35, F 3 Responses Apr 6, 2013

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    I Have SMA Syndrome

    Hello, I'm 13 and was diagnosed with SMA six months ago. I have been battling stomach issues my whole life, but just recently they got really bad. I lost 15 pounds in less than 3 weeks from my already thin figure. My doctors didn't know what was wrong and I under went a series...
    L3na L3na 13-15, F 2 Responses Jul 15, 2013

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    Is there anyone who has pain in night,

    too? I had a Transposition of the superior mesenteric artery in Germany by Prof. Sandmann last year. At first the result was very good. I have got back my life. Since few month I have a rezidiv and now my doctors have fear about a new surgery. Only Prof. Sandmann in Germany is...
    lebenskuenstlerin lebenskuenstlerin 46-50, F Jul 21, 2014

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    Wondering What To Expect Now....

    Hi, I am a 49 year old female , 5'9", I was 120 pounds until recently .I now weigh 96.Have been feeling bad since February, Went through all the channels that led to the diagnosis of Sma syndrome, just had lapriscopic surgery to" fix" the problem Monday, have been in...
    anginchains anginchains 51-55, F 1 Response Jul 19, 2013

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    Been Suffering For 4 Years Now...

    I am a 30 yr-old female that was diagnosed w/ SMA syndrome in May 2010, after about a yr & 1/2 of extreme abdominal pain, nausea, vomiting, and continual weight loss (which only made things worse). It took three GI doc's b/f I found one who knew what was going on. I have had 2...
    minderella333 minderella333 26-30, F 7 Responses Apr 29, 2012

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    I am 13 now. I was diagnosed with it

    when I was 12. For a year my life was on hold. I had a major bypass surgery and now i am all better now. Please tell me if there is someone else like me out there. It is very rare and between 1861 and now there has only been 500 known cases in the English medical thingy. lol idk...
    princesshayray princesshayray 13-15, F 1 Response Jul 21, 2014

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    SMA

    I am a 42 year old female and in january 2011 i was taken to hospital with severe stomach pains, after ct scans doctors realised that part of my bowel had died i think this was about 20 cm 12 days later i was let home only to suffer more severe pains after i was eating i couldnt...
    kelley42 kelley42 41-45, F 1 Response Sep 19, 2013

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    After a decade of unexplained chronic pain,

    I finally have a diagnosis. It began with the loss of my ability to run, and I have undergone four surgeries, multiple ultrasounds and CT scans, a HIDA scan, X-Rays, an MRI, and years of physical therapy and pain clinic regimens before finding the cause. SMA syndrome is an...
    ISavedMyself ISavedMyself 26-30, F Jan 29, 2014

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    I am 13 years old. I have been sick

    for around 10 months. It started as what appeared to be a stomach bug but has continued for months and months. They removed my gallbladder and my appendix. They had to put a tube in and when the tube stared to malfunction, they had to go in and take it out. I have been put to...
    deleted deleted 26-30 1 Response Mar 23

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    Related Experiences

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    Louise13GBS Louise13GBS 56-60, F 4 hrs ago

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    Would like to hear from anyone who would be willing to share serotonin syndrome experiences.
    monser monser 56-60, M 2 Responses 1 day ago

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    I have to say, that this has been an extremely long road. My husband has Asperger's. We didn't know, we had a pretty normal life for the first two years or so. After we had a...
    DeeDoo1 DeeDoo1 41-45, F 3 days ago

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    I was diagnosed with Basal Cell Nevus Syndrome in July 2015. Basal Cell Nevus Syndrome is a rare genetic disorder that affects 1 out of 100,000 people. I have a 50% chance of...
    Damocles19 Damocles19 13-15, M 1 Response 3 days ago

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    I have Asperger's syndrome and Selective mutism. I do talk but sometimes my voice cuts off and I am unable to, I can't explain this but it can be quite a hinderance. I feel that I...
    Randompi Randompi 13-15, F 1 Response 4 days ago

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    I'm a 13 year old girl. and I have Brown Syndrome. As much as I try to ignore it. it prohibits me from doing more than people would think. I can't play staring games with my...
    Jay3421 Jay3421 13-15, F 4 days ago

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    OMG I'm just going to say it all at once. 1st mechanical pencil graphite 3rd grade-ish saying just because of the scar. 2nd pitch fork through my left foot 3rd stepped on mason...
    Lhokw Lhokw 18-21, F 6 days ago

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    Just because I have Aspergers doesn't mean there's anything wrong with me, my final grades in high school were average and I'm considered to be one of the smartest people in my...
    BriarRose96 BriarRose96 18-21, F 1 Response a week ago

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    I've always been much better than most men at multitasking, I wonder whether that is due to the Klinefelter Syndrome?
    KSPerson KSPerson 46-50, M 1 Response a week ago

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    how is it with someone with aspergers syndrome? I have it. I had one serious relationship. I wonder if its very miserable being with me. since she cheated and my other short...
    kittyanthony kittyanthony 22-25, M 1 Response a week ago

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    "I hit you because of what you said to me"- those were the words of my soon to be husband. He hit me exactly a week before our church wedding... In my home country, every Lent on...
    Marife7128 Marife7128 51-55, F 2 Responses Aug 27

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    Howdy! I was born in 1961 with several congenital defects, most corrected by surgery. Soon after birth, the medical staff saw immediately I had both a heart defect and a fistula...
    just2curious2 just2curious2 51-55, M Aug 27

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    I can't seem to go in a public bathroom if someone is in there. This ruins my school days and field trips where I've had to hold it in until I get a free moment at school. My...
    GhettoMemeing GhettoMemeing 13-15, F Aug 27

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    I was just recently diagnosed with fap - gardeners syndrome .. It's very scary at 17 having to deal with this , and since it is as rare as it is I have no one to share it with or...
    Escapeyourthoughts32 Escapeyourthoughts32 18-21 2 Responses Aug 27

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    I am a 32-year-old male. I got sick with the stomach flu at age 12 and was left with rumination syndrome, or something close. Within a couple of weeks of getting sick, I...
    nthgmvs nthgmvs 31-35, M Aug 25

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    I find it interesting that when basic decency and integrity is thrown out the window and we comment on it, we are considered haters and asked not to judge. Somehow those two...
    lovenlearn lovenlearn 41-45, F Aug 25

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    I posted a question about oaths -- I asked if Christians took them, then posted a passage where Jesus says not to do it. Now, as you might suppose, there were plenty of Christians...
    emperornorton47 emperornorton47 56-60, M 2 Responses Aug 25

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    I think women are foolish to Pretend that they are equal to men, They are far superior and always have been! William Golding
    darlingrose darlingrose 70+, F 6 Responses Aug 24

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    Hi im 16 and i've had rumination syndrome for 2 years now. When it first started happening for what i can remember it was only tiny bits that would come back up after i ate and...
    brookechambers2 brookechambers2 16-17, F Aug 24

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    So many EP people complain about trolls, who seem to be overabundant on this site (of course, very few privacy settings so that even a robot can create an EP account, no anti...
    Drastine Drastine 18-21, M 6 Responses Aug 23

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    Does anybody have a GOOD experience with their Aspergers partner? For a while I thought I might've been attracted to somebody with the disorder, but everything on here sounds so...
    deleted deleted 26-30 3 Responses Aug 22

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    I am 26 and I lost one of my front teeth. Guess what? Chipped right to the gum. Dentist said there was no hope, unless I have money to buy my way out of such a tragedy...
    myfungasm myfungasm 26-30, M 1 Response Aug 21

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    Hey I am 15 and have had rumination syndrome/disorder for almost a year now. I hid it from my parents for 4 months because I was so horribly ashamed about it. I thought that it was...
    alexcarlson2018 alexcarlson2018 13-15, F Aug 21