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I Have Syringomyelia

A Syringomyelia anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Syringomyelia. You're not alone. 13 People

    "i Have Syringomyelia" And Need Someone To Talk To Please.

    "I Have Syringomyelia" and had surgery 2 years ago putting a stint in my spine. It has not helped and my symptoms have gotten worse.  It is the hardest thing to explain to someone what its like to have this. They want to put a stimulator in me since I have problems with my legs...
    billy1088 billy1088 56-60 1 Response May 4, 2012

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    I have had two surgeries already

    for syringo, but I am going to have my third one for a second shunt soon.
    leew123 leew123 22-25, F 1 Response Mar 13

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    I Have This Disease

      i have something called syringomyelia it's a spinal disease where there's fluid in the spine. I took finding out that I also had cerebral palsy and a conversion disorder to discover this. I am one of the lucky ones for now the cyst in my spine is to small to...
    Passionfruit3 Passionfruit3 18-21, F 2 Responses Aug 29, 2009

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    I Have Syringomyelia And Fibromyalgia

    I have had extreme headaches, pain and weakness in my left arm and both legs for the last 10 years. As the pain, numbness, tingling and weakness got worse I would continue to go to the doctors with them saying that its stress. I went through an episode several years back with...
    Hopestrengthcourage Hopestrengthcourage 36-40, F Apr 4, 2013

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    I Have Syringomyelia

    I have just found about 2 months ago that I have syringomyelia. I have it from my c6-t9. I am going to see a neurosurgeon in oct 12 and am very nervous/scared. I know what syringomyelia is but would like more information about surgeries an complications thank you.
    Stronggirl4 Stronggirl4 16-17, F 3 Responses Sep 22, 2012

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    Related Experiences

    To be completely honest, I denied it for some time. I haven't actually done any kind of official test, but I have a nurse practitioner and a number of knowledgeable individuals who...
    Kavka Kavka 18-21, M 3 hrs ago

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    *Walks up to counter* “Hi, I would like to order a man, athletic build, cute face- maybe with a little scuff on it;), very kind, charming, and intelligent; and that will be all...
    MW1321 MW1321 18-21, M 1 Response 4 hrs ago

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    If I had friends! 😫😭 I mean I have friends, socially, but nobody asks to hang out with me or asks me to join them on something, unless its my sister and her friends. Maybe...
    ashalew ashalew 22-25, F 1 hr ago

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    I suffer awful anxiety attacks since 10 years every day. I also have social anxiety and have had panic attacks outside the house. I was on meds 10 years ago as it all started...
    angel8i angel8i 31-35, F 1 Response 1 hr ago

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    A lot of people (mainly guys) have said my voice is very soothing. I don't really agree but ehh.
    lexix0 lexix0 16-17, F 5 Responses 4 hrs ago

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    Last night I had a dream that felt good when I was having it but now I am awake I find it disturbing. I was with a crowd of people (in my mind, I seemed to associate them with...
    T4RD15 T4RD15 26-30 3 hrs ago

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    I lost my father to cancer on February 8, 2014 . I was just shy of turning 16 . He's missed so much in these past 2 1/2 months . I think it gets harder everyday . He should be...
    awkwardprincess98 awkwardprincess98 16-17, F 1 Response 4 hrs ago

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    Besides getting cheated on ...there's always been this other boy who's always trying to grab my attention He's a football, baseball& basketball player for my school he's very...
    elitedancer14 elitedancer14 13-15, F 3 hrs ago

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    It's not a song to sing. In fact, I have many. I won't die, before I fulfil all of them. Nothing will kill me, before that.
    AyushCR7 AyushCR7 13-15, M 1 hr ago

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    I was just betrayed by one of my "closest" friends. She just ditched me while we were on a weekend away. She planned the weekend for us. She seemed so excited about it. Then there...
    iseekhim iseekhim 36-40, F 4 Responses Mar 19

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    Fortunately I am self-employed and can sleep the hours I "like" to 6AM-1PM. Not that I really want to be this way, but every time I try to reset to normal time, it only lasts a...
    Pozadam Pozadam 46-50, M 1 Response Mar 19

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    Another night of this... It always happens to me when I have to wake up really, really early.
    irishp irishp 22-25, F 2 Responses Mar 19

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    Whether or not I write it I do always have a story in mind
    holehearted79 holehearted79 31-35, F Mar 19

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    I went to a very relaxing nude caravan resort for two weeks on my own. I had been to a nude beach but thought it would be nice too be nude continually for two weeks. Although the...
    lezman lezman 41-45, M 2 Responses Mar 19

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    When I was 19 I was homeless for 4 months. My boyfriend of 3 years at the time decided he wanted to spend all our money on indulgences in stead of paying our rent and then...
    sighimnotgoodwithnames sighimnotgoodwithnames 22-25, F 1 Response Mar 19

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    Any suggestions on how to? I've been down in the dumps since yesterday and need to have a good day to help me.
    hn6653 hn6653 13-15, F 1 Response Mar 19

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    Well, since I'm on a Fates Warning kick, here's a FW song that reminds me of ILIASM, reset sex, and those SM folks going through therapy and divorce: "Eye to Eye." Sometimes with...
    indianoutlaw indianoutlaw 31-35, M 1 Response Mar 19

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    Hi I have vitiligo for the last 2 year ago and , I buy product in (http://herbomex.net/), do you know about this product ? is reliable.?
    mateo2000 mateo2000 31-35 Mar 19

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    Yes, I do, and there's nothing to be ashamed of. So what if i'm 17 and I own a diary? I'd rather trust myself, my pen and my pages than some people who could backstab me anytime...
    raisasemanova raisasemanova 16-17, F 1 Response Mar 19

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    Ok really need advice. I've known this guy for a while and have liked him for about the same amount of time. He is super sweat and funny, and he's nerdy but the cute kind of nerdy...
    Frankie908 Frankie908 18-21, F 3 Responses Mar 19

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    No amount of sleep, coffee, loud music, or inspiring quotes seem to do much for my energy levels. I am dragging myself places. It's hard to believe I had the precocious willpower...
    LordSphinx LordSphinx 13-15 Mar 19

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    My story is a bit different. I have a half sister that I've never met bad can't find that was adopted to another family in 1964. We share the same mother.
    Booksaremypassion Booksaremypassion 41-45, F Mar 19

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    I have one in the between my eyebrows my grandmother calls it my third eye the shivia eye. In school a lot of my peers mistakes it for a bindi and figured that I was Indian. But I...
    vialeivia vialeivia 18-21, F 1 Response Mar 19

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    Would be nice just to chat someone with interest in books on wattpad like I am.I would be delighted to share what I read and write on wattpad. It should be fun.To have a clean chat...
    Virtualhugger Virtualhugger 22-25, F 1 Response Mar 19

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    I want a small circle of people I can't talk to, I'm not bi but girls and boys. I don't have any in my circle right now.
    Jaycie82 Jaycie82 13-15, F 1 Response Mar 19

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    Sometimes, in order to get people to understand how you really feel about someone, you have to be kind of an *** to the people they like. Sometimes being mean pays off a little bit...
    Alexdrunkunc Alexdrunkunc 18-21 Mar 19

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    It has been four and a half years since I got sick. I have extreme abdominal pain, joint pain, degenerative disc disease, and I am always tiered. I don't know whats wrong with me...
    HelloGoodbey HelloGoodbey 16-17, F 3 Responses Mar 19

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    I have a crush didn't want it happen because am happy in a relationship not sure what am mentioned to do about it
    24chris24 24chris24 22-25, M 1 Response Mar 19

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    I am in love with a girl named Adeline. Even though we aren't together since she's seeing someone else, it doesn't change the love I have for her. I just wish I could tell her 'I...
    aldrincr aldrincr 18-21, M Mar 19

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    the green grass between his toes. Lately, as warmer weather approaches, Phoenix takes his shoes off and tickles his toes in the green grass. as the world turns and turns again...
    morningstarr morningstarr 31-35, F Mar 19

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    So... i'm around 5'1 and a half, I weigh about 12.5 stone. Needless to say that i'm quite a bit overweight. But holy ****... I don't know what happened, but everything's going...
    Narfypoitzort Narfypoitzort 18-21, F Mar 19

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    We all have secrets the kind you only share with special friends you can 100% trust
    tom1851 tom1851 46-50, M 1 Response Mar 19

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    My boyfriend just left to basic training in fort ben. Ga. On the 16th. Today is the first day I haven't spoken to him and I feel lost. I need suggestions on things to do to past...
    kpickles kpickles 18-21, F 1 Response Mar 19

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    He everyone i just want to give a quick testimonial! About 2 months ago I got started with a company and so far in the 2 months I have made $6,414!! Its so simple and if you...
    lkowalski1821 lkowalski1821 22-25, F Mar 19

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    So basically, I was tricked by my counsellor into going into hospital. I was in my second ever week of counselling, and not gonna lie, I was a mess. Anyway I wasnt suicidal at this...
    xMina97x xMina97x 22-25, F 1 Response Mar 19

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    I have a problem and it's me. I hit my boyfriend of 3yrs over the weekend. we had gone out for St. Patrick's day and had to much to drink. I know that is no excuse. I hold...
    wtfsolost wtfsolost 36-40, F Mar 19

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    I Enjoy Being Seen Naked ... especially in public , and have since I was a teenager . Running at night wearing loose , brief , high-cut shorts , tearing them off in bushland...
    RandomBloke01 RandomBloke01 41-45, M Mar 19

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    I also have a thing for BBC! My girlfriend and I will go out to nightclubs and meet a good-looking black guy and most times bring him back to our hotel room and play all night long...
    chris69er chris69er 41-45, M 8 Responses Mar 19

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    I'm so worried that I may get nominated for this no make-up selfie thing going around on facebook... I know it's a great thing to do to raise awareness for cancer research, but I...
    mblo2984 mblo2984 18-21, F Mar 19

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    I have autism and not afraid to say it. Please join me and speak up so we can together say we are different but apart of the community and this world !
    Lonewolvesinc Lonewolvesinc 26-30, M Mar 19

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    Guys must be turned out by the fact that you don't care to have them, because as soon as you act like you care all hell breaks loose! Ladies I know you feel where i'm coming from
    levitacus26 levitacus26 22-25, F 1 Response Mar 19

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    I'm 14 and a virgin..I got my period 1.5 years ago...and now I haven't had it for 7-almost 8 months!
    mickeycianna mickeycianna 13-15, F Mar 19

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    I thought everything was perfect in my relationship, I had given up my family and my home to be with the girl, but not long afterwards she cheated on me with someone I know (and...
    Kurt18 Kurt18 18-21, M Mar 19

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    I have a major crush on my best friend! He's straight but a couple years ago I was so sweet to him that he wanted a bromance with me. We did that for a while and I got to kiss him...
    Deadlesszombie Deadlesszombie 16-17, M 1 Response Mar 19

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    I have to tell her. But I can't... I'm ashamed..
    mkenzi0924 mkenzi0924 22-25, M 2 Responses Mar 19

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    Well there's not much to say you've read it all and I have a crush.
    javies99 javies99 13-15, M Mar 19

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