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I Have Superior Mesenteric Artery Syndrome

A Superior Mesenteric Artery Syndrome anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Superior Mesenteric Artery Syndrome. You're not alone. 34 People

    First I Do Not Have SMA

    I have a good friend who is a 55 yr old lady who has been having multiple GI problems for several years. was diagnosed with Lupus and it seems every symptom she has is always blamed on the lupus. Now she has self treated herself by not eating solid foods, only certain liquids...
    Deidman Deidman 61-65 1 Response Aug 6, 2013

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    A new resource for those with chronic invisible

    physical illness, including SMA Syndrome: Reddit.com/r/CROCUS
    ISavedMyself ISavedMyself 26-30, F Feb 28

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    So I am a 28 year old man,

    in good shape. I just found out I have SMA. I was released from the hospital after 100's of tests. But I'm glad I finally know what I have. Has anyone else wondered why these unbearable pains start later in life??? So now I'm at a crossroad, has anyone had the surgery?
    Legendary504 Legendary504 26-30, M Jan 26

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    My daughter has smas

    and is being cured by tilting upside down at a 45% angle on her back with arms over her head.She was looking at a surgical feeding tube after two years of fighting to avoid surgery.The doctors had her try this while she was hospitalized.three days later was eating normally...
    racheldunkley racheldunkley 41-45, F Apr 6

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    SMA

    I am a 42 year old female and in january 2011 i was taken to hospital with severe stomach pains, after ct scans doctors realised that part of my bowel had died i think this was about 20 cm 12 days later i was let home only to suffer more severe pains after i was eating i couldnt...
    kelley42 kelley42 41-45, F 1 Response Sep 19, 2013

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    My Sma Story

    Well this all started a few years ago. Apparently some of my arteries constricted the duodenum, due to being to thin. All my life I have been made fun of for being "anerexic" i was always "bones" "twiggy" or "the skinny girl" no matter how hard I try, I still have problems...
    GettingStronger1994 GettingStronger1994 18-21, F 2 Responses Jul 21, 2012

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    I'M Fighting SMA.

    I'm 56, have always been fit. Lived in the gym doing weight competitions, yoga, and felt fantastic. I weighed 125 at 5'5 All muscle. Two years ago, my problems began with abdominal pain, nausea, and difficulty eating hardly anything. Weight fell off with months. I...
    Sereneme56 Sereneme56 56-60, F 6 Responses Mar 7, 2013

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    I Have SMA Syndrome

    Hello, I'm 13 and was diagnosed with SMA six months ago. I have been battling stomach issues my whole life, but just recently they got really bad. I lost 15 pounds in less than 3 weeks from my already thin figure. My doctors didn't know what was wrong and I under went a series...
    L3na L3na 13-15, F 2 Responses Jul 15, 2013

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    I am 13 now. I was diagnosed with it

    when I was 12. For a year my life was on hold. I had a major bypass surgery and now i am all better now. Please tell me if there is someone else like me out there. It is very rare and between 1861 and now there has only been 500 known cases in the English medical thingy. lol idk...
    princesshayray princesshayray 13-15, F 1 Response Jul 21

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    What's Best To Eat?

    I was having awful pain for months and lost alot weight. I am currently 6 stone! I was lucky because I was in a French hospital with the pain and it only took then 9 days to diagnose it! But now they want to put tubes in my nose to feed me and I can't do that! I hate things being...
    Rachc0125 Rachc0125 22-25, F 2 Responses Jul 26, 2013

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    Is there anyone who has pain in night,

    too? I had a Transposition of the superior mesenteric artery in Germany by Prof. Sandmann last year. At first the result was very good. I have got back my life. Since few month I have a rezidiv and now my doctors have fear about a new surgery. Only Prof. Sandmann in Germany is...
    lebenskuenstlerin lebenskuenstlerin 46-50, F Jul 21

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    Finally I Have An Answer

    After almost 2 years of pain,weight loss,vomiting, and no answers from my doctors...I finally have been diagnosed with SMAS. It seems the cause was my slim build, and I have only gotten smaller, basically wasting away over this past year. I have a appointment with the surgery...
    Lodom38 Lodom38 36-40, F 3 Responses Aug 28, 2012

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    Wondering What To Expect Now....

    Hi, I am a 49 year old female , 5'9", I was 120 pounds until recently .I now weigh 96.Have been feeling bad since February, Went through all the channels that led to the diagnosis of Sma syndrome, just had lapriscopic surgery to" fix" the problem Monday, have been in...
    anginchains anginchains 46-50, F Jul 19, 2013

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    My 9 Year Old Son Has SMA

    1 year ago my 9 year old son was diagnosed with SMA after 6 months of back and forth visits to different doctors. He had severe stomach pain and would vomit and had trouble using the restroom. With the help of an amazing doctor and tons of boost/dualcal and other weight boosters...
    Candez10 Candez10 31-35, F 3 Responses Apr 6, 2013

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    After a decade of unexplained chronic pain,

    I finally have a diagnosis. It began with the loss of my ability to run, and I have undergone four surgeries, multiple ultrasounds and CT scans, a HIDA scan, X-Rays, an MRI, and years of physical therapy and pain clinic regimens before finding the cause. SMA syndrome is an...
    ISavedMyself ISavedMyself 26-30, F Jan 29

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    Been Suffering For 4 Years Now...

    I am a 30 yr-old female that was diagnosed w/ SMA syndrome in May 2010, after about a yr & 1/2 of extreme abdominal pain, nausea, vomiting, and continual weight loss (which only made things worse). It took three GI doc's b/f I found one who knew what was going on. I have had 2...
    minderella333 minderella333 26-30, F 6 Responses Apr 29, 2012

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    Related Experiences

    Just recently I began researching on middle child traits. I've found out that middle child syndrome is very real and it's not only me who suffers from it. Growing up, I have...
    123eat 123eat 22-25, F 1 Response Aug 24

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    Do anybody have worse symptoms POTS at night.. I how 5 time harder symptom of POTS at night. How evening is coming my symptoms are getting much worsen. How day is ending my blood...
    Drybrain Drybrain 26-30, M 1 Response Aug 3

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    In 2009 I was diagnosed with pandysautonomia - POTS after getting ill from having a flu shot. It has completely taken everything away from me. I have had problems with my blood...
    Buffy2014 Buffy2014 31-35, F 1 Response Aug 5

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    Hello I am 14 and I've had POTS since I was 10. It's been really hard for me and no one really understands what I'm going through. My friends and family try and help but they don't...
    TavynSantee TavynSantee 13-15 2 Responses Aug 8

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    Hey to all the young potsies out there struggling thru this as I am still.....seriously I just want you to know that you're not in this alone. And whenever you start to feel that...
    Ktglisson87 Ktglisson87 26-30, F 2 Responses Aug 9

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    I'm an athlete and have always been an athlete. I was diagnosed with POTs a year and a half ago and it has taken complete control of my life. At first, doctors thought it was...
    Liv44 Liv44 18-21, F 1 Response Aug 12

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    Does anybody have really bad period symptoms when on their period? Every time I get my period I am screaming and crying because my cramps are so bad. I'm only 14 and it's been like...
    sweindorf sweindorf 13-15, F 3 Responses Aug 16

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    I am so sick of having this!! It causes so many problems for me. Everyone around me just thinks I'm lazy when I can't help it. I take so many different sleeping medications just to...
    dannyfelis131 dannyfelis131 16-17, F 1 Response Aug 18

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    I am really struggling cos I have fibromylagia , migraines , ins , Pcos and so many others. the last year has been tough and I have been unable to complete my studies .
    ebitogu ebitogu 26-30, F Aug 19

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    Without it, we can be helpless in some ways as a lot of our systems run on electric power. But when It's a important commodity, not Anyone is provided to deal with it. An incorrect...
    Nolanyqj Nolanyqj 31-35, M 1 Response 3 days ago

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    I don't think I have pica syndrome or if it's just a nutrition deficiency but when I get a bath or something I sometimes have a chew on the sponge or something because I like the...
    lucymichelle lucymichelle 13-15, F 2 Responses 5 hrs ago

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    And through Asperger syndrome, I met a good friend on this website. Since then, we have met in person and he and I are beyond best friends; we are true brothers and always will be...
    chubbystringbean chubbystringbean 22-25, M 19 hrs ago

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    I am 13 years old. My life has been all messed up because of aspergers syndrome. Aspergers syndrome is incurable. I dont like being bullied by anyone and if people bully me to my...
    Konerko555 Konerko555 13-15, M 8 Responses Aug 2

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     I don't actually have Aspergers Syndrome myself(that I am aware of). I am posting this story becauseI would like...
    Jugemu Jugemu 31-35, M Aug 3

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    All my life, I’ve felt different, like I just don’t quite belong in any group that I’m a part of. Trying to fit in has led to me to trouble. I’ve drank heavily, smoked weed...
    empoweredh22 empoweredh22 22-25, M 1 Response Aug 16

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    Last edited 3 days ago by ElDelRey1 Sensory processing disorder Example of how visual, auditory and somatosensory information merge into multisensory integration representation in...
    ONEPIECE749 ONEPIECE749 18-21, M 1 Response 13 hrs ago

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    HI Bridget - You will definitely must seek the services of a car. I go through many of the critiques and what can I say? Almost certainly the put is fine normally it couldn't be...
    Hiltonhn53 Hiltonhn53 31-35, M 1 Response 6 hrs ago

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    I am at a loss and need some help! I went to urgent care in February because I had this horribly terrible rash that itched uncontrollably and was painful. I had clusters of what...
    SweetJFowler SweetJFowler 26-30, F 1 Response Aug 17

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    Dr. Thomas Marvelli is a licensed ophthalmologist holding twenty nine years of experience in providing superior eye care. Presently, he runs an eye care center in Texas by the name...
    ryangibello ryangibello 56-60, M Aug 14

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    My childhood was hell. No family and no friends. Just bullies who had nothing beater to do than steal my clothes or knock me off my bike. When I was 12 got beaten up really badly I...
    Skye1997 Skye1997 22-25, M 2 days ago

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    In April 2012 I was officially diagnosed w/POTS Syndrome after several months of symptoms of worsening symptoms. I was one of the fortunate few who came across a neurologist at the...
    Jill73 Jill73 41-45, F Aug 6

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    I have been diagnosed with Asperger syndrome. Sometimes it just seems like it doesn't fit at all except the unsocial part as most of my routines has fallen apart well I guess this...
    Joiss Joiss 18-21, M 2 Responses Aug 10

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    Having Aspergers Syndrome is quite challenging for me. I have always felt like a ghost or a being living in another world in high school. Because of my particular interests, I have...
    loveVictorandDumas loveVictorandDumas 16-17, F 1 Response Aug 21

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    I'm 18 and every time I look at myself in my bra & panty..I stare. I stare at my reflection and I'm happy with how I was born; bare left chest no pectorals/nipple/muscle just my...
    ardorzie ardorzie 18-21, F 1 Response Aug 22

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    I used to really hate myself, I honestly did. But now, I'm happy I have what I have. When I was in elementary school, I never talked to anyone, I would walk around the playground...
    ThatRobotChick ThatRobotChick 18-21, F 5 Responses 3 days ago

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    I once told myself that if I'm gonna have a family of my own, I will never be like my mother. I must admit, I envy mothers who are close to their children. In my case, my mother...
    SweetEclair SweetEclair 31-35, F 3 Responses Aug 1

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    Some folks seem to build themselves up by finding Fault with others spelling& grammer mistakes--For some--that seems to be more important than what people actually say! Not...
    jettys jettys 56-60 Aug 3

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    ThePrettyOnee ThePrettyOnee 13-15, F 17 Responses Aug 4

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    Does your Sydney company require its SEO taken up a notch? Or do you think you're new on the search engine optimisation environment and need some online visibility? Get in contact...
    Newtonys505 Newtonys505 31-35, M 1 Response Aug 7

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    "Dear Father" Dear father, Why do I feel so empty? Like there is something missing. Yet there isn't. It's like I can't expect it to be there but I hope in silence that it's there...
    kittykat6918 kittykat6918 13-15, F 2 Responses Aug 8

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    We did not freak out. I worked in a pleasant cafe for quite some time and I am aware from practical experience that even with very best efforts, it can happen.Bernard also retains...
    Matthew937i7gu1 Matthew937i7gu1 31-35, M 1 Response Aug 11

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    Dear Reader, The date is August 16th, 2014. I don’t know why I’m writing this. I guess maybe I just feel like I don’t have any other place to turn at the moment, afraid of...
    SmrtMouth SmrtMouth 16-17, M Aug 17

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    Make sure you be a part of us in providing one last cheer to all the oldsters that have shared their goals with the whole world, and also every one of the people who have labored...
    Laurenazrj90 Laurenazrj90 31-35, M 1 Response Aug 19