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I Have Superior Mesenteric Artery Syndrome

A Superior Mesenteric Artery Syndrome anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Superior Mesenteric Artery Syndrome. You're not alone. 43 People

    I'M Fighting SMA.

    I'm 56, have always been fit. Lived in the gym doing weight competitions, yoga, and felt fantastic. I weighed 125 at 5'5 All muscle. Two years ago, my problems began with abdominal pain, nausea, and difficulty eating hardly anything. Weight fell off with months. I...
    Sereneme56 Sereneme56 56-60, F 6 Responses Mar 7, 2013

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    What's Best To Eat?

    I was having awful pain for months and lost alot weight. I am currently 6 stone! I was lucky because I was in a French hospital with the pain and it only took then 9 days to diagnose it! But now they want to put tubes in my nose to feed me and I can't do that! I hate things being...
    Rachc0125 Rachc0125 22-25, F 3 Responses Jul 26, 2013

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    Been Suffering For 4 Years Now...

    I am a 30 yr-old female that was diagnosed w/ SMA syndrome in May 2010, after about a yr & 1/2 of extreme abdominal pain, nausea, vomiting, and continual weight loss (which only made things worse). It took three GI doc's b/f I found one who knew what was going on. I have had 2...
    minderella333 minderella333 26-30, F 7 Responses Apr 29, 2012

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    First I Do Not Have SMA

    I have a good friend who is a 55 yr old lady who has been having multiple GI problems for several years. was diagnosed with Lupus and it seems every symptom she has is always blamed on the lupus. Now she has self treated herself by not eating solid foods, only certain liquids...
    Deidman Deidman 61-65 1 Response Aug 6, 2013

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    I am 13 now. I was diagnosed with it

    when I was 12. For a year my life was on hold. I had a major bypass surgery and now i am all better now. Please tell me if there is someone else like me out there. It is very rare and between 1861 and now there has only been 500 known cases in the English medical thingy. lol idk...
    princesshayray princesshayray 13-15, F 1 Response Jul 21, 2014

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    Finally I Have An Answer

    After almost 2 years of pain,weight loss,vomiting, and no answers from my doctors...I finally have been diagnosed with SMAS. It seems the cause was my slim build, and I have only gotten smaller, basically wasting away over this past year. I have a appointment with the surgery...
    Lodom38 Lodom38 36-40, F 3 Responses Aug 28, 2012

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    Is there anyone who has pain in night,

    too? I had a Transposition of the superior mesenteric artery in Germany by Prof. Sandmann last year. At first the result was very good. I have got back my life. Since few month I have a rezidiv and now my doctors have fear about a new surgery. Only Prof. Sandmann in Germany is...
    lebenskuenstlerin lebenskuenstlerin 46-50, F Jul 21, 2014

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    A new resource for those with chronic invisible

    physical illness, including SMA Syndrome: Reddit.com/r/CROCUS
    ISavedMyself ISavedMyself 26-30, F Feb 28, 2014

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    Wondering What To Expect Now....

    Hi, I am a 49 year old female , 5'9", I was 120 pounds until recently .I now weigh 96.Have been feeling bad since February, Went through all the channels that led to the diagnosis of Sma syndrome, just had lapriscopic surgery to" fix" the problem Monday, have been in...
    anginchains anginchains 51-55, F 1 Response Jul 19, 2013

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    My daughter has smas

    and is being cured by tilting upside down at a 45% angle on her back with arms over her head.She was looking at a surgical feeding tube after two years of fighting to avoid surgery.The doctors had her try this while she was hospitalized.three days later was eating normally...
    racheldunkley racheldunkley 41-45, F Apr 6, 2014

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    After a decade of unexplained chronic pain,

    I finally have a diagnosis. It began with the loss of my ability to run, and I have undergone four surgeries, multiple ultrasounds and CT scans, a HIDA scan, X-Rays, an MRI, and years of physical therapy and pain clinic regimens before finding the cause. SMA syndrome is an...
    ISavedMyself ISavedMyself 26-30, F Jan 29, 2014

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    I am 13 years old. I have been sick

    for around 10 months. It started as what appeared to be a stomach bug but has continued for months and months. They removed my gallbladder and my appendix. They had to put a tube in and when the tube stared to malfunction, they had to go in and take it out. I have been put to...
    deleted deleted 26-30 1 Response Mar 23

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    I Have SMA Syndrome

    Hello, I'm 13 and was diagnosed with SMA six months ago. I have been battling stomach issues my whole life, but just recently they got really bad. I lost 15 pounds in less than 3 weeks from my already thin figure. My doctors didn't know what was wrong and I under went a series...
    L3na L3na 13-15, F 2 Responses Jul 15, 2013

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    SMA

    I am a 42 year old female and in january 2011 i was taken to hospital with severe stomach pains, after ct scans doctors realised that part of my bowel had died i think this was about 20 cm 12 days later i was let home only to suffer more severe pains after i was eating i couldnt...
    kelley42 kelley42 41-45, F 1 Response Sep 19, 2013

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    My 9 Year Old Son Has SMA

    1 year ago my 9 year old son was diagnosed with SMA after 6 months of back and forth visits to different doctors. He had severe stomach pain and would vomit and had trouble using the restroom. With the help of an amazing doctor and tons of boost/dualcal and other weight boosters...
    Candez10 Candez10 31-35, F 3 Responses Apr 6, 2013

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    My Sma Story

    Well this all started a few years ago. Apparently some of my arteries constricted the duodenum, due to being to thin. All my life I have been made fun of for being "anerexic" i was always "bones" "twiggy" or "the skinny girl" no matter how hard I try, I still have problems...
    GettingStronger1994 GettingStronger1994 18-21, F 2 Responses Jul 21, 2012

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    So I am a 28 year old man,

    in good shape. I just found out I have SMA. I was released from the hospital after 100's of tests. But I'm glad I finally know what I have. Has anyone else wondered why these unbearable pains start later in life??? So now I'm at a crossroad, has anyone had the surgery?
    Legendary504 Legendary504 26-30, M 1 Response Jan 26, 2014

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    It took forever to get diagnosed.

    So many tests. I was being passed off as anorexic. only reason I'm still among the living is my dad's a retired surgeon and suspected it. he pushed and pushed to have the gi guy order a simple barium swallow to check stomach emptying. voila, it was there. without my dad...
    StarvingNotHungry StarvingNotHungry 51-55 1 Response Mar 20

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    Hi I'm 14 and a couple of days ago I was

    diagnosed with SMA. I had lost weight recently, and last Friday morning I woke up with severe upper gastric pain, then started sicking up bright green bile. I was admitted to hospital and I am still here now. I had a bearium xray and ultrasound along with other tests. I was...
    ngreen1 ngreen1 13-15, F Jul 8

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    I've been diagnosed with SMA syndrome

    for a year. I started experiencing symptoms at 16. I was an incredibly stressed student. I was constantly studying and taking AP classes. When I started having symptoms I lost 20 pounds in two weeks. Because I have always struggled with my body image, my family and doctor...
    jfletcher jfletcher 22-25, F Apr 26

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    Related Experiences

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    I changed a lot since I left EP. Nice to see how everything can change within a year. I guess at some point you just realise that some changes are inevitable and life has a lot...
    Rainatmidnight97 Rainatmidnight97 18-21, F 4 hrs ago

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    I have klinefelters syndrome abd always desire to become wife or something! Finally i accepted my feeling and to be femboy or sissy in 40 age!
    Widehip Widehip 36-40, M 2 Responses 1 day ago

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    I was diagnosed with Aspergers Syndrome around 5 years ago. since I was diagnosed I've began to understand myself better. I actually see it as a blessing because I have became very...
    waterboy99 waterboy99 16-17, M 3 Responses 2 days ago

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    I want four pretty men all in a row, naked but done up so they are very pleasing to the eye. The first I want to impale, on a thick sharp wooden stake, starting through his as...
    Domienixxx Domienixxx 26-30 2 Responses 3 days ago

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    Recently diagnosed with horners and holmes syndrome.. after over 10 years and going to many drs about me not sweating I finally found out why.. and this added to my many other...
    baidal88 baidal88 36-40, M 1 Response 5 days ago

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    They yell at you that you're not normal. That you always **** things up. You leave to your room, crying. You overhear them in the other room: What did we do wrong? How could we not...
    EurydiceKallos EurydiceKallos 18-21, F 8 Responses Jul 23

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    I was just wondering if any fellow potsies have any careers advice? I unfortunately had to stop mainstream school (as many of us have had to) as well as home education so...
    justhollyjayne justhollyjayne 16-17, F Jul 22

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    I was just wondering if any fellow potsies have any careers advice? I unfortunately had to stop mainstream school (as many of us have had to) as well as home education so...
    justhollyjayne justhollyjayne 16-17, F Jul 22

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    so i found out i have polycystic ovary syndrome a few days ago and it sucks since me and my husband have been trying and now reading about it is making me even more down about it...
    sweety7268 sweety7268 22-25, F Jul 21

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    Hi, I am male and retired and was diagnosed with EF in July 2014. I started treatment in August 2014 and now it is a year later and I am already much better. I hope that gives you...
    mogfitz mogfitz 66-70, M Jul 20

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    So friggin tired. Want to complain but also want to get out of this habit (of complaining about this topic) and do whatever I need to do to fix it or move on. No use complaining...
    laura40404 laura40404 26-30, F Jul 19

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    My best friend just got diagnosed with Aspergers. It's been really hard for her. Is there anything anyone can suggest that might help her cope with the news? Also does anyone have...
    ThinspirationNation ThinspirationNation 18-21, F 6 Responses Jul 18

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    I admit there were times I didn't want to be this. I admit there were days in which all I did was cry, asking God or whatever kind of diety is up there watching why did I have to...
    elsasaunt elsasaunt 16-17, F 2 Responses Jul 18

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    I have a child that may have Pendred's syndrome. This is a rare recessive gene, passed down by parents causing deafness in one or both ears. My daughter has deafness in one ear...
    arebella arebella 41-45, F Jul 18

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    hey i just got told i have this and i have no idea what it means can someone please help me?
    deleted deleted 26-30 1 Response Jul 18

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    I was diagnosed with PCOS when I was 16 and I have been struggling with it ever since. I recently created a PCOS support kik group called Cysters With PCOS and All Who <3 Them...
    LifeMISunderstood127 LifeMISunderstood127 22-25, F Jul 17

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    Have any of you experienced personality changes or impaired judgement? I'm making choices I really don't believe I would have EVER even considered before my accident...
    Apple182 Apple182 31-35, F Jul 17

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    Always have thought that. I was raised like this and see nothing wrong with it. I feel like it's an ok thing to have a husband that keeps you in line. It's ok to be a totally...
    SylenaEverlasting SylenaEverlasting 16-17, F 2 Responses Jul 17

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    My heart rate increases dramatically when I eat wheat/gluten products. Does that happen to anyone else? I have not been diagnosed with POTS, but will start testing soon. I gave...
    shama7890 shama7890 41-45, F Jul 16

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    I had my gallbladder removed on April 27th after months of feeling nauseas and my doc thinking it could have been related to my gallbladder having issues. It's a good thing that...
    tgleiker tgleiker 36-40, F 1 Response Jul 15

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    what helps me a lot is to have everything in its place. If I misplace it, God forbid. If you are not my twin, and you move it, it's really bad. Anyone else feel like this?
    PJBelle PJBelle 46-50, F 2 Responses Jul 15

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    Why I can't do **** right?! Sometimes I do things I don't realize I'm doing. Like if I'm very slow and whatever, someone pushes me very hard or even get pissed off at me for being...
    BigGirlWithLove BigGirlWithLove 22-25, F 9 Responses Jul 15

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