I Have Susac Syndrome

A Susac Syndrome anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Susac Syndrome. You're not alone. 11 People

    Susac Syndrome

    hi my name is sandra and a couple years ago my 21 year old daughter was diagnosed with susac syndrome, she had gotton all of her sympomes at the same time so was very difficult for the doctors to figure out. so at this point she no longer knows who i am, she doesn't know she...
    sandrakae sandrakae
    1 Response Jan 4, 2012

    I Have Susac Syndrome And Lost All My "friends"

    at the beginning of the year, this year(2011) I was sick and the hospital didn't know why, so I got transferred to Vanderbilt University Medical Center. luckily, bc they saved me. I woulda just died if  they hadn't transferred me, bc they just thought I was on drugs. but...
    volsgirl27 volsgirl27
    31-35, F
    1 Response Nov 21, 2011
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