I Have Superior Mesenteric Artery Syndrome

A Superior Mesenteric Artery Syndrome anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Superior Mesenteric Artery Syndrome. You're not alone. 46 People

    What's Best To Eat?

    I was having awful pain for months and lost alot weight. I am currently 6 stone! I was lucky because I was in a French hospital with the pain and it only took then 9 days to diagnose it! But now they want to put tubes in my nose to feed me and I can't do that! I hate things being...
    Rachc0125 Rachc0125
    22-25, F
    3 Responses Jul 26, 2013

    After a decade of unexplained chronic pain,

    I finally have a diagnosis. It began with the loss of my ability to run, and I have undergone four surgeries, multiple ultrasounds and CT scans, a HIDA scan, X-Rays, an MRI, and years of physical therapy and pain clinic regimens before finding the cause. SMA syndrome is an...
    ISavedMyself ISavedMyself
    26-30, F
    1 Response Jan 29, 2014

    Hi I'm 14 and a couple of days ago I was

    diagnosed with SMA. I had lost weight recently, and last Friday morning I woke up with severe upper gastric pain, then started sicking up bright green bile. I was admitted to hospital and I am still here now. I had a bearium xray and ultrasound along with other tests. I was...
    ngreen1 ngreen1
    13-15, F
    Jul 8, 2015

    I'M Fighting SMA.

    I'm 56, have always been fit. Lived in the gym doing weight competitions, yoga, and felt fantastic. I weighed 125 at 5'5 All muscle. Two years ago, my problems began with abdominal pain, nausea, and difficulty eating hardly anything. Weight fell off with months. I...
    Sereneme56 Sereneme56
    56-60, F
    6 Responses Mar 7, 2013

    A new resource for those with chronic invisible

    physical illness, including SMA Syndrome: Reddit.com/r/CROCUS
    ISavedMyself ISavedMyself
    26-30, F
    Feb 28, 2014

    So I am a 28 year old man,

    in good shape. I just found out I have SMA. I was released from the hospital after 100's of tests. But I'm glad I finally know what I have. Has anyone else wondered why these unbearable pains start later in life??? So now I'm at a crossroad, has anyone had the surgery?
    Legendary504 Legendary504
    26-30, M
    Jan 26, 2014

    It took forever to get diagnosed.

    So many tests. I was being passed off as anorexic. only reason I'm still among the living is my dad's a retired surgeon and suspected it. he pushed and pushed to have the gi guy order a simple barium swallow to check stomach emptying. voila, it was there. without my dad...
    deleted deleted
    26-30
    1 Response Mar 20, 2015

    Been Suffering For 4 Years Now...

    I am a 30 yr-old female that was diagnosed w/ SMA syndrome in May 2010, after about a yr & 1/2 of extreme abdominal pain, nausea, vomiting, and continual weight loss (which only made things worse). It took three GI doc's b/f I found one who knew what was going on. I have had 2...
    minderella333 minderella333
    26-30, F
    7 Responses Apr 29, 2012

    Wondering What To Expect Now....

    Hi, I am a 49 year old female , 5'9", I was 120 pounds until recently .I now weigh 96.Have been feeling bad since February, Went through all the channels that led to the diagnosis of Sma syndrome, just had lapriscopic surgery to" fix" the problem Monday, have been in...
    anginchains anginchains
    51-55, F
    1 Response Jul 19, 2013

    Is there anyone who has pain in night,

    too? I had a Transposition of the superior mesenteric artery in Germany by Prof. Sandmann last year. At first the result was very good. I have got back my life. Since few month I have a rezidiv and now my doctors have fear about a new surgery. Only Prof. Sandmann in Germany is...
    lebenskuenstlerin lebenskuenstlerin
    46-50, F
    Jul 21, 2014

    Hi, I was just diagnosed with SMA Syndrome

    after 10 years of my stomach being sick and multiple hospitalizations for being unable to eat or drink. I currently have a j tube after losing about 30 pounds over just a few weeks and was referred to a vascular surgeon based on CT findings that suggested SMA Syndrome. The...
    jaclynleigh6 jaclynleigh6
    22-25, F
    Apr 17

    SMA

    I am a 42 year old female and in january 2011 i was taken to hospital with severe stomach pains, after ct scans doctors realised that part of my bowel had died i think this was about 20 cm 12 days later i was let home only to suffer more severe pains after i was eating i couldnt...
    kelley42 kelley42
    41-45, F
    1 Response Sep 19, 2013

    I've been diagnosed with SMA syndrome

    for a year. I started experiencing symptoms at 16. I was an incredibly stressed student. I was constantly studying and taking AP classes. When I started having symptoms I lost 20 pounds in two weeks. Because I have always struggled with my body image, my family and doctor...
    jfletcher jfletcher
    22-25, F
    Apr 26, 2015

    My Sma Story

    Well this all started a few years ago. Apparently some of my arteries constricted the duodenum, due to being to thin. All my life I have been made fun of for being "anerexic" i was always "bones" "twiggy" or "the skinny girl" no matter how hard I try, I still have problems...
    GettingStronger1994 GettingStronger1994
    18-21, F
    2 Responses Jul 21, 2012

    My 9 Year Old Son Has SMA

    1 year ago my 9 year old son was diagnosed with SMA after 6 months of back and forth visits to different doctors. He had severe stomach pain and would vomit and had trouble using the restroom. With the help of an amazing doctor and tons of boost/dualcal and other weight boosters...
    Candez10 Candez10
    31-35, F
    3 Responses Apr 6, 2013

    I am 13 years old. I have been sick

    for around 10 months. It started as what appeared to be a stomach bug but has continued for months and months. They removed my gallbladder and my appendix. They had to put a tube in and when the tube stared to malfunction, they had to go in and take it out. I have been put to...
    deleted deleted
    26-30
    1 Response Mar 23, 2015

    Finally I Have An Answer

    After almost 2 years of pain,weight loss,vomiting, and no answers from my doctors...I finally have been diagnosed with SMAS. It seems the cause was my slim build, and I have only gotten smaller, basically wasting away over this past year. I have a appointment with the surgery...
    Lodom38 Lodom38
    36-40, F
    3 Responses Aug 28, 2012

    First I Do Not Have SMA

    I have a good friend who is a 55 yr old lady who has been having multiple GI problems for several years. was diagnosed with Lupus and it seems every symptom she has is always blamed on the lupus. Now she has self treated herself by not eating solid foods, only certain liquids...
    Deidman Deidman
    61-65
    1 Response Aug 6, 2013

    I am 13 now. I was diagnosed with it

    when I was 12. For a year my life was on hold. I had a major bypass surgery and now i am all better now. Please tell me if there is someone else like me out there. It is very rare and between 1861 and now there has only been 500 known cases in the English medical thingy. lol idk...
    princesshayray princesshayray
    13-15, F
    1 Response Jul 21, 2014

    I Have SMA Syndrome

    Hello, I'm 13 and was diagnosed with SMA six months ago. I have been battling stomach issues my whole life, but just recently they got really bad. I lost 15 pounds in less than 3 weeks from my already thin figure. My doctors didn't know what was wrong and I under went a series...
    L3na L3na
    16-17, F
    2 Responses Jul 15, 2013

    My daughter has smas

    and is being cured by tilting upside down at a 45% angle on her back with arms over her head.She was looking at a surgical feeding tube after two years of fighting to avoid surgery.The doctors had her try this while she was hospitalized.three days later was eating normally...
    racheldunkley racheldunkley
    41-45, F
    Apr 6, 2014

    Related Experiences

    My attacks started 6yrs ago,woke up one morning and felt really sick,like a virus but it kept coming back every other day. I feel it was triggered by stress and a tender tum as I...
    SoothingSoozie SoothingSoozie
    41-45, F
    1 Response Apr 19
    My 3rd grader has struggled in school from Headstart up to this very point. I noticed delays in his speech right before two years old. I expressed my concerns to his pediatrician...
    Vette601 Vette601
    36-40, F
    Apr 19
    Well my story is a lot like some of yours, I started young on comet and sometimes dirt from my backyard... I like to eat things with gritty texture for most of my childhood and...
    BadMomKira BadMomKira
    22-25, F
    1 Response Apr 19
    Non-Muslims must read the Qur?an to save Muslims from themselves A non-Muslim who approaches the Qur?an is, by definition, free of the baggage with which a Muslim does the same...
    deleted deleted
    26-30
    1 Response Apr 18
    Hey.. My name is Thomas and i have Poland's syndome. I was born in 1970 and didn't know what it even was til i was around 28. I had a really hard time growing up. Kids can be very...
    tommymac70 tommymac70
    41-45, M
    Apr 17
    My symptoms of WPW started about the time that I was in the fifth grade. One day I was home and I felt really dizzy, to the point that I had turned white all over and felt as if I...
    adrienleigh adrienleigh
    13-15, F
    Apr 17
    I am a 23 year old female who suffers from Poland's Syndrome. It's actually good to know there are some people out there who can relate to all the daily problems PS creates. We...
    uocgreece uocgreece
    22-25, F
    Apr 17
    I am 19 now, almost 20... I haven't been on here for a few years, but I think I'll give it a go. My parents and I thought I had Chronic Fatigue Syndrome for 4 years before...
    Invisibleninja12 Invisibleninja12
    18-21, F
    Apr 17
    Hi my name is Sherrie and i was diagnosed as a teenager. I am 58 years old now and i have whst i would call a good life. I am married for 30 years and we have adopted 3 children...
    Sherrie50 Sherrie50
    56-60
    Apr 13
    I have never and I think I couldn't ever be friends with anyone that doesn't have some serious mental illness or has some seriously ****** up view about the world because I don't...
    redhq redhq
    22-25, M
    2 Responses Apr 13
    Curious? Cancer had it's three kicks at me, but after chemo, radiation and aggressive surgery, I came out on top. However, it cost me all my kidney parts. So, I have not peed since...
    Pullon Pullon
    51-55, M
    1 Response Apr 12
    This is my story. It is long, but I hope you all can relate to it. A year ago I went on a catholic retreat called Kairos and I gave a speech on my ideals and how to find them and...
    cmom96 cmom96
    18-21, F
    Apr 9
    My boyfriend hasn't been diagnosed or anything, but I was watching a programme about Asberger's and something resonated with me. If he does have it, I'm sure it's only mild, but it...
    anniechan anniechan
    18-21, F
    2 Responses Apr 7
    I was born with PruneBelly Syndrome (lack of abdominal muscles) I had some corrective surgery at age three and the dr cut through and removed my navel, so I don't really remember...
    Jmacaroon Jmacaroon
    51-55, F
    Apr 7
    Women are smarter, kinder, longer-lived, more resistant to disease, and can outdo men at nearly everything. The female sex is *clearly* the superior one.
    rfmodesty rfmodesty
    31-35, M
    Apr 6
    30 reasons i love my Aspie (or just a individual person wich i was lucky to met) This is my story, and Just mine. U dont need to relate. Because every person is different, with...
    deleted deleted
    26-30
    Apr 6
    i hate that i can't communicate effectively. i know that my husband gets frustrated to the point of disgust. i just assume not talk to anyone. i have chronic pain and fatigue to...
    LITVET LITVET
    41-45, F
    1 Response Apr 5
    It was just a few short weeks from diagnosis to death. The doctors had thought his problem was his heart - leaking mitral and aortic valves and an 80% blocked artery, all of which...
    sophrai sophrai
    66-70, M
    2 Responses Apr 4
    https://youtu.be/W5eoKLXvFbw ALL ANIMALS FEEL PAIN, AND DEEP SORROW, THEY LOVE THERE CHILDREN, THEY WANT WHAT'S BEST FOR THERE KIDS, THEY WANT TO BE HUGGED NOT BEATEN ABUSED AND...
    Kornisone Kornisone
    26-30, F
    3 Responses Mar 31
    This never fails! I am always happily shocked by the generosity of people when it comes to donating to a charitable cause! I am participating in my local APDA Optimism Walk for...
    LifeinWoodinville LifeinWoodinville
    41-45, M
    Mar 30
    I was diagnosed with this several years ago, and am fortunate (so far) that it only shows up periodically. A backscratcher works fine, or a bristly brush. My dermatologist...
    emmi331 emmi331
    46-50, F
    Mar 30
    0.0 I want to thank ep tbh . if it wasn't for ep I wouldn't have met so many amazing people . EP actually helped me a lot believe it or not , I still complain a lot but after ep I...
    LovelyGorillla LovelyGorillla
    16-17, F
    Mar 30
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    Riffster Riffster
    51-55, M
    Mar 30
    I have a few websites I have created over the years. My most recent one, which is still being developed is a site that is to be similar to experience project, yet not closing, and...
    dcDiana dcDiana
    22-25, F
    12 Responses Mar 30
    me and him are soo different. first of all I am 15 and he is 13, we share a bunkbed and rarely fight but its like, we are soooo different. He likes to show off his body, I don't...
    michiganlad michiganlad
    13-15, M
    Mar 30
    Although I had always written, I adde no men I still get Enquiry Therefore, I have now made a decision, because I'm extremely annoyed. I'm going to block every guy. I hope that it...
    MistressNavel24 MistressNavel24
    22-25, F
    Mar 30
    I have 6 sisters and 1 brother. Most of us are adopted
    DiamondAuthority DiamondAuthority
    18-21, F
    1 Response Mar 30
    I have like four nieces. But one, her names carleigh, I think she's autistic. It's ok though. She's So cute
    DiamondAuthority DiamondAuthority
    18-21, F
    1 Response Mar 30
    I don't have friends to talk. I don't have a best friend to tell her about how I feel. How alone I am. There is no one.
    Lucifer63 Lucifer63
    16-17, M
    Mar 30
    My father. Unfortunately. Not proud to say that he is now estranged to me. I can see now that my family's life has been impacted, spoiled and to some extent ruined by him over many...
    TValentine TValentine
    56-60, M
    1 Response Mar 30
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    Lornyjane Lornyjane
    41-45
    1 Response Mar 30
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    Lokisvixen Lokisvixen
    18-21, F
    1 Response Mar 30
    I had pick some names for my future kids that I want to have 2 boys and 1 girl or 1 boy and 1 girl when I get older if me and Michael are still together
    michaelXelizabeth michaelXelizabeth
    13-15, F
    1 Response Mar 30
    When I was still in school my class had a trip to the beach for a few days. On the first day I told my friends that I am a nudist and would love to be naked on the beach. I trusted...
    youngNudist21 youngNudist21
    18-21, M
    2 Responses Mar 30
    I feel utterly crushed. I put my feelings back out there again, allowed you to convince me to give it a go to have you just go. I'm thrown away as easy as rubbish in your pocket...
    deleted deleted
    26-30
    2 Responses Mar 30
    World peace is not the main thing I should ask for - I would want to ask the world of humans to change for the greater in good where it is necessary - people changing is the root...
    Stephenrko Stephenrko
    36-40, M
    Mar 30
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    theabsurdistunicorn theabsurdistunicorn
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    2 Responses Mar 30
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