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I Have Superior Mesenteric Artery Syndrome

A Superior Mesenteric Artery Syndrome anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Superior Mesenteric Artery Syndrome. You're not alone. 40 People

    I've been diagnosed with SMA syndrome

    for a year. I started experiencing symptoms at 16. I was an incredibly stressed student. I was constantly studying and taking AP classes. When I started having symptoms I lost 20 pounds in two weeks. Because I have always struggled with my body image, my family and doctor...
    jfletcher jfletcher 22-25, F Apr 26

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    Finally I Have An Answer

    After almost 2 years of pain,weight loss,vomiting, and no answers from my doctors...I finally have been diagnosed with SMAS. It seems the cause was my slim build, and I have only gotten smaller, basically wasting away over this past year. I have a appointment with the surgery...
    Lodom38 Lodom38 36-40, F 3 Responses Aug 28, 2012

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    My Sma Story

    Well this all started a few years ago. Apparently some of my arteries constricted the duodenum, due to being to thin. All my life I have been made fun of for being "anerexic" i was always "bones" "twiggy" or "the skinny girl" no matter how hard I try, I still have problems...
    GettingStronger1994 GettingStronger1994 18-21, F 2 Responses Jul 21, 2012

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    Is there anyone who has pain in night,

    too? I had a Transposition of the superior mesenteric artery in Germany by Prof. Sandmann last year. At first the result was very good. I have got back my life. Since few month I have a rezidiv and now my doctors have fear about a new surgery. Only Prof. Sandmann in Germany is...
    lebenskuenstlerin lebenskuenstlerin 46-50, F Jul 21, 2014

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    I Have SMA Syndrome

    Hello, I'm 13 and was diagnosed with SMA six months ago. I have been battling stomach issues my whole life, but just recently they got really bad. I lost 15 pounds in less than 3 weeks from my already thin figure. My doctors didn't know what was wrong and I under went a series...
    L3na L3na 13-15, F 2 Responses Jul 15, 2013

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    It took forever to get diagnosed.

    So many tests. I was being passed off as anorexic. only reason I'm still among the living is my dad's a retired surgeon and suspected it. he pushed and pushed to have the gi guy order a simple barium swallow to check stomach emptying. voila, it was there. without my dad...
    StarvingNotHungry StarvingNotHungry 51-55 1 Response Mar 20

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    After a decade of unexplained chronic pain,

    I finally have a diagnosis. It began with the loss of my ability to run, and I have undergone four surgeries, multiple ultrasounds and CT scans, a HIDA scan, X-Rays, an MRI, and years of physical therapy and pain clinic regimens before finding the cause. SMA syndrome is an...
    ISavedMyself ISavedMyself 26-30, F Jan 29, 2014

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    A new resource for those with chronic invisible

    physical illness, including SMA Syndrome: Reddit.com/r/CROCUS
    ISavedMyself ISavedMyself 26-30, F Feb 28, 2014

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    So I am a 28 year old man,

    in good shape. I just found out I have SMA. I was released from the hospital after 100's of tests. But I'm glad I finally know what I have. Has anyone else wondered why these unbearable pains start later in life??? So now I'm at a crossroad, has anyone had the surgery?
    Legendary504 Legendary504 26-30, M 1 Response Jan 26, 2014

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    SMA

    I am a 42 year old female and in january 2011 i was taken to hospital with severe stomach pains, after ct scans doctors realised that part of my bowel had died i think this was about 20 cm 12 days later i was let home only to suffer more severe pains after i was eating i couldnt...
    kelley42 kelley42 41-45, F 1 Response Sep 19, 2013

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    I am 13 now. I was diagnosed with it

    when I was 12. For a year my life was on hold. I had a major bypass surgery and now i am all better now. Please tell me if there is someone else like me out there. It is very rare and between 1861 and now there has only been 500 known cases in the English medical thingy. lol idk...
    princesshayray princesshayray 13-15, F 1 Response Jul 21, 2014

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    First I Do Not Have SMA

    I have a good friend who is a 55 yr old lady who has been having multiple GI problems for several years. was diagnosed with Lupus and it seems every symptom she has is always blamed on the lupus. Now she has self treated herself by not eating solid foods, only certain liquids...
    Deidman Deidman 61-65 1 Response Aug 6, 2013

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    Been Suffering For 4 Years Now...

    I am a 30 yr-old female that was diagnosed w/ SMA syndrome in May 2010, after about a yr & 1/2 of extreme abdominal pain, nausea, vomiting, and continual weight loss (which only made things worse). It took three GI doc's b/f I found one who knew what was going on. I have had 2...
    minderella333 minderella333 26-30, F 7 Responses Apr 29, 2012

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    My daughter has smas

    and is being cured by tilting upside down at a 45% angle on her back with arms over her head.She was looking at a surgical feeding tube after two years of fighting to avoid surgery.The doctors had her try this while she was hospitalized.three days later was eating normally...
    racheldunkley racheldunkley 41-45, F Apr 6, 2014

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    What's Best To Eat?

    I was having awful pain for months and lost alot weight. I am currently 6 stone! I was lucky because I was in a French hospital with the pain and it only took then 9 days to diagnose it! But now they want to put tubes in my nose to feed me and I can't do that! I hate things being...
    Rachc0125 Rachc0125 22-25, F 3 Responses Jul 26, 2013

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    I'M Fighting SMA.

    I'm 56, have always been fit. Lived in the gym doing weight competitions, yoga, and felt fantastic. I weighed 125 at 5'5 All muscle. Two years ago, my problems began with abdominal pain, nausea, and difficulty eating hardly anything. Weight fell off with months. I...
    Sereneme56 Sereneme56 56-60, F 6 Responses Mar 7, 2013

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    My 9 Year Old Son Has SMA

    1 year ago my 9 year old son was diagnosed with SMA after 6 months of back and forth visits to different doctors. He had severe stomach pain and would vomit and had trouble using the restroom. With the help of an amazing doctor and tons of boost/dualcal and other weight boosters...
    Candez10 Candez10 31-35, F 3 Responses Apr 6, 2013

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    Wondering What To Expect Now....

    Hi, I am a 49 year old female , 5'9", I was 120 pounds until recently .I now weigh 96.Have been feeling bad since February, Went through all the channels that led to the diagnosis of Sma syndrome, just had lapriscopic surgery to" fix" the problem Monday, have been in...
    anginchains anginchains 51-55, F 1 Response Jul 19, 2013

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    I am 13 years old. I have been sick

    for around 10 months. It started as what appeared to be a stomach bug but has continued for months and months. They removed my gallbladder and my appendix. They had to put a tube in and when the tube stared to malfunction, they had to go in and take it out. I have been put to...
    deleted deleted 26-30 1 Response Mar 23

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    Related Experiences

    I was wondering if anyone else has dealt with this. I have CRPS in my left foot. Now I am dealing with horrible ingrown toe nail on my big toe, and it becoming infected. I will be...
    CRPSsurviving CRPSsurviving 26-30, F 37 mins ago

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    About 17 months ago I injured my left shoulder during a period where I was training particularly hard and i just woke up one day and could hardly raise my left arm at all without...
    dukeyboy83 dukeyboy83 31-35, M 2 hrs ago

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    I cherish women and am always eager to serve them but i want to be their sissy or their baby sissy. I seek them to humiliate and embarrass me with their girlfriends. Show me off in...
    SissyBabyErica SissyBabyErica 51-55, M 6 hrs ago

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    All I can say is thank God for the theatre. My parents signed me up for an amateur theatre group when I was 11; in hindsight, they may have done it because of my Asperger's (I was...
    heyitsgarrett heyitsgarrett 22-25, M 2 Responses 14 hrs ago

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    You will attach my name in front of any of these titles. Like so... I am Sadie the: Superior. Magnificent. Tremendous. Unassessably Wealthy. Mighty. Terrible. Stupendous...
    ThereIsNoName3 ThereIsNoName3 31-35, F 23 hrs ago

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    Hey guys. I diagnosed myself with Pica Syndrome because I crave soap pretty often and I recently started eating carpet freshener powder. I feel ashamed of what I've been doing so I...
    WhyArentYouSmiling WhyArentYouSmiling 18-21, F 1 Response 1 day ago

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    So I made an account for this website to share my story about having polycyclic ovary syndrome. I was only diagnosed two days ago but after talking to my doctor and reading...
    JudgementFreeMe JudgementFreeMe 22-25, F 3 days ago

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    Does anyone else suffer with violent shaking/flinching of the head? I was wondering if this is a POTSie thing or maybe linked with some kind of anxiety?
    justhollyjayne justhollyjayne 16-17, F 3 days ago

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    I have been tired like crazy! Can barely stand without passing out. Just another part of living with pots I guess.
    Tealltoennis Tealltoennis 16-17, F a week ago

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    Im 25 years old and 100% have this, not that I have been formally diagnosed. I only found out about pica about two years ago but it explains everything. I seem to have cross over...
    terriberri15 terriberri15 22-25, F 1 Response Jun 29

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    Want to know me better? Autism is funny. And terrifying. (Just like EP really) Just now, as I sat reading a short passage of keywords about autism titled 'Am I OKay' I did my...
    jacquelinejones jacquelinejones 46-50 3 Responses Jun 28

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    Ever since I could remember I've never been able to just fall asleep whenever. I sleep in soooo late, like 12:00 pm and I constantly get yelled at for it by my parents. I literally...
    saide33 saide33 13-15, F Jun 28

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    I was diagnosed from my kidney doc after a Biopsy that I had sjogrens, but my Rhuemetologist says no ( I don't like him and am changing to a new one) I already have kidney disease...
    katsass katsass 46-50, F Jun 27

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    and am glad there are others out there that have it too, because i'm not crazy.(At least not half as crazy as they were making me out to be)But...I would never, ever wish this...
    katiebabydoll13 katiebabydoll13 26-30, F Jun 27

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    Im 16 and I struggle with Poland syndrome just as much as everyone else. I was fortunate in my case as I am only missing my right peck and an arm muscle. Other than that, I have no...
    FreeWilly04 FreeWilly04 16-17, M 1 Response Jun 25

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    Traces of you linger, painting my bedroom walls with your scent. Visions of you flash, my eyes lucid dreaming of your shape. The taste of your name in my mouth, my lips quiver...
    writingmyrelease writingmyrelease 26-30, F 3 Responses Jun 24

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    Does anyone else have obsessions? I get obsessed with men, like my trainer. It can make life hard.
    janie94 janie94 18-21, F 1 Response Jun 24

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    I was diagnosed with Raynards in 1987 and then with CREST Syndrome in 1989. It was a scary time for me as my doctor called my whole family in and told them I has 3 to 4 years to...
    1990ppaul 1990ppaul 51-55 Jun 23

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    I found out in January, everything makes sense now. If only I could cope in a healthier way. I need more from my boyfriend, friends. I have no family. I'm all alone in a sea of...
    europaproxima europaproxima 22-25, F 1 Response Jun 23

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    I know a person can die from a broken heart (Broken Heart Syndrome ) and I wonder if a person can die from an empty heart?
    5catjenny 5catjenny 61-65, F 2 Responses Jun 22

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    Today I had an appointment with my primary care physician. I suspect that I have POTS. For almost 10 years I have been dealing with chest pain, shortness of breath, muscle pain...
    anewsyd anewsyd 26-30, F 1 Response Jun 22

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    Me and my mum clash! She thinks I'm attention seeking, needy and self absorbed. I resent my mum, she brought me into this world against my will, and she shows me no love. I...
    busybrain busybrain 26-30, F 2 Responses Jun 22

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    I think a good male friend of mine may have Klinefelter syndrome. He fits many of the symptoms mentioned online including he is tall, a bit socially awkward, very wide hips and...
    pennyjd pennyjd 36-40, F Jun 22

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    FIRST I want to ask if any of you have had or thought about having surgery done to fix the webbed-neck and low hairline most of us are born with? I’m considering having it...
    CousinV CousinV 18-21, F Jun 21

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