I Have Sweet's Syndrome

Sweet's Syndrome anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Sweet's Syndrome. You're not alone. 27 People

    A Sweets Saga

    I got my first lesion in 2005. What Luck - this has become a pivotal factor in my personal growth. The doctors didn't know what the lesions on my legs were - I got varied diagnosis and treatments. Eventually being hospitalized with a high fever and more lesions - the attending...
    ippolito ippolito
    61-65, F
    3 Responses Mar 3, 2013

    My Journey With Sweet's

    My Sweet's story begins in June of 2010. After working in the yard and with the horses all, at bedtime I notice a "bite" on my right leg. The next morning it has grown and is ugly. My wife said it musy be a spider bite and I should have it checked out. Since it is the weekend off...
    racechaplain29 racechaplain29
    56-60, M
    1 Response Aug 17, 2012

    My Sweets Story

    I was diagnosed with Sweet Syndrome in 2005 after 2 months of painful lesions on my leg, fevers and body aches. AND, multiple false diagnoses and Dr's shrugging their shoulders. I was diagnosed by a Dermatologist who was like a hero to me at the time because he finally had an...
    kotecki4 kotecki4
    4 Responses Jan 12, 2012

    Neutrophilic Urticarial Dermatosis

    While researching for something, anything resembling what I have, I came across this abstract from the US National Library of Medicine/National Institute of Health. I find this one quite interesting. SEE THIS STORY ON MY BLOG: http://notsosweets.blogspot.com/2013/01...
    RhondaWN RhondaWN
    36-40, F
    Feb 2, 2013

    Get Sweet's Recognized...

    Can you believe that even the American Autoimmune and Related Diseases Association does not have Sweet's listed on their Web site? Here's the email address for the American Autoimmune and Related Diseases Association. LET'S BOMBARD THEM WITH EMAILS REQUESTING TO ADD SWEET'S...
    RhondaWN RhondaWN
    36-40, F
    1 Response Oct 10, 2012

    Dont Know What To Make Of It All?????

    On 5th June I thought I went down with a viral/flu type bug. I am self employed so if I spend a day in bed it is unusual. I could not get out of bed, ached all over, hot sweats and then shivers. Very sore throat (which I had had for months on and off). I remained like that for 3...
    sweetsjune2013 sweetsjune2013
    46-50, F
    Jul 11, 2013

    My Sweets Syndrome Story

    I was lucky I saw a dermatologist who biopsied a lesion right away.  It came back as sweets syndrome and there was no bacterial or viral infiltrates.  She imediately put me on large doses of oral prednisone on a decreasing dose.  That was about twent years ago, and...
    terrie566 terrie566
    10 Responses Aug 29, 2010

    In The Beginning...

    I'm starting this blog to share my experience with Sweet's Syndrome in the hopes to find others who've been through it too and to educate others on what we suffer through. This is how and when it started: March 2011: It started with just constant itching. I didn't have any...
    RhondaWN RhondaWN
    36-40, F
    1 Response Oct 10, 2012

    I am at a loss and need some help!

    I went to urgent care in February because I had this horribly terrible rash that itched uncontrollably and was painful. I had clusters of what appeared to be welts. I also had developed a respiratory/sinus infection and flu like symptoms BUT never getting a fever. They diagnosed...
    SweetJFowler SweetJFowler
    26-30, F
    1 Response Aug 17, 2014

    Urgent Message To Doctors: Just Biopsy The Dam Thing!

    For 4 years I was told by 3 Doctors that the lesions on my head, arms, were nothing to worry about. June 2012 I went to a new dermatologist and told him NOT to tell me nothing was wrong. When I went back BOTH Dr.'s were in the room telling me they were going to "re do" the...
    508kimmy 508kimmy
    51-55, F
    1 Response Sep 15, 2012
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