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I Have Syringomyelia

A Syringomyelia anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Syringomyelia. You're not alone. 18 People

    I Have It Too

    Hi there, I've had syringomyelia for nearly 10 years and I'm absolutely fine. Keep positive. Don't dwell on it. Stay strong in the body. Take folic acid. xx
    robandjayneg robandjayneg 41-45, M Oct 2, 2010

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    I Have Syringomyelia And Fibromyalgia

    I have had extreme headaches, pain and weakness in my left arm and both legs for the last 10 years. As the pain, numbness, tingling and weakness got worse I would continue to go to the doctors with them saying that its stress. I went through an episode several years back with...
    Hopestrengthcourage Hopestrengthcourage 36-40, F Apr 4, 2013

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    I Have Syringomyelia

    I have just found about 2 months ago that I have syringomyelia. I have it from my c6-t9. I am going to see a neurosurgeon in oct 12 and am very nervous/scared. I know what syringomyelia is but would like more information about surgeries an complications thank you.
    Stronggirl4 Stronggirl4 16-17, F 4 Responses Sep 22, 2012

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    "i Have Syringomyelia" And Need Someone To Talk To Please.

    "I Have Syringomyelia" and had surgery 2 years ago putting a stint in my spine. It has not helped and my symptoms have gotten worse.  It is the hardest thing to explain to someone what its like to have this. They want to put a stimulator in me since I have problems with my legs...
    billy1088 billy1088 56-60 1 Response May 4, 2012

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    I Have This Disease

      i have something called syringomyelia it's a spinal disease where there's fluid in the spine. I took finding out that I also had cerebral palsy and a conversion disorder to discover this. I am one of the lucky ones for now the cyst in my spine is to small to...
    Passionfruit3 Passionfruit3 22-25, F 2 Responses Aug 29, 2009

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    I have had two surgeries already

    for syringo, but I am going to have my third one for a second shunt soon.
    leew123 leew123 22-25, F 2 Responses Mar 13, 2014

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    If you are sarcastic and have a very open mind , you know what I'm talking bout lol .
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    deleted deleted 26-30 2 Responses Dec 31, 2014

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    Yep I have gone to lectures totally drunk. I have been drunk at work.
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    I was baptised about a year after my birth in 1995. Even got Confirmed at the same parish church in 2006. The irony if I ever get married or have a funeral in the same parish...
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    I have them on both cheeks :) most of the time they just get me pokes on the cheek haha
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    EnjoyTheSilenceX EnjoyTheSilenceX 13-15, F Dec 31, 2014

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    Yes I do. I have 6 total, have pics of a few in my profile.
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