A Syringomyelia anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Syringomyelia. You're not alone.
1 post. Updated a while ago |
Members Sharing the Experience "I Have Syringomyelia"
4 Members
This Experience at a Glance
Story highlights
These snippets show some of the most common themes mentioned in this experience's stories:
These snippets show some of the most common themes mentioned in this experience's stories:
- "I took finding out that I also had cerebral palsy and a conversion disorder to discover this..."
- "I had never taken a pill in my life for pain till I developed syrinx..."
And the Story Awards Go to...
Most Popular: I Have This Disease
Statistics:
50% of people who have this experience are in their thirties, 25% are in their fifties, and 25% are in their twenties. 100% of people who have this experience are women.
You may cite any I Have Syringomyelia statistics, provided you link back to this page
Check out this group's What Is It Like To Have Syringomyelia guide, where people with this experience share their tips and hints.
Here are a few tips...
- I have had chronic pain for nearly 8 years and the syringomyelia was picked up 5 years ago from a routine MRI. I have just discovered in the last week that if I sleep sitting up, I sleep better as the pain is less intense. Can anyone explain why this is?
Members said this page is also related to:
Do You Have Syringomyelia? , What is it like to Have Syringomyelia? ,Have Syringomyelia personal stories, Have Syringomyelia personal experiences
Other experience groups that have been combined into this group include: None yet.
Other experience groups that have been combined into this group include: None yet.
This is an experience group where everyone says: I Have Syringomyelia. It features support, personal stories and experiences, advice, chat, talk, forums, videos, pictures and resources from real people, just like you.
It's free to join, and the people in this group would love to meet you! If you've had this experience, or plan on having it in the future, simply click 'Me Too' or 'Plan To' and add it to your experiences. As you add more experiences, we're better able to
recommend interesting people to you that share many of your personal experiences.
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