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I Have Syringomyelia

A Syringomyelia anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Syringomyelia. You're not alone. 18 People

    "i Have Syringomyelia" And Need Someone To Talk To Please.

    "I Have Syringomyelia" and had surgery 2 years ago putting a stint in my spine. It has not helped and my symptoms have gotten worse.  It is the hardest thing to explain to someone what its like to have this. They want to put a stimulator in me since I have problems with my legs...
    billy1088 billy1088 56-60 1 Response May 4, 2012

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    I Have It Too

    Hi there, I've had syringomyelia for nearly 10 years and I'm absolutely fine. Keep positive. Don't dwell on it. Stay strong in the body. Take folic acid. xx
    robandjayneg robandjayneg 41-45, M Oct 2, 2010

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    I Have Syringomyelia

    I have just found about 2 months ago that I have syringomyelia. I have it from my c6-t9. I am going to see a neurosurgeon in oct 12 and am very nervous/scared. I know what syringomyelia is but would like more information about surgeries an complications thank you.
    Stronggirl4 Stronggirl4 16-17, F 4 Responses Sep 22, 2012

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    I have had two surgeries already

    for syringo, but I am going to have my third one for a second shunt soon.
    leew123 leew123 22-25, F 2 Responses Mar 13

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    I Have This Disease

      i have something called syringomyelia it's a spinal disease where there's fluid in the spine. I took finding out that I also had cerebral palsy and a conversion disorder to discover this. I am one of the lucky ones for now the cyst in my spine is to small to...
    Passionfruit3 Passionfruit3 22-25, F 2 Responses Aug 29, 2009

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    I Have Syringomyelia And Fibromyalgia

    I have had extreme headaches, pain and weakness in my left arm and both legs for the last 10 years. As the pain, numbness, tingling and weakness got worse I would continue to go to the doctors with them saying that its stress. I went through an episode several years back with...
    Hopestrengthcourage Hopestrengthcourage 36-40, F Apr 4, 2013

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    Related Experiences

    I have the most amazing boyfriend/husband. We have been together for 3yrs. And it has been the best 3yrs of my life. i never knew who he was, i only knew what i have heard about...
    garzzza14 garzzza14 18-21, F 6 hrs ago

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    I'm a negative person. A pessimist at my best! It's tragic. I have no clue why I've let life do this to me for this long. I'm only 21 years old and I am already tired, bitter and...
    Theworldisminenow Theworldisminenow 18-21, F 8 Responses 5 hrs ago

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    My love is 23 years older than me. We met a few years ago online via AgeMeet.com. It was totally platonic but I broke off contact due to doing other things in my life, I wasn't...
    toylycc11 toylycc11 26-30, F 1 Response 6 hrs ago

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    My love is 23 years older than me. We met a few years ago online via AgeMeet.com. It was totally platonic but I broke off contact due to doing other things in my life, I wasn't...
    toylycc11 toylycc11 26-30, F 6 hrs ago

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    My love is 23 years older than me. We met a few years ago online via AgeMeet.com. It was totally platonic but I broke off contact due to doing other things in my life, I wasn't...
    toylycc11 toylycc11 26-30, F 6 hrs ago

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    I always thought I was firing blanks, but in the last month it's been confirmed that I have a daughter! She's just turned 4 and she's gorgeous. She must get her looks from her...
    Mick672 Mick672 41-45, M 2 Responses 3 hrs ago

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    I woke up feeling better. I may not be 19 but I still have plenty of guys who want me. But I am smart, I am funny and witty. I have class and culture and an amazing ***! I know I'm...
    KittyKurious KittyKurious 26-30, F 25 mins ago

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    I am in love with a guy, and he with me. So deeply and madly in love, but his parents have forbidden our relationship. So I have to wait until he can make his own choices. I have...
    Jinx2109 Jinx2109 18-21 1 Response 6 hrs ago

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    So I went to the doctor a few days ago for some stomach pains and a sickly color I was and turns out I have quite a few parasites in me o.o. she said I had ascaris worms in my...
    navel795 navel795 18-21, M 6 hrs ago

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    If you work hard enough and don't lose sight of your dreams they will come true, but most people usually give up on this because they deem it as "impossible". Nothing is impossible...
    SunsetTears SunsetTears 18-21, F 5 hrs ago

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    If you work hard enough and don't lose sight of your dreams they will come true, but most people usually give up on this because they deem it as "impossible". Nothing is impossible...
    SunsetTears SunsetTears 18-21, F 5 hrs ago

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    If you work hard enough and don't lose sight of your dreams they will come true, but most people usually give up on this because they deem it as "impossible". Nothing is impossible...
    SunsetTears SunsetTears 18-21, F 5 hrs ago

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    If you work hard enough and don't lose sight of your dreams they will come true, but most people usually give up on this because they deem it as "impossible". Nothing is impossible...
    SunsetTears SunsetTears 18-21, F 5 hrs ago

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    I'm not gonna lie. I have friends, but I feel so distanced from them that I don't know if they really know me. Sometimes I entertain the thought that nobody cares about me. I just...
    CapnChris CapnChris 22-25, M 5 hrs ago

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    I have a boyfriend who I have been with for 7 months and really is the best ever he's caring , perfect , trust worthy , wears heart on sleeve , thoughtful , handsome . He gives me...
    Jayd97 Jayd97 16-17, F 3 hrs ago

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    Yesterday, I wrote my slutty confession...'the what I did in Paris'. There was this particular personal comment which I like so much..and thought that I could share with you all...
    SwanLake78 SwanLake78 36-40, F 3 Responses 3 hrs ago

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    I've got this biggest crush on Mr. Christian Grey! (In fact all of the hot and perfect guys I have read.) I swear I would be Anastasia in a heartbeat just to have my own hot and...
    dakilangdreamer dakilangdreamer 18-21, F 3 hrs ago

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    There have been a few occasions in my life when I learned how s%xual a woman can be to a man... Unfortunately in my case it started with my father. I remember doing gymnastics...
    lilygeorge12 lilygeorge12 22-25, F 1 Response 2 hrs ago

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    There have been a few occasions in my life when I learned how s%xual a woman can be to a man... Unfortunately in my case it started with my father. I remember doing gymnastics...
    lilygeorge12 lilygeorge12 22-25, F 2 hrs ago

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    Who is going to hold your hand or mine? Who is going to comfort me or you ?You have lost someone but so have I , it's not wisdom or cleverness that we have avoided being infected...
    missreeedy missreeedy 31-35, F 1 Response 1 hr ago

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    I have random thoughts every few minutes. This random thought I have a question with: why is it that with patterns if you look at it in a certain way you see faces? And why is it...
    XxDorkyBoyxX XxDorkyBoyxX 18-21, M 1 Response 1 hr ago

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    It's beginning to look a lot like Christmas.. You know it's that time of year when the shops are packed and people stop and have arguments in the parking lot bc one stubborn...
    aquagrl aquagrl 31-35, F 6 hrs ago

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    I don't understand Catholics sometimes. They believe in God but they worship the Virgin Mary. Don't they know that by worshipping her, they are breaking the 2nd Commandment? Thou...
    InfiniteSpecks InfiniteSpecks 13-15, F 1 Response 4 hrs ago

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    I think many guys have a just sex with wives also.....
    awakeja awakeja 51-55, F 4 hrs ago

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    Bad because we don't have one at home at this moment for a long time now. And it sucks because I don't get to go online 24/7.
    dakilangdreamer dakilangdreamer 18-21, F 3 hrs ago

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    I am feeling so alone in this world. And the only company I have is someone who can't stand to be around me - myself..
    prettyballerina prettyballerina 31-35, F 3 hrs ago

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    No matter how much, I want to believe in Gid. I can't. I don't believe God makes mistakes. I believe everybody has a purpose on this earth. I may not have all the male genes and im...
    Jedimindtrick39 Jedimindtrick39 36-40 2 hrs ago

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    if guys get hard every morning and the eath revolves around the sun, does that mean men have been doing a huge ***** wave around the earth for millions of years?
    chucku45 chucku45 13-15, F 1 Response 1 hr ago

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    I haven't update any experience with this statement in a really long time. 5'3, 84lbs I think that explains it. I finally succeeded^^ my goal has been reached. But I'm scared...
    roseinsurvival roseinsurvival 13-15 1 hr ago

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    I have snapchat. I love gettin dirty with girls 😘 add me: der_stahlhelm
    ZachGibbi ZachGibbi 13-15, M 18 mins ago

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    Which often means means I don't go to sleep until just before 5 or 6am. And I always feel so lazy when I wake up around midday, even though I've only had five to seven hours sleep...
    IdleFox IdleFox 26-30, F 3 Responses 10 mins ago

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    2014 is almost over and -i lost no weight -didn’t learn anything -haven’t made an effort to save money -still ugly
    LoneLegend LoneLegend 13-15, M 1 Response Oct 26

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    So I've been watching scary movies all month and I have to say these things: Sarah Michelle Gellar, Jennifer Love Hewitt, and Jennifer Tilly are gorgeous as ****. Chucky has a...
    AjLeePunk AjLeePunk 22-25, F 1 Response Oct 26

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    We met in 7th grade. You were my first friend that I ever went out to eat with. This was a big deal because my parents didn't let me walk around outside school without their...
    Fishees Fishees 16-17, F 3 Responses Oct 26

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    It's my dream to have a baby boy with someone I find attractive, only thing keeping me from ending my own life :/
    SwanNual SwanNual 22-25, F 8 Responses Oct 26

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    I have a dog and her name is Macy. Macy is a yorkie poo with white fur instead of brown though
    gorgeusgirlSky3 gorgeusgirlSky3 13-15 Oct 26

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    My sister hung herself when I was in 7th grade, and I have never been the same.
    Wickedfreek Wickedfreek 18-21, M 1 Response Oct 26

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    Please read-I've been trying to figure out whether my father is emotionally abusive or not. So for the past several years I have been noticing very problematic things my father...
    njhbabe njhbabe 13-15 2 Responses Oct 26

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    ok, not entirely. BUT I am now able to send one of my best friends from here pictures of me! (of my haircut xD) before, I would've rather died that do that. Hopefully this means I...
    goldenlord52 goldenlord52 13-15, M 1 Response Oct 26

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    I have no idea how my fish got out of the fish tank.. Poor fishy!!!!!!!!!
    courtsley courtsley 18-21, F 2 Responses Oct 26

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