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I Have Superior Mesenteric Artery Syndrome

A Superior Mesenteric Artery Syndrome anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Superior Mesenteric Artery Syndrome. You're not alone. 37 People

    I Have SMA Syndrome

    Hello, I'm 13 and was diagnosed with SMA six months ago. I have been battling stomach issues my whole life, but just recently they got really bad. I lost 15 pounds in less than 3 weeks from my already thin figure. My doctors didn't know what was wrong and I under went a series...
    L3na L3na 13-15, F 2 Responses Jul 15, 2013

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    So I am a 28 year old man,

    in good shape. I just found out I have SMA. I was released from the hospital after 100's of tests. But I'm glad I finally know what I have. Has anyone else wondered why these unbearable pains start later in life??? So now I'm at a crossroad, has anyone had the surgery?
    Legendary504 Legendary504 26-30, M Jan 26

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    My Sma Story

    Well this all started a few years ago. Apparently some of my arteries constricted the duodenum, due to being to thin. All my life I have been made fun of for being "anerexic" i was always "bones" "twiggy" or "the skinny girl" no matter how hard I try, I still have problems...
    GettingStronger1994 GettingStronger1994 18-21, F 2 Responses Jul 21, 2012

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    First I Do Not Have SMA

    I have a good friend who is a 55 yr old lady who has been having multiple GI problems for several years. was diagnosed with Lupus and it seems every symptom she has is always blamed on the lupus. Now she has self treated herself by not eating solid foods, only certain liquids...
    Deidman Deidman 61-65 1 Response Aug 6, 2013

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    My daughter has smas

    and is being cured by tilting upside down at a 45% angle on her back with arms over her head.She was looking at a surgical feeding tube after two years of fighting to avoid surgery.The doctors had her try this while she was hospitalized.three days later was eating normally...
    racheldunkley racheldunkley 41-45, F Apr 6

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    My 9 Year Old Son Has SMA

    1 year ago my 9 year old son was diagnosed with SMA after 6 months of back and forth visits to different doctors. He had severe stomach pain and would vomit and had trouble using the restroom. With the help of an amazing doctor and tons of boost/dualcal and other weight boosters...
    Candez10 Candez10 31-35, F 3 Responses Apr 6, 2013

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    After a decade of unexplained chronic pain,

    I finally have a diagnosis. It began with the loss of my ability to run, and I have undergone four surgeries, multiple ultrasounds and CT scans, a HIDA scan, X-Rays, an MRI, and years of physical therapy and pain clinic regimens before finding the cause. SMA syndrome is an...
    ISavedMyself ISavedMyself 26-30, F Jan 29

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    I'M Fighting SMA.

    I'm 56, have always been fit. Lived in the gym doing weight competitions, yoga, and felt fantastic. I weighed 125 at 5'5 All muscle. Two years ago, my problems began with abdominal pain, nausea, and difficulty eating hardly anything. Weight fell off with months. I...
    Sereneme56 Sereneme56 56-60, F 6 Responses Mar 7, 2013

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    SMA

    I am a 42 year old female and in january 2011 i was taken to hospital with severe stomach pains, after ct scans doctors realised that part of my bowel had died i think this was about 20 cm 12 days later i was let home only to suffer more severe pains after i was eating i couldnt...
    kelley42 kelley42 41-45, F 1 Response Sep 19, 2013

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    Finally I Have An Answer

    After almost 2 years of pain,weight loss,vomiting, and no answers from my doctors...I finally have been diagnosed with SMAS. It seems the cause was my slim build, and I have only gotten smaller, basically wasting away over this past year. I have a appointment with the surgery...
    Lodom38 Lodom38 36-40, F 3 Responses Aug 28, 2012

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    What's Best To Eat?

    I was having awful pain for months and lost alot weight. I am currently 6 stone! I was lucky because I was in a French hospital with the pain and it only took then 9 days to diagnose it! But now they want to put tubes in my nose to feed me and I can't do that! I hate things being...
    Rachc0125 Rachc0125 22-25, F 2 Responses Jul 26, 2013

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    Been Suffering For 4 Years Now...

    I am a 30 yr-old female that was diagnosed w/ SMA syndrome in May 2010, after about a yr & 1/2 of extreme abdominal pain, nausea, vomiting, and continual weight loss (which only made things worse). It took three GI doc's b/f I found one who knew what was going on. I have had 2...
    minderella333 minderella333 26-30, F 7 Responses Apr 29, 2012

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    Is there anyone who has pain in night,

    too? I had a Transposition of the superior mesenteric artery in Germany by Prof. Sandmann last year. At first the result was very good. I have got back my life. Since few month I have a rezidiv and now my doctors have fear about a new surgery. Only Prof. Sandmann in Germany is...
    lebenskuenstlerin lebenskuenstlerin 46-50, F Jul 21

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    I am 13 now. I was diagnosed with it

    when I was 12. For a year my life was on hold. I had a major bypass surgery and now i am all better now. Please tell me if there is someone else like me out there. It is very rare and between 1861 and now there has only been 500 known cases in the English medical thingy. lol idk...
    princesshayray princesshayray 13-15, F 1 Response Jul 21

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    Wondering What To Expect Now....

    Hi, I am a 49 year old female , 5'9", I was 120 pounds until recently .I now weigh 96.Have been feeling bad since February, Went through all the channels that led to the diagnosis of Sma syndrome, just had lapriscopic surgery to" fix" the problem Monday, have been in...
    anginchains anginchains 51-55, F 1 Response Jul 19, 2013

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    A new resource for those with chronic invisible

    physical illness, including SMA Syndrome: Reddit.com/r/CROCUS
    ISavedMyself ISavedMyself 26-30, F Feb 28

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    Related Experiences

    I don't remember a day where I actually felt normal. Could run. Didn't have my parents yell at me for "not controlling my symptoms". People asking why my legs are all red and...
    HebBay HebBay 18-21, F 1 Response Nov 24

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    It took the doctors almost 3 years to diagnose me. At first, they thought it was anxiety or depression. I was thrown around from hospital to hospital for about 2 1/2 years until a...
    Kristoe103095 Kristoe103095 18-21, F Nov 29

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    Six years ago I broke my left foot. Nothing major, 6 weeks in plaster and then it will be ok. The cast came off, the bone had healed but the top of my foot was hyper sensitive to...
    barefootshirtless barefootshirtless 41-45, M Dec 9

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    After 4/5 years of being called lazy when I feel too weak to move, or that it is all in my head, I was finally diagnosed with POTS yesterday. My parents aren't dealing with it well...
    anon1995 anon1995 18-21, F Nov 23

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    A few days ago, I hurt so badly that I needed help to make it through the day, so I emailed the following to some of my closest friends. I hope and pray that each of you that has...
    UncleEkipS UncleEkipS 51-55, M 1 day ago

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    I set up a blog for people with POTs to follow me as I undertook a charity bike ride last June, I've never done biking and suffered from POTs, I've now updated my blog and would...
    PotsieGirl PotsieGirl 41-45, F Dec 10

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    I have a twin brother that survived Guillain-Barré Syndrome or GBS. He was diagnosed at the age of six and it took a year for him to get treatment and get over the disorder. GBS...
    tinytornado95 tinytornado95 18-21, F 1 Response Nov 26

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    I have Hypermobility Ehlers Danlos Syndrome (EDS). I also have Postural Orthostatic Tachycardia Syndrome/dysautonomia (POTS). Ehlers Danlos syndrome is a connective tissue...
    jahoz jahoz 41-45 5 days ago

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    it was twenty four years ago when I had bouts of severe stomach pain. the kind of pain that would double you over. it was scary because I was pregnant at the time. I thought...
    regalshewolf regalshewolf 41-45, F 1 Response Dec 2

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    I'm so glad I found this. Many of your stories are so similar to mine. I've seen twenty six doctors, having been diagnosed with fibromyalga, chronic migraines, osteoarthritis and...
    jsxburt jsxburt 46-50, F 1 hr ago

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    I got diagnosed when I was 3 and I have it in both eyes. Just a few months before that I had a brain tumor. I can not begin to image what kind of stress this put my parents under...
    macyl macyl 18-21, F Nov 30

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    I am well acquainted with how disruptive motherhood can be to a woman's personal and professional autonomy. I will not be waxing poetic about it either (today of all days). I too...
    Tannasheart Tannasheart 46-50, F 1 Response 2 days ago

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    My depression is a Demon. I've had Sleep Paralysis my whole life. I have memories of dreams about what i thought were the golden eyes of my beloved rottweilers, but were instead...
    TwentyTwoReasons TwentyTwoReasons 18-21, M 1 Response Nov 25

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    Muslim men have much larger, more powerful penises than us Hindu men and that makes them superior men to us.
    delhiabhi delhiabhi 22-25, M Dec 7

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    This is really bugging me and I need to get it off my chest. It seems like to me there is far too many people walking around, turning their noses up and thinking they are superior...
    chelsieshay2626 chelsieshay2626 18-21, F 6 days ago

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    I'm a little worried.... I used to cut myself when I was around 18 or so , I accidentally cut myself and I liked the feeling. I began cutting because I liked the feeling and was...
    Honee86 Honee86 26-30, F 1 day ago

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    I was diagnosed with Duane Syndrome in my right eye when I was just a baby, when my Dad noticed I couldn't move my eye. From a very early age I remember being in the hospital...
    baaraah baaraah 18-21, F Dec 5

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    Hey All, I'm a 28 year old female with what I think is CVS. Every few months I am awoken in the middle of the night with the worst stomach ache in the centre of my abdomen and I...
    starjj starjj 26-30, F 1 Response Dec 7

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    I have just stumbled upon something lovely (I can't recall where I found it), but I wanted to share it with you all: 1 You cannot change what you refuse to confront. 2 Sometimes...
    obscureriddle obscureriddle 22-25, F Dec 8

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    I found out I had Duane Syndrome in both of my eyes when I was around 6 years old but it only started to seriously impact my life when I was 12. From what I remember my vision used...
    Ashleyc97 Ashleyc97 16-17, M a week ago

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    I was diagnosed with HAS a few days ago - The initial cause was that I am experiencing eye issues and saw an ophthalmologist who then referred me to a neurologist who made the...
    barbarasayshi barbarasayshi 41-45, F 1 Response 6 days ago

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    Hi there. Since I was born I have been diagnosed with marfan syndrome. Little did I know, being an infant, I was on the verge of having many issues in life. They may not have been...
    ChrisSFTY ChrisSFTY 18-21, M 4 days ago

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    i think Asperger Syndrome is very similar to Obssesive Compulsive Personality Disorder...
    Hanahbee Hanahbee 31-35, F 2 Responses 3 days ago

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    142 superior genius. I don't mean to brag both street and book "smart".
    ElMatador96 ElMatador96 18-21, M Nov 21

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    So many people without it have no idea of the pain it brings along. Today, I'm meeting with the Lender for our new house, and I can't control the neck tics and I'm hurting on a 8...
    jeepers92 jeepers92 41-45, M 2 Responses Nov 22

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    Okay, here's my story: I was born 15 weeks premature (Which means I was born at 25 weeks instead of the full-term of 40 weeks). My mother went into pre-term labor and was going...
    jordanalexis95 jordanalexis95 18-21, F 1 Response Nov 23

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    So, when we get our dogs as puppies, we're technically kidnapping them in a way, right? Since they have no inkling as to what is happening, to them it's kidnapping I suppose. (Or...
    LiveForAnotherDay LiveForAnotherDay 13-15, F 2 Responses Nov 24

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    Who is going to hold your hand or mine? Who is going to comfort me or you ?You have lost someone but so have I , it's not wisdom or cleverness that we have avoided being infected...
    missreeedy missreeedy 31-35, F 1 Response Nov 26

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    I think I have Aspergers, I love arts so much I think it's the only life where I want to be, I love seeing great murals an architect designs, I can get obsessed and lost when I...
    perennialsorrows perennialsorrows 31-35, F 4 Responses Nov 27

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    Due to this a lot upline plan, not only just community excited to work hard at a superior grade, those above you are actually committed also. Uplines be given commission it's...
    Darronbanksso0 Darronbanksso0 31-35, M 1 Response Nov 28

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    I do. I always view myself as below everyone else. I rarely initiate conversation because I think that I'll just be bothering the person. If someone tells me to do something, I...
    7Questions 7Questions 16-17, M Dec 5

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