I Have Sydenham's Chorea

A Sydenham's Chorea anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Sydenham's Chorea. You're not alone. 15 People

    my granddaughter who is 5yrs.

    old had open heart surgery in oct. she developed post pump chorea in dec. i am trying to find people who have this. she has ******* and swinging on rt. side and is not using the rt. side and she is rt. handed. off to pt and ot next week for the first time and a 2nd opinion next...
    tarasmamaw tarasmamaw
    51-55, F
    Jan 26, 2014

    Trying To Find People That Have Or Have Had Sydenham's Chorea And Rheumatic Fever

    I have had both and im trying to find out if others who have it or have had it have the same trouble with pain,movement,ect..
    carlastone carlastone
    26-30, F
    11 Responses Apr 8, 2011

    Living With Sydenham's Chorea

    Hello everyone, I am heading towards my 22nd birthday and I have been living with Sydenham's Chorea since I was 10 years old. When I first became aware of my involuntary muscle contractions, my first reaction was to hide it. Unlike other cases, my movements were not jerks or...
    kidpalma kidpalma
    22-25, M
    1 Response Jun 21, 2011

    My 7 Year Old Son Has Sydenhams Chorea!

    Hello I have a 7 year old son who was diagnosed with Sydenhams chorea back in 2008. I was looking for parents who have also dealt with this in their child. I have so many questions and doctors cant seem to answer them. so I was hoping to meet some people who are also going...
    Courtkaye Courtkaye
    7 Responses Mar 2, 2013

    My daughter was diagnose with it

    when she was 9 she just turned 10 and things are getting. Worse. It seems like the medication is no longer working and she is very apologetic because she thinks she is going crazy and she is bothering every body. Of course we reassure her she is fine but of course it doesn't...
    tactkins tactkins
    26-30, F
    Jun 17, 2015

    Son In Process Of Being Diagnosed With Syndenham

    Hello everyone! My name is Lisa and I have a 10 yr old son named Kaedon. I'm going to try to give brief history. First saw Dr about Kaedon jerky movements when he was 5. Tested for Tourettes did not qualify b/c didn't have speech tick. His physical ticks came & went over last 5...
    howell101808 howell101808
    36-40, F
    2 Responses Aug 12, 2013
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