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I Have Syringomyelia

A Syringomyelia anonymous support group with information on diagnosis, treatment, symptoms, along with personal stories and experiences with Syringomyelia. You're not alone. 17 People

    I Have Syringomyelia And Fibromyalgia

    I have had extreme headaches, pain and weakness in my left arm and both legs for the last 10 years. As the pain, numbness, tingling and weakness got worse I would continue to go to the doctors with them saying that its stress. I went through an episode several years back with...
    Hopestrengthcourage Hopestrengthcourage 36-40, F Apr 4, 2013

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    I Have Syringomyelia

    I have just found about 2 months ago that I have syringomyelia. I have it from my c6-t9. I am going to see a neurosurgeon in oct 12 and am very nervous/scared. I know what syringomyelia is but would like more information about surgeries an complications thank you.
    Stronggirl4 Stronggirl4 16-17, F 4 Responses Sep 22, 2012

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    "i Have Syringomyelia" And Need Someone To Talk To Please.

    "I Have Syringomyelia" and had surgery 2 years ago putting a stint in my spine. It has not helped and my symptoms have gotten worse.  It is the hardest thing to explain to someone what its like to have this. They want to put a stimulator in me since I have problems with my legs...
    billy1088 billy1088 56-60 1 Response May 4, 2012

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    I Have It Too

    Hi there, I've had syringomyelia for nearly 10 years and I'm absolutely fine. Keep positive. Don't dwell on it. Stay strong in the body. Take folic acid. xx
    robandjayneg robandjayneg 41-45, M Oct 2, 2010

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    I have had two surgeries already

    for syringo, but I am going to have my third one for a second shunt soon.
    leew123 leew123 22-25, F 2 Responses Mar 13

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    I Have This Disease

      i have something called syringomyelia it's a spinal disease where there's fluid in the spine. I took finding out that I also had cerebral palsy and a conversion disorder to discover this. I am one of the lucky ones for now the cyst in my spine is to small to...
    Passionfruit3 Passionfruit3 18-21, F 2 Responses Aug 29, 2009

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    Related Experiences

    I have no real people to turn to. The internet helps though. people on the web are the nicest I have ever met and they help me. talk to me, but its not enough. I want to be able to...
    ShhhAnon ShhhAnon 16-17, F 4 Responses 9 hrs ago

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    I have five alters that I keep in check for the most part, one of them has been acting up lately because he represents my sexual side and my dad's girlfriend's son is hot, add that...
    idenmarshals idenmarshals 18-21, M 1 Response 7 hrs ago

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    So it's not really something i have... But this just annoyed the **** out of me. Soo i took the past like 35mins typing out my experience. Okay, i understand it was a mature topic...
    white701 white701 18-21, M 7 hrs ago

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    My professor pulled me aside after class and asked if I have a medical background (cuz it shows in my presentations). I said I don't have a professional background but I...
    Terrain12 Terrain12 31-35, F 3 hrs ago

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    Trust... When someone you trust hurts you they have no idea how you feel. How bad the hurt is by what they have done and how ultimately betrayed you feel. And let me tell you...
    Jenezebel Jenezebel 26-30, F 40 mins ago

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    I have a hard time with emotions. I hole them up in me until I cant anymore and I freak out and have attacks. It sucks and it hurts. all the emotions come at me at once and I feel...
    ShhhAnon ShhhAnon 16-17, F 1 Response 9 hrs ago

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    So I'm going to a party tonight, and it's usually at parties that it gets bad. I don't have any anxiety meds, but if there are any common remedies I could find around the house...
    laurynnm43 laurynnm43 16-17, F 1 Response 9 hrs ago

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    I asked this as a question for a story, then discovered it was a group! Well, I have to agree. My parents were like 12 years apart and were the happiest couple I'd seen. Love is...
    TheEmberLeader TheEmberLeader 22-25, M 8 hrs ago

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    Thinks I may have fallen in love with my bestfriend of over 10years
    WonderlandOfAlice WonderlandOfAlice 26-30, F 6 hrs ago

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    I have no one in the whole world to take care of me. No one to fall back on when things go dark. You are my community and you are my people and I don't know what I'd do without you...
    kiddishguy kiddishguy 26-30, M 3 Responses 6 hrs ago

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    Burning sensation that feels like it traveling in a path. Is that normal. Does anyone have that happen to them?
    TCL009 TCL009 41-45, F 5 hrs ago

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    Was told 3 months ago I have CRPS. Now what?
    TCL009 TCL009 41-45, F 5 hrs ago

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    You're not just born with self respect, a lot of people don't know their self worth. I was one of them, I didn't realize my self worth was not linked to what others think or value...
    Offing Offing 18-21, F 1 Response 5 hrs ago

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    Life is a like a dream. Dream interpreters say that in dreams a house represents a dreamers mind. So if one dreams of being stuck in a house with many rooms unable to get out and...
    JoannaBe JoannaBe 41-45, F 5 hrs ago

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    I usually don't have anger towards others or the urge to prove people wrong. But now it's my pleasure to prove MF's wrong (; #SweetSatisfaction
    FreeSpirit02 FreeSpirit02 18-21, F 4 hrs ago

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    I don't know but.. I like him. CU's I like guys like him.. high sense of humour.. quite smart.. as if I can rely on him on anything. :) actually, even though I know how to do a...
    blitzkrieg7 blitzkrieg7 22-25, F 4 hrs ago

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    $800 for my Licenses(not including insurance). $800 for my braces. $200 to fix my phone. I have too much anxiety to get a job, but I think this is gonna be my breaking point...
    FreeSpirit02 FreeSpirit02 18-21, F 7 Responses 3 hrs ago

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    I'm so wet right now! Why should a married person be horny if that can't have s.ex.! I want to be f. Ucked really hard now but instead he sleeps. I want anal really bad but hunks...
    yesmeik yesmeik 22-25, F 2 Responses 3 hrs ago

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    I'm in a really sticky situation that I never intended to be in. I was way behind on bills so I thought shop lifting would be an excellent idea (worse idea ever!) to help get...
    Bugs014 Bugs014 18-21, F 2 Responses 2 hrs ago

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    Never have and never will. If it comes to a relationship then he is the only one for me, there's no thing such cheating, not even flirt with other guys. Just end it right away if...
    Ellanese Ellanese 22-25, F 1 Response 2 hrs ago

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    I think I tend to make poor decisions which have caused strain in my relationship with my husband because of my poor self esteem.
    katzbrow katzbrow 26-30, F 6 Responses 2 hrs ago

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    I looked up the reoccurring numbers and found out about this twin flame phenomena I think I might have found my twin flame. I met a girl online who I was instantly attracted to but...
    Jayembe Jayembe 31-35 1 hr ago

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    I long for my breasts to be sucked by a beautiful woman with a good latch and I would also love to latch on to her and suckle mmmm ... That would be amazing to be watching tv and...
    Sexylexy03 Sexylexy03 22-25, F 3 Responses Oct 1

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    Technically I haven't but I was close. I went to visit my one of my ex best friends in his home town with my other best friend. We go to the beach and just walk around drinking...
    pinkypie5 pinkypie5 22-25, F 4 Responses Oct 1

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    When I was younger, I loved older women. However, as I have gotten older I have begun to like younger women. I am 25 and usually don't like to date women older than 20. I think it...
    bktaylor1989 bktaylor1989 22-25, M 1 Response Oct 1

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    Does anyone have anxiety and smoke to help relieve it? I smoke cigarettes and I'm trying to stop after years of smoking, I get really bad anxiety when I start to withdrawal. It...
    mattcom mattcom 22-25, M 3 Responses Oct 1

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    Add me if you have it! I am 'TegsDaUnicorn' :DDD
    0LOvEsHaTeRs0 0LOvEsHaTeRs0 13-15, F Oct 1

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    Ive been taking lexapro for almost 4 months; stopped taking them a couple of days ago and now i feel woozy, light headed and angry some of the time. I get these feelings of muscle...
    xsmall xsmall 18-21, F Oct 1

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    He's a cute *** sexy dude and I love him, we've been talking for about 2 weeks now on here and we've FaceTimed a few times...I have a crush on him...but I live here in vancouver...
    Nathanlucky021 Nathanlucky021 13-15, M 2 Responses Oct 1

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    I've had sex in a car 3 times...actually once was outside the car in a parking lot. I also had sex in my car and was almost busted by the cops. It was so hot!! I still have the...
    askmeplease askmeplease 41-45, F 4 Responses Oct 1

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    why the **** do you have to keep telling me I'm anti social. want me to say hi to you every five seconds
    XxSxarletxX XxSxarletxX 16-17, F 1 Response Oct 1

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    I have a iced soya pudding, a small cup of Horlicks and a large cup of bitter green tea. I've already eaten the pudding. Which should I drink next? The green tea or the Horlicks?
    DarkLoser DarkLoser 13-15, F Oct 1

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    I have no idea if this is the right group to post this. I get contacted by 16-17 yr old girls frequently on EP lately who always say the same thing, I'm starting to think it's the...
    Junkard Junkard 22-25, M 5 Responses Oct 1

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    About a year ago I became responsible for my own clothes. So when some article of clothing goes missing, I notice. Lately I noticed that some of my hoodies are gone. I wear hoodies...
    laurynnm43 laurynnm43 16-17, F 1 Response Oct 1

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    A member of my family stole from me. I'm usually not a push over although I'm generous. I haven't spoken to him since he did it. I love him. I'm angry. I'm disappointed in him for...
    Back2Sue Back2Sue 46-50, F Oct 1

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    It's so hard to struggle against the negativity of your own family. They're not bad people, just have bad mindset about certain stuff. I mean, it's consuming a big chunk of my own...
    XyoXy XyoXy 22-25, F 2 Responses Oct 1

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    I don't get how people can be able to have hundreds of friends... Most of the people I know are somewhere between acquaintances and friends. And there is a smaller group that I...
    Roccondil Roccondil 22-25, M 1 Response Oct 1

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    Recently it's getting worse. Don't know why it's like everything's spinning and my head hurts and I'm not even drinking. What is it? Stress maybe people have been pressuring me to...
    SwanNual SwanNual 22-25, F 1 Response Oct 1

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    It is useless to have talents if you do nothing about them.
    XyoXy XyoXy 22-25, F 2 Responses Oct 1

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    I have more piercings than tattoos. I think I will work on the ink side of things now. :)
    Misjodie Misjodie 26-30, F 3 Responses Oct 1

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    Probably by more people than I can remember. I have had a wild life so far. Hopefully it doesn't change!
    iloveallfemales iloveallfemales 31-35, M 1 Response Oct 1

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