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I Have Syringomyelia

A Syringomyelia anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Syringomyelia. You're not alone. 18 People

    I Have This Disease

      i have something called syringomyelia it's a spinal disease where there's fluid in the spine. I took finding out that I also had cerebral palsy and a conversion disorder to discover this. I am one of the lucky ones for now the cyst in my spine is to small to...
    Passionfruit3 Passionfruit3 22-25, F 2 Responses Aug 29, 2009

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    I have had two surgeries already

    for syringo, but I am going to have my third one for a second shunt soon.
    leew123 leew123 22-25, F 3 Responses Mar 13, 2014

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    I Have Syringomyelia And Fibromyalgia

    I have had extreme headaches, pain and weakness in my left arm and both legs for the last 10 years. As the pain, numbness, tingling and weakness got worse I would continue to go to the doctors with them saying that its stress. I went through an episode several years back with...
    Hopestrengthcourage Hopestrengthcourage 36-40, F Apr 4, 2013

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    I Have It Too

    Hi there, I've had syringomyelia for nearly 10 years and I'm absolutely fine. Keep positive. Don't dwell on it. Stay strong in the body. Take folic acid. xx
    robandjayneg robandjayneg 41-45, M Oct 2, 2010

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    I Have Syringomyelia

    I have just found about 2 months ago that I have syringomyelia. I have it from my c6-t9. I am going to see a neurosurgeon in oct 12 and am very nervous/scared. I know what syringomyelia is but would like more information about surgeries an complications thank you.
    Stronggirl4 Stronggirl4 16-17, F 4 Responses Sep 22, 2012

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    "i Have Syringomyelia" And Need Someone To Talk To Please.

    "I Have Syringomyelia" and had surgery 2 years ago putting a stint in my spine. It has not helped and my symptoms have gotten worse.  It is the hardest thing to explain to someone what its like to have this. They want to put a stimulator in me since I have problems with my legs...
    billy1088 billy1088 56-60 1 Response May 4, 2012

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    Related Experiences

    So basically most people who aren't that close to me don't know that I am a person who suffers from GAD (Generalized Anxiety Disorder). Some of the symptoms of GAD include...
    devinesoul94 devinesoul94 18-21, F 2 Responses 12 hrs ago

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    I am a 23 year old and was just charged with a DUI over the weekend. No one was hurt. No one else was involved. Just me. I always had a rule when driving after having drinks...
    lookahead49 lookahead49 22-25, M 2 Responses 2 hrs ago

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    Girls with straight hair don't know how easy they have it. -_- The fact that I actually have to "do" my hair every morning in order for it to look it's best is annoying...
    Scoodaloop Scoodaloop 18-21, F 3 Responses 3 hrs ago

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    most of the ppl who say the are bpd and not been diagnose by a professional. ive taken a lot of test , and it comes up that i have strong indicators of it , they confirmed i do...
    WhiteRice14 WhiteRice14 18-21, F 1 Response 3 hrs ago

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    i have low self esteem, and i hate it. because i love myself, but its like i find trouble thinking in that way everyday. i have headaches sometimes thinking about bad things. I am...
    NonoFlorArtist NonoFlorArtist 13-15, F 1 Response 7 hrs ago

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    What does it really mean to be soul mates? I believe I have found him. We've known each other for years, our paths crossing with the potential for love twice before. But this...
    queennaji queennaji 18-21, F 6 hrs ago

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    Well we should start from the beginning but I have made the decision to become open about this even though i don't want to but I feel like I have to. I started back in 6th grade I...
    beeella beeella 13-15, F 6 hrs ago

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    You know those times when you start to feel very sexual but you can't do anything about it? Yes! I have been feeling very... sexual since yesterday! I am going nuts! I need sexual...
    Mariferb86 Mariferb86 18-21, F 2 Responses 4 hrs ago

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    Yes, I am married, with children, and have fallen in love with someone on the side. My new male lover makes me feel so wonderful and loved when we are together. We have so much...
    maryannelamb maryannelamb 46-50, F 4 Responses 3 hrs ago

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    FACK! It's been over 3 weeks (first OB) and I still have some itching and I tried to have sex and seem to still have a sore on the inside of my lady parts. It feels like I will...
    redheadchigirl redheadchigirl 26-30, F 2 hrs ago

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    I almost had sex with this guy. I regret it because he is now dating this Girl, who was once my friend. And I hate both of them and I don't talk to either of them. It hurts in the...
    Adridee Adridee 16-17, F 1 Response 26 mins ago

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    Yes, I have a lava lamp in my bedroom. I'm not ashamed to have spent $25 on it. It has clear fluid in it with purple "lava," in it. Personally, I think they're cool, and bring a...
    enigmaticraven enigmaticraven 31-35, F 3 Responses 14 hrs ago

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    I don't understand why dying has to be a bad thing. I seriously can't wait. I believe in God...was raised southern Baptist...but have formed sort of own belief. I know that IF...
    DownSouthFlGirl69 DownSouthFlGirl69 26-30 14 hrs ago

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    I am in 8th grade and most of my friends have dated or have a girlfriend, what should I do or how do I become friends with a girl?
    FedExPizza FedExPizza 41-45, M 1 Response 13 hrs ago

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    I just got transferred from one community mental health center to another, and today the new psychiatrist asked me what I was diagnosed with during my last hospital stay. I said...
    sarahk85 sarahk85 26-30, F 1 Response 13 hrs ago

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    As I go about my daily run its my relationship that is running through my mind, how did it degrade to what its become? How could I make things better? Do I want to try and save it...
    spiritofthecelts spiritofthecelts 31-35, M 1 Response 12 hrs ago

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    I have a few great friends that I have never met. Best friends* each message from them reminds me that I am not alone, but it hurts when all I need is a hug and no one is here...
    Harper101 Harper101 16-17, F 2 Responses 12 hrs ago

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    I have dated a lot of Women in my time, and I found out one thing. It is, that white women, can be extremely boring at times. Notice I did not say, all the time. I said at times...
    Elkins91 Elkins91 22-25, M 2 Responses 11 hrs ago

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    My sister and mother just laid the law down on me by severe arguing only coz I didnt want my kids to here my sister's convo after midnight with her friends as I have set rules for...
    Fizzy0875 Fizzy0875 36-40, F 8 hrs ago

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    I know for some people the following statement may be a shock and may even be disbelieved ....... You can disagree with someone without insulting them or being condescending. I...
    SolitaryElf SolitaryElf 41-45, F 3 Responses 7 hrs ago

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    Oooooh....... there are so many! I think I might have a pet peeve about how many pet peeves I have!
    girlfaith girlfaith 36-40, F 2 Responses 5 hrs ago

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    im not sure why im writing everydat i find is hell and struggling i do not feel connected i have therapy to day at mental heath i dtread going ouy there is in a badf s[pot im...
    hannahabbie hannahabbie 46-50, F 1 Response 4 hrs ago

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    From now on I'm not adding anyone whom I've never had any contact with. Whether it be a convo, message or what. I'm creeped out by all the people adding me who I have never seen...
    DeluxedEdition DeluxedEdition 18-21, F 4 Responses 2 hrs ago

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    I know you guys have had this happen to you too. Alot of times when I have conversations with people and I make a confession about a mistake I made or just something I did in the...
    RafaReu RafaReu 22-25, M 2 hrs ago

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    I'd love to have more, but if I don't click with them, or have much in common, I'd rather be friendless.
    everyotherusernamewastaken everyotherusernamewastaken 26-30, M 31 mins ago

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    Hey! I have an insta account; you follow me and I'll follow you back. You like my pics and I'll like yours too😃. And if you unfollow; I may unfollow you too. Hit me up...
    TheRobin1112 TheRobin1112 16-17, M 12 hrs ago

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    Every single one of us struggles with attitudes and behavior patterns that are self-defeating and bring unhappiness. Any form of dysfunctional behavior- like yours, like mine...
    Injoy1767 Injoy1767 46-50, F 1 Response 11 hrs ago

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    Had to leave for a few hours, need to breathe and calm down before it escalates! I hope these "tests" bare fruit in later life coz right now I'm struggling internaly to cope! I'm...
    spiritofthecelts spiritofthecelts 31-35, M 8 hrs ago

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    I am a nice person to strangers and I'm friendly, helpful, kind and pretty funny to my friends.But at home I'm hot tempered, won't speak to anyone if I don't have to. Lock myself...
    Jabezzz2 Jabezzz2 31-35, M 1 Response 8 hrs ago

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    Have Good Manners....................
    goodnites25 goodnites25 22-25, M 7 hrs ago

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    sorry guys I have been really busy so yea ill try to be on more often
    Bonjovi11 Bonjovi11 13-15, M 1 Response 7 hrs ago

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    I've tried talking to my boyfriend about some problems regarding my best friend but he just gets upset at what I tell him. I think I've gave him a bad impression of my family too...
    Sayybriana Sayybriana 18-21, F 7 hrs ago

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    I have a bad *** beard and dam proud of it. I would never shave it off!
    RedDog123321 RedDog123321 18-21, M 7 hrs ago

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    does anybody know of a way i can read A MANGO SHAPED SPACE without buying it?? i dont have the $$ atm but it sounds so amazing!!
    kinkystapler kinkystapler 18-21, F 6 hrs ago

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    I've gone to the extent of avoiding my gruesome memories; I know I've suppressed many of them to the deepest of my mind. I have the knowledge that doing so isn't safe but I feel...
    LoveOverHatred LoveOverHatred 18-21, F 1 Response 6 hrs ago

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    I just want to say that is it is a great feeling. I have been doing taekwondo ever since I was 6 and it's great knowing I can protect myself. I really do recommend learning a...
    Someonequiet17 Someonequiet17 18-21, F 5 hrs ago

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