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I Have Syringomyelia

A Syringomyelia anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Syringomyelia. You're not alone. 16 People

    I Have This Disease

      i have something called syringomyelia it's a spinal disease where there's fluid in the spine. I took finding out that I also had cerebral palsy and a conversion disorder to discover this. I am one of the lucky ones for now the cyst in my spine is to small to...
    Passionfruit3 Passionfruit3 18-21, F 2 Responses Aug 29, 2009

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    I Have It Too

    Hi there, I've had syringomyelia for nearly 10 years and I'm absolutely fine. Keep positive. Don't dwell on it. Stay strong in the body. Take folic acid. xx
    robandjayneg robandjayneg 41-45, M Oct 2, 2010

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    I Have Syringomyelia And Fibromyalgia

    I have had extreme headaches, pain and weakness in my left arm and both legs for the last 10 years. As the pain, numbness, tingling and weakness got worse I would continue to go to the doctors with them saying that its stress. I went through an episode several years back with...
    Hopestrengthcourage Hopestrengthcourage 36-40, F Apr 4, 2013

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    I Have Syringomyelia

    I have just found about 2 months ago that I have syringomyelia. I have it from my c6-t9. I am going to see a neurosurgeon in oct 12 and am very nervous/scared. I know what syringomyelia is but would like more information about surgeries an complications thank you.
    Stronggirl4 Stronggirl4 16-17, F 3 Responses Sep 22, 2012

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    "i Have Syringomyelia" And Need Someone To Talk To Please.

    "I Have Syringomyelia" and had surgery 2 years ago putting a stint in my spine. It has not helped and my symptoms have gotten worse.  It is the hardest thing to explain to someone what its like to have this. They want to put a stimulator in me since I have problems with my legs...
    billy1088 billy1088 56-60 1 Response May 4, 2012

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    I have had two surgeries already

    for syringo, but I am going to have my third one for a second shunt soon.
    leew123 leew123 22-25, F 2 Responses Mar 13

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    Related Experiences

    Not a lot of people seem to have heard about BDD. I've even had a few psychiatrists and therapists who had not heard of it. To quickly explain it before I really talk about how it...
    SailingwithSparrows SailingwithSparrows 22-25, F 1 Response 4 hrs ago

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    September 2010: Sometime this month, without knowledge, I conceived my second child. I was living in Dodge City, KS with my ex fiancé and his son. We were constantly fighting and...
    Krissysheart Krissysheart 22-25, F 2 Responses 11 hrs ago

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    It all started when I got really bad pains in my joints every day it was a new pain somewhere else. To be honest everyone thought I was crazy I knew something was wrong. So a few...
    HannahdawnK HannahdawnK 18-21, F 1 Response 10 hrs ago

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    I don't quite know where to begin. I am feeling that there is absolutely no point in being so close to anybody anymore. It just hurts too much when they are gone. I have lost...
    SteelPearl SteelPearl 46-50, F 1 Response 8 hrs ago

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    Me too., i have terrible memories of school .. I feel i missed a lot of my education dealing with bullies n meanies that i couldnt comcentrate on my studied. I was made to feel...
    Janeysunshine Janeysunshine 36-40, F 2 Responses 4 hrs ago

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    I am Lisa new here. I don't know how to describe myself. I am a sentimental but optimistic girl. I feel so lone and helpless when I was told that I had affected with herpes.I have...
    herpesltr herpesltr 31-35 1 Response 11 hrs ago

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    Welp so it looks like I'm the first post here. *takes a deep breath* okay, so my mom who is now 37 years old is a drug addict, more specifically meth, speed, heroine and whatever...
    Cryingsmile Cryingsmile 16-17, T 2 Responses 10 hrs ago

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    After 21 years of marriage, my wife wanted me to take another woman out to dinner and a movie. She said, “I love you, but I know this other woman loves you and would love to...
    sapphire601 sapphire601 31-35, F 8 hrs ago

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    I don't enjoy the career path I chose. I'm not that good at it either. I'm 32 and have no clue what to do with myself. 3 years ago I started college. My plan was to get an...
    Roxvox Roxvox 31-35, F 2 Responses 1 hr ago

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    It is a friend with benefits rather than multiple like the title suggests. I have never done it before. Probably wouldn't do it again. But now I feel trapped and I think he does...
    starflower1 starflower1 26-30, F 2 Responses 11 hrs ago

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    Okay this is something sorta crazy I know. Back when I was 13 I was raped on my way home from school and I didn't tell anyone and it broke me and ripped me apart still today I...
    Finniees Finniees 16-17, F 9 hrs ago

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    I am repulsed by them. I have encountered many and our personalities don't mesh. I try to tolerate them but sometimes I feel we speak in different language and live in a different...
    Susana1985 Susana1985 26-30, F 1 Response 8 hrs ago

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    I don't know why but ever since i was little i have peeled my skin and its only gotten worse over the years. I want help with it but i don't know if anyone can help me. Right now i...
    Caitlinsmith1636 Caitlinsmith1636 18-21, F 3 Responses 7 hrs ago

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    A couple of nights ago, I woke up from a deep sleep and had a weird epiphany about myself. I've always really enjoyed taking and being in pictures, but as of late, I've really...
    ohjoyousone ohjoyousone 26-30, F 4 hrs ago

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    I just want to have some fun. the rules are simple: 1. keep this clean. 2. respect others religious beliefs. 3. have fun. this is a learning argument. keep it light!! if you feel...
    DracovNasser DracovNasser 18-21, M 1 Response 4 hrs ago

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    I've been cooking up a storm -- since I no longer have jet lag. I've been cooking a lot of steak, and that is quite unusual because I'm not a big beef-eater. I made fajitas with...
    aepteewS aepteewS 41-45, F 2 Responses 3 hrs ago

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    And I'm bipolar with ADHD and Psychosis. I take meds and I feel pretty good but I notice that my mood swings now are circumstantial. I find it difficult to cope with life. My...
    Roxvox Roxvox 31-35, F 1 Response 37 mins ago

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    I've been injured since April 2, 2014. I smash my left index finger. Got let go the same day. I became jobless and things started to go down hill. Several doctors check only my...
    rukifuiai rukifuiai 22-25, F 3 Responses 34 mins ago

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    (Pic) Ya i have bad days, but they could be worse. I feel sorry for Mr. Stickman. He really has been out through a lot all these years.
    QuiltedBathwater QuiltedBathwater 18-21, M 1 Response 11 hrs ago

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    I was raped by my brother of 8-9 years my age; who was beaten and raped by my half brother of 10-11 years my age who was raped by his mother and beaten by our father. Fun family...
    LightYagami LightYagami 18-21, M 11 hrs ago

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    I am new to this site. misdiagnosed at 2 then again at 8 and finally diagnosed correctly with BM. MDA camp every summer but i still feel pretty alone. still struggling with the...
    sydneyalexis97 sydneyalexis97 16-17, F 11 hrs ago

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    Yep lol it is my weakness I have when it comes to attractive guys
    Unsettledteen Unsettledteen 18-21, F 1 Response 11 hrs ago

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    It's such a crazy things that I have to wait someone after I know he'll not come back 😒
    solida solida 18-21, F 9 hrs ago

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    People like myself need to be encouraged to put her own needs first and to find a relationship that reciprocates. I have been way, way too selfless. A traumatic pattern of being a...
    Ajushi Ajushi 31-35, M 9 hrs ago

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    So as u all know I'm jadah doll. And so many of u say I'm fake when others say amazingly nice things so thank you but I'm not who u think I am Al the people who think I'm fake...
    GIRLYGIRL894 GIRLYGIRL894 18-21, F 9 Responses 9 hrs ago

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    I had my heart broken by this person i was in a not official relationship with for about six months. We were and still are very close. What happened was that i started to get a bit...
    Rei124 Rei124 13-15, F 9 hrs ago

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    For the past week I've been running on 2 hours of sleep every night. I've tried absolutely everything. Nothing works. By the time I fall asleep it 4 am. I have to be up by 7 for...
    dirtbiker1254 dirtbiker1254 22-25, F 1 Response 8 hrs ago

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    Its not a major problem. Im not sure if some people will qualify it as a problem. But i consider it a problem. When ever i cuddle up with something i have a habit of nuzzling it...
    BDSMFan1 BDSMFan1 22-25, M 1 Response 8 hrs ago

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    They say having strict parents will discipline your kids for the better. But despite what my parents said I still went on with my life doing horrible and regretful things behind...
    Ennevi Ennevi 18-21, F 2 Responses 8 hrs ago

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    Why should I have a right to judge someone else's relationship based on their race?
    GemmaWeasley GemmaWeasley 13-15, F 3 Responses 8 hrs ago

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    Yes, I do have a name - Mz. *****. I am not your babe, baby or your honey, sexy, sweetie, sweetheart, darling. Call me babe, and you are blocked. It's quite simple really.
    whatyathinkaboutthat whatyathinkaboutthat 36-40, F 6 hrs ago

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    I call my freckles "angel kisses". I have so many of them, but they are all over my body, from head to toe, I hate them so much! They're super annoying. Isn't there a medicine to...
    faithomfg faithomfg 16-17, F 2 Responses 6 hrs ago

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    This song has always struck a chord with me. Not because of the girls bouncing on the bed. Not because of the window onto an underwater scene, Not because it’s by Leonard...
    BeauDaddy BeauDaddy 61-65, M 1 Response 5 hrs ago

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    I can't believe it I'm 50 years old and I not only had a vivid dream it was erotic and sexual usually I get aroused a bit the reach over and try to wake the old man up for a quick...
    Organia Organia 46-50, F 2 Responses 5 hrs ago

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    I was married once, my marriage was annulled. I have a daughter who lives with me. She is always a part of me, and will always be with me. I need a man who will understand and...
    MissKassandra MissKassandra 31-35, F 3 Responses 4 hrs ago

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    I assume to much i am jealous if he even talks to a girl i just want me nd him thts all ! But i have insecurities i stress to much tbh.
    ashley486 ashley486 13-15, F 3 hrs ago

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    I just wanted to say to whoever this might be relevant to: I'm sorry I haven't been in in so long! I'm not purposely ignoring anyone, but I'm just really busy right now, and my...
    cloud49 cloud49 13-15, F 3 hrs ago

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    I'm afraid of tight spaces I'm afraid to fly I fear rejection I'm afraid of being alone I have a lot more that i can't think of.
    QuiltedBathwater QuiltedBathwater 18-21, M 3 hrs ago

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    I am part Polish I always thought the Pollocks got a bad rap Why we are beautiful. smart and intelligent ppl We arre known for making a sausage into the best piece if...
    suzysleevereinvented suzysleevereinvented 41-45, F 1 Response 3 hrs ago

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    Today has been good so far! My pain is manageable at the moment. We are in the middle of a long day out with the children picnicking, games and time together. First time I have...
    squirllykid squirllykid 46-50, F 2 hrs ago

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    I've read up on symptoms and I match nearly all of them but I feel like if I go doctors they will just think I'm an idiot for pointing it out, can someone give me advice please I...
    maddieXxx maddieXxx 16-17, F 2 Responses 2 hrs ago

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